L4 L5 - L5 S1 2 year post-OP update surgery #18
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- Опубликовано: 21 ноя 2019
- This operation allowed me to avoid fusion. Im documenting my progress for others to see so that they can make a little more informed decision. Artificial disc replacement at L4L5 L5S1 is where my two discs are replaced.
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Hang in there brother. God is good. He is bigger than all this and can still heal you. Thanks for the updates!
I had cervical surgery then found out I have AS as well. Lower back issues now, L5 S1 . Best of luck to you. I’ve tried most of the meds. Had lots of side effects from them, from the dmards and went to biologics. Then I started having tingling, pins and needles which now I contribute to the dif meds. I was even having infusions monthly. Had a flare and got steroids shot in my butt and never felt better. Told my rheumatologist and now I take methyprednisolone every other day and pain meds but am working to find other relief with nerve ablation for lower back, I’m horrible at taking meds. If what they give you doesn’t work, ask to try different med. chronic pain is hard to live with. Sounds like you are moving around more than I can at the moment. Good Luck to you and stay positive!
También tengo desgaste discal L5 S1, hace 1 año me hicieron una microdisectomia.... Pero estos ultimos meses estoy con dolor lumbar y hoy me sentia tan cansada mentalmente..... "rendirse no es una opción", necesitaba escuchar eso.
Dios te bendiga y te de salud.
Sorry about your diagnosis. I liked what you said about keep fighting. I’ll pray that your pain stays manageable.
I just wanted to say that I'm happy for your recovery through everything you have gone through. Hope to see another update video soon. Take care and many blessings for you and your family.
Sorry to hear that 😔 stay strong and keep us posted. God bless!
God bless my brotha,i pray that you will feel better and better
I am sorry to hear about the AS. I also am HLA-B27 positive. I had a workup for AS before my disc fully herniated. So I did a lot of research on it. I am glad I haven't been diagnosed with it yet. I am hoping to get ADR this year, so I appreciate your videos. It's probably a good thing you got the surgery before the diagnosis...I think it's a contraindication to ADR. Best wishes to you.
Don’t ever give up ..
thanks for sharing your experience.
when I was 24 I herniated both degenerative l4/l5 l5/s1. little back pain but killer sciatica and no relief after a year of conservative therapies. after two less than stellar discectomies that helped a reasonable amount with leg pain but saw my back pain rocket, I managed to get a bit of relief from working hard on my "anterior pelvic tilt" (I had this from decades of sitting a desk as a programmer - the guy beside me in the specialist waiting room was a long haul truck driver i.e. tons of sitting too interestingly).
so to date ive avoided a fusion or adr but wouldn't be surprised if its in my future, and find it useful hearing peoples experiences.
also found exploring a non inflammatory diet helpful with the remaining back pain ive experienced as well.
Dave here tbi l5/s1 activl 2018...i quit facebook almost a year ago miss you on there. You said it..have to keep the attitude and keep fighting.
I'm so sorry about what you've gone through. I started with hashimoto hypothyroidism. My first ai disease. 20 years later I have pretty much every other ai disease. Not serious enough to kill me. But just enough to make me miserable, lol. Everyone says I look fine. So annoying to deal with these invisible diseases. Nice to know I'm not alone. Thanks for sharing. Stay strong 💪🏻
Hey man. Been following your vlogs for a while. Thank you for sharing all this, really helpful to everyone out there. Sorry to hear about the AS but glad you're doing better. Love the attitude. Just wondering, after your ADR, are you able to return to sports/running and all normal activities without nerve pain (if we weren't considering the upper back pain from AS).
I was diagnosed with ms about 2 years ago, and I am scheduled for l4 l5 laminectomy in a few weeks. My surgeon says he does not know if my walking issues are caused by ms or my herniated disc, but I told him I would like to try the surgery.
Been following your journey for a while. Happy to see things have improved. Glad you're feeling better and that you were able to manage the tightness issue. I admire your determination and will to fight through the hardships to find the light at the end of the tunnel. Thank you for sharing, I think I'm not alone when I say your videos help and inspire many suffering with the same issues out there. I have one question, in terms of staying active, what kind of activities are you able to perform at the gym? Can you run/jog, bench press, squat. Besides that, are you able to swim, play bball, soccer etc. Can you sit at a desk with manageable pain. Any info would be great!
Thank you......I bench press, pull ups, any weight machine. I use the stair stepper for cardio. I stay away from running, squatting, and deadlifts. I can sit at a desk for a reasonable amount of time although sitting for too long could cause some discomfort.
omoussalli basketball, soccer are out of question for me. Swimming I can do.
I would definitely consult Dr Desai and maybe one or two other Euro doctors , they are what , 12 to 15yrs ahead of US doctors in regards to spine surgery (that's why you went there) maybe they are advanced in other spine conditions / problems as well such as your situation..............At least for expert second / third opinions. Good luck!!!! Keep posting...........!
Buddy upper back tightness means that the ligaments that are supporting your spine are weak.
And that's why your muscles are getting tight to support your spine.
I'd love an update too.
I had to have both SIJs fused and have bad discs. Doctors said I dont have AS, but I heard up to 10 to 20% of AS have a negative HLA-B27. I have the same tightness throughout the entire spine.
Really sorry to hear of your AS diagnosis, but I’m glad to hear there are legitimate treatments around now.
As a young active guy looking at ADR one day for a slowly degenerating L5-S1 disc, I gotta ask, how’s your low-back / legs doing with the discs? I get sciatic pain off and on and dang it’s tough..
If I could seperate AS and the mechanical back issues, I could probably say that the procedure was a success. I believe that the bottom line is that once you have a procedure like this, you will never be like you were before. I do feel better then I did before the procedure....at this point. Hopefully I will continue to feel pretty good. As I have said before, recovery was very difficult.......and with any surgery, you are usually going to have trade-offs, one type of discomfort for another. I suspect that my AS condition may have been triggered by the procedure but this is something I will never know.
Hello friend how you doing now??.@@jeremiahgriego8677
Sorry to hear that bro. I just got mine L4-L5 with Dr. Georgiy V Brusovanik in Miiami and it’s being a total success. I dealt with pain for 8-10 years after a fall. Don’t give up- surgeries go wrong sometimes- get a second opinion. Try Dr. Georgiy V Brusovanik. I found him after 8-10 years of everyone tell long me “you just going to have to learn to live with pain” etc. Maybe I should post my story on RUclips but we will see. God Bless
Fusion or adr?
fusion or adr ?
It's called HLA b27 I also have it
thx for posting your vlog. in one of your first vlogs u mentioned that u had 3 level degeneration, but your surgery was on 2. what does your current mri say, were your upper discs affected by this surgery? what does dr desai say about your issues, was he helpful in follow ups? thx & good healing.
thx for posting. sorry about your problems. i pray u get well. have u try checking for periprosthetic osteolysis. i put up a research paper i found on adr facebook page. most adrs produce some ware debris, however small. that still cause biologic response resulting in similar symptoms.
any updates ? been a long time since we herd from you , hows ur back?
You kind of left out the topic of your ADR. Was it helpful? With your diagnosis do you feel that surgery was necessary? Was it it AS causing the pain this whole time ? What’s your mobility like at the levels where you had the surgery?
Hey man just saw all your videos if and whenever u have time we would love an update on how u are feeling. We are in this together
Jeremiah 4/27/2021 What's up ? How about an update , hope everything is good brother take care !
How are you now?
Jeremiah, I forgot to ask how your lower back is feeling. Is your lower back pain and past symptom’s gone ?
i read good things about the carnivore diet for autoimmune disorders. that might be something that could help you. keep on keepin on bro ✊
Hey dude ! 7/12/2022 what's up ? How is the double ADR doing , activity levels are you able to jog / run ? A /S under control now ? Take care !
Hi brother! Hope you doing great !
Its just weird you got this diagnosis after 20 years of struggle ! Why didnt military give you this diagnosis earlier ? Dont they test their soldiers medically before discharging them? By the way that gene is hlb-27a i think
Hey man! Thank you! I'm not sure that I've always had this disease. All of this really is a mystery to me as well. I will be asking my rheumatologist more questions the next time I see him. You are correct....that is the gene.
KingSlayer I asked Jeremiah if this disease was ongoing when he had his surgery , he stated it was not. So it obviously it "developed" after his spine surgery? Is this odd? Thanks................
@@johnb4183 basically this disease starts any years between 17 years to 45 years in men ! This disease has nothing to do with surgery i personally think from studies ! But catch is that our immune system is more activated after any surgery to heal wound! In his case i think his auto-immune was already there but problem was after his surgery it got super activated to support his healing but due to disease his pain started !
But with right mindset AS can be managed!
@@KuchKahaniyan Got it , Thanks.........................
@@jeremiahgriego8677 You don't find this odd that you developed a disease through which the body attacks himself and it is involving the spine ? Could it be that your body is confused since you have those foreign objects in you, the ADRs ?
Hey man had disc replacement 4 months ago. Was doing well but now I have some crazy back pain, I’ve done X-rays and scans everything looks good. Not sure if this is part of the process. How was your pain 4 months out?
Hi Jeremiah how are you doing?
How to warking border please tell my
I don't understand your question.
Hello Jeremiah have you , can you or do you plan on consulting with Dr Desai in regards to this diagnosis? Was this ongoing when you had your surgery with Dr Desai? Thanks for posting ! Hang in there !
Hey John, I didn't plan on consulting him but maybe I should. I somehow don't expect much from him regarding this diagnosis.....and no, I did not have this issue before my surgery.
@@jeremiahgriego8677 My opinion in regards to the spine is "Go to the best and forget the rest"................. Take care..
I just had lumbar fusion surgery 6 weeks ago L5S1 and wanted to ads you if the artificial disc replacement is better procedure?
Could be what you are having is a result of the artificial disc?
Your body attacking the artificial disc?
Moutaz Ismaeil That’s a good question.....something I’ll never know the answer to. Some people have said that ADR was a great decision for them. Others have said that their ADR experience was not that great. I think the medical field is still trying to figure out what is best.
Moutaz Ismaeil Whether my disc is causing this reaction or not is also a good question. For six months after the surgery, I had no issue whatsoever.....granted, I had other issues. It seems like I would have had these types of issues immediately after the surgery.
Thank you for taking a time to reply to my concerns and i believe for each procedure has positive and negative sides.
Wish you to find salvation for all your struggles and wish me the same ;-)
Jeremiah have you found that the A/S itself limits your activities , running or playing kids etc.? Please keep us posted , would love to hear what Dr Desai would have to say in regards to the situation.............Thank you !
No it doesn't limit me.....activities actually makes me feel better. I am now taking Humira and feel as good as I have felt in years.
Jeremiah Griego Beautiful ! glad it's working for you.
ankylosing spondylitis - so this is not something that started due to your ADR? meaning over active fighting. You had this before but they didn't know? I am just wondering if this can happen due to ADR. I wonder what the Rheumatologist has to say?
The rheumatologist didn't really know. I suspect its from the surgery. I did not have this condition before my operation.
@@jeremiahgriego8677 I wonder if this can happen with fusion also. This is concerning!
@@jeremiahgriego8677 what tests can be done to check for this? and be sure it is this?
@@treelore5100 there is a specific gene that most people (not all) that have this condition have......I forgot what it is. I had the gene. In addition to that, my inflammatory pain symptoms matched the diagnosis for this. Once I started taking Humira.....the issues immediately subsided. I'm doing pretty good these days.
Bro! I had autoimmune disease and upper back tightness when my lower Back herniated. I’ve fixed both issues... let me help! For AUtoimmune disease get an Alcat test from your doctor, it’s tells you what foods your body is attacking and what foods it doesn’t. Eat the foods that don’t. Your gut may be damaged and needs time to heal. For upper back, go to a good PHysical therapist for a couple months 3 times a week and you should see good results. Also, drink almond milk instead of milk. Milk and wheat were very bad for me...
Thanks so much man...... ill take your advice.
How you fixed herniated discs and auto immune disease? Docs say they can never be healed ?
@@KuchKahaniyan I'm taking medicine for the autoimmune disease.
hey Jeremiah, how do you feel now?
Pretty good actually! I'll never be the athlete I was before but my pain is gone.
@@jeremiahgriego8677 glad to hear that :)
Try an elimination diet for the auto immune issue.
You might have bigger size of disc than vertebrae
Avoid gluten