After 9 months of research, I now have a feeling that all of the symptoms I'm suffering seems to be in the likeness of a Perilymphatic Fistula or Superior Canal Dehiscence. These symptoms began the day I went to an ENT after the doctor used "7 French Suction and Ear Curette" to remove severe ear wax impaction for both ears. Prior to visiting this ENT, I've never had an ear suction to remove ear wax or any history of vestibular balance issues. After the visit I experienced chronic ear ringing that evolved into me feeling like i'm on a ship 24/7 that never docks, dizziness while sitting and laying down, loud noise induced dizziness, especially the sound of airplanes, car engines in traffic, and low engine noises like air conditioning. At first I feared that I had Meneire's because I had mild low frequency hearing loss, but my symptoms are non-stop 24/7, not spontaneous violent attacks.
Hi @Hi.Shadow : my doctor made a error while performing tympanoplasty surgery 2 months ago. He manually moved stapes, in the scan we can see a displaced stapes. My current doctor suspected I have perilymph fistula, I have dizziness, tinnitus, body imbalances and profound ear loss. Have you went through any treatment? Please guide me.
@@devildevine8760 I went to Dr. Phillip Ashley Wackym at Rutgers Department of Otolaryngology, he’s the head and neck surgeon in Neuro-otology, in New Brunswick, New Jersey. After a hearing test, ct scan and a series of balance testing, he diagnosed me with Endolymphatic Hydrops, after learning my history he agreed with me that the underlying reason of my hydrops was likely the result of a Fistula injury. He is very thorough. He gave me the options of physical therapy, medication, or surgery, well I opted for the surgery and he performed a fistula repair on my right ear and inserted a tube about two months ago. I’m still going through the healing process due to increased hydrops and scar tissue but he told me that is normal, I have noticed lots of improvements in my symptoms since my surgery and I no longer wear ear plugs to suppress noises!
@@sugaplumalex Endolymphatic Hydrops caused by injury. I had the Perilymphatic fistula surgery but it hasn’t made a huge difference in my symptoms. I’m contemplating getting the Endolymph Decompression Sac surgery.
You just described my last eight months. My ENT is confident that’s what it is and talked about the surgery. I was improving but it started up again. Mine happen under a very heavy bench press session on March 12. Since then I have fullness in my ears, severe tinnitus, dizziness and sometimes a little nauseated. I was going to get the surgery done but I was improving so K held off. But, My symptoms started increasing again with activity and I’m almost back to stage one again. My ENT didn’t think it was Ménière’s either because of the overlapping symptoms you described. I’m now hoping to be on track and waiting for a specialist to evaluate my circumstance to be a candidate for the surgery. Being someone who suffers from this, you feel very alone in it. Although you might look like you’re OK on the outside it’s very hard to describe what you’re going through. It can have a serious affect on your mental outlook towards life. I was generally a person who is an extrovert, and full of life. But if you get a vestibular disruption, and it becomes chronic, you will not be the same person until it is resolved. I’ve seen two ENT doctors, a physician assistant, and my regular general doctor. What needs to be addressed during those conversations outside of the medical terminology, is connecting with the patients mental difficulties, as they are going through these challenges.
@@crushinganddebarkingmachin8357 So after I see that a otologist, they diagnosed me as having vestibular migraines. And ruled out perilymph fistula. I was hoping that it wasn’t vestibular migraines because the other one the surgery corrects almost 90% of the time. So now what I’m doing is getting VRT which is vestibular rehabilitation therapy done. I think it helps a little but it definitely does not resolve it. I am on a pharmaceutical med to try to reduce down the electrical firing which is what they call it. There’s a RUclips channel I follow called the dizzy Cook from a lady who has dealt with this. She seen a doctor called Dr. Bey, through her journey, which gave her success and causing her vestibular migraines to go into full remission.
@@Jeremiah_.. your story too sounds similar to what I’m suffering with. I too used to be very outgoing and had a positive outlook in life but ear issues can really change your world.How did they rule out a perilymphatic fistula?
Hey Doc please help, so yes I've gotten bppv for many years and learned how to treat it. Separate now, over the past 5 or so I have issues with my right side occipital nerves, cause off balance nausea and dizzyness, not spinning, unless i keep that occipital area stretched and such like crazy. No tinnitus No regular fullness feeling. No noticeable hearing loss. Yes to dizzyness from sharp sounds like dishes clanking, sometimes from own voice or others. No dizzyness from regular loud music. only right ear. yes motion sickness especialy in car or rides. yes elevation change problems. Now i have discovered last night if i put my finger in my ear, and plunge in and out, it makes me super dizzy. not my left ear. I had an ENT several years ago say not miniers. but we didn't go further, plus he was kinda ehhhh lol needles to say it's ruining my well being. can you help? I'm in Bakersfield CA so not sure where to go.
Thank you Dr. Gates, for these impressive explanations. Though I have one more question: I wanted to know if there is a typical tendency or direction of fall in relation to the affected ear in perilymphatic fistula. Please excuse my bad English and best regards from Germany.
i just got tonic tensor tympani syndrome so my eardrum reacts to sound, and then a couple weeks later i got slapped on the ear and a few days after i got constant dizziness. like literally like im moving all the time!!!!! if i look down and up its the worst i stagger backwards. the floor feels like its moving. but i dont have hearing loss!
My sister’s Meniere disease was complicated with so many symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus and I had to gave her Dr Madida herbs from RUclips recommendation and after she using the medicine, she was with me last month telling me that she is cured completely and don’t longer experience any of the symptoms anymore.
U used a graphic diagram but u aren't referencing it and using it to explain. We aren't experts like u. This should as well have been an audio only material because the non reference made the diagrams useless. Pls improve.
After 9 months of research, I now have a feeling that all of the symptoms I'm suffering seems to be in the likeness of a Perilymphatic Fistula or Superior Canal Dehiscence. These symptoms began the day I went to an ENT after the doctor used "7 French Suction and Ear Curette" to remove severe ear wax impaction for both ears. Prior to visiting this ENT, I've never had an ear suction to remove ear wax or any history of vestibular balance issues. After the visit I experienced chronic ear ringing that evolved into me feeling like i'm on a ship 24/7 that never docks, dizziness while sitting and laying down, loud noise induced dizziness, especially the sound of airplanes, car engines in traffic, and low engine noises like air conditioning. At first I feared that I had Meneire's because I had mild low frequency hearing loss, but my symptoms are non-stop 24/7, not spontaneous violent attacks.
Hi @Hi.Shadow : my doctor made a error while performing tympanoplasty surgery 2 months ago. He manually moved stapes, in the scan we can see a displaced stapes. My current doctor suspected I have perilymph fistula, I have dizziness, tinnitus, body imbalances and profound ear loss. Have you went through any treatment? Please guide me.
@@devildevine8760 I went to Dr. Phillip Ashley Wackym at Rutgers Department of Otolaryngology, he’s the head and neck surgeon in Neuro-otology, in New Brunswick, New Jersey. After a hearing test, ct scan and a series of balance testing, he diagnosed me with Endolymphatic Hydrops, after learning my history he agreed with me that the underlying reason of my hydrops was likely the result of a Fistula injury. He is very thorough. He gave me the options of physical therapy, medication, or surgery, well I opted for the surgery and he performed a fistula repair on my right ear and inserted a tube about two months ago. I’m still going through the healing process due to increased hydrops and scar tissue but he told me that is normal, I have noticed lots of improvements in my symptoms since my surgery and I no longer wear ear plugs to suppress noises!
hey what did it end up being??
@@sugaplumalex Endolymphatic Hydrops caused by injury. I had the Perilymphatic fistula surgery but it hasn’t made a huge difference in my symptoms. I’m contemplating getting the Endolymph Decompression Sac surgery.
Hi how's it going now ?@@Hi.Shadow
You just described my last eight months. My ENT is confident that’s what it is and talked about the surgery. I was improving but it started up again. Mine happen under a very heavy bench press session on March 12. Since then I have fullness in my ears, severe tinnitus, dizziness and sometimes a little nauseated. I was going to get the surgery done but I was improving so K held off. But, My symptoms started increasing again with activity and I’m almost back to stage one again. My ENT didn’t think it was Ménière’s either because of the overlapping symptoms you described. I’m now hoping to be on track and waiting for a specialist to evaluate my circumstance to be a candidate for the surgery.
Being someone who suffers from this, you feel very alone in it. Although you might look like you’re OK on the outside it’s very hard to describe what you’re going through. It can have a serious affect on your mental outlook towards life. I was generally a person who is an extrovert, and full of life. But if you get a vestibular disruption, and it becomes chronic, you will not be the same person until it is resolved. I’ve seen two ENT doctors, a physician assistant, and my regular general doctor. What needs to be addressed during those conversations outside of the medical terminology, is connecting with the patients mental difficulties, as they are going through these challenges.
Your story hits too close to home. I know exactly how you feel. Over 1 year into this and I still don’t have a diagnosis!
what treatment are u taking now?
does the treatment helping u?
have u done ur surjery?
@@crushinganddebarkingmachin8357
So after I see that a otologist, they diagnosed me as having vestibular migraines. And ruled out perilymph fistula. I was hoping that it wasn’t vestibular migraines because the other one the surgery corrects almost 90% of the time. So now what I’m doing is getting VRT which is vestibular rehabilitation therapy done. I think it helps a little but it definitely does not resolve it. I am on a pharmaceutical med to try to reduce down the electrical firing which is what they call it. There’s a RUclips channel I follow called the dizzy Cook from a lady who has dealt with this. She seen a doctor called Dr. Bey, through her journey, which gave her success and causing her vestibular migraines to go into full remission.
@@Jeremiah_.. your story too sounds similar to what I’m suffering with. I too used to be very outgoing and had a positive outlook in life but ear issues can really change your world.How did they rule out a perilymphatic fistula?
Hey Doc please help, so yes I've gotten bppv for many years and learned how to treat it.
Separate now, over the past 5 or so I have issues with my right side occipital nerves, cause off balance nausea and dizzyness, not spinning, unless i keep that occipital area stretched and such like crazy.
No tinnitus
No regular fullness feeling.
No noticeable hearing loss.
Yes to dizzyness from sharp sounds like dishes clanking, sometimes from own voice or others.
No dizzyness from regular loud music.
only right ear.
yes motion sickness especialy in car or rides.
yes elevation change problems.
Now i have discovered last night if i put my finger in my ear, and plunge in and out, it makes me super dizzy.
not my left ear.
I had an ENT several years ago say not miniers.
but we didn't go further, plus he was kinda ehhhh lol
needles to say it's ruining my well being.
can you help?
I'm in Bakersfield CA so not sure where to go.
Thank you Dr. Gates, for these impressive explanations. Though I have one more question: I wanted to know if there is a typical tendency or direction of fall in relation to the affected ear in perilymphatic fistula.
Please excuse my bad English and best regards from Germany.
I learn a lot, thanks
i just got tonic tensor tympani syndrome so my eardrum reacts to sound, and then a couple weeks later i got slapped on the ear and a few days after i got constant dizziness. like literally like im moving all the time!!!!! if i look down and up its the worst i stagger backwards. the floor feels like its moving. but i dont have hearing loss!
id like to ask if you know any australian doctors that know about this?
My sister’s Meniere disease was complicated with so many symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus and I had to gave her Dr Madida herbs from RUclips recommendation and after she using the medicine, she was with me last month telling me that she is cured completely and don’t longer experience any of the symptoms anymore.
U used a graphic diagram but u aren't referencing it and using it to explain. We aren't experts like u. This should as well have been an audio only material because the non reference made the diagrams useless. Pls improve.