Girl with Real Tourette's Reacts to "TicsandRoses" 2 YEARS LATER!
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- Опубликовано: 6 окт 2024
- In today's video I address the topic of faking tourettes and fakeclaiming as whole. I react to Ticsandroses 2 years later after my original ticsandroses video came out. This video showcases my current thoughts about the ticsandroses controversy.
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As a girl with Tourette's, I would love to spread awareness and education about my disorder, as I feel it is quite misunderstood in today's society. The media has made it out to be a swearing disorder only, which is far from true. I hope this video will educate you on Tourette Syndrome and tic disorders! Life with Tourettes can be difficult, but just know that we're the same as everyone else...except for the fact we tic like clocks! (:
Thanks for watching!
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I think this also raises the question of how much we (audience) are owed by creators. Are we owed someone’s medical history bc we think they’re fake? Do creators owe us proof to confirm their claims? Yes people fake things, but does that mean we can impose on other creators’ privacy?
I feel like if they’re going to sell merch or take money from people in any fashion, then it is fair for people to ask for proof. Just my opinion.
You were definitely the most respectful person responding to them. You weren’t bullying them in the slightest.
Agreed. She was using tics and roses to explain why some things could present in Tourettes and why other things may not be entirely accurate representation. Not bullying them or commenting on their personality at all.
faking a mental illness/neuro disorder is a sign of a mental health struggle in itself. i hope they find the resources that they need regardless of what they actually have going on. it’s really kind/mature of you to make this video imo!
The thing about someone like TicsandRoses is that obviously what they did was incredibly harmful but there’s clearly mental health issues going on too. No one in the right frame of mind would do that.
Yet so many do... So it's very unsettling to think of so many people with so many issues that feel this is ok.
Don't get me wrong, I'm not defending anyone here, but some people would go the longest of ways to earn money and fame. I'm not saying this is the case because I don't like assumptions, and assuming someone is mentally ill isn't cool either
This reminds me of thought on Fictitious Disorder and Hypochondria.
Yeah I spent several years with then, and they were all over the place with their mind. When we first started dating, she had a fatal heart issue... she didn't die, then all the sudden she would pass out all the time, and had vasovagelsynthapy. (I fucked that word up, sorry I'm an uneducated semiconductor engineer, no an English teacher or MD) I went off to job corps, and when I came home 1.5 years later, all the sudden she didn't pass out anymore. There is a much longer story, but the point of it is, she sadly has always been unstable.
Cry me a river!
I think this video is so so good and mature. There’s nothing wrong with learning/growing from your past and just bc you had a video about them before doesn’t mean your opinion/pov can’t change. Bravo Carly (: this was great
i am in your boat 100%. it really irritates me to see people who aren't disabled try to speak for the disabled community especially when they clearly haven't done their research, in this case the tourettes community. i don't have tourettes but god it's so simple the things that people don't understand about tics in this case - my pediatrician had tourettes and i had no idea she had it until she told me; i saw her for my whole life up until i was 21. so many things can affect someone's tics, and the fact that people believe they can diagnose or undiagnose a stranger from a social media video is completely ridiculous.
this crap ended 3 years ago and as someone who isn't a fan of ticsandroses myself (purely because they seemed to monetize a disorder they didn't seem to have... i think that's the worst they did) people need to stop hammering home these harmful videos.
As someone who twitches and 'tics' because of being Autistic, I get faked claimed constantly. People tell me that I'm faking Tourette's when I don't have Tourette's, and it is so annoying and really mean. It kinda hurts at times, especially on a bad day. I'm not trying to compare my situation with anyone else's with Tourette's, just wanted to share :)
@The_Moth1 Both stims AND tics can present with ASD. Stims are very different than tics, with stims often being quite comforting and soothing. Tics are unwanted and involuntary and are physically discomforting and often painful.
My brother has TS (Dx'd 30 years ago). He tics but doesn't really stim much. I'm ASD and regularly stim and additionally have a few facial tics. I can mostly suppress these tics with some effort, but my brother can immediately recognize when I'm ticcing vs stimming. I find that so interesting and he's always spot on.
Neurodivergence is wild. It's a little different for everyone.
I’m also Autistic with Tourette’s. 😅
This is important too - not all tics are Tourettes. I have very mild tics which only happen when I'm stressed, overwhelmed or thinking about the tics and I'm scared that someone will assume I'm faking Tourettes (even though I'm autistic and never claim to have Tourettes because I don't) due to the fact that my tics are so mild and I can go probably months without ticcing. People need to be aware that this is a thing.
I don't think this is hypocritical of you at all. You've grown and are able to look back at your actions and take accountability for them. It's such a mature thing to do. I want to voice my appreciation to you - it's so nice to see someone able to say, "Yeah, I don't like this person and what they've done, but THIS was not a valid thing to criticize them about." I think it's so important to focus on valid criticisms rather than just throwing everything at someone - even if you wouldn't throw those same things at others. It's important, mature, and gives so much more weight to your words.
I've appreciated your content, appreciate you, appreciate your message, and I'm so glad to still be here with you through all this!
Tics and roses got exposed by their sister. Their sister found out that they ran a channel like that, and the sister knew they didn’t have Tourette’s
A family member of ticsandrosses said that they don’t have Tourette’s they’re just very disturbed. Just sick in the head, looking for attention.
Interesting to know/gen
Hi! Teen with diagnosed with Tourettes here! (3 I love your videos and showing that it is a hard disorder to live with but we should not be treated differently. I am a cleanup animator (ik drawing and Tourette’s? Not a good mix) most would think but I am doing well! So thanks for awareness and showing even though it’s not okay to fake we can be our own unique people and it’s not your whole personality
I have Autisim and I hate having Autisim. I never understand why people fake having mental health issues even for publicity. Besides it is disrepectful towards who do have problems.
Same but I have ADHD and people who don’t have the disorders are like here are symptoms and like they just use it for views it’s annoying
As an autistic person who absolutely loves some aspects of my autism, despite the huge struggles, I find it really upsetting that you have been made to hate your own neurology. Our brains simply have less synaptic pruning, leading to more neurons overall (watch Paige Layle's video on the connectivity theory of autism) which is not a deficit, just a difference. The only part I truly hate about autism - rather than dislike - is the ableism in society leading us to feel less than. This is not actually part of the autism, just how we are treated because of it.
Your dog isnt a RUclips sensation, she's THE RUclips sensation!
I can't express how much I appreciate this video. it's so genuine and it's so nice to see creators that are open about their mistakes and owning up to them. obviously T&R harmed the community but you're so right about people latching onto it and using it for views.
thank you for your hard work I've learned so much about tourette syndrome from your channel!❤
8:15 the guest you had on here had a really good point (:
That was the cutest bark I've ever heard 🥺
I believe you did your part in calling out Tics and Roses without being dramatic or accusatory. I thought it was decent, civilized and mature, and your point of view as someone with personal knowledge of the subject is relevant. To your comment about what we should stop doing as a society--my opinion is that we need to stop overreacting to perceived 'sins' that don't deserve such extreme threats. It's a symptom of entitlement, self-importance, and jealousy on the bully's part, and really dangerous. If someone reacts that strongly to something that doesn't much change their own day-to-day life, how do they react to a real transgression? We don't all have the right to punish everyone else for their mistakes.
You have nothing to apologize for. You handled the Tics and Roses mess (that they made for themselves, if we're being realistic) respectfully from the perspective of someone who actually has the life experience to talk about it, and I think you have every right to call shenanigans on someone whose actions are actively harming the community that you belong to by being a (profiting) powerhouse behind the fake disorder Tik Tok trend.
I have little patience for the disorder-faking community because I feel like a chunk of them are harming my community, too. As a 40-something L in LGBT, I had to spend years wading through homophobia and proving my sexuality as valid to a lot of people who had no right to judge or question me.
I see a disproportionate number of disorder-fakers performing for the camera with rainbow flags and swag in the background, and it really irks me because blatantly faking one part of who you are is going to ruin people's trust that you're anything that you say you are. If people know that you've hitched your wagon to the DID/Tourette's/Autism/ADHD train under false pretenses for attention, what's to stop them from thinking (for good reason) that you're also falsely jumping on the LGBT bandwagon as just another marginalized group that you can glom onto to get attention and feel special? And if that's the case, how long before I, despite being out for 20 years and married to a woman, have to go back to square one to prove that who I am isn't just something I'm making up for attention?
My community fought for decades to prove that being LGBT isn't the result of mental illness or moral depravity. How long before we're pushed backwards to that point again because a chunk of these fakers are acting publicly for attention in ways that demonstrate narcissistic-type mental issues and moral bankruptcy with my community's symbolism as a backdrop?
Like you, I don't think that anyone should get dogpiled with doxxing and death threats for being a fraud, but I also don't think that you need to backpedal and let fakers off the hook for doing something morally reprehensible for clout, all while hurting other people who have an inordinate number of struggles to go through already just to be who they are and live their lives.
This was a really nice, introspective video!
I think that it is very nice of you to do this video. She definitely has mental issues in order to fake having the disorder. Bringing awareness to the fact that she is a human and deserves to be left alone as she is no longer causing issues to the community is a good thing.
aww panda used to do that tiny bork when i asked her for 'speak' it was her inside voice. This was a very lovely video, i missed watching you!
There's so much drama and negativity in the world, and especially on the internet. Thank you for addressing this behavior in a mature and responsible way. Keep it up, and keep being you! I wish you all the best, you wonderful human being.
This sounds so rude but i hate watching vids of tics and roses 😭 IT ANNOYS ME !! idk why i think cuz their* tics and stuff is so fake looking ??? idk oof i think its just cuz of all the vids ive seen of ppl fake claiming them idk if theyre faking or not ...
Then don't watch and if you select a few options on YT vids you can remove or lower your chances of videos relating to Tics and Roses popping up on your feed
Another great educational video. Thank you for what you do. The important thing is that you are raising awareness about Tourette's and educating people like myself. Keep up the good work !
Thanks for doing these video's you are truly Beautiful....🥰🥰🥰🥰🥰🥰...❣❣
Daisy is so adorable with her squishmallow 💕 she looks like a teddy bear
your dog and her toy are so cute!! ❤️
but this video was really well done. it's good to look back on previous things you've done and situations you've been in, and being able to interpret them differently than how you originally did.
points you made such as suppressing tics and overall not ticcing for a while could be the case for ticsandroses. the one thing that sold it for me, though, was them disappearing from social media without any explanation (from what i've seen). they had the opportunity to defend themselves or explain their situation, but instead gave room for everyone to speculate. especially with the posts made by their sister and mother on reddit being the closest things we have to having "actual" answers, we will never know their situation or their story.
and to add on to the "looking back" aspect, i don't think you were necessarily hating or judging them. i think you were providing input to the discussion based on your own experience. even then, this is an important situation to have.
I have so, so much respect for you! Also your dog is adorable!
hi! i have tics, but i do not believe im officially diagnosed with tourettes, though i am a diagnosed neurodivergent person.
i love your content! youre fun to watch and have a lovely personality to go along with it, im glad to find a youtuber that i can relate to and empathize with to an extent. much love ❤
as someone how is trying to learn more about Tourette's and also someone that has a ticing disorder and tic's on a day to day basis i wish i can help people like you do love you girly
My opinion may be invalid, however i look at tics and roses and i see her making a mockery tourettes. Seeing your video in a helmet and pads to prevent yourself from true harm, vs her "achoo, achoo, achoo, off to canada you go". This isnt a unique situation to her either, everyone is looking for clout on tiktok. I dont see much of a difference between how she acts to how the pranksters act. Its a joke to them and its not only painful to watch, but also obviously attention seeking
Thank you for doing all that you do. You are strong, stunning, kind, knowledgeable, and absolutely raising awareness. Not only around Tourettes as you said. With struggling with one of the issues you mentioned. I find things have become extremely harder actually dealing and being diagnosed with something people on social media use as a something quirky, dramatic, and trendy. I truly thank you from the bottom of my heart. I have to admit I do not believe you are part of the problem sweetheart, you have every right to make this content. You are exactly who should be discussing this. Not random drama channels. You also have every right to express what you are in this video as well. You truly are in your lane. That can’t be said for many. Keep up the amazing work you beauty❤
It's truly aggravating that people do this...and I can't agree more with how it makes me feel
Personally, I have massive respect for people with Tourette’s syndrome, personally I could never live with randomly jerking uncontrollably. I hope that everybody who lives with this is doing perfectly well and not letting it affect their life too much
Thank you for this apology. A lot of people without Tourette’s just jump to fake claiming. And just making assumptions about the disorder without even doing research. Suggestability, distractibility, waxing and waning, all of those things are parts of Tourette’s.
I completely agree with this. I believe these days people don't know enough about Tourettes and should be more educated about it. As a girl going through a Tourettes diagnosis I get told a lot by people at school I'm just doing it for attention or I'll be told I'm contagious so they'll get others to stay away from me and it's wrong. Even if ticsandroses faked tics I get people will be mad but the way some people handle it is disgusting. We need more people like you dealing with it as your not being rude or threatening her.
You are such a a sweetheart!! ❤️❤️
I got tics at 30 from a med and can't stand this faking and fake claiming crap. It's been so hard living my life with no tics and then developing them later in life. I've had them for five years but it's still so hard to live with and the doubt that so many people have when you're a woman with tics. Thanks so much for this video.
I will say, if you fake a condition you deserve some repercussions, that being said, fake claiming shouldn't happen without very good reason, proof, really. I had no idea what tics were like till I got them. They can be complex and there's a lot of people who think they know when they really don't.
I dont have this but i do have 3 tics , lifting up my forgead , with neck and lifting my shoulder , they are rare they can happen more depend how stress i am and sometimes can get uncomfy from them , im happy you and others who trully have it speak about it so many can be educated . God bless us❤
the part about not ticking all the time is so true. i can go a LONG time without ticking if i’m feeling very depressed or down. or it can also just be completely random.
same with the unnoticeable tics too. some of my most common tics are things like blinking and nose twitching. they are extremely unnoticeable especially to someone who doesn’t know what to be looking for. people are always like “oh i don’t even notice you tic” and while i am happy about that, it’s annoying when they turn and use it against you. maybe you don’t notice me tic, but i do. every time.
Much love Carly!!
My nephew is 9 and just was officially diagnosed with tourettes.. I'm scared for him 😪
What has happened to Emerald is downright awful, but you weren't the 1st one I saw to call them out and I don't personally blame you for it. But what you are doing here, and now, is an incredible step in the right direction. Unfortunately this is just a trait of internet culture in that anyone worth anything has a voice that can influence us all, and that voice can easily have the most horribly misguided or worse, malicious intent. Before you know it, one voice is hundreds of thousands, crying the same virtiol. T&R is just one example. And while there is so much good that comes of us having this worldwide communication and platform this just... *sucks* . It's taken what cyber bullying used to be percieved as and taken it to an unimaginable level while ironically and tragically enough, people still deny even being a thing. And worst of all, even points that are entirely correct with the best intentions, like calling them out, can easily be agreed with by people you DON'T want to that can and will get spun in a vile manner. Just saying one thing negative about any person belonging to a minority can be unconsentually spearheaded as racism, ableism, homophobia, transphobia, xenophobia and the like. But say nothing and you condone and enable harmful behavior. So... what's the lesson here? As pessimistic as it is, we can't win. Or at least I don't know HOW to win. Cause now, and God do I ever hope this isn't what happens to you, backtracking or standing by the person in the spotlight getting pelted with tomatoes will invite you into the same.
But let's ignore all of that and focus on the potential good. Making this video, trying to ring in crowd control and hopefully quiet the negative voices, is so incredibly commendable. It takes a lot to admit you're wrong, or at least that it got out of hand. While you were put in their shoes and I hate that, you learned and gained a tool to use the voice that contributed to what it has become, to quell the hatred. Time will tell which way this goes, but sincerely hope that it's in your favor.
P.S. Daisy deserves the world and I love her
You show your true good character with this video... Respect
It's sad but it has apparently become the world we live in today, with these two kinds of people attaining prominence in society: those who fake health disorders for attention, and those who are triggered to claim that someone's health disorder is fake... It's honestly a very meaningless situation... Though I guess at the end of the day, one might just have to come to terms with the reality that this is how the world is now, and that if someone absolutely insists being a cynic about tics, there isn't really anything to prove in the end... As they say: "haters gonna hate".
But you are letting ppl know more about your diagnosis. THANKS FOR INFORMING US ABOUT TICS
I really don't like Emerald. And usually I'm not like "ugh she is so Ugh"
Though people have taken it too far. I know that I might have tourettes. I'm not diagnosed with tourettes, because of this I don't do Tourettes Awareness but that's another rabbit hole.
Tics and Roses really seemed fake. We shouldn't have as a group not supported this. but now we know
For someone who has epilepsy I know how it feels for someone to claim they have some medical issues as a joke. I can agree that people have taken this too far.
Im always here for you and yes it's okay to learn New things and growing up from the past im happy you took the time to make this video and yes ticsandroses did have a mental illness and I don't blame her for that but I wish she knew what she done from the start and get help for it honestly
Another Excellent Video, can you only have or get Tics with Tourette’s or are there other health conditions that can give people Tics.
She still has the "i got rice" tick. Nostalgia ❤
i love her “i got rice” tick, it’s kinda funny ngl!
Hi!! I was wondering, how you went to school with Tourette's. Did you go to a special class? Did you go to a public class? I'm just genuinely curious. Also! As someone with adhd who has seen people fake it, it makes me feel upset because someone who actual has it, it's a struggle to focus, finish a task, and accept change. I believe I've had this since I was atleast 5, and school has actually been such a struggle. Thank you for like educating everyone. Ily girl keep it up
2:39 2M now
Even as someone who isnt a content creator im constantly told im faking.
After apologizing will you be deleting the videos? I understand your points & you’ve educated me a lot. I do hope that they stay.
Off topic but early!!! 🫶🫶
Daisy is adorable 🥰🥰🥰
Love you and ure channel . Love ure puppy. Ure cute bark too. ❤
Thank you for making your video, your account has been a massive help for education about this disorder. I have a quick, unrelated, question, is it possible for one to have tourette's that goes undiagnosed for years?
i have a paranormal channel where i make videos of serial killer spirit box sessions and i did a dahmer clip where i talk about what happened to victims and things and u cant tell i got tourette's cause theres a pause button lol, but i do think shes not that legit im on the fence on that 1
I don’t see why you would want something like this to be happening to you as I know u don’t rlly like it. I have eczema (I know they aren’t similar at all!! I promise I do!) but there was people in my primary school who just scratched their arms to pretend they have it too and they found it funny when I believed them so I know what it’s like for someone to think it’s ‘fun’ to pretend they have something they don’t xx
Btw I do feel bad for ticcsandroses too bc of all the hate they get I feel like they should be left alone now
People made fun of me for being autistic.
Hi! I have this weird thing with my neck or it feels super uncomfortable and I have to turn it, but I don’t really think it’s Tourette’s syndrome because I don’t have any other tic, and I just wanna know if you know what wrong with my neck. It’s like I feel like I’m controlling turning my neck, but like I have to turn it it’s weird. You probably don’t understand but it’s a very uncomfortable and very strong urge to return it whenever this happens.
Do you have any other issues like ADHD OR OCD that goes with your Tourette’s.
JUST Watched your old one 😅
Omg your so pretty 🩷
Question! Can you remember if you say or do a racist thing in a tic?
Alot of people with ts hates this question btw. But yes if u have coprolalia chances are you might have a racist/offensive tic (Like wjere I say stfu 👦🏿 or 🏳️🌈/🏳️⚧️ on my 🍆) (i hope you understand)
I love your video's and i also have Tourette so you inspyer my too do things i don't do
Fuck fakeclaiming
No exactly she is terrible to the community but at the same time unless you have Tourette’s or know someone well with Tourette’s you shouldn’t be talking about this or using it to gain money or clout
What about movies or books featuring well researched characters?
Emerald/TicsAndRoses uses they/them if that’s who you’re talking about
@@TheBigJayAgenda my bad but yes I meant They
I recently watched this doc. ruclips.net/video/e8LiiezkAkQ/видео.html and one boy,Conner, stood out.
i have alot of random neck movements and i dont think its tics because i have no other signs besides random arm flaring but does it mean something?
You may have what are called myoclonic jerks.
@@India.H what are those?
@Brooklyn-xd7fp myoclonic jerks are the random twitches everyone gets, e.g. leg twitches as you're falling asleep.
However, what I was suggesting - from your description - is called myoclonus. How old are you?
@@India.H im 15
@@Brooklyn-xd7fp okay. Do you get random periods where you float off as though you're daydreaming?
Referring to someone by their biological gender/pronouns isn't misgendeting thrm. It's called the truth.
❤
No audio for some reason
Audio works on my end? 🤔
I'm glad I'm not the only person who noticed. I thought it was my phone. 😂
@@TiccingTogether It randomly started working after waiting for a few minutes. Probably RUclips pulling a RUclips lol
Not trying to offend (I have tics too) but where is this rice you speak of owning?
If only it were that shrimple
❤❤❤❤❤
TicTok
17 hours ago!
I personally don't mind faking as long as its done respectfully to those who actually have it. Like put a disclaimer that you don't actually have it. Try to be educational and informative
Well let’s look at this Billy eilish can go an entire concert masking her Tourette’s so yes she likely is faking at the same time we need to think really hard
I didn't even knew she had it until I saw your comment
FIRST!! Omg that posted not even a minute ago!
Thanks for watching!! (:
@@TiccingTogetherno problem!😁❤️
Omg she is so fake
Emerald? They go by they/them.
@@TheBigJayAgendaDoesn't matter. She's a woman!