my pituitary macroadenoma diagnoses (part 2) - pituitary brain tumor journey

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  • Опубликовано: 24 ноя 2024

Комментарии • 35

  • @sanriggert4986
    @sanriggert4986 8 месяцев назад +6

    10:27 I was diagnosed Feb 9. Mine is large and after quick appointments with a brain surgeon ,ENT, and Neuroendocrinologist I am set for surgery April 8th. I had MRI with contrast and there is no pain or discomfort with these tests. I actually started to fall asleep. As part of my symptoms I'm sure. I see Opthomologist tomorrow to see if any eye problems. Only 2 day stay in Hospital and light work 2 weeks and Dr follow ups. Easy surgery no need for Disability!!! I will let you know how it goes

  • @SandraGivelber
    @SandraGivelber 8 месяцев назад +7

    You needn't worry about “rambling on” I’m happy to report that you are still very well-spoken :) I know nothing about Canadian Health Care but it seems absurd to make someone wait months when you have a growing tumor. I hope your surgery happens sooner rather than later. I can't imagine how powerless you must feel just waiting. I really feel terrible for you. The flip side is you have Brandy to keep the home fires burning and two Pugs to commiserate with. Brandy can certainly empathize with your plight and I can think of a better person to have by your side than her. Thank you for making this video. Please keep us posted with any updates. You have a worried audience. Sending you lots of love and healing vibes straight to your brain :)I suggest you put on funny movies and try to find the humor wherever you can.❤️❤️❤️

  • @CooperLandingFishingGuide
    @CooperLandingFishingGuide 8 месяцев назад +4

    I just got the news today that this is most likely what I have as well. I found out after a very thorough blood test. Sounds like we’re going on the same journey together. Wishing you all the best! I’ll keep you updated on my progress.

    • @sanriggert4986
      @sanriggert4986 8 месяцев назад +1

      Hope you get surgery and well quickly. The surgery is quick and easy. 2 day stay hospital and they want you up walking around right away. The words brain. Tumor is scary but it's really outside the brain

  • @MartineNicole-f6w
    @MartineNicole-f6w 8 месяцев назад +2

    I think my daughter may have this as well. She’s waiting for a call back from her dr on Friday. Thanks for posting your visit. God Bless you Jesse. 🙏🏻

  • @Passs0011
    @Passs0011 7 месяцев назад +1

    Hi Jesse,
    I live in South Africa. The sun is always shining here and there is always the risk of developing skin cancer if you have a light skin. I developed a growth on the lower eye lid of my right eye. I do not know if it is cancer or just a benign growth but I went on a high nutrition diet for about two months and the growth have shrunk noticeably.
    I would like to share the diet with you.
    The soup
    Ingredients: - two handfuls of Chopped broccoli, one chopped onion (purple), two bags of green tea, two pinches of mixed herbs, two sticks of cut celery, Two handfuls of frozen and crushed spinach or kale, half a table spoon of crushed garlic, Three shakes of black pepper, seven shakes of turmeric, two tablespoons full of apple cider vinegar (with the mother), one bag of white onion powder soup for flavour, a hand full of cooked red speckled beans and a handful of cooked mince meat.
    Just add all the ingredients in a pot, add boiling water and switch the stove on high till the water boils. Then lower the heat until the water simmer, Let the soup simmer for an hour. The soup is now ready.
    I would only drink water in the morning. At 12h00 I would start eating the soup. There will be about two helpings that you can eat in the 12h00 to 18h00 time frame. I also ate a fruit salad every day in the 12h00 to 18h00 time frame.
    (Note: Apparently turmeric reduces the effect of some chemotherapy drugs and thus should not be taken during chemotherapy.)
    During the rest of the week I would also eat food that contains vitamin D like avocado’s, mushrooms, liver and eggs in the 12h00 to 18h00 time frame.
    It seems to be working for me, maybe it will also work for you.
    I pray to God the Father in the name of Jesus Christ that you will be healed. Amen.
    I would like to share the following five videos with you about salvation and two videos about evolution:
    Evolution vs. God
    ruclips.net/video/uc_W9VtzJ0A/видео.html
    DESTROYING Evolution In Under 3 Minutes
    ruclips.net/video/sWecPwrQv2c/видео.html
    Watch the Holy Spirit Work in Her Heart (Very Moving)
    ruclips.net/video/iBEoI2u6kII/видео.html
    Fearing The Lord, God’s Discipline & Sharing The Gospel
    ruclips.net/video/dES5WW66Mro/видео.html
    A Clear Gospel Presentation by Pastor Steven Anderson - How to go to Heaven
    ruclips.net/video/IXEeMWCxyrQ/видео.html
    The Plan of Salvation
    ruclips.net/video/PmkhRMPvt_0/видео.html
    How to Get Saved
    ruclips.net/video/ajWdkuvrT6s/видео.html
    Best regards
    Chris
    “For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life”. John 3:16 (King James Version Bible)
    Jesus Christ is the only begotten Son Of God the Father.

  • @valeriemcelree4427
    @valeriemcelree4427 8 месяцев назад +1

    So glad to hear you are going for disability, they should give it to you for sure, and you are being very strong and doing all you can to take care of yourself. You are well spoken. I really appreciate you sharing. God bless you

  • @sylviarogier1
    @sylviarogier1 7 месяцев назад +1

    I'm sorry about your recent diagnosis. I didn't notice any speech issues. You sound great. I know that being told you have a tumor in your brain is no doubt traumatic, it appears this tumor is not cancerous and does not spread to other parts of the body. So there's that. Take good care.

  • @JimmieLisaSmith
    @JimmieLisaSmith 8 месяцев назад

    You did a great job relaying the information and process you have been going through. I was impressed with the concise clear explanation you gave. I can empathize with the discomfort you experienced with the MRI. I have had probably 40 or so MRIs and about the same number of Ct scans so far in my life. I pray the Neuro surgeon can get you in soon for surgery so you can begin your healing. You are in my daily prayers. Love and prayers from Washington DC.

  • @trishdonley945
    @trishdonley945 8 месяцев назад

    I'm so sorry to hear about your tumor, Jesse. I'm glad you shared about it and also started the GoFundMe.
    My brother also has a pituitary tumor, diagnosed in November. His is more hormonally based (he was diagnosed with diabetes and his growth hormone was off the charts) and has not affected his eyes. He was diagnosed with acromegaly.
    Please know you're not alone. Our family also started a Caring Bridge to share information, and we've found that really helpful to keep everyone informed.
    Sending healing thoughts your way❤️

    • @ronbatt8673
      @ronbatt8673 7 месяцев назад

      Hi Jesse I also found out about 2 months ago I have a patoaty tumor I went to U.C. Davis in Sacramento CA. They can't due surgery on me so I'm going to have

  • @karenkenney6021
    @karenkenney6021 8 месяцев назад +1

    You are in my prayers! I'm really hoping you can get into surgery sooner than they originally planned ❤

  • @ivanpulido6263
    @ivanpulido6263 3 дня назад

    I have the same thing !!! And I have all the same symptoms

  • @ev8236
    @ev8236 Месяц назад

    Im goin true the same things is not easy.
    We need to take care and hope everything will be ok.
    Lots of blessings 🙌 🙏❤️

  • @MrJonroock
    @MrJonroock 8 месяцев назад

    Thanks for sharing this with us. I’ll keep you in my prayers. I feel for you on the MRI. I hate them!

  • @rudysains3803
    @rudysains3803 2 месяца назад

    7 years ago, out of the blue, started losing my vision. Long story short, I had a very large, size of an egg, Pituitary tumor. Needless to say it was shocking. And because of its size it was compressing my optic nerves and blindness was a risk. So emergency surgery was recommended by the Neuro Surgeon. 5 days later I was in surgery. Radiation and a 2nd surgery have followed and lots of health changes. Most of them challenging. If you’d like know more about my journey or have any questions, please feel free to contact me.

  • @kimmagee21
    @kimmagee21 8 месяцев назад

    Thinking of you Jesse ❤ MRIs are definitely not fun! I hope they can schedule your surgery for you soon after you see the surgeon 🤞🏻 The waiting must be stressful on top of managing your symptoms. Sending lots of love x ❤️

  • @OneluchoSalazar
    @OneluchoSalazar 7 месяцев назад

    Thanks for sharing. I goin to have an MRI this week, i when to see my eye doctor today and she think that is something going on in my pituitary gland, my vision is bad from my left eye and also the other one is starting to get blurry to, im a videographer an this problem is getting in my way. God bless you, i hope you get better. 🙏

  • @manbrains
    @manbrains 6 месяцев назад

    Just found your channel. I'm not sure what's going on with me but I've had prolactinemia and galactorrhea not attributable to anything else. Ive been changing my medications due to night eating and memory lapses of those episodes but now I'm having memory lapses with a different med too. I see the endocrinologist June 12th. See my psych tomorrow at least. I'm out of paid sick days but at least have enough to get by temporarily. I don't know how to describe this but I don't feel like myself. Weird thing is that my eyes are fine. My balance is off though and I've been more prone to feeling car sick.

  • @cyndyscraftcorner8017
    @cyndyscraftcorner8017 7 месяцев назад

    Hi Jesse, can I ask you what age you were diagnosed or started your headaches? I was diagnosed with the same at age 38. I know you are reelling with the news. My eyesight was so bad I had family bring me some beer as it was quite a shock! The best thing I can say is that it is almost 100% not cancer and if you live in Canada you will be taken care of. I am in my 50 s now and have had 3 surgeries to remove the tumour as it grows. Some people only have one surgery and it never gets big enough to have another surgery.Normally in hosp for 5-7 days after surgery. I typically take 3 months off work. Let yourself recover and take it easy, you can do this!

  • @Circumnavigate
    @Circumnavigate 2 месяца назад

    Has the Canadian healthcare system been working out OK for you?

  • @rachelmills8079
    @rachelmills8079 8 месяцев назад +2

    Prayers the surgeon can get you in fast for surgery so you can start to heal process. Enjoy snuggling Ivy until you see the surgeon and rest

  • @conndapierce5869
    @conndapierce5869 8 месяцев назад +3

    Try Ivermectin and quercetin also fenbendazole

    • @JesseSchpakowski
      @JesseSchpakowski  8 месяцев назад +1

      Thanks

    • @BagoGarde
      @BagoGarde 7 месяцев назад

      Try to look in your bloodwork for the presence of Spike protein. Long covid is leading to an increase in cancers and new conditions.

  • @lesluxon9089
    @lesluxon9089 8 месяцев назад

    I just want to cry 😢 and every thing to go away 😢 I know that is not going to happen 😢😢😢

  • @nicford548
    @nicford548 7 месяцев назад +1

    $1000-1500/month on disability in Canada 🇨🇦 I’m ashamed to tell you in the USA 🇺🇸 it’s not that much. My daughter was recently diagnosed with this pituitary tumor. We’re waiting to meet with her endocrinologist to see the next steps in her treatment. Her tumor is directly affecting her hormone levels, while yours is a different kind that grows to affect the optic nerve which is causing a problem with your vision.

    • @JerseyLynne
      @JerseyLynne 7 месяцев назад +1

      It depends on your income, it's like social security.

  • @lesluxon9089
    @lesluxon9089 8 месяцев назад +1

    My wife is going through this i just want 😢to cry she won't let me going on 😢😢😢😢pls help😢😢😢😢😢😢😢

  • @lmk0799
    @lmk0799 7 месяцев назад

    Do you know which hormones she checked?

  • @jnikki
    @jnikki 8 месяцев назад

    You are doing a great job of sharing your experience. I'm so damn sorry you are having it, but I just know that you're going to get the surgery done soon and that you will have an immediate return to clear vision. 🤎