Young Onset Dementia - Keith Oliver's Story
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- Опубликовано: 26 апр 2013
- Keith Oliver, a successful and respected Head Teacher, was diagnosed with Alzheimer's at the age of 55. Here he describes his early symptoms, how it affects him now, and how he copes. This video was made as part of a training project. Keith is very keen to raise awareness and spread a positive message, This is his story...
Dear folks who watch this little film. I am still here!! Though Alzheimer's gets the better of me some days I am still able to appreciate this amazing piece of work created with me by the fabulously talented film maker Mycal Miller. I really cannot believe that it has now exceeded 100,000 views and I sincerely hope that it is of benefit to all who watch it whoever you are or wherever you come form to it. Thank you and take care x
So glad to find this recent post! Keep going strong Mr. Oliver! Best regards from Lisbon Portugal.
PS What a lovely garden you have!
@@MariaTorres-hc5uq Yes, garden is beautiful, as are flowers in the living room.
@@MariaTorres-hc5uq Thank you Maria. take care
This man is incredibly articulate for someone suffering from Alzheimer's. What would have happened if he had stayed working, even part time, with the support of all the people that obviously love him so much?
My prayers go to you hello from Texas.
Whilst I do look at comments and really appreciate the kind words people have expressed I never now watch the film. That was how I was back then, I am still here though and on many days with help and support I do quite well really. I am amazed and staggered that this film which was originally only meant to be seen by a few at a couple of live training courses has now been seen by 133,000 around the world. My big hope is that it has done some good. Thank you again. x
@Keith Oliver. Thank you for extending yourself into a public light. And for your35 years as an educator. I have daughters that are educators & it is dedicated work. Please be blessed and care for your self.
@@Jalyced22 thank you
Just to say that I am still around and that 5 years on some things have changed and some remain similar. I am still proud of this little film which was so sensitively made by a superb film maker - Mycal Miller
Thanks Keith, I was wondering how you are doing today.
Thanks for sharing your story. I wish you all the best. Greetings from Portugal. 😘🙏🌹
More than seven years later and you're doing well. It's a treasure for us to have your input.
So happy your still doing well Keith 😊
This is a brilliant bit of news for others. A beacon of enormous hope in such a scary diagnosis
The fact he was diagnosed 9 and a half years ago and I still going strong enough to respond to the majority of the comments on this video shows just how strong he really is
I jinxed it :
MY name is Debra,I am 68,I will be talking and forget what I am talking about or I will forget the name of something.I have actually went to town and forgot where to go.what way .but I found my way back home.God bless you and thank you for sharing this.
@Hello there, how are you doing this blessed day?
Dementia is just terrible. You can tell he is such an intelligent, caring person. Educators of our children get my highest respect. I am glad he is keeping as positive as possible. That garden he has looks like a little piece of heaven. It is just so lovely.
Thank you. My wife now does more of the clever stuff in the garden but we still managed to do late Autumn tidying up in there today for a few hours !!
Hope you’re doing as well as possible these days. I am dealing with very early dementia news. It’s a little depressing but your story is inspiring. And I appreciate you for it. Best Wishes.
Mark in Charlotte, North Carolina
I realise this was 10 years ago - I would never have thought you were ill in anyway with dementia at this stage .. you are more coherent than any school teacher I have met - young or old. I will see if there are follow up videos..
Your positive outlook is what will keep you here
A story told with real poignancy and dignity. Keith, you are as gifted now as you were before the advent of this awful disease.
Thank you, your kind words are well received. As long as the film is helping other people then I am pleased.
Smelling the flower and then fading to black was quite the powerful image. Keep fighting the good fight Mr. Oliver, God bless 🙏🏻
Thank you🙂
Hi Keith - I have a different perspective on dementia. I am 72 and I have lived in a long term care residence for the past three years. I made this move because of mobility issues and the need for help daily. I do not have dementia and am part of a small percentage of cognitive residents in this home. I live in close contact with 30 other residents on my floor and have watched the changes that happen to each one over time as their particular disease progresses. It is hard watching the changes on a daily basis until one day they are no longer in the dining room. My thoughts are with you and hope you continue to have all the support you need. Family and close friends that are in for the long haul are so important.
Thank you Ann. Kind words such as these expressed by you mean a lot to me.
Keith - if you see this, Know that we appreciate you sharing your story with us. This is hard - and we all know its hard. None of us likes to loose our independence. I feel for you. Just know that there are many people who know you who love you - and many who don't really know you, and still we appreciate that you were brave and shared your story.
Thank you for these kind words which I appreciate and apologies for the slow response
It's 2021 and I'm watching this video...I hope Keith Oliver is doing well ..🙏
My lifelong friend, Marion, was a graduate from Girton College, Cambridge. She taught chemistry and maths. She was so kind and intelligent and saw me through some bad times. Later in life she developed dementia. She died in April this year, aged 89. Her dedicated husband, Jim, died 7 days later. One day, we will find a cure. My three children are nurses and have great compassion for this condition. X
Thank you Mary for sharing this. Take care x
What a awesome man! God bless ya 😊
Thank you - just an ordinary man with good support and a drive to do something useful while I still can.
U know u have it and can enjoy everyday to the fullest. I'm praying for you and your family every day.
Thank you Keith for your very honest and inspirational video. I hope to stay well for a long time to come.
Thank you
Wonderful man, beautiful home and gardens. He does so well.
Thank you for these kind words
Thank you for this. I am currently experiencing similar things to you in this video. I had an MRI about 6 months before the lockdowns may be a little longer. The Dr told me I had natural cognitive failure, but the symptoms are so similar to yours. May be mine will turn out to be dementia. I don't know. It does worry me as I live alone and I'm only 48. Anyway it was good to find a video of someone talking about their symptoms. Most are either Drs or family members talking and I really wanted to hear it from someone with the condition. Thank you. God bless, Keith.
Thankyou for sharing this, my own husband of just 54 has been diagnosed with Alzheimer's this very week so I'm going to show him your story. Thankyou Keith.
Tracey, how is our husband doing? I hope you are well. God Bless!
Very Very Inspirational. This is gonna be a common problem for people moving forward. Learning the strategies to cope is important.
Luv and Peace.
Thanks, Keith. I really appreciate you sharing your story with us. The analogy to the weather is really helpful. I hope you get to enjoy many more years of positive living!
Hello Angela
How are you doing today?
dementia runs in my family. my mother has moderate to severe dementia. i welcome insights such as this. amazing man. thankyou for sharing.
gill kind in
Very many thanks.
Keith Oliver, you are a good man. God Bless!
Thank you that is very kind
How can you make such a clear precise and excellent video . You can ‘ t have dementia. You are so all there!!
It was back in 2012 and took 2 days to get the 8 minutes film with a lovely, caring professional film maker / dementia trainer. I know I couldn't do this now and have been filmed since but not like this. I wish you well.
Thank you for sharing your story, Keith. I am going through more tests today to help with a diagnoses which I expect to receive on July 6th of 2017.
I have had spine issues for decades and when I started getting dizzy and falling I thought it was something to do with that. Imagine my surprise when I was told that it had something to do with my brain instead. After getting both brain and spine MRI's done, my Neurosurgeon took a look at them and said my spine was still problematic, but it was what he saw on the brain scan that shook me. According to him, I have accelerated brain atrophy for my age of 61 and have multiple mirco-infarcts with small vessel ischemic disease of the brain.
All of the times I forgot what I was doing while talking to clients, forgetting words and even going the wrong direction when driving to work finally makes sense.
Yesterday I had quite a bit of anxiety over what the doctor may tell me. Today I am doing better, but it is still a dreadful prospect to face.
Thank you. I hope that life is treating you kindly now. Knowing what is happening inside our head can be a real help. Your story is so much like mine. It's 7 years since I went though this so there i HOPE!
@melungeon55 how are you now?
I think your positive attitude plays a big role in you doing so well. Keep it up Keith!
Thank you o much - I feel you are so right. Never easy to maintain but with love and support the positive attitude is a little easier to achieve.
Keith thank you for your film. My husband was diagnosed with Alzheimer’s in 2012 and started Aricept medication. He tested in mild dementia stage for 8 years and Neurologist decided he did not have Alzheimer’s. The guess was Dementia and healthy heart healthy mind. He was taken off aricept after 6 years. We used diet and exercise testing A1c. Now my husband is testing in the Mild to Moderate Stage. We are now planning for the next stage. Your description helps me understand my husbands perspective. He is unable to describe changes but continues to enjoy life working on mowing grass and gardening. Your perspective and just continuing to respond gives hope for our continuing to enjoy each day with adjusting to doing less but enjoying each day more. Thank you for continuing to respond.
Thank you for sharing your experience. Take care.
Thank you for sharing and making this video. I am now 54, feeling for a while now a similar symptoms and your story is helping me and family to understand what might be going on with my health and be prepared to deal with it with right positive life outlook. Again many thanks for sharing your story and wish you Keith many joys and blessings 🌷
Thank you. I know from this message that you will be able to deal with what lies ahead. Seek out what help and support is available both local to you and on line through charities etc. Take care
Sincere thank you!
A very touching video. Thank you Keith and to all involved.
Make sure your kitchen has no Teflon pans. Thanks for sharing your story in order to help others
As a caregiver I really appreciate this.
Lovely man. Your goodness shines through. Hope you get lots of sunny days xxx
Thank you this is much appreciated
KEITH ITS BEEN ANOTHER YEAR I HOPE YOUR STILL HERE and stay proud if this film :)
Thank you. Still here and doing my best to stay around x
@@keitholiver7588 YAHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH I HOPE TIME IS GREAT 2U BROTHER AND U GET ALOT MORE!
Great video. My grandma passed recently after having dementia and it upsets me. This guy seems healthy and intelligent so I think he will be able to stay happy for a long time even after the diagnosis.
Thanks - the film was made a long time ago when I was very early into my dementia. Some things have changed but the spirit and person remains
@@keitholiver7588 I appreciate the reply. Stay strong :)
Hello Keith. I see you are still teaching and inspiring people. I have forwarded this to our training department at Strode Park Foundation where we are developing community based dementia support services in Kent and Medway as part of our integrated care and support services. Thank you.
@Hello there, how are you doing this blessed day?
God Bless you .
Thanks for sharing your beautiful story of living life to the fullest inspite of dementia!
Thank you, your kind words are appreciated
Thank you for your film, I am currently going through testing for the last 18 months. The things you noticed resonated with own experiences, particularly the emotional changes, unable to control emotional outbursts, I have problems with my speech and struggle with multiple conversation. Even the distraction and loss of concentration is familiar. Thank you for your openness and it helps others coming to terms with this condition.
thank you, i wish you well. take care
At least Keith is honest and doesn’t try to hide the fact that he has dementia. That’s a good point. Dementia appears to be a very frustrating disease and I wonder whether it can be arrested with a healthy diet and a different approach to how you tackle the daily toil of every day living. I would hope there are centres where people with dementia can go so that they are helped In staying independent as long as possible. I am 77 years of age and I don’t have dementia, though when suddenly my speech became slurred, dementia was suspected but ruled out after tests were carried out. Whose to say as we live longer that more and more people will not get dementia, so as Keith says, treasure every day and live each day to its fullest.
Thanks Caprice. despite it being over 5 years since this film was made I am "hanging in there"! Some friends with the condition are not so lucky. Words of encouragement DO help, so thanks again.
Really impressive
This is March 25-2023,,so I hope you and your wife are still doing good as possible..
You're an inspiration. Thank you and keep up the good fight!
Thank you I try🙂
What an admirably British man
I have many flaws and faults but do my best despite what dementia challenges and frustrates me with - support, encouragement and care help a lot
@@keitholiver7588 Keith I’m glad you’re still with us and optimistic after 9 years since this video was evidently filmed. I appreciate your sense of humor on the matter, with your remarks about reruns being new to you. From a yankee across the pond; best wishes my friend.
thank you for this film. Your description of how it goes, sunny days and cloudy days, how things slip away, the changes. No one is prepared for the usual abandonment that quickly follows a diagnosis. It is incredibly important to get people to see those of us with the illness as still significant beings. Poetry and art suit the brain more than detail and memory related tings. The loneliness is incredibly difficult, at least for now. Wishing you the best, beautifully done.
Thank you so much and your comments and suggestions are both true and correct.
Thanks Keith.your doing your best.also,your very aware.mgt
God bless you Keith ❤
Hope you're still doing well.
Greetings from Athens-Greece
Hello, Mr. Oliver and family - sending thoughts of peace and comfort to you all!
Carol N.
From Nashville, TN
U.S.A
Thank you Carol. That is appreciated by us both
I’m happy to see you still check in from time to time. Just stopping by to say hi 😊.
God bless you Keith, I hope you have many, many, years ahead of you
Thank you Maurenn. That's very kind
Godspeed, Keith Oliver .
All the best to you Keith!
🙏 for sharing your experience and journey.
Hello Keith. I can so relate to your journey. I too have been diagnosed with the onset of dementia. It runs in my family and when you gave your symptoms I felt re assured my own bits that go wrong are real. Right now I am going through ridiculous mood thoughts and spats with everyone. I hope your days ahead are happy ones and wish you peace.
Take care and I wish for "sunnier days" ahead for you
I’ve found that dementia seems to happen to exceptionally intelligent people....brain is complex xxx
Maybe it is this group that speak out. Dementia doesn't discriminate. Thank you for your comment and I hope the little film was of use and interest. Best wishes.
Wow if this little bit of insight is indeed from you Keith it shows you are very much still there intellectually!! I am thoroughly impressed! I do agree that it is likely a group difference regarding the out-reach.
I loved that yoube.shared your life with us, I would like to know how you are today 2021
Hi Keith. I have been dealing with similar circumstances, only 52 it’s been almost three years now and your analogy of how the sunny day vs foggy days……. Really made me feel less alone in this. Hopefully it stays at this pace because I feel I can still do something’s for my family while I still can . It’s not been easy but I’ll take it as it comes.
Take care, sending you my best wishes. Best way forward is to try and stay connected to those people who matter to you
@@keitholiver7588Can you give us an update on how your doing now?
thank you Keith for your encouraging testimony. Im sure those who are going through similar experiences. That your courage will be contagious. May God's Shalom be upon you and all those you have on your heart.
Thank you for your kindness which means a lot
@@keitholiver7588 hi Keith. Did you live in kerikeri? Your mum a teacher at the local school. If so we were class mates.?
@@johnpendergrast8177 no sorry, wrong person
Bless you Keith. What an amazing person you are. 🙂
That's very kind of you. Thank you. Take care.
Pray you are having lots of sunny days. Love from Australia x
Thank you Sandie, as an aussiephile myself I really appreciate your kind words. The sun is shining nicely here for me, but it always shines a little brighter when I am in our beloved Adelaide,
Thank you for telling your story about your life with dementia! ❤️ 🇩🇰
Thank you
Thank you for the information
I only hope it was useful🙂
Thank you
Wonderful man. So charming. God bless
Thank you Mary for your kindness
Thank you so much for doing this.Such an inspiration.How are you doing now?GOD Bless.
Thank you. Despite the lock down with the crucial props of love and support alongside routine I am doing quite well and actually better than I could have hoped for when I made this film over 6 years ago
Thanku 4 sharing ur story and going strong .
Thank you this is appreciated
Your story is beautifully told and thank you for sharing. I send your many blessings for more good living for a long time with your family. Kamini
Thank you Kamini I read your kind words to my wife and they were appreciated by us both
Mr. Oliver, thank you for a wonderful film. The best to you and your wife.
Thank you I appreciate this.
Thank for sharing your story Keith. Your positive outlook is inspiring and will help raise public awareness.
Sorry it has taken so long - just learnt how to reply!! Many thanks
Its help me to get my auntie
To see her JP and srart the assesment progress
Thank you, Keith. My own dementia has been a very slow progression. I understand about your 'foggy' days, which are frustrating for me. A sense of humor is helpful; the irony of keeping a journal to help me stay grounded then forgetting I have one! What's that smell- clothes mildewing from a day I was multitasking! Especially important is to keep love and gratitude up front.
So true, thank you for your comments. Take care.
Thanks for sharing
Thank you
Thank you for sharing your journey. May God bless you Keith Oliver. Kind regards C P
Thank you, very best to you too
Good Morning Mr. Oliver, Coconut Oil and a Ketogenic protocol has proven to be beneficial in slowing down the progression of dementia. All the BEST, CP
Charlene Powers Many thanks. Have tried it,. whilst I recognise it helps some it didn''t prove helpful in my case and the high fat content was a bit concerning.
You are an inspiration
Thank you - if this film continues to help then I am happy
Hi, your garden is lovely!!🌹
Thank you, that is kind of you to say that - my wife takes an increasing role in it but we still try and combine our efforts.
Message from The DementiaTraining Channel. Many apologies to all our viewers, but RUclips has recently added unwanted ads to this video. None of the videos on our channel has been 'monetised' and we want all our videos to be 'ad-free'. We are trying to find out what has happened and get these ads removed!
Hi Keith. Hope you’re well. Thanks for this vid 👍👍
Thank you - I hope it was helpful
@@keitholiver7588 yes it really was. Thanks for the reply I appreciate it 👍👍
Thanks so much for sharing. I was diagnosed at 54, though don't know which type yet. Much of your experience resonates with me. Keep on being positive x
Thank you. I am pleased that this little film has helped, that mean a lot. Very best wishes
All the best.
Thank you
God bless you my husband has it too I miss his arms around me so much
take care x
I just turned 51, and diagnosed with dementia last year, already moderate....WHAT IS GOING ON??!!
I ask that same question so often Alice and sometimes the answer is hard to find. I hope that you are getting some help and support for in that lies one key to staying as well as is possible. Take care
@@keitholiver7588 thank you, I have started going to programs and groups, I hope you are having a good week, we are in California dealing with fire....again....😳 take care🤗
@@mnmdisney stay safe. The fires look horrendous on the news over here in the UK. I did live in the Adelaide hills back in the 80s with the ever present risk and we had a swimming pool as much as a reservoir to pump out water onto the property to fight fires as to swim in. Take care.
Chemtrails !
God bless u and ur family
Thank you
Hi keith i hope you are doing well god bless you
thank you
What a nice guy. Keep going mate!
Thank you, with support I will certainly try !!!
@@keitholiver7588 hi, would you like to do some youtube videos where you give us an update on how you're doing?
Thank you for sharing your story. The information is a bit vague for me , though. I share your difficulty in following story lines in movies and TV programs. Since I live alone and rarely see anyone more than like the guy who cuts my grass every couple of weeks, it’s hard to get input from other days, in regards to whether I am progressing (in a negative way) or not. Sometimes I forget entire conversations with people and am begging to forget parts of my past. Many times it hard to recall words I want to sat in a conversation or I might repeat information several times within the same conversation. I struggle staying awake. If someone is around, it’s uncomfortable but I can stay awake. But once I am alone I almost immediately start falling asleep and completing a task is torture because I keep falling asleep every few minutes. Then, I’ll eventually forget what the heck I was working on in the 1sᴛ place. I get confused when talking on the phone because sometimes I’ll forget will whom I am talking and why. Despite having a GPS in my car, I’ll get lost going to places I’ve been many times and I’ll look around outside my car to get my bearings, but the area is completely unfamiliar even though, like I said, I’ve been there dozens and dozens of times before. Does any of this sound familiar to you? I understand that you are not a doctor and cannot give me a a diagnosis, but I would be very interested in hearing your thoughts on this. Thank you. ☺️
Nice comment
👁️ Thank you. I appreciate your kind comment.
Tina, how are you?
Thank you Keith.
I will share the link for your video via Kent Sussex Surrey Dementia Care Innovation Twitter and through our mailing list.
Thanks Jan -glad we are working together on a project after a gap in time
I'm surprised you know your story, I had a massive stroke at the age 50 and haven't had a memory since, I of course have vascular dementia.
I'm now 57, I am happy you have shared so much we have in common. it makes me feel i'm ok. Mike.
I have Parkinson's disease and Vascular Dementia I lied to the Neurologist & said I was fine the biggest mistake you can Do
Absolutely right and good advice for others to follow. I wish you well.
@Hello there, how are you doing this blessed day?
Good luck to you
Thank you Mary
U good guy
🙏🏽🙏🏽🙏🏽❤❤
Hope you’re well Keith
Thank you. I appreciate this. I still try and be positive and as well as I can.
Lovely to know
He doesn't sound like man with dementia.
Thank you Keith take care of yourself 🌸🕊
Are we allowed to share your story ?💜
Thank you. The film is in the public domain and is used by others to hopefully help. Can i please ask how you would like to use it?
Keith Oliver my parents have Alzheimer’s and dementia and I have been their carer . It would just be a support link for some who are really genuine struggling to come to terms and been bullied in the process . It would be part of the link on RUclips for Dementia Training where your story appears . I hope you are doing as well as possible 💜🌸🕊💯🇬🇧
@@Kpink452 Thank you. That is fine. Please take care of yourself too.
Unfortunately, he probably passed away already since this was recorded almost 8 years ago.
Hello Christopher, I do at times confound a few people but I am still around. More affected by the dementia but with help and support I get by ok and am DETERMINED to try and do so for a while longer.
Kheih Oliver you ok today?
So have you asked the why from a dietary and nutrienyal point of view?
All the things you say about being unable to follow tv. I’ve been like this since I was a small child. I get so distracted! Teachers would get frustrated with my dizziness
Thank you for this video and your words! Very informative.
I learned they are on some mRNA pharmaceutical to improve cognitive skills and keep the disease at bay. Though it still may take several years.
I wish you many sunny days ahead, and please remember your family loves and needs you.
Thank you, so true
I think that my father might have dementia. at 72 he keeps repeating himself, asking the same questions which is annoying and gets moody and very forgetful and can become very argumentative about the truth and denys certain facts. he asks me questions that he asked years ago and comes out with shit and he's very forgetful to he says he became prediabetic at 65 but I remember he was actually 58 though he can still drive. His mum had it though and apparently you stand a greater chance of getting it if a parent had it. I wonder if anyone can help
Very sorry to hear of your concerns about your father. One possible course of action would be to discuss this with his GP if your father will agree. GPs will not normally discuss a patient with anyone else, even a close family member, unless they have given consent. Another option for you is to call the Alzheimer's Society helpline for advice and support. DementiaUK also has an excellent helpline. Hope this is of some help
Don’t argue or try to correct your father, as it’s not only pointless, but it’ll only cause more aggravation and upset him more.
Remember to not get mad since it’s not his fault that he’s ill.
Do we have an update on Keith Oliver's condition?
I am doing on the whole ok thanks due to good support.
@@keitholiver7588 I'm so pleased to hear you are managing well. My husband had FTD dementia for about ten years. I didn't know what causes these brain issues until I watched a you tube video recently by Dr, Russell Blaylock, W0rth looking at has some symptoms can sometimes be halted and some function restored. I don't have it but am doing what I can to prevent it. Many blessings to you and your family.
@@hannahrosa5485 very many thanks
Do you mean if the sun is literally shining your mind works better, and cloudy days you have more trouble with finding words? Please let me know if its for true! I have been having trouble with words I know and have known for years. Something has been drawing me to a warmer and sunnier days. Please let me know if I am understanding what you are saying. Thank you,
Whilst seeing the sunshine is uplifting and a source of vit D, actually it is a metaphor for me in that when I feel most impacted by the dementia it is like being in a fog - and fog is usually patchy, the sun is a metaphor for clearer thinking. I hope that is helpful.