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This is incredibly refreshing to see mate. I’m 28, and I have FSHD as well. Sometimes, it feels like an invisible disability. Walking, driving, and everyday movements become challenging in your late 20s. It’s a frightening realization that something so simple can become a daunting task with FSHD. How did you cope with the realization that your body was weakening? I’m at a stage of acceptance, but there are still tough days. Thanks for sharing your story and updates, mate.

Hello kalvin waiting for your new video

Hey i have fshd when i was 10 year old now i m 21 2 year ago i can walk around 20 - 30 min suddenly i got tuberculosis After all treatments i m fine now but i can't even stand My body getting weaker i want know these supplement good for me?

A great update Kalvin! ☺️ looking forward to hearing more about the MRI! I’m glad to hear the wheelchair Tennis is going so well!!

Thank you, Kalvin, for another great update. You really are packing a lot in so making us hold out for another few weeks for your RUclips videos will just increase our anticipation! Congratulations on the tennis nationals and the new chair. After the cool MRI video a bit of a 'first weeks rolling around the grounds' discussion about your chair would be great to watch as well. Good luck and all the best at the nationals 😀🤩

So what about supplements got any benifit?.

Cheers for the update Kal, you’re gonna smash nationals!!

G luck Kal for the tennis comp, looking forward to seeing the MRI video should be really interesting.

Do your MRIs get covered by Medicare? Because even MRIs for injuries are often $400 out of pocket which is pretty crazy.

Thanks for the update Kal. Good luck with the tennis comps coming up :)

elite vid kal, enjoy the choccies mate

this is so frickin cool kal!!! big congrats for the feature and very much deserved

Well done once again Kal supporting the pople who do it right is a must.. We Just missed that date due to local commitments with tennis is Melbourne but we will be there next year. hope to see you on our Vessel soon love from Pano and Tony in Melbourne !

Looking sharp as Kal. you'll have to post the excerpt about you in the program, would be keen as to read.

Awesome to see events like these are happening and even more awesome to see that your story is being shared. Can't wait to see where your journey leads you next ❤

looks like an elite event Kal. sure the chocies went down well.

unfortunately I drink...

Thank you for sharing happy knitting

Knit a blue and white headband for Bailey Smith next year?? 🙏😉 great video! Really inspired me to give new skills a crack!

scarf looks sick kal! Go swom

i also recently started but haven’t bitten the bullet into doing colour changes but man did you inspire me to try it 🫡 i love the colours together and good luck with your next project!

if you're really going to keep knitting i would suggest learning the longtail cast on as it looks much neater than the loop cast on that you did. this video shows the simplest way ever to do it, it's as easy as the loop cast on : ruclips.net/video/sN9cNEozOLc/видео.htmlsi=nX0fWI4-tX3X_FRU

I find your channel extremely helpful and calming. Keep running it, and one day I might start my own

You made it look easy! I’m going to have to give this a try!

Scarf looks so good!

That's awesome, I feel like having a go now

Great effort, love the scarf!🧣

I used to love knitting! Haven't picked it up in a while, perhaps I should 🧐

Nice Kal elite progress for only a weeks work

Impeccable knife skills. My right (dominant) hand/arm is getting really weak so I should really teach myself how to chop with my left. Perhaps I will document that for my channel!

That really looks like white chocolate....

Rate the vid Kal, good luck for your comps coming up.

nice

Marking a date to take you out on out Offshore NZ with Junior for those and more.. Hope we can catch up soon Champ keep it up ...

I found your channel from an FSHD Global newsletter. I've been following them since 2012. I thought about getting on RUclips like you have but I couldn't ever take that step. The judgement, trolls and fear of feeling humiliated. So I really value and admire what you're doing. If I could cross that line I would post on multiple platforms. At least 3. X is evolving so might be an opportunity there. I have seen stats that live streams can be great for learning to engage an audience. E.g. "make me laugh". "You're movie moments" etc. Third I saw a video about Linus years ago that learning mentioned learning to project the voice was a big turning point. It might have been corridor or something. I know they have a lot on making the best out of footage. Well thank you for being a voice for me, my family especially my 4 year old daughter. When she's older, having ppl like you will be very important for her confidence and will power.

Happy to catch up if you want mate for a coffee as I’m living In Melbourne also. I’m 46 and was diagnosed with FSHD at 13 so know exactly what you’re going through. I too had to give up sports like lacrosse basketball etc and it was devastating. Remain as positive as you can as i know mood does fluctuate. All the best Scott

Love to talk to you about these suppliments mate when we get together , your help is priceless to us! keep it going

Kelvin wow there is no words to express the power you have to provide your life story. I hope I can connect with you at some stage over a phone call if possible . Please feel free to reach out! Tony

Very insightful tips Kal, these vids will stay online too so people will certainly see and benefit from these vids into the future.

Amazing stuff kal great vid, crazy to think you’ve been making vids for a half year man

Nica kal. imma take some tips from this vid for myself.

G vid Kal have enjoyed your work over the past half year. You present well btw man. V impressive how regularly you’ve posted

This is valid bro I'm glad I watched it all the way through! Love your thought process man keep up the grind 💪

Couldn't have said any of this better myself. Keep going dude, you're doing great 💪

Thanks for watching! If you have any good RUclips lessons, please drop them in the comments below. *also apologies about the running water sound :D

Andrea and I really enjoyed having you in the studio and appreciate your sharing. You are one great human 😁

Very great listen, should be very proud!

Congrats! Being on live radio is a pretty cool achievement.