Inclusion Body Myositis, Dr Conrad Weihl

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  • Опубликовано: 12 дек 2024

Комментарии • 31

  • @Ir0nMa1d3n
    @Ir0nMa1d3n 3 года назад +4

    Hi Dr. Conrad. I have this. I got it at 36. I'm 39 now

    • @everjust23
      @everjust23 3 года назад

      hey Erica, how are you doing/feeling now. On you taking any meds that are helping?

    • @Ir0nMa1d3n
      @Ir0nMa1d3n 3 года назад

      @@everjust23 I was on Rituxab then had a major allergic reaction to the meds on the fourth dose. So that answer would be a definite no, at this time.

  • @riksteele997
    @riksteele997 7 лет назад +5

    My treatment was the standard high doses of Prednisone to start and Methotrexate for a very short time. Prednisone dose was tapered off some, but I stopped taking it on my own. Side effects from both drugs were making me ill. During that time fairly agressive physical therapy with therapist stretching my legs and arms was done. Before all of this I stopped taking Lipitor. I had a little improvement from the treatment. I have went from not able to walk or get out of a chair or touch the top of my head to walking slowly with a cane. Most of my improvement came after I stopped taking the Prednisone and went to eating more things that helped produce nitric oxide in my body.

    • @mikeschad6358
      @mikeschad6358 6 лет назад

      what are you eating for ibm

    • @riksteele997
      @riksteele997 6 лет назад +1

      @@mikeschad6358 Not sure what will work for you as everyone is a little different as to how nutrition helps them, but beets are a great place to start. Beet juice is good, and also real foods. Meaning nothing from boxed foods or premade anything. Mediterranean diet is good, as long as it is real food. I also take a supplement that has a combination of l - arginine and l-citrulline once a day.

    • @Ir0nMa1d3n
      @Ir0nMa1d3n 3 года назад

      I'm on Rutixab infusions. I feel I'm young with this. Had it for three years. I'm 39 now

    • @Ir0nMa1d3n
      @Ir0nMa1d3n 3 года назад

      This happened to me

    • @mariesandiego5291
      @mariesandiego5291 2 года назад

      @@Ir0nMa1d3n has the pain in the muscle gone away with this medication you are taking? 🙏🏼

  • @kyleighevans5912
    @kyleighevans5912 3 года назад +1

    All my auto immune issues started after a severe case of the flu back in 2006.

  • @Govstuff137
    @Govstuff137 Год назад +2

    Sad that this is all we know about IBM. It's 2023.

    • @tenselectricalremedy
      @tenselectricalremedy Год назад

      The bureaucracy going on here is what's slowing down knowing more and even fixing it, for example I had posted here a comment not offensive at all, and it got removed :(. All I was saying I had found this invention I am using with TENs (TENs it is not invasive at all) and I believe it will help everybody ruclips.net/video/JAn9kj_jj8I/видео.html
      It really made me feel bad, that means something like "I don't care about what you are going through :("

  • @elaineslavens8374
    @elaineslavens8374 Год назад

    I was diagnosed with polymyositis over 20 years ago and it's gotten progressively worse in the past I'd say year-and-a-half I'm in pain and my legs are weak and I have to use a walker and a rollator now could I possibly have IBM

  • @davemessenger4764
    @davemessenger4764 3 года назад

    What is the ratio or number of cases of ibm to Vietnam veterans? 1079 just after end of Vietnam incursion.

  • @wilmafoster6754
    @wilmafoster6754 Год назад

    What is the likelihood that receiving Pfizer BiValent vaccine and Flu vaccine at the same time can bring on an autoimmune disease? My husband had a gradual onset after we both got our vaccines. We have not had a definitive diagnosis yet, we are still working on testing. My son took care of a patient in the ER that developed myositis after Covid illness.

  • @HK-kb8tz
    @HK-kb8tz 3 года назад +1

    2021 and still not curable

  • @garymcdonnell6693
    @garymcdonnell6693 Год назад

    I have lost at least 10% of my strenth in less than a year

  • @DONALD1951
    @DONALD1951 6 лет назад +2

    When he said 45 years old that is a guideline. So your 43 ?. Too many irrelevant remarks and questions. I want to hear this expert doctor talk.

    • @Ir0nMa1d3n
      @Ir0nMa1d3n 3 года назад

      I am 39
      Had it since 36.

    • @pro-mf7uk
      @pro-mf7uk 2 года назад

      @@Ir0nMa1d3n how are You now ?your Early stage ? Did you have pain in muscles

    • @AliAli-jn3cr
      @AliAli-jn3cr Год назад

      @@pro-mf7uk كيف الحال الان، هل هناك تحسن

    • @AliAli-jn3cr
      @AliAli-jn3cr Год назад

      @@Ir0nMa1d3n how was the symptoms of the early stage ?

  • @tenselectricalremedy
    @tenselectricalremedy Год назад

    Even better further updates, I was able to create mixes of Brain waves and are equilibrating my energies like magic, so my electrical invention is not needed. The quality of life is not at its best like with my invention would do me manually, but since nobody cares for humanity's best state of being (yeah because my invention will help humanity, not only me, it has just not been experienced by anybody so no one (only me) has good feedback on this unbeliavable discovery.
    Here are the brain waves I started using this month 4/2023: ruclips.net/p/PLbNfxHgFwlloOOY989CqJU9zUndC9lr-c
    And here is my discovery again, awaiting to be invented which I know what is needed to create it: ruclips.net/video/JAn9kj_jj8I/видео.html

  • @tenselectricalremedy
    @tenselectricalremedy Год назад

    Wow, I had posted a comment here and it got removed, I felt so bad, basically that means they care less about people. The comment was not offensive at all. I was just saying I invented something with TENs to help myself which I tremendously believe will help everybody :(.
    ruclips.net/video/JAn9kj_jj8I/видео.html