Suffered with endo for too many years. First told I had IBS but the treatment for that didn’t work. It wasn’t until I had pain on my bladder when voiding, but only during my period. That cyclic pain is what sent me to gynae. It took eight years and a trip to A&E that started to get to the problem being fixed. Now 53 years old and not one surgery. Was put through medically induced menopause three times. This told the Dr his suspicions of endo were right. An ultrasound after that showed adenomyosis. No one should suffer their entire fertile years. My pain was finally validated. I finally discovered using a tens machine was the only thing that helped. A Myoovi tens machine is brilliant, however that doesn’t stop the loose bowel movements. Imodium helped with that. Now menopausal and no more cyclic pain. However the pain is now constant but milder. My heart goes out to all those suffering. Needing a tens machine for period pain is not normal. Seek help.
How I wish to had seen this video 9 years ago. It would had saved me so many doctors appointments and money. I was misdiagnosed with IBS and I was told many times in the ER that it was in my head. That maybe I was under a lot of stress. What made it harder for me to get diagnosed was that I didn’t have a period since, I had a hysterectomy years prior to my endo pain. Long story short . I diagnosed myself and started doing my research on doctors that specialized in Endo. Found a wonderful doctor and I had my surgery back in May of 2019. It turned out that most of my endo was in my large intestine. I had 4 inches removed. After a long recovery due to getting infections after surgery. I’m able to live a happy pain free life. I see life different now. Ladies when you feel pain it’s real and only you know what you feel don’t let anyone tell you that it’s in your head. There is life after endo. Do your research and find a good specialist. Not just any gyno can remove endo. Thank you for this video. I’m sure it will help a lot of women out there.
Would you feel comfortable sharing how your bowel endo was described that had to be removed? I have deep infiltrating endo on colon and am worried. Tysm
I have pain when I pee too. It’s almost hard to pee sometimes. But pooping feels like obstructive bowels because it’s so painful it’s hard to push them through.
Thank you for talking about this. I was diagnosed with IBS 10+ years ago. I have known for years I likely have endo in general due to my other symptoms and family history. However, it has taken me a long time to get people to actually listen to me. My symptoms have just gotten worse and worse as the years went on. It got to the point where I have passed out several times from the level of pain I have when having a bowel movement (diarrheas). 2 weeks ago I finally got laparoscopic surgery done and they found endo all over my colon. I am now being referred to a specialist to see what my options are for removal and controlling the symptoms.
I forgot to mention... I didn't know I had rectum / bowel endo when I talked to my Endo specialist... I was diagnosed with IBS as a teenager and so I thought it was separate. I didn't bring up that I had painful bowel movements, throwing up, and especially diarrhea while being on my period. Horrible extreme pain. And I would have these blood clots come out (once I was on blood thinners at age of 19). It was awful. I literally thought I was dieing every period. So yeah anyone reading this. Tell your Endo Dr EVERYTHING that you have, not just period stuff. Tell them if you have other issues during your periods like painful bowel movements etc
It wasnt until I had blood during bm that my dr FINALLY sent me to an endo specialist(even though my uterus was already enlarged). I didnt think it was all related either!
This is all lining up with my symptoms 😭 been struggling with rectal bleeding for more than three years now and am constantly being told it’s nothing. Have painful periods, pelvic pain, etc. Have had two colonoscopies and they are wanting to do another one late this year. Going to look into finding a specialist. Thank you!
Same and mine started after my first c section and it was emergency c section. It’s been a horrible experience and I’ve gain so much weight with the from the never ending inflammation and bloating
I think i have this but the doctor is chalking it up to IBS. I have it along with leg pain and back pain. I’m hoping to get further specialist work soon. I really appreciate this video!
Hopefully you get some answers - happy that you've seen a doctor to get things checked :) Thinking of you and hoping that you receive answers to your pain.
I have always had horrific periods but was diagnosed over a decade ago. I have had one operation. Currently have pretty much all symptoms of endometriosis and crippling fatigue. I have been on the waikting list for a gynecology appointment for over 2 years and had 5 appointments cancelled. I honestly feel helpless. Its affecting my daily life, parenting and career. I feel like no one understands or realises the struggles as it is not visible.
I've been eating magnesium like crazy for weeks now and I can attest it works!! I will never go a day without taking magnesium every again. Also EAT MORE GRASS-FEED MEAT. that turned my symptoms around in like 2 months.
Yup! I suffered from Rectovaginal endometriosis for 4years with dreadful periods , constant spottings, bleeding when I poop only during periods and OMG the pain while pooping and from my rectum all through the days of my period … I had rectal resection December 20th 2022 to remove the endo from my rectum and I have been carrying an ileostomy bag for the pass 4 months .. it’s only temporary though , and waiting for the hole in my rectum to close up before I can get a an ileostomy reversal. Endo sucks! I’m glad the endo was excised ., Now I just have to get rid of the temporary ileostomy … it’s been a very hard journey .. oh I coudnt even have sex for four years , cos I will bleed as soon as penetrating began .. ughhhh!!!
Im having rectal endo for 9 years now and i"ll be having surgery finally. Dont ask me why i couldnt get proper care earlier, i can only tell you that i really couldnt.... because of so many internal and external factors in my life. It was one hell of a journey, i really hope to be old me again, before i got this awful thing. I felt my first symptoms at 17, now im 26. I had one surgery already when i was around 20/21 but the doctor hasnt cleansed endo on rectum.
You're doing incredible work with this channel. 😭🥺 Instantly subscribed and when I get home from work tomorrow I will be binging so many of your videos. 🥺💖 Sending y'all love and light, my friends 💕✨
I had adenomyosis and lately I’ve been constipated and when I had a bowel movement, there’s sharp pain and bleeding involved. All the pain you just described I had it since puberty but was only diagnosed properly in my 40s. Now I’m menopause and still having these pains.
Just had surgery 2 weeks ago. It was on my abdominal sidewalls and adhered my bowels to my sides. It was on my vaginal cuff and rectum and ovaries, and in the front of my abdomen. I'm excited to feel better.
Hi there! Very nice and helpful video indeed! Do you happen to know if bowel endo is always painful? I mean I have all the symptoms you mentioned except for pain. And 12 years ago I had an endo surgery due to ovarian endometriomas and the doctor then told me that he also removed endo tissues from my bowel. And to be honest I did not have any pain then. I only had one intense pain that led me to the surgery. No other signs before that...
Wow thanks for the great video, I am in the progress of getting diagnosed for possible endometriosis, I kind of got a shock as just realized the bleeding from bowel movements might not be just because sometimes I am constipated 😮 I am going into theatre at the end of this month for internal camera investigations and tissue testing etc..
I struggled with the same symptoms, especially bloating and extreme diarrhea that wasn't helped by any meds. I lost 15kg in less than a year and I was literally skin and bones, not to mention that I was in constant pain and discomfort and having very heavy and prolonged periods. My gynae was constantly referring me to my gastroenterologist who found nothing but elevated CA-125 levels so he sent me back to my gynae. I was actually diagnosed with adenomyosis by a general practitioner after I went to the ER with horrible pain. Went to see a new gynae who is an endo specialist after I googled the correlation between adeno and endo and true enough, I was diagnosed with stage 4 DIE bowel endo after a laparoscopy. I was told that it was literally everywhere, the sharp pain that took me to the ER was an endometriosis nodule that was on my appendix and it was stuck and being pulled down. I got a whole lot of relief after the excision surgery though 🙂
@@Gabriellekidd Hi, my surgery was back in May 2021, so it's been more than 2 years since. I think I should mention though that I ended up developing an endometrioma in my right ovary late last year and i'm currently taking the Yasmin birth control pill back to back to stop my periods and avoid having to go back for surgery so soon. Not the best case scenario to be on the pill but I feel great, no pain and my digestion is good. Even before the endometrioma was found, my periods were not as painful nor as heavy as before the excision surgery, the endometrioma seemingly creeped out of nowhere.
I’m 60 years old and despite having a hysterectomy, both my ovaries removed and 15 pelvic surgeries I am still suffering. I have recently been diagnosed with ischaemic colitis ( caused by adhesions from endometriosis blocking off the blood supply to parts of the bowel). I had an ectopic pregnancy at 25 and my bowel was already twisted and almost blocked with adhesions so at least the diagnosis was not delayed. I had just hoped that by my age most of the effects of endometriosis would have gone. Both my daughters have it also☹️
I have a video on my channel all about leg pain and how it could potentially connect with endometriosis! Always important to chat with your doctor to see if there’s something else causing that pain 🤍
What are your pain relievers? I use hot water everytime i go to the toilet. It makes me comfortable. Water heater is non negotiable when it comes to looking for a house we live in.
I wish I knew what endometriosis was in the early 2000's or even in the late nineties. Quite sure I've had it since at least the 90s, and didn't get diagnosed till 2019.
I'm so sorry that was the case. There is a doctor out there that will believe your pain and your experience with endo! I had to go through 11 different doctors to find the one that believed me. It can be so hard to find that perfect match for us but I promise they're out there for you!
My life. Yeah I am one of those women who got diagnosed 15 years later after being gaslighted by Drs. And recently I had a pelvic Mri after a full hysterectomy and they found bowel endometriosis. All the warning signs and. Endo belly. Painful bowel and urination. The glue like substance in the pelvic cavity - the Drs told me all my organs from my bladder to my colon and rectum were all stuck together and they had to literally pull them apart. This disease. And dang like DIE. Really. Yep I feel like I am dieing sometimes. I am better now than before. I told my Dr I didn't think I could make through another period.
I'm currently waiting for my surgery to be booked, but yes, I do have endo on my colon / large bowel. Really praying and hoping that the surgery does help with the pain....
I used to use pain patches that had menthol on them but realized I could use a roll-on menthol product instead to reduce back and pelvic pain (usually used by athletes). My one warning for this method would be that you can't really put a menthol product on and then use a hot water bottle since menthol has a cooling effect. This makes it much easier if you have something going on or work and you can't just stay in bed.
Get a Dr to order an MRI to be able to see exactly where all the endo is first so if surgery is needed, they have a good picture of how deep and exactly where, so they don't miss any during laproscopy!
Have been searching for answers for YEARS! During Surgery for tube tie and draining a large ovarian cyst gynecologist found endometriosis. However failed to mention it can spread outside my uterus. When in pain it feels like someone stuck a baseball in between my lower intestines and the uterus !!!! I have explained the pain along with fatigue and I get told “ I need to stop looking for a problem.” The thoughts of wanting to tear that gynecologist apart limb from limb have crossed my mind. Several times. If he could only feel my pain for five minutes he’d finally understand. Thank you so much for explaining what I’ve been experiencing for over 10 years. Hopefully I can have surgery soon and begin to live again. I live in a small town of Crowley Louisiana. Finding a good Dr. Is not easy over here. 😤🫤
I'm so sorry that has been your experience. I promise that there are doctors and medical professionals out there that will believe your pain and experience. I had to go through several doctors over the course of 11 years to find that perfect one who finally believed me. It's completely unacceptable for individuals to wait years for answers to the pain they've been experiencing. I'm hoping that you find a doctor and an endometriosis specialist that supports your journey. You deserve that person in your chapter book who believes you! The Endometriosis Foundation of America has some helpful tips!
Mine causes me to have bad hydroids real bad, and I thought I had Crones but they found nothing but hydroids that did not explain the amount of blood I anally passed and the fact I get diarrhea more than constipation. I also have extreme pelvic pain and pressure, extreme and painful bloating.
I got a diagnostic laparoscopy done today with literally all the symptoms you mentioned plus pain during any type of intimacy. My OBGYN didn’t find endo but she did find that my uterus was attached to my colon which is a sign of endometriosis so I’m still waiting on some test results to see what’s next she detached the two. But decided not to officially diagnose me with endometriosis and I don’t understand what to do.
I have been suffering from bleeding, and have had a doctor ask me if i was sure it was not just my period blood... :( When Im on my period, the blood is so different when it is from my bowels vs my period. I then suffer from constantly needing to go to the bathroom, feeling like I need to poo but nothing passes. I suffer from diarrhoae and constipation simultaneously which ends up with me feeling like I am severely bloated which really scares me because its so painful. On a good day, I regularly go to the bathroom and pass just mucus and very rarely small hard nuggets surrounded by bloody mucus.... I have gone and had tests and yet everything has come back negative: IBS, crohns. I am still waiting for an endometriosis diagnosis and really struggling as have had so many doctor appointments and mentionned the bleeding and the pains, but Im still waiting for a solution. Your video makes me feel 100% certain that I have bowel endometriosis, but am at a loss at what I need to do get back to feeling normal again!
I’ve been bleeding from my naval off and on for years. Now I’m having quite a bit of blood with bowel movements (sometimes), so I’m really thinking it’s endo but my appointment isn’t until December.
Dose an MRI always show endometriosis? The doctor tole me he believes i have it and wants me to have a laparoscopy but said to get an mri first and i just wondered if the MRI iw negative dose that mean i dont have it?
Hey! MRI’s and ultrasounds can be helpful in diagnosing deeply infiltrating endometriosis and ovarian endometriotic cysts; however, they cannot rule out the presence of all presentations of endometriosis. Peritoneal lesions may simply be too small to be picked up on scans, but their presence can cause substantial peritoneal irritation and bleeding in the surrounding tissue, leading to peritoneal signs and symptoms. Hope this helps! Basically a negative scan doesn’t mean that endo isn’t there - it just means it’s hard to detect or see on that type of scan in some cases!
I have a 10cm cyst. I think I have endometroma, but doctor thinks it could be ovarian cancer 50% chance. I don’t think so at all. My pain is on clock, every one and half months I would have excoriating pain. (10+ level of pain) the extreme pain last for few hours but the soreness of stomachache bloating and acid reflux last like 1-3 days depending how severe the attack was. Anyone else experiencing similar attacks at all??? It feels like the pain comes suddenly. Please let me know! Now my doctor wants to surgery to remove my ovary which makes me really sad. I really don’t think I have cancer. My pain isn’t consistent, only happens when I have the attacks. I also experience stabbing sensation sometimes I go pee. But thats all to it.
When I go for nr. 2 I bleed from the front.... I'm now in treatment for endometriose gynaecology, all the hormone 'medicine' backfired and they want me to try Lucrin.... I guess I should know first if this isn't also coming from my gut... Thank you so much, were definitly not alone! Greetings 👋
Plz rply m so worried about it,doctor has given me dinogest for 3 months and after that laproscopy if not got relieved,she also said i might get problem in conceiving@@souravimylifeandmore6656
Wondering if anyone has experienced going through these symptoms and done a larascopy but Dr couldn't see anything but a small spot? Would they have been looking in the wrong places if I never mentioned my bowel symptoms because I was embarrassed
I need help!!! I have really painful periods. And I go to bathroom every day but Im full of fecals even though I normally go to the toilet. Could that be endometriosis ?? The ginecologist told me it’s not but many say that
I have endometriosis and this is no joke 7cm and i belive i have inflammatory gut and firbords i have bloating like no other and cramping when i was young i use to vomit but not any more but i notice if i eat any greasy food on my periods i vomit so i dont eat noting greasy 5 days vomiting until my periods is done
When I had the laparoscopic and I had to take out the tumor that basically ate my ride over and fallopian and he removed a lot or whatever he cut out I read the report years later when I got the report it said he saw lots of it or undiagnosed all on my intestines what else could have been if not endometriosis now I feel like it's kind of holding everything down on my left side. I just wish I had a good doctor there's no good doctors in Vegas I don't believe.
Endometriosis I did tell this awful doctor I told her for 20 years it's probably what I had but I didn't really know as much as I've been learning the last month. Just knowing my body and my symptoms and yes when I was 20 I lack of surgery to move cyst off the ovary and just return I turn 40 this sits that sat there for over 8 years was some type of tumor so it was stage four endometriosis at that time and. That was over 15 years ago when I did not have the complete distract me but it was pretty severe few more years of horrific periods and now I'm post menopausal. Close to almost a decade without periods but I'm suffering still! Doesn't just go away! Inside my uterus there's abnormal thickening they wanted to do surgical biopsy.?? Don't feel GYN doctor still know what they're doing they just want to do surgeries. I've I have another surgery I just want it all taken out I regret not having hysterectomy over 15 years ago and just leaving maybe one over eight and then I would not have to worry with all this anymore and maybe my body would have had a chance to heal.
After almost 20 years of horrible periods and all the stomach stuff that goes with it...I finally got in with a specialist after i started bleeding from my rectum. He opened me up, everything stuck together and my intestines were pulled up to my belly button and attached there...the PAIN! It used to feel like somebody was ripping my stomach open! Final dx was endometriosis, endosalpingiosis(not much info out there), interstitial cystitis and extreme scarring(i had 3 c sections). I still have pain and bloating though and now my drs left the practice :(. I will keep looking tho!
Endometriosis can sometimes be seen on an ultrasound, but it often depends on the location, size, and type of endometrial lesions. For example, ovarian endometriomas (also known as "chocolate cysts") are typically visible on ultrasound as fluid-filled cysts, which can suggest the presence of endometriosis. However, other forms of endometriosis, particularly those involving the pelvic lining, bowel, or bladder, may not be easily detected through ultrasound. MRI (Magnetic Resonance Imaging) is often considered more accurate for detecting deep infiltrating endometriosis, especially when the lesions are located in areas like the rectum, bladder, or pelvic walls. MRI provides a more detailed, comprehensive view of the pelvic organs and tissues, making it better at identifying both superficial and deeper lesions of endometriosis. In summary, ultrasound can help identify certain forms of endometriosis, but MRI is generally more effective, especially for deeper or more complex cases.
Thanks for your comment! A quick research disclaimer: The information provided on Endoemmm is based on personal experience, available research, and publicly accessible resources at the time of creation. However, medical knowledge and research are continually advancing, and older content may not reflect the latest evidence or medical standards. Viewers are encouraged to verify any information and consult up-to-date sources or medical professionals for the most accurate and relevant insights into endometriosis and related conditions. Endoemmm does not claim to offer exhaustive or definitive guidance on medical or scientific topics. Appreciate your comment and insights!
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Suffered with endo for too many years. First told I had IBS but the treatment for that didn’t work. It wasn’t until I had pain on my bladder when voiding, but only during my period. That cyclic pain is what sent me to gynae. It took eight years and a trip to A&E that started to get to the problem being fixed. Now 53 years old and not one surgery. Was put through medically induced menopause three times. This told the Dr his suspicions of endo were right. An ultrasound after that showed adenomyosis. No one should suffer their entire fertile years. My pain was finally validated. I finally discovered using a tens machine was the only thing that helped. A Myoovi tens machine is brilliant, however that doesn’t stop the loose bowel movements. Imodium helped with that. Now menopausal and no more cyclic pain. However the pain is now constant but milder. My heart goes out to all those suffering. Needing a tens machine for period pain is not normal. Seek help.
Myoovi sadly doesn’t help
How I wish to had seen this video 9 years ago. It would had saved me so many doctors appointments and money. I was misdiagnosed with IBS and I was told many times in the ER that it was in my head. That maybe I was under a lot of stress. What made it harder for me to get diagnosed was that I didn’t have a period since, I had a hysterectomy years prior to my endo pain. Long story short . I diagnosed myself and started doing my research on doctors that specialized in Endo. Found a wonderful doctor and I had my surgery back in May of 2019. It turned out that most of my endo was in my large intestine. I had 4 inches removed. After a long recovery due to getting infections after surgery. I’m able to live a happy pain free life. I see life different now. Ladies when you feel pain it’s real and only you know what you feel don’t let anyone tell you that it’s in your head. There is life after endo. Do your research and find a good specialist. Not just any gyno can remove endo. Thank you for this video. I’m sure it will help a lot of women out there.
Would you feel comfortable sharing how your bowel endo was described that had to be removed? I have deep infiltrating endo on colon and am worried. Tysm
I have pain when I pee too. It’s almost hard to pee sometimes. But pooping feels like obstructive bowels because it’s so painful it’s hard to push them through.
I'm the same! The first day or two of my period I have the hardest time peeing
I can’t even poop either that’s why I’m here on everything I love ❤️ May we all be healed
I have the same. I was trying so hard to find a way to describe the difficulties of weeing within a cycle pattern.
I'm here with same condition.... 😢
Oh no my daughter is the same but had this everyday with and without periods
I had 3 colonoscopies and biopsies-3 months in a row and finally got diagnosed with colon endometriosis.
Thank you for talking about this. I was diagnosed with IBS 10+ years ago. I have known for years I likely have endo in general due to my other symptoms and family history. However, it has taken me a long time to get people to actually listen to me. My symptoms have just gotten worse and worse as the years went on. It got to the point where I have passed out several times from the level of pain I have when having a bowel movement (diarrheas). 2 weeks ago I finally got laparoscopic surgery done and they found endo all over my colon. I am now being referred to a specialist to see what my options are for removal and controlling the symptoms.
I forgot to mention... I didn't know I had rectum / bowel endo when I talked to my Endo specialist... I was diagnosed with IBS as a teenager and so I thought it was separate. I didn't bring up that I had painful bowel movements, throwing up, and especially diarrhea while being on my period. Horrible extreme pain. And I would have these blood clots come out (once I was on blood thinners at age of 19). It was awful. I literally thought I was dieing every period.
So yeah anyone reading this. Tell your Endo Dr EVERYTHING that you have, not just period stuff. Tell them if you have other issues during your periods like painful bowel movements etc
It wasnt until I had blood during bm that my dr FINALLY sent me to an endo specialist(even though my uterus was already enlarged). I didnt think it was all related either!
I have bowel endometriosis and currently waiting for a surgery and partial hysterectomy
This is all lining up with my symptoms 😭 been struggling with rectal bleeding for more than three years now and am constantly being told it’s nothing. Have painful periods, pelvic pain, etc. Have had two colonoscopies and they are wanting to do another one late this year. Going to look into finding a specialist. Thank you!
Same and mine started after my first c section and it was emergency c section. It’s been a horrible experience and I’ve gain so much weight with the from the never ending inflammation and bloating
Hi, I have the same issue during my menstrual cycle when bowel movements happen. Have you received confirmation or clarity on this?
I think i have this but the doctor is chalking it up to IBS. I have it along with leg pain and back pain. I’m hoping to get further specialist work soon. I really appreciate this video!
Hopefully you get some answers - happy that you've seen a doctor to get things checked :) Thinking of you and hoping that you receive answers to your pain.
I had really bad IBS when I was little
Any mucus with blood discharghes only during period ?
I have always had horrific periods but was diagnosed over a decade ago. I have had one operation. Currently have pretty much all symptoms of endometriosis and crippling fatigue. I have been on the waikting list for a gynecology appointment for over 2 years and had 5 appointments cancelled. I honestly feel helpless. Its affecting my daily life, parenting and career.
I feel like no one understands or realises the struggles as it is not visible.
I have watch my daughter suffer its taken 4 years she's at stage 4 don't give up
People take magnesium. It helps with bile to soften and pass
I've been eating magnesium like crazy for weeks now and I can attest it works!! I will never go a day without taking magnesium every again. Also EAT MORE GRASS-FEED MEAT. that turned my symptoms around in like 2 months.
Yup! I suffered from Rectovaginal endometriosis for 4years with dreadful periods , constant spottings, bleeding when I poop only during periods and OMG the pain while pooping and from my rectum all through the days of my period … I had rectal resection December 20th 2022 to remove the endo from my rectum and I have been carrying an ileostomy bag for the pass 4 months .. it’s only temporary though , and waiting for the hole in my rectum to close up before I can get a an ileostomy reversal.
Endo sucks!
I’m glad the endo was excised .,
Now I just have to get rid of the temporary ileostomy … it’s been a very hard journey .. oh I coudnt even have sex for four years , cos I will bleed as soon as penetrating began .. ughhhh!!!
Is the pain better now??
I am completely pain free! Getting ready to reverse the illeostomy! Yah!
Omg, you poor thing 😢
Im having rectal endo for 9 years now and i"ll be having surgery finally. Dont ask me why i couldnt get proper care earlier, i can only tell you that i really couldnt.... because of so many internal and external factors in my life. It was one hell of a journey, i really hope to be old me again, before i got this awful thing. I felt my first symptoms at 17, now im 26. I had one surgery already when i was around 20/21 but the doctor hasnt cleansed endo on rectum.
You're doing incredible work with this channel. 😭🥺 Instantly subscribed and when I get home from work tomorrow I will be binging so many of your videos. 🥺💖 Sending y'all love and light, my friends 💕✨
Aww thanks so much!
Thank You for this informative video. ❤❤❤
Glad it was helpful!
I had adenomyosis and lately I’ve been constipated and when I had a bowel movement, there’s sharp pain and bleeding involved. All the pain you just described I had it since puberty but was only diagnosed properly in my 40s. Now I’m menopause and still having these pains.
Just had surgery 2 weeks ago. It was on my abdominal sidewalls and adhered my bowels to my sides. It was on my vaginal cuff and rectum and ovaries, and in the front of my abdomen. I'm excited to feel better.
Hi there! Very nice and helpful video indeed! Do you happen to know if bowel endo is always painful? I mean I have all the symptoms you mentioned except for pain. And 12 years ago I had an endo surgery due to ovarian endometriomas and the doctor then told me that he also removed endo tissues from my bowel. And to be honest I did not have any pain then. I only had one intense pain that led me to the surgery. No other signs before that...
Wow thanks for the great video, I am in the progress of getting diagnosed for possible endometriosis, I kind of got a shock as just realized the bleeding from bowel movements might not be just because sometimes I am constipated 😮 I am going into theatre at the end of this month for internal camera investigations and tissue testing etc..
Thinking of you with your upcoming appointment!
I struggled with the same symptoms, especially bloating and extreme diarrhea that wasn't helped by any meds. I lost 15kg in less than a year and I was literally skin and bones, not to mention that I was in constant pain and discomfort and having very heavy and prolonged periods. My gynae was constantly referring me to my gastroenterologist who found nothing but elevated CA-125 levels so he sent me back to my gynae. I was actually diagnosed with adenomyosis by a general practitioner after I went to the ER with horrible pain. Went to see a new gynae who is an endo specialist after I googled the correlation between adeno and endo and true enough, I was diagnosed with stage 4 DIE bowel endo after a laparoscopy. I was told that it was literally everywhere, the sharp pain that took me to the ER was an endometriosis nodule that was on my appendix and it was stuck and being pulled down. I got a whole lot of relief after the excision surgery though 🙂
Thank you so much for sharing this. How long ago was your surgery?
@@Gabriellekidd Hi, my surgery was back in May 2021, so it's been more than 2 years since. I think I should mention though that I ended up developing an endometrioma in my right ovary late last year and i'm currently taking the Yasmin birth control pill back to back to stop my periods and avoid having to go back for surgery so soon. Not the best case scenario to be on the pill but I feel great, no pain and my digestion is good. Even before the endometrioma was found, my periods were not as painful nor as heavy as before the excision surgery, the endometrioma seemingly creeped out of nowhere.
I’m 60 years old and despite having a hysterectomy, both my ovaries removed and 15 pelvic surgeries I am still suffering. I have recently been diagnosed with ischaemic colitis ( caused by adhesions from endometriosis blocking off the blood supply to parts of the bowel). I had an ectopic pregnancy at 25 and my bowel was already twisted and almost blocked with adhesions so at least the diagnosis was not delayed.
I had just hoped that by my age most of the effects of endometriosis would have gone.
Both my daughters have it also☹️
Courgette one question 🙋♀️ do you have like a specific diet? Or you just eat regular food like always?
I get leg pain with this too but I don’t understand why? any thoughts?
I have a video on my channel all about leg pain and how it could potentially connect with endometriosis! Always important to chat with your doctor to see if there’s something else causing that pain 🤍
Check voor pelvic congestion syndrome and dvt
You could have sciatic endometriosis
What are your pain relievers? I use hot water everytime i go to the toilet. It makes me comfortable. Water heater is non negotiable when it comes to looking for a house we live in.
I wish I knew what endometriosis was in the early 2000's or even in the late nineties. Quite sure I've had it since at least the 90s, and didn't get diagnosed till 2019.
I’m so sorry if that’s the case. You deserve a name to your pain. 🤍
I feel so ignored by them
I have come in with so many symptoms and been dismissed
I'm so sorry that was the case. There is a doctor out there that will believe your pain and your experience with endo! I had to go through 11 different doctors to find the one that believed me. It can be so hard to find that perfect match for us but I promise they're out there for you!
My life. Yeah I am one of those women who got diagnosed 15 years later after being gaslighted by Drs. And recently I had a pelvic Mri after a full hysterectomy and they found bowel endometriosis. All the warning signs and. Endo belly. Painful bowel and urination. The glue like substance in the pelvic cavity - the Drs told me all my organs from my bladder to my colon and rectum were all stuck together and they had to literally pull them apart. This disease. And dang like DIE. Really. Yep I feel like I am dieing sometimes. I am better now than before. I told my Dr I didn't think I could make through another period.
What's the glue like substance?
@@amberjean8408 have no idea. Endoemm talks about it and I had it as well. My Dr supposedly had it tested. Couldn't figure out what it was.
I'm so sorry you had to go through all of this! x
I'm currently waiting for my surgery to be booked, but yes, I do have endo on my colon / large bowel. Really praying and hoping that the surgery does help with the pain....
I used to use pain patches that had menthol on them but realized I could use a roll-on menthol product instead to reduce back and pelvic pain (usually used by athletes). My one warning for this method would be that you can't really put a menthol product on and then use a hot water bottle since menthol has a cooling effect. This makes it much easier if you have something going on or work and you can't just stay in bed.
Get a Dr to order an MRI to be able to see exactly where all the endo is first so if surgery is needed, they have a good picture of how deep and exactly where, so they don't miss any during laproscopy!
Thanks
Have been searching for answers for YEARS! During Surgery for tube tie and draining a large ovarian cyst gynecologist found endometriosis. However failed to mention it can spread outside my uterus.
When in pain it feels like someone stuck a baseball in between my lower intestines and the uterus !!!!
I have explained the pain along with fatigue and I get told “ I need to stop looking for a problem.”
The thoughts of wanting to tear that gynecologist apart limb from limb have crossed my mind. Several times. If he could only feel my pain for five minutes he’d finally understand.
Thank you so much for explaining what I’ve been experiencing for over 10 years. Hopefully I can have surgery soon and begin to live again.
I live in a small town of Crowley Louisiana. Finding a good Dr. Is not easy over here. 😤🫤
I'm so sorry that has been your experience. I promise that there are doctors and medical professionals out there that will believe your pain and experience. I had to go through several doctors over the course of 11 years to find that perfect one who finally believed me. It's completely unacceptable for individuals to wait years for answers to the pain they've been experiencing. I'm hoping that you find a doctor and an endometriosis specialist that supports your journey. You deserve that person in your chapter book who believes you! The Endometriosis Foundation of America has some helpful tips!
Mine causes me to have bad hydroids real bad, and I thought I had Crones but they found nothing but hydroids that did not explain the amount of blood I anally passed and the fact I get diarrhea more than constipation. I also have extreme pelvic pain and pressure, extreme and painful bloating.
I got a diagnostic laparoscopy done today with literally all the symptoms you mentioned plus pain during any type of intimacy. My OBGYN didn’t find endo but she did find that my uterus was attached to my colon which is a sign of endometriosis so I’m still waiting on some test results to see what’s next she detached the two. But decided not to officially diagnose me with endometriosis and I don’t understand what to do.
That is so annoying!!
Did you have low ferritin levels ,anemia due to bowel endometriosis?
That is very common with the bleeding. Many of us need iron infusions
I have been suffering from bleeding, and have had a doctor ask me if i was sure it was not just my period blood... :(
When Im on my period, the blood is so different when it is from my bowels vs my period. I then suffer from constantly needing to go to the bathroom, feeling like I need to poo but nothing passes. I suffer from diarrhoae and constipation simultaneously which ends up with me feeling like I am severely bloated which really scares me because its so painful. On a good day, I regularly go to the bathroom and pass just mucus and very rarely small hard nuggets surrounded by bloody mucus.... I have gone and had tests and yet everything has come back negative: IBS, crohns. I am still waiting for an endometriosis diagnosis and really struggling as have had so many doctor appointments and mentionned the bleeding and the pains, but Im still waiting for a solution. Your video makes me feel 100% certain that I have bowel endometriosis, but am at a loss at what I need to do get back to feeling normal again!
I feel seen 🥺😭❤️
🤍🤍🤍
My daughter diagnosed with crohns,, but why is it usually only on her periods she gets blockages
I’ve been bleeding from my naval off and on for years. Now I’m having quite a bit of blood with bowel movements (sometimes), so I’m really thinking it’s endo but my appointment isn’t until December.
Dose an MRI always show endometriosis? The doctor tole me he believes i have it and wants me to have a laparoscopy but said to get an mri first and i just wondered if the MRI iw negative dose that mean i dont have it?
Hey! MRI’s and ultrasounds can be helpful in diagnosing deeply infiltrating endometriosis and ovarian endometriotic cysts; however, they cannot rule out the presence of all presentations of endometriosis. Peritoneal lesions may simply be too small to be picked up on scans, but their presence can cause substantial peritoneal irritation and bleeding in the surrounding tissue, leading to peritoneal signs and symptoms. Hope this helps! Basically a negative scan doesn’t mean that endo isn’t there - it just means it’s hard to detect or see on that type of scan in some cases!
I'm bleeding from the rectum every period :(. I've had 2 laparoscopic procedures. It stopped for a bit but 3 years later the bleeding is back.
What is done during the laproscopic procedure?
I have a 10cm cyst. I think I have endometroma, but doctor thinks it could be ovarian cancer 50% chance. I don’t think so at all. My pain is on clock, every one and half months I would have excoriating pain. (10+ level of pain) the extreme pain last for few hours but the soreness of stomachache bloating and acid reflux last like 1-3 days depending how severe the attack was. Anyone else experiencing similar attacks at all??? It feels like the pain comes suddenly. Please let me know! Now my doctor wants to surgery to remove my ovary which makes me really sad. I really don’t think I have cancer. My pain isn’t consistent, only happens when I have the attacks. I also experience stabbing sensation sometimes I go pee. But thats all to it.
Did you find out if it was cancer or not?
It was not cancer and but lost my ovary because of that.
I’m happy it wasn’t cancer but so very sorry you lost your ovary. I’m praying for you!
@@S.F.A.thank you so much ❤
Bowl n rectal?
The bloating just getting out of the bed ,the nausea and pain u mentioned.
Pms flu also cause bloating and diarrhea, almost similar symptoms like Endometrosis 😢
Im so scared I’ll have to have bowel resection its such a dangerous surgery 😔
When I go for nr. 2 I bleed from the front.... I'm now in treatment for endometriose gynaecology, all the hormone 'medicine' backfired and they want me to try Lucrin.... I guess I should know first if this isn't also coming from my gut... Thank you so much, were definitly not alone! Greetings 👋
Me too!😮
I have endometriosis for over 30 years
Can i have endomitrioma of 8 cm without bowel endometriosis?? But having git symptoms as it is not shown up in MRI
90%time endometriosis is not shown in MRI. I also has 2endometrioma with GI and bladder syndrome but only the cysts were shown inMRI.
So what treatment do you take?? Are u fine now?@@souravimylifeandmore6656
Plz rply m so worried about it,doctor has given me dinogest for 3 months and after that laproscopy if not got relieved,she also said i might get problem in conceiving@@souravimylifeandmore6656
Wondering if anyone has experienced going through these symptoms and done a larascopy but Dr couldn't see anything but a small spot? Would they have been looking in the wrong places if I never mentioned my bowel symptoms because I was embarrassed
I need help!!!
I have really painful periods. And I go to bathroom every day but Im full of fecals even though I normally go to the toilet. Could that be endometriosis ?? The ginecologist told me it’s not but many say that
I love you
I have endometriosis and this is no joke 7cm and i belive i have inflammatory gut and firbords i have bloating like no other and cramping when i was young i use to vomit but not any more but i notice if i eat any greasy food on my periods i vomit so i dont eat noting greasy 5 days vomiting until my periods is done
When I had the laparoscopic and I had to take out the tumor that basically ate my ride over and fallopian and he removed a lot or whatever he cut out I read the report years later when I got the report it said he saw lots of it or undiagnosed all on my intestines what else could have been if not endometriosis now I feel like it's kind of holding everything down on my left side. I just wish I had a good doctor there's no good doctors in Vegas I don't believe.
Endometriosis I did tell this awful doctor I told her for 20 years it's probably what I had but I didn't really know as much as I've been learning the last month. Just knowing my body and my symptoms and yes when I was 20 I lack of surgery to move cyst off the ovary and just return I turn 40 this sits that sat there for over 8 years was some type of tumor so it was stage four endometriosis at that time and. That was over 15 years ago when I did not have the complete distract me but it was pretty severe few more years of horrific periods and now I'm post menopausal. Close to almost a decade without periods but I'm suffering still! Doesn't just go away! Inside my uterus there's abnormal thickening they wanted to do surgical biopsy.?? Don't feel GYN doctor still know what they're doing they just want to do surgeries. I've I have another surgery I just want it all taken out I regret not having hysterectomy over 15 years ago and just leaving maybe one over eight and then I would not have to worry with all this anymore and maybe my body would have had a chance to heal.
I have pain everyday :(
I was having vaginal bleeding during bowel movement....😮
Doctors don't help😢
Cause constipation
After almost 20 years of horrible periods and all the stomach stuff that goes with it...I finally got in with a specialist after i started bleeding from my rectum. He opened me up, everything stuck together and my intestines were pulled up to my belly button and attached there...the PAIN! It used to feel like somebody was ripping my stomach open! Final dx was endometriosis, endosalpingiosis(not much info out there), interstitial cystitis and extreme scarring(i had 3 c sections). I still have pain and bloating though and now my drs left the practice :(. I will keep looking tho!
Endometriosis can sometimes be seen on an ultrasound, but it often depends on the location, size, and type of endometrial lesions. For example, ovarian endometriomas (also known as "chocolate cysts") are typically visible on ultrasound as fluid-filled cysts, which can suggest the presence of endometriosis. However, other forms of endometriosis, particularly those involving the pelvic lining, bowel, or bladder, may not be easily detected through ultrasound.
MRI (Magnetic Resonance Imaging) is often considered more accurate for detecting deep infiltrating endometriosis, especially when the lesions are located in areas like the rectum, bladder, or pelvic walls. MRI provides a more detailed, comprehensive view of the pelvic organs and tissues, making it better at identifying both superficial and deeper lesions of endometriosis.
In summary, ultrasound can help identify certain forms of endometriosis, but MRI is generally more effective, especially for deeper or more complex cases.
Thanks for your comment!
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The information provided on Endoemmm is based on personal experience, available research, and publicly accessible resources at the time of creation. However, medical knowledge and research are continually advancing, and older content may not reflect the latest evidence or medical standards. Viewers are encouraged to verify any information and consult up-to-date sources or medical professionals for the most accurate and relevant insights into endometriosis and related conditions. Endoemmm does not claim to offer exhaustive or definitive guidance on medical or scientific topics. Appreciate your comment and insights!