Just found out my ex has als. We have had a special love since we were 13 but couldn't stay married. We have children, grown, and grand girls. We will go through this together. Thanks for sharing.
My heart goes out to all of you suffering from this disease. Im really scared since i have full right arm and right leg weakness, pain and muscle twitching in my whole body. My symptoms started 1.5 years ago exactly like this woman with a hand that went really tight and slow moving when i was cold, now its permanent in my whole arm.. Hoping its nothing, im 23 years old. Hope you and youre family are doing well.
I enjoyed the video and you are in my prayers. I was diagnosed with ALS DECEMBER 18TH 2017, what an awesome Christmas 🎄 present 🎁 but I will fight to my last breath. ♥️💖♥️💖
@@garytracy690 leave these people alone they're going through enough as it is how can you try to take advantage of people when they're going through this
She's very intelligent too! Its great to have all these videos so the children can remember her better. Mercedes was too young to remember her voice. Keep fighting LJ. ❤🙏🌍
They're building a 2.5 billion dollar stadium in the Los Angeles area....why can't we have that kind of money thrown at this horrific scourge? Where are our priorities, where is our humanity? Fucking heartbreaking!
She is an amazing woman. My brothers wife died of Lou Gerigs in Oct of the same year. She left a son ,17 and a daughter 13. RIP Ellisa Anne Luciano 1965- 2016
I am so sorry to hear you suffer with this too. My twin died 3 months ago and being fraternal I don't know if I am next. She was 56 and had a fast decline. I pray she is at peace and we will meet again. No greater loss have I suffered and while bedridden my twin helped many people.
ALS, Can be cure using Herbs because I'm a living testimony,I was cure of ALS using Dr. Rabiu prescription and herbs. It's just that so many herbal doctor claiming a cure which some do not work at all.But turning to scientifically developed medication, is there any drug aimed at curing Diseases and Virus which is under clinical trial that's about to be released, No I guess,so contact DR.Rabiu via WhatsApp/Email Dr.rabiuvikraft@gmail.com Call/WhatsApp+2348160264268
@@classybooty Thank you! I have read this before like you on another video! Hard to say, but I will which makes your point 100% valid.... my twin did not even seek medical treatment til the last 3 months of her life! She died June 18th of ALS. She was convinced it was mold and candida...would not listen to any of us to see a Dr. She was being ripped off by a homeopathic quack! She got a hyperbaric chamber and infra red sauna, oxygen machine, and took 90 herbal pills a day. Her first signs were 1.5 years ago. She died in only 1.5 years! Herbs will not help you win this fight! That was my twin and while I am mourning I read that crap. He should be reported.
Thank you, I have watched some of your videos and appreciate your positivity and searching for answers mind. You mentioned once about toxins in the environment that may be a factor. I agree, I was poisoned 5 years ago by breathing a leaking chemical vapor for 3 months that gave me bad headaches. I only was exposed to it and mistook it for something else. I was removed from that exposure but soon found my strength disappeared and my arms and legs were very weak. Falling over a few times a day and could hardly lift anything and dropping things. Twitching random muscles and saliva turned to jelly and strong metal taste for months. Could hardly chew food as jaws too weak and food just fell out of mouth. Now 5 years later still fall over but only a few days apart or some days a few times but still weakness in arms and legs. I drive trucks and look ok but when I crash to the floor it’s embarrassing when the boss sees me. I had a tradesmen do some tiling work at the house and I helped him carry a water heater but had to let it down on ground as too weak. He gave a chuckle like he couldn’t believe I couldn’t carry that box. He wanted me to hold a small cabinet against wall as he screwed it in place but I had to call my wife to come to my rescue as my arms were too weak. He just took it off me and held it himself and screwed It in. I told him why I was like this after I fell over in the hardware store when walking with him and he realized then my problem. My lungs have a jelly coating on them which makes my breathing a struggle sometimes. This all from a chemical poisoning so could something like that cause ALS is my question.
@Ansh Bawa The chemical vapours I believe was diesel and Adblue mixture. Adblue is used in trucks to clean the carbon from the exhausts. The label used to say “Don’t touch or breath this chemical as known to cause neurological damage…” in invertebrates I think it said. I believe it caused me a neurological issue which I still have. Fell over twice today at work. Chemicals are very hazardous to our bodies and that’s why I think ALS could be triggered like this. Not diagnosed with anything as most doctors are not interested in investigating things unless your carried in on a stretcher. Hope you find this helpful.
Laura Jean I've watched your videos and your an amazing person. I too have ALS but I'm still playing golf. This totally consumes most all of my thoughts. I tend to dwell on my exit strategy, I don't want to be a burden to my family. I need to know how your progressing and if you're still alright? Today is sept 9th 2017 Daniel ....don't know what else to say. Please comment soon with a date. All of my love is with you.
ALS, Can be cure using Herbs because I'm a living testimony,I was cure of ALS using Dr. Rabiu prescription and herbs. It's just that so many herbal doctor claiming a cure which some do not work at all.But turning to scientifically developed medication, is there any drug aimed at curing Diseases and Virus which is under clinical trial that's about to be released, No I guess,so contact DR.Rabiu via WhatsApp/Email Dr.rabiuvikraft@gmail.com Call/WhatsApp+2348160264268
Laura have you thought about making videos especially for your children for the future? I am doing this for my grandchildren as I have a serious heart problem that can't be fixed and ummm I most likely will not see my grandchildren grow to adulthood. I just thought this would be a wonderful idea for your children.
Aryan afridi neurotherapy is the only treatment of als you will get 80% result and able to do all work ......neurotherapy stops the progression of mnd(als) about 70% and you will feel better .....plz contact neurotherapy center tilak nagar new delhi india
Try to stay positive and stress free cause stress is bad for this. I have read at places that breathing exercises are good if you can and want to give it a try. May god bless you. Take care .
ALS, Can be cure using Herbs because I'm a living testimony,I was cure of ALS using Dr. Rabiu prescription and herbs. It's just that so many herbal doctor claiming a cure which some do not work at all.But turning to scientifically developed medication, is there any drug aimed at curing Diseases and Virus which is under clinical trial that's about to be released, No I guess,so contact DR.Rabiu via WhatsApp/Email Dr.rabiuvikraft@gmail.com Call/WhatsApp+2348160264268
There is no treatment and I wonder if there ever will be my husband passed with ALS two and a half years he went so fast it's not fair I was his caregiver I did not mind whatsoever but I wish I still was his caregiver
My cousin got also at 48 years old. I do not understand why there has been no cure or pretty much cure for the dieses in the also family's.my friend whom I done everything with passed away with sclaraderma.its in the family of also also. All these sicknesses are just sad.
Have you watched this vid? She's has some good ideas..be sure to read the comments as well. I saw some useful feedback. I have a friend with ALS. Nature Crazy's Top 8 Tips For Reversing ALS / Lou Gehrig’s Disease ruclips.net/video/2XUzenlkLHU/видео.html
ALS, Can be cure using Herbs because I'm a living testimony,I was cure of ALS using Dr. Rabiu prescription and herbs. It's just that so many herbal doctor claiming a cure which some do not work at all.But turning to scientifically developed medication, is there any drug aimed at curing Diseases and Virus which is under clinical trial that's about to be released, No I guess,so contact DR.Rabiu via WhatsApp/Email Dr.rabiuvikraft@gmail.com Call/WhatsApp+2348160264268
Theres no money in a cure. If there was one, theyd suppress it. History has proven this time and time again. Ever wonder why high ranking politicians dont get cancer nowhere near the same rates as the cattle class??
These researchers sound full of crap. If they say there's no hope.they lose their money. It's just sickening now they hold the same promises every year yet, what has really changed?
Sorry about that but I want to advise you to use Herbal Medicine, that’s what my cousin used to get rid of her ALS Completely. Just visit Dr. Vikraftsambos Herbs
ALS, Can be cure using Herbs because I'm a living testimony,I was cure of ALS using Dr. Rabiu prescription and herbs. It's just that so many herbal doctor claiming a cure which some do not work at all.But turning to scientifically developed medication, is there any drug aimed at curing Diseases and Virus which is under clinical trial that's about to be released, No I guess,so contact DR.Rabiu via WhatsApp/Email Dr.rabiuvikraft@gmail.com Call/WhatsApp+2348160264268
ALS has nothing new as far as treatment. They are not under funded. Think of the people who give their life savings, they do fundraisers constantly and they have nothing to show for it. We are no closer than when Lou Gehrig was diagnosed. It's shameful and they don't do anything for free for the patients. Patients have to pay for the trials. Too many people who are on the payroll and not enough research. They are all over the world and are not for profit so they pay no taxes. All the money raised and donated should all go on research. They are always building new facilities and hiring more workers. Someone should look into how they spend their money and show them how to budget and be more frugal. With ALS there's no time, it progresses fast and from diagnosis to death is not long. The new drug isn't new, it's from Japan for post stroke patients. Don't take the riluzol because it speeds up the progression. It's the saddest thing I've ever seen, no progress in helping patients who are being diagnosed. It's not a rare disease anymore either.
I fully understand your angry but don't take your anger on those who have ALS and those who are trying to find a cure. I myself was diagnosed in 2012 at age 56 with Primary Lateral Sclerosis-PLS which is the Variant of ALS(Lou Gehrig disease). At every clinic visit I'm nervous that my diagnosis is going to change. Thankfully, 7 yrs later I'm still stable with just a few minor symptoms such as . . . Dsytharia(swallowing), slowed speech- I sometimes use a text to speech app on phone and tablets. I try to exercise every day to keep my muscles strong and healthy so they don't begin to atrophy. Also, the other newest drug along with Riluzole is Radicava. Telling people not to take what's available to them isn't right especially if they think it might help them.
@@lindahinojosa299Honestly, I don't know for sure that nothing is being done to find a cure and you know as well as anyone else that it's not going to happen overnight, but am I not here to argue with you. I'm really sorry about your son but I too have the Variant of this disease. Everyone is different with this illness, for some the medicine is helping them and for others not at all and that's a darn shame because we "all" want a cure.
@@karengallimore2016 it's not helping anyone. It's not doing anything but maybe add a couple months to their lives. Is that helping? No it is not. They even tell everyone that the new one is the same thing, just a couple of months. It was way cheaper in Japan, but for people in America it's hundreds of thousands per year.
@@lindahinojosa299 Thank you for your honesty. You have every right to be angry and I be to if someone I know and love had ALS and was receiving one of those drugs. I chose not to get the Rabicava right now because I didn't want to rush out and get the first Drug approved by FDA to treat ALS when we really don't know for sure it was really helping anyone , was covered by insurance, and side effects. I personally don't do drugs trials , I worry about like any drug we take the side effects . How much do they really know about either one of these two drugs??
@@karengallimore2016 that's right and if a drug is helping during a trial they don't allow the patients to continue taking it even if they want to pay for it. That drug suddenly becomes dead, literally drops off the face of the planet. There's something wrong with all of this. God bless you and i pray you live a long life.
No that is not the case money is not the answer, if you looked into the HOLY BIBLE, it says that for GODS children GOD ALMIGHTY will take the life of people.
Wtf?! Because if you're not an asshole you don't leave someone you love because they got sick. 1 in 400 develop ALS at some point in their life and 90% of the cases are not genetic so maybe chill on the mean comments.
I lost my sister in-law a year ago from ALS. My brother quit his job to take care of her 24/7. They had been married 43 years he misses her terribly. He said he would do it all over again to have his wife . ALS is a devastating disease. I hope a cure is found.
El 90% de los casos de ELA no se deben a genes, sino a factores ambientales como diversas toxinas nerviosas o lesiones en la cabeza. Si no tiene ELA genética, no puede transmitirla a sus hijos. 1 de cada 400 desarrolla ELA en algún momento de sus vidas y el 90% de los casos no se deben a los genes. Por eso es una enfermedad tan desagradable. Cualquiera puede enfermarse
My heart goes out to you. My brother had this cruel disease, you are surrounded with our love and angels.
Just found out my ex has als. We have had a special love since we were 13 but couldn't stay married. We have children, grown, and grand girls. We will go through this together. Thanks for sharing.
How is he doing?
God bless you and your family
He’s lucky to have your help.
my friend was diagnosed in June. You are not alone. Thank you for sharing
Toby is my nephew. We love and admire them all SO very much
My heart goes out to all of you suffering from this disease. Im really scared since i have full right arm and right leg weakness, pain and muscle twitching in my whole body. My symptoms started 1.5 years ago exactly like this woman with a hand that went really tight and slow moving when i was cold, now its permanent in my whole arm.. Hoping its nothing, im 23 years old.
Hope you and youre family are doing well.
I enjoyed the video and you are in my prayers. I was diagnosed with ALS DECEMBER 18TH 2017, what an awesome Christmas 🎄 present 🎁 but I will fight to my last breath. ♥️💖♥️💖
why not share a video of ur journey w/ ALS? Be strong.....
How are you doing sweet tee? I hope you’re still fighting ❤️
@@garytracy690 leave these people alone they're going through enough as it is how can you try to take advantage of people when they're going through this
@@garytracy690 🤥 fake horrible person 🤬
Hope you are doing well ❤️
She's very intelligent too! Its great to have all these videos so the children can remember her better. Mercedes was too young to remember her voice. Keep fighting LJ. ❤🙏🌍
God Bless You...Laura.... forever
Thank you for sharing your story. I really appreciate it!
They're building a 2.5 billion dollar stadium in the Los Angeles area....why can't we have that kind of money thrown at this horrific scourge? Where are our priorities, where is our humanity? Fucking heartbreaking!
AMEN,well said....
teflonmagnet I agree, spending $ on useless stuff!
It's not up to professional teams to support medical research. They are a business trying to make money. Find another analogy.
I Gree all tjis tax dollars for pitucians anothi g for the general public, als.ma,de.w tia, altimeter, bullit proof vests for police.
God sees the truth…. but waits.
She is an amazing woman. My brothers wife died of Lou Gerigs in Oct of the same year. She left a son ,17 and a daughter 13. RIP Ellisa Anne Luciano 1965- 2016
I have been watching Lauras journey since the beginning. Prayers for her and her family.
So sad. I also have ALS and find myself watching all post from ALS people. I believe all are saints in this world and God is calling them to join him.
I am so sorry to hear you suffer with this too. My twin died 3 months ago and being fraternal I don't know if I am next. She was 56 and had a fast decline. I pray she is at peace and we will meet again. No greater loss have I suffered and while bedridden my twin helped many people.
ALS, Can be cure using Herbs because I'm a living testimony,I was cure of ALS using Dr. Rabiu prescription and herbs. It's just that so many herbal doctor claiming a cure which some do not work at all.But turning to scientifically developed medication, is there any drug aimed at curing Diseases and Virus which is under clinical trial that's about to be released, No I guess,so contact DR.Rabiu via WhatsApp/Email Dr.rabiuvikraft@gmail.com
Call/WhatsApp+2348160264268
Stop the fraud. No cure for ALS. There is fraud and scammers all over the web this idiot is posting this on every ALS post. Don’t fall into the scam.
@@classybooty Thank you! I have read this before like you on another video! Hard to say, but I will which makes your point 100% valid.... my twin did not even seek medical treatment til the last 3 months of her life! She died June 18th of ALS. She was convinced it was mold and candida...would not listen to any of us to see a Dr. She was being ripped off by a homeopathic quack! She got a hyperbaric chamber and infra red sauna, oxygen machine, and took 90 herbal pills a day. Her first signs were 1.5 years ago. She died in only 1.5 years! Herbs will not help you win this fight! That was my twin and while I am mourning I read that crap. He should be reported.
@@terryjames6260 Terry James keep your cure for yourself.
Thank you, I have watched some of your videos and appreciate your positivity and searching for answers mind. You mentioned once about toxins in the environment that may be a factor. I agree, I was poisoned 5 years ago by breathing a leaking chemical vapor for 3 months that gave me bad headaches. I only was exposed to it and mistook it for something else. I was removed from that exposure but soon found my strength disappeared and my arms and legs were very weak. Falling over a few times a day and could hardly lift anything and dropping things. Twitching random muscles and saliva turned to jelly and strong metal taste for months. Could hardly chew food as jaws too weak and food just fell out of mouth. Now 5 years later still fall over but only a few days apart or some days a few times but still weakness in arms and legs. I drive trucks and look ok but when I crash to the floor it’s embarrassing when the boss sees me. I had a tradesmen do some tiling work at the house and I helped him carry a water heater but had to let it down on ground as too weak. He gave a chuckle like he couldn’t believe I couldn’t carry that box. He wanted me to hold a small cabinet against wall as he screwed it in place but I had to call my wife to come to my rescue as my arms were too weak. He just took it off me and held it himself and screwed It in. I told him why I was like this after I fell over in the hardware store when walking with him and he realized then my problem. My lungs have a jelly coating on them which makes my breathing a struggle sometimes. This all from a chemical poisoning so could something like that cause ALS is my question.
@Ansh Bawa The chemical vapours I believe was diesel and Adblue mixture. Adblue is used in trucks to clean the carbon from the exhausts. The label used to say “Don’t touch or breath this chemical as known to cause neurological damage…” in invertebrates I think it said. I believe it caused me a neurological issue which I still have. Fell over twice today at work. Chemicals are very hazardous to our bodies and that’s why I think ALS could be triggered like this. Not diagnosed with anything as most doctors are not interested in investigating things unless your carried in on a stretcher. Hope you find this helpful.
Thank you for sharing.
How are you doing ? Hugs and prayers headed your way
Laura has a youtube channel called sycamore blue
I was recently diagnosed with Parkinson’s disease May of 2021. I can’t imagine having ALS. My prayers to this lady and her family🌷
I'm so sorry I'm being tested for ALS now so scared
Laura Jean I've watched your videos and your an amazing person. I too have ALS but I'm still playing golf. This totally consumes most all of my thoughts. I tend to dwell on my exit strategy, I don't want to be a burden to my family. I need to know how your progressing and if you're still alright? Today is sept 9th 2017 Daniel ....don't know what else to say. Please comment soon with a date. All of my love is with you.
She has a RUclips channel sycamore blue, I think :)
Yes that is her channel sycamore blue.
I think my wife has ALS. She is going next week to get a referral to a neurologist. You have a great positive attitude.
how s ur wife now? btw im alan from the phils.
@@allanhonrubia2372
He is not going to answer .
ALS, Can be cure using Herbs because I'm a living testimony,I was cure of ALS using Dr. Rabiu prescription and herbs. It's just that so many herbal doctor claiming a cure which some do not work at all.But turning to scientifically developed medication, is there any drug aimed at curing Diseases and Virus which is under clinical trial that's about to be released, No I guess,so contact DR.Rabiu via WhatsApp/Email Dr.rabiuvikraft@gmail.com
Call/WhatsApp+2348160264268
You are a wonderful brave woman laura❤🎉xxxxxxx
Yes it's really hard doing it alone... Yet I know GOD is with MEE 😇.
Laura have you thought about making videos especially for your children for the future? I am doing this for my grandchildren as I have a serious heart problem that can't be fixed and ummm I most likely will not see my grandchildren grow to adulthood. I just thought this would be a wonderful idea for your children.
Love you kathleen
sir I am form Pakistan and I am suffering mnd ALS last 2 yeir plz help me sir thinks
Aryan afridi neurotherapy is the only treatment of als you will get 80% result and able to do all work ......neurotherapy stops the progression of mnd(als) about 70% and you will feel better .....plz contact neurotherapy center tilak nagar new delhi india
ruclips.net/video/41pEsm8jgFM/видео.html
Mene link bheja h dekho bhai afridi
Try to stay positive and stress free cause stress is bad for this. I have read at places that breathing exercises are good if you can and want to give it a try. May god bless you. Take care .
ALS, Can be cure using Herbs because I'm a living testimony,I was cure of ALS using Dr. Rabiu prescription and herbs. It's just that so many herbal doctor claiming a cure which some do not work at all.But turning to scientifically developed medication, is there any drug aimed at curing Diseases and Virus which is under clinical trial that's about to be released, No I guess,so contact DR.Rabiu via WhatsApp/Email Dr.rabiuvikraft@gmail.com
Call/WhatsApp+2348160264268
How's she doing now?
Every video I see the folks inflicted are young.
There is no treatment and I wonder if there ever will be my husband passed with ALS two and a half years he went so fast it's not fair I was his caregiver I did not mind whatsoever but I wish I still was his caregiver
I just got ALS 20 days ago, I couldn't find any support from my country (Vietnam), anyone here can help me to buy Rilutex?
My cousin got also at 48 years old.
I do not understand why there has been no cure or pretty much cure for the dieses in the also family's.my friend whom I done everything with passed away with sclaraderma.its in the family of also also.
All these sicknesses are just sad.
My husband passed away a few weeks ago from ALS. He had it for 5 years.
.
We need a cure for ALS and MSA. 😞
Was just diagnosed and scared..
Have you watched this vid?
She's has some good ideas..be sure to read the comments as well.
I saw some useful feedback. I have a friend with ALS.
Nature Crazy's Top 8 Tips For Reversing ALS / Lou Gehrig’s Disease
ruclips.net/video/2XUzenlkLHU/видео.html
ALS, Can be cure using Herbs because I'm a living testimony,I was cure of ALS using Dr. Rabiu prescription and herbs. It's just that so many herbal doctor claiming a cure which some do not work at all.But turning to scientifically developed medication, is there any drug aimed at curing Diseases and Virus which is under clinical trial that's about to be released, No I guess,so contact DR.Rabiu via WhatsApp/Email Dr.rabiuvikraft@gmail.com
Call/WhatsApp+2348160264268
I los my brother yesteday ALS its a moster
My heart hurts for you...
So sorry to hear..
Sorry for you my sons mom was just diagnosed with als she so young sad
I lost my dad on January 22nd 2021 we have to keep speaking on behalf of them...We need to find the cure🙏
My dad died of ALS in 2015. I wish they'd found a cure in time.
And they WILL find a cure.
Theres no money in a cure. If there was one, theyd suppress it. History has proven this time and time again. Ever wonder why high ranking politicians dont get cancer nowhere near the same rates as the cattle class??
How are you now?
ALS USED to be rare.
This is terrible.
These researchers sound full of crap. If they say there's no hope.they lose their money. It's just sickening now they hold the same promises every year yet, what has really changed?
There are viable treatments; the FDA process just goes so FUCKING slow. Look up NurOwn, TREGS and CUATSM.
JEHOVAH God psalms exodus 6:3, has a new earth psalms 37:29-34 coming soon, hold on .luv to u
Marie Lucero yes! Paradise Earth! Hurry Jehovah
@@coralrain6332 Jehovah witness cult....No truth to it. Read the actual bible.
How does a person die from ALS? How are the last days??
Sorry about that but I want to advise you to use Herbal Medicine, that’s what my cousin used to get rid of her ALS Completely. Just visit Dr. Vikraftsambos Herbs
Il arrive plus à respiré donc il s’étouffe malheureusement 😞😞😊
Please just find a cure for this horrible disease. It's such a shame that $$ is all it will take.
ALS, Can be cure using Herbs because I'm a living testimony,I was cure of ALS using Dr. Rabiu prescription and herbs. It's just that so many herbal doctor claiming a cure which some do not work at all.But turning to scientifically developed medication, is there any drug aimed at curing Diseases and Virus which is under clinical trial that's about to be released, No I guess,so contact DR.Rabiu via WhatsApp/Email Dr.rabiuvikraft@gmail.com
Call/WhatsApp+2348160264268
Lord we need a cure.
Please look into mega doses of cbd
Check Bernardo pinto cohelo , he is living an example life to everybody ! With ALS and healthy people too🙏
Why does the morose music have to b so loud??? Can't even hear the dialog!
ALS has nothing new as far as treatment. They are not under funded. Think of the people who give their life savings, they do fundraisers constantly and they have nothing to show for it. We are no closer than when Lou Gehrig was diagnosed. It's shameful and they don't do anything for free for the patients. Patients have to pay for the trials. Too many people who are on the payroll and not enough research. They are all over the world and are not for profit so they pay no taxes. All the money raised and donated should all go on research. They are always building new facilities and hiring more workers. Someone should look into how they spend their money and show them how to budget and be more frugal. With ALS there's no time, it progresses fast and from diagnosis to death is not long. The new drug isn't new, it's from Japan for post stroke patients. Don't take the riluzol because it speeds up the progression. It's the saddest thing I've ever seen, no progress in helping patients who are being diagnosed. It's not a rare disease anymore either.
I fully understand your angry but don't take your anger on those who have ALS and those who are trying to find a cure.
I myself was diagnosed in 2012 at age 56 with Primary Lateral Sclerosis-PLS which is the Variant of ALS(Lou Gehrig disease). At every clinic visit I'm nervous that my diagnosis is going to change. Thankfully, 7 yrs later I'm still stable with just a few minor symptoms such as . . . Dsytharia(swallowing), slowed speech- I sometimes use a text to speech app on phone and tablets. I try to exercise every day to keep my muscles strong and healthy so they don't begin to atrophy. Also, the other newest drug along with Riluzole is Radicava. Telling people not to take what's available to them isn't right especially if they think it might help them.
@@lindahinojosa299Honestly, I don't know for sure that nothing is being done to find a cure and you know as well as anyone else that it's not going to happen overnight, but am I not here to argue with you. I'm really sorry about your son but I too have the Variant of this disease. Everyone is different with this illness, for some the medicine is helping them and for others not at all and that's a darn shame because we "all" want a cure.
@@karengallimore2016 it's not helping anyone. It's not doing anything but maybe add a couple months to their lives. Is that helping? No it is not. They even tell everyone that the new one is the same thing, just a couple of months. It was way cheaper in Japan, but for people in America it's hundreds of thousands per year.
@@lindahinojosa299 Thank you for your honesty. You have every right to be angry and I be to if someone I know and love had ALS and was receiving one of those drugs. I chose not to get the Rabicava right now because I didn't want to rush out and get the first Drug approved by FDA to treat ALS when we really don't know for sure it was really helping anyone , was covered by insurance, and side effects. I personally don't do drugs trials , I worry about like any drug we take the side effects . How much do they really know about either one of these two drugs??
@@karengallimore2016 that's right and if a drug is helping during a trial they don't allow the patients to continue taking it even if they want to pay for it. That drug suddenly becomes dead, literally drops off the face of the planet. There's something wrong with all of this. God bless you and i pray you live a long life.
No that is not the case money is not the answer, if you looked into the HOLY BIBLE, it says that for GODS children GOD ALMIGHTY will take the life of people.
How to these people who are so disabled happen to have spouses?
How ? ! ?
TheIllegalalienfool it is called love
True love man
Wtf?! Because if you're not an asshole you don't leave someone you love because they got sick. 1 in 400 develop ALS at some point in their life and 90% of the cases are not genetic so maybe chill on the mean comments.
I lost my sister in-law a year ago from ALS. My brother quit his job to take care of her 24/7. They had been married 43 years he misses her terribly. He said he would do it all over again to have his wife . ALS is a devastating disease. I hope a cure is found.
Just because you're an asshat doesn't mean everyone is.
Tienen la enfermedad y se la transmiten a los hijos. 😈😈😈😈
El 90% de los casos de ELA no se deben a genes, sino a factores ambientales como diversas toxinas nerviosas o lesiones en la cabeza. Si no tiene ELA genética, no puede transmitirla a sus hijos. 1 de cada 400 desarrolla ELA en algún momento de sus vidas y el 90% de los casos no se deben a los genes. Por eso es una enfermedad tan desagradable. Cualquiera puede enfermarse
Ruth B, su comentario es absolutamente miserable y demuestra que no se ha enterado de nada.