This type of pain actually was triggered when extreme heat wave came because I wasn't used to it. For the past two years I've had all kinds of joint pain however I just thought that it was just me doing too much because I was doing security at the time.
Maybe, i'm not saying it as a proof, of course. But i keep a record of symtoms/daily routines to show my doctor and i'm very careful with my diet, sun protection, exercise, etc. and nothing changed except that. A few hours later that dreadful call, my skin began to react, and 48h later i had muscle weakness and pain. I've had only 2 flares after being diagnosed and started treatment, and both of them were preceded by a stressful event (losing job and losing a friend). There are studies that show people with post traumatic syndrome have greater chances of developing an autoinmune disease, so it might be a connection after all. Sorry i can't explain myself better in english.
So, stress can cause myositis symptoms to worsen or flare, but it is not a trigger of myositis directly. You are mostly correct in that myositis can be effected by stress, but stress or stressful situations are not a CAUSE of myositis. It wouldn't be correct in saying it causes an autoimmune disease, but more that it could cause the autoimmune disease to flare and be worse - just like a cold, or infection or other change in environment. It would be more likely that the myositis was active and the stressful activity made the symptoms worse.
It might be a language barrier (i'm spanish). I translate «trigger» not as a cause, but something that activates or worsen something that was previosly there. As far as i know there's still no known cause for autoinmune diseases and there are many risk factors that could be involved. Autoinmune diseases run in my family, so i was at higher risk. But it seems stress does affect/exacerbate/worsen/triggermy DM. That's why i wonder.
@@elisamartinez9205 Ok, a trigger is defined as -- to initiate, actuate, or set off. The way that the Doctor is using it here is the root cause of myositis itself - which isn't proven at this time. A "flare" is what you are really talking about and that is a worsening of symptoms because of a chemical or enviromental change in the autoimmune system.
What about Chemicals? We live in Wisconsin & my husbands symptoms started in November. He worked as a CNC operator & was constantly sprayed in the face by the machine coolant. Studies out of UK says this coolant can cause skin & lung condition. He also lived next to an oil refinery back in 2002 where the ground & water was contaminated. Husband is MDA5 highly positive.
My personal experience strongly suggests, anything (coolant) with propylene glycol. Skin absorbs this and it’s toxic. Beware chemical by products, and watch what you put on your skin as many lotions have propylene glycol in too 5 ingredients, it’s often found in sour cream and salad dressings, Hope that helps you.
I knew something was wrong. Things that I'd pick up were getting heavier and heavier over a period of months. Then one day I was cutting grass and all of a sudden it was as if I were pushing a car. I had been on astrovastatin for about a year. Went to the doc with flu like symptoms. CK was at 5975. Told to go to ER where I was flushed for a week. CK has remained high.
Could you give me more info so that I can be educated when I approach my Rheumatologist. I started taking Lipitor in January of 2023 and about two weeks ago my amyopathic dermatomyositis was triggered. Can you tell me what exact test you requested or your doctor requested to prove that it was atorvastatin that triggered your mytosis. Thanks
Gm sir my question is a12 year old boy was hospitalized due to severe muscle pain long term tiredness he was diagnosed as carnitine deficient one showing with right answer
My husband just received an experimental drug in the hospital & he’s doing really good. Feel free to follow our story on my Facebook. m.facebook.com/christiesdomain
I don't think it's a coincidence that I have hyper skin sensitivity (most sensitive skin products make me break out) that I had migraines most of my childhood and extreme menstrual pain after that. Fibromyalgia and sciatica, doctors refuse to diagnose. For two years I've had pain stiffness as well as cramping in my hands knees and feet. Last month suddenly I had stiffness/tenderness in the back of my head, neck, shoulders my entire back including inflammation all over back following a heat wave. Another new thing that I had a sensation of was pain in my left hip, as well as a low grade fever (that is often presistant now). The very next morning I went to the emergency room and they found that there's nothing significant wrong with the hip especially since I didn't fall and they prescribed me what they normally prescribed me when there is elevated blood levels for rheumatoid. After a week and a half I noticed none of the a medication that they prescribed did anything for me. Two weeks later I went to the emergency room again with increased pain in the hip that was constantly there after the first appointment as well as my whole back becoming tender again including the sensation of inflammation or sunburn. I was given a steroid injection in my hip for the back as well as muscle relaxant medication. The steroid did not decrease the pain level my hip and the muscle relaxant I actually had symptoms that are not typical so apparently my body rejected it. After I got home and noticed what I thought was extreme acne even though I don't have an active problem, underneath my chin on both sides and my son told me later that there is some redness going on and that area. Just Monday I finally had a rheumatoid ologist appointment and he determined that the blood level for rheumatoid is too low to indicate rheumatoid and I have a follow-up on the 31st to troubleshoot and see what else it could possibly be. In the meantime any flare-ups that I will have I plan on going to emergency room.
I wouldn't be so quick to dismiss dietary factors. Molecular mimicry.... Developing antibodies in response to partially digested fragments of mammalian muscle tissue that cross the gut wall into the blood stream, triggering the immune system, with a resultant 'army' of antibodies that can cross-react with our own muscle proteins, would seem quite plausible!
Yes that is one that we know makes things worse. Wonder if we understand when we are stressing ourselves. I know we have situations that we know cause us to be stress ( things we can’t avoid, death in the family, loss of a job) but I also understand that we can add to our stress by not understanding when we put ourselves in stressful situations.
Eva - the answer would be NO as a trigger but YES to being something that can make myositis worse. There is no direct link to stress causing Myositis directly as a trigger. Stress has a direct link to worsening most immune conditions.
I'm not talking about everyday stress, but very stressful events. I lost 3 loved ones in 2 months just before the onset of DM. And every flare i've had since then has started after one of those events. Last one just a few hours after a great friend passed away. I had been very close if not in remission for months before that.
Kevin O'Connell Ok so the trigger is what makes it active. But it being active does not mean that it is really bad? It could be there disguised as everyday tiredness? If your doctor does not realize is more you continue with the symptoms until a stressor triggers it and it becomes debilitating?
@@evasraley2109 From what I've learned, Myositis is active 100% of the time and it is the symptoms that can get worse or better depending on smoking, stress, weather, or medicine not working (etc, etc). Since it is an incurable illness, we work on helping with its effects on us, so the "triggers" are what start it in the very beginning, and everything else is what effects our symptoms. That means "flares" are not the illness re-starting completely, but rather our symptoms worsening from certain occurrences (I.E. tragedies).
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This type of pain actually was triggered when extreme heat wave came because I wasn't used to it. For the past two years I've had all kinds of joint pain however I just thought that it was just me doing too much because I was doing security at the time.
Maybe, i'm not saying it as a proof, of course. But i keep a record of symtoms/daily routines to show my doctor and i'm very careful with my diet, sun protection, exercise, etc. and nothing changed except that. A few hours later that dreadful call, my skin began to react, and 48h later i had muscle weakness and pain.
I've had only 2 flares after being diagnosed and started treatment, and both of them were preceded by a stressful event (losing job and losing a friend).
There are studies that show people with post traumatic syndrome have greater chances of developing an autoinmune disease, so it might be a connection after all.
Sorry i can't explain myself better in english.
So, stress can cause myositis symptoms to worsen or flare, but it is not a trigger of myositis directly. You are mostly correct in that myositis can be effected by stress, but stress or stressful situations are not a CAUSE of myositis. It wouldn't be correct in saying it causes an autoimmune disease, but more that it could cause the autoimmune disease to flare and be worse - just like a cold, or infection or other change in environment. It would be more likely that the myositis was active and the stressful activity made the symptoms worse.
It might be a language barrier (i'm spanish). I translate «trigger» not as a cause, but something that activates or worsen something that was previosly there.
As far as i know there's still no known cause for autoinmune diseases and there are many risk factors that could be involved.
Autoinmune diseases run in my family, so i was at higher risk. But it seems stress does affect/exacerbate/worsen/triggermy DM. That's why i wonder.
@@elisamartinez9205 Ok, a trigger is defined as -- to initiate, actuate, or set off. The way that the Doctor is using it here is the root cause of myositis itself - which isn't proven at this time. A "flare" is what you are really talking about and that is a worsening of symptoms because of a chemical or enviromental change in the autoimmune system.
How long you have been suffering from this disease ?
I've never smoked, I've been extremely healthy all my life, never been on a statin. I do have some mold mycotoxins and Lymes.
What about Chemicals? We live in Wisconsin & my husbands symptoms started in November. He worked as a CNC operator & was constantly sprayed in the face by the machine coolant. Studies out of UK says this coolant can cause skin & lung condition. He also lived next to an oil refinery back in 2002 where the ground & water was contaminated. Husband is MDA5 highly positive.
My personal experience strongly suggests, anything (coolant) with propylene glycol. Skin absorbs this and it’s toxic. Beware chemical by products, and watch what you put on your skin as many lotions have propylene glycol in too 5 ingredients, it’s often found in sour cream and salad dressings, Hope that helps you.
I knew something was wrong. Things that I'd pick up were getting heavier and heavier over a period of months. Then one day I was cutting grass and all of a sudden it was as if I were pushing a car. I had been on astrovastatin for about a year. Went to the doc with flu like symptoms. CK was at 5975. Told to go to ER where I was flushed for a week. CK has remained high.
Mumps triggered my dermatomyositis. I was vaccinated for mumps as a child.
Mine was triggered by Atorvastatin. Diagnosed by blood tests, antibody studies.
so very sorry that these drugs have side effects so devastating . Big Pharma should pay for this imo
Mine was triggered by Crestor. Proven by blood tests and antibody tests also.
Could you give me more info so that I can be educated when I approach my Rheumatologist. I started taking Lipitor in January of 2023 and about two weeks ago my amyopathic dermatomyositis was triggered. Can you tell me what exact test you requested or your doctor requested to prove that it was atorvastatin that triggered your mytosis. Thanks
I believe mine was as well…..but not enough flags to say for sure.
Same here! I was on it for a year. Its a lipid-philic statin meaning it doesn't wash from the body like hydro-philic statins do.
Sir I am a dermatomyositis patient, in my case repeatedly genital herpes trigerred myositis and my environmental trigger being sunlight.
Mine followed strep....Moreover throughout my life, if I get step I flare in about 6 weeks.
Gm sir my question is a12 year old boy was hospitalized due to severe muscle pain long term tiredness he was diagnosed as carnitine deficient one showing with right answer
Sir make a video of treatment.
My husband just received an experimental drug in the hospital & he’s doing really good. Feel free to follow our story on my Facebook. m.facebook.com/christiesdomain
What about mono? I got that twice
Mono has also been thought to be one of the triggers of myositis, but again the risk has not been proven yet.
I don't think it's a coincidence that I have hyper skin sensitivity (most sensitive skin products make me break out) that I had migraines most of my childhood and extreme menstrual pain after that. Fibromyalgia and sciatica, doctors refuse to diagnose. For two years I've had pain stiffness as well as cramping in my hands knees and feet. Last month suddenly I had stiffness/tenderness in the back of my head, neck, shoulders my entire back including inflammation all over back following a heat wave. Another new thing that I had a sensation of was pain in my left hip, as well as a low grade fever (that is often presistant now). The very next morning I went to the emergency room and they found that there's nothing significant wrong with the hip especially since I didn't fall and they prescribed me what they normally prescribed me when there is elevated blood levels for rheumatoid. After a week and a half I noticed none of the a medication that they prescribed did anything for me. Two weeks later I went to the emergency room again with increased pain in the hip that was constantly there after the first appointment as well as my whole back becoming tender again including the sensation of inflammation or sunburn. I was given a steroid injection in my hip for the back as well as muscle relaxant medication. The steroid did not decrease the pain level my hip and the muscle relaxant I actually had symptoms that are not typical so apparently my body rejected it. After I got home and noticed what I thought was extreme acne even though I don't have an active problem, underneath my chin on both sides and my son told me later that there is some redness going on and that area. Just Monday I finally had a rheumatoid ologist appointment and he determined that the blood level for rheumatoid is too low to indicate rheumatoid and I have a follow-up on the 31st to troubleshoot and see what else it could possibly be. In the meantime any flare-ups that I will have I plan on going to emergency room.
I wouldn't be so quick to dismiss dietary factors. Molecular mimicry.... Developing antibodies in response to partially digested fragments of mammalian muscle tissue that cross the gut wall into the blood stream, triggering the immune system, with a resultant 'army' of antibodies that can cross-react with our own muscle proteins, would seem quite plausible!
What about stress as a trigger?
Yes that is one that we know makes things worse. Wonder if we understand when we are stressing ourselves. I know we have situations that we know cause us to be stress ( things we can’t avoid, death in the family, loss of a job) but I also understand that we can add to our stress by not understanding when we put ourselves in stressful situations.
Eva - the answer would be NO as a trigger but YES to being something that can make myositis worse. There is no direct link to stress causing Myositis directly as a trigger. Stress has a direct link to worsening most immune conditions.
I'm not talking about everyday stress, but very stressful events.
I lost 3 loved ones in 2 months just before the onset of DM.
And every flare i've had since then has started after one of those events. Last one just a few hours after a great friend passed away. I had been very close if not in remission for months before that.
Kevin O'Connell
Ok so the trigger is what makes it active. But it being active does not mean that it is really bad?
It could be there disguised as everyday tiredness?
If your doctor does not realize is more you continue with the symptoms until a stressor triggers it and it becomes debilitating?
@@evasraley2109 From what I've learned, Myositis is active 100% of the time and it is the symptoms that can get worse or better depending on smoking, stress, weather, or medicine not working (etc, etc). Since it is an incurable illness, we work on helping with its effects on us, so the "triggers" are what start it in the very beginning, and everything else is what effects our symptoms. That means "flares" are not the illness re-starting completely, but rather our symptoms worsening from certain occurrences (I.E. tragedies).
Can lupus be a trigger
Can I visit your office ? Are you in US ?!
Mine was Ezetimbe
I think Covid activated my DM
sars covid 19 triggered miositis
Can the covid vaccination trigger symptoms I've never had problems before my vaccine.
@@annamorales6384 I think so too
Mine started immediately after Moderna Covid mrna vaccine.
Me too
Mine is triggered by ice cream.