How to change a G-Tube Button 💙 Feeding Tube Life
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- Опубликовано: 17 июл 2024
- Damian has been using his G-Tube for a little over a year now and with Damian's weakening muscles (including the muscles we use to swallow food), we have now become completely reliant on his G-Tube for Damian's nutrition. I'm SO GRATEFUL we live in a time where having a feeding tube is an option.
I could go on and on about the benefits we've gotten from his G-Tube, but this video is mainly focused on one aspect of G-Tube maintenance: changing the button itself.
I'll admit it was really intimidating at first, but I'm happy to report it gets easier every time (for me and for Damian)!
As always, I'm open to any and all questions! And stay tuned... prep for our next big fundraiser is airing on this channel soon!
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💙ABOUT DAMIAN💙
Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to raise the $3 million needed to expedite the development of treatment and save his life.
Please help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you 💙
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💙 PLEASE HELP 💙
GoFundMe: gofund.me/24dc59ae
Blog & More: www.SaveDamian.com
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💙 AS SEEN IN THIS VIDEO 💙
Kate Farms Pediatric Vegan Formula: www.katefarms.com
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0:00 - Intro
0:28 - Supplies
2:10 - QC the new button
4:15 - Remove the old button
5:15 - Insert the new button
6:22 - Test the new button
8:04 - Using the feeding tube
10:22 - Fundraising update
Damian is such a handsome boy. Prayers to you and to him. Thanks for sharing his story.
Damian is a brave and cutest little soldier, lovely to see you and your mum.
Thank you so much!! 💙💙
Hi from a friend in S.W Ontario Canada. Damian certainly is a cutie.
You are amazing💙 with Damian. It's fantastic how you are so "intuned" to Damian's communication cues.(Ie eye gaze, vocal sounds, facial expressions, body language etc.)
I worked with children with Special Needs and their families, Watching your videos brings back many memories of the children I worked with.
Take care and make sure that you get some breaks and supports.
Damian is an absolute champ! And you're doing amazing, mom!
Damian is a total pro :) 💙💙💙
You are such an amazing mom to such an amazing boy!!! Such inspiration to so many. God Bless you always!!
You are so kind, thank you!! 💙💙💙
Damien inspires me every day to keep on going to see how sick he is and also to see how strong he is I’m blind and also I have cerebral palsy no it’s nowhere near as severe as him. However he still makes me realize that so many people have it worse than me thank you for sharing Damien‘s life and just thank you for letting me know and letting the world know that happiness is possible to spite the negative turns in life. could you please do a video letting people know like what type of formula Damien uses and how you prepare it and also how you give Damien his medicine if he takes any I would really love to know that. thank you :-)
Thank you so much for this 💙💙💙 Damian has always had such a naturally positive attitude and it gives me so much strength! Your words mean the world to me, thank you. Love the suggestion for a future video!! I'll get to work on it! :)
Just curious. He always curls his legs up. Is this due to muscle tone? Just curious.❤❤❤❤Love this little guy❤❤❤
That's exactly right, especially in his feet. When people don't walk or stand, the muscles tighten and they naturally will pull in like that. The same goes with hands/wrists (they will naturally go into a kind of "T-Rex" pulled-in position). We do a lot of stretching in therapy and at home as well as wearing ankle braces in order to counteract the stiffness and it helps a lot! 💙💙💙💙 Thank you!! 💙💙💙
What is Damian dealing with
Damian has a rare genetic disease called Acid Sphingomyelinase Deficiency (ASMD), which is a metabolic storage disorder. It causes a fatty lipid to store and build up in his cells instead of getting broken down. We’re fighting for lifesaving treatment right now 💙💙