Hey, don't ever feel bad for making this kind of video. Aside from the main purpose of this video, it'll also act as an awareness. That's always a good thing. Stay strong!!
Agreed. There could be several people watching who have gone through this themselves or had loved ones go through it, it's always good to know someone else understands what you're going through.
The incredible energy you put into every video, i would never have guessed you had all this going in in the back ground...you guys are a credit to humanity. Best wishes
I work in Neurology (eeg) and have experienced patients with syngap. My heart goes out to you and your family. Kudos to you for raising money for this disorder.
Thanks for knowing about Syngap. If our EEG person had known about it, it would have saved us 3 months of testing & lots of medical bills. Unfortunately even our neurologist didn't even know about the disorder. 🤷♂️
I'm from Sri Lanka and we don't have many people sharing technical stuff like you do .. so i really like your work .. I'm very sad about what your family is going through .. hope your son gets better .. may God bless your family
You're a stronger man than I, by far. You've been living with this for ages now, and you never let it show in your work - I can't even imagine what kind of toll that must have been taking on you. Bless you, your family, and everyone at UFD.
Who the hell is leaving thumbs down!? UFDTech, thanks for having the courage to talk about such an important issue. I’m praying for you and your family. I hope great things are on the horizon for you all.
Had been a long time RUclips lurker of your channel and idk why but had never hit the sub button. Definitely hit now and will be here for the stream, I wish y'all the best of luck with everything and you are in my families prayers 🙏!
in 2018 my daughter was diagnosed with Epilepsy when she was 3 months old. I know what it's like to see your child seize... you have my deepest of sympathies and you have my hopes and prayers. We are now just over 16 months without a seizure on medication.
Wishing you all the best and I hope everything works out, the charity stream is a fantastic idea, let me know if I can help with anything, stay strong!
Dude, stay strong. I have mild cerebral palsy due to being born 2 months premature. I wish your son all the best and keep up your great work. If there is anything I can help you with, do drop me a message.
Had a son with a rare disorder and I understand the challenges (and opportunities!) that may bring. I wish you all nothing but the best of any situation, and very glad to see you using your platform to try and help your son and others.
Prayers to you and your family. I will be promoting your fundraiser as best as we can. And thank you for everything, all you do, and for sharing. It's hard to share such a private party of our children's lives, but knowledge is key. And your families strength and bravery is why you are where you are.
Wow. I can't wrap my head around the amazing amount of work you have been putting into the channel while at the same time suffering all of this. I'm stocked. I hope I can donate at least a little and help you out. Sending lots of love.
Sorry to hear about your son’s genetic disorder. Good that your wife and you decided to do this video to raise awareness, though it must be with sadness and grief. Pray that your family will pass the days as normal as possible. Be strong 💪
Sorry to hear this man, couldn’t imagine. At least your son has strong and caring parents to get him through it. If there’s anything outside of donating that I can do to help the stream please let me know.
From the heart of your London UK fanbase thank u for sharing guys...he is lucky to have such wonderful parents and u are held in our prayers and will have our support ALWAYS..
I welled up as soon as you started talking about your son and medical testing. I've got a two year old son, birthday was a week or so ago. He's my first born. I know that hurt for them when they're at the doctor and don't understand what's happening to them or why. Love you guys, all the work you're doing as a couple, and your outlook. Thank you for sharing something difficult to help others.
My heart just breaks for you guys! It’s so sad seeing children going through such hard diseases like this. You guys have huge hearts! Hoping for the best for your family and hopefully in time you guys will find stable treatment for him.
There is absolutely nothing worse that finding out there is something that threatens your child’s health. I feel for you and it’s incredible how you have found the strength to not only take of care of your family but also bring us very informative, entertaining and well articulated videos . I wish the best for you and yours going forward and hopefully you guys will find the best resources and answers that you are looking for in order to best treat your son. You’ll be in our thoughts and prayers.
I can see how much this is weighing on you, I'll be praying for you and your family and I'm really happy that you have this channel to generate the resources to be able to tackle this. Thank you for what you do brother, and you're not alone in this.
You, your wife and your children are an adoring family. Wish your son all the best, hope you can overcome this decease's difficulties. Cheers from Cape Town.
I'm not a regular viewer and came across this video by accident. As a father of a son with Down's, stay strong and keep going but above all: ask for help when you need it! On the practical side: take a look at the early intervention program. This helped the development of our son a lot!
Hey Brett and Mrs Brett, sending lots of love and support. Thank you for finding the strength to make this video, I can see it's not easy for you guys. I hope it does you and your son some good in time.
This channel is so positive, I can’t wait to help with the next charity drive. I’ll be praying for you guys and will definitely share the drive all over my social media, best wishes.
Hey man.... Fellow South African Christian here... I will pray for strength for you and your son for sure. I have 2 kids of my own and except for the love of God I don't think there is a bigger love. Where about in SA are you? Really Really all the best!!! Love your channel, please keep up the good work, online and offline! LOTS of love!
I'm a 3rd year nursing student and have to say thank you for opening your heart and your lives about struggles with rare situations. Your commitment to public awareness shows such deep hearts. Love you too.
Thank you for sharing your life with the rest of us. Inviting all of us into your personal lives. Sometimes we need the support from your fellow companions to get through tough times. You have our hopes and prayers.
Praying for your son today. Definitely tunning into the charity stream. As an uncle of a wonderfull 3 year old boy with autism, I can somewhat relate. You guys have the knowledge, the capacity, and most importantly , the neverending love, to go through this as a family.
You have always seemed like one of the most genuine and honest tech youtubers out there, as a farther hearing you speak about your son hits me hard, i cant begin to imagine going through this, i will deffo be tuning in for the live stream. love going to you and youre family from here in the uk.
I know the feeling of not knowing what is happening to a son, and I feel extremely lucky with the outcome seeing what other disorders and diseases are out there. It's great that you're rising awareness and trying your best to make a real change. Best of lucks with your child and his progress!
I'm so sorry your family is going through this, prayers for your son and family. I applaud your courage and resolve in this, I would definitely want to contribute to this charity. Stay strong brother!
It's unfortunate that this happened to you I know I was scared thinking my son had this or autism. I was relieved that people around me where there for my family to support and help. State teachers helped my wife and I out and they reassured us that he just had a learning problem. Prayers to you guys and good fortune!
My eldest son 10 now had a very bad heart condition called a Mitrovascular Valve defect that he was born with. He had to have open heart surgery at 6 months and were told by the surgeon it was the worst he’d ever seen he gave my son a week to live if he had not had the surgery when he did. Lucky the surgery went great (shout out to CHKD and their surgeons and staff) and he’s very healthy now he even didn’t have to take the medication any longer when he turned about 5 or 6 I believe. He did have delayed development due to it and has recently been diagnosed with autism but he is ours, he’s here, and we love him and wouldn’t change him for the world. Even when things look the worst there is always hope and every cloud has a silver lining. We will pray for you little one and your family. I wish the best for you.
We got hit with Trisomy 9 for our latest addition to the family. Your not alone bro. Time will go by and you will find ways to cope. Maintain a good home no matter what bro and love your boy regardless. Also, like other comments below don't be sorry. Hell you've motivated me to maybe make a vid on my boy. I would've never known this to be happening with how awesome your vids are man!
Praying for you and your family. Sorry to hear what you are going through. Not many people stay as humble as you and your wife and to be thankful when faced with challenging circumstances. I hope you guys raise a lot of money
been watching you for quite some time man and i always knew you had alot going on beyond the youtube channel. dont take this the wrong way but sometimes it seemed like you were really exhausted and running on fumes, yet you still gave us your all and entertained and educated us each video. also I think this really puts things into perspective for alot of the the viewers on what goes on behind the scene for you. Its sometimes good to give a candid glimpse into the lives of youtube personalities, not that your integrity was ever in question but it just solidifies you as a solid individual and great human being. I have no kids "yet" but i cant even fathom how it feels for you guys even i got emotional watching this video. my final take away from it being how lucky myself and everyone is that leads a relatively healthy and normal lifestyle , and we should all be extremely grateful for every day we get to spend on this beautiful earth doing the things we love... Much love homie, stay strong and I will be making donation when it goes live.
Hey stay strong and be strong. My thoughts and prayers for you and your family. Thanks for helping the community and being a voice. I wish the best for your beautiful son and wonderful family. "Love you too" Bless you all !!!
As someone who is 76 years old and been through similar circumstances for over 50 years I know exactly how you feel and I will make a donation directly to Syngap. I wish you good luck!
God bless you both, and your little boy...all my prayers...good luck to your charity stream...on a side note, a tiny rant not related to you guys..but HOW can anyone let alone 18 people as of my viewing do a thumbs down on this video...there are some truly mean people who would do a thumbs down for this...get a life you people...anyways...cheers for a great channel, an honest, lovely couple...and keep up the great channel and parenting work folks!
bro i can understand what are you passing through. all i can say is that i wish you from my heart all of the best of luck and best chances for your little angle.
You are an inspiration sir. To be dealing with everything that your going through, and continue to be so upbeat and release quality content is amazing. Makes me realize what I can do better in my own life. God bless, my prayers are with you and your family.
My little sister had seizures for about 4 years til a doctor recommended Topamax to my parents. She has been mainly seizure free for 15 years. I say mainly cause in the past 8 months she had 2 more, but it was because medication doses were changed and was changed back after she had them. I can’t say that it would be best for your son, but it’s nice to have more options.
It's never easy. From one person who has a rare disorder as well to you guys you're doing the best job you can do, keep it up and I wish you and your little man all the best.
God bless you Brett. You and your family have my full support and I will say a prayer for you. Also I hope I catch the charity stream but will share it when I do see it.
I can't even imagine my daughter going through like this but as a father I can feel and relate to the pain that you're face shows through your stoicism. My heart goes out to you & your wife and I hope treatment alternatives improve in the time to come.
It must be a big relief to finally know. Certainly a tough situation but at least you know how to proceed to make the best of it. All the best to you mate, you're an inspiration to many.
G'day Brett & Sydney (hope it's spelled like the city), sending lots of love for your family, It is a sad situation getting a Diagnosis like this especially for someone as young as your son, it is a Wonderful Event you are planning to raise awareness & funding of this disorder, I definitely will be joining in
As a 29 yr old father of a 2 year old son diagnosed with a rare fatal genetic disease called Spinal Muscular Atrophy or better known as SMA Type 1. Where his body does not produce the correct / right amount of proteins to support movement or strength. We've lived in hospitals for months and months at a time, visited many and many of specialist. We were told he would not make it past 2 yrs of age but look at him now he's about to turn 3 in August and is gaining strength and some movement. So I know how you guys feel, keep your head high and your minds in the right place and just be there for your little one for whatever and whenever he needs you. Thanks for this video and always staying positive!
As a new parent i'm amazed and inspired by the strength of you and you wife through this video. I hope to participate in the charity event on the 21st. I hope those with a channel and public influence support this as well, especially those in the tech community.
Hey, don't ever feel bad for making this kind of video. Aside from the main purpose of this video, it'll also act as an awareness. That's always a good thing. Stay strong!!
I agree with you!!✋
Agreed
Agreed, I certainly learned of this five minutes ago! ♥️♥️♥️
Wholeheartedly agree. Wishing you and your family well.
Agreed. There could be several people watching who have gone through this themselves or had loved ones go through it, it's always good to know someone else understands what you're going through.
Bro, , know what's you going through. My 2nd has Septo-optic dysplasia. Which... also extremely rare.
Pray to you and yours.
We pray for your 2nd too
Haha
@@dragonbond5609 Hey a douchebag right here, everyone give him the attention he wants, but in reality doesn't need.
Gelu karma will come to you duma$$
Didn’t realize septic-optic dysplasia was rare. I have that as well. It’s not that bad though if that makes you feel better. Pretty normal life at 28
The incredible energy you put into every video, i would never have guessed you had all this going in in the back ground...you guys are a credit to humanity. Best wishes
Real talk. You guys are awesome
Hey man, I am so sorry to hear this, I am praying for strength and peace for you and your family.
RMC Videographers don’t pray help it’s better it’s come that prayers are useless!!!!
Prayers to you and your family, hope your son recovers soon.
Prayer is just a way to feel like you're helping when you're doing nothing to help.
@@itsJPhere That's your opinion
@@totallyjerd1751 The prayer doesn't exactly help though.
Prayers to you and your family, I will be sure to be on during the stream to help contribute to this cause.
Your profile pic looks like an intel/amd processor running without a cooler
Why you not verified wtf...love your vids
I work in Neurology (eeg) and have experienced patients with syngap. My heart goes out to you and your family. Kudos to you for raising money for this disorder.
Thanks for knowing about Syngap. If our EEG person had known about it, it would have saved us 3 months of testing & lots of medical bills.
Unfortunately even our neurologist didn't even know about the disorder. 🤷♂️
We always got your back man. Never lose hope. It's gonna be alright. May God Bless You and Your Family.
@@slyceth
tRUMPIST, right !!.
Which god?
@@itsJPhere May God, the God of May.
Apparently there's a different God each month... Well, that's new.
sIyceth no shit but why does that matter
@@slyceth Being rich doesn't make it less difficult.
Stay strong Brett, everything will be fine💪💪💪
Also from South Africa! Stay positive and hope for the best.
I'm from Sri Lanka and we don't have many people sharing technical stuff like you do .. so i really like your work .. I'm very sad about what your family is going through .. hope your son gets better .. may God bless your family
Hey man, he's going to get through. Your son is a legend like you. It's gonna be fine. Take good care of him :) God bless
8:38 was when I had a lump in my throat. BLESS HIS BOY
You're a stronger man than I, by far. You've been living with this for ages now, and you never let it show in your work - I can't even imagine what kind of toll that must have been taking on you. Bless you, your family, and everyone at UFD.
Oh man, my thoughts are going out for you and your fam. He's lucky to have such good parents
Geez sorry to hear, praying for your son and the family. Love from Zimbabwe/Australia
Life happens sir we pray together for you and your family's wellness and well-being ❤️
Who the hell is leaving thumbs down!? UFDTech, thanks for having the courage to talk about such an important issue. I’m praying for you and your family. I hope great things are on the horizon for you all.
I know right? Maybe their phone was upside down? Well, jokes on them... It's still viewer engagement which helps the channel.
Thumbs down for the genetic disorder, thumbs up for their strength.
Had been a long time RUclips lurker of your channel and idk why but had never hit the sub button. Definitely hit now and will be here for the stream, I wish y'all the best of luck with everything and you are in my families prayers 🙏!
You are wonderful people, I wish all the best for him, and will be there on the 21st x
Prayers from this Patreon! Hang in there buddy, your kid will be okay, and he has all of us Family!
Knowing is half the battle! Stay strong guys, your UFD fam is here for ya! Sending all the prayers your way!
Looking forward to the stream.
Fully support you. The success couldn't of happened to a nicer guy. Thanks for making a difference and making the world a better place.
Much love
Prayers sent up for you and your family. Love your videos. Keep up the good work.
I am a poor guy but ready to donate to help with what I can. Best wishes for you and your family, we're with you!
in 2018 my daughter was diagnosed with Epilepsy when she was 3 months old. I know what it's like to see your child seize... you have my deepest of sympathies and you have my hopes and prayers. We are now just over 16 months without a seizure on medication.
Your Strength is amazing, keep strong the community will never let you down.
Wishing you all the best and I hope everything works out, the charity stream is a fantastic idea, let me know if I can help with anything, stay strong!
He really doesn't deserve this hope he gets well fast
@Advocatus Diaboli "hope"
Dude, stay strong. I have mild cerebral palsy due to being born 2 months premature. I wish your son all the best and keep up your great work. If there is anything I can help you with, do drop me a message.
Stay strong, I hope everything will get better for you and your family. We appreciate all your work for us and for charities.
Thank you for raising awareness about this disorder. Wish you all the best!
A big hug for you, your wife and the boys! Thanks for all! God bless you!
I don’t really know what you’re going through cause I don’t even have a kid...
But I hope he gets better!
Had a son with a rare disorder and I understand the challenges (and opportunities!) that may bring.
I wish you all nothing but the best of any situation, and very glad to see you using your platform to try and help your son and others.
Man you just became one of the most real people on RUclips you have my support brother
This dude gotta be the purest soul on RUclips.
I’ll make sure I watch every single video you make from now on to support you.
Prayers to you and your family. I will be promoting your fundraiser as best as we can. And thank you for everything, all you do, and for sharing. It's hard to share such a private party of our children's lives, but knowledge is key. And your families strength and bravery is why you are where you are.
Wow. I can't wrap my head around the amazing amount of work you have been putting into the channel while at the same time suffering all of this. I'm stocked. I hope I can donate at least a little and help you out. Sending lots of love.
Sorry to hear about your son’s genetic disorder. Good that your wife and you decided to do this video to raise awareness, though it must be with sadness and grief. Pray that your family will pass the days as normal as possible. Be strong 💪
Sorry to hear this man, couldn’t imagine. At least your son has strong and caring parents to get him through it. If there’s anything outside of donating that I can do to help the stream please let me know.
Really glad to hear that two of my most favourite channels are supporting each other...
I hope and pray for both of you and your well being..
From the heart of your London UK fanbase thank u for sharing guys...he is lucky to have such wonderful parents and u are held in our prayers and will have our support ALWAYS..
All my love and support coming from across the Atlantic
I welled up as soon as you started talking about your son and medical testing. I've got a two year old son, birthday was a week or so ago. He's my first born. I know that hurt for them when they're at the doctor and don't understand what's happening to them or why. Love you guys, all the work you're doing as a couple, and your outlook. Thank you for sharing something difficult to help others.
My heart just breaks for you guys! It’s so sad seeing children going through such hard diseases like this. You guys have huge hearts! Hoping for the best for your family and hopefully in time you guys will find stable treatment for him.
There is absolutely nothing worse that finding out there is something that threatens your child’s health. I feel for you and it’s incredible how you have found the strength to not only take of care of your family but also bring us very informative, entertaining and well articulated videos . I wish the best for you and yours going forward and hopefully you guys will find the best resources and answers that you are looking for in order to best treat your son. You’ll be in our thoughts and prayers.
I can see how much this is weighing on you, I'll be praying for you and your family and I'm really happy that you have this channel to generate the resources to be able to tackle this. Thank you for what you do brother, and you're not alone in this.
I pray for u man, god bless from Sydney Australia
So sorry to hear about the condition. I wish the very best for your son and your family.
You, your wife and your children are an adoring family. Wish your son all the best, hope you can overcome this decease's difficulties. Cheers from Cape Town.
Wow! That's rough just & your wife to keep strong 💪 may God bless him to keep him through with the strength to regain
You have a strong family and faith. Prayers for you all and I will be watching and helping on the 21st.
I'm not a regular viewer and came across this video by accident. As a father of a son with Down's, stay strong and keep going but above all: ask for help when you need it!
On the practical side: take a look at the early intervention program. This helped the development of our son a lot!
Hey Brett and Mrs Brett, sending lots of love and support. Thank you for finding the strength to make this video, I can see it's not easy for you guys. I hope it does you and your son some good in time.
This channel is so positive, I can’t wait to help with the next charity drive. I’ll be praying for you guys and will definitely share the drive all over my social media, best wishes.
Hey man.... Fellow South African Christian here... I will pray for strength for you and your son for sure. I have 2 kids of my own and except for the love of God I don't think there is a bigger love. Where about in SA are you? Really Really all the best!!! Love your channel, please keep up the good work, online and offline! LOTS of love!
I'm a 3rd year nursing student and have to say thank you for opening your heart and your lives about struggles with rare situations. Your commitment to public awareness shows such deep hearts. Love you too.
Beautiful family. Praying for you.
Thank you for sharing your life with the rest of us. Inviting all of us into your personal lives. Sometimes we need the support from your fellow companions to get through tough times. You have our hopes and prayers.
Praying for your son today. Definitely tunning into the charity stream. As an uncle of a wonderfull 3 year old boy with autism, I can somewhat relate. You guys have the knowledge, the capacity, and most importantly , the neverending love, to go through this as a family.
Stay strong Brett. You got this man 💪! Keep praying 🙏, have faith, and trust in God bro. Everything has a positive side.
You have always seemed like one of the most genuine and honest tech youtubers out there, as a farther hearing you speak about your son hits me hard, i cant begin to imagine going through this, i will deffo be tuning in for the live stream. love going to you and youre family from here in the uk.
I know the feeling of not knowing what is happening to a son, and I feel extremely lucky with the outcome seeing what other disorders and diseases are out there. It's great that you're rising awareness and trying your best to make a real change. Best of lucks with your child and his progress!
I'm so sorry your family is going through this, prayers for your son and family. I applaud your courage and resolve in this, I would definitely want to contribute to this charity. Stay strong brother!
It's unfortunate that this happened to you I know I was scared thinking my son had this or autism. I was relieved that people around me where there for my family to support and help. State teachers helped my wife and I out and they reassured us that he just had a learning problem. Prayers to you guys and good fortune!
As a father myself, my heart goes to you both and the challenges facing you both.
My eldest son 10 now had a very bad heart condition called a Mitrovascular Valve defect that he was born with. He had to have open heart surgery at 6 months and were told by the surgeon it was the worst he’d ever seen he gave my son a week to live if he had not had the surgery when he did. Lucky the surgery went great (shout out to CHKD and their surgeons and staff) and he’s very healthy now he even didn’t have to take the medication any longer when he turned about 5 or 6 I believe. He did have delayed development due to it and has recently been diagnosed with autism but he is ours, he’s here, and we love him and wouldn’t change him for the world. Even when things look the worst there is always hope and every cloud has a silver lining. We will pray for you little one and your family. I wish the best for you.
I hope everything gets better . I wish your family the best
We got hit with Trisomy 9 for our latest addition to the family. Your not alone bro. Time will go by and you will find ways to cope. Maintain a good home no matter what bro and love your boy regardless. Also, like other comments below don't be sorry. Hell you've motivated me to maybe make a vid on my boy. I would've never known this to be happening with how awesome your vids are man!
I am so sorry to hear about this, and my prayers go out to your son and your family.
Praying for you and your family. Sorry to hear what you are going through. Not many people stay as humble as you and your wife and to be thankful when faced with challenging circumstances. I hope you guys raise a lot of money
Sorry brother. (& sister). Prayers to you and your family from Houston TX
I wish you, your son and your family all the best.
Hey man, praying for your family to have the strength to face this, it know not easy to go through this. All the best for you and your family.
been watching you for quite some time man and i always knew you had alot going on beyond the youtube channel. dont take this the wrong way but sometimes it seemed like you were really exhausted and running on fumes, yet you still gave us your all and entertained and educated us each video. also I think this really puts things into perspective for alot of the the viewers on what goes on behind the scene for you. Its sometimes good to give a candid glimpse into the lives of youtube personalities, not that your integrity was ever in question but it just solidifies you as a solid individual and great human being. I have no kids "yet" but i cant even fathom how it feels for you guys even i got emotional watching this video. my final take away from it being how lucky myself and everyone is that leads a relatively healthy and normal lifestyle , and we should all be extremely grateful for every day we get to spend on this beautiful earth doing the things we love... Much love homie, stay strong and I will be making donation when it goes live.
Hey stay strong and be strong. My thoughts and prayers for you and your family. Thanks for helping the community and being a voice. I wish the best for your beautiful son and wonderful family. "Love you too" Bless you all !!!
As someone who is 76 years old and been through similar circumstances for over 50 years I know exactly how you feel and I will make a donation directly to Syngap. I wish you good luck!
God bless you both, and your little boy...all my prayers...good luck to your charity stream...on a side note, a tiny rant not related to you guys..but HOW can anyone let alone 18 people as of my viewing do a thumbs down on this video...there are some truly mean people who would do a thumbs down for this...get a life you people...anyways...cheers for a great channel, an honest, lovely couple...and keep up the great channel and parenting work folks!
bro i can understand what are you passing through. all i can say is that i wish you from my heart all of the best of luck and best chances for your little angle.
Just became a dad myself. All the best to you Brett my prayers are with your son.
You are an inspiration sir. To be dealing with everything that your going through, and continue to be so upbeat and release quality content is amazing. Makes me realize what I can do better in my own life. God bless, my prayers are with you and your family.
My little sister had seizures for about 4 years til a doctor recommended Topamax to my parents. She has been mainly seizure free for 15 years. I say mainly cause in the past 8 months she had 2 more, but it was because medication doses were changed and was changed back after she had them. I can’t say that it would be best for your son, but it’s nice to have more options.
He's gonna be fine - with such loving parents. My prayers are for you and for little one.
It's never easy. From one person who has a rare disorder as well to you guys you're doing the best job you can do, keep it up and I wish you and your little man all the best.
God bless you Brett. You and your family have my full support and I will say a prayer for you. Also I hope I catch the charity stream but will share it when I do see it.
I can't even imagine my daughter going through like this but as a father I can feel and relate to the pain that you're face shows through your stoicism. My heart goes out to you & your wife and I hope treatment alternatives improve in the time to come.
You have a very brave son. Don't have words, just stay strong. Lots of love to your family especially your son from India.
It must be a big relief to finally know. Certainly a tough situation but at least you know how to proceed to make the best of it.
All the best to you mate, you're an inspiration to many.
G'day Brett & Sydney (hope it's spelled like the city),
sending lots of love for your family, It is a sad situation getting a Diagnosis like this especially for someone as young as your son,
it is a Wonderful Event you are planning to raise awareness & funding of this disorder, I definitely will be joining in
You are amazing parents and are doing everything right. Your son is very lucky to have you both.
As a 29 yr old father of a 2 year old son diagnosed with a rare fatal genetic disease called Spinal Muscular Atrophy or better known as SMA Type 1. Where his body does not produce the correct / right amount of proteins to support movement or strength. We've lived in hospitals for months and months at a time, visited many and many of specialist. We were told he would not make it past 2 yrs of age but look at him now he's about to turn 3 in August and is gaining strength and some movement. So I know how you guys feel, keep your head high and your minds in the right place and just be there for your little one for whatever and whenever he needs you. Thanks for this video and always staying positive!
As a new parent i'm amazed and inspired by the strength of you and you wife through this video. I hope to participate in the charity event on the 21st. I hope those with a channel and public influence support this as well, especially those in the tech community.
Definitely try CBD oil, see how he reacts to it and see how it helps with his seizures. Best of luck
Sorry to hear that Brett, my love and prayers to you and your family! God speed in everything you need!
sorry to hear about this....you always put a smile in my face when I watch your videos.... wishing you guys the best of everything
I have a lot of respect for what you guys are doing on your work and still able to keep your chin up. Stay awesome!
Stay Strong Bro.
Love your work.
May your overcome any challenge that comes your way.
Dude, wishing you and your family the best in these trying times, stay strong.
Man I’m very sorry to hear. I’m dealing with my son who’s 3 & autistic. I can’t imagine the difficulties it is for you both.
As someone with a brother with a rare Genetic disorder I can relate to this and hope you and your wife all the best. God Bless, Brett!
You guys are both lovely. Wish your son all the best and to charity of this rare disorder as well !