Stealth Camping & Scared | Reality of Vanlife with Spinal Cord Injury
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- Опубликовано: 9 июн 2023
- Stealth Camping at Walmart and scared medically. A real couple vlog of van life with a spinal cord injury. If you want to Subscribe to our channel here (We appreciate it so much)
/ @nicholettebrian
Check out our shop of hand mined crystals by us while traveling : www.etsy.com/shop/ShopTheCrys...
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First episode of this series where medical issues started a few months after starting vanlife: • My Worst Nightmare | R...
Thanks for the support by liking, commenting, and sharing it means a lot to us! We share our lives to show the reality of van life and encourage others to live out their dreams. If we can do it - so can you! Disability comes in many different forms and affects many people but there is always a way to adjust to life circumstances and chase after your goals.
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#travel #vanlife #spinalcordinjury #disability
We love sharing our life with you authentically through these vlogs! Visit our store mentioned in the video here : www.etsy.com/shop/ShopTheCrystalLovers Thanks for watching 💖
❤️ it will be ok! whatever happens, you'll survive & thrive
Nicolette and Brian, you have such a healthy and positive relationship. Your support of each other is magical. You each have an overwhelming respect for one another. I admire you both. Nicolette you often do more than.I do in a day
My mom suffered years on and off wound vacs so the fact that Nicolette is doing as much as she is doing (safely) is AMAZING!!! Kudos to her, I’m super impressed 🥰. ALSO, Brian, you are 1000% correct, I’ve been married for 23 years (met in HS and basically grew up together). The only reason we’ve made it this far is because we share the good, bad, & sad parts of life, we support one another and go back and forth on leadership…that’s the best way I can explain it, it’s a partnership.
Long ago story, I was a young mother and we were celebrating a day at the lake with extended family. It just so happen to be my “restful weekend” and I chose to spend it lounging on the beach reading a book while my husband occupied and played with our young daughters in and out of the water. At one point a male friend of one of our extended family members walked over to me and said “you are one lucky wife, how does it feel watching your husband do absolutely everything, would you like some BonBons with that book”? BonBons is part of an old saying that refers to lazy housewives. Anyway, I was shocked, felt humiliated & defensive - it ruined my day, and unfortunately turned into a negative core memory. Years later when I saw him again I asked him how divorced life was treating him while cuddling with my husband and watching my (now) adult daughters mingle with family members. Don’t judge others, it’s not your life and you have absolutely no clue what goes on behind closed doors!
I hope you’re feeling well. Remember you have many friends praying for you. You are a very brave couple. Bless both of you❤❤❤
❤❤So glad you were able to shower... Yaaay🎉🎉🎉🎉please ignore ableistic comments of people who have no idea what wheelchair life is like and the complications we face. Thinking of you both. Stay safe🙏🏼💗
OMG if those commenters had ANY idea how hard it is to be on bed rest with a wound, wound vac and an infection… Interesting how people tell on themselves with their own ignorance. Hugs to you, listen to your body and your doctors and F the rando comments. :)
Same thing with a wheelchair. People KNOW I have spinal problems; thus sitting -up in my chair beyond two hours requires pain killers because it actually hurts. I have explained this so often, and to so many people. And, yet.....they expect to be out-and-about with me for four, five hours plus. I say nothing ( usually ), but it is frustrating. makes me angry, too.
🥹 thank you 🫶🏼
I love your down to earth attitude about all that you are going thru...not to mention that you both really are quite positive. Don't sweat the nasties and their comments. You know what you are going thru and they don't. Be healthy, stay safe and many blessings, Morgan
I think you two are getting those 'comments' because they don't understand what Nicolette's medical issue is. You've never really explained it so that people who don't have experience with it can understand. I used to work for a home health corporation so I figured it out. Decubitus wounds are very serious issues specifically because circulation is very difficult to maintain. You two are killin' it with your attitudes and coping mechanisms. Kudos.
Thank you for your input! I share my medical journey to educate while walking the fine line of providing medical privacy for myself and it can come off as spotty. You’re very right that it can be extremely hard to understand for the average person. I’m considering a more educational video - it’s just hard to be vulnerable sometimes. Appreciate you 🫶🏼
I am so happy you were able to discontinue the wound vac. So glad you were able to find this doctor. Prayers for quick complete healing. Yay to be able to shower. Glad you are going to a hotel so you can really pamper yourself. You both are amazing and make wonderful partners. Looking forward to the day you can continue your adventures - wound free.
I could tell Ns seem to have brightened up with that news good to see for sure. Going to be healed in no time. 😊
Hi nichollete n brian im always watching your vlogs. Love you both❤ always pray nichollete🙏 mwa mwa 💋
That meal looks so good but you forgot the locatelli grated cheese. After watching your video I’m definitely trying those plant based meatballs for the first time in my 67 years.
Silver! Using something similar on my dad!! Praying for 💯 healing...keep pressing forward!
Hey Y’all! My name is Traci and I just wanted to share a little bit of my life with y’all. My daughter has Spinal Muscular Atrophy, SMA for short. I have had parents tell me that my daughter was faking her disability when she was in Middle School or Junior High. They said she was lazy and just wanted people to feel sorry for her. At the time I told one of the parents that they better watch their back because if I see them face to face I was going to beat the crap out of them! Was that right? NO but they didn’t know anything about us and they had never lived in our shoes. So don’t judge someone unless you have lived in their shoes.
My daughter went to a local university and graduated in 4 years, debt free Suma Cum Laude at the top 10% of her class. She doesn’t drive so I had to drive her to all her classes but she did all the work. The only help we got because of her disability was handicapped parking the we paid for while we were on campus. I am beyond proud of my baby girl!
My daughter is married with her first baby on the way. The baby is due in August but she will be born in July via C Section. My daughter cannot have her naturally because she doesn’t have the strength. My daughter can’t walk, she cannot transfer herself in or out of her power chair or anything for that matter. Her husband helps her with everything that she needs. Her husband will be the stay at home parent and she will be the breadwinner for the family. She works a corporate job and makes very good money.
I am just trying to say ignore the negativity and the hater’s the best you can. Believe me I know it is hard but y’all will show those horrible people that they have no effect on y’all by living a good life and sharing the things that y’all share with us, your fans. I am one of them that will cheer y’all on every chance I get.
Thank y’all for sharing everything that we get to see. I am so happy to see the snippets of y’all’s life. God bless y’all 💛❤️🍯🐝
I love your videos! Thank you for your openness, vulnerability,and all.
The banter between you two is cute and makes most laugh :) I'm glad you're enjoying the nature/weather.
What an inspiring couple this is true love ✌
To all the negative Nancy's who judge their relationship- having a spinal cord injury and medical issues that we go thru (I know 100% what they're dealing with as I have had a SCI since 2002). Pressure sores are no joke with our injuries. If you know/knew Christopher Reeve- his sore turned septic and that's what killed him so STOP judging. Nicholette is doing exactly what she should be doing! Having a willing partner to help out is a huge plus. My hubby and I have been married 30 yrs-21 of them I have been injured. He is also my caregiver, right down to helping me with my bowel care! Not everyone is cut out for this life, especially if either partner has to do bowel care. Digging around in your loved ones butt is not what we signed up for but because he loves me, we do it. We do what we have to for our loved ones...it's a sign of a strong relationaship! So let them live their lives and love one another. PS thanks for not showing the wound juice..LOL. It's pretty gnarly! SO happy you see you got rid of the wound vac! I've heard great things about Juven , just wish it wasn't so dang expensive. Unlikely insurance would cover it. Keeping fingers crossed this new plan works and you can avoid flap surgery. I've had 2 in 20 yrs after them trying for months on end to heal on their own. Next bad one I get I'm insisting they just do it and not dink around for months on end.
" we dont WANNA blow up, but, eh, thats the way it is"
I literally laughed aloud!! Awesome!😂😂
I enjoy your videos. Praying you get great care and treatment.
Love the progress, congrats on losing that wound vac!
I’m so sorry you are going through this 🙏🙏🙏. I have Syringomylie with is a spinal cord disorder and because my cord ran down past my tailbone and adhered. The release survey has left me in chronic pain . I was very active prior. You are inspiring to whoever is going through what you are! 🙏🙏🙏🙏💜
Girl you got this. I’m praying for answers for you. Much love
Sweet! Sending you both sweet thoughts and wishes for healing. May you be lead to a medical team so your healing will progress. Know we're thinking of you and sending you both hugs.
Nicholette you are going to be ok! You two are very cute and I’m so enjoying watching your van life. You are both very inspiring! ❤Thank you for sharing! Good luck with your new medical plan Nicholette. I’m praying for your complete healing ❤😊 I ve been married almost 30 years and honestly imo it’s never 50/50 we all have ups and downs and when one partner is down the other carries the load and vies-a versa it’s real life… ❤ Take good care ❤
I think yall work well together
New sub here!
I love what you both are doing together and for each other.
I actually get rude judgmental comments all the time because I work and my husband stays home and raises the kid's. I have coworkers saying some of the worst things about my 'lazy' husband . My husband worked and built our home completely by himself while I went to college. After we married we started on our family we both worked but after having the first baby we didn't want anyone taking care of our children and it just worked best for us and our kid's are the better for it! One is a doctor and the other is a vet! Always do what is best for you, you'll never make everyone happy.
My son did his internship at the Cleveland clinic ❤amazing place
Glad you two are doing better and having fun. Congrats on getting to shower, I would have lost my mind by day 3 of not having one so you must feel a lot better now. Fingers crossed the silver dressings work 🤞
Very good video and I loved how you expressed your love and commitment for one another.
Thanks for sharing! Lots of prayers that you are able to heal your wound.
We live 30 minutes south of where you are getting treatment. If you need a place to park we have space in our driveway.
Bless you, wound vac changes suck. So glad you had a good rest away from appointments. You two are amazing. I deal with a neuromuscular disease on my own and only dream of what you guys have ❤❤ have you any foam border butt bandages? Those have been life savers! Also ask about silver nitrate to reset the healing cells and Dermagran B pressure wound cream. Juven is great but you're right $$$
Yay no more wound vac!!! That’s gotta feel so much better hopefully now you’ll heal ❤ sending healing vibes!
I believe that was an osprey sitting on the nest... I'm only seeing these now so I think they were on your Subscription site and not made public until now. I noticed the sunburn you got while mining for the Hourglass crystals - which were amazing by the way!!! I hope you both use a good SPF while out in the elements. I so love all your videos, vlogs and photos! The area you just left was amazing and so beautiful! It's fun catching up! Thank you for making these public!
Mama Mia that pasta sauce 😋, yeah that's on osprey they are dive bombers so instead of skimming the water like and eagle they put there wings in and dive for fish at high speed it's pretty wild. They build big platforms on some of the rivers by me for them to build nests to keep them off the power poles and cell towers.
I didn't see the location posted anywhere. Great vlog. So happy you got to enjoy a relaxing WK. You deserve it.
I’m so glad you guys listened and tried out Cleveland clinic, hopefully everything starts to get better for you and sorry I definitely should have warned you about our roads here in Ohio 😂 they are definitely bumpy
That's an osprey nest! Keep on truckin', oops, VANIN!
Good morning, and so glad to see you both! I really love your mined crystals and think Nicholette is so talented! Seeing how you get through your day to day inspires me to be a better person as well, we all need someone. Great Blessings!
It's all going to be ok. Praying for you, both!
I have had my share of wounds. The Dr stold me to use Saran wrap press & peel th cover the wound when shower. I hope thar helps you two. Prayers are sent.🙏❤🙏❤🔵
Hope new treatment by Dr at CC helps you towards healing faster. Good Drs are so much harder to find for spinal cord patients.
You probably have a lift picked out for your van, but I've seen one that I really like. It's called the Superarm. Other van lifers use this type as it takes up much less space and because of it's build, less to go wrong. Just thought I'd share. Take care!
This is one we have been looking into because it seems like it would be more in our budget!! Do you know the price of it? We can’t get an answer from suppliers
brian you have a very healthy and loving way how a relationship should be i wished there were alot more that listened as i said in another of your videos im disabled in a chair and i did everything in our relationship even look after our son... after years of that i had it now i leave on my own. the thing with those sore they do take along time they are so annoying. you guys are great xx love you both.
Gorgeous place to camp. The large bird was a hawk of some sort. Glad you guys are able to change the wound vac yourselves. They can be challenging for sure but do work. I remember when they put mine on, we tried packing it with seaweed. It worked somewhat. I thought it was weird when suggested but hey, we're game for anything to be able to get back to living our lives. What did you take for extra protein? The chocolate Premier Protein has 30g and tastes pretty decent. Praying the new wound clinic gets you healed soon. Hugs to you both . edit- the sun looking so weird is likely from the huge fires in Canada. It's bad all over that part of the country.
You go girl!:) That was awesome,im glad youre still able to cook im sure that is nice !:) meal looked yummy
hope you heal well and quickly. share and share alike, if one disagrees, do not do it. keep being equal. you are both good. Love van life, cannot wait to get out of the rat race and prep a van to get out there. Live in my car whilst on holiday, love it in the highlands of my homeland, Scotland.Take it easy, safe travels.
Your going to be fine, fine, fine. Sending lots of positive vibes & prayers
❤
Thank you so much! 🫶🏼
I’m gonna be going to the Cleveland Clinic for abdominal pain treatment in a few weeks. So glad your getting the treatment you need. You inspired me to live my nomad dream even though I live with a chronic illness. Thank you so much ❤
Hey guys this is ace, I met u guys downtown annapolis yesterday. I'm checking out ur videos bro. Nice. Like I told u I missed out on a good time not going but like u said brian it's not to late and Dude it's coming. Keep up the good work work
It was nice meeting you man and even if you don’t get a van - you and your family should make it a point to travel this year just one new place and I promise you won’t regret it! Glad you found our channel and thanks for watching
Always cook extra meatballs you can make subs the next day for lunch or dinner. Always sound delicious timesaver when I do that
Praying for good news! You guys have Got this !!! Glad things are improving for you !!!💯💯💯😇😇😇
Add oregano to the sauce too. The crystals are beautiful! I just put an order in.
Love the blind by the way!
We need to get some oregano and this is our Etsy Shop www.etsy.com/shop/CrystalEthics 💖 Thank you for watching and commenting!
@@NicholetteBrian Its funny. After I asked the question, I checked it out and found it. Duh!! Lol
that slivadene dressing is a great thing. I believe this will heal the wound too. I'm praying for your recovery.
Continued prayers for you both. ❤
Amazing place I know it well!!Its definitely due to the fire in Canada 🇨🇦 it’s been burning horribly!!prayers
That was an Ospry in thr big bird nest:)! They eat fish.
She's got this
Wonderful vlog. I have a question about the front passenger seat and sorry if it was already answered and I missed it. Wouldn't it have helped space wise if the front passenger seat was removed and Nicholete wheelchair could be locked into space there since it's just you two?
The passenger seat swivels and is used by Nicholette when she doesn’t have a pressure related injury that requires her lay down and avoid sitting. The chair you see on the passenger seat is her hiking wheelchair and we need to eventually get a rack to hold that outside of the van! We welcome any questions so no need to apologize!
I hate that people are being so awful about Nicholette's health.
Sending prayers🙏🙏🙏🙏🙏🙏🙏
To those viewers that feel it’s “their job” to gauge and then critique how hard ANYBODY works…….SHAME ON YOU!
I COULD neverrrrrrrrrr understand how people saying Nicollet is lazy? Ohhh my goodness you need to evaluate yourself
Stay safe god bless
Please update soon! What is the doctor plan?
Orange sun is from the canada wildfire smoke. Its been pretty bad lately
Also that is a bald eagle nest. Biggest bird we have here besides the crane.
Sorry Herron not crane. They're Grey blue color.
Don't forget your rubber ducky
Osprey
Do you have spasms?
I'm guessing your going to Johns Hopkins OR Hershey Medical but I don't think Hershey is that great. I'm SOOO curious to where your going???!!
We go to the hospital in this video ❤️ and will continue to do vlogs of our journey! Thank you for watching!
life's short, life's hard... do your lives, share what you want, and maybe turn off comments...for sanity
We welcome any and all comments but occasionally will stat our opinions towards them 💖 Thanks for watching and we agree!! We all have to live life the way that makes us happy! Thanks for watching and commenting!
✌🏻💜💡xx
You look like some actor when He was younger but I can't think of who 🤔
SPOILER ALERT: I am house bound. I can move around on my walker and my power chair. However, I am as-god-as bed bound for my hospital-style bed takes the responsibility of my bones. It is an extension of my spine in order to lessen the strain on my spine. Nicholette and I haven't chosen to be bed bound - for any period of time - nor as a lifestyle choice.
What happened? Why are you guys on the road looking for a new doctor?
I find your relationships are give and take. And so much respect.🤎💙🙏🏼🤗