Damian has been on the experimental drug for 1 MONTH!!! IS IT WORKING???

BLOG POST: www.savedamian...
As promised, here is our 1-MONTH REPORT!!!
As of May 22, Damian has been on the experimental treatment intended to stop his brain deterioration for 1 whole month! Is it working yet??? I think so - but just to be more scientific about it, I've designed an assessment of activities that Damian will do every month and hopefully the comparison of Damian's behavior month-to-month will show *indisputable progress*!!!
The blog post linked above correlates with this video, as there are some notes I've made that didn't really work in video format. THANK YOU ALL FOR BEING HERE, for cheering us on, and for continuing to help us raise the funds needed quickly for the FINAL TREATMENT we need!!! 💙
________________________________________________
💙ABOUT DAMIAN💙
Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to expedite the development of treatment and save his life. Please help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you 💙
________________________________________________
💙 LINKS 💙
GoFundMe: gofund.me/24dc...
Blog and More: www.SaveDamian...
________________________________________________
💙 AS SEEN IN THIS VIDEO 💙
Tinukim iFeed Self-Feeding Bottle: amzn.to/3ukTkCp

[@keltziewestra2937]

Sweet boy! Praying for continued progress!

[@pleasesavedamian]

Thank you so much, Keltzie!! 💙💙💙

[@jaredmarkham7300]

The little man is a trooper and and it is amazing to see the these improvements.

[@pleasesavedamian]

Thank you JJ!!! I'm hoping and praying next month will be even better!!! 💙

[@marilynboyd9892]

I love that you guide his hands or do hand over hand. He is so adorable. ❤️Great job!

[@leighanunnally3318]

Love him so much 💕 I have felt like he's been more vocal in your story time videos so I'm glad he is actually being more vocal and I'm not crazy 🤣

[@pleasesavedamian]

Ahhh I LOVE hearing that, thank you!! 💙💙💙

[@wendyhoward2699]

Great! He is so precious! Blessings.

[@malloryknox1637]

Am I like the only person like verbally cheering for this kid watching him achieve these goals? Very impressed with u kiddo keep up the good work!

[@roxanecolburn4246]

Yay! Wonderful news! 🙃💙💙 What precious laughter! 😊

[@pleasesavedamian]

Thank you!!! I'll do anything for that laugh! 💙💙💙

[@kimcheek8027]

There’s nothing more joyful then those happy baby giggles and babbles! ❤

[@lesliekriel6498]

Fantastic. Prayers to you guys

[@pleasesavedamian]

Thank you so much, Leslie! 💙

[@Myearthfamily]

Praying 🙏 this continues to help improve his growth and development and that miracles upon miracles happen in him 💙

[@pleasesavedamian]

Thank you so so much! 💙💙💙💙

[@jeanettejackson1315]

What an improvement, he doing an amazing job and working so hard. He is such a lovely boy. Keep going Damien, you can do it and your mum is amazing.❤

[@jessicam1658]

Keep it up Damian!!!

[@louisanuffergreear830]

We love you!!! 💙💙💙💙

[@pleasesavedamian]

We love you back!!! 💙💙💙💙

[@kristi.kervin]

8:42 it looked like he was copying you hand gestures! He was watching your hands very intently then mimicked your movements 🤯🤯🤯 then at 8:58 his little wave when you waved and said goodbye melted my heart 🥰🥰🥰

[@jennhewko1491]

Seeing improvements

[@ljune7188]

💙💙💙

[@pleasesavedamian]

💙💙💙

[@donnajeancassell8694]

💙💙💙💙💙💙💙💙💞💕👍

[@jmckphotography]

💙💙💙

[@pleasesavedamian]

💙💙💙