Thank you Jennie. This Protocol needs to be adopted globally. Ask any ME patient anywhere in the world how they feel about going to hospital, you will get the same response. It’s terrifying and it’s stressful. You know you will be treated with disdain and disbelief. I got a diagnosis of fibromyalgia and cfs, because my doctor said, having a diagnosis of ME would lead to disbelief and poor treatment. Fibromyalgia is better accepted, and therefore I was more likely to be believed. The problem is Fibromyalgia patients respond to GET, I get sicker. Proper diagnosis and better care is desperately needed worldwide. Take care of yourself. 🦋💙
Thank you Jennie for doing this! I’ve heard some things said to patients , relatives or behind their backs as a registered nurse but what was said to Clare even shocked me! “Shut up you stupid women” and the worse thing is Drs get away with this behaviour EVEN if they are reported because mud sticks together! I’m ashamed to say I ever worked in the NHS!
Thank you for starting this channel. As someone with moderate bordering severe ME, it's great to see different ones in our community working to open the discussion and showing why we need the help we say we do.
Thank you for this. I was diagnosed in 2017 , 2 years after a post viral infection in 2015, lots of test and asking me if it could be mental health issues 😭🙈 No matter what I tried I just couldn’t get any better… it’s changed my life forever and I am someone who has it mild/ moderately. I can’t work full time, 18hrs a week max, it’s a lonely disorder and once I was diagnosed I was just told by my doctor Pace myself, make lifestyle changes and Bye 👋 it’s also left me with a GAD because I knew something was wrong and it took so long to get diagnosed. Thank you for your help.
Brilliant and much needed overview of the still dire current situation thank you 💙✨💙 Amazing that healthcare has this opportunity to learn from Sally’s work on this. Thank you both ❤️✨❤️
💙 such touching and heartbreaking interviews. Great advocacy. As someone with mild-moderate ME I feel it’s so important to do what we can for our severe siblings 💙 thanks Jenni and everyone
You are one of the most beautiful women ive ever layed eyes on. Late to the party but just finished watching Vikings on Netflix and you were absolutely spectacular. Best wishes to you and yours.
I really, really hope that severe/very severe ME will soon be taken serious here in Norway too. And that there will be serious medical-training for all (docs, nurses, porters) Because I have severe ME and I am scared for the hospital - have ptsd as result from all my previous hospital -stay. 😢
Hi Jen, I just wanted to say I love u, you're so adorable and you look like my dream wife. it's my Dream to see u but I'm afraid that I live in Iran ☹️ Very best luck for u, I hope you will be healthy all the time, Remember if theres just one person in the world who thinks all the time about u, it's me..❤
![ROSÉ (로제) - number one girl [더 시즌즈-이영지의 레인보우] | KBS 241129 방송](http://i.ytimg.com/vi/A9oByH9Ci24/mqdefault.jpg)
Thank you Jennie. This Protocol needs to be adopted globally. Ask any ME patient anywhere in the world how they feel about going to hospital, you will get the same response. It’s terrifying and it’s stressful. You know you will be treated with disdain and disbelief. I got a diagnosis of fibromyalgia and cfs, because my doctor said, having a diagnosis of ME would lead to disbelief and poor treatment. Fibromyalgia is better accepted, and therefore I was more likely to be believed. The problem is Fibromyalgia patients respond to GET, I get sicker.
Proper diagnosis and better care is desperately needed worldwide.
Take care of yourself. 🦋💙
Thank you Jennie for doing this! I’ve heard some things said to patients , relatives or behind their backs as a registered nurse but what was said to Clare even shocked me! “Shut up you stupid women” and the worse thing is Drs get away with this behaviour EVEN if they are reported because mud sticks together! I’m ashamed to say I ever worked in the NHS!
Thank you for starting this channel. As someone with moderate bordering severe ME, it's great to see different ones in our community working to open the discussion and showing why we need the help we say we do.
Thank you for this. I was diagnosed in 2017 , 2 years after a post viral infection in 2015, lots of test and asking me if it could be mental health issues 😭🙈 No matter what I tried I just couldn’t get any better… it’s changed my life forever and I am someone who has it mild/ moderately.
I can’t work full time, 18hrs a week max, it’s a lonely disorder and once I was diagnosed I was just told by my doctor Pace myself, make lifestyle changes and Bye 👋 it’s also left me with a GAD because I knew something was wrong and it took so long to get diagnosed. Thank you for your help.
Brilliant and much needed overview of the still dire current situation thank you 💙✨💙
Amazing that healthcare has this opportunity to learn from Sally’s work on this. Thank you both ❤️✨❤️
💙 such touching and heartbreaking interviews. Great advocacy. As someone with mild-moderate ME I feel it’s so important to do what we can for our severe siblings 💙 thanks Jenni and everyone
Thank you for opening this channel. You have earned my full respect
Excelent interview. We love You.
We love you Jennie
My Queen. I love you ❤
You are one of the most beautiful women ive ever layed eyes on. Late to the party but just finished watching Vikings on Netflix and you were absolutely spectacular. Best wishes to you and yours.
We love you 👑 Queen
as always beautiful Queen ❤❤❤
Amazing start. Thank you.
I really, really hope that severe/very severe ME will soon be taken serious here in Norway too. And that there will be serious medical-training for all (docs, nurses, porters) Because I have severe ME and I am scared for the hospital - have ptsd as result from all my previous hospital -stay. 😢
Thank you so much Jennie 💕
I love you Jennie Jacques ❤️
❤❤
The actress 👏👏👏
Is there anyone watching this on? 2024
Claro pues mascota
Quien no quiere ver a la mujer mas hermosa del mundo
Yes, I’m watching in Florida USA. Excellent video
Yes, it's a great interview@@mariaserrano5590
Hi Jen,
I just wanted to say I love u, you're so adorable and you look like my dream wife. it's my Dream to see u but I'm afraid that I live in Iran ☹️
Very best luck for u, I hope you will be healthy all the time,
Remember if theres just one person in the world who thinks all the time about u, it's me..❤
Who is from india
Waifu dw waifus❤