How To Communicate To PIP Correctly - Washing & Bathing - Step By Step Guide
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- Опубликовано: 13 янв 2024
- This is a really important question, most of us that suffer from chronic illness are NOT able to shower and bath that often.
The reason is: ITS DANGEROUS! Its exhausting! Its PAINFUL!
If you are struggling with PIP (Personal Independence Payment) Claims and you would like to link with me, check out my sites:
CONSULTANCY: calendly.com/charliesjourney
But, before booking me PLEASE watch the guides as I am trying to provide all of the information for FREE!
WEBSITE: charlies-journey.co.uk
On my website you will find
- PIP points and templates that you can download for FREE
- Our top Frequently Asked Questions
- Reviews
NEWSLETTER:
charlieanderson.substack.com/
SOCIALMEDIA: profile.php?...
This is for future ‘live’ meetings with me where you can ask me questions directly.
WHO AM I:
My name is Charlie and I am disabled. I live with chronic illness, I have a severe form of Psoriatic Arthritis and its crap! I am in pain all the time and always battling fatigue. BUT, I will not let it win. I love to learn and to laugh (even though it hurts my arthritic rib cage LOL). You will often see Ollie (she) my black Labrador. She is currently my trainee assistance dog! We are together, literally ALL the time.
As there are a number of awful people who target us - the vulnerable - here is a link to my personal LinkedIn account. You can literally see the past 25+yrs of my career, people who have recommended me (as a Logistician as Disability Specialist is very new for me).
/ charlotte-charlie-ande...
The most important bit: I would like to thank the support network I have around me and YOU for watching this channel.
Please know, I would love to reply to all of your comments but I cannot reply AND film new videos, write the weekly newsletter and work with clients. If I could, I really would reply to you all.
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PS: If you order using these links I get a teeny tiny profit
If you would like to write to me here is my address:
Disabled NOT Dead
PO Box 4928
Stoke-on-Trent
ST4 9RL
Email: charliesjourney2024@outlook.com
Thank you so much for reading all of this
Charlie
OMG! I am actually crying hearing that someone else understands the difficulties and realities of bathing/showering with a chronic disability. Without going into too much detail, I have suffered with ill health for the past 47 years and as you rightly say, for me to shower (bathing is out of the question) is not only hazardous to my health but could also be potentially life threatening to me. As such, I will admit to having a full shower at least once a week but in reality it could actually be once every three weeks. I am currently going through my PIP reassessment but unfortunately the person I had helping me is no longer able to due to her own disability. If anyone out there can help then I would love to hear from you and I would be only too glad to give you more details of my daily struggles x.
What good hearted person you are , hope all good things come to you
I feel better about my condition just watching your video. No one can see your pain. Work understood more than my wife. Thank you.
"...work understood more than my wife" is possibly the saddest sentence I've ever read. I'm so sorry.
I have one of the motherlode neuro pain disorders and I look perfectly normal. I still look in the mirror, convinced I'll see bone sticking out - we cannot make sense of invisible pain, no matter how long or how severe. And one of the worst things is the effect it's had on my loved ones, but they're the reason I hang on, even though we see each other maybe twice a decade. Pain is the loneliest thing but it's even lonelier in company that doesn't understand. We put so much effort into the facade and home is the one place you should be able to at least drop the act.
I have no idea why I wrote this essay, either. Just....ykwim.
I’m trying to train myself for tribunal to not get tripped up on questions, my mind goes blank, I like your teach style it’s clear and direct x
I have claimed for the First time even though I've suffered in silence for years. Thank you for this video.
Good for you
I have received a text message today from DWP that I've been awarded PIP@@NatureandE
It's great to get any advice about PIP etc. I find it hard to have to rely on others & put on a brave face. I mirror Mica412's dilemma. Being single & not having someone around to prompt & help with showering/bathing, cooking & cleaning etc, is very difficult. I suspect Mica, like myself, has always been very independent & giving up that "freedom" is difficult. My local council do not classify me as disabled, as I don't use a wheelchair. Not that it would help, as I live in a maisonette on the 3rd floor without a lift. Keep up the good work.
Thanks for your dedication in producing this and your other videos. Literal dedication.
It's an honour listening to you Charlie. Keep these videos going, if and when you can manage to. I'm with you 100%.
I'm waiting for a form from PIP for my 27yr old daughter whom has Neurofibromatosis type 1. She has a very large Tumor growing out from her spinal cord and this affects her circulation, nervous system and leaves her in constant pain.
I've tried TWICE to get her PIP but they aren't awarding her ANY points. Even though she is severely impacted on daily living and mobility.
I'm at a loss as to what to do. Hopefully your videos will help us win this time.
It’s vital that, before you complete the PIP test, you understand that just because you can carry out an activity, that doesn’t mean you are prevented from scoring points for being unable to do it.
You need to be able to complete an activity ‘reliably’ in order for it to apply. According to the guidance, ‘reliably’ means whether you can do so:
Safely
To an acceptable standard
Repeatedly
In a reasonable time period, no more than twice as long as a person without a physical or mental health condition would take to carry out the activity.
So, for example, if you can ‘wash and bathe unaided’ you will not score any points for that activity. But if it takes you hours to do so or it would be dangerous to leave you alone to bathe - for example, because you might have a seizure - then you may score points.
Or if you could walk 20 metres once, but afterwards you would be so exhausted that you could not do so again for hours or you would be unable to carry out other everyday activities after walking 20 metres, then you may count as not being able to do so.
I'm having my pip assessment in 2day s was diagnosed with epilepsy lost my job this week bag of nerves as I'm 65 never had been on sick ever
Charlie you are wonderful thank you so much for sharing and giving your advice ❤ like so many when my DLA was changed to PIP they down graded me to a standard award and I lost my car, I didn't have the energy to appeal.
Thank you for showing how it is, how having a chronic illness is-u r keeping me hopeful and holding on to myself worth. X
Hi.. I've only just started watching you.. And no,, I didn't notice your hair and no, I didn't notice the back ground.
I've had CRPS for donkeys years and I've been through the process a couple of times. My life is my life and normal to me but what other people would consider as far from ideal, even my consultants. Although I've always went through my interviews with success I've always lived ...and still do , with the fear that one day that might all change - as you probably know.
Anyway. You seem like a hero in the face of adversity and I'd love to have you by my side when my time comes around again. At no cost to you.
I believe PIP should go by what your GP says on what information they have the old DHSS had this system before, but it's the Horror now on the constant reviews and assessments repeating every time to the DWP it's the Battle you need to keep on giving but many genuine suffers don't carry on becuase it's exhausting and causes more problems itself, but we have way to many fakes running around that put this stress on the genuine. i believe the DWP auditors are looking at all the claims and just rejecting, PIP have record amount of people 360,000 claims in 2023, and only accepted like under 10000, PIP is designed to give you independence you pay someone to help you , but it seems we have many people thinking you can claim for pip if you have a condition but that depends how it affects you on a daily basis. we are lucky to have this system that helps but doesn't help with the fakes who siphon from the system, and who the Hell want's to go tribunal that's another killer and now we have a paranoid system wouldn't surprise me PIP gets eliminated and implemented in to another harder system just watch the next couple of years Scotland just pulled out in time
The money is pitiful and not adequate by a long shot - all while the tory Bandits fleece billions and give it to their mates?! The worst traits of Narcopathy I have ever seen?!
They changed the system and took the assessments away from GPS because they were being bullied and also when they knew a patient well they felt obliged to recomend it.
Thankyou for this. Even with my chronic conditions I am in the process of trying to navigate and help my Son with PIP. He has a phone call assessment this week.
It is hereditary and it breaks my heart seeing him suffer knowing I passed this onto him.
It took four years on the old system for me with dla and tribunal in 2010.
Dreading the day when they decide its time for me to move over to PIP.
In the meantime I'm having to find what little energy I have left in me to help my Son.
You are just brilliant. Thanks for all you do . Great information and advice.
Wow! You just described my life. Thanks for all the great helpful information.👍
Hi really really appreciate all the work and guidance you do.
Thank you from the bottom of my heart. You've just described my life. You really are a life saver. Keep well ❤
you’re so lovely Charlie, Please take care of yourself sweetie ok, You’re absolutely amazing with all you words and help and encouragement, without you thousands of people would be struggling with their claims, you also make us feel like we have a chance to go on and fight for what we truly deserve. You are an inspiration such a sweet kind hearted beautiful lady inside and out, I can’t thank you enough for all the support you’ve given and the impact you have had on myself to find the courage to go for it, I suffer immensely with my
mental health issues, I have an ED, anxiety, and physical problems due to mental health. With your words of wisdom you have totally changed my views on getting support and i couldn’t be more grateful for this. Keep it up sweetie ❤️ 😘😘😘🤗🤗🤗🤗💞💖
The problem with going on GP is they are constantly changing at your practice my doctor used to know me and my health issues but every time I see a doctor now they only know what I’m seeing them for on that day they also only allow you to speak about one thing at a time but sometimes something you are suffering from has knock on effects that cause other symptoms or problems
I had this problem and I wrote a letter about how my condition affects me and limits me to be added to my notes so that whoever gets the pip letter can see how I’m affected it’s helped so far
You look great! You are very natural and very helpful. I really understand your situation. Great job! I am grateful for your videos. :-)
I have just found you and you are brilliant, thank you for helping its brilliant
About 2 1/2 years ago was the last time I had a bath! I have arthritis in multiple joints and I’d managed to get in with a struggle and to sit down in the bath but when I came to getting back out, I found I actually couldn’t get up and I was stuck in the bath! It took over half an hour to get out. I had to empty the bath water, turn around on all fours and literally haul myself out. The bruising was colourful! It was a stressful and scary event and so now I’ll flannel wash top to bottom, whilst sitting on the loo. Using the bath edge and wash basin to aid me up and down. Hmm feet I can just get my legs into the bath, sitting again on the edge and I’ll shower them but it’s not frequently and on a better day..heyho
You are amazing 😊
Oh yes, totally get you! And people that haven't experienced it, don't get it. I can only do things in order, so if I don't have the energy to have my sink wash, I can't do anything. I love having a bath, so good for my pain, but it takes so much energy to get in and out, and get dry, all things that well people don't even think about.
Hi Charlie, and thank you so much for your brilliant dedication to PIP advice, and your genuine sincerity. I love when your dog blocks your screen, and you talk around her snuffling in front of the camera ☺ I do need to ask your advice on the Mobility section of PIP: my Mobility has been deemed recently been concluded as 0 . The letter I recieved in January this year is full of outright mistruths concerning what I told the Health Proffessional I spoke to on the phone...in July last year. I wonder if you can tell me how the PIP assess Mobility, and without a Doctors report. Sincerely, Rachael 🌷
Thank you
Love the doggo! Other folks dogs are my fix now a days! Had dogs throughout my life. Until I lost my last lad over 5 years ago. And as my mobility had declined I decided it would be unfair as I wouldn’t be truly be able to care and walk a doggo! Which is naff as living on my own a doggo was company!..
Thank you x
I too have sciatica in the lower part of my back I also get it in my legs can be well painful xx
Dont forget, if you have severe deafness you can get the lower rate Pip for bathing and not hearing the doorbell whilst in the bath etc.
I have only just stumbled across your channel but unfortunately a lot of what you say highlights the difficulties I have in proving my own case for PIP high rate. You say you should state that you need prompting/assistance/help from your partner or friend when it comes to daily activities. What happens when you live alone, as I do and you don't have anyone to help or prompt you with showering, cooking etc etc? As far as the DWP are concerned as I HAVE to do these things by myself then surely I am ABLE to do these things by myself so it's a case of computer says no! I actually lost my Motability car on this analogy because as far as they were concerned because I could get to hospital appointments myself - even though I explained this was only possible with the use of the Motability car - they deemed me as no longer needing that much help so that was the end of that😰
Fantastic videos...credit to u...
Great information,told there Charlie I haven't had a bath since I moved into our house 5 years ago saving money there I don't miss it either I have severe depression and anxiety and about 3 days out of 7 days I'll have a wash but need printing off my mom I have a shower once a week if there is a day I feel ok too I have more bad days than good though . Stated all this in my pip claim and I also mentioned that I use baby wet wipes to freshen me up the days I can't or don't want to do much due to feeling down,unwell or no energy too xx
Me too
I love your wee dog
I recorded pip assessment. Got refused. Went through recording. They miss representing my statements. This is maladministration. Now my record ING becomes admissible. It is proof of lie.. I got rec transcribed and sent it with no other info for re consider. And was awarded both mobility and care... I now purposely go fishing for cheats/lie ts, happy hunting,, it's empowerment
Thank uou so much for this. I am so pleased i dound your channel. I applied two years ago and was turned down, i scored zero i think. I assumed there was no point in appealing because of that.
I know I'll need to start the application again now, but I'm clearer about the amount of info to share, what to share and to know that I will likely need to appeal. I will also record my interview because i know I got worn down during it and my words manipulated.
Did i hear u say u recieve emails on help...ive now watched 3 of your videos..fantastic
I wish I had known about your videos last year when I applied for PIP because my assessment didn’t go well at first I lost the first claim application then I appealed that decision got denied again because I didn’t know how to answer the questions correctly so the assessment went badly but third time I called citizens advice bureau and they helped me do a mandatory reconsideration through the tribunal I got letters from my GP and my landlord to backup my application so DWP reconsidered my claim before it got to tribunal date but because I didn’t answer correctly about my daily living questions I only got the bare minimum of £100 a month and thats because I didn’t know how to answer the mandatory reconsideration questions correctly I want to do a change of circumstances but I am afraid to in case I give wrong answers again and then they give me less money or take my PIP away completely
Hi Charlie am worried about this, as my review is due to come through anyday now. I have a new wetroom and seat to sit on when in shower, but i cant use tge seat as its too low, i also have a toilet surround which i have to hold onto use it and hold on to get up. I also have a stairlift that they have put in as i couldnt get up the stairs for 2 tears without my sons help. Am worried am gonna get 0 points, please coukd you advise. I know you cant answer every message, but your advise would be greatly appreciated. Thank you for doing this to helping ordinary people get through the pip review process. God bless you for your help, people like you are angels on this earth❤❤
Even leaning on the wall to help with balance. I’m now at a stage of showering once 7 to 14 days. Not pain, although I haven’t been able to use my left hand since a bowel operation last August. Always think of your worse case scenario with the points table in front of you.
Your doing a great job.but you get distracted alot and come off course.thank for the up dates
Thank you for your valuable information. I am currently waiting for my hearing date, having been turned down twice and it has now taken over a year to get to this point. May i ask, will the fact that my health has deteriorated considerably in this time be noted, or will i have to make a new claim and go through the whole process again? I was told they may only look at the original claim which was jauary 2023, and will not care if my situation has worsened? Thank you. Ian.
hi charlie i have a phone assessment monday coming and im stressed
Hmmm fatigue! I was getting fatigue a few times a week and I’d have to go to bed for an hour or so! But in the last few weeks it’s morphed into everyday! My energy levels are low it comes in waves, I’m lethargic and it just feels like I’ve got a weight on my shoulders! And it seems it’s now accompanied with foggyiness ie brain fog forgetting etc…
Where did you get the dog from to assist if its a support doggy ? thanks.
Your a great person keep the videos going. Your doing a great job at what you do. All goodness to you.
Aww ive black lab called daisy ❤
Where can I find a copy of this form ? Thanks
Hello Charlie, I was supposed to have a telephone assessment today and because I said I was going to record the conversation the healthcare professional (lmao) has refused to go through with the assessment. They are saying I'm not allowed to record the assessment and they would give me a copy of the recording. Where do I stand on this issue?
Wish I had found your videoed before I submitted my application, which was refused, and I lost the letter so I couldn’t submit a mandatory reconsideration because the letter wasn’t where I thought it was on the last day I could’ve done it, which was the only day I had the spoons to do it…
So they gave me 0 for this category, but I have to hold onto the side of the bath to be able to get in or out of that or the shower, and lean on the wall when I’m in the shower. And I don’t have the energy to do this every day. But that’s 0?
Im sixtytwo and have severe copd i gave up work in 2020 after careing for my parents my mum died that year and dad passed the year after , iv had breathing problems along side anxiety since 2019 ive never claimed pip but my partner is coming up to retirement and i need financial help . Im petrified and overwhelmed to deal this but i have no choice, wish me luck and thanks for the advice .
I got standard rate when I should have got enhanced but I didn't have capacity to do anything about it. Now, I sent in the review. I should in theory get enhanced for both in a few months when it is reviewed. (It was given for 3 years).
Lovely dog. Mine won't allow me to below or fed-up. He comes up and demands cuddles. Regarding how the Agency behave, it was no better as DHSS. I was at Uni with two former Staff; both left because they were 'carpeted for helping people too much. In my own case, when refusing grant or loans, the DWP kept expecting me to scrounge from friends. Have you experienced PIP telling applicants that they look too well dressed, to need Benefits? I know someone who has.
Hi Charlie, is there any other way of contacting you. I would like to go on your waiting list for help. I don't know if you help people privately as a company/business. Many thanks.
Many people from other countries/nationalities wash with water and soap after using the toilet with a water bottle which goes a long way to keeping fresh everyday especially if its difficult getting in and out of the bath
If you haven't received a text to say you have been awarded pip a week after a telephone assessment, does that mean it's probably unsuccessful? Thank you.
I had a assessment last year but they put April 24 as end of claim nothing has changed at all my pain is worse now
Yeah I just sit too, hp looked at me in disgrace x
I have epilepsy I went for my assessment and they toke it off me decided that all of a sudden i can care for my self.
If l could get into the bath would be wonderful but the getting back up again is a major problem. So l don't... 😢
I was given 15 points on the first interview, got enhance. I've now got a phone interview. I can hardly talk to to emphysema. Not sure how thats going to go
How much do you charge to fill out pip form?
What should I wear for a face to face assessment? I dress nicely and always have make up on and my hair well groomed. I have been told not to wear jewerly and wear trackies.
You have to dress like Wayne and waynetta slob 😊
Hi Charlie how are you? How can I contact you, need assistance with a pip decision please
❤🙏
Question: when needing assistance, does this need to be every time? What if its only on worst days or when sick with flu etc
Never tell them you have good or bad days, you tell them
'On average I' need' assistance 5 days out of 7, or daily and it does not vary'
Otherwise you will get Zero points as you told them its once in a while.
Needing is diferent from actually getting, you Need some help. You may not be getting it, but you NEED it.
@@spacedoutagain thank you so much, this absolutely made sense.
I have a shower once a week but I can't use a bath anymor but they wouldn't put me a shower because I didn't soul myaself
Is there no point if you only have 9 points?
Wait hang on, the points are not added up that way in one subject, it works like this, if your higher point succeeds the lower point in the tick bar, thats the point you get. Not all of them added up.
Its abit misleading otherwise.
UK government has got money for everything and everyone apart British in "need"...
Is it worth the dispondant and depressing state of mind that these psychopaths put you in just for such a pittance amount of money?! I mean, it really is pitiful?! And if you are expected to be independent ..then do a job where you don't have to pay tax into their system ?!
It's just an excuse cause these folks dont wanna to work ..can't be arsed job searching visiting the jobcentre work coach having to explain yourself ..try living in a country without a benefit system ...
You know nothing!!! I am paralysed waist down can use only one arm would you give me job when I don't even know when I've messed myself
It's disgusting how they treat you. Absolute disgusting.
The doctors note door be more then enough evidence.