ALS patient Kyle Connors, wife Katie on life with the disease, helping others

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  • Опубликовано: 23 ноя 2024

Комментарии • 79

  • @donnahague8983
    @donnahague8983 2 года назад +6

    Rest In Peace Kyle… (January 15, 2022)… Fly high… you are now whole again… Condolences to your family… 🕊🤍

  • @krisdinajutras2433
    @krisdinajutras2433 9 лет назад +12

    God Bless You Kyle and Katie. It's so sad to see someone so young having to deal with this awful disease. With still so much life ahead of, and then to be given new's like this. my heart breaks for you and your beautiful wife, and daughter's.

  • @robertscott8370
    @robertscott8370 6 лет назад +13

    Unfortunately - I've seen as a nurse working in a large hospital more cases of neurological symptoms mimicking the same issues that you have presented with no two pathways are the same. One positive aspect of slowing the progression or declining mobility is when the person continues to focus on the greater of the good. I hope one day soon a cure will shine on you sooner than later..

  • @lisarowe2891
    @lisarowe2891 4 года назад +3

    My husband had Mnd in 2001 and I feel for you. You are inspirational. Keep the awareness of this awful disease going. I hope and pray every day for a cure .

  • @mcqueenx75
    @mcqueenx75 4 года назад +3

    I know a guy that I kinda grew up with in the school days, played football with him in middle school and high school, and he was a captain for the varsity team back then. He went on to play for a famous college and then was shortly picked up in the NFL. His career, his dreams was cut short thanks to ALS. It's not easy seeing people begin to lose their form. My mother died from something similar. Progressive MS.

    • @ttlola5515
      @ttlola5515 3 года назад +1

      Sorry for your loss

  • @andymcgovern6615
    @andymcgovern6615 3 года назад +1

    I wish you well Kyle. Long-time survivor in Ireland. Andy ~

  • @AARTI393
    @AARTI393 4 года назад +11

    I’ve noticed that injury often triggers ALS.

    • @bms77
      @bms77 4 года назад +8

      Yea I’ve noticed a lot of “active” people (sports players etc) seem to get it.. thats an interesting point you bring up.

    • @DavidCunningham65
      @DavidCunningham65 3 года назад +2

      @@bms77 I had a typical disc fusion and a couple of years later got ALS - its beginning to be talked about

    • @janietyler3815
      @janietyler3815 3 года назад +1

      @@DavidCunningham65 my friend was just diagnosed ,he broke his collar bone and fingers after a bike fall ,late last year ,and lost most use of left hand and arm ,not healing ,then Right hand started freezing up he couldn't grip nothing ,now in hospital ,can't use his arms or hands now and trouble walking with a walker and help ,I believe the bike wreck triggered it .He was pretty healthy and strong before the bike wreck.I hope you are doing as well as possible and prayers up👍❤️

    • @GMHG777
      @GMHG777 2 года назад

      @@DavidCunningham65 very sorry to hear that hopefully you are still with us !?!

  • @keestaruiz2216
    @keestaruiz2216 3 года назад

    Praying for the family God bless you all

  • @rachelseel4618
    @rachelseel4618 4 года назад +2

    Beautiful couple.

  • @solomonasolomona693
    @solomonasolomona693 6 лет назад +2

    God bless your family

  • @ericaaubie860
    @ericaaubie860 3 года назад

    Dont give up!! Keep fighting! God will help you get through this!!

  • @temamarshall92
    @temamarshall92 7 месяцев назад

    So sad….seems like some who did the ice bucket challenge, was diagnosed with als shortly after. I have heard similar stories .

  • @wesharrington5937
    @wesharrington5937 2 месяца назад

    This Disease is heart breaking , as any disease is, I guess its that there is just no real therapy for ALS so far maybe AI will speed up a cure

  • @annetteslife
    @annetteslife 7 лет назад +5

    I think he has the same version of ALS as Steve Gleason and Stephen Hawkings

    • @og9839
      @og9839 6 лет назад +2

      Yes, he said he had the slow progression type

    • @4dchessplayer516
      @4dchessplayer516 4 года назад +2

      no, Steven hawking had a version no one really has, where it complexity stopped progression

    • @annetteslife
      @annetteslife 3 года назад

      @@4dchessplayer516 thank you

  • @mavischadwick6445
    @mavischadwick6445 2 года назад +1

    Thanks so much Dr Alaho Olu on RUclips first of all for who you are as a person thank you for the wonderful work that you do for people in general no matter where you are I will always listen to your podcast and refer people to you because you care about people and the human body I listen to other people but you talk about the true disturbances disorders that means things that are out of order in the human system thanks 🙏 for curing my Amyotrophic lateral Sclerosis disease (ALS).

  • @emonsvlogtv1735
    @emonsvlogtv1735 4 года назад

    How he reverse the ALS??

  • @ghirardellichocolate201
    @ghirardellichocolate201 3 года назад

    Apply some NE nail lacquer on your chin.

  • @_DrDrakeRamoray
    @_DrDrakeRamoray 5 лет назад +2

    I bet this guy isn't around anymore.

    • @applejellypucci
      @applejellypucci 5 лет назад +5

      Still alive, found his Twitter account. twitter.com/kylemace22

    • @firebellymel5557
      @firebellymel5557 2 года назад +1

      He died jan 2022. He fought 7 years.