How a Young Event Manager Beat Severe ME/CFS: What Worked For Danielle

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  • Опубликовано: 14 окт 2024

Комментарии • 81

  • @AliWade1971
    @AliWade1971 10 месяцев назад +10

    So inspiring. I have been living with chronic illnesses for nearly 50 years. I have got to the stage where I am mostly staying at home, avoiding a lot of activity and worrying when we travel. Only just found that there is help available and recovery is possible. I will continue to research which option I should go with, and 2024 will be a better year for me.

    • @angelab1525
      @angelab1525 10 месяцев назад +1

      🙏🙏💗🙏🙏

    • @AW-tz6fb
      @AW-tz6fb 10 месяцев назад +1

      So happy for you! You'll get there!!🎉🎉

  • @TheMedusos
    @TheMedusos 10 месяцев назад +16

    I felt very emotional when Danielle said how excited she was for the rest of her life. I’m really happy for her

    • @angelab1525
      @angelab1525 10 месяцев назад

      Me too, made me feel so emotional for her & myself feeling HOPE!! 🙏🙏💗🙏🙏
      GOD BLESS you both for sharing HOPE to those in any way suffering!!

  • @igantiusfaraday5149
    @igantiusfaraday5149 10 месяцев назад +3

    Best wishes Danielle from a fellow CFS/ME warrior and Mancunian (South)

  • @jack-dy7cx
    @jack-dy7cx 10 месяцев назад +8

    Amazing thank you for these recovery stories
    One year from now I'll be telling my recovery story on your channel

    • @RaelanAgle
      @RaelanAgle  10 месяцев назад +2

      Looking forward to it, Jack! 🌟 ❤️

    • @jack-dy7cx
      @jack-dy7cx 10 месяцев назад +1

      @@RaelanAgle me too

    • @oakjane3884
      @oakjane3884 10 месяцев назад +2

      And me . . .

  • @Ella-ps1lg
    @Ella-ps1lg 10 месяцев назад +8

    One of your best interviews. I found it really inspirational. The breath work is so interesting and a different tool we can use to recover.

    • @RaelanAgle
      @RaelanAgle  10 месяцев назад +2

      Thanks so much Ella! ❤️

  • @EndersWorlds
    @EndersWorlds 10 месяцев назад +1

    Danielle was so eloquent. I really enjoyed this discussion. Inspired me to try and get more committed and persistent with breathwork, I've tried adding into my routine before but I've always been very haphazard with it. Yet it does make me feel good so yep. Time for more. And more websites to check out yaay.

  • @warrenthorp
    @warrenthorp 10 месяцев назад +3

    I have seen loads of your interviews, Raelan, and this is one of the best. Danielle explains this stuff in ways that really resonate with me. And she is, as you said, a really beautiful person. Thank you. 🙏

    • @RaelanAgle
      @RaelanAgle  10 месяцев назад

      Thanks for listening, Warren! 🙏

  • @AnrupB
    @AnrupB 10 месяцев назад +3

    Agreed about it not feeling like work! I had CPTSD from various traumas, but I was doing well with tons of tools, brain training and yogic practices (I already worked in the practice). But after Long Covid, more came up and now I’m just eager to do the deepest healing even if I’m doing better. Necessary for trauma healing and being a happy healthy person all around!

  • @sarahmaurice3930
    @sarahmaurice3930 10 месяцев назад +3

    I am definitely going to watch this. I did one of Danielles breathwork online classes last week and it was fantastic.😀

    • @RaelanAgle
      @RaelanAgle  10 месяцев назад +1

      Wow, so good to know, Sarah. 🌟 Thanks for sharing!

  • @klinesgarage2551
    @klinesgarage2551 10 месяцев назад +2

    I love your channel. Thank you for doing what you do. D-Ribose, Co-Q10 helped me a lot to keep working. A strict Carnivore diet of 0 carbs and 95% fatty red meat has completely changed my life. It took a few months, but I now have all my mental and physical strength back. I dropped 30# and cured my chronic heartburn of 18 years. I ate extremely clean before switching to carnivore, salads daily, almost zero processed foods. I hope this helps someone. Thanks for your videos, they got me started and helped me navigate it. God Bless you and your family.

    • @kathy.7475
      @kathy.7475 10 месяцев назад +2

      I'm glad you found help with your carnivore diet. It tore my stomach to shreds. Plant based is what works for me.

    • @klinesgarage2551
      @klinesgarage2551 10 месяцев назад

      @@kathy.7475 I sincerely wish you the best with what works for you. My experience was that took a solid 30 days for all my bad gut bacteria to die off before feeling normal again. This was without ‘cheating’ aka feeding the toxic bacteria so they live another day. I also made the mistake of not eating enough fat. I did Keto for years with some, but limited results. Zero carbs with HIGH fat eliminated my bloat, daily heart burn of 18 years and severe energy issues. Removing the toxic oxalates, lectins and 1,000s of other poisons from my diet I think was a huge factor. Again, I wish you the best in what works for you. God Bless you and your family.

  • @tiffanystafford9453
    @tiffanystafford9453 10 месяцев назад +1

    Beautiful story and what a stunning human! Thank you for sharing for those of us still on this journey. ❤

  • @stevebarlow1959
    @stevebarlow1959 10 месяцев назад

    This is so inspirational and real.

  • @TheMedusos
    @TheMedusos 10 месяцев назад +2

    I’m looking forward to this 😊 George

  • @Thelordsrain
    @Thelordsrain 10 месяцев назад +2

    I’m so happy she fully recovered from this hell. I’d love to join cfs school however I’ve just paid $3000 for another program and all my funds are drained now so another $600 (might be more in Australian $) isn’t doable for me 😥

  • @mehranhnt3770
    @mehranhnt3770 10 месяцев назад

    Thank you Danielle ❤

  • @sarahdean6441
    @sarahdean6441 10 месяцев назад +1

    Fabulous, what an inspirational story. 👏

    • @RaelanAgle
      @RaelanAgle  10 месяцев назад

      Isn't it, Sarah, - packed with insight and wisdom ❤️

  • @CharlieRascal
    @CharlieRascal 10 месяцев назад

    Thanks as always guys. Danielle would you be able to elaborate on the types of breath work techniques that helped the most?

  • @alyssakellhofer224
    @alyssakellhofer224 10 месяцев назад

    This truly spoke to me. Thank you so so much.❤

    • @RaelanAgle
      @RaelanAgle  10 месяцев назад

      I'm so glad, Alyssa!

  • @DianaCz-p6k
    @DianaCz-p6k 10 месяцев назад

    Wonderful story Danielle!!

  • @ralucanechita3526
    @ralucanechita3526 10 месяцев назад

    Hey, Danielle and Raelan. What a lovely, inspiring story. You were mentioning tracking the progress on the walking. Did you use a fitness tracker? I myself used a fitbit, but for a week or so I took if off and somehow it feels liberating, but somehow it makes me feel like I'm missing something. For me walking was also something I loved. Hiking, walking, cycling, so I focus on these activities as much as I can. They bring me so much joy. Thanks!

    • @RaelanAgle
      @RaelanAgle  10 месяцев назад

      Some members of this community loved using Fitbit, while others found that focusing on the data made them anxious and did much better without it. Hope this helps, Raluca! ❤️

    • @ralucanechita3526
      @ralucanechita3526 10 месяцев назад

      @@RaelanAgle thanks, Raelan. I guess it's a personal decision after all. I love your channel and I think I've watched all your videos. I also have your book. You are amazing giving hope to so many people. Thank you! ❤️

  • @Healwithbear
    @Healwithbear 10 месяцев назад +1

    We love your channel

  • @debbieattwell
    @debbieattwell 10 месяцев назад +6

    I enjoy hearing recovery stories, but from everything I've learned, it seems there are definitely at least two types of this illness (probably lots more than two). Brain training seems to work for people with symptoms caused/increased by a dysregulated nervous system, but is useless to those with mitochondrial damage causing their symptoms and can end up causing more damage by making them push themselves. A lot of CFS sufferers get angry about brain training but there's no doubt it has worked for some people...sadly it's useless for recovery to those with damage at a cellular level... no amount of calmed nervous system will cause sudden autophagy and heal/renew the damaged cells, hopefully it will just happen over time.

    • @Plethorality
      @Plethorality 10 месяцев назад +2

      It sounds like a positive adjunct to other methods, rather than a cure all for everything.

    • @Unforced-LC
      @Unforced-LC 10 месяцев назад +8

      This is untrue. I had massive mitochondrial damage and recovered through nervous system regulation :)

    • @debbieattwell
      @debbieattwell 10 месяцев назад +1

      @Unforced-LC That's good to hear. How did you know your damage was mitochondrial?

    • @Unforced-LC
      @Unforced-LC 10 месяцев назад +3

      @@debbieattwell I took a test that was measuring my ATP

    • @debbieattwell
      @debbieattwell 10 месяцев назад +2

      @@Unforced-LC Ok, that's good to know :)

  • @EraNyan
    @EraNyan 10 месяцев назад +2

    Raelan, are there any interviews you did with people who are autistic/have ADHD? If so, how can I find them ?

  • @NexusCapital
    @NexusCapital 10 месяцев назад +2

    Beautiful girl.

  • @kathy.7475
    @kathy.7475 10 месяцев назад +1

    The conscious connected breathing sounds like what Wim Hof teaches along with cold therapy? Do either you Raelan or Danielle know or have heard of his method?

    • @breatheandhealwithdee
      @breatheandhealwithdee 10 месяцев назад +2

      Hi Kathy, I do know wim hof, although the breathwork I do isn't the same as that. Whilst wim hof breath encourages hyperventilation (although this can be beneficial for some people) its not something I do and don't think its something that great for a dysregulated nervous system. If you have any more questions about this please feel free to reach out 🥰

    • @lc20735
      @lc20735 10 месяцев назад +1

      ​@breatheandhealwithdee I looked up conscious connected breathing and tried it out, and it does seem to cause hyperventilation?? I've been doing it for a few days (10-15 mins a day) and I feel more jittery and wired.
      Have you customised your CCB to not cause hyperventilation?

  • @Selmaveibrahim
    @Selmaveibrahim 10 месяцев назад

    Hello Raelan
    Thanks for your helpful vedios
    Do you have recovery story for fibromyalgia ( neorupathic pain) tingling . numbness......
    As you know there are 2 kind of fibromyalgia 1- mind pain 2- neorupathic pain
    Have you recovery story with neorupathic pain ?
    Sorry for this massage 😊😊😊😊

    • @Truerealism747
      @Truerealism747 10 месяцев назад

      Both involve mind body fascia?

    • @Selmaveibrahim
      @Selmaveibrahim 10 месяцев назад

      I think neuropathic pain have small nerves damage . Do mind body repair this problem?

    • @Truerealism747
      @Truerealism747 10 месяцев назад +1

      @@Selmaveibrahim that's if small fibre neuropathy take alpha lypoic acid do you have pain on touch?.Dr schubiner says it's mind body anyways

    • @Selmaveibrahim
      @Selmaveibrahim 10 месяцев назад

      Thanks for interesting. The pain all time with touch and without touching
      Alfa lypoic acid is enough !!!!!!
      How can mind body repair this damage 😭

    • @Truerealism747
      @Truerealism747 10 месяцев назад

      @@Selmaveibrahim and b vitamins no it be rare to cure it alone but there is recovery stories in here I don't have pain on touch but pain 24/7 it helps to press it where it hurts IE trigger points in fascia.do you happen to be hypomobile orand ADHD Asperger's

  • @TimMurphy41
    @TimMurphy41 10 месяцев назад +1

    Lots of red flags pointing to upbringing. Would have been interesting to know relationship with father, especially after the staying in an "abusive relationship" part.

  • @domsa_
    @domsa_ 10 месяцев назад +13

    I'm glad Danielle is doing better, but this really doesn't seem like a story about severe ME. This really matters! I am not downplaying what Danielle went through. Danielle herself refers to the illness as 'chronic fatigue' and describes 'anxiety', 'negative feelings', 'deep depression', and isolating herself. There's almost no description of a physical illness and all the hellish symptoms that characterise severe ME such as profound exhaustion, sensitivity to basic stimuli, inability to care for oneself, and even problems eating and speaking.

    • @laurela6626
      @laurela6626 10 месяцев назад +18

      Everyone has different experiences and a variety of symptoms. Also, I think you must’ve missed parts. She talks about being bed and housebound, unable to talk or text friends or keep up on social media, and says her partner had to do most everything around the house and for her, talks about crashing, the whole nine yards…

    • @Candiedclouds
      @Candiedclouds 10 месяцев назад +16

      She was bedridden for a year… and just because she didn’t focus on specific symptoms doesn’t mean she didn’t have them… also can’t we have ME/cfs AND also have severe anxiety, deep depression and negative feelings? Cmon, you’re acting very ableist here… reminds me of all the people that can’t “see” the illness and doubt we are sick…smh.

    • @justiceO8149
      @justiceO8149 10 месяцев назад +1

      I'm not sure where you are from but all countries have different names that are used clinically, there is very limited or no alignment world wide.

    • @TheMedusos
      @TheMedusos 10 месяцев назад +8

      Very strange comment

    • @AnneAlready
      @AnneAlready 10 месяцев назад +5

      How did you miss the various instances of profound exhaustion she referred to?

  • @germanside7890
    @germanside7890 10 месяцев назад +1

    Such a lovely interview, with such a lovely person

  • @ajourneywithm.e.reflection8880
    @ajourneywithm.e.reflection8880 9 месяцев назад

    What kind of brain retraining?

  • @cdracos1
    @cdracos1 10 месяцев назад +3

    Sorry can't watch this one. For like obvious like reasons like. Ooooof ! .

    • @Candiedclouds
      @Candiedclouds 10 месяцев назад +3

      Huh!? Dude, I see no “obvious reasons” tf.

    • @Ella-ps1lg
      @Ella-ps1lg 10 месяцев назад +3

      Huh? This makes no sense. Why bother commenting

    • @Plethorality
      @Plethorality 10 месяцев назад

      Please spell out the obvious for us dullards. We really dont know what you are referring to.

    • @snic5805
      @snic5805 10 месяцев назад +1

      Yeno if you are scoffing at her use of the word ‘like’ that is very insensitive. People who use filler words can be overly conscious or even slightly anxious about what they are saying. She is very brave to be here talking about her life, I would be soo anxious. And even if you find it annoying and can’t watch why announce that with such disdain?

  • @slutmuffin
    @slutmuffin 10 месяцев назад +2

    Danke!

    • @RaelanAgle
      @RaelanAgle  10 месяцев назад

      Vielen Dank, Muffin ❤️ Much love to you!

  • @TheMedusos
    @TheMedusos 10 месяцев назад +2

    I felt very emotional when Danielle said how excited she was for the rest of her life. I’m really happy for her