ENS VICTIM | Scott Gaffer's Story
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- Опубликовано: 7 фев 2025
- On Sept. 21, 2018, after suffering for years with excruciating Empty Nose Syndrome symptoms, 30-year-old Scott Gaffer took his own life. In this sit-down interview, Scott's grieving mother, Beth, details her son's journey, struggles with ENS, and shares a moving message for other friends and families of ENS victims.
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After this video I canceled my surgery
Best decision ever!
Best decision ever. Don't ever do this surgery.
Me too! I’d rather to continue to deal with the congestion I’ve had all my life than take such a risk.
Me too
Ooohkayyyy... that helped my decision for next week...
These stories are why I will not let my ENT touch my turbinates. I’m losing weight and having other procedures done, along with using CPAP at night, and I’m very content to continue this way rather than risk ENS.
I have the worst stuffy nose with hard as concrete boogers it sounds funny but it’s terrible @@prteszm506
Which cpap do you use
Well u should never get in a car or plane again because they crash … it’s more likely to happen than ENS
@@sharadmohip6536 people like you are why it’s taken over 100 years to correct. Please go read another book. Real patient care is done through caring for patients. Find new career.
If you are not going to listen, then don’t speak. Just watch.
Prayers for you who suffer from ENS. I knew Scott well and didn't realize the level of suffering he was experiencing. I hope that the community of people suffering from ENS can find strength in each other and a cure or treatment is found.
I know for a fact Scott would have researched thoroughly all the information that was available at his disposal. Thanks to his family for the courage to bring forward Scott's story! More information will become available and a treatment will be found as more people become aware of this fatal condition.
Thank you, Adam. Yes, Scott would have researched the surgery as well as all the treatments for the ENS that resulted. He was always so capable and we all put so much faith in him to overcome every obstacle. He was the one we depended on for so much. I am sure it was a tremendous frustration for him not to be able to fix this, as he fixed everything else. We didn't just lose a son; we lost the rock of our family.
@@msrealestate My deepest sympathy to you & your family. Words cannot express my sadness. I am sure Scott is in a better place & is resting in peace. Thank you for doing this difficult interview.
@@RD12349 thank you.
@GREENM0BSTA that’s so scary. He took the conservative approach and still ended up with ens.
@@dominickwick2638 This is occurring much more frequently but downplayed by ENT Dr.s when a patient has serious complications. They conveniently turn the other cheek and never give resources on who to contact or where to file a report.
Rest now Scott, poor guy suffered what a really good guy he was . I'm sorry for your loss Mrs Gaffer and other family and friends. im going through something similar. It is a life affecting condition.
If god was real he would have saved him
I am so sorry for your loss Beth. Scott’s story and others have caused me to find alternative methods for my turbinate problems and not use surgery as a first choice. Scott is impacting people’s lives in a positive and potentially life saving way despite no longer being here. I hope that fact offers a little comfort from your pain.
Hi! Scott is impacting my story, as well. I had my turbulence turbines reduced at the end of December.
After a couple months, I felt like I still couldn’t read any better than I ever could so I went back to my ENT for a check and Shernoff. My nasal passage was totally flat on both sides. The Terminex were totally swelled up and not letting me have breathing air. I right now have a scheduled nasal plasty the thing in the middle of your nose. I had that done with sinus surgery in 1994, but my doctor tells me part of it is sauce still so over on one side yet that with the large turbulent his cousin, no air on on that side. Was determined on the other side is swelled up just as much.
. The thing is now after learning about empty nose syndrome. I really just think I’ll take the decongestant instead. The doctors don’t like me on decongestant because it can raise your blood pressure. But it never raises money. I am already on 247 medication‘s, and I would rather use decongestant And be on my blood pressure medication’s which I’ve been on since I was 30 years old and I’m 64 now, then risk having empty nose syndrome. Because it sounds horrid. Simply horrid and I am already ill with chronic pain. Fibromyalgia. And I don’t think I could take it anymore.
. What are you doing to try to help you breathe?
If I take decongestants than I can breathe. I was just going to have this done because the doctor acted like you know it’s a surgery it’s an in the hospital they do put you all the way out but you know the read recovery time isn’t all that long he said. He said they do it differently than they did in the 90s wear in the 90s after your surgery they put something very similar to a very long tampon up into your nose , and then it’s your first doctor visit. They pulled it out and it hurts so bad I thought I was gonna just croak.
Anyway, that’s all I just I talk too much and ramble on. Part of my ADHD I’m sure. Anyway, this is a sad, sad story for sure but if it makes people that desperate, and I know others have taken their lives as well then I really don’t think it’s worth possess And I’ll just do it. I’m always been doing.
Take care! ❤❤❤✌🏻
A comment was made in this video that hits home for me. He said he was tired of seeing everyone else's life progress on and move forward, but he was stuck. I very much feel my life stopped progressing @ the age 28-30. I got stuck due to my condition, but everyone else around men's life continued on. I felt and feel like I got left behind. And I will never be able to catch up or get the last 20 years lost. My growth as a adult was stagnated, I still feel I am stuck there and there is no way to move forward because of the daily pain and suffering I go through. I'm always so busy trying to fight it and find resolution/help...and I now know there is none to be had. Unless you have a similar type issue, you will never understand. I could tell you all about it, share my everyday..but it can never be understood.
Gail, have you tried PRP injections.. ?
I can't so anything. I have $9 in my bank account and am behind in all bills.
@@dualdogs Have you tried ANY surgical intervention at all .. ?
The whole reason I have ENS is due to 6 sinus surgeries...
@@2-strokeracer531
@@dualdogs I can relate.. I've had 4..
They should play these videos at their conferences.
I'm sorry for your loss may God rest his soul
I am so sorry for the loss. Scott was a fighter. He seemed to be a great guy. His mother is so strong. I just want to let you know, that Scott's story saved many people's lives. Turbinate reduction is one of the most dangerous surgeries in the world. Do not touch your turbinates!
Rest in peace Scott. Hope you're in a better place.
These Doctors who are eager to do these surgeries need pinning down and a pillow placed over their face intermittently throughout the night for weeks and then let's see how eager they are to perform these high risk surgeries.. Doctors are violating the hippocratic oath they took and getting away with it. . They know this condition exists and yet still risk it inflicting this devastating and debilitating condition on their patients.
I was told last week I need nasal and sinus surgery, they can now kiss my arse, I'm not ever letting them near my nose or sinuses.. I couldn't cope with this condition, just a blocked nose causes me anxiety. I'm so glad I found this video even if it's the saddest story ever.
Love and luck to everyone out there looking for answers and relief 💜
RIP Scott :(
I’m not suffering from this but I pray for all victims
What procedure was used to reduce ur Turbinates?
I also have enlarged turbinates. It's hard to breathe. Hard to sleep & concentrate. Always exhausted, tired. But after watching videos about ENS, I feel it's better to deal with these difficulties by lifestyle modification, than going for the surgery
Every surgery has risk, the risk of ENS is very remote and risk v reward
@SubArc Adventures its planned for mid Jan
Lifestyle modifications won't do anything. This started in 2017 for me and I eat healthy, exercise and used every neti pot, steam.. Nothing lol. These people are talking about septoplasty which Is way different
@@MyCold1 I had to the reduction surgery at the end of December 2022. I felt like afterwards a couple months afterwards I couldn’t find any better than I ever could so I went back to my ENT and sure enough. My turbinates we’re just is clogged is the word before my reduction surgery. I mean, I think that I did not get empty nose syndrome, but I also did not get any help.
I’m actually scheduled right now for a Hospital turbines reduction and they’re going to straighten out the middle of my nose. That was already worked on in 1994 when I had sinus surgery so why it’s not straight all the way I have no clue. I’ve decided after reading all this that I think I will cancel the surgery. I can breathe fine if I use decongestant.
It’s just that the doctors don’t like me using it because it “can“ raise your blood pressure . But it doesn’t for me I’ve taken decongestants for years. I’ve also taken blood pressure medicine since I was 30 years old, anyway. So my plan is to just continue taking blood pressure meds, of course cause I’ve taken them all these years and then also take decongestants so I can breathe. I also use a Nettie pot and saline etc. so between all of it if that’s what works for me.
@@MyCold1I'm not so sure it is. What's the recourse? Where do these people register this problem? It's obviously an under-represented affliction. I think we're also not really unpacking the psychological component of it. A sensitive person will be more conscious of the new changes in their nose. One man's successful treatment is another man's ens. The difference is you.
This was deeply moving and really tough to watch. I have suffered with sinus problems for almost a year now and my doctor recently proposed turbine reduction. Rest assured, I will never undergo that kind of procedure. Too many lives have been lost and the description of the symptoms truly sounds horrible. ENS NEEDS to be talked more about, it's actually unbelievable that the majority of doctors discards the illness. Something needs to change
don't reduce your turbinates with surgery, they are needed to warm and moisten the air bebfore it enters your lungs
You are lucky to have educated yourself on this terrible problem. I wish I had done so.
Don't touch your nose .find other methods. You will save yourself from torment
many doctors care more for money then they care for people
RIP Scott. It's tragic that some of us have these nasal issues... And unfortunately that some of us end up suffering even more by trying to fix the problem through surgery. I might take myself out too if things don't get better. It is what it is. Some things are just too much to deal with especially if we're talking about living with a horrific condition for the rest of your life.
Please, don't take your life! I don't know what to do now, myself. I am supposed to have septoplasty to fix my deviated septum and turbinate reduction
I am hearing so many stories about ENS. They are scary! What are the symptoms of ENS? I am suffering enough with nasal polyps, deviated septum and enlarged turbinates. I sure don't want to go through more hell, that I'm dealing with now!
@@angelamings3031 Hi, Angela. I appreciate your concern. I'm sorry to hear what you're dealing with. It sounds like you have worse issues than myself. I have been able to manage better than I was a few months ago. Just to clarify I do not have ENS. I'm not sure what I have, but it's a daily issue that causes breathing difficulties and discomfort. I would guess it's Chronic Rhinitis but I have never had an examination done. I don't have the money at the moment to take care of this issue so I just try to manage how I can with being healthy, antihistamines, and nasal sprays.
Yes, ENS is a scary thing. The main scary symptoms I've heard: it will cause horrific insomnia. You will lose the normal sensation of breathing through your nose that you have now, and it will feel like you're perpetually not breathing enough. This can cause mental issues and suicidal ideation because it is very unbearable in people. There are high rates of people ending their lives if afflicted with this condition.
From what I understand it's a risk that can happen if you have surgery done on your turbinates. I don't know how big the risk is. I think you should have your surgeries done incrementally. The nasal polyps first, then the deviated septum. Or the deviated septum first and then the nasal polyps. As for the turbinate reduction, save that for last. Because if after your first two surgeries your breathing feels good, or at least decent, then you might not want to take the risk of having the turbinate reduction surgery since there is a chance it can cause ENS. The turbinates could potentially be helped by you using nasal sprays or antihistamines, and it could be an issue that gets better over time... So that sure sounds a lot better than risking ENS in my opinion. Just make sure to talk to multiple ENT doctors about your concerns and the details of these surgeries. Make sure they understand you do not want to end up with ENS in any circumstance. Other than that, I can only hope your surgery goes well. I think if you can fix your deviated septum and remove the nasal polyps with no issues from those surgeries, then you will be in a much better place... Take care! 💙
@@angelamings3031 well get the surgery and just remove da nasal polyps , then start with steroid nasal irrigation daily.
@@andrerocha3998, thank you for the information!
@@alec3979, thank you very much for your helpful information! I just saw my ENT doctor, and voiced my concern about ENS. He told me, that he would remove the polyps and correct the deviated septum. He said, then he would examine the turbinates. I made it very clear that I didn't want turbinate surgery if those 2 surgeries looked good. Once again, thank you with your advice! Take care.
They need to put more money into research asap!!! Would be great to discover the right cures finally. How can we get the right people involved. I get the feeling this illness doesn't get the attention it needs.
They won’t. It does not make them
Rich to help us find a cure. It’s the damaging surgery that makes them wealthy
Definitely! Like they all need to get together and just figure something out! With all the technological advances and just knowledge we have today, I’m sure it can’t be hard if you take some great minds and put them together.
Don't touch the turbinates, mucosa, nerves. The silly thing is that we think these surgeries are possible. No one is going through you nostrils to do anything without harm. If you could get rhinoplasty to re-break and re-set the septum, that's the way -- but even then the body will remember the trauma of the doc chiselling away while the brain is under anaesthesia.
I wish I could turn back time once again in my damn life.
Don't look back only forward, because the psychological pain will only get worser.
Agree 100% Sara.
If you could go back what would you change? I'm thinking on getting a septoplasty. Should I do it or not?
Miyuki 1. go to the surgeon I initially wanted to go to (not the one my father suggested) pay the price to get him ad my surgeon.
2. with the surgeon I wen’t to I should have walked out the minute he was unwilling to explain to me what he will do (he asked if this isa biology class) but I was too desperate
3. not let anyone mess with my turbinates
4. get the bridge of my nose rather straight and not curved.
I hear you girlfriend. I think back to the way I was before surgery, and realize that person is dead.
I suffer from ENS and it is really debilitating and painful. Do not have turbinates surgery nor any nose surgery without at least 4 different ents consultation. It's irreversible damage. My ent I wish him hell.
Fuck all ENTs alike because among 4 consultants there's 1 that fears god and because we're fucking stupid our brain will tell us to go with the opinion of the majority and by that eventually, you'd make the decision that'll fuck up your life forever and that is taking the surgery.
Hello guys, I hope you pay attention to my comment and manage to share it or make it viral if possible, if it works for you as it was in my case, it completely changed my life in a positive way, forgive my English I am using a translator, to summarize I am a boy of 25 years of Venezuela, at 10 years of age I fractured the septum of my nose and it remained that way until approximately at age 18 I had surgery only on the septum, (I remember that before the operation my nose was dry, I did not have the tip of the greasy nose) = with this I want to tell you that the fat and oils of most things make your nose clog and not only the nose but also most of the mucous membranes of the human body with this I mean yes For example, you make yourself a moisturizing lotion on your skin, you are more prone to things sticking to you or, as in my case, you get more easily, at that time when I had a fractured nose, I breathed well even though I breathed more through a hole io than the other but due to the deviation of the septum but as I told you I had no fat in my nose and therefore the nostrils were moist (hydrated) and that helped me breathe well despite my fracture. Well, after I had surgery on the septum, when I was 18 years old, about 15 days later I had a dermatitis on the tip of my nose and I noticed how it turned red but I did not go to a dermatologist but instead I consulted the pharmacy for a medicine that I I would recommend for dermatitis because at that time and now in my country it was very expensive to consult a doctor with a dematologist in general apart from the medicines and I just what I had was not enough good in general I bought the medicine called betamethasone that I applied it to my nose and it removed the itching and the reddish color of the dermatitis but it was only for a certain time, well guys, as time went by I stopped using it and tiny scabs began to appear on the tip of my nose and spots black like excessive fat that was when my whole nightmare started from this point my nose and not only my nose but my hair my eyes my ears I could not see or hear well and they were extremely fatty, well and as time went by the lower turbinates of my nose swelled to the point of completely obstructing both nostrils and at 24 years old I had a diode laser operation that reduced my ears more on one side than the other and after the operation I had an immediate improvement but after a month they grew back and lasted until I reached a point that I breathed every day through my mouth and not because of my nose and I had serious problems memorizing resting affected my quality of life so much that it distanced me from everyone, my family and my friends, I had a completely miserable life, my brain was not oxygenated and I began to have blurred vision I did not listen well I forgot everything in short a total nightmare until one day I provided an ene pill that contains sodium bicarbonate and acetaminophen because I had stomach acid and had that good in what After I took one of those pills, I felt an immediate relief in my breathing and then I began to investigate why this happened and basically I found that bicarbonate is used for scabies or scabies, (it should be noted that he said that he treated it more it eliminated it ) then I found out that because of the dermatitis that I had on the tip of my nose it was not dermatitis itself but it was scabies or scabies and at that moment I bought a medicine that is the one that completely changed my life and I think that My opinion is the definitive cure for both covid 19 and the empty nose syndrome that is ivermectin
since in what I took the first dose that were two pills of 6 mg = 12 mg every 5 or 8 days, I immediately felt that my nostrils were moistened at first as my nose was super stuffy I felt pain in the part where my lateral turbinate was reduced but then as the days passed I felt an incredible relief and by that I mean everything is say that my ears were uncovered, my vision improved, my memory improved, my breathing improved enormously and with respect to covid, the people who have more fat either because of scabies because it not only cures that disease there are others like it the posh and other parasites that are normally easily contagious and invisible, that is to say that if you do not do a thorough examination on your body you cannot know if you have it that means that anyone can have that and perhaps not in the nose but in the body or in the throat and it makes it difficult to breathe because of the fat, by this I mean that ivermectin as it eliminates the parasites and bacteria that produce that fat that makes your respiratory tract They cover or do not work correctly, in conclusion my life changed, gentlemen, today I take my 3rd dose of ivermectin and the improvement intensifies I hope everyone tries this medicine and any questions or clarifications I await your comments and doubts I will also indicate if they do not have the possibility of consulting a doctor as in my case how they can take it correctly I hope they try this medication and it changes their lives completely as my regards.
It's an unnecessary surgery. It's just to line the pockets of ENT's.
@@Paralelepipedo19 Is that over the counter or by prescription only?
I asked my ENT about ENS, he was honest and he said yes, it is a possibility. But I'm in a dilemma how to treat my enlarged turbinates. Doctor said, surgery is the only permanent cure
Take someones eyes and he will live in darkness
Take someones hearing and he will live in silence
Take someones ability to breathe properly he will live in chaos
Every single second of my life. RIP old self.
EXACTLY. I think this exact same thing everyday. It’s the absolute worst form of torture there is.
you don't live in silence from losing hearing, you get tinnitus/hyperacusis which i will say is probably as bad or almost as bad as ENS
@@ThunderShot66I don't have ens, but puh-lease. I've tinnitus for 30 years. I can sometimes hear mine at the cinema. Honestly, it's a dream compared to this. Hell, It's a dream compared to getting sinus issues, congestion, anosmia, etc. The thing with tinnitus is that the body assimilates it. I don't think the body likes you messing with its turbinates.
@@kazman_6899 when i say tinnitus/hyperacusis i mean severe cases
After my first ever anxiety attack a month ago, I had psychogenic breathlessness every night for a week. It felt like I couldn’t get enough air in my lungs and my nervous system would send false signals of suffocation to my brain. But if I breathed through my nose too hard for too long, it would get dry and I could no longer sense the airflow inside my nose, that was the worst and I couldn’t imagine having to live with it constantly, you literally can’t tell if you’re breathing in enough air or not and it’s very distressing. Nerve endings in the nose are very important
Seems like another condition far from Ens but good luck. ENS is basically nasal organ damage caused by unecessary turbinate procedures. Far from psychological.
@@dougferguson2563 he meant that this is the reason he understands ens.
I'm going through same ordeal as he did. My life has changed drastically. I can't even cook any more. I too want to end this life because the person I was no longer exist. Just stuffy painful ful breathing. Every day is just tournament.
God be with me always. I watch people my age enjoying their life and doing the things I wanted to do. It's so so painful
Mentally
i am so sorry
I have ens too please dont end it treatment is coming in future
You goood!!????
@@RajanSharma-fq4ixcomo vc ta hoje??
I understand the no resistance and feeling like air is passing through a straw feeling. When I used way to much nasal decongestant spray it happened to me and it was an extremely bothering and uncomfortable sensation
Do you have ENS or just rebound congestion?
@david d rebound congestion, but i did experience the ens feeling before from using 10 x the amount of nasal spray as i shoile
@@spunkflunk how you now bro
@@spunkflunk same bro what should i do please suggest
How are now?
Was considering getting surgical sinus treatment, but after learning of ENS I will just stick with the saline solution and Flonase.
Good ❤
@@Woman_in_the_Wilderness and now that I have CPAP, it just blasts my sinuses, so I don’t even need Flonase anymore.
@@TheCoolOwen Can you specify what that is? I have been prescribed septoplasty but after hearing these stories getting jitters. Please help.
@@smitra3367 it’s a surgery, but I am not a doctor
does those even work for you?
God bless your Soul Scott much love brother 🙏
I have nerve damage from wisdom teeth surgery, and somehow I came across this video a few years ago. I think about Scott a lot. It's important for people to be aware of the dangers of surgery. My doctor gave my a paper to sign but never told me that I was at a high risk because a nerve was close to my wisdom tooth. I can live just fine with a numb tongue, but ENS? It seems right up there with trigeminal neuralgia and it enrages me that some doctors are out here ruining people's lives with risky surgeries. Removing turbinates is like doing a lobotomy. How do they sleep at night knowing that they drove people to suicide?
Tragic to hear this. I’ve had a few ENT’s suggest turbinate reduction. I asked the latest one what the possible side effects are…She said there’s a very slight chance of a small perforation, which could cause whistling sound when breathing. She made no mention of ENS. I didn’t know about ENS at that time. Other 2 ENT’s I met with never said anything about ENS…..Tgank you for sharing Scott’s tragic story…RIP, Scott.
I have ENS, and it destroyed my life :( Jesus is the only one who gives me peace and hope.
@@lleaha Didnt know that, interesting, how do you know?
@@lleaha true it was secondary to the rhinoplasties. Any trauma to the nose is susceptible to give ENS even septoplasty alone. Man if i wanted an empty nose that badly i would just start a fight and provoke someone to punch me repeatedly in the nose and all of that free of charge and in the most manly way possible.
Link: ibb.co/3Mv1QzL
Take ivermectin (12 MG) every 5-8 days.
Did u have a problem with your nose before your surgery?
@@lleaha he had trouble sleeping cos he reached tolerance to benzodiazepines and opoids. Wether down to ens I don't know. But the benzodiazepines don't work after so long
I put up a video explaining what helped me with nostril dryness, stuffiness, hear beating, etc, from ENS ruclips.net/video/KCcLLrU7Yto/видео.html
Also look on my ENS playlist ruclips.net/p/PLl-l6yge4astSMZX1RJrkb2pHqDjGKA-w
Rest in peace brother. Ens is slowly destroying me.
I just had Septoplasty turbinate reduction with radiofreuncy 4 days agos what are your symptoms? I feel like shit
@@reefytide suffocation, extreme anxiety, dizziness,
@@reefytideHow do you feel? Have you noticed any favorable evolution?
@@brunoalvino1506como vc ta hj??
Cancelled my turbinate surgery after researching this complication.
Sorry for Scott's mom's loss. I can relate to the issue of not being able to know what the sufferer is going though. I wish you could describe the symptoms Scott better.
Wow... Thanks for sharing this.
Let me tell you from the beginning, I first had an operation in 2009 because there was a mass in the pituitary gland. This operation was performed on the nose due to the location of the mass, but the shape of my nose was distorted after the operation. It turns out that they took most of the middle cartilage (septum) of my nose, a big hole was formed in the septum (and No explanation was given by the doctors about why it was taken)
Later, the ENT doctors that I was examined said that it could be taken to close the operation area.
However, I couldn't get used to my nose shape, moreover, I had a post-nasal drip, my nose was constantly swollen.
Anyway, I had the operation in 2019,the doctor said that the operation was successful However, in the first days of the operation, I couldn't sleep because my throat was drooping, no examination was made for 7 days even though I called the doctor's assistant, 7. When I went the next day, the plaster was removed and a spray was given for the sagging in my throat. Even though I only informed that the hole in the septum would be closed, the doctor had already filed my already small nasal bone, lifted the tip of the nose and expanded my nose to the sides, making it almost like a black nose.
The main problems appeared on the 14th day when the tampons in my nose were removed, my breathing changed strangely, I was constantly short of breath because I could not feel my breathing, I was trying to breathe deeply, this caused me to be busy with my breathing and not be able to focus on anything else during the day, My sleep at night was also often interrupted, when I told the doctor about this situation, I opened your nose like a cave and he said you need to be able to breathe very well.
I came back from Istanbul and started to continue my work, but there was still abnormality in my breathing, my nose hurt while breathing, I started to breathe through my mouth constantly during the day, I had no solution for the night, I would fall asleep at night, I would wake up with panic and heart palpitations, this situation always happened. It was repeated at least 10 times a night, my under-eyes collapsed, my body began to weaken, I was sluggish and tired every day, I couldn't focus on my work, my social life was over, I was forced to come and go between work and home, I spent the rest of my time trying to sleep, I didn't even have to clean my house.
Moreover, because I was constantly sleepless, I started to lose my health day by day, my heart could not stand the sleep apnea I experienced at night, it became tired, now I had constant heart palpitations and I was on my way to heart failure.
3 years after the last surgery, in 2022, when I was examined by an ENT professor and told my complaints, he looked inside my nose with an endoscopic camera and your 2 lower turbinates were completely removed, the hole in the septum was reopened over time, you can't feel your breathing because the turbinates have been removed, and there is also a feeling of pressure because the inside of your nose is very wide. It does not form, so when you fall asleep, you wake up in panic because the brain cannot feel that you are breathing. Moreover, there is no cure for it, just as a severed finger cannot regenerate, so do the turbinates. He said to use a nasal humidifier, but the room did not work.
And when I was a person who loves life and tries to stand up in all circumstances, I even thought of committing suicide, I don't know how many times I will end up, think about it, you can't feel that you are breathing and this is a situation that repeats every second. I am only 30 years old, but I collapsed for 10 years. I have a heart disease. When I searched foreign sites for empty nose syndrome, I saw cases of suicide and even cases of heart attack.
All I can say now is this: How is medical education given in Turkey, how can the doctor who operated on me, knowing that I will have empty nose syndrome, can take all my nasal passages completely, we entrust our lives to these doctors! I wish I had never had that pituitary surgery and hadn't fallen into this situation. I have no right to such doctors, they ruined my life. Of course, there are good doctors, but I have always had bad ones.
No matter how much I rebel, this life will pass like this, this is my test in life, I have no choice but to be patient.
I hope that a cure will be found as soon as possible for those who have ENS syndrome like me and myself.
What is a black nose? 🙄 a wide nose is not limited to black people, your racism is showing.
I’m so sorry for what you’re going through.
I'm sorry for your suffering, I pray for you may God bless you and get you healed 🙏
😞
I'm sorry that this happened
you cant trust ent surgeons they dont always tell you the risks of surgery on nose. mine didnt. and i got EMPTY nose syndrome and pain.
then ent drs ignore and pretend its in my head and never help me
R.i.p Scott. Not another victim! Ban unecessary turbinate reduction surgeries!
@@21Q-h7h To go on this video and type this really shows how well these scam surgeries are being exposed. How many clients left your office going in knowing about ens? Or possibly a family member no longer booking turbinate surgeries?
Then what the hell is a person supposed to do when their nose is constantly blocked all the time And the over-the-counter medicine for your nose causes a rebound effect after three days or more of use.
What choice is left but surgery.
Been on the fence for over 10 years for technology to caught up or figure it out but I suffer everyday with all the symptoms
@@whatnowok It's called finding out the root cause of your inflammation. Seek an integrative Dr. Or Dr. Who treats the bodily holistically.
Very tragic story. Why would any ENT doctor ever touch turbinates? Since it works with the brain, for signaling sleep warming the air and many more things. How can an ENT doctor not know this? Duh! Today, there are handful of doctors that are helping reverse the damage done by these botched sinus surgeries. Please join the ENS forum if you are suffering. There is a list of 'doctor's that are helping fix ENS, the newest methods, as well as people sharing their stories to recovery. Please know you can be helped and these ENT doctor are truly making a difference.
I wouldn't trust any doctor who claims he can fix this problem. They're just vulnerable helpless piece of shit human beings who can NEVER EVER recreate something that god created in perfect form.
What's done is done and seeking further solutions is no different than chasing a mirage or trying to install a head to a headless chicken.
Really?
The nose in general really is so delicate it’s insane to me nose jobs, cutting away necessary cartilage to make people less insecure about their looks are so commonplace. I was one of those people, I felt I had a big nose and I felt that a little adjustment would make me oh so much happier. My mother also encouraged me. So I went to a top surgeon London surgeon, Lucien Ion, and went for it
Since then it’s been 3 years of hell… deviations, sleepless nights, breathing through one side but not the other, feeling like I’m suffocating sometimes, not being able to chat normally with my friends or my mum or my nan. Hell. Did you know that our noses and nasal airways are integral to being able to laugh? I didn’t. And all to try to look better in photos. My nostrils now are simply too thin to accommodate my inner nose. My bridge is now too low and curved to provide any support
All that structure I hated… was structure I needed. That’s why I had it. Now my only options are this surgery Scott had before killing himself, or a third nosejob to rebuild, which will cost 30k and may make me look worse. I have no safe options. I’m stuck. It’s awful. So my message to anyone reading this is that if you dislike your nose and are considering a nose job, please go to therapy. Find a hobby. Cover the mirrors. Stop taking photos and selfies. Do whatever you have to do to move past the insecurity because the risks are very very common and are totally not worth it!
Been suffering with this for almost a year now. I cry every day because of how debilitating it is. I cannot breathe ever. Help me :(
Please try oral decongestant, I.e. Pseudoephedrine. It works very well. Additionally, Steroid nasal spray. Check your Dr.
Can you breath from your mouth?
Which procedure did you do ??
Same here I’m suffering to breathe!😞
@@evyss1i have ens , is there any treatment
i got Empty nose syndrome and severe nasal nerve pain from this exact method!!!! from RAVOR CURIS radiofrequency to turbinates and septoplasty. THE ENT SAID IT WAS TOTALLY SAFE.
How are u feeling now
Did your ENT inform you before hand of what procedure he would exactly use, or did he do this operation without informing about it to you?
radiofrequncy and septoplasty gave me ens empty nose syndrome
So sorry. 😔😔😔
I had the surgery and I am having problems breathing especially at night. I didn't have this before and have looked all over to see if others had nose pain and felt like they were suffocating. I feel this nightly and almost daily. I would not have gotten the surgery if I knew this could happen. The Dr. Keeps saying its anxiety but I knew this wasn't normal. I dont have anxiety or depression. So frustrated that I cannot find anyone to believe me. My best side (left) is now the worse and my body cannot take this change.
James Brown Jr just FYI - I have anxiety I didn’t think it was because of this but after four months I figured it was. I never had surgery but got the drowning feeling, suffocation, it’s like my nose couldn’t feel air in it. Could talk to people. Just horrible horrible. Humidifier really helps.
But I do suffer from anxiety ... so looks like I was suffering with this type of symptoms because of my anxiety issues.
Good luck and god bless. For your sake I hope it is anxiety and it can be treated. Because this ens seem so horrible.
James Brown Jr ... I saw your post and I know what u are talking about. The blocked feeling even when air passages are wide open or not sensing any air while breathing . or even taking in too much air.....ENS feeling ... I developed ENS after a turbinate reduction I had ...it feels as u are constantly suffocating. I ignored it as much as I could and suddenly it went away. Strange 🤔... Adaptation 🤔 ... I don't know ... I guess if you stay in same mental cycle it's hard to get out of it. ... what really sucks is that I got rid of that ENS feeling but now I have and OCD problem with my breathing. I guess I went so much time constantly aware of my breathing that it staying in my head. ... in other words, I became aware of breathing and not unconscious breathing as one does normally..... well I'm still hanging on to the Ropes... Hope u get better and I do as well.
How r u doing now?
I belive you, I have the same problem..I kindly succed to breath somwhow in the day, but in the night..It is very bad..
@@lkaur6970 I think I got it too through anxiety. How did you get rid of it?
It's been a year already and I feel awful and thinking about suicidal thoughts because it's too much sleep is gone and I'm getting chest pain due to lack of sleep and panic attacks had become the norm every day 😔😔😔😔
Don't worry, it'll get better. There's someone who says he got cured by an acupuncturist. Here's the link to that vid and the guy is in the comment.
ruclips.net/video/tQ_JGt5c50I/видео.html
Which method used for the reduction?
Hey, I totally felt this! How are you doing today!?!
I am sorry to hear that. What procedure was used to reduce your turbinates?
Please dont give up. I know it may be hard, I pray that your condition gets better for you.
Same with me for GI issues and sleep studies.
Yes, me too. I have apnea, reflux, and my left nostril is like breathing through a collapsed straw
Same here
bro sis respected everyone plz dont go for turbintes surgery 🙏🙏
Why bro?
Please suggest me any other option 😐
@@mangeshpatil2731 what's ur pm?
@@akshaywagh5469 I am so confused because my breathing problem causes poor blood circulation in my body so what I should do I don't understanding
@@mangeshpatil2731 means do u have nasal conjection 24 *7?
What is Scott Gaffer's surgeon name from the turbinate reduction procedure in 2010?
I relate to that so bad... Faking it when you dying inside.
these doctors need to say exactly what they are doing when they go in there, so the patient is aware of what will happen
There should be more awareness about empty nose syndrome, maybe if it was a well-known syndrome, I wouldn't have come to this with surgery,
I don't understand how a disease that seriously reduces the quality of life does not come to the fore.
It has been swept under the rug by ENTs for decades. They do not keep track of cases and do everything in there power to gaslight patients or completely ignore until a patients take their own life.
I am really sorry for the loss.my condolences.can it add someone who never had surgery?
Poderiam me dizer se acontece ENS em cirurgia de tumor de hipofise? Mexeram no septo e concha superior
i need help, im losing hope, 7 months out from surgery...i never signed up for turbinate reduction, recent ct scan revealed that among excessive antrostomy, surgery caused deviated Septum and nasolacrimal duct injury.
i just want to breathe and want to live...ill never be the same again
Don’t Give up hope. I pray for u
Join our facebook group for support and tips to how to deal with this. Empty nose syndrome awareness
Without stem cell therapy, there is really no hope except to try to cope.
PPLEASE DON"T GIVE UPPP PLEASE PLEASE. EVERYONE I KNOW OF IS NO LONGER WITH US... ITS SCRY
@@johndeal4381 : / damn
Its Too late now.listen i have had empty nose syndrome for 10 years its a horrible condition to suffer with 24/7.scotts surgeon killed scot.i wasnt told about ens risks.and neither was scott.no justice in this world.its too late for us with ens THE DAMAGE HAS AREADY BEEN DONE.!!!😕😕😕😕😠😠😠😠😠😠😳😳😳😳😳😳😔😔😔😩😩😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠😠
Neville Goddard "how to use your imagination".
Neville Goddard "how to use your imagination" it will fix your problem.
How are you doing ?
@21 Q did you try this for ens?
I feel you on this one😞 it’s so hard to breathe
R.I.P Scott, so sorry that this took your life , I had septoplasty with a spur on the left side , Killian's incision , deviated cartilage and spur removed. Cartilage kept back. Right side inferior turbinate submusocal diathermy done 12 days ago and came across about ENS and I'm petrified that I might end of getting ENS , I have been diagnosed with obstructive sleep apnea last year and been using a CPAP machine, I'm so worried I have made a mistake with this surgery , is there anything I should be looking out for, also I have lack of sleep , nasal crusting and congestion. Am I right to be worried?
Yeh same as me
Life’s gone
How are you?
ENS only if you do surgery?
I want to know this too
yes, ens is only caused by nasal surgery
Yes only by surgery
No,not necessarily.there are other causes as well.
I'm speaking to an ENT and she wants to reduce my turbinates, and a septoplasty.. after a couple hours of my own research I found out what ENS is.
I'm telling her to fly a kite later today, I just want my deviated septum fixed not my turbinates reduced.
SHE NEVER TOLD ME ABOUT ANY COMPLICATIONS THAT COULD ARISE FROM DOING THE SURGERY.
Good idea!! I think you’re in the clear if you just get a deviated septum procedure. That’s what I’m thinking about, but even then I’m still nervous. I need to do some more research.
Can septoplasty without turbinate reduction cause ENS ?
I couldn’t breathe out of my right nostril. I had deviated septum surgery. I still can’t breathe out of it. It did absolutely nothing.
Funny. My mom was the one that turned me on to turbinoplasty as well. I knew nothing about it. I didn't get ENS, and I wouldn't do it again in a million years. I did/do suffer from terrible anxiety about getting ENS - so bad I've been on benzos off and on for years.
I have to take 3mg of Klonopin every day as well as Prozac.
@@johndeal4381 I'm taking an ssri as well. Do you have ens or just anxiety?
If you didn’t get it right after you won’t get it in the future.
@@johndeal4381 be careful on the benzodiazepines. They are evil to get off. I had paws serious shit. And I had septorhinoplasty whilst going through that cold turkey valium. Horrendous.
@@waynegrow I don't plan to get off them. I need them for hyperventilation caused by septoplasty.
Damn that’s horrible.
I suffer from left sided chronic lower dryness and pain, i had polyp surgery 6 months ago and developed nasal adhesion between inferior turbinate & septum. Hope this isn’t ENS? Any advice anybody please
I am suffering from 2 old surgeries. Turbinates gone more through years cannot smell, taste food cannot sleep wake up x 2 hours, constant infections dryness crusting and breathing is just a blast of air no mucous right or left just down my throat or coughing up phglem. I stuffed balled tissue in right nose to stop weird air blast. It stinks to not handle smells like diesel, scented candles and think no coffee smell food taste like cardboard. Losing weight.
I’m thinking about getting a Septoplasty for a deviated septum. Is there any risk of the doctor performing on my turbines? It seems like this happens with turbine reduction surgery. I’m still a little nervous.
I'm in the same predicament, I feel it's better to avoid surgery until this potential consequence is thoroughly understood and negated..
you'll regret it...
I have a problem with the empty nose syndrome that is the sinus surgery and septoplasty. Indian do not have any treatment Only suicide, I see my inferior turbinate in the mirror, so it seems to be very shrinka cupuncture is taking this treatment. I am not getting much relief from that.
Barbara Can You Make Some suggestion empty nose syndrome Treatment
hey atul i am also from india from haryana from which state you are?
@@atulbudakoti4216 give me your facebook id i will send u request
Siddhart Garg I'm not a Facebook user now, you can send your number. Im from delhi bro
Siddhart Garg atul9333@gmail.com
Siddhart Garg Siddharth Bahi tum kon sAA treatment le rahe ho. PLZ YR MUJY V BAATOOO
They should probably stop doing these turbinate reductions. Just outfractures until they can figure out why this happens. Sounds like the nerves in the turbinate are very sensitive and regulate breathing.
But will outfractires cause ENS?! And if not than why?
@@tala4746 From what I read online, seems like that one doesn't cause ENS. It looks like outfractures you could probably even do at home yourself. Some videos they don't do anything special appears, but push the turbinate over.
Out fractures are also dangerous and have major risks. Treat the root cause instead of opting in for scam procedures.
Yea, but it's not always possible to make the turbinates shrink with allergy shots or changing diet -- that's wishful thinking. Really the human body is a cluster F unfortunately. @@KhalKhtri
With outfractures they don't make an incisions, they just move the turbinate over with a tool. Seems to be the least invasive. @@tala4746
Just had sinus surgery I had to pled and pled to my surgeon to not reduce turbinates and treat deviated septum. To avoid ENS
how are you now?
I feeling great now. Just have them to clear sinus and or remove polyps. Never touch turbinates. If still stuffy take an antihistamine. It’s just not worth the risk
@@naquanbrown786 god bless you man
my whole forehead feels like it's "compressed" all the time I am always doing the "amazed eyebrow raise" look to stretch my face and feel relief. at the smallest bit of exercise my entire skull feels "tight." I've use nasal sprays I rinse daily. I've changed my diet. I saw an ENT three times who sort of beat around the bush before I said, look I have a deviated septum. I had an accident. I remember what my nose used to feel like. this isn't normal. I sometimes wake up in the middle of the night suffocating. please can I just have surgery? I pushed it on him in some ways. and now I am seeing this about [ENS]. my doctor says by straightening out my nose and reducing my turbinate I might feel relief. should I ask him what methodology he plans to use to reduce my turbinate?
Hello guys, I hope you pay attention to my comment and manage to share it or make it viral if possible, if it works for you as it was in my case, it completely changed my life in a positive way, forgive my English I am using a translator, to summarize I am a boy of 25 years of Venezuela, at 10 years of age I fractured the septum of my nose and it remained that way until approximately at age 18 I had surgery only on the septum, (I remember that before the operation my nose was dry, I did not have the tip of the greasy nose) = with this I want to tell you that the fat and oils of most things make your nose clog and not only the nose but also most of the mucous membranes of the human body with this I mean yes For example, you make yourself a moisturizing lotion on your skin, you are more prone to things sticking to you or, as in my case, you get more easily, at that time when I had a fractured nose, I breathed well even though I breathed more through a hole io than the other but due to the deviation of the septum but as I told you I had no fat in my nose and therefore the nostrils were moist (hydrated) and that helped me breathe well despite my fracture. Well, after I had surgery on the septum, when I was 18 years old, about 15 days later I had a dermatitis on the tip of my nose and I noticed how it turned red but I did not go to a dermatologist but instead I consulted the pharmacy for a medicine that I I would recommend for dermatitis because at that time and now in my country it was very expensive to consult a doctor with a dematologist in general apart from the medicines and I just what I had was not enough good in general I bought the medicine called betamethasone that I applied it to my nose and it removed the itching and the reddish color of the dermatitis but it was only for a certain time, well guys, as time went by I stopped using it and tiny scabs began to appear on the tip of my nose and spots black like excessive fat that was when my whole nightmare started from this point my nose and not only my nose but my hair my eyes my ears I could not see or hear well and they were extremely fatty, well and as time went by the lower turbinates of my nose swelled to the point of completely obstructing both nostrils and at 24 years old I had a diode laser operation that reduced my ears more on one side than the other and after the operation I had an immediate improvement but after a month they grew back and lasted until I reached a point that I breathed every day through my mouth and not because of my nose and I had serious problems memorizing resting affected my quality of life so much that it distanced me from everyone, my family and my friends, I had a completely miserable life, my brain was not oxygenated and I began to have blurred vision I did not listen well I forgot everything in short a total nightmare until one day I provided an ene pill that contains sodium bicarbonate and acetaminophen because I had stomach acid and had that good in what After I took one of those pills, I felt an immediate relief in my breathing and then I began to investigate why this happened and basically I found that bicarbonate is used for scabies or scabies, (it should be noted that he said that he treated it more it eliminated it ) then I found out that because of the dermatitis that I had on the tip of my nose it was not dermatitis itself but it was scabies or scabies and at that moment I bought a medicine that is the one that completely changed my life and I think that My opinion is the definitive cure for both covid 19 and the empty nose syndrome that is ivermectin
since in what I took the first dose that were two pills of 6 mg = 12 mg every 5 or 8 days, I immediately felt that my nostrils were moistened at first as my nose was super stuffy I felt pain in the part where my lateral turbinate was reduced but then as the days passed I felt an incredible relief and by that I mean everything is say that my ears were uncovered, my vision improved, my memory improved, my breathing improved enormously and with respect to covid, the people who have more fat either because of scabies because it not only cures that disease there are others like it the posh and other parasites that are normally easily contagious and invisible, that is to say that if you do not do a thorough examination on your body you cannot know if you have it that means that anyone can have that and perhaps not in the nose but in the body or in the throat and it makes it difficult to breathe because of the fat, by this I mean that ivermectin as it eliminates the parasites and bacteria that produce that fat that makes your respiratory tract They cover or do not work correctly, in conclusion my life changed, gentlemen, today I take my 3rd dose of ivermectin and the improvement intensifies I hope everyone tries this medicine and any questions or clarifications I await your comments and doubts I will also indicate if they do not have the possibility of consulting a doctor as in my case how they can take it correctly I hope they try this medication and it changes their lives completely as my regards.
yes be careful with turbinate reduction because turbinates are essential in warming and humidifying the air before its reaches the lungs....also the reason they are called turbinates is because they give the air coming into the nose some turbulence which allows you to breathe at a slower, steady, and naturally calming rate
i know this comment is late but you could have a tension headache, they tend to affect the sinuses and makes it feel like your forehead and skull is very tight, i recommend getting your neck checked out
try tigerbalsem Best is paardenkracht. Thats the name it will lessen teh pressure
Ent need to not cut even touch turbinate
thx
Would suffocation be day and night? After the surgery i experience lack of airflow when trying to fall asleep, which keeps me awake unless i take beta blockers + sleeping pills, but this is hardly sustainable. I do not feel much discomfort during the day apart from dryness. Has anyone experienced something similar? I am desperate about sleep, this puts everything on hold and days become like a torture, please provide some advice
I think this is mostly what Scott experienced.
This is what I experience.
Yup, these are the symptoms I'm familiar with...
Sepi838 how are you now
Same also was prescribed beta blockers for anxiety then i quit them after 1 week cause im not gonna give myself hypertension so i went a year later (doctor had already forgotten me) reminded him of Why did he prescribe beta blockers which he said to create congestions a little bit. Obviously these doctors are ridiculing us and they are of no help by any means. Let's not mention the ENTs turned psychologists doctors type who right off the bat tell you to "just forget about it, don't think about it too much".... man if we had a 2nd amendment in Saudi Arabia.
Next to the alien coverup, this is the most covered up story in the world. I went to Chapel Hill. But that was in 1994. I was seen by an intern who had no idea what I was talking about. There ought to be class action lawsuits brought against these ENT's.
That’s scary! Because I’m from chapel hill and thought that if I ever went to get a nose surgery, chapel hill is where I would go.
@@dominickwick2638 Actually there's an ENT who treats ENS at UNC. I'm afraid it's too late for me. I'll be 66 Monday. I have no X rays and my surgery was in 1994.
odd ball comments like yours atemot helpful
@@johndeal4381 did it get worse over time
@@MyCold1 Mind your own damn business..
I know this may sound dumb.... But I had my turbinates reduced because chronic use of oxymetazoline made them triple in size over time. If reducing the turbinates leaves you in this condition , I wonder if using oxymetazoline chronically would increase the size of the turbinates like it did for me.?
I am also facing the same problem. I am unable to breathe without using Afrin. I also know that ENS is dangerous. What can I do?
@@balanibakits6488 I got off nasal sprays buy diluting them with saline. Buy a fresh bottle of Afrin , a bottle of saline nasal spray ,and a bottle of Flonase nasal spray. Each day place a few drops of saline into the afrin bottle, basically replacing what you used the day before . Over time this will dilute it to the point that you are weaning yourself off the Afrin , all the while using the Flonase as directed .Near the end you will still have symptoms of stuffiness but be strong and push through. When your bottles of Afrin and nasal spray are gone...DONT BUY MORE!! Just stick with the flonase. Its either this method...or just stop using all together and ride out the insane stuffiness for a week a two. Whatever you choose...Get off that shit! It will cause major permanent problems down the road if it already hasn't . I needed surgery to correct the damage as Ive used Afrin for more than ten years. So stop now .You can do it!👊
@@Anthony_Spilotro great idea. I also noticed, once i stop using afrin for a week or two, my nasal passage gets a bit better. First two weeks are hard. I also feel that loosing weight might also help. I'll definitely try the method you said
@@balanibakits6488 Best of luck ! Don't give up! I hope you succeed And yes you're right , the first two weeks of stopping cold turkey is HELL , especially when trying to go to sleep..
As someone who nears a diagnosis for chronic rhino sinusitis who is failing medical therapy, can anyone recommend any alternatives to fix my situation? Thank you.
fallout man Hi, I’m so sorry for your suffering, if it isn’t too radical try fasting for a week. If your sinuses clear then you will know if food sensitivities are causing and contributing to your sinus problems. I fasted and found that my breathing was better then it’s ever been in my life. I have given up several foods and now my breathing is much better. For me it is, dairy, eggs and corn.
Change your diet. Don’t eat dairy. Work on your immune system! I am doing this now and canceling my surgery
ruclips.net/video/tQ_JGt5c50I/видео.html
@@AnDitaLee i largely gave up dairy too. i still eat butter and eggs SOMETIMES tho not every day like my family. and yes it does help. but honestly I've eaten super healthy vegetarian and i even eat things like apple cider vinegar and sauerkraut all the time and I STILL have pain and congestion. PLUS whenever I go in an airplane or go to the mountains, like Tahoe... it's like while everyone else is okay but "mildly" irritated ... I'm like a TOTAL WRECK... i am hoping surgery can at least get me back closer to normal so I don't have to live every minute of the day worrying about my nose.
Darrin Nelson I totally understand, anti inflammatory diet can only do so much if you have structure issues. It hasn’t cured me but has helped. I think this syndrome is pretty rare, so I’ll hold space for your complete and total recovery. I hope your breathing is 100% relieved! I sometimes wonder how I’ll survive old age not breathing well. With Covid, I live in nose strips. Lol
Hello wish you all the best not saying this is a solution but applying a few drops of black seed oil in your nose definitely helps you might feel a sting
I have just recently scheduled a consultation with an ENT regarding my enlarged turbinates. I have tried nasal spray for months and they didn't help me one bit. I also eat healthy foods and avoid inflammatory foods. I also exercise, make sure to sleep well, and manage my stress. Hearing stories about ENS I really don't know what to do at this point to manage my with my condition. Any suggestions?
I am in the same boat
@@regretsonly44 Are u scheduled for your procedure soon?
@@Enlightenment78964 planning to get it done soon
@@regretsonly44 Has your ENT gone over what specific procedure they would use on you like radiofrequency, SMR, etc?
@@Enlightenment78964 the ent did suggest me submucosa resection for better and long term results but I'm still reluctant. I am planning to go for radiofrequency and I have requested him to keep it as simple as possible. I'll see if there is any improvement after that. I would rather have radiofrequency procedure every 6 months than to go for something aggressive like resection .
I did a long term fast for 16 days... Sinusitis gone. When i tell you huge globs of soft and hardened green mucus coming out of my nose. Relief from pressure instantly. Fast smart... You can do 3 days, 7, 16, 21, etc. But research. You have to take electrolytes during your fast, make seamoss water and break your long fast slowly. You cant eat a huge meal to break your fast that can result in death. Break a long fast with broth, or juice at first, or a little bit of grapes. Nothing heavy for the first refeeding period. Fasting removed mucus from the body. Look into sea moss and dr sebi. Fasting has healed me from ailments. Cheese, milk, eggs...dairy even meat cause sinusitis. Change your diet. All of This will make turbinates reduce in size.
I have ens is an every day condition some days is a tortur in the night or When you Get a flu.
Why is the medical professionals blind to this
money
I have ens. R. I. P.
How are you these days
@@nickcage6389 I am Italian,
This pathology is very strong.
Ens have changed my life
@@TheRomanista78 are u getting better?
@@nickcage6389 I m little better than in winter
Jesus can help, he can deliver us from bondage. By his stripes we are healed. Message me and i can pray for you † I work in the deliverance ministry.
I’m here
@@timcepin3386how can I contact you and I can reach out for prayer?
@@timcepin3386 what's your email and I can schedule an interview and pray for your healing †
Did someone took acne pills? Isotretinoin for your skin?
Hm?
Why does it have bad effect on this surgery?
I literally took it, what does it have to do with ens?
I haven't had any surgery, I haven't had aby turbinates reduced but I do feel ENS symptoms. Is it possible that I have it?
How's you now same
me too...
i have had it since i was young
Same any new update
@Tteok... Comment respirez vous habituellement ? Par la bouche ou par le nez? 😊
I have DNS and sleep apnea and i was going for surgery but after knowing about ENS i don't wanna go for surgery but can anyone please suggest me what should i do to get rid of this pain i am scared to leave my house i am not working i am not meeting friends i can't talk too much and i can't laugh too much if i did then i feel suffocation and dizzy please someone tell how to treat without surgery..
Same here 😐
did you try the wet cottonball test? take a wet cottonball shove it in the nostril you feel like isn't working. believe it or not it helps.
I finally discovered what's causing my fucking problem, i moved to a country side area with no pollution, i was surrounded by mountains and fresh air, after several weeks all my symptoms went away, humans are killing themselves with all this pollution
Nowadays we treat the sleep apnea without cutting anything nor reduction. We treat it with a bimaxillary advancement of jaws, so it is MaxiloFacial Surgery. It’s just create a bigger space / room for the air without touching any organs.
You can search and discuss with a maxilofacial surgeon.
Il est mort? 😭😭😭
So is FESS safe for polyps, just not turbinate reductions.
Radiofrecuency is a good method?
no, better than cautery but no warranties
radiofrequncy and septoplasty gave me ens empty nose syndrome
This is what is causing most of Empty Nose Syndrome cases. It scars mucosa and kill nerves fibres. Any hot surgical treatment is not good.
And theres no way to fix yhe nerves?
NO!
I m like scott i m with him i m dying slowly hi mom scott my mom is in misery i am alive yet we will meet one day somewhere after death and we will complain to Allah( God) about our hidden pain
So sorry.
I feel like dying too
Which "Conservative" approach to turbinate reduction was used in his case??
Conservative methods have also caused cases of turbinate complications. Very serious problem that Ents are not being truthful about.
@@KhalKhtri . Exact! On ne doit pas toucher l'intérieur du nez 👃 Le nez est parfait, cherchez pourquoi il est déréglé ! 😊
10:57
i suffer from my right side of my nostrol gets congested so bad.. but my only wat out is to use nasal sprays.. just used nasal sprays guy.. avoid this ENS ..
Same here. fills like my right side of the nose is suffocating.
Same here. I am canceling my surgery just use the damn spray
Same. I've been struggling with this for 2 months now. ruclips.net/video/tQ_JGt5c50I/видео.html
@@Nenad-ICXC-Shuput-GFAMMA yeah but now you are dependent on a drug??? how's that better. plus I used flownase and it does clear my hearing SOMETIMES but only for like 10 minutes!
Is there anyone who had a good experience after surgery, without all this bad stuff ?
I did! I'm so sorry for everyone who had this happen to them but the surgery for me changed my life for the better! I have a video posted on my page about my experience. Also want to mention that I hadn't heard of ENS until today and it sounds so awful. Prayers for everyone suffering from this.
PUT THE BIRD AWAY!
Now what's going to be worse suffer the breathing issues and lack of sleep for the rest of the life with increasing intensity or try to get a surgery and risk of getting ENS. Really, not sure what to pick.
My turbinates have covered 90% of my nose I literally can't breathe I use otrivin when the obstruction is severe and I do get relief sometimes but ENS there's no relief and you're suffering constantly so I'm choosing to leave my turbinates alone
@@eons8941 It definitely helps a lot to some people, I just wasn't one of them. For me it wasn't the root cause or maybe a secondary cause of the problem because I have realized quite recently that I snore and I have to use a mouthpiece which helps. Don't use the nasal sprays .. it's just a bandage and it will make things worse in the long run. Get that checked by the doctor.
Does ENS also cause halitosis????
It can, due to dry mouth. Scott had a lifetime supply of breath mints in his apartment.
It does.
I'm sorry but has anyone actually lived with chronic rhinitis/sinusitis? It's a awful, awful condition and it just worse as time goes on. I feel like I can maybe get in 30% of the air I used to get in, when I sleep it has to be on my back with my head propped up which results in my body sometimes forgetting to take breaths in or takes really shallow breaths.
On top of all that I get chronic congestion, brain fog, memory problems, pain around my eyes, tinnitus, constant post nasal drip and extreme fatigue (I wake up every hour, that's just the ones I remember)
My life is hell, everyday I think about doing something stupid, I left my job because I wasn't capable of functioning like a normal human being anymore.
I think I'll take my chances with the surgery thanks.
If you only knew how devastating Ens is. Far worse then what non suffers imagine. It is much more severe then what is discussed by ENTs. Would not wish this condition on anyone.
odds are the surgery wont even fix chronic rhinitis long term, you probably have one or multiple underlying allergies causing the chronic sinus congestion, surgery wont do anything to fix that (source: I've had two of them to "fix" chronic rhinitis) first one did nothing at all and second one did nothing as well but also has given me ENS
AGREED! Don't listen to these people they mentioned they had septo plasty which removes cartilage. Of afrin helps you after 3 days you can get the turbinate reduction with the pulse technology. I tried everything for 6 years now.
@Sxlly how are you holding up?
@@kaya2939 barely, on benzos now just to avoid the constant state of panic :/
Please reply.....i never had surgery on mY nose in my life ...last year December month i have strong flu my trubunate swelling doctor prescribed me nasal spray i only use this spary one week and i lost my air sensation...i am scared what happen with me please reply...i consult with a ent doctor she says my lest nose turbinate swelling and right nose dry mucous i tried everything but i not got any relief what should I do for dry mucous....please reply😭
Me too.how are u now?..
@@Mamalrishtwins fine what damage do you how's you facing this condition
@@Mamalrishtwins how's you now
@@Mamalrishtwins hows you
Bromelain is a substance which could help some people here.
Very little id say. There are multiple factors mainly turbinate organ damage that causes this suffering. ENTs are oblivious to how the upper respiratory and nervous system work in unison.
I mean these cases are rare people. Surgeons don't always mention ENS, because it's insanely rare. Scott was just one of those rare cases as well as the people commenting who suffer from it.. I had 4 nose Jobs, and I'm fine. It also depends on the type of procedure. I made sure when I had the 4th nose Job I mentioned to the doctor don't touch my Turbunmaites.
Ens is hardly ever reported therfore no evidence of the condition being rare. Reality is that it is real and destroying lives.
Empty nose syndrome exist there s no thousand people testomonies even a scientifical book is out in 2023 .
no more lies to the Patients to make easy money ENT who do this without telling the Patient about it are evils
They continue to do these unecessary surgeries due to the brainwashing they get in med school and within their community. There is no consensus on what is standard for these surgeries. Think about it, athletes all over the world would be getting these surgeries left and right if it was so bullet proof. If you ask these ENTs if they would get a turbinate reduction surgery they go silent.
The truth is there is not a justifiable reason aside from a tumor or cancer to alter or suction anything relating to the turbinates. Anything outside of that is a crapshoot and everyone's turbinates are unique to ones size and body. They are extremely essential yet ENTs continue to do irrational procedures (no matter how conservative) with fancy gadgets that can cause irreversible harm. Beyond incompetent.
What is also deranged is how they think everyone heals the same. They hardly ever look at underlying health issues that could further contribute the chances of having complications such as Ens/post surgical turbinate injury. All about the money.
And you have a Solomon star as a pic profile . Lots of insensitive doctors and associates of cdc and similar organisations would identify with your star too. Let's say that you are way behind with proven science or just trying to cover up lies
Every video of this blame turbinate reduction.. the thing is these people got 2 procedures and probably didn't need BOTH!!!
The majority of turbinate and septoplasty procedures are unecessary. 9/10x turbinates swell up due to inflammation and nothing that is life threatening. Septoplasties are only necessary if there is trauma or major abnormalities to the septum (everyone has slight deviation). Word to the wise, don't be fooled by ear nose and throat marketing procedures. Especially when you still have the chance of treating your symptoms naturally. You will have the peace of mind in avoiding severe life altering injuries that aren't disclosed to patients pre op.
sounds like he went to too many surgeries.
Only took one surgery for me to have devastating health conditions due to these pointless procedures.