You're a great advocate Kalvin - I am also really excited to have you in the studio this Wednesday - thank you for the mention. Your perspective and experiences are well worth hearing - and I hope you can make the most of your day in our lovely G'town 😃
Greetings Kalvin from the US. I was diagnosed last year with FSHD at 62 years old. I spent half my life trying to find answers. I use carbon fiber AFOs to walk with. They have helped me tremendously as far as balance, mobility and overall muscle fatigue. I also started your supplement regiment recently. The Doctors in America are very excited about a couple new drugs for FSHD that are in final stages of clinical trials. Stay positive, stay motivated. I truly believe there is some great treatments that will be out soon for FSHD that will alleviate your fears of growing older. Good luck, I will be watching your adventures.
Hi Bill! Thanks so much for watching. I'm sure it was a relief to finally get an answer as to what you were dealing with after all those years. It's great to hear about your experience with AFOs, I've got an appointment in a couple of weeks to get some of my own. I'm keen to hear more about those treatments as well, it can definitely feel like a bit of a waiting game sometimes. I really appreciate the kind words and support, I hope you're doing well! :)
You're a great advocate Kalvin - I am also really excited to have you in the studio this Wednesday - thank you for the mention. Your perspective and experiences are well worth hearing - and I hope you can make the most of your day in our lovely G'town 😃
Thanks for the kind words Leanne! I'm very excited to head to the studio, it's been a while since I've been down that way. See you Wednesday :)
Greetings Kalvin from the US. I was diagnosed last year with FSHD at 62 years old. I spent half my life trying to find answers. I use carbon fiber AFOs to walk with. They have helped me tremendously as far as balance, mobility and overall muscle fatigue. I also started your supplement regiment recently. The Doctors in America are very excited about a couple new drugs for FSHD that are in final stages of clinical trials. Stay positive, stay motivated. I truly believe there is some great treatments that will be out soon for FSHD that will alleviate your fears of growing older. Good luck, I will be watching your adventures.
Hi Bill! Thanks so much for watching. I'm sure it was a relief to finally get an answer as to what you were dealing with after all those years. It's great to hear about your experience with AFOs, I've got an appointment in a couple of weeks to get some of my own. I'm keen to hear more about those treatments as well, it can definitely feel like a bit of a waiting game sometimes. I really appreciate the kind words and support, I hope you're doing well! :)
cheers for the update man. I still remember ur vid on what you eat in an ideal day which was great haha and so im sure you'll be a wizz in the kitchen
haha thanks nath, will definitely have to up my game from frozen fish! appreciate the comment brother
i would love a kalvin-made lasagne if you're taking requests
this can definitely be arranged
love this longer form updates. g listen
thanks scobes!!