Hoping this turns out as well (hell, BETTER!) than last year did. While it's not as severe or rare as Syngap, my sister has Cystic Fibrosis, so I'm very on board with things of this nature. Here's to hoping one day ALL diseases such as these are no longer an issue for anyone. It's not much, but happy to help
0:33 Just 1,000 diagnosed people, but I'm sure there a lot of children on undeveloped countries that have the disorder but the parents doesn't have the resources or competent doctors/hospitals to diagnose and treat their kids...
Hey man, I'm not sure if you'll see this but I was that goofy dude who showed up and gave you that care package at the 4090 launch. I didn't know the extent of your son's condition. I'm actually epileptic but thankfully it's under control. Even having a few seizures in your life can really alter one's life. I hope and pray that a treatment is found soon! See you at the cannonball!!
I'm in my 40's...and just this past weekend suffered from my first two seizures, were bad enough to take away my license. Count me in on this fundraiser, I can't help but to help.
Jesus. I have no words dude. You’rE actually SO SPECIAL to bring your sons love to our eyes. Thank you for showing me this. Honest to god, this is wild. You’re very brave.
My heart goes out to you. My son has seizures from birth. His brain drowned and we were lucky he didn't die. But he had so many seizures it's unreal. Some lasting for hours. We were informed, his chances of survival past 25 years is 1%>. His seizures have since stopped due to some meds. I hope you find a cure for your boy, I doubt I will see the event. Being in GB our time zones are an issue. Wish you all the best. I have heard that CBD good for seizures but can't confirm as it's still illegal in UK.
I really wish you, your son, your family and your staff all the best. You've been one of the strongest group of people I've ever seen in my life. I'll be honest, I'm not in a financial position to contribute to this cause right now do to me being unable to work due to an illness of my own, but I genuinely wish you the best. Good luck with this event, hopefully I'll catch you when you're live to offer my time!
Really hope that the research be a success, no one can contemplate how much the suffering is other than the person fighting with it. Get well soon Emmit, and all the people that have to deal with such genetic disorders.
I’m so proud of what you’ve achieved. I lost my sister last year, she didn’t have seizures but she was severely ill when she was born, she was born premature. The NHS Wanted to turn her life support off, which my parents fought to keep on. I’m so proud of the work you are doing, I hope he gets better soon!
Man, keepin' you and your son in my prayers. You're good people, and keep up the good work, glad to see you being so proactive in supporting the search for the cure.
Seeing your son have those seizures just brought tears in my eyes. As a father with a son who suffers from his own disabilities (but nothing severe or life threatening), my heart goes out to you and all those out there having to deal with such a disorder. :(
My favorite part of RUclips is how people will come together for issues like this! Health issues of any kind suck, and it is cool to see communities to donate to help others! I really hope that this event goes well for you!
This is just an incredible thing you are doing for your child, using your platform and influence to not only bring tech companies and even other tech youtubers together, but to bring people together in general for a righteous cause. As finding a cure for your son, also can be a cure for a 1000 other people, and who knows how many more in the upcoming decades and centuries that end up with this rare genetic disorder. And you aren't just doing it in a way where you raise funds to do some crazy entertaining thing (such as the butt tattoo), but also make sure you give back directly to the community that's supporting you. I do a similar event built around the summer gaming news stuff in june where I give back everything I can, I pull every connection I have made, to give as much stuff back to gamers as possible, but there is no fund raiser attached to doing so, and it's something I have considered adding for some time to help cure some of hte many disorders plaguing innocent children. As always, you are an inspiration. Speaking more personally - I have suffered seizures in my youth and an considered a "high risk" for a seizure as an adult - and that seizure can kill me. Every day I am on this planet is a blessing. Thankfully my risk factor only gets scary if I suffer head trauma, because if I am not helped in the proper way within 30 seconds, I could literally die. It's just not cool. I don't even remember what it's called that I suffer from as I have almost no memory of the seizures I suffered until nearly 10 years old. That's because the seizures I had affected my memory in general. I had to relearn how to tie my shoes over 100 times. Let alone relearn how to walk, my name, and so much else. Every seizure was like a blank slate to my life. And what's scary now is if I have it as an adult, is it going to blank slate me again even if I do survive? How do I deal with that reality when I'm raising 3 children? They did, by the time I turned 10, finally figure out what I was suffering from and found medication that worked - because at the time what I had was so rare they didn't even have documentation anywhere on it. After being on that medication for a couple years, the seizures stopped, but I was warned that severe head trauma could trigger it again. The point is, while I am knocking on wood and may NEVER have one again, the fact my life just got erased all the time for 10 years is just... I can't even imagine it. Thankfully it wasn't one of those things that lead to full on epilepsy or any cognitive or physical issues long term. It was literally something in my brain that was like a trip wire that would just snap whenever it felt like it. So glad those days appear to be behind me. I will be donating to the cause, whatever I can afford.
I’ll be watching from the uk. My youngest also has significant additional needs, and it’s hard, but we’ll always do all we can for them. Good luck on the cannonball and I realy hope that the research this funds can help ease his symptoms and one day cure everyone with syngap1.
My Heart is out to you and family Brett. My Wifes Daughter has been plagued her whole life with something like this. She is 48 years old now. Your cause is noble. You have my support.
I feel like a character in a movie watching this and analysing how you feel in my mind because you can hear every emotion in your voice. I truly hope that you can one day find a cure and wish you the best of luck and happiness with your son. ❤
Along with your wife's support, your dedication to contributing to finding a curing for your son while maintaining your business and taking care of the rest of your family is inspiring.
Love that you have you're kid on the show. It gives more acceptance of "different" people in the world. Hav friends with epilepsy and other movement problem. Me myself have a undiagnosed studdering in my muscles that I know you r giving hope in you're work in your son. If it's brain related it's work to all with "brain" issues. Love you man and all the power to you and you're famely.
This is so unfortunate. 😥 But he's a lucky boy to have a Dad like you, going to any length you can to help the cause and contribute towards finding a cure 💪🏻
Great to see sooo many sponsors coming forward to help support a worthy cause 💕🥰👍. There’s sooooo much good I this world and all we hear is the bad on the news 😞😢. The good that is done by many should be reported more by all news outlets and would encourage more people to do more 😇🥰🥳🤩
I can't imagine what your heart goes through for your son. I will keep he and you in my prayers. All things have purpose, but some things are so hard. I pray he recovers completely and you have the opportunity to see him blossom fully as a man.
I hope that a cure is found for your son soon. You have been doing an amazing job and have been an amazing dad for him. I hope when i have kids I am half as good a dad as you are. You are an inspiration and i honestly wish you all the best. I will do what I can to watch as much of your stream as possible and ill try donate, it may not be much but i hope every little piece counts
I hope that this is cured eventually. I had no idea your son was suffering in this way, I'm sure with a father like you he will have so much love to overshadow the suffering he endures. Keep your head up king.
Cheers to Brett for using this platform to bring more awareness to the world about syngap. Very honorable work guys, and wishing the best to your son and family!
BrettDad is a great dad. Your work with these cannonballs and charity streams will pay dividends for more people than you can imagine. This is how you build a legacy.
Man, not every body deserves someone who loves them as you love your kids, but man, the world would be a better place is 1/10 of the world do as great as you do.
I pray that God helps your son,help you and your wife to overcome this situation. My brother is 32 years old 100 % disabled man with autism and epilepsy...I know how hard and painfull is to struggle with this, since I grew up with him and taking care of him when my parents were at work... I really hope for the best for all of you,I've been following your channel and your work for 4 years and I really support you my friend. I wish you all the best in your life,greetings from Slovenia...
There's a specialty children's hospital in Minnesota called Gillette's Children's Hospital. They have amazing doctors and nurses. A lot of their patients are from out of state as well.
Fuck, this breaks my heart, my first son had small brain damage when born, I didn’t know the outcome in the first years( still there are uncertainties), he has developed fine until now, 4yo , the potential issues are similar to your son’s, global delay, speech delay, cerebral palsy, seizures, this left me extremely sensitive to children with health issues . 😢 Lets do all we can for the little guy.
You’re an amazing dad. Sir, please open a go fund me for anything your son may need from treatments to medications or anything. I hope you don’t see it as begging or anything because it’s not. It’s for your son and we would be more than willing to help you directly as well. You’re holding up well considering the circumstances and you’re a strong and loving dad and we can all see that. You’re deserving of some help. We all see your work ethic to give the best life you can for your family. Let us help you directly too.
I live in persistent pain, I know his pain, I know your families pain, I’m sorry and I full on feel and support this awareness, I have tons of hope for him and I, two different conditions but we are both suffering so I’m banking on a cure soon for many things. I research a lot online and keep up to date with medical advancements, it’s all looking very promising with CRISPR, Stem cell and other applications, it’s all just maturing. My video games get me through the pain but it’s not enough, I’m unmedicated because I don’t be on pain pills for life, they’re not meant to be takin for decades so what gets me through the days is hope, video games and your videos
Honestly, I've tried running the streams in the background and playing video games during so you still get the watch time. Always fails. I always end up watching the stream. I almost missed the fire on the stream on Friday and I'm glad I didn't. Gonna help however I can and I can't wait for the stream. Now, imma go buy a shirt
You're an amazing Dad. Good luck Brett.
❤️ Strong family. 💪 🙏 little soldier!
Hoping this turns out as well (hell, BETTER!) than last year did. While it's not as severe or rare as Syngap, my sister has Cystic Fibrosis, so I'm very on board with things of this nature. Here's to hoping one day ALL diseases such as these are no longer an issue for anyone. It's not much, but happy to help
We’re going big this year boys! Here’s to curing Syngap 🎉
Amen and god bless
To curing syngap 🙌🏼
Let's frickin' go!!!
Lets go!!
Amen brothers
0:33 Just 1,000 diagnosed people, but I'm sure there a lot of children on undeveloped countries that have the disorder but the parents doesn't have the resources or competent doctors/hospitals to diagnose and treat their kids...
Hey man, I'm not sure if you'll see this but I was that goofy dude who showed up and gave you that care package at the 4090 launch. I didn't know the extent of your son's condition. I'm actually epileptic but thankfully it's under control. Even having a few seizures in your life can really alter one's life. I hope and pray that a treatment is found soon! See you at the cannonball!!
It’s so nice to see a loving and caring family not only support their child but to help others and help find a cure…..for that we all thank you.
I'm in my 40's...and just this past weekend suffered from my first two seizures, were bad enough to take away my license. Count me in on this fundraiser, I can't help but to help.
I’m sorry to hear about your seizures, friend. Hoping for a swift recovery.
@@UFDTech I'd take dozens more if it meant it would cure your son.
Thank you for the kind words.
@@Innocuils ♥️
From one dad to another, I feel for you man, this just breaks my heart. Will be supporting Oct 21!
My heart breaks seeing what you as a loving family have to through, each and every day… your optimism is absolutely inspiring.
Jesus. I have no words dude. You’rE actually SO SPECIAL to bring your sons love to our eyes.
Thank you for showing me this. Honest to god, this is wild. You’re very brave.
My heart goes out to you. My son has seizures from birth. His brain drowned and we were lucky he didn't die. But he had so many seizures it's unreal. Some lasting for hours. We were informed, his chances of survival past 25 years is 1%>. His seizures have since stopped due to some meds. I hope you find a cure for your boy, I doubt I will see the event. Being in GB our time zones are an issue. Wish you all the best. I have heard that CBD good for seizures but can't confirm as it's still illegal in UK.
I really wish you, your son, your family and your staff all the best. You've been one of the strongest group of people I've ever seen in my life. I'll be honest, I'm not in a financial position to contribute to this cause right now do to me being unable to work due to an illness of my own, but I genuinely wish you the best.
Good luck with this event, hopefully I'll catch you when you're live to offer my time!
Best wishes to your family!
Really hope that the research be a success, no one can contemplate how much the suffering is other than the person fighting with it.
Get well soon Emmit, and all the people that have to deal with such genetic disorders.
I’m so proud of what you’ve achieved. I lost my sister last year, she didn’t have seizures but she was severely ill when she was born, she was born premature. The NHS Wanted to turn her life support off, which my parents fought to keep on. I’m so proud of the work you are doing, I hope he gets better soon!
You're an amazing dad. I hope you meet your goals and beyond.
Man, keepin' you and your son in my prayers. You're good people, and keep up the good work, glad to see you being so proactive in supporting the search for the cure.
You're a great man and an even better dad. Sending love and support here in the uk. Cant wait to tune in
Jeez, I'm so sorry for him, I hope he perseveres
Seeing your son have those seizures just brought tears in my eyes. As a father with a son who suffers from his own disabilities (but nothing severe or life threatening), my heart goes out to you and all those out there having to deal with such a disorder. :(
Good luck Brett! This world needs more people like you
Friends of mine have a daughter with the same condition… I wish you and your family all the best!
You deserve all the support for being such a strong amazing dad
As usual, you are the goat, keep it up and good luck with the charity event!
Congrats to the sponsors for this year's event. That's incredible! And good job Brett, you are a fantastic dad and human being!
My favorite part of RUclips is how people will come together for issues like this! Health issues of any kind suck, and it is cool to see communities to donate to help others! I really hope that this event goes well for you!
This is just an incredible thing you are doing for your child, using your platform and influence to not only bring tech companies and even other tech youtubers together, but to bring people together in general for a righteous cause. As finding a cure for your son, also can be a cure for a 1000 other people, and who knows how many more in the upcoming decades and centuries that end up with this rare genetic disorder. And you aren't just doing it in a way where you raise funds to do some crazy entertaining thing (such as the butt tattoo), but also make sure you give back directly to the community that's supporting you.
I do a similar event built around the summer gaming news stuff in june where I give back everything I can, I pull every connection I have made, to give as much stuff back to gamers as possible, but there is no fund raiser attached to doing so, and it's something I have considered adding for some time to help cure some of hte many disorders plaguing innocent children.
As always, you are an inspiration.
Speaking more personally - I have suffered seizures in my youth and an considered a "high risk" for a seizure as an adult - and that seizure can kill me. Every day I am on this planet is a blessing. Thankfully my risk factor only gets scary if I suffer head trauma, because if I am not helped in the proper way within 30 seconds, I could literally die. It's just not cool.
I don't even remember what it's called that I suffer from as I have almost no memory of the seizures I suffered until nearly 10 years old. That's because the seizures I had affected my memory in general. I had to relearn how to tie my shoes over 100 times. Let alone relearn how to walk, my name, and so much else. Every seizure was like a blank slate to my life. And what's scary now is if I have it as an adult, is it going to blank slate me again even if I do survive? How do I deal with that reality when I'm raising 3 children?
They did, by the time I turned 10, finally figure out what I was suffering from and found medication that worked - because at the time what I had was so rare they didn't even have documentation anywhere on it.
After being on that medication for a couple years, the seizures stopped, but I was warned that severe head trauma could trigger it again. The point is, while I am knocking on wood and may NEVER have one again, the fact my life just got erased all the time for 10 years is just... I can't even imagine it.
Thankfully it wasn't one of those things that lead to full on epilepsy or any cognitive or physical issues long term. It was literally something in my brain that was like a trip wire that would just snap whenever it felt like it. So glad those days appear to be behind me. I will be donating to the cause, whatever I can afford.
Proud of you for being the dad and husband you are. You run a great channel here and I can’t wait to help support this cause.
Glad to see Kevin and Peter are going for another run.
I’ll be watching from the uk. My youngest also has significant additional needs, and it’s hard, but we’ll always do all we can for them. Good luck on the cannonball and I realy hope that the research this funds can help ease his symptoms and one day cure everyone with syngap1.
Your son is an absolute trooper. Our thoughts and prayers go out to him in hopes this disease can be eradicated ASAP.
My Heart is out to you and family Brett. My Wifes Daughter has been plagued her whole life with something like this. She is 48 years old now. Your cause is noble. You have my support.
I feel like a character in a movie watching this and analysing how you feel in my mind because you can hear every emotion in your voice.
I truly hope that you can one day find a cure and wish you the best of luck and happiness with your son. ❤
The idea that researching one disease could help cure other diseases is amazing.
Along with your wife's support, your dedication to contributing to finding a curing for your son while maintaining your business and taking care of the rest of your family is inspiring.
Love that you have you're kid on the show. It gives more acceptance of "different" people in the world. Hav friends with epilepsy and other movement problem. Me myself have a undiagnosed studdering in my muscles that I know you r giving hope in you're work in your son. If it's brain related it's work to all with "brain" issues. Love you man and all the power to you and you're famely.
This is so unfortunate. 😥 But he's a lucky boy to have a Dad like you, going to any length you can to help the cause and contribute towards finding a cure 💪🏻
Being a father and watching one of your children suffer is just awful. Stay strong. I wish your family the best.
Great to see sooo many sponsors coming forward to help support a worthy cause 💕🥰👍. There’s sooooo much good I this world and all we hear is the bad on the news 😞😢. The good that is done by many should be reported more by all news outlets and would encourage more people to do more 😇🥰🥳🤩
Congratulations on the sheer amount of support given to the last one, and I hope a cure can be made asap.
I can't imagine what your heart goes through for your son. I will keep he and you in my prayers. All things have purpose, but some things are so hard. I pray he recovers completely and you have the opportunity to see him blossom fully as a man.
I hope that a cure is found for your son soon. You have been doing an amazing job and have been an amazing dad for him. I hope when i have kids I am half as good a dad as you are. You are an inspiration and i honestly wish you all the best. I will do what I can to watch as much of your stream as possible and ill try donate, it may not be much but i hope every little piece counts
I pray that your son will get better soon. Stay strong and hang in there, Bret.
As someone with a brother with cerebral palsy, thank you so much for putting out videos like this and hosting events. You are doing god's work
Thank you for sharing your story. I used to have epilepsy myself and grew out of it. You and your family are strong, keep up the amazing work.
You're one hell of a dad, sir.
Really puts some things in perspective for me to slow things down and enjoy the time I have with my kids.
I hope that this is cured eventually. I had no idea your son was suffering in this way, I'm sure with a father like you he will have so much love to overshadow the suffering he endures. Keep your head up king.
Cheers to Brett for using this platform to bring more awareness to the world about syngap. Very honorable work guys, and wishing the best to your son and family!
Our love to your family. We will be watching and donating. Keep up the fight for your adorable boy.
Will keep your boy in our prayers. You are a real dad, a real man.
So excited for this year's cannonball
AAAAAAAAND for a cure!
Having a kid myself I felt this 1. Hope all is well with you and your family! Love the channel and God bless. Best of luck with everything
Dude, you are awesome. Best wishes for you and your family, especially for your beautiful child!
This is amazing, love this video. Best of luck to you and your family
BrettDad is a great dad. Your work with these cannonballs and charity streams will pay dividends for more people than you can imagine. This is how you build a legacy.
I youst to have seizures 4 times a year from the ages of 3-11. But your son. He's one hell of a trooper.
wow dude, i truly hope n pray you wee boy gets better and has a much healthier life a head, 20'000 in a year my heart breaks for you
Keep fighting the fight, what ever comes anything learned can only benefit. I wish I could do more.
Grand Mal Seizures suck. My family is affected by them directly. Looking forward to this event.
Thanks
You're a hero!
Thanks for being an awesome Dad!
Let's go!
You guys are incredible. I wish you all the best and look forward to the event.
Being the fact that I treat and love working with kids with disorders ... I'm sharing this far and wide as much as I can. #ChoosePT
I have a history of seizures. Nothings scarier than going from having a conversation to being in a hospital with no idea what happened in between.
I know this is a tech channel, but the more person life videos of yours are my favorite.
Keep it up and best of luck to yall and your son!
Man, not every body deserves someone who loves them as you love your kids, but man, the world would be a better place is 1/10 of the world do as great as you do.
I wish you the best. Good luck on the charity! Can't wait.
You're a great dad. Immediately used his online presence to help his son and others. Full stop.
I pray that God helps your son,help you and your wife to overcome this situation. My brother is 32 years old 100 % disabled man with autism and epilepsy...I know how hard and painfull is to struggle with this, since I grew up with him and taking care of him when my parents were at work... I really hope for the best for all of you,I've been following your channel and your work for 4 years and I really support you my friend. I wish you all the best in your life,greetings from Slovenia...
Let's get that fuckin cure boys. Supporting this cause 💪🏽
Stay Strong. I wish more fathers were like you.
You are an amazing father....thoughts and prayers to you and your family
All the best wishes... Hope your son gets cured soon...
Will there be offline event in California?
We really wanted to, but couldn't put anything together. We're already working on potentially doing a LAN next year.
Hope he gets all the help and support he needs 👍
Awesome initiative, keep up the great work and good luck
Proud of you dude. Thanks for all you do.
There's a specialty children's hospital in Minnesota called Gillette's Children's Hospital. They have amazing doctors and nurses. A lot of their patients are from out of state as well.
Fuck, this breaks my heart, my first son had small brain damage when born, I didn’t know the outcome in the first years( still there are uncertainties), he has developed fine until now, 4yo , the potential issues are similar to your son’s, global delay, speech delay, cerebral palsy, seizures, this left me extremely sensitive to children with health issues . 😢
Lets do all we can for the little guy.
Hopefully some day there is a cure man you seem like a great dude and father.
You’re an amazing dad. Sir, please open a go fund me for anything your son may need from treatments to medications or anything. I hope you don’t see it as begging or anything because it’s not. It’s for your son and we would be more than willing to help you directly as well. You’re holding up well considering the circumstances and you’re a strong and loving dad and we can all see that. You’re deserving of some help. We all see your work ethic to give the best life you can for your family. Let us help you directly too.
Holy moly 20k in one year!!! I wouldn't have the strength to deal with that if my kid had that issue.
I live in persistent pain, I know his pain, I know your families pain, I’m sorry and I full on feel and support this awareness, I have tons of hope for him and I, two different conditions but we are both suffering so I’m banking on a cure soon for many things. I research a lot online and keep up to date with medical advancements, it’s all looking very promising with CRISPR, Stem cell and other applications, it’s all just maturing.
My video games get me through the pain but it’s not enough, I’m unmedicated because I don’t be on pain pills for life, they’re not meant to be takin for decades so what gets me through the days is hope, video games and your videos
The love of a father ❤️
Amazing Father as always.
poor kid man... i wish u the best of luck one of the big reasons i watch your videos besides the good content
Stay strong and keep on believing.
i hope they will find that cure in near future, wish best for u and ur son
Will definitely be watching!
Dude you're so strong and brave both of you 🥰
Dang, bought tears to my eyes.
I wish the best for him.
Strong guy! Keep pushing on you’ve got this! 👏
Honestly, I've tried running the streams in the background and playing video games during so you still get the watch time. Always fails. I always end up watching the stream. I almost missed the fire on the stream on Friday and I'm glad I didn't. Gonna help however I can and I can't wait for the stream. Now, imma go buy a shirt
I hope they’ll find a cure for your son. Good luck with the fund raiser ❤️
I hope to see you in NYC
Give him a huge hug from me mate please. Hope everything goes fine man.
Looking forward to the stream and for you to raise a heck of a lot for the cure!
man i cant wait to this years cannonball. i pray you can find a true cure! I CANT WAIT
I just want to tell you all: Good luck. We're all counting on you.