Heroes and Hope: Living with ALS
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- Опубликовано: 3 май 2012
- Brian Savo and Christine Venslovas both have Lou Gehrig's Disease but that doesn't stop them from living their lives and inspiring the people around them. This is a student documentary by Brian Reilly, Gerry D'Apollo, Justin Masse, and Jon Kokosa. Thank you to Brian, Christine, their families, the ALS chapter of Connecticut and everyone who helped us in making this film.
I am so inspired by this. I was diagnosed with ALS four years ago and still going strong. SEEING this has giving me inspiration. I am so glad your doing well. I can live longer than the 5yrs
Keep Fighting! My dad was only supposed to live 6 months with ALS but ended up living 16 years. Out of those years, I don't remember seeing him as healthy as you look because I was too young. He passed away 3 years ago (my senior year of H.S.) My advise, take advantage of every moment you have. Make memories with your wife and kids and take as many pictures, videos, and write as many letters as you can. Life's too short to not make the most of it! Thank you for all the help you've done with ALS!
Brian Savo is still doing great as of 2019! Very inspiring indeed.
Is this gentleman still going strong
Surely this means he likely has MS then rather than ALS ? Many are misdiagnosed.
You Should Google Brian Savo. He is my dad, he has ALS, he is also very inspiring in every thing he does!🤧
Michael Savo Thank you ! I looked him up and he’s an inspiration !
Michael Savo.
Thanks. Hope your dad is keeping strong and well. Has anyone mention your dad looks like actor Al Pacino? God bless your family.
Devastating to watch so many that has ALS. Hope for a cure as soon.
Hero
Will
Do!!!! Thanks
Every reason to be exceptionally proud,god bless you and your family Michael.
To my great dad brian savo I love you so much love your daughter xoxoxo!!!!!😘😘😘😘😘I'm very sad fir him 🤧🤧😔
For him
When I was diagnosed I cried all time like now watching the others with Als. I am 62 years old.
Grizzly Bear.....I'm going to report you. You are vile, cruel and disgusting, and troll video stories of people putting their life and journey out there while struggling with terminal illnesses. You are seriously sick and need help. This is the second ALS storyline where you ask the question..."Are you dead yet?" I will pursue you. In the meantime, go away!!!
Grizzly Bear....I just reported your comment and it has been removed.
@@denisemontgomery5600 I can still see his nasty comment.
@@denisemontgomery5600
His comment has not being removed. Hes so heartless
@@denisemontgomery5600 When you report a comment, it only is hidden to you.
My dad had this disease when I was 12...it didn't take long for him he died within a year when we found out that he had ALS...at that time I was too young and I didn't know anything about this disease now I am 25 and when I look at the video's on youtube and I read information about it. It's ripping my heart. Don't give up you can beat it!!!
So sorry for your loss. Is really tough to watch those who are suffering from ALS.. Breaking me to pieces
Brother Brian Savo is the most inspiring Human Being I have ever known... SMIB,
My Dad had ALS with bulbar onset. He lived about 5 years. He was in his 70’s when he was diagnosed. It was a living hell for him the last 2 years. Mom, my sister and I took care of Dad 24/7 at home for over 2 years. He passed in 2003.
God Bless you and your family.
hello guys I love my father plz help support ALS this is Brian's. daughter
my mom passed away before 3 days due to mnd rip mom I will miss you
Sending love to you all
keep fighting keep strong don't give up
Keep fighting,stay as strong as possible, know that god loves you and he's always with you
That cat sure likes that kids hair...lol
Rip Christine god bless you.
I would suggest googling Christine Venslovas. Someone with that name and ALS, I found a link about 8 entries down the page.
Keep Fighting! My husband is the same way he does not let that stop him on hi day to day living. I guess being in the marines plays a big part in that
I have a similar disease called ataxia. I can't walk and MANY other things. You see all these videos/stories and the people have kids and/or spouses. BUT what about when you are 100% alone? You never hear about that. It's hard.
michael, i am alone and i have als. not just alone, i am taking a care about baby and school girl 1. grade. they live in different cities...
c'mon! i am alone, too! i dont even think of wheelchair. Diagnosed 09/17, onset spring/2015. still walk...
Michael Rooth I am so sorry and God bless you and keep you safe..I care...xo Hydie ❤❤
ALS and hope are mutually exclusive. If there's ALS, there's no hope.
Hogsworth. You can't steal others hope. Its theirs. Once it exists in their heart, even if momentarily, it is hope. Hope belongs to the person who believes in something bigger then you. I'm sorry you are trapped.I hope for you.
why do you say this? I have ALS and have you for hope?