The most important thing towards recovering your health from CFS, Fibromyalgia, POTS and MCS

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  • Опубликовано: 8 сен 2024

Комментарии • 52

  • @charlottewortley1245
    @charlottewortley1245 Год назад +42

    An additional suggestion for maintaining a healing environment: don't take on new responsibilities such as full-time work the moment that you think you'll be able to manage just because you think that you 'ought to'. I did this and it meant that I didn't allow myself enough time to fully regain my health, so I eventually relapsed.

    • @CFSUnravelled1
      @CFSUnravelled1  Год назад +5

      Great comment Charlotte - yes we need to pace our re-engagement and make sure that our recovery is stable. If we feel setbacks coming on, then we need to access how we were engaging with the work and if something has to change. Great comment.

    • @jessicaklowe
      @jessicaklowe Год назад +2

      Amen. Made the same mistake.

    • @hotstitch1
      @hotstitch1 Год назад +5

      Yes That mistake is often aided and abetted due to the modern dismissal of the need for convalescence. These days you are either ill; or well. With ME we know it's not that simple.

    • @ElmosMum8
      @ElmosMum8 Год назад +1

      Yes. And the misunderstanding of the inconsistencies of these illnesses. You may be having a good day and able to,eave the house when you haven't so people instantly think "you're better!" (Live in a small town 🙄). Izzy Kornblau has a great video on misconceptions of chronic disease and one is that people think you are the same way all the time, when this is just not true and in fact NEVER true for ANYBODY. Frustrating and I'm over trying to explain why I am not working. I just wish I could say I'm retired and they'd stop grilling me.

  • @robinmariecuddlist3353
    @robinmariecuddlist3353 Год назад +18

    Spending my time with people who are emotionally healthy, uplifting, caring and positive is part of my healing environment.

  • @gypsyananda
    @gypsyananda Год назад +22

    I think you missed a crucial aspect of the healing environment: leaving situations that are stress inducing. Abusive marriages or work situations for example. We can have lots of running water and aromatherapy but if an angry or unsupportive person is a major player in our lives we will constantly be in flight or flight. So many recovery stories have an aspect of changing toxic environments

    • @helensadeik400
      @helensadeik400 Год назад +1

      Yes I had that got your lazy, what are you lying down for. After I’d worked a double shift

  • @lizeiting
    @lizeiting Год назад +13

    I would add that what is also essential is to spend time with uplifting people who support your recovery and remove toxic people in your life who create stress for you.

  • @howdee3
    @howdee3 Год назад +17

    I like the change of scenery in this video. Nice to see that Dan exists in places other than just a white room. Refreshing!

    • @CFSUnravelled1
      @CFSUnravelled1  Год назад +19

      They let me out every couple of months for 20 minutes.

    • @truthprevails7085
      @truthprevails7085 Год назад +3

      @@CFSUnravelled1 😅

    • @AliWade1971
      @AliWade1971 6 месяцев назад

      Not wearing the lilac shirt either!

  • @KE-gh5xx
    @KE-gh5xx Год назад +9

    Thank you for this short-n-sweet video. As someone still in the severe range (10-12% functionality), long videos are not yet accessible to me. I liked how I could quickly skim through the transcript to get key points and then lie down with eyes closed to think about what you said. Thank you for all the work you are doing. And I'm glad they let you out of the house every so often lol!

  • @janillingsworth7478
    @janillingsworth7478 Год назад +11

    I notice, having had fibromyalgia for 20 years, that I try too hard, listen to people with conflicting ideas , I have constantly monitored my pain levels. I find creating in art has been the best way to shift myself out of pain.

  • @DP-nv5fy
    @DP-nv5fy Год назад +4

    This is a helpful reminder of how to keep moving forward during recovery.

  • @homemakersheart3614
    @homemakersheart3614 Год назад +4

    This was a great video! I have been focused on laughing more, and uplifiting things, but I easily forget about the need for the calm and nuturing. Your lovely background was wonderful.,

  • @ulrich2441
    @ulrich2441 Год назад +4

    Very insightful and “wise” as was his online course, I undertook a while ago. It seems that awareness combined with an amalgamation of at times small changes helps the road to recovery and not what some try to sell the simple silver bullet. Combined with his really deep knowledge and pleasant communication, this sets Dan very convincingly apart from loads of self-proclaimed “quick-fix gurus”. Thank you for sharing Dan!

  • @penelopelambson6794
    @penelopelambson6794 Год назад +9

    For me, having dealt with ME/CFS since the 1980’s, the major disrupter to my well being is noise. I have had to live in very noisy areas and the affect has been highly detrimental on my health in all aspects. To make matter worse, any attempt, no matter how cordial and kind, to talk to neighbors about noise reduction was met with retaliation of either damage to some personal property or elevated noise at all hours of the night. Noise has been my nightmare and I’ve finally found a quiet environment in the last year. After 45 years of misery.
    I feel very fortunate.
    However, even with the quiet, my body is not recovering. I’m 72 and quite mobile, and have constant post exertion fatigue that limits my activity to about 2-3 hrs /day. Nothing I do seems to change this.
    I’m also aware that I need to lower my expectations of my daily activities and stop imagining that I can do what I used to do. Stop using my previous self as a standard.
    I do have considerable emotional stress due to the serious health conditions of other family members.
    I think this as much as anything causes me physical/energy distress.
    In the end, I think finding peace and comfort in spiritual practices is probably one of the most effective things we can do.
    Thank you for your videos. They are very helpful especially to show to skeptical family and friends.

    • @CFSUnravelled1
      @CFSUnravelled1  Год назад +4

      Unfortunately recovery is complex, there is no magic cure and certainly a quite environment alone doesn't do it.
      However, hopefully you can see the benefits of a healing environment in reducing flare ups at the very least.
      Stopping the pushing seems to be the hardest thing for most of us - making changes there is huge!

  • @susanfisher6939
    @susanfisher6939 Год назад +1

    So great to see you Dan. It has been 6 years since my last “bad flare” when I discovered your book and video course. I tend to overdue it when I feel better, but the older I get, I feel the symptoms start to return faster. I work at my health like a real job, and staying balanced in all areas of my life is my priority. I am so glad to see you looking well!!

    • @CFSUnravelled1
      @CFSUnravelled1  Год назад +1

      Thanks for saying that. Great to hear you are doing well and enjoying life. I love hearing how you focus on engaging in life more sustainably. Sometimes we need a break from trying to recover - maybe you can have another run to take your recovery to the next level!?

  • @becoming_a_betty
    @becoming_a_betty Год назад +4

    Thank you so much for taking the time to create this reminder Dan. I loved the setting and seeing you on walkabout! It bought back great memories of walking around Springbrook and Binna Burra when I was travelling. Is that even a bush turkey? 🦃 Xx

  • @lmn977
    @lmn977 Год назад +1

    Thanks for sharing this, Dan! Beautiful forest too

  • @Tam438
    @Tam438 Год назад +3

    really helpful! Thank you, and I appreciate the way you speak slowly and calmly

  • @keith48993
    @keith48993 Год назад +1

    I started with Earthing/Grounding after finding out about Clint Ober. It has been a life saver.

  • @1200times
    @1200times Год назад +1

    I live on a busy city street corner but thankfully I live near a few trails and two of them are beside a river. I love the forest. I would love to live in the forest or on the beach some day.

  • @trishcovich1923
    @trishcovich1923 Год назад +1

    Thanks Dan. I'm able to have gentle swims every day here in the Hokianga harbour NZ. Really nice.

    • @CFSUnravelled1
      @CFSUnravelled1  Год назад

      Very cool! (literally, right?)

    • @trishcovich1923
      @trishcovich1923 Год назад

      @@CFSUnravelled1 ha ha, yes literally. Much warmer than ocean though.

  • @iamme7830
    @iamme7830 Год назад +2

    Hi Dan, I’m not finding the link you spoke about at the end of the video pertaining to Katie’s recovery? Can you clarify where to find that? Thanks so much.

    • @CFSUnravelled1
      @CFSUnravelled1  Год назад +5

      Well done - it was missed - it's in there now, here it is for your convenience ruclips.net/video/cy03_0f56og/видео.html
      Thanks for following up

  • @alexabc220
    @alexabc220 Год назад +5

    Sorry another question. One of the biggest challenges with my mind holding back my recovery is hypochondria, worrying that my symptoms are due to something much worse. Is there a technique that can be used to shift the brain from always assuming the worst scenario? Thanks

    • @kala9907
      @kala9907 Год назад +2

      FasterEFT was a BIG help for me in shifting my thinking.

    • @ruthie5248
      @ruthie5248 Год назад +1

      Agree - its hard not to catastrophize and worry its something serious 'this time'!

    • @gypsyananda
      @gypsyananda Год назад +2

      The REWIRE process of brain retraining stops these thoughts.

  • @kimcoons3322
    @kimcoons3322 Год назад +3

    Can someone recover from pots if they are genetically hypermobile? Just got back from 15th ER visit with my 17 year old daughter. 😪4 years very very sick. I literally feel like my heart is broken.

    • @CFSUnravelled1
      @CFSUnravelled1  Год назад +4

      I think it's definitely more challenging! This is because it places additional burden on the nervous system (it's a lot more work holding things together).
      The problem is that recovery isn't such a direct process - there is no 'cure' . I can say that I do know people who have made a full recovery with hEDS as well as partial recoveries.

    • @jessicaklowe
      @jessicaklowe Год назад +1

      I've had several remissions being hypermobile/JHS -- was quite sick as a teen then completely well after no treatment but rest until age 30, kicked back into illness then by an infection and an extraordinary stressor. But yes, there's hope.

    • @MH-ot4kz
      @MH-ot4kz Год назад

      Hi Kim, you might want to look into the work of Dr. Joe Dispenza, he has written some books and a lot about how to change your gene expression, people with genetic disorders have healed, look on his websites and all the transformation stories there. Wish you all the best!

    • @kimcoons3322
      @kimcoons3322 Год назад

      @@jessicaklowe Thank you! Very hard to watch your kid suffer when they had everything.

  • @alexabc220
    @alexabc220 Год назад

    Hi Dan, thank you for the video. I have a question, how does your programme compare to the lightning process? I was speaking to a practitioner in my area but I don't know whether to trust it as a programme. I do however know that I can trust you :)

    • @CFSUnravelled1
      @CFSUnravelled1  Год назад +3

      I cannot speak to other programs because I haven't done them.
      ANS REWIRE is not a mind/body program - it is a recovery program that is multi-lateral. Watch the 4 intro lessons to learn more and check out this FAQ: ansrewire.com/faq/#tab-con-10

    • @nzseashells
      @nzseashells Год назад +1

      I don't recommend the Lightening Process at all sorry. Testimonials are fake.

  • @selma5885
    @selma5885 Год назад

    Thank you! Where is this filmed?

    • @CFSUnravelled1
      @CFSUnravelled1  Год назад +2

      In a melaleuca forest on the Gold Coast Australia

  • @genesmolko8113
    @genesmolko8113 Год назад

    Where are you at Dan? Looks exotic.

  • @illuminatedsoles331
    @illuminatedsoles331 Год назад +2

    I feel more exhausted and hopeless after watching this. Take baby steps and create a healing environment? That's it??

  • @woppini
    @woppini Год назад +1

    The words you use are quite misleading, and I think you should be truthful. The words like "recovery," " breakthrough". This illness is about adapting. Living within your means of physical and mental abilities. Please dont sugar coat this illness with fairy dust and unicorns. Patients yearn for the facts, black and white.

    • @CFSUnravelled1
      @CFSUnravelled1  Год назад +15

      Unfortunately health, especially this illness - is far from black or white.
      You are right, adapting is key and that is what people generally don't do well - which is my message in this video; create a healing environment and stop pushing.
      That alone is not enough for most of us to recover, but it is an essential component in my experience.
      If you don't believe that recovery is possible - check out the many many recovery interviews on youtube. I started doing them 10 years ago after my own recovery, but now many people do them. So you can see that recovery is possible.
      Have you watched any of them?

    • @CFSUnravelled1
      @CFSUnravelled1  Год назад +1

      Well, I don't think it's malicious, people simply don't know better. The problem is that symptom treatment alone doesn't get people recovered. Most people seem to recover on their own and don't go back to report to their doctors and when they do, sometimes doctors think they were misdiagnosed.