Terrifying first chemotherapy treatment - ovarian cancer battle Cancer vlog #5 September 2, 2022

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  • Опубликовано: 3 янв 2025

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  • @bobbiegambarini1056
    @bobbiegambarini1056 2 года назад +84

    God Blesd You. I had four months of Taxol and carboplatinum (sp?) in 2004 for 3rd stage uterine cancer. It was one of the hardest things I have ever done. But 18 years later, I'm still here, age 85.
    Good luck to you. I'm praying for you.

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +7

      I love reading this. I will use your experience to draw hope and keep my focus on a positive outcome. I am so happy treatment has worked so well for you ❤️

    • @carolinaherera8138
      @carolinaherera8138 2 года назад +2

      congratulations!!!

    • @jenniferrobbins8439
      @jenniferrobbins8439 2 года назад +6

      Bobbie I have stage 3 Uterine Cancer and my treatment is beginning in a few weeks I will be having radiation and Chemo, Cisplatin is the one I’m getting, the radiation is because the uterine cancer came back in my vagina, I had a hysterectomy for Stage 1 in 2020. Now it’s in my lymph nodes in my pelvic region. I’m scared to death of the treatments, I’m 61 and I’m not ready to go yet…

    • @bobbiegambarini1056
      @bobbiegambarini1056 2 года назад +4

      @@jenniferrobbins8439 You'll get through this. You, too, are a warrior and will beat this. I was angry at my cancer so I was determined to beat it. That thought was with me and helped me stay strong. You can do this! Prayers for you Jennifer. Please let us know how you're doing.

  • @ralex3697
    @ralex3697 Год назад +10

    Sadly this lovely lady passed

  • @nsmccoy2345
    @nsmccoy2345 2 года назад +25

    I’m so sorry for your experience! I am retired now but at one point in my nursing career, I was an Oncology Certified nurse! It was the most rewarding area that I ever worked in! Praying for all those nasty cancer cells to die! Keep your positive attitude! It does make a difference 🙏🏻❤️

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +3

      The nurses make such a huge difference to me and really help me through such a challenging time. I have so much respect for you and the work you did prior to retirement. It truly is lifesaving.

  • @jenniferrobbins8439
    @jenniferrobbins8439 2 года назад +25

    I’m going to be going through Chemo and Radiation in a few weeks, I’m watching all of your videos so I can see what I’m up against. You are a beautiful strong lady, I love your attitude, I know you will beat that damn Cancer🙏🏼🙏🏼👏🏻👏🏻👍🏼👍🏼👍🏼

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +5

      Best of luck to you with your treatment. I can't imagine having to do radiation at the same time as chemo. You've got this and we will both beat it. F#@! Cancer

  • @lolainma3218
    @lolainma3218 Год назад +4

    Dana Farber is World Class. I’m glad you had good care while going thru all this. Rest In Peace. I pray.

  • @kimnixon4969
    @kimnixon4969 2 года назад +11

    So glad to hear you are okay and feeling better. I am happy to be one of your followers and part of the fan club. God's got this! Sending up prayers that the treatment plan is figured out soon and your body handles it well.

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +2

      Thank you so much. Should have some answers in the next few days!

  • @ritaconnell41
    @ritaconnell41 2 года назад +5

    Thank you for sharing your experience. I hope that modifications can be made to make this doable. I start next week. Praying for you!

  • @nokuthulaxaba698
    @nokuthulaxaba698 Год назад +2

    Thanks so much you know these vidios are so informative and very much important to ease anxiety. Keep it to help cancer patients.

  • @annettepurtle3757
    @annettepurtle3757 2 года назад +9

    Hi Maria 👋 I had the same experience as you did, I had stage 4 esophageal cancer, and yes it was very scary situation! I to thought I was going to die. They gave me big doses of benedryl. But I’ve gone through many scary situations of my journey. The cancer returned 10 years latter which left me with physical disabilities but you know what I’m alive to be able to love and enjoy my family and friends. I beat mine and I know with prayers you will too. So Maria stay strong willed and positive thoughts ! Hugs and prayers 😀🤗🤗🤗🤗🤗🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼👍🏼👍🏼👍🏼👍🏼💪🏻

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +2

      That's great - congratulations on beating the beast. I'm going to do that too!

    • @annettepurtle3757
      @annettepurtle3757 2 года назад +1

      @@MyCancerJourneyMaria God bless you and I believe you will! 😀🤗🙌🏼🙌🏼🙌🏼🙌🏼💪🏻

  • @dorisirving2270
    @dorisirving2270 2 года назад +8

    Sending prayers your way, your strength is amazing. I’m so glad you have such a great team working with you. 🌷🇨🇦

  • @shetlandsheep3081
    @shetlandsheep3081 2 года назад +15

    Oh you poor lady - I feel this so much - I have OC and had an extreme hyperallergic Taxol reaction the moment it hit my vein for the first chemo (I was having Paclitaxil and carboplatin for ovarian cancer). I thought I was going to die, it was so frightening. They had to give massive adrenalin and antihistamine down the IV.
    The reaction was so bad that they decided they couldn’t retry it at all, not even slower (it seemed to be that the back pain I had for a long time was a worry to them) so I only ended up having platinum - and even started reacting to that on the 3rd treatment. So I really do empathise with you completely! But I get it - it is SOOOOOO scary.
    My oncologist said that if the cancer came back they could try taxol with a different carrier (not the pacli version - doclitaxil) - that wouldnt be the general UK licence so would be a special request but she was confident she could get it for me. Might be different in different country, but hope that is useful if your reaction turns out to be the same hyperallergic type.
    Sendinh love and solidarity from Scotland xxxxxx.

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +1

      I’m so sorry you also had that experience. I don’t know everything they pumped in me when I had the reaction but I have a vague recollection of also getting the EpiPen and being surprised it didn’t hurt. Hopefully you are cancer free or NED at this time - I will keep that in mind while fighting this - it’s possible!

  • @victoriawatson4538
    @victoriawatson4538 2 года назад +5

    So happy you are feeling better and things are working better for you. Keep the FAITH and keep fighting. God is with you, so you got this. I’m a witness 🙏🏾🙏🏾💖

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +2

      I have so much to live for so I will definitely keep fighting. Thank you so much for your support.

  • @roxie5273
    @roxie5273 2 года назад +4

    Love the hair! I send love and sincere well wishes.

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +2

      Thank you- I cut it short when I knew I would be starting chemo.

  • @KariMoon3568
    @KariMoon3568 Год назад +1

    ❤ CONGRATULATIONS 🎉 I LOVE HEARING THIS .HUGGS AND BLESSINGS!!

  • @barbarameehan113
    @barbarameehan113 2 года назад +4

    How scary. What a great team you have. My prayers are with you. ❤

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +1

      Thank you so much! Hoping for an uneventful second chemo infusion.

  • @nationalduo4945
    @nationalduo4945 2 года назад +4

    You are very brave..God Bless….I’ll pray for you..much love from Canada ❤

  • @chrissers25
    @chrissers25 Год назад +3

    I was diagnose with ovarian cancer January 2022, stage 1A clear cell. I had the same reaction to taxol only 2 minute in to it. I was able to get the carbo with no issues, but then they switched taxol to docetaxel my next round and no issues with change.

  • @ericaaubie860
    @ericaaubie860 2 года назад +4

    I like your positivity!

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад

      I have to remain positive. If I allow myself to indulge in the negative, I think my treatment would suffer. It’s not always easy but I definitely feel better with a positive outlook than if I just laid in bed all day and looked at google statistics. I have also noticed that when I move more, I definitely feel better. My activity level is no where close to what it was but I am just focusing on what helps. It’s those little things that I focus on.

    • @ericaaubie860
      @ericaaubie860 2 года назад +1

      @@MyCancerJourneyMaria I just thought I would tell you this. When I go through things I turn to God in prayer. I find having a friend knowing He is always there for me really helps. I just thought I would tell you that.

  • @gwynethgrove772
    @gwynethgrove772 2 года назад +3

    I’m so sorry you has such a scary time, sounds like you have a great team. Btw your lovely dog looks like my own dogs twin… I was shocked when I saw how much he/she was like man. You’ve got great spirit, sending best wishes.

  • @50toinfinityatleast
    @50toinfinityatleast 2 года назад +4

    Prayers. Much love to you.

  • @rhondablake3829
    @rhondablake3829 2 года назад +3

    Prayers 🙏🏼

  • @LetItBeSummer-1
    @LetItBeSummer-1 Год назад +6

    I can empathize with you very much. When I was getting my chemo, after a few times, I suddenly I had a bad allergic reaction and it hurts so much. Benadryl was given and it helped almost immediately.
    🤗 ❤🇨🇦

  • @MarilynMayaMendoza
    @MarilynMayaMendoza 2 года назад +4

    I'm sorry you had that experience. I'm a new subscriber and I'm praying for you. Aloha

    • @Activities4life
      @Activities4life 2 года назад +1

      Thank you so much. My oncologist did advise me that these types of reactions were possible but they were prepared to reverse it. Admittedly I wasn’t thinking of it in the moment but while it was terrifying, I am confident that they can handle any future reactions.

    • @MarilynMayaMendoza
      @MarilynMayaMendoza 2 года назад +2

      @@Activities4life It sounds like you’re in good hands. Healing vibes sent your way

  • @CAT-Anne
    @CAT-Anne 2 года назад +4

    Sounds horrifying!! I had a similar experience when I had a chemical stress test. They acted like I was being a baby. I use to do physical stress tests, which I can't do anymore. I'm glad they took you serious!

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +3

      It was pretty easy for them to take me seriously, as my oxygen levels dropped, my face turned beat read and my blood pressure wasn't good. Their preparation for such an event was definitely key!

  • @Amy-li5uv
    @Amy-li5uv 2 года назад +2

    I just came across your vids. Happy I did. Thanks for taking people with you on your journey. I have been diagnose with stage 4. Lung cancer and doing great. I have been in treatment for almost 3 years (just finished the 42nd cycle) wishing well. I am gonna watch more of your vids. Peace 🤪

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +1

      I’m sorry to hear about your diagnosis but I’m so happy that you’re doing so well after three years!

  • @doctork1708
    @doctork1708 2 года назад +2

    They did their job, and did it well. Relativity common reaction and completely appropriate response. Good luck. Calm down.

  • @margueritemunoz3265
    @margueritemunoz3265 Год назад +1

    You got this. And yes your going to Beat this. 👍🏼. Sending you ✌🏼❤️🙏🏼 with Gentle Hugs.

    • @flightangel9746
      @flightangel9746 Год назад +1

      She's been resting peacefully since February Still praying for her family.

  • @donnamariedunn3944
    @donnamariedunn3944 2 года назад +5

    I am sorry you went through that. I know what it feels like. I had a bad reaction on my first Chemo from taxol. It was horrible! I had pain in my chest. And the worst pain of my life going down my spine and across my lower back. I couldn't move. They kept giving me benadryl and it took forever. At one point I ask if I was having a heart attack. My husband thought I was going to die. He said my face was bright red. My oncologist somehow changed the taxol by having the synthetic taking out. I had ovarian cancer. Last chemo 3-24-22. I made it through all 6. Adjustments here and there. Nulasta onpro helped with the low white cells. In case that is an option.
    I will be praying for you. You are strong and will get through it too. ♥️

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +2

      Thank you so much. It was the scariest experience of my life. My husband said I also turned beet red too. I expect to hear what the plan is later this week for treatments but your experience gives me hope ❤️

    • @heidi1651
      @heidi1651 2 года назад +2

      I also had a strong reaction to taxol the first time. Benadryl helped well enough the following times and it worked out fine. I think it’s a big shock to the body the first time especially. 💛

    • @Activities4life
      @Activities4life 2 года назад +1

      @@heidi1651 that’s great news. I expect to find out today how we are going to address the reaction going forward. I know taxol is such a big drug to fight ovarian cancer, so if I can take it safely, without reaction, I’d like to try.

  • @sylviarosario6503
    @sylviarosario6503 2 года назад +6

    Prayers go out to you. Don’t give up.👍

  • @fran1395
    @fran1395 2 года назад +1

    Praying for you ! ❤

  • @jarendagarner9488
    @jarendagarner9488 Год назад

    Bless your heart ❤️

  • @PCT6566
    @PCT6566 2 года назад +3

    I just had the same reaction...for me the pain started in my stomach and within seconds, my mouth was all tingling and i felt like I was about to faint. Then came the chest pain, I could barely breathe and then I felt the heat dissipated from my stomach to my ankles.
    The nurse stopped the treatment immediately, gave me the oxygen and treated me with more antihistamines and saline.
    My oncologist then slowed the treatment even further, to 30ml an hour for 30 minutes, then moving it up 10ml every 15 minutes, (it was originally 60ml/hr.) The nurse told me that it's actually not an allergic reaction but rather a hypersensitivity.
    That's how my first chemo took 12:30 hours 😂. Luckily, I have no symptoms with carboplatin and avastin (which I'm told usually causes problems for the third chemo upwards --- not too thrilled about that 😓)

  • @rhondawhatley1591
    @rhondawhatley1591 2 года назад +29

    Chemo is accumulative so the more treatments you get the worse the symptoms get. Sorry that was so blunt just want you to prepare for it. To help with nausea you should try small meals throughout the day.

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +8

      I have heard that. I’m hoping that even if the side effects from chemo get worse, some of the effects of the cancer like the ascites get better. ❤️‍🩹

    • @ultimaforsan1
      @ultimaforsan1 Год назад +7

      I was told that, too, before receiving carbo/taxol chemo. For the record, and much to my surprise, that was not the case for me. My first treatment was the hardest and the side effects decreased with subsequent infusions. I did, of course, lose all my hair. It’s probably best to be prepared for it to get worse as infusions continue, as apparently it often does, but that’s also not always the case. I say this in case this may be encouraging to someone.

  • @Redsnapper123
    @Redsnapper123 2 года назад

    Holy cow 🐄! Glad you were ok! Must have been scary.

  • @crystaljackson9148
    @crystaljackson9148 Год назад

    Hey iam new to you your channel. I am so sorry that you is going through this i will be praying for you and your family🙏🙏👍🙏🙏

  • @stardustdreams234
    @stardustdreams234 Год назад +1

    My father was diagnosed with colorectal cancer and his first session was today. Its like more afraid than he is. Im literally worried about any potential crazy side effects. Im.just afraid.

  • @robynfedalen1777
    @robynfedalen1777 2 года назад +1

    ❤️✌🏻🙏🏻🙏🏻🙏🏻🙏🏻. You can beat it!

  • @JG-cj4db
    @JG-cj4db Год назад

    I just saw this video and it's been about a year and 3 months later but I'm hoping you are doing fantastic. How are you if you don't mind me asking. I'm hoping everything went great.

  • @sunnyklampe7773
    @sunnyklampe7773 2 года назад

    Yup! A reaction just like 1000 hot needles poking you my hips! I stopped breathing… from then on I started at 25%, 50%, 75%, then 100%… you are actually reacting to the carrier agent that gets it into your system…. Gets better each time, as your body gets used to it!

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +3

      I didn’t have the same reaction again, but my body still doesn’t like the taxol.

    • @sunnyklampe7773
      @sunnyklampe7773 2 года назад

      @@MyCancerJourneyMaria no one’s body likes the Taxol, but it works! Prayers for successful treatment and strength to heal!

  • @pamelabaker3029
    @pamelabaker3029 2 года назад +3

    It happens a lot

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад

      So I’ve learned. I really shouldn’t be surprised given the strength of these medications. I was warned, but in the moment I can’t say I was even thinking about it.

    • @bettyboo8214
      @bettyboo8214 2 года назад

      It's more common if you have or had ascites apparently.

  • @Rahel8811
    @Rahel8811 Год назад +1

    God bless you 🙏🏽

  • @sharonanderson9584
    @sharonanderson9584 Год назад +1

    ❤❤you Got this GOD has you 🙌

  • @mammattykutti
    @mammattykutti 2 года назад

    I have bleeding, but I have the present s of my son and daughter and husband, and God,so I am haven't negative feelings 👌👌👌

  • @viorelscrob6391
    @viorelscrob6391 2 года назад +1

    Hi, and my mom had ovarian cancer. What treatment did you have. ..?

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад

      Right now taxol and carboplatin for chemo. Surgery at a later date.

    • @viorelscrob6391
      @viorelscrob6391 2 года назад

      @@MyCancerJourneyMaria ah ok. Can you help me with something. .?

    • @viorelscrob6391
      @viorelscrob6391 2 года назад

      @@MyCancerJourneyMaria you can ask something there. ? for me. ?

    • @viorelscrob6391
      @viorelscrob6391 2 года назад +1

      @@MyCancerJourneyMaria Hi. My mother's tratament was carboplatin only, without Taxol, i don't understand why. .?

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад

      @@viorelscrob6391 I have a tough time understanding everything about my cancer, as I don't have a medical background. I do know that treatments are not the same for everyone, as the profile may be different - such as whether a person is BRCA 1 or 2 positive, HER2 positive or negative, and numerous other considerations. The best person to ask would be your mother's oncologist.

  • @shellcshells2902
    @shellcshells2902 2 года назад +1

    I know I'm off subject, but are you a pianist? Lovely grand behind you. If you are... would you play for us? ♡

    • @MyCancerJourneyMaria
      @MyCancerJourneyMaria  2 года назад +1

      I’m not a pianist but have been trying to teach myself, although a lot of that has been sidelined during treatment. I’m very much a beginner but I do enjoy playing.

  • @bobbipetty7411
    @bobbipetty7411 Год назад

    I've had a hard time with chemo too. Get really sick after for about 3 to 5 days. The meds don't help much. I use CBD and that helps some. Only one more round then onto radiation. Hang in there.

  • @cindymaulden2226
    @cindymaulden2226 2 года назад +1

    How old are you??

  • @robertdabbs2606
    @robertdabbs2606 2 года назад

    Sounds like a party to me!😃

  • @lorraineowens9547
    @lorraineowens9547 Год назад

    Taxol 😮

  • @igorkaczmarski7794
    @igorkaczmarski7794 2 года назад +7

    chemo kills