From Severe ME/CFS to Full Recovery: Suzi's Inspiring Transformation
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- Опубликовано: 23 июл 2024
- Suzi shares her journey of living with chronic fatigue syndrome (ME/CFS) for 18 years, at times being completely bed bound, along with exactly what finally allowed her to fully recover.
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VIDEOS MENTIONED IN THIS VIDEO:
🎦 CFS Superhero - Michael’s Very Severe ME/CFS Recovery Journey
• CFS Superhero - Michae...
🎦 ME/CFS Recovery - Strategies for Staying on Track (with Dan Neuffer)
• ME/CFS Recovery - Stra...
CONNECT WITH SUZI & LEARN MORE:
👉 Instagram - @trustandbloom_ on
👉 Substack - From One Self to Another trustandbloom.substack.com/
👉 Website - www.trustandbloom.co.uk
LEARN MORE:
📖 Check out my book! Finding Freedom: Escaping From the Prison of Chronic Fatigue Syndrome. View on Amazon - amzn.to/2LtzBcl
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🐥 Twitter - / raelanagle
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TIMESTAMPS
00:00 Meet Suzi
02:09 How Suzi's dad diagnosed her with ME/CFS
06:40 An eye-opening 30th birthday
09:30 Changing the way she related to herself
10:43 Three things that didn't help Suzi
16:13 No more eye mask: How ANS Rewire training helped
19:34 No more wheelchair: The role of Mickel therapy
24:38 The most important lesson she learned
27:06 Suzi's top 5 strategies that led to her full recovery
34:29 Becoming a well-being resilience coach
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REMINDER: This is for information purposes only and nothing I share should be considered medical advice. Please make your own assessment, do your own further research, and consult your trusted healthcare professionals before deciding if anything I talk about here might be right for you.
#chronicfatiguesyndrome #cfs #chronicfatigue #mecfs
I have found that my recovery was a large process of eating clean, exercise, pacing and mindfulness. The strange thing is when I stopped trying to heal and one day realized my journey of 31/2 years was a healthy lifestyle formed from my habits, which I truly believe my brain reprogrammed it’s self . So happy people are healing ❤
Did you have a lot of pain issues that's great news
One thing that suprises me everytime is how healthy and alive all CFS people look. You rarely even see anyone overweight, which wouldn't be too a crazy thought since we can't workout. For me its the same, I look very healthy but I'm obviously not. That makes it hard since everyone around me keeps expecting me to be active and I have to remind them over and over again.
Beautiful interview, just watched it from the beginning to the end. I overcame the hardest phase of being severely ill and bedbound....to now being 'happily' housebound. As you wonderfully described, I focus on self compassion, being able again to laugh with my children, and the beautiful life awaiting me, hence I am already filled with immense gratitude & joy above all. Oh, and it's the newly wired me leaving a comment here. The 'old me' would have never done this :) Much love and healing to you all.
"Happily housebound" I love that. That's now me too.
I hear you on the longterm MEFM. I've had it for 54 years - but when I got off 5 medications and began facing the trauma and grief that led to my needing the harmful sleeping medication known as benzos - I recovered 80% of my health! The ME/CFS entirely disappeared, but stresses brought the fibro back. I did that on my own with intuitive healing - listening to my body and learning from it instead of running from it into activity or medication. Now I know that it was all neuroplastic, I look forward to healing 100%. SO much is changing already, it's exciting!
And challenging as hell, as when the pain began to get better - anxiety showed up with a ton of new stresses! My energy came back - then eczema popped up its head! The crocodile brain isn't quite ready to give up trying to keep me "safe" with new symptoms. It's like playing Whack-a-Mole! But I'm writing, performing, exercising and socializing -- which is a long way from being fully disabled, mostly housebound and bedridden for 20 years. I've literally come from crawling -- my blood pressure was so "incurably' low -- to dancing!
We CAN do it - it just may take longer for those of us who've had it for decades. These success stories inspire me when the System Imperative has me in its grip. I found guided visualizations helpful when bedbound and in recovery like Belleruth Naparstek, plus lots of mythology, psychology, and brilliant fiction. Writing in a journal was key, doing dreamwork, then as I began to recover, shaking and dancing, Chi Gong. Writing out ALL my feelings helps hugely -- but dancing them out is powerfully transformative. Sharing your story with a community is hugely healing - it's how I became a storyteller and began performing again. Now I've written a play, "Escaping Benzo Oz." Writing poetry, creating art - any form of creativity helps to transform trauma and grief into art.
This information is SO helpful, thanks for all you do, Raelan! And what a wonderful story, Suzi! Bright blessings to you both.
Wow, Linda, what a powerful message to share ❤️ I'm so happy for you!
Would you like to be a guest on my channel? There is a Google form under the video - it would be an honour to talk to you!
@@RaelanAgle I'd like that very much! But I'm NOT completely recovered yet. I've conquered complete disability and the hells of benzo withdrawal.
I'm very active - but I'm still hoping for complete recovery from MEFM once some major stresses ease. But I'd love to talk with you - it's important to pass on this message. (I feel like I'm sending an email to my younger self when i speak out.) Thanks, Raelan, for all you do putting the message out and showing people recovery IS achievable!
I had the EXACT experience. Decline at 14, illness at 17, attempted college 2 years later, recovered to barely working for about 10 years, and then the real bedbound illness. Its a common trajectory from what Ive gathered.
Have you got fybromyalgia I've had CFS decades but now it's more fybromyalgia than fatigue though ime still fatigued to normal people
@@Truerealism747 They're on a spectrum. I had CFS/ME first for 14 years, then got fibromyalgia. When I began to recover, the CFS/ME went first. I had to do more work to clear the fibro pain and symptoms. Doing the somatic work is hugely healing, as is gentle yoga or Chi Gong, writing in a journal, and dealing with any trauma or grief with counseling if possible. We CAN heal. Best of luck!
I love your interview style Raelan...you dont interupt or talk over your guest. Makes it easy to watch. Thank you. I really need to hear recovery stories.
Great interview with great insight. Working on self compassion and a sense of self/authentic self. ❤️
Such a terrific interview! I can relate to parts of this interview. I recently realized that fear has been a big issue for me. I started doing some work on that from Pain Free You and am seeing some improvements
Wow, that's wonderful, Kathy!
@@RaelanAgle thanks! I just did my 2nd 17 min. Walk today!
What you said about the different stages of recovery is very true. That there are new challenges. I feel so much better and can do so many things and I have a lot of days wich are symptom free. It is easier, because I am not longer in survival mode all the time and I am sooo gratefull for a lot of things, feeling calm and at peace is the best thing. But there is also a new level of grief, and frustration and anger. And so many new insights and learnings. Now when there is no longer only pain, exhaustion and fear, there is room for all the other emotions. And I engage more with live so I have to deal with more people and more situations.
I hear you - all the repressed emotions that helped cause the pain and fatigue come out like fireworks and we need to listen to them, befriend them, comfort the parts of you who experienced them. I found writing in a journal and shaking and dancing out my emotions helped hugely. Shaking is great for stress, tension, anxiety, pain and trauma - so much so trauma experts teach it. As we EXPRESS our challenging emotions through writing or dancing - we let them flow through us then out. When they flow, they go! Once they left, I'd laugh, and dance in the joy and happiness at having recovered so much when I thought my health was gone forever, and the joy and happiness too were high as the sky! Best of luck.
Great interview, I'm kind of at the beginning of the same journey of nervous system and brain retraining
Thank you for this interview Raelan and Suzy. I resonated with so much from what you shared with the pressures and fears from pacing and relapse to the finding compassion and safety in our nervous system. I booked a discovery call, looking forward to it. 😊
thank you so much for this interview. It was such a good reminder, and intersting that boredom is playing into not recovering...and all the emotional stuff is interesting, too. Such a nice interview!
Thanks Raelan for putting so much detail into presenting these videos with all your extra notes etc. Thank you, thank you. 🙏💜
Great interview, thank you!
Thank you for this great interview ❤
This is an amazing interview. I am feeling tearful as I listen. Connecting me to my inner hope and light. Reminding me of why I want to heal and recover. Thank you soooo much. My day will be different. Xxx
Loved this interview so much, thank you!💓
Awesome recovery story thank you ❤
Such a great interview. Thank you both. Thank you so much Suzi for sharing so much 🤎 This is AMazing ..my head is a terrible place to be and has been for hyears - you guys are doing SO much with these interviews - more than months of counselling !!! I am getting it now.
What a beautiful helpful, inspiring interview
Fantastic interview I’m really appreciating it this evening
yay! another great one, thank you Suzi, and as always thank you Raelyn ✌️😎❤️
Thanks Suzi, so pleased for you. Great explanation. 🙏💜
Is it because it’s coming from my thoughts!! Absolutely!! Cancer is the same problem after diagnosis
As I understand it, that contributes - but it's more your brain overreacting to your trauma and stresses, turning on the Fight or Flight impulse 24/7. It's more the repressed emotions that contribute to pain, anxiety, fatigue, and other illnesses. Dr. Gabor Mate says, "When you don't learn to say 'No', the body does it for you." I recommend him highly too for trauma work around cancer and more major illnesses. He has lots of videos and many books on trauma. I hope that makes sense, and best of luck!
As always, Raelan, I really appreciate you making these videos. Thank you.
Thanks so much for all your time and effort in this channel!!! Much appreciated. Question: have you discussed the impact of water quality before? Like bad tap water; reverse osmosis on body's minerals; etc.
Yes water is big thing for us with fhtmr gene to
Hej!
Thanks so much!
Im currently bedbound, can move around the kitchen to get som stuff and also go out the balcony to halfsit/lay (5m), but my symtoms get worse a bit after a while
You mention you were stricktly pacing and 5hrs meditating in bed.
I got confused with pacing now,I dont get better at all in this crash, am I overdoing it still ?
You are #gift to the world from #God❤🎉 Tq for helping to defeat this hidean #chronic diseSes❤😊
Veronica on your channel also did Mickel Therapy
she did ANS rewire, CFS school and Mickel therapy
What exactly is mickel therapy. Never heard of it!
@@afshasultana6294 a talking therapy that looks primary motions as the cause of symptoms
@@Star5dg thanks. Does it really help people with me/cfs? Who offers it?
@@afshasultana6294 I think post viral fatigue / cfs mild to perhaps moderate. I did it for a year and it didn't help me but I have autoimmune disease also
❤
Please can you share the contact details for the Mickel therapist?
I think causes about chronic fatigue syndrome are different, I still suffering from