Hallo jacob I received this result from a holistic therapist,working with frequency therapy. There was a graph from 0 to 100.( 100 is very bad) Electrosmog 100 Dairy 100 Gluten 50 Sugar 50. That was a start for me. 3 very important supplement for intestinal diseases are, Omega 3 Vitamin b12( Now my diet is vegan) Vitamin d3. Vitamines must be in high potency. Also she found small parasites in the intestines. For 3 years I have been ill with collagenous colites. I hope I found a new path to recovery,maybe it will help you too.
what has really assured me in my diagnosis is the fact that over 500,000 people in the UK alone have UC , that's 1 in 20 people and the fact that I'm not suffering alone really helps me personally, just trying to listen to my ibd team and live my life as close as possible to normal while obviously trying to improve my state ,I hope you're doing well mate genuinely
UC is also one of the most researched diseases, but I understand I about the chain I always put on myself I feel like I can't do anything too crazy or far away from home for the same reasons as you
Sorry to hear your overwhelmed with everything going on. You inspired me to record a video for people with a new diagnosis which I am just editing now!
Thank you for your videos 😊. I have had ulcerative colitis for 8 years, almost lost my colon at the beginning of this….before I was properly diagnosed. They put me on remicade to see if it would help as a last resort before the surgery….thankfully it worked , stayed on that for 2 years, plus mezavant, my body created antibodies towards the remicade after 2 years and had to come off. My GI doctor said all blood work was looking good, let’s see how you do with just the pills of mezavant, before we try another biologic. Thankfully I’ve been well all along, I can’t tolerate any gluten, I don’t eat raw veggies and only eat foods that easily digest, everything cooked soft….lots of protein, vitamins,water,not much dairy, yoga🙏🏻🩷 Love your videos, thank you😊
Clean protein rich diet and mesalazine seem to be keeping my symptoms under control so far but only newly diagnosed so bracing myself for whats to come. I'm worried about the trajectory of the disease and possible need for biologics as things progress so doing my best to keep everything under control. Stress is a major trigger for me so trying to look after my mental wellbeing as a priority. Try speaking with your IBD team about your thoughts around trialling diet to tackle the underlying cause, they seem very supportive. I find Charlie Lees channel on here also a great source of information and support
Its complicated Jacob.....i am maintaining my Mesalazine with oral tablets. The medical people are the experts....although i don't want to go on immunosuppressant meds. But i am a practical and pragmatic man.
Hello. I completely understand your situation and I wonder if my story will be of interest to you. I am almost sixty eight and after a lifetime of digestive trouble I was finally diagnosed with UC in 2010. I had the standard treatment of oral steroids for two months and I recovered. I was then told to take Pentasa daily as a maintenance med. After a while I decided to take a break from Pentasa and see how I felt. At this time I looked at dietary ways to reduce inflammation. I have never eaten much meat but I did eat a lot of eggs and dairy, when I read that animal foods were probably inflammatory and plant foods were anti inflammatory I began to incorporate more and more plant foods into my diet. I would now consider myself plant based but I do occasionally eat fish and dairy without any problems. I had a minor flare in 2013 and was prescribed Mezavant 1200mg daily, the active ingredient being mesalazine. My second colonoscopy was in 2013 after I had recovered from my flare and had begun taking Mezevant, at the time my colon was completely normal with no sign of UC. To this day I have been sign and symptom free, my six monthly blood work is all good and my inflammatory markers are below the normal range. My only UC medication is Mezavant and I don't have any problems with it. My diet continues to be plant based with soya products replacing dairy foods. I hope this is helpful to you and gives you some encouragement for the future. At diagnosis two thirds of my colon was inflamed and ulcerated but in 2013 everything was normal. The reason I haven't been offered a colonoscopy since then is because I am well and haven't needed one. Wishing you well and take care.
Thanks for sharing! I was on Pentasa for a long time, but my diet was not well looked after during much of this time. I wonder how effective the medication could be for myself with my current diet. I am interested to hear what sort of meals you are having, I have gone down the opposite route for now with a much higher meat and fruit intake and vast reduction in anything else which has been working well for me. I would be keen to try a plant based diet in the future too to see how I react.
Hello again. A typical day for me begins with a bowl of oats and blueberries with soya milk, lunch is a large salad with raw food such as tomatoes and grated carrot but also store bought salad pots. My evening meal is vegetable based and for dessert I have fruit and soya yogurt. During the day I snack on fruit, nuts, dried fruit and dark chocolate. My favourite drink is green tea. I do occasionally eat eggs and cheese as well as biscuits and cake. I don't like meat but occasionally I eat white fish such as Cod. I would say my diet is mainly plant based and I have been eating this way for a long time without any problems. Obviously we are all different but if you can enjoy your food without it making you ill then that is a win in my book! Take care and wishing you well.
I've also seen all sorts of recommendations on diet from vegan to carnivore to everything in between. The best we can do is eat natural, nutritious food. As UC patients, our bodies are very sensitive to a negative environment, whether it's highly processed food, lack of sleep, lack of exercise, etc... As far as I can tell, you're setting a fine example for all of us! I also hope to get off infliximab someday. I might ask my gastroenterologist if there are any clinical trials that use hyperbaric oxygen treatments and mesalamine enemas as a maintenance protocol. I had a flare earlier this year, and using only hyperbaric oxygen treatments reduced my symptoms, but not enough to get me out of a flare. Nevertheless, the fact that this helped MIGHT offer a long term way to get off of biologics. Hyperbaric oxygen treatments are used for wound healing, and we have wounded colons.
Thanks for the kind words. I never thought ot ask about clinical trials! How did you find the hyperbaric oxygen treatments? I have been thinking about using high altitude training. There is a high altitude running chamber business just near my house so maybe I should give it a test.
@@jacobsIBD I watched a youtube video by Northwestern Memorial Hospital. There is a phase 3 clinical trial led by Dr. Parambir Dulai where very very sick patients who are about to have their colons removed are given standard medicines AND hyperbaric oxygen treatments as a last chance. Maybe 50-60% have avoided surgery, I think. This is a great result! -So I think hyperbaric oxygen would be promising as a maintenance therapy for people who aren't as sick. But I think hyperbaric oxygen treatments still need to be combined with other medicines.
High altitude training is good too! I think it would complement hyperbaric oxygen treatments, where you experience high pressure, as if you're 33 feet under water. But you breathe 100% oxygen in a mask. This increased pressure forces oxygen into your plasma. -More oxygen than your hemoglobin can take. Your body just has to accept the oxygen. And this promotes healing. For me, it helped! BUT, it's expensive, so I only did a few treatments. And it's time consuming.
These are my thoughts exactly. Will I be able to travel? I have my infliximab every 4 weeks. But infliximab has a black box warning. I'm actually trying to switch to skyrizi or stelara they are self injections so I don't have to be tied to the medical system as much...ALSO no black box warning. Something to think about
@@jacobsIBD that will be great! The dose is smaller on self injectable as well so you won’t receive as much dose as you did with IV. It’s better if you’re travelling and much quicker of course. Don’t need to go into hospital for a few hours at a time. Hope you’re going well. It’s a serious condition and I believe being on infliximab will keep UC under control really well.
Like you mentioned in your other comment, the only way to know would be through an endoscopy for confirmation. But I would say anything ranging from an increase in mucuous in bowel movements to the typical blood passing.
When you ask the right questions, you tend to get closer to the answers you need - good luck on this journey!
Hallo jacob
I received this result from a holistic therapist,working with frequency therapy.
There was a graph from 0 to 100.( 100 is very bad)
Electrosmog 100
Dairy 100
Gluten 50
Sugar 50.
That was a start for me.
3 very important supplement for intestinal diseases are,
Omega 3
Vitamin b12( Now my diet is vegan)
Vitamin d3.
Vitamines must be in high potency.
Also she found small parasites in the intestines.
For 3 years I have been ill with collagenous colites.
I hope I found a new path to recovery,maybe it will help you too.
what has really assured me in my diagnosis is the fact that over 500,000 people in the UK alone have UC , that's 1 in 20 people and the fact that I'm not suffering alone really helps me personally, just trying to listen to my ibd team and live my life as close as possible to normal while obviously trying to improve my state ,I hope you're doing well mate genuinely
UC is also one of the most researched diseases, but I understand I about the chain I always put on myself I feel like I can't do anything too crazy or far away from home for the same reasons as you
I've just been diagnosed with crohns disease so everything is new and overwhelming.
Sorry to hear your overwhelmed with everything going on. You inspired me to record a video for people with a new diagnosis which I am just editing now!
@@jacobsIBD ❤️ thank you. I'll be sure to watch 😁
Thank you for your videos 😊. I have had ulcerative colitis for 8 years, almost lost my colon at the beginning of this….before I was properly diagnosed. They put me on remicade to see if it would help as a last resort before the surgery….thankfully it worked , stayed on that for 2 years, plus mezavant, my body created antibodies towards the remicade after 2 years and had to come off.
My GI doctor said all blood work was looking good, let’s see how you do with just the pills of mezavant, before we try another biologic. Thankfully I’ve been well all along, I can’t tolerate any gluten, I don’t eat raw veggies and only eat foods that easily digest, everything cooked soft….lots of protein, vitamins,water,not much dairy, yoga🙏🏻🩷
Love your videos, thank you😊
Clean protein rich diet and mesalazine seem to be keeping my symptoms under control so far but only newly diagnosed so bracing myself for whats to come. I'm worried about the trajectory of the disease and possible need for biologics as things progress so doing my best to keep everything under control. Stress is a major trigger for me so trying to look after my mental wellbeing as a priority. Try speaking with your IBD team about your thoughts around trialling diet to tackle the underlying cause, they seem very supportive. I find Charlie Lees channel on here also a great source of information and support
Knowledge is power...no power without stepping out into the unknown.
Its complicated Jacob.....i am maintaining my Mesalazine with oral tablets. The medical people are the experts....although i don't want to go on immunosuppressant meds. But i am a practical and pragmatic man.
"Crohns colitis lifestyle"
You tube channel....
Id try talking to those people.
Hello. I completely understand your situation and I wonder if my story will be of interest to you.
I am almost sixty eight and after a lifetime of digestive trouble I was finally diagnosed with UC in 2010. I had the standard treatment of oral steroids for two months and I recovered. I was then told to take Pentasa daily as a maintenance med. After a while I decided to take a break from Pentasa and see how I felt. At this time I looked at dietary ways to reduce inflammation. I have never eaten much meat but I did eat a lot of eggs and dairy, when I read that animal foods were probably inflammatory and plant foods were anti inflammatory I began to incorporate more and more plant foods into my diet.
I would now consider myself plant based but I do occasionally eat fish and dairy without any problems.
I had a minor flare in 2013 and was prescribed Mezavant 1200mg daily, the active ingredient being mesalazine.
My second colonoscopy was in 2013 after I had recovered from my flare and had begun taking Mezevant, at the time my colon was completely normal with no sign of UC.
To this day I have been sign and symptom free, my six monthly blood work is all good and my inflammatory markers are below the normal range. My only UC medication is Mezavant and I don't have any problems with it. My diet continues to be plant based with soya products replacing dairy foods.
I hope this is helpful to you and gives you some encouragement for the future. At diagnosis two thirds of my colon was inflamed and ulcerated but in 2013 everything was normal. The reason I haven't been offered a colonoscopy since then is because I am well and haven't needed one. Wishing you well and take care.
Thanks for sharing! I was on Pentasa for a long time, but my diet was not well looked after during much of this time. I wonder how effective the medication could be for myself with my current diet.
I am interested to hear what sort of meals you are having, I have gone down the opposite route for now with a much higher meat and fruit intake and vast reduction in anything else which has been working well for me. I would be keen to try a plant based diet in the future too to see how I react.
Hello again. A typical day for me begins with a bowl of oats and blueberries with soya milk, lunch is a large salad with raw food such as tomatoes and grated carrot but also store bought salad pots. My evening meal is vegetable based and for dessert I have fruit and soya yogurt. During the day I snack on fruit, nuts, dried fruit and dark chocolate. My favourite drink is green tea.
I do occasionally eat eggs and cheese as well as biscuits and cake. I don't like meat but occasionally I eat white fish such as Cod. I would say my diet is mainly plant based and I have been eating this way for a long time without any problems. Obviously we are all different but if you can enjoy your food without it making you ill then that is a win in my book!
Take care and wishing you well.
I've had UC for 16 years. I've never had immuniosuppresants or biologics. I only take sulfasalazine, diet and fasting.
Reduction in the inflammation in the mucosa gut wall. Caprotectin levels. Poo sample test but the Gold Standard test is an endoscopy.😊
I've also seen all sorts of recommendations on diet from vegan to carnivore to everything in between. The best we can do is eat natural, nutritious food. As UC patients, our bodies are very sensitive to a negative environment, whether it's highly processed food, lack of sleep, lack of exercise, etc... As far as I can tell, you're setting a fine example for all of us! I also hope to get off infliximab someday. I might ask my gastroenterologist if there are any clinical trials that use hyperbaric oxygen treatments and mesalamine enemas as a maintenance protocol. I had a flare earlier this year, and using only hyperbaric oxygen treatments reduced my symptoms, but not enough to get me out of a flare. Nevertheless, the fact that this helped MIGHT offer a long term way to get off of biologics. Hyperbaric oxygen treatments are used for wound healing, and we have wounded colons.
Thanks for the kind words. I never thought ot ask about clinical trials!
How did you find the hyperbaric oxygen treatments? I have been thinking about using high altitude training. There is a high altitude running chamber business just near my house so maybe I should give it a test.
@@jacobsIBD I watched a youtube video by Northwestern Memorial Hospital. There is a phase 3 clinical trial led by Dr. Parambir Dulai where very very sick patients who are about to have their colons removed are given standard medicines AND hyperbaric oxygen treatments as a last chance. Maybe 50-60% have avoided surgery, I think. This is a great result! -So I think hyperbaric oxygen would be promising as a maintenance therapy for people who aren't as sick. But I think hyperbaric oxygen treatments still need to be combined with other medicines.
High altitude training is good too! I think it would complement hyperbaric oxygen treatments, where you experience high pressure, as if you're 33 feet under water. But you breathe 100% oxygen in a mask. This increased pressure forces oxygen into your plasma. -More oxygen than your hemoglobin can take. Your body just has to accept the oxygen. And this promotes healing. For me, it helped! BUT, it's expensive, so I only did a few treatments. And it's time consuming.
Is there an underlying infection?
These are my thoughts exactly. Will I be able to travel? I have my infliximab every 4 weeks. But infliximab has a black box warning. I'm actually trying to switch to skyrizi or stelara they are self injections so I don't have to be tied to the medical system as much...ALSO no black box warning. Something to think about
There’s also injectable infliximab
Apparently self injectible infliximab might be coming to my hospital in the next 6 months! Maybe.
@@jacobsIBD that will be great! The dose is smaller on self injectable as well so you won’t receive as much dose as you did with IV.
It’s better if you’re travelling and much quicker of course. Don’t need to go into hospital for a few hours at a time.
Hope you’re going well. It’s a serious condition and I believe being on infliximab will keep UC under control really well.
Wasn't infliximab like the first biologic?
Pretty much. It’s very well studied and most people tolerate it well even when they’re on it for decades.
I take probiotics and plenty of yogurt
What symptoms qualify as a flare ?
Like you mentioned in your other comment, the only way to know would be through an endoscopy for confirmation. But I would say anything ranging from an increase in mucuous in bowel movements to the typical blood passing.
Do eat meat, fish, eggs and butter.