I’m so glad for the internet and for channels like this! I’ve been dealing with chronic ibs and fatigue for years and tried to treat that by switching to a mostly vegan diet which didn’t cure me either. I’m a dancer and martial artist so I exercise several hours daily and over a the last year, my symptoms evolved into paresthesias, muscle pain and weakness and weight loss to my dismay and then I started having these weird, frightening episodes where I’ve been absolutely terrified that I might be dying because I start to slur and lose cognition and can’t walk or stand up without fainting. They usually happen during a workout or at the end of the day and it took a long time to realize that in addition to the obvious triggers, fatigue, dehydration, stress…one thing that definitely brings these on is sugar. Every time I go to the hospital they just drug and alcohol test me and then tell me it must be in my head, but sometimes they gave me saline solution and when they’ve done that, I feel sooo much better for a few days. I’m really hoping I’ve found what’s wrong because at this point, everyone thinks I’m psycho with some imaginary illness and I’ve been really scared for my life and well-being knowing something is seriously wrong. I tried taking a b complex and it did not help, but the I finally found a supplement with just B1 and I started 250mg a day and so far, no new scary spells. And I discovered some med spas offer IV drips for athletes. If this is it, you might just be saving a life! I’ve been starting to think I might actually be going crazy the way doctors treat me, but it makes sense since I haven’t been eating processed, fortified foods or meats thinking all this time I was doing what I should to get healthier. Everyone talks about protein and b12 deficiency with vegan diets, but nobody ever told me about thiamine. Fingers crossed!
Sad that most doctors misses this symptom and had missed diagnosis, or just ignore them all together because lack of knowledge or just AFRAID TO SAVE LIVES. I have read some articles about how high doses thyamine plus vitamin C high doses can virtually take a very ill patients OUT OF COMA!! My mom died because the doctor didn't have a clue about thyamine and vitamin C will totally treat acidosis and sepsis, very high doses. If only use vitamin C , it must be consider 150.000mg intravenously, and after the patient start to feel better you must continue the treatment couple days longer, IF stop the patient will relapse. After patient it's much better continue with 5000mg liposome oral. If use thyamine for lactic acidosis and sepsis, doses of thyamine intravenously must non less than 500mg three times a day for minimum 4 days, also you can add a great dose of vitamin C with the thyamine. After patient feels better, doses of 200mg or higher must continue ORALLY indefinitely. Specifically those that is candidate for intubation, MUST CONSIDER thyamine plus vitamin C as a first line of treatment, as intubation puts them at a much higher risk for mortality . There no harm og thyamine high doses neither does vitamin C, the risk is NOT give it to them. By not receiving this simple treatment the mortality rate goes up each minute of the day. Doctors dont need to yelli at the hospital that the patient need high doses vitamin C, just be discreet, and order a test for vitamin C and you will see that is almost non existent in the very ill patients, and that's why progresses fast to sepsis.
I am recovering from beri beri... B1 supplementation is key and a major overhaul of the diet is required to as many natural foods and foods high in B1. I am finding Ayurvedic medicine by far the best help in this area. Thanks for the Vid.
Very sad that doctors often misdiagnose patients ALL THE TIME, many people lose their lives from misdiagnose. I lost my mom from heart failure, I have been studying a lot about this, I now know that was wet Barbieri. I told the stupid doctor in charge that she needed very high doses of thyamine intravenously 3 times a day, doses of 500mg, but he refused to understand what I was talking about. She progressed to sepsis and your organs started to fail,,,,I cant let go of this, its have been 17 months, and feels like yesterday 😭😭😭😭 theses doctors must review the text book all the time, to avoid misdiagnose their patients, they should be accountable for their mistakes and the lives of all those people they KILLED
Doctor do not want to cure, because they will loose income permanently. So, what they do, keep you alive on drugs or let the patient die, but not to cure.
Sorry for your loss. A sad story indeed. Usually in most hospitals there is a "customer care desk" were you can launch enquiries, etc Post mortem exams can be requested to be conducted etc, if things are not clear. Once again sorry for your loss. There's a need to always hear each other out "medical staff and their clients" and exercise all Ethical requirements in the background of evidence based medical practice
About a year ago I got a shot in my glute that hit a nerve. This extreme pain actually kept getting worse over a period of three weeks. During this time, my metabolism had shifted away from keto and I was craving carbs badly. I might add that I have Celiac and Crohn's. I learned that Benfotiamine could help and started taking it. My nerve pain went away in less than two days! I'm here again because I'm suspecting low Thiamine again. This time, also eating more carbs than I'd like, I have developed a Ganglion Cyst on the palm of my hand. I always thought they were inflammed tendons but rescently learned that they often are nerves that become symptomatic in the presence of joint problems. I have arthritis too. I had been lowering my dose of TTFD due to cost. I just ordered more TTFD and Benfortiamine to see if this cyst will resolve. Maybe it will help my fatique too.
Totally true I have the same problem and I found out about this deficiency in a book I had from the 80’s and the author passed away during the Covid-19 on 2022 therefore I try calling him but he was gone. He told us that nobody knew about this disease and he goes on to tell you about the lack of vitamin B-1 or thiamine I was astounding because it was exactly what I had and I kept reading I had this book since the 1980 and it was know 2023 to make a long story short I bought everything on line and I started to drink the protocol 3 times per day but it was too much and I became sick. It was hard because I was not able to consult the doctor because he was no longer around. But he did say that the Mack of vitamin B-1 did make your heart weak to the point that you will died and you needed infusions of B-1 in order to survive and everybody is afraid to perform that because the you know who! I kept looking 👀 and I did find places to the the infusions but it’s not cover by the insurance and it’s almost 250.00 dollars per session and you need to do at least 4 per month in the beginning! I also found out that certain foods has B-1 like pork chaps, beans 🫘 and many other things the problem is the fact that you can’t simulate that that’s where the problem begins. Therefore you needs the infusions to kick it off. I will continue to seek the help until I find it.
I’m a doctor myself and got my own results yesterday. I have wet beriberi. I almost gaslit myself because we are taught this doesn’t happen in the first world. I’m 36 non drinker, and eat healthier than anyone I know. There must be other causes or our food is so vitamin deficient we might as well be starving.
You did not distinguish these three:: 1) the oll soluble thiamine supplement alleged to to be therapeutically more efficacious [ i.e. Bentofamine ] vs 2) the methylation, enzymated, active form found in legitimate supplements vs 3) the cheap,fake useless water-based thiamine which comes with an UPS approval seal that your RUclips viewers will go buy at Big Box stores.
@@Kelly_Silverman I take 3 things. 1 ]] benfotiamine recomm by Dr Eric Berg 2]]] a teaspoon of nutritional yeast over food [ but never heated] recomm by Dr Eric Berg & 3 ]] Pure Encapsulation B-Complex Plus as recomm by Mark Hyman, MD
@@chuckbecker8735 Thanks Chuck. I'm taking benfotimone by Dr. Best and I think I took too much yesterday for the first time, so I'm going to scale back today.
@@chuckbecker8735 I'm new to this... So I took 300 mg three times the other day and I believe that was too much because of how I felt later on that night. So, I'm looking for a good dose rate myself lol! From further research, I found out that you're supposed to build up to a dose like that. Today I'll take two 300 mg and see how that does. Just took one this morning and I'll take another around noon or so.
It's hard to believe some people in 1st world countries still get this and scurvy because of extremely limited diet usually due to a mental illness or eating disorder. People still get scurcy occasionally.
Wrong. Its because our food is deficient in vitamins and minerals and because of peoples terrible food choices. This is what causing mental issues. Time for orthodox medicine to wake up.
Hello, Thank you for the videos. I saw your video on wernicke's encephalopathy . There is no mention on heart issies or muscle pain on that video. Why is it separated? A family member is having these issues. Do they go away with time?
Watch eonutrition video on the use of thiamine. He goes into a lot more details about the causes of low thiamine and treatment using thiamine, magnesium.
Dry beriberi can have asymmetrical symptoms, it’s not always symmetrical. I only had peripheral neuropathy on the right side of my body, mostly in my right foot.
Where you can get pure b1 from? In Germany that is only in supliment Mixes. And it's too less. E.g. in the micropelets "Sport Mix" from Doppelherz is only 2,8 mg B1 but it says it's 255% of the daily dose.
My lady cousin has sciatica problem. I told het son, who is in business of allopathy medocine wholeseller from last 12 years, that, give your mom vitamin B 1, thiamine then he replied, that they did MRI but found nothing. Now, he will give calcium. His toning is, whether he know better or I know better. As I oppose allopathy drug, he is angry with me.
My cousin struggled with beriberi for months. Traditional meds weren't working, but once she switched to Planet Ayurveda's herbal supplements, things improved so quickly! Their products are all-natural, and the best part is, they don’t have any side effects.
I’m so glad for the internet and for channels like this! I’ve been dealing with chronic ibs and fatigue for years and tried to treat that by switching to a mostly vegan diet which didn’t cure me either. I’m a dancer and martial artist so I exercise several hours daily and over a the last year, my symptoms evolved into paresthesias, muscle pain and weakness and weight loss to my dismay and then I started having these weird, frightening episodes where I’ve been absolutely terrified that I might be dying because I start to slur and lose cognition and can’t walk or stand up without fainting. They usually happen during a workout or at the end of the day and it took a long time to realize that in addition to the obvious triggers, fatigue, dehydration, stress…one thing that definitely brings these on is sugar. Every time I go to the hospital they just drug and alcohol test me and then tell me it must be in my head, but sometimes they gave me saline solution and when they’ve done that, I feel sooo much better for a few days. I’m really hoping I’ve found what’s wrong because at this point, everyone thinks I’m psycho with some imaginary illness and I’ve been really scared for my life and well-being knowing something is seriously wrong. I tried taking a b complex and it did not help, but the I finally found a supplement with just B1 and I started 250mg a day and so far, no new scary spells. And I discovered some med spas offer IV drips for athletes. If this is it, you might just be saving a life! I’ve been starting to think I might actually be going crazy the way doctors treat me, but it makes sense since I haven’t been eating processed, fortified foods or meats thinking all this time I was doing what I should to get healthier. Everyone talks about protein and b12 deficiency with vegan diets, but nobody ever told me about thiamine. Fingers crossed!
Try Dr. Berg's B-i.
Hi, how are You?!
Watch Elliot videos from EOnutriction, very very helpful.
eat plenty jamun fruit (black plums).works great for tp2d for my cousin who daily goes to the gym and keeps fit.hope this might be of some help.
Sad that most doctors misses this symptom and had missed diagnosis, or just ignore them all together because lack of knowledge or just AFRAID TO SAVE LIVES. I have read some articles about how high doses thyamine plus vitamin C high doses can virtually take a very ill patients OUT OF COMA!! My mom died because the doctor didn't have a clue about thyamine and vitamin C will totally treat acidosis and sepsis, very high doses. If only use vitamin C , it must be consider 150.000mg intravenously, and after the patient start to feel better you must continue the treatment couple days longer, IF stop the patient will relapse. After patient it's much better continue with 5000mg liposome oral. If use thyamine for lactic acidosis and sepsis, doses of thyamine intravenously must non less than 500mg three times a day for minimum 4 days, also you can add a great dose of vitamin C with the thyamine. After patient feels better, doses of 200mg or higher must continue ORALLY indefinitely. Specifically those that is candidate for intubation, MUST CONSIDER thyamine plus vitamin C as a first line of treatment, as intubation puts them at a much higher risk for mortality . There no harm og thyamine high doses neither does vitamin C, the risk is NOT give it to them. By not receiving this simple treatment the mortality rate goes up each minute of the day. Doctors dont need to yelli at the hospital that the patient need high doses vitamin C, just be discreet, and order a test for vitamin C and you will see that is almost non existent in the very ill patients, and that's why progresses fast to sepsis.
THANK YOU .
YOU'VE INCREASED THE QUALITY OF MY LIFE CONSIDERABLY .
FURTHERMORE ; I KNOW NOW I'M NOT GOING MAD .
I am recovering from beri beri... B1 supplementation is key and a major overhaul of the diet is required to as many natural foods and foods high in B1. I am finding Ayurvedic medicine by far the best help in this area. Thanks for the Vid.
Hello, how long did your symptoms last?
Very sad that doctors often misdiagnose patients ALL THE TIME, many people lose their lives from misdiagnose. I lost my mom from heart failure, I have been studying a lot about this, I now know that was wet Barbieri. I told the stupid doctor in charge that she needed very high doses of thyamine intravenously 3 times a day, doses of 500mg, but he refused to understand what I was talking about. She progressed to sepsis and your organs started to fail,,,,I cant let go of this, its have been 17 months, and feels like yesterday 😭😭😭😭 theses doctors must review the text book all the time, to avoid misdiagnose their patients, they should be accountable for their mistakes and the lives of all those people they KILLED
Doctor do not want to cure, because they will loose income permanently. So, what they do, keep you alive on drugs or let the patient die, but not to cure.
Sorry for your loss.
A sad story indeed.
Usually in most hospitals there is a "customer care desk" were you can launch enquiries, etc
Post mortem exams can be requested to be conducted etc, if things are not clear.
Once again sorry for your loss.
There's a need to always hear each other out "medical staff and their clients" and exercise all Ethical requirements in the background of evidence based medical practice
If you knew your mom needed b1 vitamin, why didn't you just give it to her yourself
About a year ago I got a shot in my glute that hit a nerve. This extreme pain actually kept getting worse over a period of three weeks. During this time, my metabolism had shifted away from keto and I was craving carbs badly. I might add that I have Celiac and Crohn's. I learned that Benfotiamine could help and started taking it. My nerve pain went away in less than two days! I'm here again because I'm suspecting low Thiamine again. This time, also eating more carbs than I'd like, I have developed a Ganglion Cyst on the palm of my hand. I always thought they were inflammed tendons but rescently learned that they often are nerves that become symptomatic in the presence of joint problems. I have arthritis too. I had been lowering my dose of TTFD due to cost. I just ordered more TTFD and Benfortiamine to see if this cyst will resolve. Maybe it will help my fatique too.
Thank you for the video. I learning new things everytime i watch it
Eating rice especially white rice gives beri beri symptoms 😢 via inflammation of gi tract, only benfotiamine helped take away the limb swelling
Excellent information. Thanks so much 🙏🏼
Totally true I have the same problem and I found out about this deficiency in a book I had from the 80’s and the author passed away during the Covid-19 on 2022 therefore I try calling him but he was gone. He told us that nobody knew about this disease and he goes on to tell you about the lack of vitamin B-1 or thiamine I was astounding because it was exactly what I had and I kept reading I had this book since the 1980 and it was know 2023 to make a long story short I bought everything on line and I started to drink the protocol 3 times per day but it was too much and I became sick. It was hard because I was not able to consult the doctor because he was no longer around. But he did say that the Mack of vitamin B-1 did make your heart weak to the point that you will died and you needed infusions of B-1 in order to survive and everybody is afraid to perform that because the you know who! I kept looking 👀 and I did find places to the the infusions but it’s not cover by the insurance and it’s almost 250.00 dollars per session and you need to do at least 4 per month in the beginning! I also found out that certain foods has B-1 like pork chaps, beans 🫘 and many other things the problem is the fact that you can’t simulate that that’s where the problem begins. Therefore you needs the infusions to kick it off. I will continue to seek the help until I find it.
I’m a doctor myself and got my own results yesterday. I have wet beriberi. I almost gaslit myself because we are taught this doesn’t happen in the first world. I’m 36 non drinker, and eat healthier than anyone I know. There must be other causes or our food is so vitamin deficient we might as well be starving.
Do you mind me asking how low it has to be to cause serious issues ?
You did not distinguish these three:: 1) the oll soluble thiamine supplement alleged to to be therapeutically more efficacious [ i.e. Bentofamine ] vs 2) the methylation, enzymated, active form found in legitimate supplements vs 3) the cheap,fake useless water-based thiamine which comes with an UPS approval seal that your RUclips viewers will go buy at Big Box stores.
What do you suggest? I have benfotimone by a company called Dr Best on Amazon.
@@Kelly_Silverman I take 3 things. 1 ]] benfotiamine recomm by Dr Eric Berg 2]]] a teaspoon of nutritional yeast over food [ but never heated] recomm by Dr Eric Berg & 3 ]] Pure Encapsulation B-Complex Plus as recomm by Mark Hyman, MD
@@chuckbecker8735 Thanks Chuck. I'm taking benfotimone by Dr. Best and I think I took too much yesterday for the first time, so I'm going to scale back today.
@@Kelly_Silverman Would you kindly recommend a dose range ....maybe I'm taking too much and don't even know it.
@@chuckbecker8735 I'm new to this... So I took 300 mg three times the other day and I believe that was too much because of how I felt later on that night.
So, I'm looking for a good dose rate myself lol! From further research, I found out that you're supposed to build up to a dose like that. Today I'll take two 300 mg and see how that does. Just took one this morning and I'll take another around noon or so.
My little sister had a gastric sleeve operation, after drinking very heavy . 1 liter Vodka perday over one year and a half now. Its bad.
It's hard to believe some people in 1st world countries still get this and scurvy because of extremely limited diet usually due to a mental illness or eating disorder. People still get scurcy occasionally.
Wrong. Its because our food is deficient in vitamins and minerals and because of peoples terrible food choices. This is what causing mental issues. Time for orthodox medicine to wake up.
@@Noor-jw2tn Also very bad dietary advice from evil organizations like WHO.
Western diets actually.
Thanks you so much 🙏🙏🙏🙏
Well explained
Metformin caused dry beriberi in my uncle. Metformin was blocking b vitamins and he ended up with foot drop.
Thank you. Excellent information. As a nurse I love our banana bags for our ETOHers.
I have dry beri beri/wet. I gained nystagmus, chest pain, and high pulse rate. Take nutritional yeast non fortified, and benfotiame.
I have WE I have Ataxia and nystagmus
Sciatica is also due to defeciency of B1 thiayamine. It is related to nervous system. Dry beriberi?
Good afternoon sir and thankyou so much for this explanation for me thankyou so much sir and good afternoon again
Could beriberi be misdiagnosed and mistaken for Parkinson’s Disease?
Yes.
Sir! Thank you so much😇😇
Hello, Thank you for the videos. I saw your video on wernicke's encephalopathy . There is no mention on heart issies or muscle pain on that video.
Why is it separated? A family member is having these issues. Do they go away with time?
Watch eonutrition video on the use of thiamine. He goes into a lot more details about the causes of low thiamine and treatment using thiamine, magnesium.
@@micaonyx5301 thank you
Dry beriberi can have asymmetrical symptoms, it’s not always symmetrical. I only had peripheral neuropathy on the right side of my body, mostly in my right foot.
I was on the verge of heart failure because of beriberi
Mr Tron, I hope you will live a very long happy, and healthy life ❤
Where you can get pure b1 from? In Germany that is only in supliment Mixes. And it's too less. E.g. in the micropelets "Sport Mix" from Doppelherz is only 2,8 mg B1 but it says it's 255% of the daily dose.
So what doctor would test for this? because insurance may not want to cover this test?
Thank you for the explanation...
so dry could be leg cramps, cold feet, etc?
Hands too
Leg cramps I use magnesium oil transdermallly
thank you so much
Poor dietary intake can also be long term fasting while also having digestive issues.
My lady cousin has sciatica problem. I told het son, who is in business of allopathy medocine wholeseller from last 12 years, that, give your mom vitamin B 1, thiamine then he replied, that they did MRI but found nothing. Now, he will give calcium. His toning is, whether he know better or I know better. As I oppose allopathy drug, he is angry with me.
Who else has symptoms of wet beriberi? I can't find a dr that can help me.
Buy some benfothiamin 1000mg in the mean time, see if your symptoms reduce.
Rickets ka introduction batto na please😮
My cousin struggled with beriberi for months. Traditional meds weren't working, but once she switched to Planet Ayurveda's herbal supplements, things improved so quickly! Their products are all-natural, and the best part is, they don’t have any side effects.
Hamı ingilisdi ee burda Azərbaycan varmı ,?ve ya türk 🇦🇿🇹🇷😁
Eat Marmite every day.
1
Well explained