![dude-ability](/img/default-banner.jpg)
- Видео 39
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dude-ability
Добавлен 21 дек 2023
Hello! I'm Kalvin and I'm an Australian guy in his mid-20s with a condition called FSHD. It is a form of muscular dystrophy which affects various parts of my body, limiting my mobility. I was diagnosed as a 14-year old and have only recently accepted it as part of my life.
I will be documenting my journey living with a progressive disability, whatever that may entail. Expect to see a whole lot of disability-related advice, updates on how I'm dealing with things, activities I pursue and a whole lot more.
My goal with this channel is to hopefully inspire people with disabilities to go out there and give things a crack. I aim to spread some awareness about muscular dystrophy and build a community of people to ensure that no one feels like they're fighting this on their own.
Stay strong ♥
I will be documenting my journey living with a progressive disability, whatever that may entail. Expect to see a whole lot of disability-related advice, updates on how I'm dealing with things, activities I pursue and a whole lot more.
My goal with this channel is to hopefully inspire people with disabilities to go out there and give things a crack. I aim to spread some awareness about muscular dystrophy and build a community of people to ensure that no one feels like they're fighting this on their own.
Stay strong ♥
listen to me yap and make chocolate from scratch
HERE IS THE RECIPE!
1 cup Cacao Butter
1/2 cup Cacao Powder
2 Tbsp Maple Syrup
1 1/2 Tsp Cinnamon
1. Melt cacao butter in a bowl over boiling water.
2. Add other ingredients and mix.
3. Transfer mixture to a lined tray/slice pan
4. Add any toppings (salt, nuts, dried fruit etc.)
5. Freeze for 30 mins and enjoy
6. Store in the fridge
___________________________________________________________________________
I thought I'd try something new and make chocolate from scratch. It's simple and quick to put together. I also talk a bit about what's going on in my life at the moment and have a bit of fun in the kitchen.
While my reaction to the end product was not completely positive, I do think that it ta...
1 cup Cacao Butter
1/2 cup Cacao Powder
2 Tbsp Maple Syrup
1 1/2 Tsp Cinnamon
1. Melt cacao butter in a bowl over boiling water.
2. Add other ingredients and mix.
3. Transfer mixture to a lined tray/slice pan
4. Add any toppings (salt, nuts, dried fruit etc.)
5. Freeze for 30 mins and enjoy
6. Store in the fridge
___________________________________________________________________________
I thought I'd try something new and make chocolate from scratch. It's simple and quick to put together. I also talk a bit about what's going on in my life at the moment and have a bit of fun in the kitchen.
While my reaction to the end product was not completely positive, I do think that it ta...
Просмотров: 116
Видео
5 Important Lessons from 6 Months on YouTube
Просмотров 10021 день назад
It’s been a little over 6 months since I started posting on RUclips and I’ve learnt quite a lot. Posting videos online was originally a way for me to come out about my disability and talk openly about what I was going through. It did quickly morph into a platform for me to share my life experiences and show my growth while living with a progressive neuromuscular disease. Starting up this channe...
I was interviewed on radio...
Просмотров 93Месяц назад
omny.fm/shows/rolling-through-wednesday/rolling-through-wednesday-24-july-2024 ^ LISTEN TO THE RADIO INTERVIEW HERE ^ This week I had the opportunity to be interviewed on a radio show. The show is called 'Rolling through Wednesday', hosted by the very lovely Leanne Watson. We spoke about my journey with muscular dystrophy, my aspirations for the future and how I've dealt with a progressive chro...
going on a radio show, new shoes, fitness update + more
Просмотров 92Месяц назад
Listen to me on radio through this link! 24 July 4-5pm AEST 947thepulse.com/shows/rolling-through-wednesday/ In this month's update, I talk about some exciting new opportunities that I've been given, such as talking on a radio show! I also talk about my new 'running' shoes and how they've helped me fix my ankle-rolling issues. I've kept the same structure as previous progressive disability upda...
Flying Interstate to play Wheelchair Tennis Tournaments
Просмотров 74Месяц назад
I flew to Brisbane, Australia to play my second round of Wheelchair Tennis Tournaments. I played in the Brisbane Wheelchair Classic and Queensland Wheelchair Open. These ITF tournaments have taught me so much and given me some invaluable experience. I'm still working on my wheelchair skills around the court but I do think I'm slowly improving. Both tournaments were held at the Queensland Tennis...
Attending my first DISABILITY EXPO
Просмотров 602 месяца назад
This week I went to my first ever disability expo at the Melbourne Convention Centre. It was very eye-opening being introduced to a lot of the new assistive tech and services that are out there. I ran into a few people I know, tried out some cool car gadgets and had a fun time overall. It was a quick visit but I'd definitely recommend it to anyone interested! I decided to wear my very vibrant '...
Supplements and FSHD Muscular Dystrophy
Просмотров 1502 месяца назад
The podcast I talk about: open.spotify.com/episode/6tV313hGMvhucyqjTnrhIR?si=73e399c8f57b4759 The 1950s study: www.ncbi.nlm.nih.gov/pmc/articles/PMC1521945/ Priscilla's Instagram: fshdwellness DISCLAIMER: I am not qualified to make medical recommendations so please consult your doctor before taking any supplements. Supplements can be a little controversial in the health space, wi...
World FSHD Day 2024
Просмотров 812 месяца назад
Check out these Instagram Accounts! FSHD Global: fshdglobal?igsh=MXV3Y3RpaHo2amR6Nw FSHD Society: fshdsociety?igsh=MTMzeGtvMncwdzlqMQ Muscular Dystrophy Australia: musculardystrophyaustralia?igsh=MTFyZnc0dDMyN25iNA June 20th was World FSHD Day. As there is a whole day dedicated to the neuromuscular disease I live with, I thought it was worth having a qu...
My Stretching Routine for Muscular Dystrophy
Просмотров 1322 месяца назад
As someone with a neuromuscular disease (FSH Muscular Dystrophy), I understand the importance of keeping my muscles healthy and flexible. One way I've done that is through stretching. Apart from feeling pretty satisfying, a good stretch is very beneficial to prevent injuries and stay mobile. While I don't know the technical terms for all the stretches I do, this little routine is something that...
On Court: Wheelchair Tennis with My Coach
Просмотров 912 месяца назад
This week I give you a peek into what a typical training session looks like for my wheelchair tennis. I really love training and look forward to it every week, so I thought it'd be good to show you what I'm working on at the moment. With my first interstate wheelchair tennis tournaments only a couple of weeks away, it's important that I'm really maximising my time out on court. I can't say I'm ...
Progressive Disability Update: June 2024 // grip strength, wheelchair tennis + more!
Просмотров 1893 месяца назад
It's update time again, so this video goes over how things have changed for me over the last month. I've had a few physical changes (positive and negative), as well as some new strength data to talk about. I touch on how my wheelchair tennis is progressing and my plans for the next month. It's been a bit of a busy month but a lot has happened and I'm keen for you to hear about it. Thanks for wa...
Trying a MOBILITY AID for the FIRST Time (what I learnt)
Просмотров 5713 месяца назад
After a series of falls, I decided it was time to look into trying out a mobility aid. It's something that I've had on my mind for the past few months and something that I've been putting off. After reading a million horror stories online about people using mobility aids, I thought it would be good to try it out for myself. Apart from actually needing one to help prevent falls, I thought that a...
Attempting to catch my DREAM FISH // Westernport Bay, Victoria
Просмотров 1773 месяца назад
This week I grabbed my mate Dom and headed down to Westernport Bay for some fishing. There's been one fish that has intrigued me more than any other over the years and I've always wanted to catch one. This is the first time I've gone out with the intention of landing this cool fish, so watch the video to find out if I do! I'v recently gotten back into fishing, as it's an activity that I can do ...
Progressive Disability Update: May 2024 // a new series!
Просмотров 2494 месяца назад
Progressive Disability Update: May 2024 // a new series!
what to do when you're having a bad day
Просмотров 1154 месяца назад
what to do when you're having a bad day
My First Wheelchair Tennis Tournament Experience
Просмотров 1124 месяца назад
My First Wheelchair Tennis Tournament Experience
Preparing for My First Wheelchair Tennis Tournament
Просмотров 1334 месяца назад
Preparing for My First Wheelchair Tennis Tournament
A CONVERSATION WITH FRIENDS about my disability // part 2
Просмотров 1285 месяцев назад
A CONVERSATION WITH FRIENDS about my disability // part 2
A CONVERSATION WITH FRIENDS about my disability // part 1
Просмотров 2555 месяцев назад
A CONVERSATION WITH FRIENDS about my disability // part 1
A Fun Day Out in Melbourne // disability day in the life
Просмотров 1625 месяцев назад
A Fun Day Out in Melbourne // disability day in the life
Living with FSHD Muscular Dystrophy // 5 things that help me EVERY DAY
Просмотров 1765 месяцев назад
Living with FSHD Muscular Dystrophy // 5 things that help me EVERY DAY
I'm playing my first tournament! // wheelchair tennis 4 month update
Просмотров 1575 месяцев назад
I'm playing my first tournament! // wheelchair tennis 4 month update
How my life changed after my diagnosis...
Просмотров 2366 месяцев назад
How my life changed after my diagnosis...
Travelling with Muscular Dystrophy // what I learnt from 3 weeks in South East Asia
Просмотров 2996 месяцев назад
Travelling with Muscular Dystrophy // what I learnt from 3 weeks in South East Asia
READ THESE BOOKS if you have a disability
Просмотров 886 месяцев назад
READ THESE BOOKS if you have a disability
FULL DAY OF EATING as an aspiring PARA athlete
Просмотров 1146 месяцев назад
FULL DAY OF EATING as an aspiring PARA athlete
Wheelchair Tennis at the Aus Open 2024
Просмотров 1207 месяцев назад
Wheelchair Tennis at the Aus Open 2024
A day at the Melbourne Wheelchair Open
Просмотров 2177 месяцев назад
A day at the Melbourne Wheelchair Open
A Beginner's Guide to Understanding Wheelchair Tennis
Просмотров 1327 месяцев назад
A Beginner's Guide to Understanding Wheelchair Tennis
Impeccable knife skills. My right (dominant) hand/arm is getting really weak so I should really teach myself how to chop with my left. Perhaps I will document that for my channel!
haha learning to chop with your left would be great to watch, let's see it!
That really looks like white chocolate....
suspiciously so..
Rate the vid Kal, good luck for your comps coming up.
cheers georgey, very keen for them!
nice
thanks Riley! nice to hear from you man
@@dudeability Haha no worries, cool to hear about your channel, nice production quality with the camera and thumbnails.
Marking a date to take you out on out Offshore NZ with Junior for those and more.. Hope we can catch up soon Champ keep it up ...
thank you Tony! That sounds like a blast, very much looking forward to it :)
I found your channel from an FSHD Global newsletter. I've been following them since 2012. I thought about getting on RUclips like you have but I couldn't ever take that step. The judgement, trolls and fear of feeling humiliated. So I really value and admire what you're doing. If I could cross that line I would post on multiple platforms. At least 3. X is evolving so might be an opportunity there. I have seen stats that live streams can be great for learning to engage an audience. E.g. "make me laugh". "You're movie moments" etc. Third I saw a video about Linus years ago that learning mentioned learning to project the voice was a big turning point. It might have been corridor or something. I know they have a lot on making the best out of footage. Well thank you for being a voice for me, my family especially my 4 year old daughter. When she's older, having ppl like you will be very important for her confidence and will power.
Thanks Josh, that's really kind. That's really why I do all of this, to try to be the person I wished I could've looked up to when I first got diagnosed. In terms of getting on RUclips/social media, I'd really just say go for it. I was extremely self-conscious initially when I put parts of myself up online, but those feelings quickly faded away. I'm sure the world would benefit from hearing what you have to say. All the best to you and your family :)
Happy to catch up if you want mate for a coffee as I’m living In Melbourne also. I’m 46 and was diagnosed with FSHD at 13 so know exactly what you’re going through. I too had to give up sports like lacrosse basketball etc and it was devastating. Remain as positive as you can as i know mood does fluctuate. All the best Scott
Thanks for the comment Scott! I'd love to catch up for a coffee, it'd be great to get your perspective on things. If you have Instagram you're welcome to message me there (@dudeability) or alternatively email me at kalvinhopperaus@gmail.com and we can get something going. :)
Love to talk to you about these suppliments mate when we get together , your help is priceless to us! keep it going
more than happy to help!
Kelvin wow there is no words to express the power you have to provide your life story. I hope I can connect with you at some stage over a phone call if possible . Please feel free to reach out! Tony
Hi Tony! Thanks for the kind words, really means a lot. RUclips doesn't have a messaging feature but if you have instagram we could touch base there? My account is 'dudeability', I'd love to chat! Keen to hear from you :)
Very insightful tips Kal, these vids will stay online too so people will certainly see and benefit from these vids into the future.
That's definitely a good point, hopefully soon!
Amazing stuff kal great vid, crazy to think you’ve been making vids for a half year man
Thanks Sandy, to be honest it feels like waaay longer than that haha
Nica kal. imma take some tips from this vid for myself.
Thanks Scobes, I'll have to get some tips off you at some stage too
G vid Kal have enjoyed your work over the past half year. You present well btw man. V impressive how regularly you’ve posted
Cheers Nath, very kind. I appreciate all the comments you leave on the vids!
This is valid bro I'm glad I watched it all the way through! Love your thought process man keep up the grind 💪
Ay thanks Matt, I really appreciate that you watched the entire vid. Keep grinding too brother :)
Couldn't have said any of this better myself. Keep going dude, you're doing great 💪
Thanks Marisa! I like to think that we're both making a real difference out there for folks with fshd :)
Thanks for watching! If you have any good RUclips lessons, please drop them in the comments below. *also apologies about the running water sound :D
Andrea and I really enjoyed having you in the studio and appreciate your sharing. You are one great human 😁
Can't thank you and Andrea enough Leanne, I had such a great time :)
Very great listen, should be very proud!
thanks for listening georgey!
Congrats! Being on live radio is a pretty cool achievement.
thanks caboose! It was very fun
was an elite listen mate. spoke v well
cheers scobes!
You spoke so well, when I was listening in, it was a great listen!!
thanks Ollie! Appreciate the listen brother
cheers for the update man. I still remember ur vid on what you eat in an ideal day which was great haha and so im sure you'll be a wizz in the kitchen
haha thanks nath, will definitely have to up my game from frozen fish! appreciate the comment brother
Hey Calvin, don’t remember if we’ve ever met but I’m your cousin and I think it’s really cool what your doing, documenting you life from the perspective of someone who is just willing to keep going, really inspiring
Hey Adam! I think the last time I was over you might've been very young so you might not remember me. Thanks a bunch for the kind words, it really means a lot. I hope you're doing well :)
Greetings Kalvin from the US. I was diagnosed last year with FSHD at 62 years old. I spent half my life trying to find answers. I use carbon fiber AFOs to walk with. They have helped me tremendously as far as balance, mobility and overall muscle fatigue. I also started your supplement regiment recently. The Doctors in America are very excited about a couple new drugs for FSHD that are in final stages of clinical trials. Stay positive, stay motivated. I truly believe there is some great treatments that will be out soon for FSHD that will alleviate your fears of growing older. Good luck, I will be watching your adventures.
Hi Bill! Thanks so much for watching. I'm sure it was a relief to finally get an answer as to what you were dealing with after all those years. It's great to hear about your experience with AFOs, I've got an appointment in a couple of weeks to get some of my own. I'm keen to hear more about those treatments as well, it can definitely feel like a bit of a waiting game sometimes. I really appreciate the kind words and support, I hope you're doing well! :)
You're a great advocate Kalvin - I am also really excited to have you in the studio this Wednesday - thank you for the mention. Your perspective and experiences are well worth hearing - and I hope you can make the most of your day in our lovely G'town 😃
Thanks for the kind words Leanne! I'm very excited to head to the studio, it's been a while since I've been down that way. See you Wednesday :)
love this longer form updates. g listen
thanks scobes!!
i would love a kalvin-made lasagne if you're taking requests
this can definitely be arranged
super cool kal! congrats on the 3 W's - very big!!
thanks lou!! It's nice to get some wins for a change :)
Great video! Wheelchair tennis has my respect for sure. Keep up the tennis and youtube grind man you just earned yourself another SUBSCRIBER! Much love 😊
thanks brother! Right back at you, your channel looks great. I've subbed and keen to follow your journey! :)
Massive winning the first two games before the injury. Very keen for the next tournament
thanks georgey! I'm looking forward to it also
Cheers for the update kal great vid. Rate the reflections on you think you can improve too - great job
appreciate it Nath, lots to work on!
rate it kal. Fresh tshirt as well
cheers scobes, I am known for my bold fashion
Sick vid Kal, great to see the continued innovation
it's very cool to see what's out there!
Happy that I found your channel so I can see videos like this that can help me stretching and also other ideas, I just started to take swim classes and going to the gym, I hope it helps me. Thank you.
Thank you Renan, that means a lot! It's great to hear that you've picked up swimming and going to the gym, they're really great things to do. Wishing you the best :)
Great video Kal, congrats on 6 months of consistently uploading!
thanks Tob, that went quickly!
Thanks for sharing about your journey! It's good to see you are not alone with this - I related a lot. I was also diagnosed at 14/16 and now I am 31. Disclosing to friends and family is not easy, congrats on your courage to create this channel. I'm looking forward to watching more of your videos!
Thanks Nicole! It definitely gets a bit easier when you find people going through the same thing. I really appreciate the kind words and I hope you're doing well :)
keen to see the gluggy casein impacts in a year
I hope the glug is worth it
quite disappointing that the specialist doesn't give much advice in terms of what people with FSHD can take, thank you for making such an informative video!
It can get a little frustrating but luckily everyone in the community is very open about what has worked (and hasn’t) for them. Thanks for watching Lou :)
crazy time to get a call from the doc! What are the chances
I couldn’t believe it! Right when I start filming
Elite vid Kal really interesting
Thanks georgey, means a lot coming from the nutrition king
Can you please include links to the FSHD Accounts you spoke of? Thanks and great video!
Great idea! I’ve popped them in the video description. Thanks for watching :)
@@dudeability Thank you !
Very interesting vid Kal, didn't know it was world FSHD day. Looking forward to the new vids
To be fair neither did I until a few months ago ahah. Thanks Georgey!
One variation of child's pose I like to do is with your knees wide and pointing out to the sides. You can get that back stretch at the same time as your groin/hips. Great if you are sitting a lot throughout the day and your hips tighten up. Although you do already have a stretch for the groin there.
Ooo that sounds really nice, I'll definitely give it a shot next time. I do find the hips tightening up a lot during the day, so I'm always on the hunt for more stretches! Thanks for the suggestion :)
Hi Kal! So, I've been told by people to do some daily stretching but I didn't know how or wich type of stretching I should do, so this really helps and I'm definitely going to try them! Great video
Thank you Leo I'm so glad! Keen to hear how you go :)
Do you not like the reverse backhand that most top wheelchair players use?
yeah it's something I'm trying to work on at the moment. Just because of the way my dodgy shoulder moves, I'm not able to really accelerate too well with the reverse backhand so I do a weird hybrid version and it seems to work for me for the time being :)
@@dudeability Ah that makes sense! I’m still searching what backhand works best for me. So far it’s been a mix of slicing and reverse back but seems to not get enough drive deep with reverse. Too much top spin. Super proud to see you push content out, I’m enjoying it and hope to see more of your progression!
ay thankyou for the kind words! I definitely feel you with not getting enough depth with the reverse. I think I've just accepted that it'll take some time to wrap my head around. Is there a way I can reach you? I'd love to hear about your journey with wheelchair tennis. If you have Instagram, feel free to shoot me a DM (dudeability) if you're interested :)
The tennis videos are always so much fun to watch - good luck for the tournaments :))
thankyou Bianca! I'm really glad you enjoy them and I always appreciate the ongoing support :)
So much wisdom - great video, Kalvin 🤩
I'm glad you think so Leanne! I'm sure I could learn a lot from you, we'll have to exchange tips at some stage :)
Awesome vid Kal looks like you’re a lot quicker in the chair now since last tournament.
Appreciate it Georgey! Slowly getting there I think. We'll have to get you back out on court for a hit some time
Love hearing you chat tennis strategy / tips Kal. Your shot is looking good as always, keen to see how you go at the tournaments
Thanks Nath, I'll have to get some strategy tips off you at some stage!