This was so helpful. Having high prolactin and also have had a cyst on my brain since I was a teen. Im having an MRI tomorrow. I hope everything works out!
Awww congratulations!!! I struggled with infertility for two years before having my little boy. Completely identify with the shock after all the previous tests being negative. What beautiful news! 🙌
I will try to go back and see what my level was. They did have me take synthroid while I was pregnant and that helped a lot. I didn’t believe I would ever have a baby but I did so I know it’s possible with prolactinoma. I have a friend that has one as well and she took her cabergoline during the first trimester as well as baby aspirin. I would ask about the synthroid maybe? I don’t have thyroid issues but because of the way the prolactinoma effects hormones it was like a balance for me. I felt wayyyy better after starting it. Good luck all I know how hard this all is.
Hello. Thank you for doing this video is really helpful 💗 as I am facing the same problem may I know what levels of high prolactin you were having? Thank you
How I managed to keep this to myself heaven only knows ,but this news is the best...the gene pool still flows on ,we are all blessed ....love always wins and we as a growing family are so very very lucky ..... Nana with all our love xxx
Congratulations! Just found your video! I also have a pituitary tumor that secretes excess prolactin. No success in getting pregnant for 3 years, but hopefully soon!
Thank you! So sorry I missed this comment! I'm definitely back into YT at the moment, really found my mojo - think being pregnant might be part of it! Hope you're well! X
Congratulations Rachel, I am so happy for u... I had two miscarriages now not until I went for a scan and it was discovered dat my prolactin is very high... i ve started using d drugs for a day now hope everything will go back to normal and get pregnant soon...
Does prolectinoma effect endometrial line??? I have no period for 3 months my prolectin is 138 and endometrial is 3mm i am 25 year old its not growing i have pcos also... Please reply 🙏
I was told to take cabergoline for my prolactinoma twice a week, but since a week is 7 days, I worry I'm not taking it soon enough. When did you work out taking your meds? I was thinking Wed and then Sunday?
Congratulations ! I am so happy for you and husband. I wish i have a baby of my own and not adopt.I have the same thing i going to take medicine for lowering prolactin so i can get pregnant i after five years trying. Thank you give me hope.
hi,I have one question.At that time what is the number of prolactin level?pkease let me know.bcz i did hormones level test.my prolactin level is 689mlU/ml.now I'm fear that also I have Prolactinoma.😨
im going through this now and its upsetting. i havent gotten a period in a month and ive been taking bromocriotine every day. how long was it until your periods regulated? or how long until your periods came back. im seeing a team of doctors. i dont want kids now but in about five years or so i do and this is freaking me out.
Thats amazing news. My partner has a prolactinoma and takes cabergoline, luckily it's not effected his fertility but i have read up a lot about prolactinomas and found mostly womens stuff and understand how difficult it is to conceive so this is absolutely fabulous news and wish you all the luck in the world going forward :) 3 kids is fab xx
Rachel Brady no it effects men too but not as much. He found out through me forcing him to go to the doctors because his behavior was not normal. Something wasn't right. I mean if you met him you'd think he was a regular guy but for me something just wasn't right. Then he was sleeping a lot, snapping a lot, used to be angry for no reason (like mens version of PMS) its like he had permenant PMS so he went to the docs finally where they did blood test and found higher than normal hormone levels so went for an MRI and there it was. It's a micro-prolactinoma so didn't have to have an Op. Hes been on carbagoline now for 6 years. It keeps the prolactinoma from growing and has brought his hormone levels back to normal x
Hey Rachel I got my prolactin high(49ng/ml) ... I have no kids yet..is it helpful for conceiving if my prolactin level comes to normal range...my doctor suggested me for ivf should I go for ivf or not please answer..
My doctor also suggested me bromocriptine.. I started taking it from past two days you think I can get pregnant in this month itself.. Like it will work in 7-9 days (My ocitation)
Hi did u get an answer for your question? Because im also 11 weeks pregnant with prolactinoma and im afraid my doctor would suggest to continue taking dostinex
Hlo, my husband have tumor in pituitary gland, we are treated this condition. Now i m missed my periods, i dont know its pregnancy or not. I m so confused and also tensed.
I'm 23 have been diagnosed with high prolactin levels can I buy the medicine online. My insurance won't cover it! Been trying a year I will be 24 Mothers Day🤧
Hi there - sorry for slow response! That's a shame insurance won't cover it - it won't here either and the NHS only helps people who are infertile with their first two kids. We went private. I would be very very careful buying medicine online to be honest. It's a really difficult one, as I understand why you would do it. I happens quite quickly for most women who take it, like in the first month or two. I would seek medical advice from your doctor. Good luck! X
@@rachelbrady That is horrible. Prolatinomas can make you at risk for early onset osteoporosis! The NHS needs to change this policy! I would contact your elected officials.
Hi everyone, i would love to know how many times everyone got tested before they were able to get prescribed bromocriptine, also did everyone have to get a mri, and how long did it take for the whole process from finding out they had high prolactin to prescription. I’ve been waiting now over 8 months, obviously now with covid things are just crazy but still would love to hear anyone’s stories. I just can’t believe how long it’s taking.
Fuego thank you!! I managed to get 3 blood tests in total, unfortunately my prolactin came back within normal range last two blood tests. Not sure where we will go from here as my endocrinologist appointment has been cancelled. I have been taking vit b6 100g, vit e and Vitex and I seem to have ovulated last month or well At the very least I got a positive ovulation test. Not pregnant tho sadly! But my mood has improved loads, feel way more chilled. Who knows! It’s such a difficult time, I hope that our days will come! X
Hi I started my bromocriptine yesterday and my nose was congested, like very blocked, and at night I had a serious heartburn... Did you experience these symptoms? And do they wear off or they'll remain there until I finish my medication
Hello maam, I have the same problem! How much prolactin level did yu have?? My prolactin level is 161, is really possible to shrink the tumor with medication in my case ??? Plz let me know
Sabiha Chowdury When prolactin levels are elevated, the body thinks it’s pregnant. So, one can’t get pregnant. Prolactin levels should be under 20. They (doctors) say medication can shrink or stop the growth of tumor.
This was so helpful. Having high prolactin and also have had a cyst on my brain since I was a teen. Im having an MRI tomorrow. I hope everything works out!
Awww congratulations!!! I struggled with infertility for two years before having my little boy. Completely identify with the shock after all the previous tests being negative. What beautiful news! 🙌
It's such a shock still! Thanks! X
Have you conceived now..
Also have a prolactinoma! Also now 5 weeks pregnant! Hoping it sticks ❤️
How its possible
Can one get pregnant with prolactin 46
Are u serious wat percent ur prolactin level was
I will try to go back and see what my level was. They did have me take synthroid while I was pregnant and that helped a lot. I didn’t believe I would ever have a baby but I did so I know it’s possible with prolactinoma. I have a friend that has one as well and she took her cabergoline during the first trimester as well as baby aspirin. I would ask about the synthroid maybe? I don’t have thyroid issues but because of the way the prolactinoma effects hormones it was like a balance for me. I felt wayyyy better after starting it. Good luck all I know how hard this all is.
Pls contact me
Yay!!! Congratulations!!! I’ve got a really similar story and due my third in August! Hope you have a really good pregnancy!! Xx
Ahh great congrats to you too! X
Hello. Thank you for doing this video is really helpful 💗 as I am facing the same problem may I know what levels of high prolactin you were having? Thank you
Oh my goodness what amazing news. Congratulations Rachel, I'm absolutely thrilled for you. Xxxx
Thanks so much! X
Oh my gosh! Congratulations Rachel! What lovely, lovely news.
Thanks!! X
Congratulations!!!so happy for u
I hope my time is soon :)
How I managed to keep this to myself heaven only knows ,but this news is the best...the gene pool still flows on ,we are all blessed ....love always wins and we as a growing family are so very very lucky ..... Nana with all our love xxx
Congratulations! Just found your video! I also have a pituitary tumor that secretes excess prolactin. No success in getting pregnant for 3 years, but hopefully soon!
Joss C.R. We will get pregnant i am also trying but I trust God
Have you conceived
Just take cabergoline 5mg and you will concieve.
@@takinginferilityintoyourow4076 hellow,,,how long should I take cabergoline?
@@takinginferilityintoyourow4076 for how much time ?
wow congratulations such happy news!! can not wait to follow your journey 😊😊😊 xxx
Ah that's sweet! X
I’m just catching up on your videos!! I’m so happy for you - Life works in wonderful ways X
Thank you! So sorry I missed this comment! I'm definitely back into YT at the moment, really found my mojo - think being pregnant might be part of it! Hope you're well! X
Aww this is such lovely news! Congratulations 😄❤️
Thanks! X
I'm starting today 💚
Congratulations
Huge congratulations lovely! This is such wonderful news. xx
Thank you so much! X
Congratulations! What lovely news! I’d love another one but think I’d be pushing my luck health wise sadly now :( hope your still feeling well x
Thanks Judy! X
Congratulations!! What lovely news. Xx Anna xx
Congratulations Rachel, I am so happy for u... I had two miscarriages now not until I went for a scan and it was discovered dat my prolactin is very high... i ve started using d drugs for a day now hope everything will go back to normal and get pregnant soon...
Did you get pregnant now ?
I’m so happy for you!!! Congratulations Rachel xxx
Thanks so much X
I am still on bromocriptine still hoping for this
Congratulations on your lovely news xxxx
Wow i also have the same problem my prolactin is 202 8 years not seeing my period. But u give a hope now 💞💟💞💟
Go to doctor dear I got the same
Aaaaah gorgeous news - congratulations! xx
Thank you! X
Rachel Brady congrats on 1000 subscribers! So chuffed for you. X
Does prolectinoma effect endometrial line??? I have no period for 3 months my prolectin is 138 and endometrial is 3mm i am 25 year old its not growing i have pcos also... Please reply 🙏
Congrats on the bundle of joy! 💖
Thank you! X
You got pregnant the first month after using Bromocriptine ? How many tablets is that all together? 💜Congratulations, lots of love 😘
Yes I had prolactin
I was told to take cabergoline for my prolactinoma twice a week, but since a week is 7 days, I worry I'm not taking it soon enough. When did you work out taking your meds? I was thinking Wed and then Sunday?
I take mine..Monday's and Thursday's
Congratulations ! I am so happy for you and husband. I wish i have a baby of my own and not adopt.I have the same thing i going to take medicine for lowering prolactin so i can get pregnant i after five years trying. Thank you give me hope.
On my second day of taking bromocritine for High prolactin hoping to get pregnant soon
😊 am happy for you , thank you for sharing your story
hi,I have one question.At that time what is the number of prolactin level?pkease let me know.bcz i did hormones level test.my prolactin level is 689mlU/ml.now I'm fear that also I have Prolactinoma.😨
How are doing now dear? I diagnosed my blood recently and I found out my prolactin level is 585 and am scared I don't know what to do
No need to be scared just take cabergoline 0.5mg
im going through this now and its upsetting. i havent gotten a period in a month and ive been taking bromocriotine every day. how long was it until your periods regulated? or how long until your periods came back. im seeing a team of doctors. i dont want kids now but in about five years or so i do and this is freaking me out.
Girl im going through the same exact thing, did you ever find out?
Rachel such a crazy story! So glad you’re ok and also CONGRATULATIONS! V v happy for you xxx
Hey Charlie! So sorry I missed a truck load of comments! Ah thanks sweetie! X
Beautiful Story, Thanks For Sharing.
Can I use Cabagolin? And were you using bromocriptin when you are pregnant?
Congratulations that’s wonderful news 😊
Thanks! X
Thats amazing news. My partner has a prolactinoma and takes cabergoline, luckily it's not effected his fertility but i have read up a lot about prolactinomas and found mostly womens stuff and understand how difficult it is to conceive so this is absolutely fabulous news and wish you all the luck in the world going forward :) 3 kids is fab xx
Thanks! That's really interesting - how did he find out he had it? I thought normally it affects women but maybe that's not the case X
Rachel Brady no it effects men too but not as much. He found out through me forcing him to go to the doctors because his behavior was not normal. Something wasn't right. I mean if you met him you'd think he was a regular guy but for me something just wasn't right. Then he was sleeping a lot, snapping a lot, used to be angry for no reason (like mens version of PMS) its like he had permenant PMS so he went to the docs finally where they did blood test and found higher than normal hormone levels so went for an MRI and there it was. It's a micro-prolactinoma so didn't have to have an Op. Hes been on carbagoline now for 6 years. It keeps the prolactinoma from growing and has brought his hormone levels back to normal x
Congratulations, looking forward to more videos x
Thanks! X
Om my 2 month of bromocriptine hoping to conceive this month
Thanks and Congrats.
Congratulations dear
You gave me hope
I have have prolactin level too i am given bromocriptine as well i am hoping to get pregnant too
Love your channel!
Thanks!! X
Congratulations having three kids is great x x
Thanks! Everyone says so, I'm excited ad scared at the same time! X
Hey Rachel I got my prolactin high(49ng/ml) ... I have no kids yet..is it helpful for conceiving if my prolactin level comes to normal range...my doctor suggested me for ivf should I go for ivf or not please answer..
hi saba, i recently got pregnant , my levels were around 70 in last test, you can contact me.. im in lahore, i was taking caborgolin
@@sabasadat5504 thanks for your response.
how can I contact u dear?
.
@@sabasadat5504 please share your email address so that I can contact you.
Jazakillah💞
@@sabasadat5504 hi please tell me also
@@itsmesangeeta6748 hi sangeeta, i got myself treated from an endocrinologist
My doctor also suggested me bromocriptine.. I started taking it from past two days you think I can get pregnant in this month itself.. Like it will work in 7-9 days (My ocitation)
Can you please reply me did you took bromocriptine in your whole pregnancy?
Are you taking parlodel whole tablet? Or u cut it into half?
Congratulations!! :) x
Thanks! X
That is so wonderful
I want to ask if I use medicine for high prolactin while I am pregnancy do affect the baby?
Hi did u get an answer for your question? Because im also 11 weeks pregnant with prolactinoma and im afraid my doctor would suggest to continue taking dostinex
Hlo, my husband have tumor in pituitary gland, we are treated this condition. Now i m missed my periods, i dont know its pregnancy or not. I m so confused and also tensed.
I'm 23 have been diagnosed with high prolactin levels can I buy the medicine online. My insurance won't cover it! Been trying a year I will be 24 Mothers Day🤧
Hi there - sorry for slow response! That's a shame insurance won't cover it - it won't here either and the NHS only helps people who are infertile with their first two kids. We went private. I would be very very careful buying medicine online to be honest. It's a really difficult one, as I understand why you would do it. I happens quite quickly for most women who take it, like in the first month or two. I would seek medical advice from your doctor. Good luck! X
@@rachelbrady That is horrible. Prolatinomas can make you at risk for early onset osteoporosis! The NHS needs to change this policy! I would contact your elected officials.
Where are you? U.S. or other country?
Pls help me
Hi everyone, i would love to know how many times everyone got tested before they were able to get prescribed bromocriptine, also did everyone have to get a mri, and how long did it take for the whole process from finding out they had high prolactin to prescription. I’ve been waiting now over 8 months, obviously now with covid things are just crazy but still would love to hear anyone’s stories. I just can’t believe how long it’s taking.
I will be having my prolactin test on monday 7/6/20 ill keep you posted!
Fuego thank you!! I managed to get 3 blood tests in total, unfortunately my prolactin came back within normal range last two blood tests. Not sure where we will go from here as my endocrinologist appointment has been cancelled. I have been taking vit b6 100g, vit e and Vitex and I seem to have ovulated last month or well At the very least I got a positive ovulation test. Not pregnant tho sadly! But my mood has improved loads, feel way more chilled. Who knows! It’s such a difficult time, I hope that our days will come! X
Congratulations xx
Thank you! X
My prolactin level is 8543, I'm taking cabergoline once a week
Wonderful news
Thank you! X
Pls which medicine used???
I also have this type of tumor as well ....Did you have missed periods for a long period of times
I have the same thing and I did for about a year
did you continued taking pills even after getting pregnant??
But what happen To the tumor Is it safe to become pregnant when you still have small Tumor ..
Thats what i want to know, after taking the medication did the tumor size down ? Or is it still there ? Or growing?
Can I ask your age at time of this pregnancy?
My prolactin level is 50.3
I am scared but my cycle is 35 days and i ovulate
Congratulations. Just started using mine last month. I used for 10 days. I haven’t gotten my period yet and I’m due bt my urine test is still negative
Please did it work for you?
Same did it work for u
Trying to get pregnant hope the brimocripten work for me
Hi I started my bromocriptine yesterday and my nose was congested, like very blocked, and at night I had a serious heartburn... Did you experience these symptoms? And do they wear off or they'll remain there until I finish my medication
I also have these side effects because of bromocriptine
I had these same symptoms but it stopped as time goes by
Pls did it work for you
What does it feel like to ovulate
Cramps and pinching around waist
What's the name of the drug?
Tavia Tracey bromacriptine but please don’t try to get online do get from a doctor xxx
Iam pakistan my prolactin 776 please shear madicen
Hello maam, I have the same problem! How much prolactin level did yu have?? My prolactin level is 161, is really possible to shrink the tumor with medication in my case ??? Plz let me know
Mine is 80 and doctor advised me to go on a diet and a 30mins jogging everyday
Is it cause infertility ??
Sabiha Chowdury When prolactin levels are elevated, the body thinks it’s pregnant. So, one can’t get pregnant. Prolactin levels should be under 20. They (doctors) say medication can shrink or stop the growth of tumor.