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Alive With Alia
Добавлен 8 июн 2019
Join me, Alia, as I celebrate being alive while coping with life's challenges. We'll talk all sorts of topics like personality (INFJ), gardening, life with chronic illness, nature, social justice, communication, and so on, plus some cute nature videos in the mix. I live with Dysautonomia/POTS and now MCAS, so I am learning to spend energy on healing and I'm finding new and adaptive ways to bring joy and gratitude into my life. Subscribe to my channel!
Coping with Chronic Illness during the CoronaVirus Pandemic
Living with Chronic Illness during the Coronavirus (COVID-19) pandemic has challenges. I check-in to share some of the ways I'm coping, like with meditation, mantras, and grounding techniques. I hope these techniques are helpful.
(This is about psychological coping only. This is not medical guidance. Please contact a doctor about any medical questions. Please refer to your local authorities regarding any guidelines for the Coronavirus.)
(This is about psychological coping only. This is not medical guidance. Please contact a doctor about any medical questions. Please refer to your local authorities regarding any guidelines for the Coronavirus.)
Просмотров: 290
Видео
Visiting the Abilities Expo for the 1st Time
Просмотров 3,4 тыс.4 года назад
It was a busy and exciting day at the Abilities Expo! I had not been before and thought it would be a good opportunity to check out vendors and for me to practice being in a crowded indoor space. Lights, sounds, and tons of people to navigate around are still a challenge for me, and I'm working on it. I had a few fun surprises like dance lessons from Atiya Wheelchair dance and also meeting the ...
Personalizing the MagShock Fold & Go Wheelchair - Part 2
Просмотров 2,9 тыс.4 года назад
Here's Part 2 of personalizing my MagShock Fold & Go Wheelchair. Last time, I shared my foot rest and stowing strap for a basket and a handbag, plus a protective handlebar cover and cane clip. This time, I finally did the armrest covers and cushion covers! Watch to see the reveal! PS. Always remember to make sure that any modifications do not harm you or your chair and watch out for warrantees!
Off-Roading and Hiking Trails with the MagShock Fold & Go Wheelchair
Просмотров 9 тыс.4 года назад
I take the MagShock Fold & Go Wheelchair on a variety of hiking trails and really show how much it can do off road, while also showing the times it got stuck or slid around. I've already learned a lot about driving the MagShock and have a lot more to learn. It's been helpful to be an ambulatory wheelchair user because when the chair gets stuck, I can use it like a walker or rollator and push it...
Day at the Park with the MagShock Fold & Go Wheelchair
Просмотров 1,9 тыс.4 года назад
My valentine and I went to the park for a hike to celebrate Valentine's day. I took my MagShock Fold & Go and tested it out on the hiking trail and various terrains. This video also includes me taking the MagShock in and out of the car all by myself, but not so gracefully!
INFJs and Chronic Illness
Просмотров 7004 года назад
What is the relationship between the INFJ personality type and Chronic Illness? While some may blame low Si (Introverted Sensing) for some of the INFJ's health challenges, the INFJ may actually find that they posses traits in their function stack to help them deal with the challenges of Chronic Illness. I'm just scratching the surface and would love to learn more insights about this.
Personalizing the MagShock Fold & Go Wheelchair - Part 1
Просмотров 3,3 тыс.4 года назад
I'm starting to personalize my MagShock Fold & Go Wheelchair. In this first part, I share my foot rest and add a strap (or two!) for stowing a basket and a handbag, plus I place a protective handlebar cover on the top along with a cane clip. Next time, I plan to cover the cushions and armrests! PS. Always remember to make sure that any modifications do not harm you or your chair and to watch ou...
How Waterproof is the MagShock Fold & Go Wheelchair?
Просмотров 2,1 тыс.4 года назад
I wanted a waterproof wheelchair, which is one of the main reasons I chose the MagShock Fold & Go. I braved the rain today to find out if the MagShock really works in the rain. See the MagShock in action!
Day Out with Magshock Fold & Go Wheelchair
Просмотров 3,3 тыс.4 года назад
I took the Magshock Fold & Go Wheelchair to some of my favorite places that have been difficult for me to visit in the past. I went to an outdoor craft and antiques show with challenges like woodchips, then to an antique store with graveled garden in the back.
Medication Organization - Adapting to Chronic Illness
Просмотров 2,8 тыс.4 года назад
Oversized medication dosages are a challenge to organize. Medications like cromolyn sodium that come in 2.5 inch long ampoules won't fit in your typical daily.weekly pill sorter. I made my own giant medication organizer and share some other tips as part of my adapting to chronic illness series.
Folding the MagShock Fold and Go Wheelchair
Просмотров 6 тыс.4 года назад
Can I fold the MagShock Fold & Go Wheelchair by myself? Watch me give it a go!
New MagShock Fold and Go Wheelchair
Просмотров 4,5 тыс.4 года назад
Join me as I check out my new MagShock Fold & Go Electric Wheelchair. I test it on grass, a steep slope, and gravel. I also share some ways this chair helps me get around with POTS.
Halloween Decorations
Просмотров 414 года назад
Halloween decorations are such fun! Historic homes make a great setting for Halloween. I hope our trick-or-treaters enjoy it! Music provided by No Copyright Music: ruclips.net/user/royaltyfree... Music used: Wonder And Magic by Jay Man ourmusicbox.com Licensed under Creative Commons Attribution 4.0 creativecommons.org/licenses/...
Climate Strike in my Wheelchair
Просмотров 2224 года назад
I made it out to a Climate Strike event! As a wheelchair user with chronic illness, I consider this quite the accomplishment. I had some access issues and extra symptoms from all the commotion- I did my best. It was challenging, but worthwhile to show my support!
Wrapping Up Monarch Raising Season - Plus Butterfly Releases
Просмотров 724 года назад
I've loved raising Monarch Butterflies and highly recommend it. Start with growing their host plant, Milkweed! I include several videos of the butterfly releases at the end here! It's been a great season!
Fashion - Adapting to Chronic Illness and Disability
Просмотров 1,3 тыс.4 года назад
Fashion - Adapting to Chronic Illness and Disability
Raising Monarch Butterflies Enclosure Setup - Alive With Alia
Просмотров 4,1 тыс.4 года назад
Raising Monarch Butterflies Enclosure Setup - Alive With Alia
Monarch Butterfly Release - Alive With Alia
Просмотров 604 года назад
Monarch Butterfly Release - Alive With Alia
Dealing with Life and Death of Garden Wildlife
Просмотров 475 лет назад
Dealing with Life and Death of Garden Wildlife
Using Beneficial Insects - Ladybugs and Green Lacewing Eggs
Просмотров 2495 лет назад
Using Beneficial Insects - Ladybugs and Green Lacewing Eggs
Anxiety About Going Out for my Birthday
Просмотров 1035 лет назад
Anxiety About Going Out for my Birthday
Exercise - Adapting to Chronic Illness
Просмотров 2685 лет назад
Exercise - Adapting to Chronic Illness
Helpful Tools - Adapting to Chronic Illness
Просмотров 1595 лет назад
Helpful Tools - Adapting to Chronic Illness
Beauty Routine - Adapting to Chronic Illness
Просмотров 1295 лет назад
Beauty Routine - Adapting to Chronic Illness
Mobility Aids - Adapting to Chronic Illness
Просмотров 5 тыс.5 лет назад
Mobility Aids - Adapting to Chronic Illness
Intro to the new "Adapting to Chronic Illness" Series
Просмотров 2125 лет назад
Intro to the new "Adapting to Chronic Illness" Series
Ha! A logical connection based on my personal experience. I’m an INFJ and the combo of genetics and trauma have triggered Dupuytren(hands) and Ledderhose (feet) as well as the ol’ migraines. You sound SO relatable on every point. 😊
I stopped this mid-video, popped over to EBay, and just picked up a Kan-o-seat!!! Considering a Fold & Go next.
It’s beautiful!
Thank you for sharing. I have ME/CFS and really appreciate your helpful video.
this would be beautiful with the teal or brown leather on the seat & back!
Hi ,your doing great! I had my magshock for about a week and having problems with the foot plate.My heels have to just about touch each other or my foot falls off, also my legs split apart & I find myself holding my leg so it's looks normal. I'm a woman too. I called fold and go & they told me all I could do is buy their straps so they stay together. Do you have that feeling when your using your magshock?
Absolutely great educational video. I’m looking for a chair at this time. All these chairs have limitations. They are not tractors. They are not made for all terrains. Thank you for the demonstration.😊😊
The sox's look great. Good idea on knee pads. I think it's great you wear lovely dresses.
Thanks for the idea of front loading washer/dryers.
Thanks. You have a great attitude in dealing with "challenges:.
Luv your pearl white chair. Just got back from Bryce Canyon. Wondering why yours doesn't have a foot rest.
Do you still respond to videos?
Hi! Are you still making videos, I haven’t found anything new?
I just got my fold and go magshock yesterday, I have yet to really try driving it yet but this is helpful, and I am really excited to have this in my life to make things like this possible.
Good morning. I just got my Fold and Go and found your channel. Very informative for me. Since it is 2023 and I can’t find any new videos I ask are you still doing RUclips videos? Hope you are still active.
Is Alia still making videos?
❤ thanks for the video,i like the looks of the zinger power chair 😊
I love that you included the shot of you lying down with your feet up very relatable!!!😅😅😅
Are you still happy with your fold and go chir, I like the customization you have done with the chair. I have customized my husbands regular wc, but now we are looking at the fold and go. this video helped. Would you still buy the Fold and Go?
It looks so nice!
😮Looking good trying your chair out. I will be trying mine tomorrow, not on dirt and gravel surfaces yet…😎
I have never seen anyone demonstrate a chair in the rain!!! THANK YOU!!! I want to see snow next and see if fold and go can handle that situation. But thank you so much for being that brave pioneer and going into the wet elements 🥰🥰🥰
Fold & Go should make you a brand representative! You have certainly convinced me to get one.
Can the chair handle 1 to 2 inches of smow?
I am from Chicago, I think the fold and go can handle our streets, parks and museums and zoos. Also I think it can handle NYC Parks and etc. But it can not handle very rough terrain as you showed in your last video.
I subscribed to your channel because I LOVE the way you decorated your chair😊😊😊 When I purchase mine I will definitely get in contact with you for decorating tips!!! YOU ARE THAT GOOD!!! Let's see what other great ideas you got cooking for future chairs!!! YOU GO GIRL ❤❤❤💯
Girl, Fold and Go need to hire you just to personalize their chairs!!! You are really good at this❤❤❤💯
Thanks for this video! I've decided on this chair but am struggling to choose a colour, so it was great to see it in different lighting.
Wish they made one for higher weight like one that can handle 800 pounds would be awsome
You did a great job summing up your (modified) style post chronic illness! I found it really inspiring. I'm always looking to see how other disabled people marry fashion and flares in the real world. Sometimes I just run dry, and its incredibly helpful to see other people fighting for these "little" things.
Thank You for this video! Loved the box idea. Amazing!
How are you doing? I was hoping for a new video. My magshock isabout 3 months old. In the personalization stage.
how do you like yours? mine arrives tomorrow!!
@@nameless1763 Good. RED. My son had a personal license plate made for it. I plan on visiting parks. Do not use inside. I have alphabet stamps and super permanent ink and have my handle on frame. And a matching red leather backpack to hang on back. My biggest challenge is putting into a vehicle. It is better than than a scooter which is too close to ground. I tried a scooter is bad for posture. Have fun.
@@gerb3664 That's awesome!!!! And yeah these definitely seem better for posture than scooters!! so glad you are getting some good use out of it!! bummer about the car... i know it would be too heavy for me to lift into a car too. I use public transit currently and switching to paratransit soon. glad to hear you like it, the red leather backpack on the red wheelchair must look stellar!!
mobility aids are so awesome!
it turned out amazing!
wow! i love this so much. Love how you've customized your chair and it definitely has that cool vintagey vibe with the leather!
This is so cute and creative. Thanks for sharing!
I use a large based cane but really need a little chair attached. How do you spell the wooden chair and is the single prong base stable
I hope that you never have to deal with OE or NPV, but it would be a good idea to wipe the tip of the vacuum off with a 10% bleach solution after EACH enclosure you clean ❤️👍
I have to say I was afraid for you and far from impressed with the chair! I so appreciate your sharing this.
I only had my MagSHOCK a few days and love it!
How do you like it still? I’m looking into getting one
@@user-tu4kf7sc3n It's been wonderful. Live in a small down, go to a couple different restaurants occasionally, I can get through doors on my own since I have a free hand while operating it, I couldn't do this with my regular hand powered wheel chair. Since it's no bigger that a regular wheel chair, when I see my doctor, I can bring it right into the exam room. Also, the sidewalks here are terrible, and this chair handles it like a champ. It's been about 9 months since I had the chair, and I've only had to charge it a couple times.
so well said - thanks!
I've been watching your great clips since I got my Fold&Go a couple of months ago. I really appreciate your information and positive upbeat style. Great job on personalizing your chair. You should sell custom made arm rest covers. Keep doing your wonderful videos.
Mi piacerebbe avere tue notizie.
Hi Alia 🌺 Hope you are hanging in there. Missing you from Sweden🌸
Do those mint boxes stay closed really well?? Or do they loosen over time? I’m looking at changing my med storage to a cart but daily usage that looks like an awesome idea. In Canada sodium cromolyn is a pill called nalcrom we apparently are lucky.
So glad I found this! We need more info and help with this
I just found your channel. You are such a beautiful soul.
How hard is it to put in car
I love your boots. 👢 Also love what you are doing with your chair.
Thanks for doing this topic! I'm a heoka empath & deal with severe chronic health & it can be very overwhelming if not aware what's going on with yourself.....