@@dudeability I haven’t been tested but my mother participated in research. The Peter jones lab used to do spit testing and she actually is asymptomatic and sent in some genetic samples for his study. His study is over in the us seems like but he used her data for some kinda genetic study.
Hello young warrior, Thanks for your videos and sharing your expérience ! My 13yo little daughter is diagnosed with fshd and we do everything we can to optimise her daily living Keep in touch
G vid kal, got hungry watching it! Also made me realise how much of our day is spent eating or prepping food haha
Thanks Nath, it definitely can be a bit of an effort!
Imao was watching this while eating maacas, I should try your diet more!!
Ahahah a bit of maccas never hurt anyone, thanks for the comment Olib :)
good luck man! nice to see another fsher thriving
Thanks Natasia! I’m sure you’re killing it :)
@@dudeability thanks! I just like to support the community. A lot of ppl in my family have it so. It’s nice to connect with others.
@@natasiadasilva9141 your support is much appreciated! Connecting with more people who have fshd is definitely on my to do list
@@dudeability I haven’t been tested but my mother participated in research. The Peter jones lab used to do spit testing and she actually is asymptomatic and sent in some genetic samples for his study. His study is over in the us seems like but he used her data for some kinda genetic study.
@@dudeability my grandad was a pretty standard fsh case not early onset tho
Hello young warrior,
Thanks for your videos and sharing your expérience !
My 13yo little daughter is diagnosed with fshd and we do everything we can to optimise her daily living
Keep in touch
Thanks Stephane! I think by sharing the FSHD experience it helps normalise the condition. Sending my best to you and your daughter :)