ENS Victim | Dory's Story

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  • Опубликовано: 2 июн 2024
  • On March 21, 2019, mere months after undergoing what wsas supposed to be a routine nasal surgery, 57-year-old first-time grandmother-to-be Dory Lodge took her own life following an accelerated battle with horrifying ENS symptoms. In this sit-down interview, Dory's grieving daughter, Maria, shares Dory's journey with ENS.
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Комментарии • 447

  • @jefft9437
    @jefft9437 9 месяцев назад +24

    I was gonna get surgery but then found out about this. Her story may have save my life. Her story and life did not go in vain.

    • @LexaTerrestrialx
      @LexaTerrestrialx Месяц назад

      GOOD! I have ENS & didn't have the heart to watch it. I hope my story shows that you can try to heal & thrive. I speak out at every show & I am glad so much progress has happened in the last 4-6 years.
      I am so glad people are aware & speaking out.

  • @mariamurray3959
    @mariamurray3959 3 месяца назад +14

    I cancelled my surgery thank you for saving my life

    • @user-de3yx2lt2x
      @user-de3yx2lt2x 7 дней назад

      God loved you that’s why you came and seen this video before ruined your nose, never do nose surgery,
      I did 5 weeks ago in Turkey ruined my nose with one nostril big and one small and very bad angle from left nostril to the tip.
      Please don’t do that,
      And also did on me radio frequency turbinate 😢I didn’t know about that I lost my peace my happiness my everything 😢😢😢

  • @k-3402
    @k-3402 4 года назад +114

    When I complained of air hunger during a follow-up appointment, my doctor got really defensive and suggested that I had underlying psychiatric issues. Our medical system is beyond broken and corrupt, and it's on all of us to change it. RIP

    • @sandyvirlo7797
      @sandyvirlo7797 2 года назад +1

      What procedure did u have done on ur turbinates?

    • @jamesdonald3521
      @jamesdonald3521 2 года назад +1

      very common, actually to be expected

    • @brithegoddess
      @brithegoddess Год назад

      What a shitty doctor. I hope you switched.

    • @TerrenLiberte
      @TerrenLiberte Год назад +2

      ​​@@sandyvirlo7797 . Il n'y AUCUNE bonne procédure à faire par chirurgie ni par chimie!
      Il y a des solutions NATURELLES mais ne vous faites jamais toucher l'intérieur de votre nez!

    • @Nan-59
      @Nan-59 Год назад

      @@TerrenLiberte I have had actually my treatments worked on, but it didn’t actually work. I’m supposed to have it done again in my nasal septum realigned because it’s off. But now that I know about this nasal syndrome, empty nose syndrome, I just don’t know if I want that now.
      Are use a decongestant and maybe I’ll just continue on with that. I’m 64 and I don’t need anything more bad happening to me before I die.

  • @cesarmolina2328
    @cesarmolina2328 Год назад +24

    Thank you for sharing your story. You saved a lot of people from making the same mistake. God bless your mothers memory. She did not die in vain

  • @prichards7781
    @prichards7781 3 года назад +79

    This is me. I suffer from severe ENS after having what was described as a routine surgery, a septoplasty and turbinate reduction/resection in March 2020. I suffer every minute of every day since then in a never ending cycle of horrific nasal dryness and complete loss of functionality of my nose. My nasal mucous lining was cut and cauterized. As a result, my nose does not warm the air, it does not humidity the air. It does not filter the air. The air I breathe is cold, dry and painful. I cannot sleep. My body jolts awake every few hours. I am trapped in a nightmare that never ends and my surgeon dismissed my complaints, saying “Everything looks fine.” It is almost one year later with no improvement. This horrific, surgery has destroyed my quality of life in every way. Empty Nose Syndrome is real. Do not allow anyone you love to get a Turbinate Reduction. Thank you for sharing your story. I am sorry for your loss.

    • @marvinw8906
      @marvinw8906 3 года назад +3

      Hello how are u now? What said your doctor to you about this?

    • @ashleywilliams4149
      @ashleywilliams4149 2 года назад +6

      Do you fast? I was learning from one guy who has it that he eats one time a day and sometimes skips to two days. He also takes a bit of raw garlic. He said this has helped him tremendously. He said the tubernates are damaged and that restricting eating, especailly processed foods has helped keep the inflammation down. Just sharing.

    • @Backwardsman95
      @Backwardsman95 2 года назад

      Have you contacted Dr. Das in Columbus, Ohio? Their advanced sinus center is one of the only places correcting ENS

    • @sandeepgarcha4980
      @sandeepgarcha4980 2 года назад

      Please don't give up it usually takes a year for it to settle down. What procedure did these stupid doctor have on your Turbinates? These suckers should not use any heat in nose. It is the heat that is destroying Mucosal Sensory Nerves.

    • @Enlightenment78964
      @Enlightenment78964 2 года назад

      @@sandeepgarcha4980 Hello sir I have a question. I cant find the previous reply you have written to my reply. My question is, do you have to let the doctor know what method you want your turbinates to be reduced with(cauterization, SMR, etc.) on the day of the procedure or do you have to let them know before hand? Because in my case, my ENT did not go over which specific procedure he will use for my septoplasty/turbinate reduction. All I know from reading the procedure schedueling form is that both procedures are outpatient.

  • @onewithnature8435
    @onewithnature8435 Год назад +33

    This is so sad. I just saw an ENT today and he told me I have a deviated septum. Then he recommended surgery to fix my issue. So I came to youtube to do some research, and thankfully I found this channel. I will not get surgery because of this devastating story, and everybody's comments. Thank you so much!

    • @steffanyarriaga8686
      @steffanyarriaga8686 Год назад +6

      Same here. Deviated septum and can only breathe properly out of one nostril. But because of this condition, I will not risk it… scary stuff. Most of the human population can’t breathe properly anyways.

    • @onewithnature8435
      @onewithnature8435 Год назад +6

      @@steffanyarriaga8686 I recommend reading the book Breath by James Nestor. It talks about why we should breathe through our noses and not our mouth. By breathing through my nose, my nasal airways have expanded and it's much easier to breath through my nose. good luck-

    • @simplymary314
      @simplymary314 Год назад +2

      Same! I just saw an ENT yesterday. I don’t think I’m having it done!

    • @onewithnature8435
      @onewithnature8435 Год назад +6

      @@simplymary314 I have been concentrating on keeping my mouth closed and breathing through my nose. This has increased the diameter of my nostrils, and I can breathe much better through my nose now. Mouth breathing is very unhealthy. Good luck-

    • @kazman_6899
      @kazman_6899 5 месяцев назад +1

      ​@@onewithnature8435 Who can't breathe through their nose? Before my injury, I'd never even heard of it.

  • @bruhbun
    @bruhbun Год назад +10

    I just found out about ENS. Its absolutely tragic and horrific. The way Dory was treated is absolutely unacceptable

    • @dougferguson2563
      @dougferguson2563 Год назад +3

      Medical gaslighting at it's worst. Sadly many who have had surgical turbinate Injury/Ens are shunned away by brainwashed ENTs who thinks toying with essential organs is scientifically sound. Attorney firms and legislators should be more aware of what's going on as these cases will continue to increase. Patients who have no idea how complex turbinates are to the human body are the main targets.(General population has no clue what turbinates even are). What's worse is that these surgeries do not address the root problem and can have long term devastating injuries that cannot be reversed. They are even marketing these dangerous procedures to children. How sick these monsters are. All in the name of "health care" and keeping ENTs busy doing unecessary non essential procedures for the sake of $$$.

    • @bruhbun
      @bruhbun Год назад +2

      @@dougferguson2563 facts

  • @muckraker610
    @muckraker610 10 месяцев назад +11

    I am so sorry this happened to your family. In this day and age, (2023) it is widely known, by physicians, that this is a procedure that is best avoided, if at all possible. For *them* to virtually guarantee your mother that there would be no side effects, is [to me] unconscionable; Then to disregard them, when they arose. Your message will help countless others, and thus, some good will come of your mother's passing. Thank you so much for posting it.

  • @ButterMyWafflez
    @ButterMyWafflez Год назад +11

    I have this and no one is taking me seriously. Losing hope in life

    • @Loujine
      @Loujine 3 месяца назад

      How are you feeling? Did your symptoms get better with time and after the initial healing phase?

    • @ButterMyWafflez
      @ButterMyWafflez 3 месяца назад

      I had injections to bulk up my turbinates that helped but doesn’t last long.

    • @mares3841
      @mares3841 2 месяца назад

      Hypnotism ?

  • @msrealestate
    @msrealestate 4 года назад +38

    OMG my son isolated himself as well. Didn't want us to know how bad it was.

    • @darrinsiberia
      @darrinsiberia 3 года назад +7

      I think I've been doing this for going on 17 years and never knew why. I just always preferred being alone. So I can spend all day rinsing my nose, eating weird foods, doing weird yoga poses in my bed trying to stretch my head and neck and release the tensions that my nose causes me. ENT seem to dismiss me like I'm a "princess and the pea" situation. I am NOT. I go through so much that nobody will EVER know. ringing ears. constant tightness in my head. Well this lockdown has given me the chance to really focus on this and go to the ENT. I've gone for 3 visits and it's always just kind of routine prescriptions like "try flonase." Like I've done everything already so I suggested surgery. The ENT says I could do a turbinate reduction and rhinoplasty. Well now all these videos are keeping me up and it seems that messing with the turbinates is just bad news!

    • @ashleywilliams4149
      @ashleywilliams4149 2 года назад +1

      @@ainisis Thanks for sharing.

  • @Storkystormbird
    @Storkystormbird 20 дней назад

    They wanted to do this to me for chronic sinusitis glad I found this community and never had it done.

  • @Bgirl7020
    @Bgirl7020 Год назад +11

    Re-title this as: (Turbinate surgery. Ear nose and Throat. )Others who do not know of this will be able to discover and see it.

  • @azizulhakimsiam9486
    @azizulhakimsiam9486 Год назад +11

    I am crying literally.... So sorry for u and ur family

  • @anthonyaddario4653
    @anthonyaddario4653 11 месяцев назад +9

    I found out about ENS after my septoplasty turbinate reduction and polyp removal surgery
    Thankfully I’m breathing and sleeping 1000x better.
    I’m sorry for the people suffering from this
    But for me it’s been a life changing procedure
    Good luck everyone

    • @adelinad3513
      @adelinad3513 9 месяцев назад +1

      One of thousands?

    • @reefytide
      @reefytide 7 месяцев назад

      What surgery method did your surgeon use

    • @ClassyNasty
      @ClassyNasty 4 месяца назад

      Any Updates?

    • @anthonyaddario4653
      @anthonyaddario4653 4 месяца назад +2

      @@ClassyNasty hey! So far it’s been great I have allergies so I need to do a sinus rinse twice a day and take allergies meds
      But it’s been wonderful. Before I couldn’t breath through my nose at all I was a chronic mouth breather lol
      Now I sometimes just sit and enjoy breathing’
      I sent my ENT a thank you letter for Christmas.
      Good luck if you end up getting this

    • @lisar9353
      @lisar9353 21 день назад

      @@anthonyaddario4653 Hi Did you have any dryness in your nose? I still have dryness and its been 5.5 mos post op

  • @saturnin002
    @saturnin002 3 года назад +13

    Today I read an article in Huffington post by a guest writer regarding ENT syndrome. I now know what has been plaguing me for the last ten years since I stupidly had the surgery. This is me. everything described is happening to me. An unending nightmare. A surgery that made me a slave to it. The dryness, the eye irritation, the dehydration, the gasping for air, the sinus full feeling, the forever nose infection, the dizziness, the lack of sleep, the constant feeling of fight or flee, the high stress and anxiety. Been to other ENT and told its all me, go see a psychiatrist there's nothing wrong here. Considered suing the surgeon but all ENT band together to deny they did anything wrong. I now sleep with my head elevated. having known I would've left it alone content to use nasal spray once in a while.

  • @slavasokol6270
    @slavasokol6270 8 месяцев назад +3

    I am so very sorry for your loss. I got ENS after septoplasty, I had no idea before what turbinate redaction was, now it’s living with constantly dry nose with sleeping pills and lots of crap to curb inflammation always worrying about the environment. I wish your mother would have come across the ENS community on fb, it was my only salvation to realise I was not going crazy as doctors would just dismiss me. Again very sorry and thank you for raising awareness.

  • @sandywhat2429
    @sandywhat2429 4 года назад +19

    Tragic. My condolences to the family.

  • @mares3841
    @mares3841 2 месяца назад

    Thank you for sharing with us. Sincere condolences 😞🙏

  • @TommyLane
    @TommyLane 4 года назад +15

    I’m very sorry for your loss. ENS is a terrible iatrogenic condition.

    • @kaya2939
      @kaya2939 Год назад +1

      How are you doing ?

  • @signlanguage7624
    @signlanguage7624 2 года назад +12

    These Doctors and surgeons egos are the worse! They believe that they are never wrong! God understands your mothers suffering even if none of these in compassionate doctors didn’t. May she Rest In Peace!

  • @stanwest2972
    @stanwest2972 4 года назад +20

    Barbara, thanks a lot for being ENS journalist and give these stories to public. It's a pressure and pain when relatives tell about it...But all the people should know that, about AR, about ENS. My prayers for Dory, R.I.P

  • @Yomamas824
    @Yomamas824 3 года назад +14

    ENS has ruined my life

  • @TraciWithAn-i
    @TraciWithAn-i Год назад +4

    That’s so heartbreaking 😢

  • @elisphin810
    @elisphin810 3 года назад +4

    Deep condolences to doloretta and her family may her soul rest in peace

  • @AnointedLiege
    @AnointedLiege 4 года назад +16

    I am so sorry for your loss. I am so sorry the healthcare system has failed you and your family

    • @svetlana4759
      @svetlana4759 Год назад

      Healthcare systeem fuc….n in Belgium also!!!!

  • @marknasri3490
    @marknasri3490 4 года назад +11

    sorry for the family

  • @piamcdowell1
    @piamcdowell1 4 года назад +51

    Most of us were fed the same lie...everything looks good, it is you, you have anxiety and/or depression. See a psychiatrist. It is YOU. When is this going to stop??

    • @davidn.2555
      @davidn.2555 3 года назад +3

      My ENT Doctor was talking to me about turbinate reduction surgery because I can't really breathe with my nose properly. I asked him about ENS and he said oh well it's related to psychiatric patients and is controversial. He also said that doesn't happen when you don't take the whole turbinate out.

    • @piamcdowell1
      @piamcdowell1 3 года назад +10

      @@davidn.2555
      Don't believe him. Trust me. They are washing their hands from the damage they are causing

    • @davidn.2555
      @davidn.2555 3 года назад +2

      @@piamcdowell1 what do I do to shrink my turbinates without surgery? I've tried almost everything from sprays to humidifier to sinus rinse

    • @piamcdowell1
      @piamcdowell1 3 года назад +6

      @@davidn.2555 I'm not a doctor so I can't advice you what to do, but if you have inflammation you need to find the root of the problem. You need to see a good allergist and stop all dairy, gluten and any foods that might trigger inflammation. If you use sprays they have a rebound effect making congestion worse.

    • @ashleywilliams4149
      @ashleywilliams4149 3 года назад +8

      Never. Medical people/institutes are complete narcissists and gaslight you and society. They are doing the same with condition called Morgellons disease. They call the people delusional.

  • @Anthony_Spilotro
    @Anthony_Spilotro 2 года назад +7

    She was beautiful. So sorry.

  • @johndeal4381
    @johndeal4381 3 года назад +27

    Is this the Twilight Zone? This story sounds just like what happened to me. I almost took my own life 5-6 months after surgery. I went out and cut grass with a push lawnmower to exhaust myself. I spent many weeks in mental hospitals, taking antidepressants and antianxiety meds. I went from doctor to doctor trying to find a resolution to the empty nose symptoms. It's so demeaning to be labeled a 'head case when the ENT has ruined your life. I had the surgery in 1994 at the age of 38. It ruined me. I went on disability for depression and couldn't work or concentrate. I will be 65 in January. I can't
    believe I'm still alive. It's a terrible condition to live with. I can understand completely why Dory took her life. God rest her soul.

    • @Souravsp09
      @Souravsp09 3 года назад +3

      Are you Recover from ENS

    • @johndeal4381
      @johndeal4381 3 года назад +8

      @@Souravsp09 NO. I'VE JUST LEARNED TO COPE WITH IT WITH PSYCH MEDS AND DISTRACTION.

    • @Souravsp09
      @Souravsp09 3 года назад +3

      @@johndeal4381 happy to hear about it..you are true fighter..🙂

    • @danielsalvador8232
      @danielsalvador8232 3 года назад +2

      What surgery did you have? do you still have some of your turbinates?

    • @johndeal4381
      @johndeal4381 3 года назад +5

      @@danielsalvador8232 Deviated septum. I had inferior turbinates removed.

  • @marknasri1201
    @marknasri1201 2 месяца назад +1

    sorry for the loss

  • @geoffb641
    @geoffb641 4 года назад +41

    So tragic. I can relate to every word. Every day is so hard. Depression is a secondary effect. The only people who know about ENS are the sufferers. We need the world to know. Media needs to let the world know instead of making "mountains out of molehills" in other issues.

    • @SuperNino111
      @SuperNino111 3 года назад +1

      have congestion start in january,thinking am only sick,using decongestant,maybe 20 days,then go to doctor,on scaner i have sinus infection,but no headche,no other simptoms obly bloked nose,when in that time i using antibiotic its good but after stop same,then i keep using decongestant and go to 2,3 doctors,and last say i have vasomotor rinitis, who give me some therapy and tell me i need stop decongestant,but i dont use therapy,then in august when i need using decongestant on 3 hour,i feel so terible i go to private doctor,hw tell me alregic rinitis,he give me dymista spray, and some pils,and its bether,when sleep one side is bloked(doc say its normal),if other is good i can sleep,but its good because dymista spray,if not use some day i cant sleep,and need use nasal drip in one side 2,3 days and again is bether,and this doctor say i have alergic rinitis,and tell me to use 6 monts dymista(now i finish 2),its ok but i scare when finish i need again back to fuking decongestant, idk what i have and what is problem of congestion.On skin test am alergic on mites(but i have this when im child and dont have problem),and + new little on ambrosia and some grass.I by new bed,no carpet dont go to much outside.Dont know what is problem and have to much suicide mind and lose hope,but afret all video i dont do surgery.

    • @ainisis
      @ainisis 3 года назад +2

      Hello guys, I hope you pay attention to my comment and manage to share it or make it viral if possible, if it works for you as it was in my case, it completely changed my life in a positive way, forgive my English I am using a translator, to summarize I am a boy of 25 years of Venezuela, at 10 years of age I fractured the septum of my nose and it remained that way until approximately at age 18 I had surgery only on the septum, (I remember that before the operation my nose was dry, I did not have the tip of the greasy nose) = with this I want to tell you that the fat and oils of most things make your nose clog and not only the nose but also most of the mucous membranes of the human body with this I mean yes For example, you make yourself a moisturizing lotion on your skin, you are more prone to things sticking to you or, as in my case, you get more easily, at that time when I had a fractured nose, I breathed well even though I breathed more through a hole io than the other but due to the deviation of the septum but as I told you I had no fat in my nose and therefore the nostrils were moist (hydrated) and that helped me breathe well despite my fracture. Well, after I had surgery on the septum, when I was 18 years old, about 15 days later I had a dermatitis on the tip of my nose and I noticed how it turned red but I did not go to a dermatologist but instead I consulted the pharmacy for a medicine that I I would recommend for dermatitis because at that time and now in my country it was very expensive to consult a doctor with a dematologist in general apart from the medicines and I just what I had was not enough good in general I bought the medicine called betamethasone that I applied it to my nose and it removed the itching and the reddish color of the dermatitis but it was only for a certain time, well guys, as time went by I stopped using it and tiny scabs began to appear on the tip of my nose and spots black like excessive fat that was when my whole nightmare started from this point my nose and not only my nose but my hair my eyes my ears I could not see or hear well and they were extremely fatty, well and as time went by the lower turbinates of my nose swelled to the point of completely obstructing both nostrils and at 24 years old I had a diode laser operation that reduced my ears more on one side than the other and after the operation I had an immediate improvement but after a month they grew back and lasted until I reached a point that I breathed every day through my mouth and not because of my nose and I had serious problems memorizing resting affected my quality of life so much that it distanced me from everyone, my family and my friends, I had a completely miserable life, my brain was not oxygenated and I began to have blurred vision I did not listen well I forgot everything in short a total nightmare until one day I provided an ene pill that contains sodium bicarbonate and acetaminophen because I had stomach acid and had that good in what After I took one of those pills, I felt an immediate relief in my breathing and then I began to investigate why this happened and basically I found that bicarbonate is used for scabies or scabies, (it should be noted that he said that he treated it more it eliminated it ) then I found out that because of the dermatitis that I had on the tip of my nose it was not dermatitis itself but it was scabies or scabies and at that moment I bought a medicine that is the one that completely changed my life and I think that My opinion is the definitive cure for both covid 19 and the empty nose syndrome that is ivermectin
      since in what I took the first dose that were two pills of 6 mg = 12 mg every 5 or 8 days, I immediately felt that my nostrils were moistened at first as my nose was super stuffy I felt pain in the part where my lateral turbinate was reduced but then as the days passed I felt an incredible relief and by that I mean everything is say that my ears were uncovered, my vision improved, my memory improved, my breathing improved enormously and with respect to covid, the people who have more fat either because of scabies because it not only cures that disease there are others like it the posh and other parasites that are normally easily contagious and invisible, that is to say that if you do not do a thorough examination on your body you cannot know if you have it that means that anyone can have that and perhaps not in the nose but in the body or in the throat and it makes it difficult to breathe because of the fat, by this I mean that ivermectin as it eliminates the parasites and bacteria that produce that fat that makes your respiratory tract They cover or do not work correctly, in conclusion my life changed, gentlemen, today I take my 3rd dose of ivermectin and the improvement intensifies I hope everyone tries this medicine and any questions or clarifications I await your comments and doubts I will also indicate if they do not have the possibility of consulting a doctor as in my case how they can take it correctly I hope they try this medication and it changes their lives completely as my regards.

    • @davidn.2555
      @davidn.2555 3 года назад

      @@ainisis What's your email address?

    • @ainisis
      @ainisis 3 года назад +1

      @@davidn.2555 brayansosa18@gmail.com

    • @davidn.2555
      @davidn.2555 3 года назад

      @@ainisis Thanks. Expect my mail

  • @gailynaddis4140
    @gailynaddis4140 6 месяцев назад +2

    I'm so sorry for the loss of your mom and what happened to her. Thank you for sharing and saving others from this. You say that she got "nasal cauterization." What was the actual procedure? Septoplasty, turbinate reduction or both? Thank you.

  • @rueben3213
    @rueben3213 4 года назад +26

    Yes. The anti-anxiety meds paradoxically made it worse. I went through the same thing. It's a struggle everyday. ENS is terrible, it puts you in a strange, miserable, debilitating dark place. Pray for her family and all who still suffer.

    • @msrealestate
      @msrealestate 4 года назад +6

      I believe that it was the meds that led my son to take his life. There are black box warnings on them that they can increase suicidal ideation in young people.

    • @rueben3213
      @rueben3213 4 года назад +2

      Yes, and old alike. Went through severe benzodiazopine withdrawal. NEVER so suicidal, depressed and filled with anxiety. Add that to ENS,,,, it's a disaster. Sorry to hear about your son. Scott correct?

    • @mikeodee1164
      @mikeodee1164 8 месяцев назад

      the problem is anti anxiety meds cause nasal dryness any meds that cause nasal dryness will make a persons breathing worse if they have ens never take any meds that cause dryness example dry mouth keep the heat in your apt as low as possible heat in teh apt will make your breathing worse also use 2 warm mist humidifiers at the same time keep them away from your computers and tvs moving to south florida were there is alot of humidity will help most people with ens

  • @rez5
    @rez5 2 года назад +29

    I'm a 22 year old male, been dealing with this for almost a year now. Feels like I can never breathe. Hard to sleep. Every doctor told me it was a mental issue, but there's nothing wrong with me psychologically. I just want someone to help me breathe.

    • @blankspace7161
      @blankspace7161 2 года назад +6

      Same it's so sad I just started having 2 weeks ago and it's too hard already I can't believe I have to live to live the rest of the life like this I'm 20 year

    • @rez5
      @rez5 2 года назад +3

      @@blankspace7161 Getting an ENT appointment scheduled to see exactly why I can't feel any air on inhalation causing a suffocating feeling 24/7. Going to see if they give me any treatment options or if I have to do a follow-up with them and I'll let you guys know.

    • @akshaythakur9702
      @akshaythakur9702 2 года назад +2

      @@rez5 bro have you done surgery or not what happen with you

    • @akshaythakur9702
      @akshaythakur9702 2 года назад +2

      @@blankspace7161 bro whatsapp happen withyou same

    • @blankspace7161
      @blankspace7161 2 года назад +2

      @@rez5 how did it go?? I'm scheduled to meet my ent tomorrow, I'll see what she has to say because she was the one who did the surgery.

  • @music4ever4100
    @music4ever4100 Год назад +3

    This story is so sad. From the comments below it seems that a number of patients having the reduction are suffering after the procedure.

  • @teresiaqionibaravi6003
    @teresiaqionibaravi6003 Год назад +3

    I sympathise with your loss
    Beautiful to be gone but Gods gain.

  • @joyd4238
    @joyd4238 4 года назад +15

    so sorry for your loss...from a fellow sufferer 😢

    • @thinline8504
      @thinline8504 4 года назад +1

      oh. nooooo is it that bad : / sorry ..

    • @timcepin3386
      @timcepin3386 29 дней назад

      How many hours are you sleeping at night?

  • @piamcdowell1
    @piamcdowell1 4 года назад +8

    My heart breaks for you. Please understand that we were put in a situation where we have contemplated ending it all, for some on a daily basis. It is a struggle. May she rest in peace and I hope one day we get the justice we deserve.

    • @kaya2939
      @kaya2939 Год назад

      How are you doing ?

  • @ensaerodynamics8615
    @ensaerodynamics8615 4 года назад +59

    This was almost my fate as well. I lost the ability to sleep. Dryness pain and suffocation set in and worsened to the point where after 4 years of battling all of the same ignorance by the medical field I too was considering suicide. I went from an avid hiker to barely being able to walk up a flight of stairs without being out of breath. I too had to learn about Empty Nose Syndrome myself by finding it online. I went to multiple ENT doctors, I went for multiple sleep studies, I even went to the emergency room after I collapsed after trying to take a nap in 2012. I couldn't even stand up. Sleeping was not sleep as most people know it. It is a BEATING. Your own nervous system wears you down until your muscles are wasting away. My muscles felt like they were not even there or worse... like they were being attacked and eaten by something. There was no rest from ENS. The ignorance and hubris displayed by doctors in this field is horrid. There is NO protection for you as a patient. There are no limitations for these surgeries. They can do whatever they want to you. They perform extra procedures not disclosed and also different named procedures than what you agree to. It is common. They DO NOT UNDERSTAND THEIR OWN CRAFT! If they did there wouldn't be 3000 people on the facebook support page and several thousand others in other online groups with untold thousands of others struggling un-diagnosed. They don't know where your nerves are. Their schools teach 15 different ways to destroy turbinates but nothing about either rebuilding them or their function in autonomic breathing (while you sleep) They are mystified by instances of failure though there have been many! Studies have fully documented nasal sensation and feedback from the nose to the brain as driving breathing by deepening the inhale. Without this you sleep the sleep of the dead. Very shallow breaths that don't go anywhere. Your brain is in fight or flight mode not rest mode.E.N.T. doctors have no standards, their studies are conflicting and their organizations provide ZERO leadership. Any people that are left in the world who trust doctors, DON"T. Don't be ignorant. You probably think there is some large organization that oversees things and you are safe right? WRONG!! NO ONE GIVES A SHIT!!!! Not the American Medical Association, Not the American Board of Otolaryngology, Not the American Acadamy of Otolaryngology, not the ARS or American Rhinological Society. When you look into this, NOT ONE OF THEM claims any responsibility for setting any standards or rules. The A.M.A. is a lobbying group for...... DOCTORS! You can file a complaint but they have no power to pursue ANYTHING. They refer you to the A.B.O. who says "We just give tests", They refer you to the American Academy of Otolaryngology who says "We just write journal articles and suggestions". The A.R.S. says "We are just an educational Society..... well fucking great that is, but NO ONE IS IN CHARGE!!! This is a failure of education as their schools suck too. These guys have DECADES of shitty conflicting science and no standards for measuring much of any NON subjective data in their turbinate reduction studies on even the 3 basic functions of the nose such as humidification, warming, and filtering. No studies on sleep or cardio pulmonary function. Their turbinate reduction studies have basically been experimenting on humans. They cut stuff off, then they ask you if you can breathe more air through your nose. That is the extent of their science. Decades of these studies are non conclusive and conflicting. DO NOT TRUST THESE DOCTORS! This is an elective surgery. Try looking into food allergies such as wheat or dairy foods etc. Look into environmental allergies because once you get this It is 24-7 for the rest of your life! I work in Engineering and have done computer modeling so I did my own aerodynamics study after reading some that I found. My results matched their results. I published everything that I know about this surgically caused disease here: emptynosesyndromeaerodynamics.com/

    • @davidn.2555
      @davidn.2555 3 года назад +3

      www.abc.net.au/news/health/2016-07-22/empty-nose-syndrome-when-routine-nasal-surgery-goes-wrong/7652696
      Did you get the whole turbinates removed?

    • @davidn.2555
      @davidn.2555 3 года назад +3

      My ENT Doctor was talking to me about turbinate reduction surgery because I can't really breathe with my nose properly. I asked him about ENS and he said oh well it's related to psychiatric patients and is controversial. He also said that doesn't happen when you don't take the whole turbinate out.
      What should I do instead of surgery? I've tried almost everything

    • @darrinsiberia
      @darrinsiberia 3 года назад +2

      you gotta watch corbett report how big oil conquered the world... eventually it talks about how big oil took over the medical field and even re wrote the medical school textbooks. they made it all about drugs. it's a sad world we know live in. it's really truly sad and i am sorry for you and i pray for you.

    • @paulfunigga
      @paulfunigga 3 года назад +2

      Peter, thank you for your website.

    • @naegleriafowleri2230
      @naegleriafowleri2230 3 года назад +1

      Thanks i was thinking of getting baloon sinuplasty but not anymore fuck id rather deal with sinusitis. Do you know if the same could happen with polyps removal? I dont think so as i had them removed in 2010 and I didn’t experience any bad side effects or anything and they grow back anyway lol id rather just use nasal sprays or deal with congestion than doing these expensive ass surgery i got quoted like 5k for that baloon sinuplasty lmao

  • @marklewis9061
    @marklewis9061 4 года назад +19

    Such a terrible thing. I suffer from ENS along with many others. Very sorry for you and your family.

    • @marklewis9061
      @marklewis9061 4 года назад +8

      John Ferguson yes I had septoplasty/turbinate reduction In April 2019 it ruined my life. Severe nerve damage inside the nose and scarring

    • @williamfrom1930
      @williamfrom1930 4 года назад

      @@marklewis9061 I am so sorry. Are you sueing?

    • @marklewis9061
      @marklewis9061 4 года назад +2

      Going to try to sue. But attorneys refuse to take these kind of cases 95% of the time. They are extremely hard to win. Doctors are so well-protected. It’s just terrible.

    • @marklewis9061
      @marklewis9061 4 года назад

      S. Ann no

    • @mnboi1980
      @mnboi1980 3 года назад +1

      What can people do to help with the symptoms and manage by in life?

  • @Marinemom-ss8cf
    @Marinemom-ss8cf 4 года назад +34

    Interesting that she developed ENS after her nose had been cauterized. They must have burned into her turbinates somehow when they did the procedure. I’ve suffered with ENS for 7 years after what was supposed to be to fix my deviated septum but instead they cut out all of my turbinates out for no reason which I didn’t find that out until 5 months after my butchered surgery by going to another ENT and he found everything. Prayers being sent for the family of this poor victim . This is beyond devastating and heartbreaking to say the least. 🙏💔

    • @joyd4238
      @joyd4238 4 года назад +3

      have you found any help?

    • @Marinemom-ss8cf
      @Marinemom-ss8cf 4 года назад +2

      joy d unfortunately none at all 😭

    • @joyd4238
      @joyd4238 4 года назад +3

      @@Marinemom-ss8cf i didn't find out the truth till months later to, by having ct scan done, that my turbinates were cut...he lied the whole time.
      i suffered more damage then that also.😢
      There are things being studied to help, like stem cells, prp injections and implants.
      Sinus surgery stole our life🙈

    • @rishabhgautam9
      @rishabhgautam9 4 года назад +1

      @@Marinemom-ss8cf hey i hope you are doing well can you tell me what are the symptoms you are having

    • @rkn160
      @rkn160 3 года назад

      @@rishabhgautam9 can you give your email

  • @ashleywilliams4149
    @ashleywilliams4149 3 года назад +11

    I've heard of people killing their ENT doctors and I thought it was weird until I did research and found out about this. I wish everyone knew about ENT. I've been telling lots more people.

    • @ButtScootBJJ
      @ButtScootBJJ 2 года назад +1

      You’ve heard of people that got this procedure and killed their doctor as a result of ENS? If so, good for them. The doctor deserves it for ruining lives.

  • @SuzieQGirl
    @SuzieQGirl 9 месяцев назад +1

    How terrible!!! I had multiple nasal cauterisations as a child. I remember a substance being sprayed in my nostrils then a sparkler being inserted. The reaction when both substances came into contact was to burn and smoulder. Extremely unpleasant. I also had a cauterisation when I was 19. So sorry to hear of the suffering caused by ENS. 😔😔😔

  • @mehmetgundogdu6277
    @mehmetgundogdu6277 4 года назад +9

    As patients with empty nose syndrome we are expecting to have better cures

  • @jayp4114
    @jayp4114 10 месяцев назад +3

    May your Beautiful Mother be at Peace in the Lord's arms.

  • @qpol
    @qpol 3 года назад +10

    probably shouldn’t say this here but my turbinates absolutely hate me at night. i looked into why i was stuffy and found the turbinates. i was curious to see how the body reacts without them, and i came across ENS, so i think i’ll just leave them alone.
    edit: i just have messed up blood vessels in my nose

    • @Cbd_7ohm
      @Cbd_7ohm 2 года назад

      Same . I have this nasty gunk that keeps coming out of my right now every day and can't breathe. Could be allergies and/or an infection and polyps though. Either way it's annoying

  • @gaykingdome8064
    @gaykingdome8064 Год назад +5

    Doctors should find a treatment for ENS. That's very horrible thing.

    • @dougferguson2563
      @dougferguson2563 3 месяца назад +1

      They need to stop these procedures. That would solve everything.

  • @CaptainSpoonsAlot
    @CaptainSpoonsAlot 2 года назад +3

    have had congestion problems my whole life and was going to see an ENT, not now. no way. this poor women went through hell.

    • @mavarshosaz
      @mavarshosaz 2 года назад +1

      Change your diet. Remove dairies from diet. Do an IGG Elisa method blod test and remove the substances from your diet

    • @timcepin3386
      @timcepin3386 29 дней назад

      How many hours are you sleeping at night?

  • @mikes.4863
    @mikes.4863 4 года назад +30

    We have to change our view of medicine. I wish it was just ENT's wrecking lives, but this is a problem with all Western medicine. Our system is all about money, it is not about making people better.

    • @mikes.4863
      @mikes.4863 3 года назад +3

      @@davidn.2555 How odd. I got the exact same comment from someone under a different name recently. How many accounts do you have? Jesus, how desperate are you for something to be going on in your life.

    • @mikes.4863
      @mikes.4863 3 года назад +3

      @@davidn.2555 Yeah? Then why did you direct the comment at me? You could have just posted it on the video. You didn't. You put it under my comment. You think people are stupid? If you were really scared of the surgery, THAT would have been your initial comment. But you didn't even mention it til someone called you out.

    • @davidn.2555
      @davidn.2555 3 года назад

      @@mikes.4863 check my direct comment on this page. I'm sorry my reply was incomplete.

    • @mikes.4863
      @mikes.4863 3 года назад +2

      @@davidn.2555 Well, now I dont see a comment at all.

    • @darrinsiberia
      @darrinsiberia 3 года назад +2

      you gotta watch this video RIGHT NOW it's on RUclips. look up corbett report how big oil conquered the world. it talks about at the end how the big oil tycoons became so rich that they put their heads together and started taking over ALL industries including agriculture AND medicine. medical school is so screwed up and removed from the old history of how many cures and wisdom we have.

  • @bernygeotz8578
    @bernygeotz8578 4 года назад +14

    these surgeries must stop

    • @davidn.2555
      @davidn.2555 3 года назад +2

      What's the other option?
      My ENT Doctor was talking to me about turbinate reduction surgery because I can't really breathe with my nose properly. I asked him about ENS and he said oh well it's related to psychiatric patients and is controversial. He also said that doesn't happen when you don't take the whole turbinate out.
      What should I do instead of surgery? I've tried almost everything

    • @ensaerodynamics8615
      @ensaerodynamics8615 3 года назад +4

      @@davidn.2555 Your doctor is IGNORANT as are about half of these clowns. As for you...try a food elimination diet. Your tissue swells for a reason. Common allergies are wheat or dairy foods. Eliminate one for 3 to 4 weeks and do a GOOD job of it. If that wasn't it try the other one. If not that environmental allergies like mold or other thing could be it. Doctors who try to pin this on physiological issues are ignorant assholes and should not be doctors. If they can't understand nerve pain...dryness...headachend suffocation etc can come from damaging the nose then they are either REALLY DUMB OR REALLY CORRUPT AND CONFLICTED.

    • @davidn.2555
      @davidn.2555 3 года назад

      @@ensaerodynamics8615 Thanks man. I've drastically cut sugars as well
      I'm going to totally stop wheat and diary and check the progress. If you have any other new discoveries please reply me here. Thanks alot

    • @regretsonly44
      @regretsonly44 3 года назад +1

      @@davidn.2555 hey bro if any of your diet plan works plz also inform me cz my nose is also tightly blocked 24/7 .

    • @honeyhoney-by5hr
      @honeyhoney-by5hr 3 года назад +1

      @@davidn.2555 Try homeopathy medicine

  • @mehmetgundogdu6277
    @mehmetgundogdu6277 4 года назад +8

    I am really sorry. I am also a patient with empty nose syndrome.

  • @danielgavrilas6419
    @danielgavrilas6419 Год назад +8

    This is real I've been suffering with ens for the past year and honestly I can't take it anymore is so horrible I feel like I'm suffocating all the time . I've been to ent and they keep saying that everything is normal . They actually suggested turbinate reduction but I just think that will make even worse my condition . I've had 2 times sinus surgery and it's just made it worse . I feel total discomfort in my nose constantly 😪 can't sleeep or concentrate on anything . I'm doing evey single day sinus rinse but it doesn't help at all . Don't know what else to try . Anyone who has this please reply on this comment 🙏

    • @johnnyp745
      @johnnyp745 Год назад +1

      Did this happen on its own? Or a side effect of surgery?

  • @pwk22
    @pwk22 2 месяца назад +1

    When you say she had her, "nose cauterized", I assume you mean she had her turbinates cauterized. I did, too. The surgery was unsuccessful (I had two subsequent blade surgeries), but I did avoid ENS. Had I see this video beforehand, I never would have had the cauterization.
    If you have turbinate reduction surgery, do not let the ENT completely remove the inferior turbinate. And ask him (he should know) to conserve as much of the mucosa, which warms and humidifies incoming air, as possible.

  • @saranox7319
    @saranox7319 4 года назад +12

    I went to my surgeon today, I asked him how much of my tissue he removed. To which he replied he did not remove any but shrunk my turbinates with Radiofrequency which is the kindest (technically that’s reducing the tissue but okay) and he also outfractured them. (Didn’t know that. Hell no.)🤦🏻‍♀️
    Lexa here on youtube had hers only outfractured and ended up with ENS. He dismissed my suggestion about my blood vessels or nerves being damaged and said it is normal to damage them while operating. Yeah sure but everyone heals differently and I asked him why then my nose is drying.
    Of course he couldn’t give me any explanation. He then proceeded to suggested to reduce my left turbinate even more and fix my septum, because the air flow in my left nostril is fucked up and it could also have an effect on the drying but he can’t promise because I will be angry at him. We’ll my primary problem is the drying and it’s affects. He totally dismissed what I told him about feeling dizzy and headaches, that can not be caused by my nose. 🤦🏻‍♀️ He was super defensive and that’s what angers me way more. I told him I am just trying to figure out what the problem is. And he replied we‘re on the same page then.
    He then proceeded to put spray in my nose against swelling even though it was not congested at this time.
    It made the resistance worse and air felt cold, gave my dizzyness and blurry vision.
    When I told him my nose and sinuses was infected last week and I cured it with garlic and tea he looked at my sinuses with ultrasonic to tell me they‘re free, yeah say what, now there fine again. 🤦🏻‍♀️ It‘s only when my mucosa dries out and is infected that I struggle hard with breathing.
    He also told me out of the blue: you‘re prone to infections.
    No I‘m not, I never had any sinus infections prior. Wtf.
    No wonder my lymph nodes are swollen when I mouth breathe at night. Thanks for nothing.

    • @fgfg633
      @fgfg633 4 года назад +1

      Dizziness can be caused by ear and nose issues. It's all interelated. This doctor sounds like an ahole who doesn't give a sh*t.

    • @slavasokol6270
      @slavasokol6270 3 года назад

      I have the same issue with drying Sara. After the surgery it started, and once it dries, it gets inflamed and the. Issues with suffocation. Using xclear and nozaid helps me a little to manage the symptoms. I have however, despite everyone’s advice started to use Avamys spray, 1 spray a day to each nostril.. it does not dry me, but helps to keep the inflamation in check, I got my life back a little. But I always avoid heating, dry environment, etc, the drying bit will never go away, unless maybe stem cells injections could help, that that is not guaranteed and super expensive

    • @saranox7319
      @saranox7319 3 года назад +1

      @@slavasokol6270 I keep my heating low, and I use an air humidifier in my home.
      Eating nutritious, keep away from smoke dust etc, drink tea, eat something spicy even or move my body. But my somptoms fluctuate a lot. I would love to get stem cell injections but it's better than when I wrote that comment.
      Did you get turbinate reduction? Do you know how much tissue you lost? (For me symptoms started about 6 month after surgery) Let me know if you manage to get injections and if it benefits you.

    • @slavasokol6270
      @slavasokol6270 3 года назад

      Sara, thanks for sharing. My symptoms were there right after septoplasty where part of my middle turbinates have been chopped, do not know exactly how much of it was removed. Also use humidifier, purifiers and avoid loads of things, don’t tolerate heating, smoke, chemical scents, etc, when the weather is dry (humidity goes below 40%) it’s no good, being in open space office is also an issue and i get dry and inflamed too easily and then it’s hell for around 10 days. With the spray it is easier. Are you part of the Facebook ens group?( ens awareness)? Might be easier to communicate there. For now I am not going to do stem cells, waiting for more feedback and dont have spare 12-15k to spare atm.

    • @saranox7319
      @saranox7319 3 года назад +1

      @@slavasokol6270 yes, I notice when it‘s a rainy day I feel so much better.
      Also I struggle with air condition (once had a few hour shared car ride in hot summer and oh god it was so bad after that) and at my work there has to be air condition in the warehouse etc.
      I‘m not on facebook anymore, but will consider joining groups.

  • @sugubondlysugubondly
    @sugubondlysugubondly Месяц назад +2

    I got rhinoplasty and septoplasty in 2022. Since the surgery got finished, I have not been able to control my breath.
    Those below are the actual main symptoms I have.
    ①When my noses inhale the air, the air comes into my body too strongly. It's so strong that I feel suffocated.
    And my noses don't work for letting the air out from my body by themselves. So, I need to try to force the air to go out from my body.
    ②I have a headache and need to take pills for it every day.
    ③My nasal snot stuck with my nasal paths.
    ④My mouth, nose, and throat are always getting dry. The mouth doesn't produce enough saliva. The nose is burning. The throat is always with pain.
    Honestly, these symptoms make me insane every single second.
    I want to finish my life by myself, as soon as possible, to run away from this suffocation.
    If you're considering whether you should take any nasal surgery or not, just be careful of your decision.

    • @user-de3yx2lt2x
      @user-de3yx2lt2x 8 дней назад +1

      I wish I had seen this video and did research a lot, I had nose surgery 5 weeks ago I am so regret ruined my nose, one nostril big one small I cry every day 😢why I did it now I got depressed I lost 10 kg in 5 weeks 😢I can’t sleep have very stress 😢😢😢dr did on me bilateral turbinate radio frequency treatment and now I new about ens I didn’t knew about nose surgery it’s risky 😢 ruined all my life 😢

    • @sugubondlysugubondly
      @sugubondlysugubondly 8 дней назад +2

      @user-de3yx2lt2x
      I'm so sorry to hear that.
      Let me share some information. I have been visiting many doctors and now I have found one first doctor who can listen to me and take it seriously. And now he suggests to me whether I I'm going to have surgery for repairing my nose. The method is to take my bone from around my rib? or stomach? or somewhere? (I don't know) and put it to my nose for making the path of my nose more narrow because it's too wide open now.
      But It's risky, and I'm not sure if it is effective for my case, so I'm considering and not having decided yet.
      I don't know if this information helps you, but I just want to share. I didn't ask him the name of the surgery, so I don't know how to check it out correctly on the internet.

  • @rosarialicciardello77
    @rosarialicciardello77 3 года назад +9

    I HAVE ENS,MY LIFE IS DESTROYED.NOONE UNDERSTAND ME AND I'M DESPERATE.

    • @mikebressler8951
      @mikebressler8951 3 года назад +4

      We do.. We understand you..

    • @redvelvet3428
      @redvelvet3428 3 года назад

      What did u have done

    • @saharahmad1805
      @saharahmad1805 3 года назад

      natrual honey with water spray the nose

    • @kaya2939
      @kaya2939 Год назад

      How are you ?

    • @whatnowok
      @whatnowok 4 месяца назад

      I’m here. I’ll talk with you be there for you give me your number

  • @fgfg633
    @fgfg633 4 года назад +8

    I had a horrific ear problem that was not visible to the five ENTs that saw me. Long story short, it was a nerve issue that a neurologist diagnosed. Most "unseen" issues are nerve related. Just shocking that most doctors can't figure this out. Disgraceful.

    • @fgfg633
      @fgfg633 4 года назад

      @weikang cai That is terrifying!

    • @oscarriley465
      @oscarriley465 11 месяцев назад

      @@fgfg633 I think I’ve got nerve damage in my left nostril after polyp surgery.

    • @1yoan3
      @1yoan3 10 месяцев назад

      Most doctors are greedy jew assholes that dont give two shits about health or people.

    • @majdasikanovski
      @majdasikanovski 8 месяцев назад

      ​@@oscarriley465May I ask what are ur symptoms?

  • @tonigannucci4927
    @tonigannucci4927 2 года назад +1

    I have obstructive sleep apnea & have never kept my cpap mask on due to mouth breathing because of enlarged turbinates. Any suggestions on alternatives to turbinate reductions? Having untreated sleep apnea creates that lack of energy and exhaustion that happens for ENS sufferers. So I fully empathize that part. I never feel rested, but I can breathe & don’t have all the other things to deal with that those with ENS have. I’m working on losing weight, do avoid things like gluten & dairy most of the time, & am now on an allergy routine of Claritin in morning, Singulair before dinner, & 1 Benadryl right around or right after dinner. Benadryl makes me groggy next day, so even if it’s helping me breathe at night to help the OSA that I have, I am not rested or aware enough to know if I have any improvement from that routine.

    • @NinettaOfficialMusic
      @NinettaOfficialMusic 2 года назад

      Bimaxillary advencement (MMA). With a maxillo-facial surgeon.

    • @crocr
      @crocr 3 месяца назад

      urine therapy and dry fasting

  • @cdom6845
    @cdom6845 3 года назад +12

    Realy sorry for your mother, emptynose syndrome is a nightmare, my cauterisation ruined my life. It's a mondial big lie.

    • @adelinad3513
      @adelinad3513 9 месяцев назад

      Just like their vaxxines

  • @cosmiccaress
    @cosmiccaress 6 месяцев назад +1

    God bless you, our systems are broken. In heathcare you need compassion and there is not a lot.

  • @independenceclothing3219
    @independenceclothing3219 10 месяцев назад +1

    A year ago I had a turbinate reduction surgery and I was left with a lot of nerve pain. I have been prescribed tegretol but have not taken it yet. Someone has tried? If you have any recommendations, I'd appreciate it.

  • @rafaelcollao8364
    @rafaelcollao8364 2 года назад +3

    Barbara how are you doing ? Any updates on the treatments by DR Das ?

  • @DmcSher
    @DmcSher 3 года назад +10

    I got the same surgery of turbinate reduction and in pain daily. An empty nose syndrome specialist helped a little, however I am in grief myself.

    • @sandyvirlo7797
      @sandyvirlo7797 2 года назад

      What procedure did he used on your turbinates?

    • @xSenorFrogx
      @xSenorFrogx 2 года назад

      How are things going currently? Which specialist did you see? Have you found any relief? I’ve been dealing with ENS for 2 months and not sure if life will be worth living like this.

    • @sandyvirlo7797
      @sandyvirlo7797 2 года назад

      @@xSenorFrogx Did you have Radiofrequency or Cautery to reduce you turbinates?

    • @xSenorFrogx
      @xSenorFrogx 2 года назад

      @@sandyvirlo7797 well my understanding was that it would be radio frequency but when I requested my medical records from the doctor I didn’t see anything about radio frequency and it sounds like they hacked away with scissors 😣

    • @blankspace7161
      @blankspace7161 2 года назад

      @@xSenorFrogx bro how you doing? Im experiencing ens for 2 weeks and it's too much I'm 20 years old and even me I don't know how will I continue my life like this. It's better to die if I have to live like this for the rest of my life

  • @nicholastsaclas2619
    @nicholastsaclas2619 10 месяцев назад +1

    This is truly tragic and I weep and pray for your Mom.
    What the ENT's don't realize is the important physiologic function the nose has in processing every molecule of air we breathe in with every breath we take throughout our life. "Fixing" nasal airflow is an oxymoron when you ignore physiology. Part of every comprehensive evaluation should be an analysis of cellular level physiology to see if the nasal cells are normal and have not atrophied to the point of non-functional. This condition can happen for a variety of reasons. Highly recommend the book....BREATH by James Nestor.

    • @kazman_6899
      @kazman_6899 5 месяцев назад

      How about if you lose sense of smell in one nostril and can feel a piece of the internal architecture obstructing that nostril because of a hit to the nose? How do you fix that?

  • @selexiak
    @selexiak 4 года назад +12

    What is happening to us is criminal. It’s nothing less than assault and battery while the innocent victims it’s performed on remain asleep while it is done. I aim to make my perpetrators pay.

    • @selexiak
      @selexiak 4 года назад +2

      @Vads T I can only speak for the U.K. when I say that it’s very difficult to get a lawyer to handle these cases as they do not consider the compensation awarded will be worth it for them.

    • @selexiak
      @selexiak 3 года назад

      @@user-vc3zx8vx3x If someone has had part of their body removed, your “logical” response is to ask them to read some moronic book. Go tout your rubbish elsewhere.

  • @geniusteck
    @geniusteck Год назад +3

    Empty nose syndrome - leere nase syndrome
    Is really a real thing , as a suffer i hope everyone get Relief
    Pray to god

  • @adityavardhan428
    @adityavardhan428 2 года назад +2

    Feel sorry about it.

  • @seherkaranfil6229
    @seherkaranfil6229 Год назад +4

    Anyway, I had the operation in 2019,the doctor said that the operation was successful However, in the first days of the operation, I couldn't sleep because my throat was drooping, no examination was made for 7 days even though I called the doctor's assistant, 7. When I went the next day, the plaster was removed and a spray was given for the sagging in my throat. Even though I only informed that the hole in the septum would be closed, the doctor had already filed my already small nasal bone, lifted the tip of the nose and expanded my nose to the sides, making it almost like a black nose.
    The main problems appeared on the 14th day when the tampons in my nose were removed, my breathing changed strangely, I was constantly short of breath because I could not feel my breathing, I was trying to breathe deeply, this caused me to be busy with my breathing and not be able to focus on anything else during the day, My sleep at night was also often interrupted, when I told the doctor about this situation, I opened your nose like a cave and he said you need to be able to breathe very well.
    I came back from Istanbul and started to continue my work, but there was still abnormality in my breathing, my nose hurt while breathing, I started to breathe through my mouth constantly during the day, I had no solution for the night, I would fall asleep at night, I would wake up with panic and heart palpitations, this situation always happened. It was repeated at least 10 times a night, my under-eyes collapsed, my body began to weaken, I was sluggish and tired every day, I couldn't focus on my work, my social life was over, I was forced to come and go between work and home, I spent the rest of my time trying to sleep, I didn't even have to clean my house.
    Moreover, because I was constantly sleepless, I started to lose my health day by day, my heart could not stand the sleep apnea I experienced at night, it became tired, now I had constant heart palpitations and I was on my way to heart failure.
    3 years after the last surgery, in 2022, when I was examined by an ENT professor and told my complaints, he looked inside my nose with an endoscopic camera and your 2 lower turbinates were completely removed, the hole in the septum was reopened over time, you can't feel your breathing because the turbinates have been removed, and there is also a feeling of pressure because the inside of your nose is very wide. It does not form, so when you fall asleep, you wake up in panic because the brain cannot feel that you are breathing. Moreover, there is no cure for it, just as a severed finger cannot regenerate, so do the turbinates. He said to use a nasal humidifier, but the room did not work.
    And when I was a person who loves life and tries to stand up in all circumstances, I even thought of committing suicide, I don't know how many times I will end up, think about it, you can't feel that you are breathing and this is a situation that repeats every second. I am only 30 years old, but I collapsed for 10 years. I have a heart disease. When I searched foreign sites for empty nose syndrome, I saw cases of suicide and even cases of heart attack.
    All I can say now is this: How is medical education given in Turkey, how can the doctor who operated on me, knowing that I will have empty nose syndrome, can take all my nasal passages completely, we entrust our lives to these doctors! I wish I had never had that pituitary surgery and hadn't fallen into this situation. I have no right to such doctors, they ruined my life. Of course, there are good doctors, but I have always had bad ones.
    No matter how much I rebel, this life will pass like this, this is my test in life, I have no choice but to be patient.
    I hope that a cure will be found as soon as possible for those who have ENS syndrome like me and myself.

    • @adelinad3513
      @adelinad3513 9 месяцев назад

      All these "solutions " come from western Europe and usa generally. They are the main butchers and their medical organisations are nothing butcriminals trying to get more clients for their chemicals

  • @ARCTERYXSWEATSHOP
    @ARCTERYXSWEATSHOP 3 года назад +8

    Surgeons will do this then deny ENS to save their asses. I have ENS in my left nostril from surgery

    • @chinookvalley
      @chinookvalley 3 года назад +3

      If all surgeons who have done this lost their jobs for their negligence?? Wouldn't that be wonderful? Too bad doktors are protected to the extent they are. I've been butchered and there's nothing I can do.

  • @sir7305
    @sir7305 2 года назад +3

    So ive been having this deviated septum since highschool, but starting 24th january 2020, i started to experience symptoms related to ENS even without surgery and my diaphragm jolts whenever i tried to sleep. Can anyone tell me what is going on with my nose?

    • @sir7305
      @sir7305 2 года назад +2

      @@sandeepgarcha4980 like i said, i never had any surgery

    • @blankspace7161
      @blankspace7161 2 года назад +3

      That's not ens I can tell you. I had deviated septum and when I sleep I was always breathing with mouth and I was suffering alot and I will gas out doing little chores but after experiencing ens I rather have those symptoms then ens

    • @akshaythakur9702
      @akshaythakur9702 2 года назад +1

      @@sir7305 hows you now brother

    • @sir7305
      @sir7305 2 года назад +1

      @@akshaythakur9702 im still having a hard time breathing and no surgery yet

    • @akshaythakur9702
      @akshaythakur9702 2 года назад +2

      @@sir7305 bro same i never had surgery but lost my air sensation

  • @talksick508
    @talksick508 2 года назад +6

    Sounds like tons of doctors
    I’ve been sick 14 years and they blame mental
    Sounds so much like me
    Throwing meds at me
    Sleep issues
    Dryness
    So sorry for your loss 🙏🏻

  • @johnchristian7788
    @johnchristian7788 23 дня назад

    What was the cauterization for? For deviated septum?

  • @steve_ens
    @steve_ens 4 года назад +15

    The ent surgeon killed dory.the ent surgeon reduced dories turbinates and caused her horrific ens.dory would still be alive now .listen i know what im talking about i have suffered with ens for 10 years.the damage has already been done.

  • @thinline8504
    @thinline8504 4 года назад +5

    I heard this is very serious?? like I heard ENS is very bad... sorry for you loss

  • @DJIMXN
    @DJIMXN 3 года назад +7

    wow im supposed to get mine this dec 28... second guessing that now

    • @tashadavis2999
      @tashadavis2999 3 года назад +2

      Did you ever get it done? If so, how did it go?

    • @rustyshackleford5409
      @rustyshackleford5409 3 года назад +4

      I’m not doing it now. This sounds terrible then a stuffy nose and ear

    • @DJIMXN
      @DJIMXN 3 года назад +5

      @@tashadavis2999 i decided against it. I didnt even have a problem with it... my doc just recommended it after i told him i was having ear problems... so I canceled because that wasnt even for my initial symptoms.

  • @sir7305
    @sir7305 3 года назад

    Can we get ENS while inhaling directly into an active boiling water, in which the fire is still on? Which gives this sharp feeling in the upper part of the nostril due to the heat

    • @sir7305
      @sir7305 3 года назад

      @Bak Chu i see

    • @ARCTERYXSWEATSHOP
      @ARCTERYXSWEATSHOP 3 года назад

      Doubt it

    • @Emma-xm9gb
      @Emma-xm9gb 2 года назад

      Steam inhalation will not cause ENS. If you’re getting a sharp feeling in your nose from steam inhalation you are probably way too close to the steam. ENS is only caused by surgeries where the turbinates are messed with.

    • @akshaythakur9702
      @akshaythakur9702 2 года назад

      @@sir7305 how you now bro

  • @reka9201
    @reka9201 Год назад +3

    I had my turbinates resected in 2012, just at the age of 20. I clearly remember my doctor's words who claimed the ITs have no function. I wish I did my own research but I just trusted a professional. World is cruel.

    • @kaya2939
      @kaya2939 Год назад

      How are you doing ?

    • @reka9201
      @reka9201 Год назад

      @@kaya2939 thankfully better, with implants. :)

    • @kaya2939
      @kaya2939 Год назад

      May I ask what type of implants ? And where did you get the procedure done ?

    • @reka9201
      @reka9201 Год назад

      @@kaya2939 dm

    • @kaya2939
      @kaya2939 Год назад

      @@reka9201 how can I dm you ?

  • @Enlightenment78964
    @Enlightenment78964 2 года назад +3

    I'm scheduled to get my septoplasty and turbinate reduction soon. I'm in a very precarious position as I have tried everything in the book with regards to lifestyle such as adjusting diet, exercise, sleep, and stress management, not including the nasal sprays I used for months, but got zero relief from. After hearing about the risk of developing ENS, I really don't know what else to do to fix my chronic nasal obstruction. Any suggestions?

    • @Lander76
      @Lander76 2 года назад

      Try eliminating dairy, sugar and wheat from your diet one at a time, also try cutting out spicy foods

    • @Enlightenment78964
      @Enlightenment78964 2 года назад

      @@Lander76 I have tried all that and nothing has worked

    • @music4thedeaf
      @music4thedeaf 2 года назад

      Did you get the surgery?

    • @sherryb7018
      @sherryb7018 2 года назад +3

      I have the same issues as you BUT I rather live with them then ENS. Take care!

    • @vizini2682
      @vizini2682 2 года назад

      Did you get the surgery? If so, how did it go

  • @LexaTerrestrialx
    @LexaTerrestrialx Месяц назад

    Survivor of ENS & S.... I can't even say it... the algo don't like it.
    I got my surgery slightly before her & summer of 2019 attempted.
    I have my court date tomorrow in this 4 year long battle for SSDI.
    Although still sick, I've gone on to do amazing things... I am a musician & performer...
    I wear a mask & wear breathing devices under it...
    At every show & every song just about I talk about this...
    In my last song "GASLIGHT" I rage out on the doctor that did this. It's a Trap/Metal track
    in the last few years so many treatment advances and awareness have happened... NO DOCTOR Today could get away with denying this ... some may still try.
    I'm so Happy to see Cancelled Surgeries below.
    If this is happening.. something is wrong and ofc the doctor will say this isn't the case..
    This is how they get insurance money. They operate & want to be done with you.
    Thank you for doing such a beautiful job spreading the word.
    As long as I'm still alive i will.

  • @redvelvet3428
    @redvelvet3428 3 года назад +7

    you cant trust ent surgeons they dont always tell you the risks of surgery on nose. mine didnt. and i got EMPTY nose syndrome and pain.
    then ent drs ignore and pretend its in my head and never help me

    • @KhalKhtri
      @KhalKhtri 2 года назад +2

      ENS/turbinate injury is very real and far from psychological. Well respected Dr.s within the field of Ent have already blown the whistle on the true dangers of turbinate surgery procedures. It is a common fallacy spread by those in the field who continue to fool the public that altering an essential organ can diminish chronic stuffiness or inflammation.
      One of the biggest contradictions is that patients are screened thoroughly before a surgery (Both for physical and mental aptitude).
      What occurs is when a patient has a bad outcome and mislead about the safety and efficiency, these very "Dr.s" who patients put their trust in have no back up plan to reverse the damages. They do not want to be held liable for any wrong doing.
      This is not the first or last time medical professionals who perform and market overly routine procedures have caused harm, then use the "psychological disorder" card.

  • @ashleywilliams4149
    @ashleywilliams4149 3 года назад +4

    What do you guys think about this covid PCR test because it involves the tubernates and the upper respiratory system. They are in there just digging and pocking away. Very strange...

    • @acca1170
      @acca1170 2 года назад +4

      It's cotton on a stick. Hows that gonna harm your nerves? It's just to collect slime which could contain the virus. Not to harm your nerves, it'd have to be sharp to do that.

    • @ashleywilliams4149
      @ashleywilliams4149 2 года назад +2

      @@acca1170 I was learning about tubernate damage from sinus surgery and I remember reading that even just slight trauma from different tools (cotton swabs being one) can harm them. I wish I had the reference. If I come across it, I'll definitely be sure to post. Thanks.

    • @acca1170
      @acca1170 2 года назад +1

      @@ashleywilliams4149 A cottonswab doesn't pierce the skin though (nerves being under the skin). So unless the procedure draws blood from the amount of force I don't think you have to worry.

    • @ashleywilliams4149
      @ashleywilliams4149 2 года назад +1

      @@acca1170 I understand where you're coming from. You have to do what you feel comfortable doing. After learning about ENS, I'm not doing it. But best of luck.

    • @rd2071
      @rd2071 Год назад +2

      Pcr tests are a scam

  • @mikeodee1164
    @mikeodee1164 8 месяцев назад

    @mikeodee
    the problem is anti anxiety meds cause nasal dryness any meds that cause nasal dryness will make a persons breathing worse if they have ens never take any meds that cause dryness example dry mouth keep the heat in your apt as low as possible heat in teh apt will make your breathing worse also use 2 warm mist humidifiers at the same time keep them away from your computers and tvs moving to south florida were there is alot of humidity will help most people with ens

    • @dougferguson2563
      @dougferguson2563 3 месяца назад +1

      Completely wrong. This is a surgically caused illness to a respiratory organ. Trolls be everywhere these days trying to stifle Ens truth.

  • @svetlana4759
    @svetlana4759 2 года назад +1

    I have the same problem and I do not know or I want to live when this situation!

    • @shokhrukhdzhalolov5428
      @shokhrukhdzhalolov5428 2 года назад

      Где вы сделали операцию и какая операция у вас была ?

    • @svetlana4759
      @svetlana4759 Год назад

      @@shokhrukhdzhalolov5428 операция была в Бельгии. Конхотоми . Я несколько месяцев назад вставила имплантант. Не помогает

    • @shokhrukhdzhalolov5428
      @shokhrukhdzhalolov5428 Год назад

      @@svetlana4759 мне очень жаль слышать про это вот я сделал операцию в сша ну стало чуть лучше чем было

    • @svetlana4759
      @svetlana4759 Год назад

      @@shokhrukhdzhalolov5428 a у вас тоже боли были или есть и слабость в ногах? Вам делали из ребра имплантант? Я буду просить вторую операцию

    • @shokhrukhdzhalolov5428
      @shokhrukhdzhalolov5428 Год назад

      @@svetlana4759 нет у меня ничего такого не было

  • @davidn.2555
    @davidn.2555 3 года назад +6

    My ENT Doctor was talking to me about turbinate reduction surgery because I can't really breathe with my nose properly. I asked him about ENS and he said oh well it's related to psychiatric patients and is controversial. He also said that doesn't happen when you don't take the whole turbinate out.
    What should I do instead of surgery? I've tried almost everything

    • @rkn160
      @rkn160 3 года назад +5

      Don't do it

    • @davidn.2555
      @davidn.2555 3 года назад +1

      @@rkn160 What should I do?

    • @rkn160
      @rkn160 3 года назад +1

      @@davidn.2555 which turbinate is hypertrophied, middle or inferior???

    • @davidn.2555
      @davidn.2555 3 года назад +1

      @@rkn160 Inferior. It's so bad in the CT scan

    • @rkn160
      @rkn160 3 года назад +1

      @@davidn.2555 Little reduction does not cause much problem.is your septum deviated?

  • @RoseGrace100
    @RoseGrace100 3 года назад +2

    Mayo Clinic was the only clinic that could diagnose this and treat for me.

    • @mnboi1980
      @mnboi1980 3 года назад +1

      How did you have it treated?

    • @mnboi1980
      @mnboi1980 3 года назад +1

      Mayo Clinic in MN ?

    • @marklewis9061
      @marklewis9061 3 года назад +4

      Mayo Clinic does not treat ENS.

    • @davidn.2555
      @davidn.2555 3 года назад

      How did they treat you?

    • @paulfunigga
      @paulfunigga 3 года назад +4

      @@davidn.2555 Mayo clinic treats ENS with mayonnaise.

  • @Boeman683
    @Boeman683 3 месяца назад

    There's a lot of syndromes out there that nobody's ever heard of.this syndrome seems terrible to live with. May she rest in peace with our Lord and Savior Jesus Christ.

  • @allisonlew4508
    @allisonlew4508 10 месяцев назад

    So sorry she didn't have a decent surgeon and decent, effective follow-up diagnosis/care.

    • @adelinad3513
      @adelinad3513 9 месяцев назад +1

      Are there any left? Look what is happening with side effects form vax and they don't want to admit it. Same lack of care

    • @KhalKhtri
      @KhalKhtri 4 месяца назад +1

      Happens with even the most seasoned surgeons. Many in support groups have shared their testimonies from all backgrounds. Those that need to be sorry are those in ear nose and throat who continue to sell these unscientific procedures to patients who have no idea how complex the turbinates are and how important they are to the human body.

  • @akankshayadav1792
    @akankshayadav1792 10 месяцев назад

    one small instrument is there to help with it,to be put in both nostril,with it less amount of air comes to your nostril...and it helps

  • @seherkaranfil6229
    @seherkaranfil6229 Год назад +1

    There should be more awareness about empty nose syndrome, maybe if it was a well-known syndrome, I wouldn't have come to this with surgery,
    I don't understand how a disease that seriously reduces the quality of life does not come to the fore.

  • @sandywhat2429
    @sandywhat2429 3 года назад +5

    I have ENS. To be fair, these drugs could have pushed her over the edge. Antidepressants and anti-anxiety medications can help push people over the edge.
    I honestly don't think I'm going to make it either.

    • @xSenorFrogx
      @xSenorFrogx 2 года назад

      I hope you’re hanging in there. I’m going thru this as well. Have you been able to find any solutions that help?

    • @sandywhat2429
      @sandywhat2429 2 года назад

      @@xSenorFrogx no I've got more pressing iatrogenic problems to deal with

    • @xSenorFrogx
      @xSenorFrogx 2 года назад +2

      @@sandywhat2429 oh no, I’m sorry to hear that. These doctors are really out here to just milk the insurance companies. I’m so frustrated with the system. I’m sorry to hear that doctors have caused more issues for you. I thought ENS was bad enough. I’m sorry that you have other iatrogenic conditions. Stay strong and if you ever need someone to talk to or anything I’m all ears👂🏻 I know I wish I had people to reach out to that could actually understand what I’m going through.

  • @NateM154
    @NateM154 3 года назад +1

    no reason for the nurse to say that or talk at all.

  • @akshaythakur9702
    @akshaythakur9702 2 года назад +3

    Please reply.....i never had surgery on mY nose in my life ...last year December month i have strong flu my trubunate swelling doctor prescribed me nasal spray i only use this spary one week and i lost my air sensation...i am scared what happen with me please reply...i consult with a ent doctor she says my lest nose turbinate swelling and right nose dry mucous i tried everything but i not got any relief what should I do for dry mucous....please reply😭

    • @KhalKhtri
      @KhalKhtri 2 года назад +3

      Spammer

    • @blankspace7161
      @blankspace7161 2 года назад +1

      Bro don't take surgery, and try not to take too much nasal spray the more you take the more u become dependent on them and if u stop the block nose is more. So I'll just say give it time. I did surgery and I regret every moment so I'm saying don't take the risk it's not worth it

    • @akshaythakur9702
      @akshaythakur9702 2 года назад

      @@KhalKhtri bro it's four month i use nasal spary one week use and lost my air sensation doctor says i have dried mucous

    • @akshaythakur9702
      @akshaythakur9702 2 года назад

      @@blankspace7161 bro i stop nasal spary from one month ....but i don't any relief I don't know what's happen with me....i am from India i met with a doctor ens specialist he says my mucous is dried and he says therapy of stemcells

    • @blankspace7161
      @blankspace7161 2 года назад +1

      @@akshaythakur9702 that toh I don't know I reduced my turbinates and now I hve ens every min is a stuggle. If ur turbinates are not touched then it s fine I think. I'm frm india too which state r u frm?

  • @user-sx7rc4nd3q
    @user-sx7rc4nd3q 3 года назад +7

    China a lot of

  • @bonglee1631
    @bonglee1631 3 года назад +2

    I"m 100% certain mine was cause by using cocaine.

  • @akshaythakur9702
    @akshaythakur9702 2 года назад +2

    You all reply on this video wrong...you only think nose trubunate reduction can cause of ens....i got ens using of nasal spray and my life hell last 3 months

    • @KhalKhtri
      @KhalKhtri Год назад +3

      Quit spamming. You work for Pradeep.

  • @G_0_0_Zroot
    @G_0_0_Zroot 3 года назад +2

    I cured my ENS, , I’m going to write a manual on how to do this

    • @davidn.2555
      @davidn.2555 3 года назад

      How?

    • @G_0_0_Zroot
      @G_0_0_Zroot 3 года назад +3

      David N.
      It has to do with your eyes, I’m not exactly sure about the science behind it but it seems the eyes have shifted just a tiny bit but cause us to suffocate. It’s hard to explain in writing. But tilt your head up and with only your eye balls look at your shoes. This is the basic jist behind it. Try to reposture your eyes looking in towards your nose and down, eventually your eye muscles will get a much needed stretch and just sit in the correct position. My quality of life has literally come back within 2 days. Im actually present again and unconsciously breathing it’s the best feeling in the world

    • @davidn.2555
      @davidn.2555 3 года назад

      @@G_0_0_Zroot What? Are you for real? Do you literally mean I should tilt my head up and try looking at my shoes just with my eyes? How's that doable?

    • @G_0_0_Zroot
      @G_0_0_Zroot 3 года назад

      David N.
      Yes. Look down while tilting your chin up.

    • @darrinsiberia
      @darrinsiberia 3 года назад

      @@G_0_0_Zroot holy crap! This is exactly what I do and never knew why!!!! I actually use an inversion table all the time!!!! whenever I am not maintaining my eyes and nose... like I get these huge lines around my eyes and it's like my face looks so weird!!!!

  • @dickveerman5544
    @dickveerman5544 2 месяца назад

    I used Dymista nasal spray half in November. i quite to use it because of extreme burning dryness in the nose. My life has been a living hell. Since then, I'm at the end of hope cause it will not restore itself anymore. My night sleep is stolen away. No more good options are left anymore. Continuing my life is impossible.
    Doctors won't recognise the cause of all of this, but i know it did casals it,this nasal spray could be dangerous.