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HI, Thank you for the comment. I will make sure I do more reformer videos in the future.

Hi Julia, There are a lot of reasons people can have tight calf muscles. Growing is definitely one of them. In children bones grow before muscles and nerves so they can have tightness while the muscles and nerves catch up with the growth of the bones. The good thing about METS is they are totally safe so he can do them without worry. If they don’t work it will simply be the reason is something else like as you say growing.

Glad to help! 🙂

Hello! I'm unaware of any braces that can replicate the effects of taping. If you don't mind me asking, are you allergic to kinesiology tape? An orthotic with a deep heel cup, which helps bring the calcaneus (heel bone) forward, would help but would probably need to be specially made. I have some other videos on ankle mobilisation exercises that would work well alongside toe exercises. These exercises target the muscles that connect to the toes and help stabilise the heel bone. I'll do my best to create a detailed video explaining everything and have it posted by next week.

Hi, I am so pleased you have found these exercises useful, it is wonderful to hear they are helping.

HI, Thank you for your question. The Thera band starts with the lightest band and is really more proprioceptive to begin with. The feedback I have had from my clients is that it helps them to understand how to lift up out away from gravity. it is also to help stabilise at the same time so a bit a downward pressure with upward pressure creates a closed chain and a bit of proprioceptive stability. The lift needs to come all the way down from the low back in sitting and if in supine the focus is just on the lifting of the head up off the body to help with blood flow and decompression of the brain stem.

Thank you for your comment, very happy it helped!😊

Hi, Thank you so much for your comment. I am so glad it helped.

Hello, Thank you for your comment. Like most things some people will be fine and others may struggle. If you have tried this or are working with a client who struggles I would recommend they are seen in person or at least on line so they can be guided on a 1-1 bases. I have taught this to many clients who are hypermobile and they have been fine. It depends on the individual and what level they are at.

The use of a mirror can help as well.

Hello, Thank you so much for engaging with my channel. I can tell you are a thinker. When starting the protocol with weight it is extremely light. The body weight of a person would be huge aside from actually trying to get into the position it would be way too much weight. The other reason is the aim of this is to improve overall daily posture, to encourage proprioception, and to axial lengthen the cervical spine. The occipital muscles and something called the tectorial membrane feed into the dura of the spinal cord and brain and are believed to help actually stabilise the spinal cord. This will happen only by learning how to hold the head off of C1, so it is a functional exercise. I hope this helps you understand a bit better. Good thoughts though.

@@hEDSRehabI’ve tried to use an inversion table . The pressure it puts on the head is horrible . I get a migraine almost instantly if I use one.

Hi, thank you for the very kind feedback. The Pilates reformer is a game changer. Enjoy getting strong!

Hi, I am so pleased you are finding my videos helpful it makes it all worth it! X

Thank you Nada, I am so glad you are enjoying the videos! X

Hi, I am so sorry to hear you are having issues at C2. Golf is a rotational sport and AAI is a rotational issue which takes place at C1/C2. As you have already had fusions it is worth going back to your medical practitioner for an assessment. I would definitely try and avoid any manipulation as it may create more instability and muscle spasms. I would suggest trying to find an ISM physiotherapist if you can find one. They are very good at finding drivers of issues. Hope you get to the bottom of it.

Hi, Yes I use Thera or canny bands. I start light and move up to stronger as I feel stronger. x

Hi this could be because your muscles are in spasm which would make stretching them very painful. A couple of other reasons could be that you are not integrating the rest of the spine so you need to think of the length coming right down from the base of your spine so you sit upright from the lumbar spine. I can do a video on this, and the last reason may be potentially that you have tethered cord which may be pulling down on the spinal cord not allowing it to move normally. Hope this helps!

@@hEDSRehab Thank you so much! Would love a video!

I am so pleased you have found it useful. I actually have another exercise I am adding in and will definitely be doing another video in the next few monthes.

@@hEDSRehab That would be amazing! I am dealing with severe CCI and ME/CFS and have been experimenting with what I learned from your video in the last 24 hours and I can feel that finally I have found something that targets those spots where my neck needs support and training! This looks like a path where before there was none! I will be forever grateful :) Very much looking forward to your next videos on this topic!! Thank you very much.

I am so pleased. It is usually about finding the right exercises for our own specific issue. Thank you for letting me know it makes doing the videos worth if if I know it is helping!

Hi, Thank you for your comment. I am glad you are finding some of the exercises helpful. You could try standing on a very light thera band and holding it. Don’t have so much tension that you can pull those arms out of the socket. As you side bend feel like you are just gently pulling the band up so you activate muscles. This may help those shoulders. Or just leave that exercise for six weeks or more, continue with all the exercises that feel safe. Revisit the side bend and see if you feel more stable.

Thank you! I will try this :-) I don’t know if you already have a video about this I haven’t looked at all of your videos yet, but I was wondering if you would be interested in doing a video about how work a computer in a ergonomically sustainable way, when you have hypermobile shoulders and cervical instability. Sometimes I do the programs and I feel great but as soon as I go into every day tasks, I lose it. 🙏🏻

@@mrandmrsragdoll6397 Hi, Thank you for your comment. I have not done a specific video for working at your computer, but I will definitely do one in the near future. I am studying for an MSc at the moment so completely understand the need for this!

@@hEDSRehab thank you very much. I would love to be able to study at university as well. Your videos are such good quality, so I look forward to this.😊

Hi, Thank you for your question. You can of course use these if you are not hypermobile. It should be a great starting point for anyone with CCI or AAI. If you have CCI or AAI from an acute injury it is likely you could progress to some isometric exercises which would be safe for you to do as well. Some isometric exercises will be unsuitable for those with instability caused by a connective tissue or autoimmune issue, as all of the vertebrae are likely to be unstable rather than a select few.

Hi Thank you for your question. That device would be similar to the isometric exercises that I said may cause shearing of the cervical spine, so maybe for someone who has has a RTA but is not hypermobile, but not for people who may have multiple levels of instability or very poor proprioception.

Hello Stephanie! An elevated collarbone on one side can have various causes, and it is difficult to pinpoint a specific reason without a proper examination. It is worth noting that it is common for the dominant hand's shoulder to appear lower than the non-dominant side. If you are experiencing any symptoms or difficulties due to this condition, I recommend consulting an integrated systems method physiotherapist. They specialize in identifying the underlying causes of issues like yours. Additionally, check out some of my other videos where I discuss the movement of ribs and collarbones. They may provide further insights into your situation. If you find any relevant information, please feel free to come back and share it with me. Together, we can try to figure out a solution.

Thank you for your comment. I completely understand your disparity in the lack of real solutions for CCI/AAI. I have found new exercises that seem to be beneficial, and am gathering valuable information from a new paper on the subject. However, due to my busy schedule, it might take a bit of time to get everything ready and presented on you tube. I am truly sorry if you are facing challenges related to this topic. I hear your frustration. As soon as I have updated the content. I'll make sure to share it with you and the entire community.

I have CCI and have had terrible symptoms like those of a heat attack and unable to swallow correctly and digest food. Some solutions, find an AO chiropractor, one who adjusts on the Atlas disc. Get some physical therapy like those suggested in other hEDS videos. If you can tolerate acupuncture, find an acupuncture practitioner, it really helps calm down the central nervous system. If you have to take some pain medication or spasm medication like I do, then do so. I know in the U.S. they like to do disc fusions on the cervical spine. I refuse to do that, even though insurance pays for that. The other and I am looking into it is Prolotherapy or injections. I'm investigating this and there are only maybe 3 clinics in the U.S. that do it, but is reported to tighten up the ligaments in the neck. It is very expensive and is all out of pocket, but is promising. I hope everyone is able to find some relief because at times this can be a nightmare.

Hi @morganswampcroft1119, Thank you so much for your kind words! I'm delighted to hear that you find the content helpful, and I'm thrilled that you're getting the support you need. For fully bedbound hEDS'ers, I do have some exercises and ideas that I believe could be beneficial. I understand the importance of these routines, especially when mobility is limited. However, please bear with me as I am currently occupied with several commitments, and it might take me some time to put together the videos. But rest assured, I am dedicated to creating content that can be of assistance to you and others in a similar situation. In the meantime, if there are any specific questions or concerns you have, feel free to share them, and I'll do my best to address them in the upcoming content. Once again, thank you for your patience and understanding. Your support means a lot, and I'm excited to share more with you soon!

HI Shirl, Do you wear a neck brace? That might help especially if in situation that cause perturbation such as in the car. I have a few videos on starting exercises. Has your neurologist surgeon given you a reason for no surgery?

HI Ross, I use about two and a half squares which most tapes have on the back, for each piece. I might make it a bit longer or shorter depending on the size of foot though. Hope this helps.

So glad you are finding it useful!

Thank you for letting me know I will make sure in future videos the sound is up higher!

Hi, Thank you for your suggestion. This is a great idea only I am studying for an MSc, writing a book on the management of hypermobility and running a clinic at the moment which does leave me with a lot of time. I will however definitely consider it once I have ticked one of those boxes off. It is a really great idea.

​@@hEDSRehabA follow along video with the CCI exercises would be sooo appreciated if you ever have the time to do it! Thank you for sharing your knowledge on CCI and hypermobility 🙏

Thank you so much, glad it is useful.

Thank you for your comments, glad you have found the video helpfull.

Hello, I have had dislocations on both shoulders due to my hEDS. You have said yours came after rugby injuries. Do you have EDS/HSD as well or were your dislocations caused from trauma? I am sure you have had them looked at as you have stated you have (Bankart Lesions). Did they recommend surgery or physiotherapy? If you do have hEDS/HSD recommendations may differ.

@@hEDSRehab Yes, I do have EDS Dr. 2 Doctor recommended surgery and 1 recommended to just stay put and heal for a year, I really don't want any surgery, in your opinion what should I act? Did you go for surgery?

@@meorpaan9771 Hi, everyone said I would need surgery, but I didn’t have it and I am fine now. It did take a good year or more of rehab though. I also realised how much the rest of my body influenced my shoulders so worked on everything at the same time. I used to see people who would want to release my thoracic spine and every time they did it destabilised my left shoulder terribly. I have worked out through trial an error that my cranium greatly affect my neck and shoulders and have trained as a cranial sacral therapist as a result. Each of us will have our own issues that influence how our bodies work, the takeaway is that it is always best to integrate the whole body in trying to rehab anything. I hope this makes sense.

@@hEDSRehab Thank you very much for your view. I will not go for surgery and will train my body through your videos. Thank you again for helping people with hEDS like me. The doctors in my country that I have gone to, really have less experience in treating people with hEDS.