Hello my mom was diagnose with a macro pituitary tumor size of an egg… she lost part of her left vision and all her bison form the right eye due to the tumor pushing her optic nerve… she was refer to Thomas L Beaumont from San Diego CA… (Jacobs medical center) … within 4 weeks the surgery through the nose was perform and nowadays she is back home and instantly regain most of her vision.
Thank you for sharing your mother’s medical diagnosis which is similar to my present situation. I was recently sent for a brain MRI w/o contrast media for a visual impairment. The results showed a pituitary tumor resting on the optic nerve and now I am undergoing more test including extensive pituitary MRI and blood work. God Bless you for sharing encouraging results from your mother’s outcome. MJ Abraham
My 27 yo daughter had an elevated prolactin level, not pregnant, and no children. She will be scheduled for an MRI. Your video was very informative. Thank you!
I had a tumor with all the symptoms for years and years. What bothered me the most was the mental aspect of it. The depression anxiety and even paranoid at times. The weakness. At times I felt like a 3 year old could kick my butt. Then the things I would do to try to feel better. Drugs. I was self meditating for years. After a while the drugs made it worse. And I'm talking about Klonopin and Xanax. Suicide thoughts were starting to come in. Anyway I finally had the surgery and got off the benzos and life is back to normal. Jesus Christ saw me through it all. Amen
Oh no guys, sorry to hear the different stories. I was diagnosed with adenoma and had surgery February 2022, was successful at first but now it’s growing back May 2024. Nit sure what to do. Everything is out of control at this moment. I really want to go natural and see if that will work. Wish me luck..
@@rakrakbero2987 so at this point we don’t know. Our Pituitary has a way of doing its own thing, however we need to do some controlling. Have to completely change your diet. You have to fight back. I’m trying to do the same but it’s not easy. I don’t want to do another surgery. You have to check your IGF-1 and your ACTH level
very informative information, i have a pitutry adenoma, i lost my side vision, but i was much fortune that i visit eye doctor in Aga khan Health services pakistan, and she identified microadenoma, and referred me Aga khan university Hospital pakistan and through nasal (endoscopy) it has successfully operated. thanks medical team of AKUH Pakistan,
Would you please mention the name of the surgeon who did your surgery at Agha khan in karachi . My cousin has the same tumor he has pretty much lost his vision. He will be seeing Dr M imran at Liaqat national hospital Neurosurgeon. His prolactin was not very high he was not given dostinex he was given some other tablets. Waiting for your reply. Jazakallah
Thank you very much for this video, & especially for mentioning hypopituitarism. I think some decades-old problems & a few more recent issues are beginning to make sense.
I had had a pituitary tumor since May of 2003, here in Vermont. I realize that it may be dangerous to do transphenoidal, surgery, but when I begged for non invasive surgery at UVM medical center, while it was growing to huge now, they said be lucky it has not killed you, or live with any mental problems. The last one was a couple of months ago with June Gleobus at Community Health Center where she says ignore it and treat the symptoms. Since 2020 it has been larger than a cm. I feel hot feelings in my head, dizziness, and closed in vision. Or else doctors say, be lucky it has not killed you yet, or wont do pills because of sugar level risks. This is very stupid. They billed my insurance at UVM medical center in Burlington Vermont telling me they will not do anything. I FEEL LIKE I HAVE A TIME BOMB IN MY HAND. I also feel weak alot. Can anyone help. Not even medicaid in Vermont cares less. Sueellen Bottligi ask her. Patient advocates SUCK here.
Omg I’m having the same issue with my pituitary tumor. The doctors keep telling me that I need to take the medication to shrink it but I don’t wanna take the medication because it has really bad side effects. I just want them to go in and remove it and it seems like I’m gonna have a hard time finding a doctor to do that. I don’t want to be on a medication for the rest of my life and I have to worry about this forever I just want it removed. I’ve already had a stroke when I was younger so I’m kind of concerned about that any advice would be greatly appreciated. I’m actually starting to get scared.
You need to find a neurosurgeon who can perform the surgery through the nose. A neurosurgeon works jointly with an ENT surgeon. A consultation with neurosurgeon is, therefore, the best approach. Good luck.
I'm producing too much cortisol. Did 2 blood tests ... Two for cortisol levels (when will it's okay and the other was high); more blood work for A1C glucose test (result 5.1 which is not even pre-diabetic) and DHEA test, plus urine test, plus saliva test for cortisol verification (too much cortisol). CT scan of entire abdomen proved negative. Next is the MRI of the brain to check my pituitary and hypothalamus glands, in search for tumors. I know this sounds crazy to most... But here goes. The hypothalamus plays an important role in our emotions. It is involved in the expression of our emotions in terms of thoughts. Thoughts become perceptions and perceptions become beliefs. Emotion really rules the human body. Feelings are born of the heart. There are forty thousand brain cells in the center of the heart. The "frequency" of the particular emotion travels to the brain and forms thoughts. These tie in with the rest of the brain's communication which signals different body parts. For instance, anger is held in the liver. You can get cirrhosis of the liver without ever ingesting an alcoholic beverage. The pancreas is where the emotion of worry resides. Chronic worry can cause pancreatic issues. Fear resides in the kidneys and bladder. Chronic fear can put your kidneys and bladder at risk of malfunction. In these three examples, all three organs carry different frequencies, as do the others. There are receptor sites in all of our organs. It is my understanding that the pituitary gland controls and sends out communications for organs to produce particular hormones. Google all of your organs in body parts by asking what emotion is stored in particular parts of your body and you will come to understand why you are feeling the way you're feeling and have a ceiling is affecting particular organs and consequently particular diseases of organs. The medical society knows all about the frequencies of the human body especially neurologists. Teachers of science know about these frequencies also. They just don't teach us. So go out and start reading. Listen to RUclips music or binaural beats that will raise the frequency of your particular body part that is in stress. Stress is a killer and so is excessive fear and excessive worried and excessive thoughts. He's kind of emotion is relegated to a particular body part. Here's the most amazing part. You can tap that part of your body or Google what is the opposite of that part of the body and tap it and all you have to do is say to your body you realize you have this issue and how serious it is and the amount of pain or growth or dysfunction and then tell it you don't have to hold onto the fear and the worry or the anger or whatever the negative emotion is. And then you tell your body to stand up and move forward in your life. Tell you about it you are now moving forward in your life and letting go of the past negative emotions. Practice gratitude and forgiveness everyday and tell yourself that you truly and deeply love yourself daily. Go to RUclips and look up "cortices". Follow the tapping of the brain saying those particular words. I say "synchronize and integrate, harmonize and communicate." Remember to then tap your heart and your belly button where you've gut is. Look up what the three brains are in the human body. Most of us only think of the one that's in our minds. Science know tells us that the second brain is in the gut. However, the foremost brain is in the heart. It will be hard to find out one on paper anywhere but it is out there, and it makes so much sense. I will never have surgery. I do know that having covid twice caused all my problems. Covid can cause these and all you have to do is Google the question. Can covid cause a heart attack? Can covid cause cancer? Etc etc. You'll find your answers. Google "body talk" and "AFT-Attractor Field Technique" and "EFT". WE MUST START EDUCATING OURSELVES. Also be aware of particular foods for particular issues. Because of my emotions, I am of the belief that we either create or co-create our illnesses. And if we do that we can on create them by inviting natural healing. I told my endocrinologist it doesn't matter what any of the tests say because I will find a way to reverse it through my knowledge and my emotions. I can tap away other people's pain and health issues but it's harder on myself. It took me two years to wrap my arms around these concepts, but I practice them on complete strangers and it works. You must feed your body clean food, air, water, and positive emotions. Meditate and listen to the music on Google at night as your sleeping for that particular organ in our case it's the pituitary and hypothalamus glands. You must also talked to the pancreas and the kidneys and the adrenal glands Pierre the adrenal glands captures all of the emotions that I just spoke of. The only way I came out of a three-year period of coronavirus was to stop the self-pity and the complaining and start feeling gratitude. It works. These are daily things that we have to do to be and stay healthy. It's not easy for me because I worry about the world and the state of affairs in the USA. Unaffected by hunger and starvation all over the world. I feel the pain of others , so it has an impact on my own Health and wellness. I have to be more self-focused. I had a perfect heart two years ago according to testing. When my family left here and I had no-one the fear really kicked in. There has also been financial stress. My friends, these stressors will eat your health. After age 21 we lose 1% of our immunity per year. Start taking supplements to help support your pituitary gland hypothalamus glands as well as your adrenal glands and other organs. The most important vitamins for us is vitamin C, vitamin D3 with K2, quercetin, vitamin B1, B12, and B complex. Stay away from sugar. I just began a castor oil pack and the drop of castor oil in my navel. It's detoxifies the body. Start reading about detox programs. Eat only between 11-1 and 5-7. Do not eat after 7 p.m. Start reading how healthy fasting is. We need to be conscious of prevention. Too much worrying is not worth it. Start to carry confidence and your knowing this that everything will be okay, and it will. This is how I will approach, even if there's no tumor in the brain. It's time that we take charge of our own lives. Please look these things up and then make a judgment. I know crazy and it's not crazy. I'm just ahead of the game. Barrier cell phones. Go back to a landline phone. Start using your iPad's in small computers. Or go back to the large computers that we had. Filter the water in your house, bathing included. Do not eat pre-cooked food, processed food at drive-thru junk food eateries. No frozen foods that are in plastic bags. No canned foods. No soda. Carbonated beverages Leach the calcium out of your bones. There are pros and cons in everything. Always look at the source. I most likely will not go to this website again, so I wish you all the very best. Remember, your thoughts and feelings rule your body. Sher
I used dostinex for 3 months, my prolactin was 900 before I started, and later took some test it certainly down to 6.1 but it later went up again, it is now 400😮
My husband tried both of those meds, bromocriptine and cabergoline, to "melt his tumor away" and they both made him very sick. He's left it untreated for the last 5 years or so... He's FINALLY seeing an endocrinologist next month. I'm concerned he may have Cushings... 😕
@3rdeyedread750 we saw endo finally, she was ok. The crazy part is that all his blood work shows that he likely has a pituitary adenoma. We already knew he had it, but still, today's blood still has markers that indicate a tumor. Well guess what the MRI showed?? No tumor? His last doctor told him this would be something he dealt with for the rest of his life. He didn't come near finishing the treatment regimen all those years ago, the blood still points at a tumor, his body is a hot mess... But the MRI shows no tumor??!!?? What in the world!?!? And they sent the MRI findings via text message. 🙄 He has an appointment in January for the doc to explain I guess. But it's nearly 2 months out and we get that bombshell dropped on us. It feels like his primary doctor doesn't really know how to handle this. No one's ever mentioned him seeing the neurologist. It's just a mess. He's gained so much weight thru the years. He already had "bone on bone" knees, and he's only 39. It didn't help that he got fired from his job (unfairly) last year, and it helped throw him into a depressive downward spiral... It makes me think of all the people who's spouse gets in a terrible car accident, or get a life-changing illness, and it's like, you're married, you said "in sickness and health" but it's really hard to help someone who has so many areas he needs help in, and he doesn't have much energy or drive to help himself. If I push too hard, I'm mean. If I don't push at all, I'm watching him wither away, at 39. I can't seem to find the middle ground when trying to support/push him to fight this illness back and get his life/youth back! We have four kids together who need us both and are watching all of this. I'm the only one working. I could so use his help financially. To work at home, he needs computers and specific internet, and a "quiet place to work from." Yet, working out of the home isn't really in the cards for him. The doctor made us feel kind of stupid when we mentioned him applying for disability while going thru treatment and maybe even thru weight loss surgery. So that kind of discouraged us. 😞 It's just been really hard, for a long time. But it could always be worse, I know. Sorry for dropping all that in the comments here. I guess I needed to vent...
My wife had her thyroid removed she's been sick ever since throws up a lot has diarrhea often has to take a bunch of calcium potassium and whole bunch of other medicine everyday. All of a sudden her TSH is at 153 she's losing weight vomits constantly has massive chest pains headaches no one seems to know what to do for her we have three kids and I wish there was something I could do it any help her feel better
Hello I'm 25 years old having macroadenoma prolactin level 1950 after taking dostinex for 1 month still not control and now it's 2045 please guide me why dostinex not working what should I do ? Should I go for surgery?
Yes, complications such nasal liqor leak is life threat, and meningites infection is often case. My mum disabled for life, no recovery years after surgery.
The doctor was only able to remove 80% of the tumor with a posible second operation. My question is will I be able to recover my lost side vision? I would be thankful if you reply please, thank you
@@manuelsalgado8510 its individual, depends how bad is brain cell and optic nerve damage was during surgery. The problem is that surgen dont care, his job remove tumor and thats it, they dont sugest anything for recovery. My mum had 4 times liqor nasal leak, she nearly died. Her left eye did not open at all 2 weeks after this nightmare due to optic nerve and eye muscule damage (surgeon will never admit mistakes), she lost left eye vision permanently from 0.8 to 0.1 due to surgery damages. Its 2 years later nothing recovers as was promised, no hormons either, pill replacement that distroy bone. We did try vitamin b group, and peptide ingections-it worked only on healthy eye, left eye which was damaged never got bk. Our endocrinologist said that most people leave with disability for life after such surgeries, rare case of recovery, almost none. God bless you, stay strong, we have to cherish life as it is.
Hlo doc... I'm suffering from breast milk leakage I'm 2 years married with no kids.my doc prescribed me brotin 2.5 for 3 to 4 months and did me prolactin test which was normal before and after 4 months.doc said stop this medicine now u r ok..one weak later my breast again started producing milk...now doc told me to continue brotien untill I conceive.once she told me about MRI too now I'm confused what to do just stick to brotin or I should go for a MRI and if there is a tumor would it be possible to be treated with oral medicine.i don't have as much vision problem just sometimes I feel pressure in my head and this milk production...plz help I'm from Pakistan I can't come to you plz give me a reply a proper suggestion.
I'm ok now...I had a pituitary gland scan which showed thankfully normal report than my Endocrinologist suggested that it was just suppressing galactorrhea caused by stimulation I stopped medication and avoided any kind of touch... I recovered with in a month
Hello my mom was diagnose with a macro pituitary tumor size of an egg… she lost part of her left vision and all her bison form the right eye due to the tumor pushing her optic nerve… she was refer to Thomas L Beaumont from San Diego CA… (Jacobs medical center) … within 4 weeks the surgery through the nose was perform and nowadays she is back home and instantly regain most of her vision.
Praise the Lord, hope that all goes well with her condition until now.. ❤
thanks so much! Thank God she is doing well! did they mention that she might have to take any medications!
Thank you for sharing your mother’s medical diagnosis which is similar to my present situation. I was recently sent for a brain MRI w/o contrast media for a visual impairment. The results showed a pituitary tumor resting on the optic nerve and now I am undergoing more test including extensive pituitary MRI and blood work.
God Bless you for sharing encouraging results from your mother’s outcome. MJ Abraham
Thank you for sharing ❤❤❤
Can you please say the size of the tumor i mean how many cm
My 27 yo daughter had an elevated prolactin level, not pregnant, and no children. She will be scheduled for an MRI. Your video was very informative. Thank you!
hows going? I have same problem
We are waiting for an MRI to be scheduled for a definitive diagnosisI@dzananaibrahimovic9534
I had a tumor with all the symptoms for years and years. What bothered me the most was the mental aspect of it. The depression anxiety and even paranoid at times. The weakness. At times I felt like a 3 year old could kick my butt. Then the things I would do to try to feel better. Drugs. I was self meditating for years. After a while the drugs made it worse. And I'm talking about Klonopin and Xanax. Suicide thoughts were starting to come in. Anyway I finally had the surgery and got off the benzos and life is back to normal. Jesus Christ saw me through it all. Amen
Oh no guys, sorry to hear the different stories. I was diagnosed with adenoma and had surgery February 2022, was successful at first but now it’s growing back May 2024. Nit sure what to do. Everything is out of control at this moment. I really want to go natural and see if that will work. Wish me luck..
I pray,that you recover. I have only just been diagnosed, I will take the natural method, once I know more.
@@farida3843 do you know what you were diagnosed with? Where are you? How can I help?
i also had surgery in 2021 and at present, the tumor is growing back. it’s now 15x12x11mm. why is it growing back? 😢
@@rakrakbero2987 so at this point we don’t know. Our Pituitary has a way of doing its own thing, however we need to do some controlling. Have to completely change your diet. You have to fight back. I’m trying to do the same but it’s not easy. I don’t want to do another surgery. You have to check your IGF-1 and your ACTH level
@@blakzcoleman2601 Have you considered Radiation Therapy as an option? Has you doctor discussed this you? Does it guarantee non-recurrence?
very informative information, i have a pitutry adenoma, i lost my side vision, but i was much fortune that i visit eye doctor in Aga khan Health services pakistan, and she identified microadenoma, and referred me Aga khan university Hospital pakistan and through nasal (endoscopy) it has successfully operated. thanks medical team of AKUH Pakistan,
Did ur tumour operated?
Would you please mention the name of the surgeon who did your surgery at Agha khan in karachi . My cousin has the same tumor he has pretty much lost his vision. He will be seeing Dr M imran at Liaqat national hospital Neurosurgeon. His prolactin was not very high he was not given dostinex he was given some other tablets. Waiting for your reply. Jazakallah
Hi brother. Can you please share the name of the Neuro surgeon at Agha khan hospital you had your surgery.
Wow I have most of these and struggling with blurry vision and serve temple pains. I’m going in June for MRI scan to see if I have a tumor
How did that turn out?
Update?
Very relaxing and informative video
This was a wonderful, well-thought-out presentation/explanation.
Absolutely Fabulous Pituitary Overview, With Treatment Update!!💯👍❤️🙏
Thank you for all this information. God bless you, doctor. ❤
Thank you very much for this video, & especially for mentioning hypopituitarism. I think some decades-old problems & a few more recent issues are beginning to make sense.
thank you so much doctor that was a very great video
I had had a pituitary tumor since May of 2003, here in Vermont. I realize that it may be dangerous to do transphenoidal, surgery, but when I begged for non invasive surgery at UVM medical center, while it was growing to huge now, they said be lucky it has not killed you, or live with any mental problems. The last one was a couple of months ago with June Gleobus at Community Health Center where she says ignore it and treat the symptoms. Since 2020 it has been larger than a cm. I feel hot feelings in my head, dizziness, and closed in vision. Or else doctors say, be lucky it has not killed you yet, or wont do pills because of sugar level risks. This is very stupid. They billed my insurance at UVM medical center in Burlington Vermont telling me they will not do anything. I FEEL LIKE I HAVE A TIME BOMB IN MY HAND. I also feel weak alot. Can anyone help. Not even medicaid in Vermont cares less. Sueellen Bottligi ask her. Patient advocates SUCK here.
I think those doctors in you’re area don’t have the expertise to deal with it so they just dance around the issue
Omg I’m having the same issue with my pituitary tumor. The doctors keep telling me that I need to take the medication to shrink it but I don’t wanna take the medication because it has really bad side effects. I just want them to go in and remove it and it seems like I’m gonna have a hard time finding a doctor to do that. I don’t want to be on a medication for the rest of my life and I have to worry about this forever I just want it removed. I’ve already had a stroke when I was younger so I’m kind of concerned about that any advice would be greatly appreciated. I’m actually starting to get scared.
You need to find a neurosurgeon who can perform the surgery through the nose. A neurosurgeon works jointly with an ENT surgeon.
A consultation with neurosurgeon is, therefore, the best approach. Good luck.
Sorry 😞 u going threw this
I'm producing too much cortisol. Did 2 blood tests ... Two for cortisol levels (when will it's okay and the other was high); more blood work for A1C glucose test (result 5.1 which is not even pre-diabetic) and DHEA test, plus urine test, plus saliva test for cortisol verification (too much cortisol). CT scan of entire abdomen proved negative. Next is the MRI of the brain to check my pituitary and hypothalamus glands, in search for tumors. I know this sounds crazy to most... But here goes. The hypothalamus plays an important role in our emotions. It is involved in the expression of our emotions in terms of thoughts. Thoughts become perceptions and perceptions become beliefs. Emotion really rules the human body. Feelings are born of the heart. There are forty thousand brain cells in the center of the heart. The "frequency" of the particular emotion travels to the brain and forms thoughts. These tie in with the rest of the brain's communication which signals different body parts. For instance, anger is held in the liver. You can get cirrhosis of the liver without ever ingesting an alcoholic beverage. The pancreas is where the emotion of worry resides. Chronic worry can cause pancreatic issues. Fear resides in the kidneys and bladder. Chronic fear can put your kidneys and bladder at risk of malfunction. In these three examples, all three organs carry different frequencies, as do the others. There are receptor sites in all of our organs. It is my understanding that the pituitary gland controls and sends out communications for organs to produce particular hormones. Google all of your organs in body parts by asking what emotion is stored in particular parts of your body and you will come to understand why you are feeling the way you're feeling and have a ceiling is affecting particular organs and consequently particular diseases of organs. The medical society knows all about the frequencies of the human body especially neurologists. Teachers of science know about these frequencies also. They just don't teach us. So go out and start reading. Listen to RUclips music or binaural beats that will raise the frequency of your particular body part that is in stress. Stress is a killer and so is excessive fear and excessive worried and excessive thoughts. He's kind of emotion is relegated to a particular body part. Here's the most amazing part. You can tap that part of your body or Google what is the opposite of that part of the body and tap it and all you have to do is say to your body you realize you have this issue and how serious it is and the amount of pain or growth or dysfunction and then tell it you don't have to hold onto the fear and the worry or the anger or whatever the negative emotion is. And then you tell your body to stand up and move forward in your life. Tell you about it you are now moving forward in your life and letting go of the past negative emotions. Practice gratitude and forgiveness everyday and tell yourself that you truly and deeply love yourself daily. Go to RUclips and look up "cortices". Follow the tapping of the brain saying those particular words. I say "synchronize and integrate, harmonize and communicate." Remember to then tap your heart and your belly button where you've gut is. Look up what the three brains are in the human body. Most of us only think of the one that's in our minds. Science know tells us that the second brain is in the gut. However, the foremost brain is in the heart. It will be hard to find out one on paper anywhere but it is out there, and it makes so much sense. I will never have surgery. I do know that having covid twice caused all my problems. Covid can cause these and all you have to do is Google the question. Can covid cause a heart attack? Can covid cause cancer? Etc etc. You'll find your answers. Google "body talk" and "AFT-Attractor Field Technique" and "EFT". WE MUST START EDUCATING OURSELVES. Also be aware of particular foods for particular issues. Because of my emotions, I am of the belief that we either create or co-create our illnesses. And if we do that we can on create them by inviting natural healing. I told my endocrinologist it doesn't matter what any of the tests say because I will find a way to reverse it through my knowledge and my emotions. I can tap away other people's pain and health issues but it's harder on myself. It took me two years to wrap my arms around these concepts, but I practice them on complete strangers and it works. You must feed your body clean food, air, water, and positive emotions. Meditate and listen to the music on Google at night as your sleeping for that particular organ in our case it's the pituitary and hypothalamus glands. You must also talked to the pancreas and the kidneys and the adrenal glands Pierre the adrenal glands captures all of the emotions that I just spoke of. The only way I came out of a three-year period of coronavirus was to stop the self-pity and the complaining and start feeling gratitude. It works. These are daily things that we have to do to be and stay healthy. It's not easy for me because I worry about the world and the state of affairs in the USA. Unaffected by hunger and starvation all over the world. I feel the pain of others , so it has an impact on my own Health and wellness. I have to be more self-focused. I had a perfect heart two years ago according to testing. When my family left here and I had no-one the fear really kicked in. There has also been financial stress. My friends, these stressors will eat your health. After age 21 we lose 1% of our immunity per year. Start taking supplements to help support your pituitary gland hypothalamus glands as well as your adrenal glands and other organs. The most important vitamins for us is vitamin C, vitamin D3 with K2, quercetin, vitamin B1, B12, and B complex. Stay away from sugar. I just began a castor oil pack and the drop of castor oil in my navel. It's detoxifies the body. Start reading about detox programs. Eat only between 11-1 and 5-7. Do not eat after 7 p.m. Start reading how healthy fasting is. We need to be conscious of prevention. Too much worrying is not worth it. Start to carry confidence and your knowing this that everything will be okay, and it will. This is how I will approach, even if there's no tumor in the brain. It's time that we take charge of our own lives. Please look these things up and then make a judgment. I know crazy and it's not crazy. I'm just ahead of the game. Barrier cell phones. Go back to a landline phone. Start using your iPad's in small computers. Or go back to the large computers that we had. Filter the water in your house, bathing included. Do not eat pre-cooked food, processed food at drive-thru junk food eateries. No frozen foods that are in plastic bags. No canned foods. No soda. Carbonated beverages Leach the calcium out of your bones. There are pros and cons in everything. Always look at the source. I most likely will not go to this website again, so I wish you all the very best. Remember, your thoughts and feelings rule your body. Sher
Superb explanations sir
Hello everyone. I have a pituitary tumor that causes a lot of difficulty symptoms. I just need to know if anyone knows if this qualifys for disability
Great video, thank you
Thank you very much for this video, i have just recently been diagnosed for macroadernoma, i will be seeing my endocronologist this thursday
Do go to neurosurgeon as well..
Thank you for the info.
Great video.
Thank you so much
Dostinex (cabergoline) is the best med for a prolactinoma. Shrinks it to where med is no longer needed (microadenoma).
I used dostinex for 3 months, my prolactin was 900 before I started, and later took some test it certainly down to 6.1 but it later went up again, it is now 400😮
@@brendamanzini3312 oh wow!! Sorry it didn’t work for you🙏🏼💪🏼
@@brendamanzini3312what were your symptoms?
My husband tried both of those meds, bromocriptine and cabergoline, to "melt his tumor away" and they both made him very sick. He's left it untreated for the last 5 years or so... He's FINALLY seeing an endocrinologist next month. I'm concerned he may have Cushings... 😕
What he needs to see is a neurologist. An endocrinologist may help as far as the hormones are concerned
Did he gain a lot of upper body weight?
@venomx4093 yes. A lot... His legs are big too, but nothing like his upper body.
@@roxannerodriguez7075 Definitely sounds like Cushing's. He needs a Cortisol test ran.
@3rdeyedread750 we saw endo finally, she was ok. The crazy part is that all his blood work shows that he likely has a pituitary adenoma. We already knew he had it, but still, today's blood still has markers that indicate a tumor. Well guess what the MRI showed?? No tumor?
His last doctor told him this would be something he dealt with for the rest of his life. He didn't come near finishing the treatment regimen all those years ago, the blood still points at a tumor, his body is a hot mess... But the MRI shows no tumor??!!?? What in the world!?!?
And they sent the MRI findings via text message. 🙄 He has an appointment in January for the doc to explain I guess. But it's nearly 2 months out and we get that bombshell dropped on us.
It feels like his primary doctor doesn't really know how to handle this. No one's ever mentioned him seeing the neurologist. It's just a mess.
He's gained so much weight thru the years. He already had "bone on bone" knees, and he's only 39.
It didn't help that he got fired from his job (unfairly) last year, and it helped throw him into a depressive downward spiral...
It makes me think of all the people who's spouse gets in a terrible car accident, or get a life-changing illness, and it's like, you're married, you said "in sickness and health" but it's really hard to help someone who has so many areas he needs help in, and he doesn't have much energy or drive to help himself.
If I push too hard, I'm mean. If I don't push at all, I'm watching him wither away, at 39. I can't seem to find the middle ground when trying to support/push him to fight this illness back and get his life/youth back!
We have four kids together who need us both and are watching all of this.
I'm the only one working. I could so use his help financially.
To work at home, he needs computers and specific internet, and a "quiet place to work from." Yet, working out of the home isn't really in the cards for him.
The doctor made us feel kind of stupid when we mentioned him applying for disability while going thru treatment and maybe even thru weight loss surgery. So that kind of discouraged us. 😞
It's just been really hard, for a long time. But it could always be worse, I know.
Sorry for dropping all that in the comments here. I guess I needed to vent...
Hello Aron, thank you for the information. Do you have any suggestions for Pennsylvania doctors for this treatment?
My wife had her thyroid removed she's been sick ever since throws up a lot has diarrhea often has to take a bunch of calcium potassium and whole bunch of other medicine everyday. All of a sudden her TSH is at 153 she's losing weight vomits constantly has massive chest pains headaches no one seems to know what to do for her we have three kids and I wish there was something I could do it any help her feel better
Sounds like thyroid Storm from too high a dosage. Doctors should have monitored her levels and adjusted the dose.
May God bless her and she recovers soon
1st thing is why hasn't her doctors addressed this issue? Find a new Endo or Rheumatologist doctor ASAP.
How are you supposed to focus on what this man is saying when they’ve got music blaring in the background
Hello I'm 25 years old having macroadenoma prolactin level 1950 after taking dostinex for 1 month still not control and now it's 2045 please guide me why dostinex not working what should I do ?
Should I go for surgery?
Is this surgery dangerous?
Every surgery is dangerous and scary but with the right Doctor you will be fine
Yes, complications such nasal liqor leak is life threat, and meningites infection is often case. My mum disabled for life, no recovery years after surgery.
Went thru this a few days ago 6/27/24, my side vision still not back, should keep having hopes? The tumor was bigger than normal,
The doctor was only able to remove 80% of the tumor with a posible second operation. My question is will I be able to recover my lost side vision? I would be thankful if you reply please, thank you
@@manuelsalgado8510 its individual, depends how bad is brain cell and optic nerve damage was during surgery. The problem is that surgen dont care, his job remove tumor and thats it, they dont sugest anything for recovery. My mum had 4 times liqor nasal leak, she nearly died. Her left eye did not open at all 2 weeks after this nightmare due to optic nerve and eye muscule damage (surgeon will never admit mistakes), she lost left eye vision permanently from 0.8 to 0.1 due to surgery damages. Its 2 years later nothing recovers as was promised, no hormons either, pill replacement that distroy bone. We did try vitamin b group, and peptide ingections-it worked only on healthy eye, left eye which was damaged never got bk. Our endocrinologist said that most people leave with disability for life after such surgeries, rare case of recovery, almost none. God bless you, stay strong, we have to cherish life as it is.
I'm on Dostinex
It's Helping to Shrink Tge Tumour.
Do I need Surgery
Once it Shrunk.
Please Advise.
Hlo doc... I'm suffering from breast milk leakage I'm 2 years married with no kids.my doc prescribed me brotin 2.5 for 3 to 4 months and did me prolactin test which was normal before and after 4 months.doc said stop this medicine now u r ok..one weak later my breast again started producing milk...now doc told me to continue brotien untill I conceive.once she told me about MRI too now I'm confused what to do just stick to brotin or I should go for a MRI and if there is a tumor would it be possible to be treated with oral medicine.i don't have as much vision problem just sometimes I feel pressure in my head and this milk production...plz help I'm from Pakistan I can't come to you plz give me a reply a proper suggestion.
Sorry to hear this,have u gone for surgery or are you okay now?
How r u now what is ur problem
I'm ok now...I had a pituitary gland scan which showed thankfully normal report than my Endocrinologist suggested that it was just suppressing galactorrhea caused by stimulation I stopped medication and avoided any kind of touch... I recovered with in a month
Hi can you treat neurofibromatosis Type 1 have over a hundred tumors
What major city are you in?
How can I reach out you
I was told I have a petuitory cyst and if it ever burst I will die! Is this true?
Hello? How are you now?
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