my pituitary macroadenoma signs and symptoms (part 1) - pituitary brain tumor journey

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  • Опубликовано: 29 окт 2024

Комментарии • 45

  • @MVPBOXPICS
    @MVPBOXPICS 7 месяцев назад +29

    I too am a photographer and was diagnosed with the same thing back in September. I just had the surgery last week, I’m so grateful to have my life back.

    • @JesseSchpakowski
      @JesseSchpakowski  7 месяцев назад +2

      I'm so happy for you. I can't wait until this is over. That was a long wait for surgery hey?

    • @allysonbergman1303
      @allysonbergman1303 7 месяцев назад

      I'm so glad the surgery was a success! Wishing you continued health in the future ❤️

    • @selinaakter255
      @selinaakter255 7 месяцев назад +1

      Did you need chemotherapy?

  • @rachelmills8079
    @rachelmills8079 7 месяцев назад +15

    Massive prayers for you Jesse

  • @jnikki
    @jnikki 7 месяцев назад +8

    Oh Jesse. I am so amazed by your attitude and calmness in the face of this challenge. I know exactly how it is to have your health slowly decline and to rationalize that it must be this, that, or the other thing. And to go down the Dr Google rabbit hole. Not glad that this is a pituitary tumor, but as opposed to it actually being MS, I think it is an easier hand you have to play, with much greater likelihood of 100% recovery. I got chills when you spoke about Tim. That was a beautiful thing he did, and it was a beautiful gift you gave his family using your craft to preserve memories for his family, even with the physical obstacles you were working through. Even if I didn't know you as a photographer, I'd still know it by your description of your vision issues as whites being blown out and everything contrasty. The fact that you know your histogram so well you can basically do your work half-blind is indicative of your skill level. I can't wait for you to have regained your health and be able to see you creating new wonderful photos.

  • @jordanslayton1753
    @jordanslayton1753 6 месяцев назад +6

    I was diagnosed with a micro adenoma (prolactin secreting). It’s not big enough for surgical removal.
    Really hoping endocrinology can fix me!

    • @fatimaibrahim2779
      @fatimaibrahim2779 16 дней назад

      I have the same thing. I'm praying it can be fixed because my life has never been the same.

  • @JimmieLisaSmith
    @JimmieLisaSmith 7 месяцев назад +8

    My prayers are with you.

  • @karendeyager4123
    @karendeyager4123 7 месяцев назад +5

    Appreciate your courage and vulnerability in sharing your story, Jesse, and the divine intersection with Timmy as his came to an earthly end. 🩵 love that you see the beauty in that through your own struggles.
    Hoping they’ll be able to expedite your surgery and get you on the road to recovery and back to doing what you love so very soon. Love you guys and we’ll be watching for part 2. 🩵🧡

  • @Lilybet1316
    @Lilybet1316 7 месяцев назад +3

    Tim sounds like a literal angel. 😌🌸 you make wonderful videos Jesse. Sending you so much love from Maine. ❤

  • @lulafaye5670
    @lulafaye5670 7 месяцев назад +5

    Prayers for you. I've been dealing with this tumor since 2018. All the traditional doctors want to do is push cabergoline on you and it made me so sick and i felt like death for over a year the side effects never got better. I've been untreated for over 3-4 years now. Kind of got tired of wasting money at Dr. visits that were going nowhere. And now im searching for any answers any solutions to treat my body without cabergoline or surgery. I'm 34 never had a child and now i havent had a cycle in 6+ years.. the doctors dont seem to care though. Considering acupuncture and a complete change of diet.

    • @barbraprosper9065
      @barbraprosper9065 7 месяцев назад +2

      ❤0peas research carnivore diet and testimonials. There are great Dr.'s involved with this diet/lifestyle. All the best on your journey.❤

  • @SandraGivelber
    @SandraGivelber 7 месяцев назад +3

    Well done on your video Jesse! Thank you for explaining everything that led up to your diagnosis. This video will absolutely help someone else who may be struggling with an undiagnosed health issue. You have taught me the importance of paying attention to your body and not ignoring symptoms that may be a problem. It's so easy to blow that stuff off until it affects something really crucial like your vision. I know you will get through this and thrive in your photography career. You are so talented and that's rather rare. I look forward to seeing you soldier on and do your thing. You are a one-in-a-million special person.❤️💐

  • @eddervr123
    @eddervr123 7 месяцев назад +3

    I am on my kids RUclips account right now but literally I feel like you’re describing my entire year right now down to when it started. I’m currently trying to get diagnosed and have a brain MRI next week. I’m a dance teacher and the vision/hearing issues have literally killed me. I feel you and see you my friend. I seriously hope you keep advocating for yourself and get everything you need.

    • @JesseSchpakowski
      @JesseSchpakowski  7 месяцев назад +1

      I'm sorry to hear that you're struggling as well. It's a bummer when you don't know what's up. Keep in the loop, I'm curious to hear what's up.

  • @sunnydee5998
    @sunnydee5998 6 месяцев назад

    Tim was a Earth Angel and Your story is Beautiful and blessed
    The Good lord puts us through struggles sometimes and we don't know why....
    But they're are usually Beautiful lessons we learn from the School of Life were living in right now

  • @sunnydee5998
    @sunnydee5998 6 месяцев назад

    My friend has had 2 pituitary tumors removed @ Emory University Hospital in Atlanta.
    One happened then 10 yrs later it came back
    She had surgery again
    And is thriving well again ❤❤❤❤❤❤

  • @marchellasilver1962
    @marchellasilver1962 6 месяцев назад

    I'm feeling the same issues...I had it like 7 yesterday. Finally got the tumor surgery done last week. I'm in recovery but feeling the issues your taking about

  • @ryanfrancis7590
    @ryanfrancis7590 7 месяцев назад

    I was diagnosed with the same thing two years ago. Keep your head up, things get better and you’ll have your life back soon. If your testosterone doesn’t come back look into TRT. Feel free to reach out if you have any questions along the way!

  • @kynguyen5688
    @kynguyen5688 7 месяцев назад +4

    Did you have any other symptoms than fatigue? Like headaches, dizziness, nausea, …

    • @JesseSchpakowski
      @JesseSchpakowski  7 месяцев назад +2

      It just started with being tired. That in combination with brain fog and having trouble remembering things. The headaches didn't start until about a month before getting diagnosed. The headaches came on in combination with vision issues. Today it's extreme fatigue, brain fog, memory issues, 24/7 burning headaches and pressure in my head and peripheral vision loss and other vision issues with colour and light.

  • @Circumnavigate
    @Circumnavigate Месяц назад

    Thanks for sharing

  • @stam8122
    @stam8122 7 месяцев назад +3

    Is there anyone whose vision get worst after surgery?

  • @JustJudy
    @JustJudy 6 месяцев назад

    I have a pituatary ratheclef cyst.. i had it removed ovet 20 years ago its come back as 1.4 cm still havent had it removed. Thankfully its not has difficult as it was back then

  • @shaycade1532
    @shaycade1532 13 дней назад

    My mom is having surgery for this soon. It took almost a year for year to get a diagnosis

  • @christinadavies9862
    @christinadavies9862 7 месяцев назад

    💜🙏🌻

  • @JerseyLynne
    @JerseyLynne 6 месяцев назад +1

    I have had impossible miracles, lots of them. It's like heaven knows. The question is if heaven can do all of that, why not just fix me?
    Good question. I've thought about it a lot. I finally surrendered.

  • @m33265
    @m33265 7 месяцев назад +9

    Eat carnivore diet. Forget about all coming from plants. Tons of reason to do that. At least you will be much more healthier and much better nutrished. Eat lot of animal fat and proteins. This will help balance your hormones, repair your body. And see some carivore videos and discussions under these videos.

    • @JesseSchpakowski
      @JesseSchpakowski  7 месяцев назад +5

      Thank you for the suggestion. I am already on the carnivore diet and it's the best I've ever felt, haha minus the tumour. I'm going to do a video about my diet.

    • @lulafaye5670
      @lulafaye5670 7 месяцев назад

      ​@JesseSchpakowski please do 🙏 I would love to hear more about it. Seems a lot of people are having good results with this diet. I'm glad to have found your videos.

    • @joannadavis6716
      @joannadavis6716 6 месяцев назад

      Were you vaxxed and boosted prior to your symptoms showing up? This sounds like a vaccine injury from the jabs.

    • @JesseSchpakowski
      @JesseSchpakowski  6 месяцев назад +1

      @@joannadavis6716Sorry to disappoint you but nope. I avoided that stuff at all costs. My tumour is not cancerous and this type of tumour grows very slow. Given its size I’ve probably had it for most of if not my entire adult life. Only recently I’ve started experiencing symptoms which led to the diagnosis.

    • @m33265
      @m33265 6 месяцев назад

      @@JesseSchpakowski Do you know "metabolic aproach to cancer" ? ruclips.net/video/pwhRskOPwVk/видео.html

  • @BigHesh81
    @BigHesh81 7 месяцев назад +2

    Hypothetically speaking, of course, would it be in poor taste to comment "First" before the video is even posted? Asking for a friend.

    • @JesseSchpakowski
      @JesseSchpakowski  7 месяцев назад

      Haha I always appreciate seeing anything that comes in from you!

  • @nedmatic1329
    @nedmatic1329 2 месяца назад

    I have just been diagnosed with a 2.4cm pituitary macroadenoma absolutely shitting myself

    • @JesseSchpakowski
      @JesseSchpakowski  2 месяца назад +2

      It sucks but it’s going to be okay. Mine was the size of an average strawberry. It was a complex and difficult surgery but it all worked out in the end. If you’re going to get a brain tumour this is one of the better ones to get. The worst part for me was the few days immediately after surgery. Once you’re through that it’s just a matter of time before you’re all healed up and feeling normal again. I’ll have to do some update videos now that I’m on the other side of it.