My nephew had the same tumor. He was seen at Duke University Hospital and went thru clinical trial.They injected the Poliovirus into the tumor. Today he is heal completely given God all the praise and glory. Praying for your healing and strength for your wife and family 🙏🙏🙏
Interesting you say that. My father had polio as a young man so when he went to the hospital at 77, they were treating him for Post Polio Syndrome, but he had Glioblastoma. It was too late for any treatment by then and he died a week later
That should be illegal - suffering through the illness as a child, but then finding out in the 80s that it doubles back on you as post polio syndrome, but then getting brain a brain tumor that the thing you battled repeatedly in your life can help your brain tumor, but it really just makes it worse. I believe it was stated best by Depeche Mode, but "I think that God's got a sick sense of humor, and and when I die, I expect to find him laughing." All the best to you and yours.
Seriously! This woman is beautiful, loving towards her husband, and just hurting for the situation! You people are heartless and judgemental!☹️. God bless them and their family!!
My only daughter was diagnosed in 1997 ,she was 20 yrs old. Her name is Shannon and had headaches a your prior to her diagnosis we thought she had mirgraines and was told she did . The day she was given a CT scan was a Thursday and died on Friday. This now has some good news in treatment for the brain cancer 25 yrs later but we were so shocked at the loss of our daughter so quickly
I think the wife is exhibiting much anxiety and perhaps some denial. I wouldn't want to be in her position especially with 10 kids. They have a large family so chances are she is getting alot of help that she will need moving forward. Sad story.
Have you watched “The Little Southerner” here on RUclips? This beautiful Christian woman and her husband daily vloged about her stage 4 glioblastoma. She has sense passed on but she lived with such vigor! She loved God so much! I go back and watch her sometimes for inspiration. Thank you for sharing your story. You are in my prayers. 🤦♀️
I don’t know why on earth, but I will know when I am in heaven. My husband passed in 2013 from glioblastoma and I prayed fervently. The Lord has taken wonderful care of me and my children. I experience his love and care daily. It’s not easy, but I am thankful.
Very sadly one of my childhood school friends was diagnosed with stage 4 glioblastoma at 17 and passed away a couple of years later. I haven't watched your entire journey yet so hope that you are still with us.
My fiancé’s mother was diagnosed with glioblastoma. She had a tumor the size of a man’s fist & they successfully surgically resected almost all of it. She underwent radiation & chemo but ultimately succumbed 18 months after her initial diagnosis with us by her side. I know they’ve made great strides in the last 5 years when it comes to research & finding successful treatments for glioblastoma. I pray that you’re doing well. You’re so young.🙏🏼❤️
Cancer is such a destructive thing no one should judge how people feel. Everyone is different.My husband had cancer and i never could come to terms with it. I had a hard time accepting it.
Sending prayers and lots of love to you both. I lost my partner to GBM a few years ago, he was 42. The symptoms leading up to diagnosis have a few similarities, although his prognosis was bad from the beginning (inoperable, unable to tolerate chemo) It's great that you are doing so good. Keep up the fight against that fu*ker, I have a feeling you are going win that fight🙏❤
10 kids and driving so for to work and back each day and then staying up late to take care of those kids must have been so stressful. 😩 Rest in peace , Now it’s now on her .
@@bjkail24 So sorry Carrie. My one hope is that something is found to treat this terrible and deadly form of cancer. I lost my only little brother at the age of 37 in February of 2012 from this killer and not a day goes by where my heart does not ache due to his absence. GBM robs families of joy and laughter by taking the best too soon. Sending you love, light and healing.❤❤❤
This day is Feb. 109,2024 and how I come to find this is strange but I wanted to hear your story. I myseelf I suffered a cancer not on or in brain. In all seriousness i hope yòur doing well. Hoping your family is doiing weĺ but wanted to say you two seem to be perfect for each other!❤❤❤❤❤
My GBM is completely different; it's in the motor function part of my brain, so I was losing my balance and falling to the right as the tumour is slightly in the left side. My mind has been totally functional, which is why it was so hard to believe what I have.
I know !!! She was acting like she didn’t want to talk and and flipping her hair and just kept telling us how mad that made HER … not empathetic to her husband!!! 🙄🙄🙄
Check out the Optune machine/cap specifically made for Glioblastoma I ordered for my husband through a referral first from his Doctor who did his surgery 3 weeks ago. And Medicare covers it.
My husband has GBM but unfortunate his type is immune to all the treatment we’ve been trying. Now we are in a palliative treatment at home. I pray for many years for you. ❤️
My brother was 35 when he was diagnosed with a glioblastoma in August of 1990. He lived 7 months, passing in March of 1991. It saddens me that they've done very little in a way of cure for this cancer. My prayers go out to you Brandon and to Carrie and your entire families.
Amyrenes can you please contact me. My mom was just diagnosed with brain cancer. Did your aunt go thru chemotherapy and radiation? Is she following any special diets? Holistic remedies?
Some of these comments are so terrible if you don’t want to hear their story move on and keep your stupid mouth shut it’s just hateful and mean 😪 it until you realize this pain you have no idea what this means to people who need to hear this 😢😢🙏 I don’t even know how this got on my feed but God knows 🙏
It’s not possible to remove a glioblastoma for 100% with surgery because it as part of the name in GBM4 the M is for multiforma meaning it has tentacles that dig into the brain like the roots of a plant into the earth. This is probably why they always come back. My late husband had the initial tumor removed but it grew back and later he had 3 more tumors in an other part of the brain. He lived for 28 months after the initial diagnosis. He died in 2020 aged 63.
My thoughts and prayers remain with your family. Can't help but be concerned d/t no update. Please let us know there are those of us who truly care for y'all.
Please continue to share your story 🙏 as this type of cancer is rare in young people 😪 my son was diagnosed with this horrible cancer at the age of 37 and his tumor was removed and he did all they can 😪 he was a miracle when he was born and I believe God is going to heal him now 🙏🙏🙏. God bless his wife 😇 my son has been in remission for almost a year 🙏🙏 my son had headaches for over two months and was about to have a ct when he had the grand mal seizure . Keep praying for a miracle cure for this cancer 🙏🙏🙏
Hi I don’t know if you have discovered there is a machine/cap you wear call Optune. I previously ordered for my husband and it specifically was made for Glioblastoma My prayers go up to the throne room of grace for you & your family. Shalom
I’m in same boat diagnosed 12/24/20 Grade 4 gbm 6 weeks of radiation ☢️ and chemotherapy god bless us all Mnemonic with my wife for 42 years I’m 58 and I want more time with her We have 3 kids and 4 grandchildren I’ve been robbed of so much we will pray for you guys Let’s kick this demons ass! If I can help anyway let me knows
Praying for your whole family. Continue to Praise God as you continue on your journey. My husband was diagnosed with cancer at 48 and died at 53. I tell you this to pray that you are able to receive this gift of “time” and cherish each moment. Know that God will be right there with all of you.
I am in awe of you and your wife... such positive people.. stay strong both of you ...... miracles do happen... i will keep you and your family in my prayers... i am in remission myself from bowel cancer.... stay safe.....
My son (w/me in this photo) was diagnosed with glioblastoma at age 33, and went to heaven at age 36, on November 04, 2017 This date (Nov. 4th) is coincidentally the birthday of both of my deceased Portuguese grandparents (Almeida) - yet born in different years 🙏💗 I know they welcomed him with LOVE
My brother was 26 when he was diagnosed with glioblastoma in 1990. He fought this evil cancer for 3 years. He passed away in 1993 at 29 years old. My prayers are with you both and your family. Send hugs! ❤Thanks for sharing your journey.
Brandon passed away in August of 2021. Glioblastoma is a grade 4 tumor--very treatment-resistant. This is one of the toughest cancers to cure---it has a 1% cure rate.
My dad has been hospitalised last Friday (14 apr 2023) they suspect glioblastoma grade 4. He had a surgery on Monday 17th April 2023). They removed as much as they could and we are waiting for biopsy. He completely lost his vision on left eye. He also sometimes talking gibberish. We are planning to complete radiation and chemotherapy. I’m praying every day for him. And I pray for you too
Hey Lina if you don’t mind me asking. How is your father today? My father got the news he’s in stage 4 just two days ago. He’s done one surgery.. I have a bad feeling his declining too fast. I’m starting to accept his fate even though it’s breaking my heart. Sending you prayers ❤️💔
My husband was suddenly diagnosed with Glioblastoma but it was inoperable. He did radiation and chemo but he only lived 11 weeks. God Bless You and your family.
Filip Andersson What kind of asinine ass leaves a comment like this? One viewer was trying to leave a supportive comment for a man (and his wife) who’s fighting for his life and you come along and leave the words “it’s a death sentence” on here?
My prays are with you all the way from the uk 🇬🇧 to you your family. my mum had glioblastoma and sadly she died last year, stay strong live laugh love and makes lots of memories.
My husband (34) was just diagnosed on 3/14 and I’m working on editing my first RUclips video to document our journey. We are 46 days since dx & first resection. Would love to connect with you.
It's 2/14/24. I just read his GLIO cancer journey story. I'm so sorry to his family that his fight ended. Sadly, the Same cancer took my brother's life within 2 months. I hope that the passing years have brought you some sort of peace and comfort. R.I.P Brandon.
Best of wishes to you! My father was diagnosed with a grade 4 GBM (non methylated) in October 2018. He recently started Optune after finishing the standard of care. I highly recommend anyone with a GBM speak to their neuro oncologist about it.
I don’t know why this came up on my RUclips feed, but I’m sure glad it did. I see that this was four years ago, but I’m going over to site to catch up! Thank you for sharing your story, thank you for sharing your faith. Without God, how could there be hope? You guys are amazing! ❤❤❤
Prayers to you!!! My father was diagnosed July 4th of 2011 and passed away Oct 31st 2011. He was 74 years old. Thank God treatments for this have advanced so much since then. My dad was fine on July 4th went to Sam's Club got ribs for dinner my mom said he was home sitting at the table drinking a beer when she left to go shopping and when she came back an hour later he was still sitting there and when she spoke to him she new right away something was wrong because he couldn't form any kind of sentence he was speaking just nonsense. She called 911 and he was diagnosed later that night.
Stacey my dad the same he was 74 and was fine but then fell down in garden and diagnoses same day and we lost him a few months later my mum was 68 and we lost her a month before his diagnosis which came out of the blue it's tough just wanted to say how similar our dads story's are lost him in 2020 my thoughts are with you xx
My niece was 23, she was in a little fender bender accident. Went to ER, test, more test. Oncology treatment will not cure you, they laid out the side effects. She decided to just make the most of the time she had left. Did not live for her 24th birthday .
? Do y'all have a P.O. box so if we (I) want to send a card to u and ur family hope u dont think i weird for asking its just that my heart is with u and ur family..thanks 4 sharing!
My sister just had surgery and begins treatment soon. Can you tell me a little bit about your brother and his experience (and his caretakers’) during this those five years? Thank you.
Brandon, the first visual symptom you noticed was the lights shifting right to left and right to left. Did this visual symptom stay with you continuously, or did it stop? And did it look blurry? The feeling of disorientation and stopping at the green light plus noticing the lights shifting sounded like the start of a seizure. Forgetting things and not able to read the road signs and mental fog was a clear sign that things weren't right. I notice a lot of GBM patients that have posted up their first symptoms and signs on RUclips have had literally the worst of the worst experiences when their symptoms onset. Lots of reports of either migraine style headaches lasting for weeks on end, throwing up, or having seizures. One young man had auditory seizures where he heard a weird sound/music before he totally spaced out. Bob Moog had issues with moving his arm and even with receiving treatment he didn't live more than 3 months. GBM is a very aggressive form of brain cancer. You were lucky to get all of the tumor resected, it's a difficult tumor to remove since it forms little tentacles that go into the brain tissue. I really hope that you have the right genes and receive the best treatment possible. Not everyone makes it. My heart goes out to you two and your family.
@Busty Blonde Beach Bunny: I had done a lot of research online on the types of symptoms and what other people have experienced through RUclips videos, in conjunction with undergraduate studies in premed biology. I had concerns that I had a form of brain cancer with having visual disturbances, vertigo, tinnitus, and headaches. Thankfully my MRI results were normal, but I sympathize for people experiencing cancer. I do hope for more development and research in aggressive forms of brain cancer, such as GBM, to help people like Brandon live longer and be cured.
Since then I've some headaches and a couple focal seizures that involved flashing lights. Occasionally, I'll feel light-headed. I'm sorry for your losses. Thank you for your encouragement!
Wildfox09!! Thank you For sharing your awful experience 🙏 I know many people out there go through similar experiences Of yours weard disease's that hurting many lives God saved you from that painful diseases to help Other's
Prayers to you and your family. My mother was diagnosed with a grade 4 Glioblastoma at the age of 39, was treated at Pittsburgh Presbyterian Hospital and lived 27 years after. They are wonderful there. Have faith and never give it! God works wonders daily!
Amazing mam super... My father was diagnosed vth grade4 giloblastoma on may 2018 now he became down again can you suggest me for anymore suggestion to overcome
hi stacy, did your mother did special treatments ? or just the surgery chemo and radio ? and did she follow some specific diet or something ? my dad was just diagnosed with gbm grade 4, and he got 100% of the mass removed, every advice would be very helpfull, thank you very much.
Brandon and Carrie,.I've been keeping you in thoughts and prayers the fact that you are sharing your journey with us shows whar strength of character you have I will have a Mass said for you and I will constantly keep you Carrie and your fily in my prayers 🙏 sending 🫂
About 39 mins in you mentioned basically how you’ve been doing great, I am in the same situation! I was diagnosed with GBM following an awake craniotomy brain surgery on July 30. I promise you that your faith and the prayers from those you are close to, those you happened to meet, those you happened to just see, and those you’ve never met who pray for you and even just think positive for you will see you through! I have done the same 6 weeks of low dose chemo and radiation (9/10/18-10/18/18), and last night I took the last dose of the 5th month of 5/23 (five days on 23 days off) high dose Temodar. It’s seriously 50/50 when it comes to faith and prayer vs following the medical treatment available. My own neurosurgeon initially thought I had a grade 2 benign tumor, though the path confirmed grade 4 GBM. I have some speech problems more-so related to memory. For example, I want to say a word that starts with L but I think of all sorts of other words before the correct one comes to my mind. This really only happens if I’m overly tired or while I’m on this high dose of Temodar. I would definitely pursue any possible clinical trials! I am unfortunately not eligible for any at this time, for which I just take as a positive moment from God for telling me that I’m doing too well to take the place of someone who needs a different treatment than the standard. This journey is a change in your life but it is just a time out, I pray for you and your family! That you all make it through to be able to continue to share your story! Help others know what happens and how we go through the process. Without you sharing your story, we cannot even tell that you are cancerous and praise God for that strength!
@@breannedixon9712 Thank you! I have finished all of my treatments! I now just check in with my oncologists every couple months with an MRI and maintaining preventative seizure meds. I really appreciate your kind words!
Thank you for this video, still helping people from heaven. I’m praying for you, Carrie, and your family, and for all reading this/dealing with this diagnosis. My 89 yr old F-in-law was diagnosed 6 weeks ago, given a rosy prognosis but after surgery, the doctor’s demeanor completely changed. It went badly & he couldn’t read, walk, was incontinent, and spoke mainly gibberish. He was so unhappy and angry that his “children” let him do the surgery. He asked them to kill him & wanted to die. He did last week. We thank God that he is out of his misery. Blessings to all of you, and to God be all the glory! We know where Brandon is, and you will see him again!
Husband dx June 13 2019. Had surgery on June 11th and got pathology report as he was being discharged 2 days after surgery. Very devastating time. Sounds like he will be having 2nd surgery soon. Tumor came back before any treatments started but he did go through the 6 weeks radiation and now does chemo.
Brandon I am very sorry you and your family are going through this, I am sending prayers that Gods healing hands will continue your healing process and you will be cancer free after treatment. God bless you and your family. 🙏
My prayers are with you both. God is your Healer n he has you in the palm of His Hands. God made you n He knows how to fix you. Keep your faith in God. He’s in control and He knows you better than anybody else.🙏🙏🙏🙏🙏🙏🙏🙏🙏Keep thanking the Lord everyday for your Healing.
This man was incredible..such an amazing positive attitude and outlook on his horrific diagnoses ❤ I could only hope to have such grace when faced with such a devastating disease..he was so young and a beautiful family..I could definitely see and feel his hope, love, faith and devotion to God almighty ❤ My Deepest sympathy to his wife, children, family and friends, I'm so sorry 🙏 He was most definitely an inspiration to us all.❤ xx hydie
I just came across your journey video and I just got diagnosed with cancer and your cancer and how are you talking about your journey bring so much to me and know that your Christian and that you’re bound thank you
My good friend diagnosed with GBM and when neurosurgery removed much of tumour. It was sent to pathology and there seems there is a variant of this type brain tumour. She has had treatment finishing her rounds. They found that tumor wasn’t same type as what they later found it in bone. They did auto stem cell transplant. She is 6 months out and is doing much better.
I dont know why your feed came up on my notifications in 2023 in Ireland my irish shamrock luck sent to u ..theres a eeson fir everything as a survivor of cancer
My nephew had the same tumor. He was seen at Duke University Hospital and went thru clinical trial.They injected the Poliovirus into the tumor. Today he is heal completely given God all the praise and glory. Praying for your healing and strength for your wife and family 🙏🙏🙏
I’ve seen a documentary on treating glioblastoma with polivirus (60 minutes) , it’s pretty impressive!!
That's wonderful
Interesting you say that. My father had polio as a young man so when he went to the hospital at 77, they were treating him for Post Polio Syndrome, but he had Glioblastoma. It was too late for any treatment by then and he died a week later
I'm@@leslievanduzee9282
That should be illegal - suffering through the illness as a child, but then finding out in the 80s that it doubles back on you as post polio syndrome, but then getting brain a brain tumor that the thing you battled repeatedly in your life can help your brain tumor, but it really just makes it worse. I believe it was stated best by Depeche Mode, but "I think that God's got a sick sense of humor, and and when I die, I expect to find him laughing."
All the best to you and yours.
Seriously! This woman is beautiful, loving towards her husband, and just hurting for the situation! You people are heartless and judgemental!☹️. God bless them and their family!!
What were ppl saying? I can't believe anyone would say anything bad about this family or his amazing wife but it's the internet it's so disturbing...😢
My only daughter was diagnosed in 1997 ,she was 20 yrs old. Her name is Shannon and had headaches a your prior to her diagnosis we thought she had mirgraines and was told she did . The day she was given a CT scan was a Thursday and died on Friday. This now has some good news in treatment for the brain cancer 25 yrs later but we were so shocked at the loss of our daughter so quickly
🙏
terrible experience. My prayers are for u too
I think the wife is exhibiting much anxiety and perhaps some denial. I wouldn't want to be in her position especially with 10 kids. They have a large family so chances are she is getting alot of help that she will need moving forward. Sad story.
I am so incredibly sorry for the tremendous loss of your beloved daughter..❤ My Deepest Sympathy to you and your family xx Hydie 😢
God bless you 🙏❤️🙏
Have you watched “The Little Southerner” here on RUclips? This beautiful Christian woman and her husband daily vloged about her stage 4 glioblastoma. She has sense passed on but she lived with such vigor! She loved God so much! I go back and watch her sometimes for inspiration.
Thank you for sharing your story. You are in my prayers. 🤦♀️
sarah I have watched the little southerner. She’s a good soul. Too bad she passed.
Why didn’t God save her?
I don’t know why on earth, but I will know when I am in heaven. My husband passed in 2013 from glioblastoma and I prayed fervently. The Lord has taken wonderful care of me and my children. I experience his love and care daily. It’s not easy, but I am thankful.
Very sadly one of my childhood school friends was diagnosed with stage 4 glioblastoma at 17 and passed away a couple of years later. I haven't watched your entire journey yet so hope that you are still with us.
My fiancé’s mother was diagnosed with glioblastoma. She had a tumor the size of a man’s fist & they successfully surgically resected almost all of it. She underwent radiation & chemo but ultimately succumbed 18 months after her initial diagnosis with us by her side. I know they’ve made great strides in the last 5 years when it comes to research & finding successful treatments for glioblastoma. I pray that you’re doing well. You’re so young.🙏🏼❤️
Thank you for sharing your experiences. Best wishes from the UK
Cancer is such a destructive thing no one should judge how people feel. Everyone is different.My husband had cancer and i never could come to terms with it. I had a hard time accepting it.
Sending prayers and lots of love to you both. I lost my partner to GBM a few years ago, he was 42. The symptoms leading up to diagnosis have a few similarities, although his prognosis was bad from the beginning (inoperable, unable to tolerate chemo) It's great that you are doing so good. Keep up the fight against that fu*ker, I have a feeling you are going win that fight🙏❤
10 kids and driving so for to work and back each day and then staying up late to take care of those kids must have been so stressful. 😩 Rest in peace , Now it’s now on her .
Wow what a life changing journey. Thank you for your sharing.
Stay strong, stay blessed and listen to your doctors. You can and will beat this cancer! God is on your side.💗🙏🏼💗
Jenny, this is Carrie. Brandon passed away Aug 30,2021. May he Rest In Peace.
@@bjkail24 So sorry for your loss.
@@bjkail24 So sorry Carrie. My one hope is that something is found to treat this terrible and deadly form of cancer. I lost my only little brother at the age of 37 in February of 2012 from this killer and not a day goes by where my heart does not ache due to his absence. GBM robs families of joy and laughter by taking the best too soon. Sending you love, light and healing.❤❤❤
It's unfortunate your neurosurgeon wasn't honest with you. I worked for one and he was always, always upfront and honest about the tumors.
I’m so sorry 💔. Lost my brother and I will never get past losing him
This day is Feb. 109,2024 and how I come to find this is strange but I wanted to hear your story. I myseelf I suffered a cancer not on or in brain.
In all seriousness i hope yòur doing well. Hoping your family is doiing weĺ but wanted to say you two seem to be perfect for each other!❤❤❤❤❤
I just came into this family. Realize I’m late. Updated please 💜
god bless you hope you get better to be with your family
He passed in '21
Beautiful couple 💕 STRONG IN THE LORD
My GBM is completely different; it's in the motor function part of my brain, so I was losing my balance and falling to the right as the tumour is slightly in the left side. My mind has been totally functional, which is why it was so hard to believe what I have.
My sister alena is going through this
She can't move
The Burzynski Clinic in Texas has had some good results treating glioblastoma
So scary that this happened 😢
❤️❤️❤️🙏🙏🙏
How are u now?
He's gone
CAN'T HEAR HER
I know !!! She was acting like she didn’t want to talk and and flipping her hair and just kept telling us how mad that made HER … not empathetic to her husband!!! 🙄🙄🙄
How to save my sister. Plz help me she is suffering from low grade glioma she is about 20 year old. What we should do please suggest
Check out the Optune machine/cap specifically made for Glioblastoma I ordered for my husband through a referral first from his Doctor who did his surgery 3 weeks ago. And Medicare covers it.
What is the prune machine
I'm sorry for not seeing your question sooner. How is your sister doing?
@@traciewise3988 limited success with this
@@JLM1953 8
My husband has GBM but unfortunate his type is immune to all the treatment we’ve been trying. Now we are in a palliative treatment at home. I pray for many years for you. ❤️
My brother was 35 when he was diagnosed with a glioblastoma in August of 1990. He lived 7 months, passing in March of 1991. It saddens me that they've done very little in a way of cure for this cancer. My prayers go out to you Brandon and to Carrie and your entire families.
My aunt was diagnosed with this in 2005 and given 6-12 months. It is now 19 years later and she is alive and kicking!
Amyrenes can you please contact me. My mom was just diagnosed with brain cancer. Did your aunt go thru chemotherapy and radiation? Is she following any special diets? Holistic remedies?
@@stefanieschuff758: l am praying for your Mom
Some of these comments are so terrible if you don’t want to hear their story move on and keep your stupid mouth shut it’s just hateful and mean 😪 it until you realize this pain you have no idea what this means to people who need to hear this 😢😢🙏 I don’t even know how this got on my feed but God knows 🙏
It’s not possible to remove a glioblastoma for 100% with surgery because it as part of the name in GBM4 the M is for multiforma meaning it has tentacles that dig into the brain like the roots of a plant into the earth. This is probably why they always come back. My late husband had the initial tumor removed but it grew back and later he had 3 more tumors in an other part of the brain.
He lived for 28 months after the initial diagnosis. He died in 2020 aged 63.
My girlfriends daughter was diagnosed with stage 4 glioblastoma at age 34 and lived 4 years.
Hang in there I have recently had a gbm removed from my right side of the occipital lobe of the brain it’s been a tough journey but strength is key
My thoughts and prayers remain with your family. Can't help but be concerned d/t no update. Please let us know there are those of us who truly care for y'all.
Please continue to share your story 🙏 as this type of cancer is rare in young people 😪 my son was diagnosed with this horrible cancer at the age of 37 and his tumor was removed and he did all they can 😪 he was a miracle when he was born and I believe God is going to heal him now 🙏🙏🙏. God bless his wife 😇 my son has been in remission for almost a year 🙏🙏 my son had headaches for over two months and was about to have a ct when he had the grand mal seizure . Keep praying for a miracle cure for this cancer 🙏🙏🙏
🙏🏻🙏🏻🙏🏻🙏🏻
My late husband passed away from Glioblastoma Multiforme. Rest in peace Ross
Hi I don’t know if you have discovered there is a machine/cap you wear call Optune. I previously ordered for my husband and it specifically was made for Glioblastoma
My prayers go up to the throne room of grace for you & your family.
Shalom
I’m in same boat diagnosed 12/24/20
Grade 4 gbm
6 weeks of radiation ☢️ and chemotherapy god bless us all
Mnemonic with my wife for 42 years
I’m 58 and I want more time with her
We have 3 kids and 4 grandchildren
I’ve been robbed of so much we will pray for you guys
Let’s kick this demons ass!
If I can help anyway let me knows
I pray 🙏 for your healing❤❤
Praying for your whole family. Continue to Praise God as you continue on your journey. My husband was diagnosed with cancer at 48 and died at 53. I tell you this to pray that you are able to receive this gift of “time” and cherish each moment. Know that God will be right there with all of you.
I am in awe of you and your wife... such positive people.. stay strong both of you ...... miracles do happen... i will keep you and your family in my prayers... i am in remission myself from bowel cancer.... stay safe.....
Your attitude and strength are inspirational. Prayers for you and your family.🙏🏻
My son (w/me in this photo) was diagnosed with glioblastoma at age 33, and went to heaven at age 36, on
November 04, 2017
This date (Nov. 4th) is coincidentally the birthday of both of my deceased Portuguese grandparents (Almeida) - yet born in different years 🙏💗 I know they welcomed him with LOVE
My brother was 26 when he was diagnosed with glioblastoma in 1990. He fought this evil cancer for 3 years. He passed away in 1993 at 29 years old.
My prayers are with you both and your family. Send hugs! ❤Thanks for sharing your journey.
I am so incredibly sorry for the loss of your beloved brother ❤ xx hydie
@@hydie0079 , you are too kind. Thank you! ❤️🙏🏼
Brandon passed away in August of 2021. Glioblastoma is a grade 4 tumor--very treatment-resistant. This is one of the toughest cancers to cure---it has a 1% cure rate.
My dad has been hospitalised last Friday (14 apr 2023) they suspect glioblastoma grade 4. He had a surgery on Monday 17th April 2023). They removed as much as they could and we are waiting for biopsy. He completely lost his vision on left eye. He also sometimes talking gibberish. We are planning to complete radiation and chemotherapy. I’m praying every day for him. And I pray for you too
Hey Lina if you don’t mind me asking. How is your father today?
My father got the news he’s in stage 4 just two days ago. He’s done one surgery.. I have a bad feeling his declining too fast. I’m starting to accept his fate even though it’s breaking my heart.
Sending you prayers ❤️💔
Lots of prayers and hugs for you all
My husband was suddenly diagnosed with Glioblastoma but it was inoperable. He did radiation and chemo but he only lived 11 weeks. God Bless You and your family.
My deepest sympathy. God bless you
Prayers for you
Your husband's nightmare journey with GB sounds exactly the same as my Sweet Daddy. I'm so very sorry. 💔
This breaks my heart What can one say except I’m so so so sorry. What a nice guy. So young!
My good friend from college lived over 10 years with this kind of brain cancer. I hope you can make it!
Hi, April. Thank you for the encouragement! We'll be sure to keep your friend in our prayers.
Filip Andersson What kind of asinine ass leaves a comment like this? One viewer was trying to leave a supportive comment for a man (and his wife) who’s fighting for his life and you come along and leave the words “it’s a death sentence” on here?
@@KP-tn9cq I agree! That's a horrible comment to leave. Messages of hope are what they need.
@@KP-tn9cq I so agree with you..
@@filip1997andersson Thanks Dr Google, I know what I have though.
THERE ARE NEW TREATMENTS EVERY DAY!! KEEP THE HOPE :-)
My prays are with you all the way from the uk 🇬🇧 to you your family. my mum had glioblastoma and sadly she died last year, stay strong live laugh love and makes lots of memories.
My husband (34) was just diagnosed on 3/14 and I’m working on editing my first RUclips video to document our journey. We are 46 days since dx & first resection. Would love to connect with you.
April, how is your husband doing?
It's 2/14/24. I just read his GLIO cancer journey story. I'm so sorry to his family that his fight ended. Sadly, the Same cancer took my brother's life within 2 months. I hope that the passing years have brought you some sort of peace and comfort. R.I.P Brandon.
I'm so sorry for your loss ❤ xx hydie
When did he pass away?
Sadly the man on this video passed away a few years ago@@maryellenblount6376
Best of wishes to you! My father was diagnosed with a grade 4 GBM (non methylated) in October 2018. He recently started Optune after finishing the standard of care. I highly recommend anyone with a GBM speak to their neuro oncologist about it.
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Do the polio vaccine if available for you
I don’t know why this came up on my RUclips feed, but I’m sure glad it did. I see that this was four years ago, but I’m going over to site to catch up! Thank you for sharing your story, thank you for sharing your faith. Without God, how could there be hope? You guys are amazing! ❤❤❤
Ditto.
May the Lords will be done in your situation.
Prayers to you!!! My father was diagnosed July 4th of 2011 and passed away Oct 31st 2011. He was 74 years old. Thank God treatments for this have advanced so much since then. My dad was fine on July 4th went to Sam's Club got ribs for dinner my mom said he was home sitting at the table drinking a beer when she left to go shopping and when she came back an hour later he was still sitting there and when she spoke to him she new right away something was wrong because he couldn't form any kind of sentence he was speaking just nonsense. She called 911 and he was diagnosed later that night.
Stacey my dad the same he was 74 and was fine but then fell down in garden and diagnoses same day and we lost him a few months later my mum was 68 and we lost her a month before his diagnosis which came out of the blue it's tough just wanted to say how similar our dads story's are lost him in 2020 my thoughts are with you xx
My husband was diagnosed in July 2011 too. He lived until November 2012. They were not pleasant months whatsoever. I’m so sorry for your loss.
@@trilabradorable it is such a horrible cancer. I'm sorry for your loss too.
i already love you two...very best wishes from new zealand.
My niece was 23, she was in a little fender bender accident. Went to ER, test, more test. Oncology treatment will not cure you, they laid out the side effects. She decided to just make the most of the time she had left. Did not live for her 24th birthday .
The original CT was with contrast because one without would be useless. ☝️❤️ they would need the most detailed scan possible before surgery.
Brandon is such a good, clear speaker to listen to.
Was😢
You are not a statistic…my doctor to me not to stop fighting …. And I refuse to … I tell the disease to screw off on a daily basis …you can win !
Prayers 🙏🙏🤲
❤❤❤❤❤❤❤I don't understand why so many people have glioblastoma. These days....your not alone.
Never give up hope. 2 to 3 years is time for hopefully new treatments to become avaliable. Prayers for you guys.
My husband was diagnosed with Glioblastoma in August of 2015. He lost his battle to this in December of 2016.
? Do y'all have a P.O. box so if we (I) want to send a card to u and ur family hope u dont think i weird for asking its just that my heart is with u and ur family..thanks 4 sharing!
my brother lived 5 yrs after diagnoses
My sister just had surgery and begins treatment soon. Can you tell me a little bit about your brother and his experience (and his caretakers’) during this those five years? Thank you.
There is no resecting 100% of this type of tumor!!
Carrie, you're an incredibly strong supporter for your husband. It's okay to have some tears.
Id love to know how things are going,,, Continued prayers
Thoughts and prayers from Fairmont, WV
Prayers from Weston WV also
Brandon, the first visual symptom you noticed was the lights shifting right to left and right to left. Did this visual symptom stay with you continuously, or did it stop? And did it look blurry? The feeling of disorientation and stopping at the green light plus noticing the lights shifting sounded like the start of a seizure. Forgetting things and not able to read the road signs and mental fog was a clear sign that things weren't right.
I notice a lot of GBM patients that have posted up their first symptoms and signs on RUclips have had literally the worst of the worst experiences when their symptoms onset. Lots of reports of either migraine style headaches lasting for weeks on end, throwing up, or having seizures. One young man had auditory seizures where he heard a weird sound/music before he totally spaced out. Bob Moog had issues with moving his arm and even with receiving treatment he didn't live more than 3 months.
GBM is a very aggressive form of brain cancer. You were lucky to get all of the tumor resected, it's a difficult tumor to remove since it forms little tentacles that go into the brain tissue. I really hope that you have the right genes and receive the best treatment possible. Not everyone makes it. My heart goes out to you two and your family.
@Busty Blonde Beach Bunny: I had done a lot of research online on the types of symptoms and what other people have experienced through RUclips videos, in conjunction with undergraduate studies in premed biology. I had concerns that I had a form of brain cancer with having visual disturbances, vertigo, tinnitus, and headaches. Thankfully my MRI results were normal, but I sympathize for people experiencing cancer. I do hope for more development and research in aggressive forms of brain cancer, such as GBM, to help people like Brandon live longer and be cured.
I just had the symptoms for that night. After the seizure, I did not experience that again...
Since then I've some headaches and a couple focal seizures that involved flashing lights. Occasionally, I'll feel light-headed. I'm sorry for your losses. Thank you for your encouragement!
@@bjkail24 Really glad to hear from you! I hope that you're doing okay. :)
me in lol you are on our
Wildfox09!! Thank you For sharing your awful experience 🙏 I know many people out there go through similar experiences Of yours weard disease's that hurting many lives God saved you from that painful diseases to help Other's
Prayers to you and your family. My mother was diagnosed with a grade 4 Glioblastoma at the age of 39, was treated at Pittsburgh Presbyterian Hospital and lived 27 years after. They are wonderful there. Have faith and never give it! God works wonders daily!
Thank you for haring this inspiring story, Stacy. That's amazing! I will certainly keep the faith.
Hi Stacy, can you get in contact with me.
Amazing mam super... My father was diagnosed vth grade4 giloblastoma on may 2018 now he became down again can you suggest me for anymore suggestion to overcome
Hi mam i want to contact you... Please can you help...to overcome my dad from this worst timing of gbm stage 4
hi stacy, did your mother did special treatments ? or just the surgery chemo and radio ? and did she follow some specific diet or something ? my dad was just diagnosed with gbm grade 4, and he got 100% of the mass removed, every advice would be very helpfull, thank you very much.
R.I.P. in the arms of the Lord, 🙏.
My son was 32 and passed with this also 😢
Brandon and Carrie,.I've been keeping you in thoughts and prayers the fact that you are sharing your journey with us shows whar strength of character you have I will have a Mass said for you and I will constantly keep you Carrie and your fily in my prayers 🙏 sending 🫂
God bless you and your family keeping you in my prayers you'll be one of God's miracles
With love an up most respect from Grants Pass Oregon
I'm so glad you are sharing your journey. ❤
Rip❤❤
About 39 mins in you mentioned basically how you’ve been doing great, I am in the same situation! I was diagnosed with GBM following an awake craniotomy brain surgery on July 30. I promise you that your faith and the prayers from those you are close to, those you happened to meet, those you happened to just see, and those you’ve never met who pray for you and even just think positive for you will see you through! I have done the same 6 weeks of low dose chemo and radiation (9/10/18-10/18/18), and last night I took the last dose of the 5th month of 5/23 (five days on 23 days off) high dose Temodar. It’s seriously 50/50 when it comes to faith and prayer vs following the medical treatment available. My own neurosurgeon initially thought I had a grade 2 benign tumor, though the path confirmed grade 4 GBM. I have some speech problems more-so related to memory. For example, I want to say a word that starts with L but I think of all sorts of other words before the correct one comes to my mind. This really only happens if I’m overly tired or while I’m on this high dose of Temodar. I would definitely pursue any possible clinical trials! I am unfortunately not eligible for any at this time, for which I just take as a positive moment from God for telling me that I’m doing too well to take the place of someone who needs a different treatment than the standard. This journey is a change in your life but it is just a time out, I pray for you and your family! That you all make it through to be able to continue to share your story! Help others know what happens and how we go through the process. Without you sharing your story, we cannot even tell that you are cancerous and praise God for that strength!
Good luck with everything. Hope you’re doing well
@@breannedixon9712 Thank you! I have finished all of my treatments! I now just check in with my oncologists every couple months with an MRI and maintaining preventative seizure meds. I really appreciate your kind words!
He lived for about two years.
Oh no she was left with 10 kids
I will be praying for you Brandon, Carrie & your family. Stay strong! Sending lots of love from New Alexandria, PA.
Thank you, Denise!
Remain strong GOD is with you ❤...I'm fighting cancer it's a tough fight with a short stick. GOD IS ABLE 💕
He passed away 3 years ago.
Thank you for this video, still helping people from heaven. I’m praying for you, Carrie, and your family, and for all reading this/dealing with this diagnosis. My 89 yr old F-in-law was diagnosed 6 weeks ago, given a rosy prognosis but after surgery, the doctor’s demeanor completely changed. It went badly & he couldn’t read, walk, was incontinent, and spoke mainly gibberish. He was so unhappy and angry that his “children” let him do the surgery. He asked them to kill him & wanted to die. He did last week. We thank God that he is out of his misery. Blessings to all of you, and to God be all the glory! We know where Brandon is, and you will see him again!
God Bless you both stay strong my prayers with your family!!!
Husband dx June 13 2019. Had surgery on June 11th and got pathology report as he was being discharged 2 days after surgery. Very devastating time. Sounds like he will be having 2nd surgery soon. Tumor came back before any treatments started but he did go through the 6 weeks radiation and now does chemo.
We hope and pray that all is going well!
Brandon I am very sorry you and your family are going through this, I am sending prayers that Gods healing hands will continue your healing process and you will be cancer free after treatment. God bless you and your family. 🙏
My prayers are with you both. God is your Healer n he has you in the palm of His Hands. God made you n He knows how to fix you. Keep your faith in God. He’s in control and He knows you better than anybody else.🙏🙏🙏🙏🙏🙏🙏🙏🙏Keep thanking the Lord everyday for your Healing.
Praying for you and your family
This man was incredible..such an amazing positive attitude and outlook on his horrific diagnoses ❤ I could only hope to have such grace when faced with such a devastating disease..he was so young and a beautiful family..I could definitely see and feel his hope, love, faith and devotion to God almighty ❤ My Deepest sympathy to his wife, children, family and friends, I'm so sorry 🙏 He was most definitely an inspiration to us all.❤ xx hydie
My prayers and thoughts are with you and your family for a complete recovery 🙏🏻
Is she still alive.
He passed in 2021.
Wow...wouldn't get on Carrie's badside...she is tough
🤣🤣🤣🤣🤣
Latrobe mot far from us in portage,pa my husband was operated on for glioblastoma 9,11,23,using optine can no longer walk.
My significant other lasted 18 months with this cancer before it took his life.
I just came across your journey video and I just got diagnosed with cancer and your cancer and how are you talking about your journey bring so much to me and know that your Christian and that you’re bound thank you
My good friend diagnosed with GBM and when neurosurgery removed much of tumour. It was sent to pathology and there seems there is a variant of this type brain tumour. She has had treatment finishing her rounds. They found that tumor wasn’t same type as what they later found it in bone. They did auto stem cell transplant. She is 6 months out and is doing much better.
I dont know why your feed came up on my notifications in 2023 in Ireland my irish shamrock luck sent to u ..theres a eeson fir everything as a survivor of cancer
Stay strong❤️
After seizure the patient is in a postictial state where is sleep for a not insignificant time. May look like awake..but not.
My brother lived 5 yrs with gleoblastoma