Teaching my sister how to care for my son with a genetic disease

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  • Опубликовано: 2 окт 2022
  • Taking care of the cutest boy in the world... is a lot of work! I'm SO glad my youngest sister Rebecca had a couple weeks to spare before she started college and came down to help me! Damian LOVES Auntie Becca (as you can see) and we can't wait for a return visit!! 💙
    ________________________________________________
    💙ABOUT DAMIAN💙
    Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A/B (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to expedite the development of treatment and save his life. Please help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you 💙
    ________________________________________________
    💙 LINKS 💙
    GoFundMe: gofund.me/24dc59ae
    Blog and More: www.SaveDamian.com
    ________________________________________________
    💙 AS SEEN IN THIS VIDEO 💙
    Splash Pad: amzn.to/3Cxc7OJ
    Links to therapy toys and more at our Amazon Storefront: www.amazon.com/shop/pleasesav...

Комментарии • 44

  • @Venice805
    @Venice805 Год назад +5

    He is adorable 🤗

  • @nancyjones6428
    @nancyjones6428 Год назад +4

    Damien's eyes have changed, he looks more aware and vested into his surroundings. He doesn't look tired.

  • @nicolehutton2744
    @nicolehutton2744 Год назад +2

    The way he screamed in the splash pad, haha. ADORABLE!

  • @robinmonroe1276
    @robinmonroe1276 Год назад +1

    Mommy and daddy do an awesome job with your beautiful son! You also have a super-duper secret weapon, your younger sister! It certainly brought joy and enlightenment to your handsome son. 💙

  • @Knight_Mode
    @Knight_Mode Год назад +2

    He is so cute. You’re a very good mama.

  • @yushipumba9172
    @yushipumba9172 Год назад +3

    Hi
    I just find your channel. When you said Damian first words were "daddy and Becca" , I remembered me and my first nephew his first word was "Didi" for me (Amandine) he said"mommy" very late he was 3 years old... It is always "auntie Didi" every time. I saw myself in Becca. It's good for you and Damian to have time with your sister. ❤

  • @leorabenjack3877
    @leorabenjack3877 Год назад +3

    What a lovely family ❤️

  • @valeschiary9566
    @valeschiary9566 Год назад +3

    Beautiful family

  • @helenboal27
    @helenboal27 Год назад +4

    She seems to be wonderful at stimulating him 😊 I hope her nursing training goes well. She will be awesome.

  • @jaredmarkham7300
    @jaredmarkham7300 Год назад +7

    Glad Becca could be there to help he look like every thing more fun for him

    • @pleasesavedamian
      @pleasesavedamian  Год назад +1

      It was obvious he was thrilled to have her stay with us!! Hopefully she gets to come back soon! 💙 Thanks JJ!

  • @eddj32
    @eddj32 Год назад +4

    he was so happy to see her! glad you were able to go on a date and get a little break.

  • @catherinebrodie3067
    @catherinebrodie3067 Год назад +1

    What a beautiful happy family & Damian is such a little darling. May God bless you all. From Australia. 🙏🙏🙏🙏

  • @marilynroberts6644
    @marilynroberts6644 Год назад +4

    What a beautiful little boy and a very cool aunt !! Sending love and prayers to you and your family 💜

  • @dorreenewatson3036
    @dorreenewatson3036 Год назад +5

    Your baby boy is a gift from the Lord Jesus Christ Amen 🙏🙏🙏♥️ he always looks happy may God Almighty and Jesus Christ continue to bless you all Amen 🙏🙏🙏♥️

  • @valeschiary9566
    @valeschiary9566 Год назад +3

    Bless you from italy

  • @sarabellum510
    @sarabellum510 Год назад +4

    Oh, how fun!! 😄

  • @samanthakyle6700
    @samanthakyle6700 Год назад +5

    Yeah! Go Bex and Brittany! It's so cute the way Damian loves Auntie Becca :) What great sisters and nephews I have :)

  • @user-tb9gv5rp9k
    @user-tb9gv5rp9k Год назад +4

    This is such a fun and great video. You make these videos so easy to watch. Very interesting!

  • @samanthakyle6700
    @samanthakyle6700 Год назад +5

    Great job helping, Bex! You are going to be such a great nurse!

  • @janethgonzalez9211
    @janethgonzalez9211 Год назад +6

    Love Damian and your beautiful family so much! ❤️

  • @Sheila612Miller
    @Sheila612Miller Год назад +1

    It saddens me so much when the innocent babes are sick or have to fight to live or fight to live a normal life. It makes you question God which i know you are not spose to question his will. It's just so hard not to. Like why put Damien through this for what? What can possibly be the purpose? I'm sorry it just makes me so mad and sad. Your such a good mom and Brock a good dad and your son is such a special, strong, ADORABLE little boy that deserves a healthy,happy,long life. I wish you all the best.sorry I was venting I just hate seeing your son go through this or any child go through tough things. I'm praying for you all. Bless your lil sis for coming to help and spend time with and make special memories with her nephew that clearly loves her so so much.

  • @leamichelle3792
    @leamichelle3792 Год назад +2

    Isn't it exciting how much cost one single child can cause and how many people it can need to care for it.

  • @kristinacochran675
    @kristinacochran675 Год назад +4

    What a special time. And I loved seeing what your days look like. Thank you for showing us!

    • @pleasesavedamian
      @pleasesavedamian  Год назад

      Oh, I'm so glad you enjoyed watching, thank you!! 💙💙

  • @eilsel2285
    @eilsel2285 Год назад +6

    Loved the video and seeing what a day in the life looks like! You are so strong and such an amazing mom to Damian and Becca was awesome with him too! 💙💙

    • @pleasesavedamian
      @pleasesavedamian  Год назад

      I'm so glad you loved the video! Thank you so much 💙💙 Becca was absolutely awesome! Can't wait for her to come back and visit soon!!

  • @marikon3
    @marikon3 Год назад +2

    💙

  • @DeneeDowning
    @DeneeDowning Год назад +3

    Came across your videos God bless your son I have to say you look just like Taylor Swift

  • @Fabviv
    @Fabviv Год назад +2

    💙💙💙💙💙

  • @lesliekriel6498
    @lesliekriel6498 Год назад +3

    Sending love and prayers 🙏 ❤

  • @kimhickman9210
    @kimhickman9210 9 месяцев назад

    I’ve done the grocery train with me in my wheelchair.

  • @Myearthfamily
    @Myearthfamily Год назад +4

    How awesome to have his fun Aunt for a nice long visit & a great help for you guys. I see so much more movement & so vocal yay!🙌🏼❤️

    • @pleasesavedamian
      @pleasesavedamian  Год назад +1

      Thank you so much!! I think so too, it is SO encouraging to see his strength slowly start to build!! 💙💙💙

  • @grandmas.3335
    @grandmas.3335 Год назад

    Just found your channel and wondering where is your husband with all the help you need with this beautiful little boy?

  • @AnnetteEason-of6wp
    @AnnetteEason-of6wp Год назад +1

    I want to know when did you find out that Damon had a disability

  • @maranathacomelord7115
    @maranathacomelord7115 Год назад +3

    I'm so sorry, I wanted to watch your video so badly but I couldn't hear your voice over the music. People with. Hearing problems can't have back ground noise like that. Anyway my daughter sent me here to check your channel out. Well I'll pray .

  • @__XxBananaxX__
    @__XxBananaxX__ Год назад +1

    Please look up Dr Robert Morse 💕

  • @janice7425
    @janice7425 Год назад +2

    Why the loud distracting music? Can’t watch this.