Jacob's IBD
Jacob's IBD
  • Видео 61
  • Просмотров 26 558
These are super unhealthy! But you knew that...
When it comes to diet, I truly believe that we all know instinctively what is healthy, and what is unhealthy. I think that the difference between making a healthy choice and an unhealthy one is truly believing in the foods you choose. You know that some deep fat fried chips are ultimately not going to give you the best nutrition, but do you believe it enough deep down inside your core to make a different diet choice?
Sometimes I feel that a chronic disease can be a blessing in disguise when it comes to making dietary choices as I feel the impact of those foods very quickly. Let's discuss.
1 to 1 support waiting list: forms.gle/eE21ePVVtbRArZTc6
Free IBD Infopack: kneecapmedia.eo.page/bn5h5
IB...
Просмотров: 111

Видео

7 steps I followed to heal my Ulcerative Colitis
Просмотров 215День назад
Free IBD Infopack: kneecapmedia.eo.page/bn5h5 1 to 1 support waiting list: forms.gle/eE21ePVVtbRArZTc6 IBD Community discord: discord.gg/3hATUR2hdZ These are the 7 ways I stopped my flare with inflammatory bowel disease, and learnt to thrive with Ulcerative Colitis. These 7 steps will lay the foundations for success when living with chronic disease. Timestamps 00:00 Introduction 00:33 Accept th...
How to support a loved one with Ulcerative Colitis
Просмотров 138День назад
1 to 1 support waiting list: forms.gle/eE21ePVVtbRArZTc6 Free IBD Infopack: kneecapmedia.eo.page/bn5h5 IBD Community discord: discord.gg/3hATUR2hdZ Supporting a loved one with Inflammatory Bowel Disease can be a unique challenge, and there is one expert living with me who can help shed light on this topic. My fiance has been with me through every one of my flares, and I couldn't think of a bett...
Talking in the bath about Covid, IBD & reffered pain
Просмотров 15614 дней назад
Today I am talking about how I am feeling today in the bath.
Diet Mistakes I wish I knew sooner with Ulcerative Colitis
Просмотров 27114 дней назад
Free IBD Infopack: kneecapmedia.eo.page/bn5h5 1 to 1 support waiting list: forms.gle/eE21ePVVtbRArZTc6 Here are some diet mistakes I wish I knew sooner with Ulcerative Colitis. #ulcerativecolitis #diet #autoimmunedisease
Infliximab - 2 Years Later
Просмотров 18621 день назад
I've been taking Infliximab (Remicade) for over 2 years now, my name is Jacob and I have been living with Ulcerative Colitis for over 10 years. I want to share my experiences living with this biological treatment for my inflammatory bowel disease, and give you my review. 1 to 1 support waiting list: forms.gle/eE21ePVVtbRArZTc6 Free IBD Infopack: kneecapmedia.eo.page/bn5h5 IBD Community discord:...
Is Remicade (Infliximab) safe long term?
Просмотров 12421 день назад
1 to 1 support waiting list: forms.gle/eE21ePVVtbRArZTc6 Free IBD Infopack: kneecapmedia.eo.page/bn5h5 IBD Community discord: discord.gg/3hATUR2hdZ Can you take Remicade (infliximab) over the long term? How will this medication affect your body over the years? Will the drug finish us off before the inflammatory bowel disease does? Today I wanted to pose this question on reddit to see what peopl...
Don't eat this crap, make your own.
Просмотров 181Месяц назад
Whether it's a Lunchly, or a Lunchable, it's worth putting it in the bin and making your own lunch. If you want real nutrition then put your own ingredients in it. KSI, Logan Paul & Mr Beast won't keep you healthy, only you can. 1 to 1 support waiting list: forms.gle/eE21ePVVtbRArZTc6 Free IBD Infopack: kneecapmedia.eo.page/bn5h5 IBD Community discord: discord.gg/3hATUR2hdZ Check out my main ch...
Weed and Ulcerative Colitis - Does it help?
Просмотров 206Месяц назад
Does weed help the symptoms of Ulcerative Colitis? Today I am going to share my experiences as a 10 year sufferer of Ulcerative Colitis, and even longer as a stoner. Is it worth trying, and is there an alternative if you don't want to use it? 1 to 1 support waiting list: forms.gle/eE21ePVVtbRArZTc6 Free IBD Infopack: kneecapmedia.eo.page/bn5h5 IBD Community discord: discord.gg/3hATUR2hdZ Timest...
How I eat on holiday with Ulcerative Colitis
Просмотров 180Месяц назад
Having a plan of action with your diet is essential when going on holiday. You want to avoid falling into the trap of eating unhealthy just because your away! This could lead down the route of inflammatory bowel disease flare. I like to follow the rule of eating 80% right, and 20% whatever you want. 1 to 1 support waiting list: forms.gle/eE21ePVVtbRArZTc6 Free IBD Infopack: kneecapmedia.eo.page...
New Ulcerative Colitis Diagnosis? Watch this video
Просмотров 249Месяц назад
It can seem hopeless to be given an Ulcerative Colitis diagnosis, but I am going to show you how I learnt to thrive with IBD. My name is Jacob and I have been living with Ulcerative Colitis for 10 years, and I want to share my experience with you so you can be your best self. 1 to 1 support waiting list: forms.gle/eE21ePVVtbRArZTc6 Free IBD Infopack: kneecapmedia.eo.page/bn5h5 IBD Community dis...
The brutal reality of Ulcerative Colitis
Просмотров 265Месяц назад
Ulcerative Colitis may appear to be an invisible disease, but I am here to show you just how loud it really is, and why you shouldn't panic about it. 1 to 1 support waiting list: forms.gle/eE21ePVVtbRArZTc6 Free IBD Infopack: kneecapmedia.eo.page/bn5h5 IBD Community discord: discord.gg/3hATUR2hdZ Check out my lifestyle channel: www.youtube.com/@kneecapjake Business Enquiries: Hello@jacobsibd.co...
10 exercises to heal ulcerative colitis
Просмотров 166Месяц назад
1 to 1 support waiting list: forms.gle/eE21ePVVtbRArZTc6 Free IBD Infopack: kneecapmedia.eo.page/bn5h5 IBD Community discord: discord.gg/3hATUR2hdZ Jacob shares his 10 years of lived inflammatory bowel disease experience to help you figure out which exercises are worth your time when looking to start healing with Ulcerative Colitis. Timestamps 00:00 Where to start? 00:26 Walking 01:19 Deadlift ...
Can you travel with Ulcerative Colitis?
Просмотров 158Месяц назад
Can you travel with Ulcerative Colitis?
Ulcerative Colitis warning signs and symptoms
Просмотров 295Месяц назад
Ulcerative Colitis warning signs and symptoms
Top 5 tips for an Ulcerative Colitis Flare
Просмотров 1902 месяца назад
Top 5 tips for an Ulcerative Colitis Flare
This causes Ulcerative Colitis flares
Просмотров 4402 месяца назад
This causes Ulcerative Colitis flares
Making breakfast for Ulcerative Colitis healing
Просмотров 2482 месяца назад
Making breakfast for Ulcerative Colitis healing
Food Shopping for healing Ulcerative Colitis
Просмотров 2652 месяца назад
Food Shopping for healing Ulcerative Colitis
The brutal reality of Ulcerative Colitis Medications
Просмотров 6772 месяца назад
The brutal reality of Ulcerative Colitis Medications
What I eat for Lunch with Ulcerative Colitis
Просмотров 2042 месяца назад
What I eat for Lunch with Ulcerative Colitis
How to heal an Ulcerative Colitis flare
Просмотров 5122 месяца назад
How to heal an Ulcerative Colitis flare
Can Ulcerative Colitis cause an Eating Disorder?
Просмотров 1392 месяца назад
Can Ulcerative Colitis cause an Eating Disorder?
How Ulcerative Colitis changed my life
Просмотров 1923 месяца назад
How Ulcerative Colitis changed my life
How you can lift weights with Ulcerative Colitis
Просмотров 1463 месяца назад
How you can lift weights with Ulcerative Colitis
1 to 1 Ulcerative Colitis support with Jacob
Просмотров 2963 месяца назад
1 to 1 Ulcerative Colitis support with Jacob
How Ulcerative Colitis gave me reasons to live
Просмотров 1243 месяца назад
How Ulcerative Colitis gave me reasons to live
Full day of eating with ulcerative colitis
Просмотров 4633 месяца назад
Full day of eating with ulcerative colitis
Is Ulcerative Colitis a disability?
Просмотров 2653 месяца назад
Is Ulcerative Colitis a disability?
The truth behind your gut and depression
Просмотров 603 месяца назад
The truth behind your gut and depression

Комментарии

  • @namangarg8437
    @namangarg8437 9 минут назад

    I have suffering hemorrhoids from last 10 years.i lost my childhood to this disease .now it has become more dangerous. And due to this i have lost 15 kg weight.now my will to live has ended.i am not

  • @Doomlike7
    @Doomlike7 22 часа назад

    Baldurs Gate 3 also helps me besides the 7 steps that are clearly excellent advice😝

    • @jacobsIBD
      @jacobsIBD 20 часов назад

      That game was great! Thanks for watching.

  • @PawanSalve-s7l
    @PawanSalve-s7l День назад

    Nice brother from India

  • @ianharcourtsmith
    @ianharcourtsmith 4 дня назад

    Knowledge is important and knowing the negative effects in a real way can really change the way you live - it's a complicated topic and upbringing has a huge influence but it's not always so possible for the parents or children to lead healthy lives even if they know how to.

  • @PeCo333
    @PeCo333 5 дней назад

    Do eat meat, fish, eggs and butter.

  • @suge8132
    @suge8132 6 дней назад

    Hey Jacob, just got diagnosed with crohns in the last year, been super sick, unable to work out till just recently, it’s been harder than before, need more time between workouts to recover, muscles are sore longer, any suggestions? I eat super healthy, take a lot of supplements, I don’t overdo my workouts but still try to push myself..

    • @jacobsIBD
      @jacobsIBD 6 дней назад

      Hey there, thanks for the comment! First of all, it sounds like you are doing the right things! Your muscles will get very sore if they have not been stimulated in that way for a while. This is DOMs (Delayed onset muscle soreness) and its totally normal. Soreness reduces week on week as long as you keep up the work. It would be totally normal for workouts to feel harder after having a flare, lost weight and less chance to train will cause that. The main thing is keep going, it is a slow process, but a rewarding one. Keep on the path you are on and see what happens 6 months down the line. I believe in you.

  • @nessuno007
    @nessuno007 9 дней назад

    amazing video thank you

  • @DodoLove21
    @DodoLove21 12 дней назад

    Have you tried getting in touch with Josh Dech?

    • @jacobsIBD
      @jacobsIBD 6 дней назад

      No sorry not heard of him.

  • @DodoLove21
    @DodoLove21 13 дней назад

    I got a mild moderate form mayo 2 just a little bit blood and mucus not a pool not so much to the toilet just 3 4 times and the feeling i cannot hold it is almost gone i dont need to poo when im always outside it is at the last 20 centimeters of my colon but i dont feel pain cramps stuff like that just sometimes leaky gut but just little drops but i stopped eating fatty proces stuff spicy stuff diary i can sleep trough the night just the morning i wake up i go 1 or 2 times to the toilet but i just got diagnosed recently and soon gonna be on mesalazine just keep a eye on your health see what foods make you feel good and stick to it talk with your friends family try to get support from everyone dont feel sad and sorry god gives everything for a reason i never smoked drinked alcohol just ate unhealthy once in a while. One thing i do have but hopefully the doctors will sort it out is that my poo is kinda yellow.

    • @DodoLove21
      @DodoLove21 13 дней назад

      The doctor sayed she has it aswell and her husband has crohns just never give up have faith and hope never stress talk with the people who can help you and can listen just a way to throw your mind out

  • @susannahharrison8101
    @susannahharrison8101 13 дней назад

    Great video, thank you 😊

    • @jacobsIBD
      @jacobsIBD 6 дней назад

      Thanks for watching!

  • @mauriciocordoba952
    @mauriciocordoba952 13 дней назад

    can you make a video on training/working out with UC?

    • @jacobsIBD
      @jacobsIBD 6 дней назад

      I can do a video specifically on that. I recently did put out a video with my favourite exercises in it: ruclips.net/video/ImhnYcCp3pQ/видео.htmlsi=uvOPjJzWKthGktkS

  • @ktpedigo8799
    @ktpedigo8799 15 дней назад

    Have you got heart palpitations? I have been getting these since Remicade. Also what dose are you on? They upped mine to 10kg/MG every 4 weeks :(

    • @jacobsIBD
      @jacobsIBD 6 дней назад

      As I write this I am getting my IV right now. It is 400mg. I have had random heart palpitations before, but can't say its related to the IV.

    • @jacobsIBD
      @jacobsIBD 6 дней назад

      Also an increase in frequency, I.E. from 8 weeks to 4 weeks, could be a useful way of reducing symptoms if 8 weeks is too far apart. I would definitly prefer to go down the frequency route rather than a larger dose if I need to in the future.

  • @Alexandru-Simon
    @Alexandru-Simon 15 дней назад

    Thanks for sharing

    • @jacobsIBD
      @jacobsIBD 6 дней назад

      Thanks for watching

  • @thenature4785
    @thenature4785 17 дней назад

    Hey mate. Have you been alright lately? Hope you’re all good bro. I enjoy your videos as they are educative and provide quality information into the life of having UC. It’s definitely a journey to live with UC but as long as it’s under control then everything will be fine.🙏🏼

    • @jacobsIBD
      @jacobsIBD 16 дней назад

      Other than the covid I have been good cheers! Thanks for the kind comment, I hope all is going well for you!

    • @thenature4785
      @thenature4785 16 дней назад

      @@jacobsIBD awesome, glad to know. Get better soon. Thank you, I'm well. Just focusing on eating really well consistently.

  • @pamsin4
    @pamsin4 17 дней назад

    btw I am not saying I had stopped biologicals deliberately, they have kept me going for many years. I will most probably continue to use another when needed. As well as grass fed meat, that I eat when I can, I had slippery elm recommended to me and this I like.

  • @pamsin4
    @pamsin4 17 дней назад

    perhaps a 'whiteboard' about sleep, insomnia, sleep hygiene, importance of sleep etc you may have already touched on this unsure. Socialising and managing friends and family who don't understand. Hidden illness and issues with this. just some ideas, you may have already done all of this

    • @jacobsIBD
      @jacobsIBD 16 дней назад

      Thanks! Those are some great ideas, I will make a note of them.

  • @pamsin4
    @pamsin4 17 дней назад

    I hope you feel better soon. Ulcerative colitis is rubbish, I have referred pain, but I think SIBO or bile acid malabsorption explains it. No one really has any idea, just trial and error all the time to get through. UC for over 20 years, several biologicals, recent Ustekinumab; made me feel unwell for three years. Started other medications made me feel stressed and anxious. Stopped biologicals for a couple of months and feeling more like myself first time for years. I know it is risky. Your whiteboards are really good and informative. oh I have gone carnivore, vegetable and fruits I am having trouble with.

    • @Happyantix112
      @Happyantix112 17 дней назад

      Carnivore replacing the biologists? I'm on Ustekinumab too and feel like crap, it's not helping my colitis at all either

    • @pamsin4
      @pamsin4 17 дней назад

      @@Happyantix112 I have not done this deliberately, I had two tips when in hospital a few months ago from other patients, one was carnivore diet and another trying slippery elm, I like both. I had to stop my last medication, Ozanimod, as I felt that I was losing my independence, I was so stressed and anxious. I am probably going to relapse before long and will need to take another, do hope not though. I had a lot of side effects with Ustekinumab but kept going with it, wish I hadn't now. Trouble swallowing was one side effect that was not good. I had relapses on Ustekinumab too.

    • @jacobsIBD
      @jacobsIBD 16 дней назад

      I have heard other people mention slippery elm, I have not tried this myself but think I will look into it for sure.

    • @thenature4785
      @thenature4785 16 дней назад

      @@jacobsIBD Quercetin is unreal. It prevents any allergic reactions from occurring in the body. Research it. Very high quality supplement. I believe it’s crucial for UC and any other condition.

  • @grahamhowe7648
    @grahamhowe7648 17 дней назад

    Jacob you are a fantastic communicator, I have microscopic colitis, recently started Budesonide, not instant improvement, but promising. This Saturday, I felt best for ages, but then schoolboy error, I let my guard down and made some bad food choices, Sunday as well. Today really bad flare!!

    • @jacobsIBD
      @jacobsIBD 16 дней назад

      Its easy to make that schoolboy error indeed! Done that myself many times. Hope the budesonide works out for you!

  • @husnainijaz9415
    @husnainijaz9415 17 дней назад

    Bro how many months your remission may last. Can you tell me how much time before your flare

    • @jacobsIBD
      @jacobsIBD 16 дней назад

      Been all good since being on Infliximab (touch wood)

  • @rebeccamccarthy7088
    @rebeccamccarthy7088 18 дней назад

    This is a great reminder, thank you Jacob :)

  • @douggregory2497
    @douggregory2497 18 дней назад

    I have smoked vaped daily for the past 45 plus years. Five days ago I quit so far lol. I do believe there is a correlation between blood in stool and the weed. To day no blood. Don't know I might have my head up my hoop. Been flaring for one month now. I am trying to heal with the Gaps diet, I have healed with the gaps diet before. If not I will be going for the biological drugs. Been on heavy prednisone dose four times in the last fourteen months. Being disciplined with my food choices is difficult for me but have been on track this time and seeing improvement. Thanks for giving me a space to unload.

  • @GP_Corner
    @GP_Corner 18 дней назад

    Hiya Jacob, Do you have any suggestions for drinks? Flare & remission. I don't drink alcohol, never have really, or fizzy drinks, haven't for years, (or Dairy. I'm allergic unfortunately) but I do drink squash. Silly I know because they're full of crap. I do try to drink water, boring though isn't it 🥴😂 Any suggestions that I can replace the squash with? Love the channel mate. Thank you!

    • @jacobsIBD
      @jacobsIBD 16 дней назад

      Hey thanks for the comment! I would recommend Kefir, but you said your allergic. All I can say is water, or herbal teas! I like lemon balm, ginger & lemon and decaff coffee!

    • @GP_Corner
      @GP_Corner 16 дней назад

      @@jacobsIBD thank you brother :) hoping to get out of the flare soon 🤞🏻🤞🏻

  • @KAYuvasakthiS
    @KAYuvasakthiS 19 дней назад

    Bro please reply , does person with uc get UTI ??

    • @pool8443
      @pool8443 18 дней назад

      They can, just like everyone else

    • @Wokewan
      @Wokewan 18 дней назад

      Hi, the consultant we saw mentioned that immunosuppressants (esp steroids) lower resistance to infection and can lead to UTI. UTI’s are uncommon in boys and men but can be caused by lower immunity. Hope that helps you a bit!

  • @markmcla
    @markmcla 21 день назад

    Today I asked my gastroenterologist about hyperbaric oxygen + mesalamine enemas as a long term maintenance therapy. -I've been on inflectra for 1.5 yrs. I received inflectra during my 2nd hospitalization for severe UC. I was just skin and bones when I received inflectra. Also, I had a minor flare earlier this year, but I've been in remission from this flare for the past 6 months. Like you, inflectra worked miraculously for me too. Within hours after my infusion, I felt like a dark cloud that had been keeping me down just floated away... Anyway, my doctor said that he has only treated Crohn's Disease patients with hyperbaric oxygen. These patients tend to improve with hyperbaric oxygen treatments, but the treatments need to be sustained for a long period of time. And when the treatments stop, the disease tends to return. My doctor is not aware of any clinical trials of hyperbaric oxygen as a maintenance therapy for UC. I've seen some clinical trials that use hyperbaric oxygen for severe UC as an additional therapy to standard treatments. HOWEVER, my doctor isn't opposed to hyperbaric oxygen as part of a maintenance therapy if I can remain free of a flare for the next couple of years. That sounded very reasonable to me. I hope this info helps! -I'm feeling very healthy these days. I'm playing basketball most Sunday mornings, and I hiked Mt Whitney last month. This is the highest mountain in the continental USA, 14,495 ft!

    • @jacobsIBD
      @jacobsIBD 6 дней назад

      Glad to hear you are feeling healthy! That is fantastic to hear. Let me know how your experience goes with hyperbaric oxygen.

    • @markmcla
      @markmcla 5 дней назад

      @@jacobsIBD Yes, I will let you know. I probably won't start the hyperbaric oxygen therapy for at least 1 -2 years. I think hyperbaric oxygen will be the best way to make the transition off of inflectra. -Also, I really enjoy your channel. You provide excellent content!

  • @suzijw825
    @suzijw825 21 день назад

    I have a disability card now. Called in German. ( Behinderte Ausweis 80%)

  • @suzijw825
    @suzijw825 21 день назад

    This is more than disability to me..Because any health problems that makes. One not able to go out . Not having a rest yourself. Always in pain. Going to hospital everytime" is a disability Because you can't keep a job. Here in Germany the government will care for you" your rent . Monthly allowance. And health insurance. Everything will be paid by them. And those who also need a care give help. Will got it

    • @jacobsIBD
      @jacobsIBD 6 дней назад

      I am glad you can get such good support. I can;t say the support I get is bad here as I get the medications I need, but I do think it could be a lot better here (in the UK)

  • @USER_DELETED_ACCOUNT
    @USER_DELETED_ACCOUNT 21 день назад

    Nice analysis man

  • @Yt_16th
    @Yt_16th 22 дня назад

    Hiya, I haven’t been on infliximab for 10 years but I have been on it for 6 years, firstly I was diagnosed with crohns disease at 13 and was put on a 6 week diet of modulen ibd formula that worked like a charm as I was severely underweight,after the 6 weeks I was prescribed azathioprine and been on it ever since, when I was 15, I had a bad flare that caused an infection and my bowel was restricting and closing up, at first surgery was put on the table but I refused so they gave me an alternative to choose from, which was either infliximab or adalimumab, I chose infliximab. I can tell you the first time I had it it help with symptoms a few days later,then my bowel started to unrestricted itself over time, it’s a miracle drug and after being on it for 6 years and I’m going on to my 7th I can easily say that not only have I not developed antibodies as I respond to it very well like you, the only side effects that I have ever had was fatigue and sometimes nausea which is completely normal. Though not all people are lucky with the treatment, I do think a massive majority of people who receive it have continuously responded well too it. Of course there are risks, and recently I did come into a flare that has lasted for a while but it was due to a stomach bug I caught. I had my infusion again last week and I’m starting to feel relatively normal. So it’s still working after all these years.Hope this helps you and thank you for spreading awareness and helping people understand this invisible illness.

  • @jdubs1007
    @jdubs1007 22 дня назад

    Jacob, I've had the same quick response with this med. Hours later I felt better,, AMAZING!!! I did get the major side effects of Lupus and bad body aches. Had to get off the meds,, but wow. This one did help the fastest so far for me. Been on a variety of biologics and immunotherapy meds and I would recommend this to anyone in a major flare and was in HOSPITAL condition. Thanks for all the Videos brother. Stay well my friend.

    • @jacobsIBD
      @jacobsIBD 6 дней назад

      Thank you for the comment, sorry to hear you had the major side effects, hope you are keeping well.

  • @sfranz44
    @sfranz44 23 дня назад

    hi Jacob, have you tried going full carnivore or full plant-based? I've heard from both sides conflicting claims that going one or the other is the cure, what is your opinion on this? thanks!

    • @jacobsIBD
      @jacobsIBD 23 дня назад

      I have done a mostly meat & fruit based recently, not carnivore, and it made me feel great. Been eating more vegetables recently but still lots of fruit and meat. Not tried plant based, seems like an idea but I will admit, I don't want to give up meat. It has so many vitamins and minerals in it and easily digestible. Worth trying both if your interested and seeing how it works for you personally.

    • @thenature4785
      @thenature4785 19 дней назад

      I agree with Jacob. Full plant based can help initially but you will starve your body of essential micronutrients. Plant based only helps because you avoid all the processed junk food which is unhealthy. Animal based (meat and fruit) is the way forward. With the inclusion of some veg which aren’t toxic and full of pesticides and histamines.

  • @MarylouHurlen
    @MarylouHurlen 23 дня назад

    Very informative and thank you for sharing your stories.❤

  • @suzijw825
    @suzijw825 23 дня назад

    Am passing out mucus 24 hours. Sit in the toilet all day. Everyday. Am really suffering😭. My anus is itching so bad. Because of the mucus. I cant even sleep.

    • @jacobsIBD
      @jacobsIBD 23 дня назад

      Hope it passes soon for you, sleep was terrible for me, especially while on prednisone so I know how that is! Look into numbing suppositories. Got me through hard times in the bum region for sure. I wouldn't have coped without them when I came out of hospital. In short I was sore down there and the numbing suppositories made life bearable.

  • @suzijw825
    @suzijw825 23 дня назад

    Thanks very much

  • @suzijw825
    @suzijw825 23 дня назад

    Thanks so much. I was just listening to you all day. Am suffering from intestinal problem too. My result is out. After a long time of suffering. Going to my doctor tomorrow morning to get it. Then we can discuss way forward. Because am at my breaking point already😪

    • @jacobsIBD
      @jacobsIBD 23 дня назад

      Hope your DR appointment goes well, let me know how it goes!

    • @suzijw825
      @suzijw825 22 дня назад

      @@jacobsIBD it diagnose was ulcerative proctitis. And some ulcers inside the large intestine. From on Friday going back to my doctor to get something that can help. Hopefully it going to be some tablets. Because am really suffering everyday😪 this diagnose has a very long awaiting one for me. 2 years of suffering. I can't go out" I can't do anything.. my friends does almost everything for me. If I didn't have them. I don't know how my life will be😭

  • @KAYuvasakthiS
    @KAYuvasakthiS 25 дней назад

    brother do you have h pylori

  • @ASpectacular3777
    @ASpectacular3777 25 дней назад

    Ian is 5’10-1/2” tall and is now only 123 lbs! :( Everything in this video is what he’s been through. He is now anemic and weak. They want him to start iron infusions. He is eating heavy carnivore.

    • @jacobsIBD
      @jacobsIBD 25 дней назад

      Hope Ian has his symptoms turn around soon, hang in there and things will get better sooner or later!

  • @ASpectacular3777
    @ASpectacular3777 25 дней назад

    Is Mince Lamb? Thank you.

    • @jacobsIBD
      @jacobsIBD 25 дней назад

      In this meal I cooked mince beef.

  • @ASpectacular3777
    @ASpectacular3777 25 дней назад

    This was very helpful indeed! Thank you for all these great updates. Ian is on 80mg of Prednisone/day and Mesalamine they doubled his dose. His insurance is really bad/cheap from work. He is still at the high point of his initial flare that started in July (his first diagnosis) and was getting better after 40mg of Prednisone + Mesalamine. Then a member of his family upset him and the flare came on 100x worse! So stress definitely plays a part in this Ulcerative Pancolitis of his. Thank you again, Cheers. IAN and ANN from Chicago. :)

    • @markmcla
      @markmcla 25 дней назад

      Good luck. The Christmas Holidays are around the corner, which means more social and family pressures. You must do your best to make lowering stress a priority. Mr Ian's days of pleasing other people are over until he recovers.

    • @jacobsIBD
      @jacobsIBD 23 дня назад

      Solid advice, Ian should put himself first until his strength returns. Don't engage with family members that cause stress until he feels ready to face it.

    • @ASpectacular3777
      @ASpectacular3777 22 дня назад

      @@markmcla Thank you. I will share your comment with him.

    • @ASpectacular3777
      @ASpectacular3777 22 дня назад

      @@jacobsIBD Thank you, Jacob, I am sharing your comment with him.

  • @markmcla
    @markmcla 25 дней назад

    The comments in the forum would select for those who have done well, because those who had a poor outcome or died would not be around to comment. -Remicade/Inflectra saved my colon, and I've been on it for 1.5 yrs. I'm very grateful for this medicine. Nevertheless, I eventually want to get off of biologics because I'm concerned about the long term increased risk of cancer and liver disease. I'm going to see my gastroenterologist this week for a routine appointment. I'm going to ask him if there are any clinical trials that offer a maintenance therapy of hyperbaric oxygen and mesalamine enemas. I'm not in a rush to try something different, but I do want to eventually switch to something that is safer long term.

    • @jacobsIBD
      @jacobsIBD 25 дней назад

      I am in the same boat, it's done very well for me, I only realised the other day I have already been on this med for over 2 years! (time goes by too quick these days) I would like to find an alternative too.

    • @markmcla
      @markmcla 25 дней назад

      @@jacobsIBD I'll post again in a week to let you know what my doctor says.

  • @USER_DELETED_ACCOUNT
    @USER_DELETED_ACCOUNT 26 дней назад

    Do you still take pentasa as well?

    • @jacobsIBD
      @jacobsIBD 25 дней назад

      No I don't but I have it lying around incase I want to. I probably would consider taking it if flare symptoms returned as a sort of backup while I figured out a different med.

  • @ASpectacular3777
    @ASpectacular3777 26 дней назад

    Thank you this is helpful. I will forward to Ian (my bf) who has Ulcerative Pancolitis.

  • @lexx4008
    @lexx4008 27 дней назад

    What is your camera setup? Does it rotate, or is it a 360 camera and software focusing/rotating?

    • @jacobsIBD
      @jacobsIBD 27 дней назад

      It's a 360 camera, and I chose the angle later

  • @ianharcourtsmith
    @ianharcourtsmith Месяц назад

    Unfortunately this is not quick by any means - for kids and busy parents, something quick from the shop is essential for day to day life, it should be different but convenience wins and life is a struggle. Maybe Huel or another alternative is better for them?

    • @jacobsIBD
      @jacobsIBD Месяц назад

      Got to say I disagree here! I have literally been making this for my convenience of healthy lunches at work. Batch making is easy (just add more ingredients) and got days ahead sorted. 15 minutes making some lunches for the next few days seems a win to me. I’ve prepared these bowls just before bed for the next couple of days a few times and it’s been a fantastic time saver.

    • @ianharcourtsmith
      @ianharcourtsmith Месяц назад

      @@jacobsIBD The issue is more the organising and arrangement of products, it has to be pre-planned which is not easy to do when you are busy and that's what the Lunchables and snack foods target - they are focused on the lazy and the busy. If you are neither then sure you should have no problem sorting your diet out and cooking full meals.