I am 15 , I have it !!! I cry day and night , I find myself useless !!! But you know anybody reading this , I send you a virtual hug . We are in this together and remeber God gives tough questions to intelligent students !!! We are in this together , you are not alone my bro , sis !!!
I have had it since I was about your age. Mine isn't very limiting. It is very VERY minor compared to my Aunt and grandfather, who can barely use forks or spoons at this point. Thankfully, mine has stayed about the same and I just turned 30. There are days when it is noticeably worse, and other days where it is so minor that you can barely see it. Don't lose hope. I thought for sure It would be debilitating, but my Aunt is still a seamstress even with her shakes. My Tech-Ed teacher in high school shook like crazy too but used a saw every day. Strangely, my ex boyfriend had it too and was a baker, but was still able to decorate cakes nicely. I have to solder tiny wires together every once in a while. Don't give up on your dreams!
The only medications that are used to treat ET have too many side-effects. I’m 61 and I can’t remember a time when I didn’t have a tremor. I gave up on trying to treat my tremor with medication. My tremor has steadily increased to the point that I am completely disabled. I was nearly homebound. 😢It had even begun to affect my ability to walk. HOWEVER, I had deep brain stimulation surgery in June 2023 at UAMS(University of Arkansas Medical Sciences). Erika Peterson is my Neurosurgeon. It has been an amazing journey and I would recommend it to anyone who is having major difficulties. My tremor disappears completely when I turn my DBS unit on. There is also a procedure that use targeted ultrasound and is less invasive, but I wasn’t a good candidate for it. I wish you well on your treatment and recovery. There is hope 🎉
I am 15 years old, I noticed my hands would shake when I tried to do certain things such as eating or texting at the age of 13. I was diagnosed with Essential Tremors at age 14. It is very stressful at times, and EXTREMELY annoying. It is extremely embarrassing when people stare at you while you're trying to eat or holding something. It's even worse when they ask. Glad to know there are so many others who feel the same way as I.
I've found what helps me the most is to stay absolutely calm all the time. When it comes to people you'll just have to adjust your habits a bit. I'm 27 now but have had it as far as i could remember. Whats annoying is always having to have someone else snap a smart phone picture, or have perma-shaky photos haha
that's exactly me... i work at a market as a cashier and people look at me because my head shakes.... it's embarrassing and i hate it but it's something i have to live with.. let's fight through it together!
***** Gluten free diet and paleo diet has completely cured many patients of essential tremor. You dont have to live with this dibilitating disease all your life. Pls do your own research on net and you will find testimonials of many tremor patients who are enjoying a tremor free life after following these diets.
My Dad has Essential Tremor. He's been on an all natural supplement called "Tremor Miracle". Google it. Pretty cool stuff. His symptoms are reduced about 80%. I'm super interested in why people get ET and why TM works to reduce it. I'm pretty sure it has something to do with the Nitric Oxide increase in your blood from the Arginine Citroline combo this morning drink has. Anyways for what it's worth check it out.
I hate it but your not alone. I used to think the same thing. The shaking gets so bad sometimes that I don't want to go out in public. People stare then I m trying to hold every part of me down. But I know I can't it's just so humiliating! Nothing has helped me at all. My friend has mentioned CBD oil has anyone here ever tried it? Along with the tremors I also have systematic Lupus, heart disease, high blood pressure, I've had uterus cancer and I just batteled breast cancer. I believe that the Lupus is causing all of my ailments.
To that lady who feels she is useless -- and anyone who feels that way about yourself -- please know that you are not useless! You're not just a body, but you are a heart and soul with plenty of wisdom and kindness to give. You're full of grace and love and you can share your thoughts with others who may need some of your insight. Stay strong and know that you are so much more than you realize.
Hi my name is Vincent Chung and i'm a computer science students. I'm currently doing some research about tremor disease. I need a lot of people to do some easy to do physical test and drawing. I really need a lot of dataset and if you would like to help me you can contact me through my university email which is vincent5@mhs.stts.edu and I can give you the instruction. Would really appreciate your help.
This video actually brought tears to my eyes. I have had essential tremors for some years now an have always felt so insecure about it. Im happy to see that I'm not alone. May God keep us all strong in the face of this difficulty.
Don't think it's incurable. Essential Tremor is oftentimes caused by a vitamin B deficiency. I suggest you do some blood works to detect your shortages of magnesium, vitamin etc.
I have so much sympathy for these people. I was diagnosed five years ago. I'm 68 now, and no worse than I was then. I'm probably a one on a scale of ten. It comes and goes and also seems to be affected by my blood sugar level. I generally can't do cursive anymore, and navigating a fork to my mouth is a challenge. But it's nothing like these poor folk.
+kent Alvarez ahahahahaha my friend,usually its the sam ewith me,they r asking me if am drinking such many coffees daily ahahahahaha,keep shaking my friend,am doing the same,am not able to eat a soup outside the house but who minds....Merry Christmas !!!!!
I have essential tremor symptoms since I was in high school . Now I am 23 years old and I have learnt to live with it.. people notice and ask me about this whenever I do some stuff like holding a cup of tea or using my cell phone. But I never limit myself because of this. I love myself and I love the way I am , it's ok to have some problems as we all know nothing is perfect. 🙌❤️
What a positive attitude! So proud of you! Watch our newest video, Young People and ET: Gracie's Story. Video link ruclips.net/video/OfqRhQGYpUA/видео.html
I'm 16 now.I had it since i was 13 years old.The best solution is to sleep on time.Always sleep 8 hours a day, avoid stress and anxiety.Besides, you could also do some excersises like going for a walk or jog or maybe go for a massage to make you feel more relaxing..
@@filipacarvalho2800 I was diagnosed when I was 10 and im currently 21. I do believe getting a good 8 hours of sleep does help and avoiding stress aswell but exercising makes it way worse for me. My tremors have also gotten worse over time. Ive been prescribed two different medications and they help a bit but not enough in my opinion. Hopefully there will be a cure soon.
@@ronaldomatos8252 I totally agree with you all ur points. some people can't have coffee either, it worsens the symptoms after half n hour or hour. But the et medications currently available don't always help.
Love seeing all these other young people with ET speaking out in the comment section. I'm currently 20 and was diagnosed when I was 14. I remember being in chemistry class freshman year of college, and I was so anxious and nervous that I could barely write. To all the other young people out there I just want to say, don't be afraid to talk to your teachers or professors and ask for accommodations. Many are willing to give extra time or even give you tests in alternate forms like typed. Don't worry about inconveniencing them or blah blah blah. Take care of yourself, and set yourself up for success. Much love to everyone! Remember I believe in you!
Thank you for posting this video. I'm 60 years old and have had essential (familial) tremor in my writing (right) hand since aged 19. There was no help in those days - a doctor even referred me to a clinical psychologist. I studied at Oxford and have had a successful career - but the confidence sapping tremor has always been there, progressively worsening until I couldn't write at all with my right hand. In desperation I taught myself to write with my left hand in my late 20s. Not elegant but it worked for most of my working life. The tremor has now spread to my left hand. Thank goodness for computers! Videos like this have actually brought tears to my eyes as I see a shared experience in others. I have read about a new curative ultrasound technique but not sure that it's available in the UK. I just wanted to chip in with a bit of mental support for anyone with this condition. It can make you feel utterly hopeless, sucking energy and focus out of our daily lives, but you are not alone.
Mrs Raun, your life is not useless. It must be terribly frustrating and discouraging, but not useless. You can share love and compassion--even more so because of your own suffering--and there is something special about you that no one else has. You are a lovely woman and worth everything to God!
Forget god!! She’s everything to me! There’s sooo many good hearted kind people out there that wouldn’t judge her for a second because she was shaking. Anyone that judges you for something so minor and out of your control isn’t worth getting upset over in the first place.
I'm 65 and was recently diagnosed and also have vocal dysphonia. I have tears in my eyes for these folks that suffering not just physically, but mentally as well. I pray more research that leads to solutions to this will happen soon.
My heart just broke when she said," I'm just useless." Oh God, I know that feeling. I was afraid I was showing signs of Parkinsons. I guess that's why they say don't self diagnose. My head started shaking about 20 years ago. I would notice if I drank a beer or two real fast, they would go away, so I made that a way to fix it and actually became an alcoholic to control my head shakes but they always came back. Yes, certain emotions can make it worse. Anger, embarrassment, anxiety, but my head will start shaking while I'm doing my makeup so it's not necessarily emotionally triggered but it happens. I had to quit my piercing job due to my shaking. Ppl made comments and I would lie and say I took cold medication on an empty stomach.
I agree it is heartbreaking. My favorite thing to do when people are rude/ignorant and ask what is wrong with me, lol, I get really serious, look them in the eyes and say “yes, it is a terminal.” The look on their faces is priceless.😂
I was diagnosed with essential tremor 2 years ago when my head started getting shaky. I now stay home most of the time and I hate socializing. My husband is not happy about it but he's not the one who has to deal with it. I want to get back to church and having friends again but I'm so uncomfortable that I get overcome with fear and I don't go.
I have coped with ET since I was about 10 yo. I found it profoundly damaging ,as you are perceived as 'weak' or nervous ,when you aren't. I have even been accused of being an alcoholic for shaking . I didn't actually find the name of the condition until I was 24 , and was simply told there was nothing that could be done for it. Mine is familial as my late mother and maternal uncle both had/ have it. I have had a number of serious health conditions, including Lupus and Sjogrens syndrome and spondyloarthropathy; which between them make me regularly feel unwell. But it's (benign ) essential tremor that I hate the most for its social impact on me ,particularly as a young man. I too wanted to hug that lovely lady on the video who feels so useless, and assure her she is not. I am 64yo now and no longer get embarrassed by it, as it has got worse in the last few years. My heart goes out to young people first coping with it in school or socially. I grew up with people sometimes serving tea in a China cup and saucer; and came to hate the social stigma of my rattling cup and saucer .
Exactly. I've had Essential Tremor before the car accident I was involved in that made it much worse. I play piano and join in competitions, however, with piano, you get marked down a couple points for looking nervous (shaking, looking down, rubbing hands together, etc). My scales is good and my songs are great (as they'll ever be with Essential Tremor) but I'm always marked down for something I don't have control of. A few weeks ago, I felt like I was so close to winning first place for a scholarship but I missed it by a lot because I was shaking before, during, and after my songs. Having Essential Tremor makes me feel judged and vulnerable when it comes to competitions, group discussions, speeches, and even writing my own name. Anything that makes me just a bit nervous makes me shake all over my body uncontrollably. I also have a competition tomorrow in which I definitely do not feel ready or confident in my songs nor scales but as always, I will do my best. Wish me luck🙂
It's good that you have the bravery to persevere and do the things you do because when I was younger (I'm 62 now), in my teens and twenties, this disease paralyzed me and kept me from doing things I wanted to do. I remember going to college and standing outside the classroom looking in the window and crying because I was too nervous and shaky to go in. I suggest just letting people know what you are dealing with, not in a complaining way but just as an explanation so that you don't have to think about what they think, and keep on doing everything you want to do. God Bless You.
@@jimervin1637 It was a competition for a scholarship and ended up I got an amazing scholarship to a college that I have been going to now since the post and am about to graduate with an design/art degree. I still struggle a lot with my tremors, but I have been practicing and will be playing a memorized song in front of the whole school this coming spring before I graduate🙂 I found out the more I practice a song, I shake a little less. Its not a huge difference technically, but it is a difference😊
I’m 41 and have had noticeable tremors in my hands since I was about 15...at first I thought I was being punished for making fun of my grandfather’s shaky hands when I was a little kid lol. But as I got older the tremors got worse and more people started noticing it. I’m still amazed by some of the questions/remarks I’ve heard over the years. I was officially diagnosed with ET when I was 26. I inherited it from my paternal grandfather, my younger brother also has it, and I recently found out that one of my uncles and one of his daughters also have it. No medication has even come close to controlling it. I’ve been asked if I was an alcoholic, if I was diabetic, if I was going thru withdrawal from drugs or alcohol, if I was stressed out, if I had Parkinson’s...among many other things. I’ve had people make fun of it by mimicking my hands when I try to drink something. I have learned to ALWAYS use a straw with everything I drink and I also use weighted silverware and it helps too. But what I’ve found is that when someone notices it and asks me about it, the shaking gets dramatically worse. So far none of my kids have shown any tremors, but the oldest is 19 and the youngest is 14, so I guess only time will tell. I try live my life as normal as possible but it’s held me back from some of my dreams. I enrolled in cosmetology school and by the 2nd week I had to drop out bc the tremors were slowing me down and making it almost impossible for me to keep up.
@Casey Zelaya I have ET. When I am perfectly comfortable, it is barely noticeable but it is there in my hands and head. When I am nervous, my whole body shakes. Head to toe. It has caused me great anxiety, to the point where I am always nervous in public and shake bad! I still work full time but I am always in so much distress at work that I don't know how long I can keep doing it. Just having my boss talk to me causes severe tremors head to toe. It is so humiliating.
My tremors started in college and they've gotten progressively worse. No one in my immediate family had them either, but I have a cousin who shakes. What is helping me somewhat is to do everything slowly and deliberately, kind of a zen thing. Try taking deep breaths and do your activities with purpose. If I don't do this, I can't even feed myself.
Sandy, Rick, Robert, Hannah, Anita and Karen thank you all for sharing your experiences with essential tremor. I'm 21 and right now I suffer mildly but sometimes it can get quite bad when I get extremely nervous and anxious. I hope one day we see a cure for this and I would like to send my appreciation to everyone that has ever helped raised awareness, contributed to research and any other related areas regarding essential tremor.
It brings tears to my eyes watching this. (My first watch of an ET video) I’m a very emotional person, I know shaking isn’t horrible but I’ve just started experiencing this 2-3 years ago and I’m not diagnosed, cannot afford it but I definitely shake. I get so frustrated because I can’t do my makeup, use utensils, paint nails or art like I used to, etc :( I just start crying randomly because I’m so frustrated but I’m learning. Glad to know I’m not alone.
Mine started in my mid 30's with head shaking. Then in my 60's it went down to my hands. I so understand that poor lady who said she feel useless. You end up stopping anything that you need your hands for. I loved to paint, knit any craft was my pleasure and now I have had to stop all of it. I still cook for my husband and I, but it is a challenge. Everything from using a knife, fork etc, and cooking its self, trying to flip pancakes, what fun that is. Even typing this message or using my phone, it really is life altering.
It's nice to know I'm not alone in this. I believe i was diagnosed with ET when i was 19, I am now 27. I had shakey hands as a child but, when i was about 15, i developed head tremors. I feel embarrassed sometimes. A lot of people don't get it. I take Klonopin and it helps. Also, anti-depressants help because it helps with anxiety which makes it worse. God bless you for sharing this video! ;)
I work as an independent researcher on ET. Physically, ET is believed to be caused by changes in the deep cerebellum and/or thalamic-red nucleus-olivary pathway. The concentration of certain beta-carbolines is found to be increased in the blood serum of sufferers of ET. These beta-carbolines act as an inverse agonist on GABAergic neurons. Hypothetically, this could explain the symptoms (tremor, anxiety, etc.) of those who suffer from essential tremor. If it's any consolation, I would recommend avoiding processed sugars, going gluten free and eating a high, healthy fat diet. Eating a high fat diet has been associated with increased metabolism of beta-carbolines which may reduce symptoms. Eating healthy fats may also promote insulation of nerve fibers through myelination-if the tremors are a result of nerve damage. A high efficacy magnesium supplement such as magnesium threonate may also help with symptoms. What we do know is that there are two common types of ET: early to late onset of familial tremor and sporadic ET with no genetic basis. As bioinformatics improve on ET, we will have a better understanding of the genetic basis for ET and the pathogenesis/pathophysiology. Better diagnostic measures are needed for sporadic ET and determining whether or not a neurotoxin, metabolic or brain disease is at fault. More funding and increased general support are both needed to further elucidate the cause of this debilitating and pervasive disease.
Yes it can, because it did with me. Several years if I remember correctly. I worked on my own, doing work with my hands 8 hours a day. A stressful time. When I first started my hands ached with the unaccustomed exercise. After a few weeks the ache subsided. You could seek the same solution, but it's a very time consuming lifestyle
It's exactly like 1:17 in my right thumb(not in left). I noticed it today and googled it and found the term But, it is happening when I am concentrating on it otherwise it is not happening (most of the time) Can someone tell me something? Will it increase? Will my right hand will shake in future? Thanks in advance
Thank you for this. I'm a college student and I've had it since I was about 10. Some days, my tremor seems like the only thing people notice about me. I usually don't talk about it, but sometimes I can't escape the questions. It isn't as bad now, but occasionally it gets to me still. We gotta stick together, everyone!
I'm 78 and started getting ETs about 5 years ago that i never had before until after going through some stressful circumstances.A trick i taught myself when eat something especially soup, i always use a spoon never a fork. I pick up the food from my plate or bowl with my spoon, Turn my wrist slowly inward as far as i can Then raise the food or soup to my month. This method when eating has helped me cope with my hand tremors. Also slow deep breathing opening both hands while touching all fingers together with one another, also helps some when i get a little nervous. Hope my suggestions can help anyone with this very bothersome neuroiogical health problem, and i stop taking meds except for one for my slight blood pressure, because all meds have many side affects, so I now believe that meditation is better than medication. Thanks for this ET video i'm learning more and still can write ok if i print or sign my name slowly. 11-16-23
Does anybody experience there mouth tremor when smiling? It happens to me all the time which leads to me having social anxiety because I'm scared people will notice it. I don't ever want to leave the house because it affects me so bad.
Yes, I have that problem as well. It is the reason I hate pictures. I think anxiety is just a part of ET. If you read other comments you notice a pattern of anxiety it pretty normal. I have a lot of social anxieties. I just keep trying. People will and do notice all my tremors. Train yourself to ignore the people who notice. If they say something to you, have a pre-planned answer ready. That makes it easier to move on. Good luck!
YES. when people talk to me i smile back and my mouth starts to twitch, and at that point i get really anxious and my smile turns into a half smile half disgusted look
sportsfan6554 I have that too... i can’t tell if it’s the tremor that causes social anxiety, or social anxiety that causes the tremor. When i first got it my thoughts didn’t change though. It was just the physical shakiness that came, which lead to social anxiety, so i’m unsure, but you’re not alone (:
@@dhill05 i feel the same way as that old lady because i have had essential tremors since i was born. I don't really eat anything because it's Embarassing as hell. It would be better if i wasn't Alive. I'm only 17
@@ilartsu6072 Don't say that. There is always a reason to live, even if you have a debilitating health condition. Especially at 17. That's still really young. You haven't even experienced adulthood yet. I'm 25 and have super sensitive ears from damage caused by loud noises as a child as well as constant tinnitus (ringing in the ears). Most noises nowadays that aren't even loud to regular people can irritate my ears, even something as simple as an air conditioner if it's left on for long enough. Certain sound frequencies are worse than others. But I don't let it stop me from living my life. Take care of yourself and don't mind what others think of you. Different forms of therapy are good ways to help you think positively. Or finding a hobby that makes you feel better about life. If anything, your essential tremors make you unique. Hope this helps.
@@ilartsu6072 I have had essential tremor since I was a teenager so over 40 years. I have good days and bad days. I only work 17 hours a week because it wears me out trying to function. I do home care for seniors because I shake too much for other work and now I can no longer do a lot of things... like I wouldn't be able to feed someone or brush their teeth... can barely do it for myself some days. It's random so that also affects being able to work. If I have a bad day I can't call up work and say, not today. So I am managing okay with my schedule now. It really messed my life up when I was younger because I worried so much about what people would think.... destroyed my self-esteem. I figured everyone would think I was an alcoholic or drug addict or something.... Now I am older and don't worry so much about what people think. I just put it out there and tell people what I have so I won't have to worry about what they think. God Bless You, and remember that everyone has their cross to bear... none of us get through life without some struggles. This just happens to be ours and we have to make the best of what we have... count our blessings and love ourselves and look for the beauty in the world. And sometimes just get mad and curse... heh heh. And keep your sense of humor.
I have dealt with tremors since sometime in my teens, I'm 58 now. My right hand is severely limited, and I can no longer write with my left hand. I have always engaged in activities that require dexterity, mechanics, woodworking, electrical work, and etc., I understand the frustrations. My advice to anyone is, don't ever let this define your value as a person, because it is not your fault. It is just another challenge life has given you. Hold your head high, and when someone asks be truthful, there is no reason to be ashamed. You didn't chose to have this affliction, but you most certainly get to chose your attitude towards your life.
I just got diagnosed after 30 years on trying to get doctors to listen to me. I've had this since I was 17... it has affected my life greatly. I don't have my drivers licence because "I was to nervous", had to change career (I was a jewellery maker) because my hands shaked to much, etc. Was told I was to nervous of a person many times... even if I didn't feel it. It has gotten a little worse lately and finally got a doctor who listened to me. I'm taking beta blockers which help me so much, it pains me to know that I could have gotten help much sooner.
When I was in high school I started with the ET symptoms. At first I thought it was just stress or that I was shy and because I was being bullied at that time and I was just anxious. A few years later even tho I didn't tell anyone the symptoms were getting worse and somedays I could barely hold a bottle. I decided to talk with my mother and we went to the neurologist. I was so nervous and afraid that something was wrong with me. Their diagnosis was ET maybe for a hereditary reason. I was only 17 years old. Now I'm 23 and I'm still figthing with medicines and treatments. I'm a bit lucky because my ET hasn't got that worse with the years (just a bit but it's okay) I'm still afraid on what's next and if one day I will wake up with more symptoms like my head is starting to shake sometimes or my mouth. I talked to my neurologist and we are still trying to look for a good treatment because it seems that most of them doesn't work for me. Sometimes it's embarrasing to do the usual tasks like going to buy the groceries or paying, going out for dinner or trying to do an exam. Some of my friends do know my "issue" but they just think that sometimes my hands shake a bit and nothing more, gladly they don't judge me. I have been searching support groups or associations in my country (Spain) but I can't find anything and is so frustrating I just want to share my thoughts with other patients and be able to support them too! We are all in this together and someday I hope a cure can be found
+liliansinistra meds never really worked for me. you don't need them by the sounds of it. Xanax, magnesium,zinc might work. ET progresses v slowly with most people. just move on. not the worst disease in the world :-)
+ron craven I don't like to take meds anyway so it doesn't bother me at the moment, as I said I still can have a "normal" day to day routine and so on. Of course there are worse illness and issues but it's a disorder like the others but I get what you mean :)
+liliansinistra Thanks for reply Lilian. 2 buddies and I have it from an early age(me 6). I'm not a big fan of taking meds either. For every action, there is an equal and opposite reaction and all that. A few drinks and maybe a Xanax if needed though is grand. weddings,presentations etc etc. i'm 43 now and so are my two buddies. I have it the worst of the 3 of us but I can still function pretty good. ie work,sport, social etc etc etc. hasn't really affected my life too much. hasn't really affected my 2 buddies lives at all from what I can see. it doesn't progress fast with everyone. mostly v v v v v slowly. or else me and my buddies got v lucky. just be healthy and ignore the disease as best you can. my other friends think my ET is funny and I suppose I do at times too :-) ET does deserve more research though. no one ever seems to know anything about it for such a common disease
My situation is same i am suffering ET my child hood days now I am 28 years but not stop my disease i am use english medicine and homeyo medicine but no use
There is a new procedure as of 2016 Sunnybrook Hospital Toronto Canada, that uses ultrasonic mri to create a lession at the vim thalamus. This stops the tremor, over a thousand successful non evasive procedures. My daughter has it and has had it for years. She now has full clinical depression and our family is broken. Hoping our slow system will get her this treatment.
I'm 21 y/o and I start to shaking when I finished my diploma program. I began to lose self-esteem as the tremor effect my daily activities. Moreover, I feel very tired with no reason. But luckily, my tremors is not observable enough by the others. Only a few friends know about this thing and they keep supporting me... GOD BLESS THEM!
I'm struggling too. My head shakes constantly. Even picking my daughter up from school is hard. I just want my life back. It came on 3 years ago and I've completely lost who I once was.
I went through the gauntlet of medications and then i went to a neuroligist. They casually mentioned DBS. I went to see the surgeon, set the date and never looked back. I recommend this as it is a life changer. It has been 10 years and i thank the stars every day.
@Дмитрий doing great. I had an mri done so the dbs had to be turned off. All i can say is such an evil disease. When the dbs was turned back on even the people working there could not believe the difference. Life changing. And i work in the electronics field.
I don't remember not having ET. I am now 60 and am having Botox for my arms, hands and fingers. There is a slight trade off because the Botox also weakens the muscles. I can type now, which is great. I got to a point where I could not type at all. Over the years I have learned not to be ashamed. I realize that people are ignorant of neurological and mental health issues. Be Well All..................
I've had this since I was teenaged and am 62 now. Some days I can type okay and others not at all... its random. What you said about being ashamed reminded me of a joke because I too used to feel so embarrassed... so here's the joke: When I was in my twenties, I worried about what people thought of me; When I was in my thirties, I stopped caring what people thought of me; and when I was in my forties, I realized nobody was thinking about me. It actually took me until I was in my fifties, but I really don't care too much what people think. I can go to a restaurant and used two hands to eat my hot and sour soup and phooey on anyone who notices my struggles... and if they do, they probably just feel curious or compassionate.
I’ve had it since I was a child, everyone from my dads side has it (I’m 29). Mine is not particularly incapacitating but made me struggle to learn to write properly, my parents didn’t connect the dots until I was older, years after getting scolded for having unreadable handwriting lol it’s really frustrating when people comment on it. Like, yes, I know I’m shaking. No, you’re not making me nervous 🙄
My mom has had ET for years and it has gotten worse with age. So she told her doctor and she was prescribed Primadone it's an epilepsy medication, she takes 1/2 dose, she hasn't experienced any side effects, and she says it has been working great. I just wanted to share that.
Good to see this on RUclips I’ve had mine since 6 years old and suffered a lot throughout school. It effected my speech and hands now it moved to my head which is even more noticeable and makes me anxious
I am 23 and I was diagnosed today :/ It’s very light, it can only be witnessed if I for example hold a phone in the air showing the screen to someone, or point a dot in a map using a pencil trying to stay still but what worries me the most is if it gets worse. For now it’s still acceptable but I’ve seen cases that sadden me.
I'm 18 and in the exact same boat. It's shit, as of right now it's bearable and I hope it stays that way but as soon as I notice it getting worse I'm going to see what I can do about it
Thank you for making this video! I was diagnosed with this condition recently. We need to spread this message to more people so that they can understand us. I feel real bad for the old lady in this video hopefully she gets the help she needs.
To anyone who is watching this video in 2024, please don’t stop here because there are several effective tremor management solutions that have been made available to you since this video was created. From medications to deep brain stimulation surgery to the latest noninvasive ultrasound treatment, you need to explore these options with your doctor. I’ve had ET for over 20 years (diagnosed at 30) and have had quite a long road in employing different methods, including seven brain surgeries as I experienced complications with DBS. Technology has improved and the quality of life I obtained was worth every stumble, medication challenge, wire breakage, and device malfunction along the way. I don’t regret anything for the life I’ve been capable of living due to advancing solutions in Essential Tremor management. I have also found purpose in sharing my experiences and educating others on ET. Keep spreading awareness and please don’t give up. ET does not define you, and with or without tremors, you are a gift to this world. ❤
To the dear woman who quietly said: "I feel so useless"... I long to wrap my arms around you in a comforting loving hug...Bless you & the others who are suffering
I have this ... I'm 53 and I've had it since my teens... thanks to you all so much for sharing ... you are all awesome.... even the small things make me crazy, like going to a bar and having to get my wife to carry the drinks from the bar to the table, so I don't spill too much .... peas and corn are the work of the devil! Be kind to yourselves ... peace :)
as a teen with essential tremor this is helpful because so many people point out my tremor and it really is embarrassing…. nice to know it’s not just me.
This really affects my voice alot, even though I'm not nervous it would still seem that way to others beacuse if my shaky voice, they would often tease me that I sound like I'm about to cry whenever I recite in class.
The reason I asked is, for my self, I noticed if I speak with a British (English) accent I find it easier and lighter than with the typical North American accent. The reason being because they don't open up their throat all the way to make sounds. Keira Knightley explains this nicely on s dvd feature from "the straight Jacket", I can't remember if that's the title or not, it stars Adrian Brody. I'm not sure if that helps. I also think I learned or adapted to speak using my vocal folds (vestibular) instead of my vocal cords. According to my parents when I was first learning to speak my speech was fast and erratic. I'm thinking I adapted to slow down my talking. This doesn't shock me considering that I controlled my sloppy writing by more or less drawing my letters and resting my hand on the paper. No one at the time knew I had Tremors and my Father demanded neatness. You see my condition wasn't diagnosed until I was 19. I still can't believe I had to play the clarinet, which I guess wasn't too bad as long I was sitting down. Anyway getting back to the point, experiment with your voice a little and see if there are any accents that do help, sometimes distraction from yourself also helps with the Anxiety of performing for a crowd. Either way, take care of yourself.
I am 71 with Hashimoto’s and have had hand tremors for about 2 years now. What is also troubling is that when I get up in morning or get out of car, etc, my teeth chatter uncontrollably. I am thinking that might have something to do with changes of position from sitting to standing and vice versa.
It's kinda strange and yet somewhat comforting to see all of these other types of people, with similar experiences like your own. Just another example of how we are all, truly the same, even though we have somewhat different exteriors. My Utmost Respect and Admiration to Each and Every One of You. Like many of the challenges that have faced humanity in the past, we will resolve this issue at some future time.
As a 16 year old, it's nice to know that there's others in the world that are similar to me. Most people make fun of me for it. People tend to stare or tell me that I should just "calm down". It's hard to explain that I just can't stop.
As an artist I can relate....ET makes it nearly impossible for me to paint landscapes and animals anymore....since I cannot control the tremors in my hands. It's very frustrating not to be able to do the main thing that accounts for my income. I have had to switch to painting abstracts and other contemporary art forms....so it's been like starting all over again.
That must be so frustrating. And I felt sorry for myself because I don't have a calling in life... but to have a calling and have such difficulty fulfilling it would be harder. I wanted to have a career where I could make a decent living so I went to school and was going to take radiology tech, but shaking stopped me and I had different random jobs... now I can only do in home caregiving... where I really just clean and make food for people because I can't feed or brush teeth or anything really caregiving because I shake too much, much of the time. It's random. Good days and bad. I hope by now you have mastered your abstract and other art forms and are doing well.
I also had to stop doing my job I did high-end auto restoration painting and pinstriping so I had to retire early so now that I am retired I love fishing but I can't do that I love going out to eat once a week and I can't do that very depressing very depression I sense have given my life to the Lord and I truly believe that's the only reason I'm here I mean I was that bad
I empathize, Larry. I know this is seven years late. I've had exactly the same frustration because I now find it hard to draw and paint and enjoy what I am doing because it is a constant struggle. I think what annoys me more than anything is that tremor is in the family, my grandmother and my uncle had it, it skipped my mother altogether - who couldn't care less about art one way or another - and landed on me instead. I spent years caring for her as she got older and not long before she passed, my tremor developed. I now have all the time I could want to draw and paint and I have this damn thing in the way. How have you coped over the years? I teeter upon depression and get bored silly and frustrated because these stupid hands don't cooperate. Drawing used to be a buzz and a meditative. The tremor doesn't manifest except when I try to write or do art. Any other activity and it doesn't notice at all.
My husband (67) started his hand tremors two years ago after his first heart attack, as noticed by an acquaintance who is a retired doctor, his own GP did send his for Parkinson’s tests but the consultant said it wasn’t Parkinson’s. We’ve also told his GP about hub’s declining memory and increasing anxiety, but because he ‘passed’ the ‘remember this address’ test (though not all of it) no further investigations are being pursued. We really don’t know what else to do/which way to turn, he/we don’t want him to be ill, but we are worried he may be missing out on help to stop him getting worse
I've had this since I was a baby. My father and grandmother had it too. When I was a kid I didn't know it was a neurological disorder, I thought I was just insecure 😢 but I wasn't. People made fun of me and told me every day not to be nervous. It's like they brainwashed me into thinking I was nervous and weak until I Believed it.
Thank you for sharing your stories. I'm a medical student about to do a rotation in neurology and am hoping to learn more about movement disorders and how to treat them.
I cried watching this, I haven’t seen many people with my problem. I break down sometimes because im not able to drink something properly. I know it isn’t common for a 17 year old either but I have been with it since birth. Everyone I meet I have to explain to them my entire story with shaking. I hope for something greater within my lifetime
I've had essential tremor since elementary school. It wasn't diagnosed until I was in my 50s; I am now 75. I have tremors in both hands, head shakes, and a deepened and shaky voice. I used to try to hide it, which made it worse. Now when I first meet someone I tell them right away about my tremors, head shaking, and why my voice sounds like I'm nervous. I took Primidone, and it worked, but after I had a pulmonary embolism, I started taking Eliquis, and had to switch to Propranolol. I am considering having MRgFUS, but I haven't talked with my doctor about it. Has anyone here had the treatment? Did it work for you?
I have had essential tremor since I was a teenager so over 40 years. It gets progressively worse. I have good days and bad days. I only work 17 hours a week because it wears me out trying to function. I can only do home care for seniors because I shake too much for other work and now I can no longer do a lot of things... like I wouldn't be able to feed someone or brush their teeth... can barely do it for myself some days. It's random so that also affects being able to work. If I have a bad day I can't call up work and say, not today. So I am managing okay with my schedule now. It really messed my life up when I was younger because I worried so much about what people would think.... destroyed my self-esteem. I figured everyone would think I was an alcoholic or drug addict or something.... Now I am older and don't worry so much about what people think. I just put it out there and tell people what I have so I won't have to worry about what they think. To everyone who has this: God Bless You, and remember that everyone has their cross to bear... none of us get through life without some struggles. This just happens to be ours and we have to make the best of what we have... count our blessings and love ourselves and look for the beauty in the world. And sometimes just get mad and curse... heh heh. And keep your sense of humor.
thank you... in the same boat...did construction for years... cant hold a screw or nail straight anymore at 46... it hurt my social life too... but ive accepted for what it is . bless you too and ty again :)
Has anybody else noticed this? My tremor always makes my hand shake at the same rate/frequency. Maybe I've noticed this because I'm a musician. I don't think my shaking frequency ever changes....bit like a metronome set very fast.
I was so blessed and lucky to be able to partake in further educating people about Essential Tremor. Yes, I am one of the people in the video. Can you spot which one? :)
I have anxiety, and I always thought that was the cause of my shaky hands. It wasn't until my late twenties that my great aunt on my dad's side off-handedly mentioned what it was, and it was probably genetic. I just figured her and my grandmother's shaky hands were a sign of age. We need more awareness of this condition.
It's SO good to know I'm not alone. Reading everyone's comments is refreshing. I was diagnosed a year ago and yes, it's totally annoying lol and embarrassing especially when you can't even put your PIN # at the checkout counter! This video really made me happy to know that there are others out there that go through the same thing, we all are awesome and strong and God bless us for that strength! 😊
Essential/familial tremor runs in my family. I've struggled with it quite a bit myself, especially as a music-lover and pianist. It gets much worse under stress or when I haven't eaten enough, but I've found some supplements like Magnesium do lessen the severity or make it less noticeable on the daily. I've seen the way my dad and my grandpa shake and can barely do anything that requires precision; I'm scared, and I hope a cure is found. Or at least some medical solutions. I've lived with the embarrassment and denial that anything was actually wrong with me so long that it's almost a relief to know it's not just in my head, nor does it define my abilities. But annoying it most certainly is. Glad to know I'm not alone.
Hello Amanda and James. I am new to this and grappling on how this will impact the decision I will make for my future since I am in my early twenties. Have any of you tried to find a significant other? What are your thoughts on the ethics of wanting to have kids some day but also having this condition?
Just came across this and it’s very nice to know I am not alone. I had to leave work today because my tremor was so bad. I’m 32 and was diagnosed around 16. I started shaking in junior high and can’t stand when people ask. I get so self conscious and insecure still. I was so embarrassed today, it got worse so I just went home 😔
Have you investigated deep brain stimulation (DBS) surgery. I have had this surgery and it stops my tremors. No pills. Ask your neurologist about this--it is a lifechanger.
Starting noticing my essential tremor at 17, if I held a pen in a certain way my hand would just uncontrollably start shaking. I’m 22 now and it’s gotten a lot lot worse. Because I’m literally fine it’ sucks when people say “omg you’re shaking!” “You’re shaking so much!” “Stop shaking” even my mum and dad even though they see me shake every day, they still point it out I’m like YES! I KNOW! I JUST SHAKE! Christ. Just because I can’t eat a bowl of soup properly or put sugar in my coffee or put mascara on ugh
I have had it since I was 6 years old. My hands shake and it's so embarrassing when people gape at me when I try to eat something with my spoon. However I am not giving up hope as there's a new treatment known as Focused Ultrasound for ET. It's available in the UK but not rolled out on the NHS . At least something is there to treat it!!
I was diagnosed recently at age 38. I first noticed around 15, but since it’s not my dominant hand I dealt with it. Until these past few years it became more noticeable.
This amazes me. My dear grandmother shook a lot. I loved her, and she was beautiful to me, all wrinkled and shaking.The shaking was an interesting part of who she was. I liked her shake. She never complained or acted like there was something wrong. She rattled her tea cup on the saucer, and sipped carefully. Her head shook, her hands. She knitted, she lived alone. She did everything. She walked for a mile a day. I would not be ashamed to have a familial tremor.
living with this is a different story, if you had it, you would know the struggles and let me know then if you would be embarrassed. All the people with it who are embarrassed can't be wrong that it's embarrassing.
Oscar Rey I’m sure that nowadays people would fight for their right to be miserable and embarrassed, now that we have replaced the love of God and the kindness that He gives us, with social justice and endless faultfinding.
Crystal Pifer if I remember correctly , she shook a lot, and fast. And she never seemed frustrated or disabled by it. She was more sorry that she was a poor widow, but her children paid her bills for her pretty little home in the country.
I‘m 28 years old and my hands had shaken since I was born,but it became severer when I had a traffic accident at 14 years old.I hate to have dinner outside and I am nervous other people noticing my shaking hands then it makes my hands shake more obvious...I support the IETF,and hope ET can be treated ASAP.
Having essential tremors suck, I got teased in school because of it. As far as I know, I've been dealing with this since I was 10 or 11 years old. I'm going to the doctors to see if I can get it treated, I hope it will go away. Edit: I'm 15 and am still dealing with it
I have had essential tremors for around 15 years, but it was very mild and undiagnosed until about 5 years ago when it got much worse. I feel really bad for the people who are getting this at a really young age. Mine didn't start until I was in my mid 30ies. I thought this was pretty bad until about 3 months ago when I was diagnosed with myasthenia gravis and now, I have to hold my eye lids open to see. 😞
I was recently diagnosed with Essential Tremors, but I've been struggling with it since I was 3 or 4 years old. I'm 24 now, and the tremors have definitely gotten worse over time. Sometimes I find it hard to even get out of bed in the morning. Let alone, get through the day. If anyone could donate to the website at the end of the video, please do. We need a cure. Please.
Hang in there Brittany. I have had this all my life and I'm 55. This is my way of coping. I use humour loads of it. My whole family do. Embrace it. It's who you are. I also explain it to people especially at work. I do get the odd dickhead who makes the joke about "needing a drink", but I just tell them to go look it up. I now work in menal health and my clients like that I have something I struggle with as well. Make tomorrow the day you make peace with it and make it part of your life. Because it is :) good luck.
Thank you for this wonderfull video. Very well done and engaging. I was recently diagnosed with ET and this video makes me feel good and informed. I'm from Malaysia. God bless the people who participated in the video. Very nice of you to share your thoughts and insights.
just diagnosed with essential tremor! I recommend waring heavy rings, and watches to help find stabilization in your hands. I'm 22, no worries if you have it. There is medication available but be optimistic because it's not life threatening. Plow through it, do what you would normally do, and good luck!
+TO.C MUSIC Haha, you are right though. I work in construction. The tools etc giving extra weight in your hands make the ET unnoticeable. I have it nearly 40 years so it beats trying to write for a living these days. although I can still write if I have to. just dread it cause of my shakes. you are right though. be optimistic. its not the worst!!!!! (not the best either!!!)
ron craven Cool man, I like that story. It's true, it's uncomfortable sometimes, however, I just tell people why I shake and their cool with it. Some people find it cute that I have it (I think they are being sympathetic) and basically my ET is a wing man. I more concerned about drowning in p**** than I am about my ET ;)
Now I'm 29. My grandma noticed that my hands are slightly shaking when I was 5 years old. And she told me to ask yor pappa to consult a doctor. But as a child I didn't take it as seriouly. But day by day every one used to ask me Why ur hands are shivering. Every one think that I'm scared and they used to make fun of me. When I was in college I diagnosed with ET. Even though the most painful thing for me is that nobody can understand this condetion even my parents.
I was born with ET and omg the terror of living day to day being teased by kids about what I couldn’t help with was terrible. Even now, I have to deal with comments about being supposedly nervous, scared, or even tweaking and it sucks knowing it’ll just get worse with daily tasks. But, I keep going cause I know that’s what people who love me would want me to do. To everyone reading this, hang in there. Love you all ❤️
i am 16 years old and 3years before I started to notice that when I meet my boyfriend I use to get nervous and my head use to shake so bad unknowingly. Its been 3years and I am suffering from this, I feel nervous all the time and my head use to shake. Sometimes I really want to give up on my life.
Bikashita Psychia I’m so sorry. I went through this too and still do. It can be so embarrassing to shake in front of those we want to leave a good impression with. We want to be present but all we can think about is others seeing us shake. I hope you don’t give up. I hope you see that there are still things you can try but first have you been officially diagnosed? You must start there first. Always research and read comments, learn all about this disease! And find a way to manage stress as stress makes tremors worse. I have cervical dystonia and stress can affect me so much.
I'm 64 now and it has gotten worse. I can remember as a teen in high school having to get up to give an oral report or a speech and being nervous anyway but with ET it was 10 times worse. You could see the other kids laughing and pointing to the point where i couldn't do it. My handwriting was really bad and I was graded accordingly. Anytime I have had to go to the doctor's office (or anywhere else) i cannot fill out the forms without my wife being there. If I go alone and ask them for help they think I am illiterate or retarded and don't understand what i am trying to tell them. When they draw blood and see me shake they ask if i want to lay down so i won't pass out. A chopped salad or peas, soup or picking up a drink is a real embarrassment unless you are with people who understand. i have had people who think i have the DTs if I try to pick up a cocktail and have to use 2 hands to cancel the shaking. It is good here to hear the testimonials of others who have similar issues and suggestions how to combat this problem. Thank God for the computer and keyboard
Try coconut oil and bacopa. I have a friend with Parkinson’s. In one month she went from not able to think write drive cook wanted to die now she does everything she used to do as a normal everyday living ..needless to say she is elated
@@A_Box 1 child who is 49 now and he has mild case in his head and his upper body sways a bit. I haven't seen it in his hands as much as I have it. I have the slight head nod as well. I think mine is more intention tremor. I come from a family of 10 and a quarter of them have it to some degree. You can take propranolol (beta blocker) and stay away from coffee and alcohol.
@@breckandy I am just new to this and find it somewhat depressing. I thought I might be a good father some day but now I don't know whether having children would just be passing this onto someone innocent. How does your family deal with the ethics of it?
I have had ET since about 40 and now I am 65. It's just my head. My grandma had it too. It gets worse as I get older. I try not to let it bother me but sometimes it does not let me forget that I have it. I have a supportive family and hardly get asked what is wrong. I think people are just used to it. I remember seeing the Hallmark true story about a teacher who had a severe case of Ticks and I was amazed at how he and his coworkers and students handled it. I was inspired by the movie and after seeing it I had a different attitude of movement disorders then I used to. I can't remember the name of it but I'm sure it can be Googled. It is worth seeing!!!!!!! It's very comforting.
The first time essential tremors entered my life noticably was when i was about 4-5 years old, and my father asked me why my hands were shaking. To me, i had never really noticed before, but my answer was "I don't know. that's normal." I will be 31 years old in little over a week from now, and there has not been a day in my life that this has not effected me. I'm a pencil artist, but I still don't know what it's like to draw a straight line, or a circle. I have had all kinds of visits, scans, medications, and none of that has gotten rid of it. During elementary school It didn't bother me that much. But Middleschool, and highschool, there were constantly days I was bothered by guesses as to what others thought of me. Clearly if i'm confronted about something, and i'm shaking, It's because i'm nervously hiding something. There was a few years of my life not too long ago where even walking was difficult. My legs would tremble, and I seriously thought i'd tumble to the ground. The floor felt like it was rotating, and sleeping at night gave me nightmares because it felt like the bed underneath me was breathing. I don't know how many pencils i've broken trying to write my name, or how many cups of water i've spilled trying to drink from them. Or how many times i've had to ask a stranger, friend, or someone else to write something for me, telling them quickly "I can't write." But what I do know, is that i've found that stress and anxiety has a very major impact on all of this. When i'm at peace of mind, not worried about a thing, they almost do not exist. That's the best piece of advice that I can give when dealing with this either yourself, or with someone else you know. Do your best to help yourself or them feel relaxed and at ease, and not to worry. It's been important for myself, atleast.
Luminaire Zeal i have et 5 years i am stress right now and its got worse my head shaking. do you think it can be minumum if i manage the stress. sorry for english i hope you understand what i want to say. and hope you answer me
I think if you can soften your stress, then the tremors will soften also. My tremors are always there, but they are worse when i'm stressed. If i'm relaxed, it becomes much more manageable, and sometimes not even noticable. Similar to all things in life, I think stress makes it much worse.
Me too. I embrace my ET with a sense of humour and now we get along just fine. I apologise to people who know me when making a coffee "if I throw sugar at you - feel free to throw it back". It makes it so much easier to live with. PS. My family won't let me talk with a knife in my hand lol - libel to accidently throw it at someone by mistake.
I have this in my left hand and I hate it. It does help to know that others struggle with this. Some much younger than I. I first noticed it at age 40. I'm 45 now. Thank you for sharing.
I have had ET for about 20 years now but as I approach 57 it is becoming more difficult to function day to day. I have tremors in my hands, arms, voice, head and legs. Having it in the legs is rare but my legs tremble all the time. Sometimes it's so bad they seem like they are bouncing. I am even having a difficult time typing. I was a secretary for 30 years and this has definitely ended my career. If I get stressed out at all it magnifies 10 times and I feel like an out of control freak. My eyes twitch constantly as well. My entire body vibrates non stop until I lay down. I am finding it extremely hard to hold things now and I am tripping from time to time. Last night I broke down because I poured a glass of soda and then dumped it. I cleaned that mess up and poured a second glass and spilled that. I yelled for help because I just could handle it until I sat down and relaxed a few minutes first. It is very frustrating and embarrassing. I hope they can find a cure someday for this too. Take care all. We are not alone I guess.
Debbie, you are not alone. For most of my life I felt that something was terribly wrong with me! I did not understand the stress I was under caused a reaction. I loved dance and in college and beyond took and conducted classes in Ballroom, tap, jazz, etc. but always suffered from that terrible fear that this "shaking thing" would betray me. I am now in my 70;s and have trouble walking. . . .so depressed! Wish I had an answer for you. . . still searching. Lately I just stay at home and hate my life. . .I was always such a positive and active person and was always there to help others. P.s. my mother had this and after she passed I realize why she was the way she was~ She did not talk about her situation. I wish you the best in your journey and I'm sorry that I could not have been more helpful. This is (part)of my story.
My friend has this but it's not this severe. Ignorant kids at school will always be like "What, you can't hold a piece of paper properly?" and stuff when she shakes and it really makes me angry but she's so strong she just rolls her eyes and laughs it off at this point.
I have had it for as long as I can remember, mum first noticed it when I was 5 and I dropped plates for no real reason. I'm 17 now and only just realized that other people have it because the only people I knew had it were either elderly or in my family. I often get asked why I'm nervous and even my family tells me to stop. I have found it worsens when I'm too cold, too hot, tired, sometimes when I have caffeine, if I'm stressed, around another shaker, and not had enough to eat. I have been diagnosed with chronic anxiety and depression so all I can say is be strong for whoever suffers from it. Good luck.
@@yuske05 Well done! I have now noticed my brother and sister shaking when they havent been diagnosed and I think it is because my parents let them start drinking coffee. They wont listen to me that it will make it progressivly worse the more coffee they drink like it has with me 🥲 I only drink coffee two or three times a month now because I still love coffee 😅
@@eozfalloon1998 I was just like them. On the first day of the job I had to run laps outside premise to keep my high down as an attempt to not let my new coworkers think i'm a drug addict. in case you have doubt, this was completely necessary lol
I think I may be suffering from this. I've noticed that whenever I try to hold onto an object for more than a minute my hands will start to shake. At first, I attributed it to nervousness but it seems somewhat involuntary. I do have anxiety and gets stressed out easily so that's probably making it worse.
You’re not useless…I’m a neurological nurse and brain injury specialist and I have essential tremor from a TBI…long story…but it doesn’t make you useless…it does take patience and determination…but it doesn’t make you useless…I’m an old guy of fifty one…trust me on this…I’ve practiced nursing a long time…with essential tremor…and it’s fairly significant since my TBI…you can do things…😊😊😊😊
Breaks my heart that the lady said she was useless. I wanna hug her.
Joshua Morgan broke my heart too ! I've recently been effected with slight head no no tremors. She's so broken and it's completely sad.
@@yomomma4365 i have had essential tremors since i was born. People just stare at me. It's nerve craking. I hate this dicease.
ikr
Ikr??? God bless her
@@yomomma4365 I have head tremors also..I'm taking primidone...works pretty well...mine isnt real bad.thank god
I am 15 , I have it !!! I cry day and night , I find myself useless !!! But you know anybody reading this , I send you a virtual hug . We are in this together and remeber God gives tough questions to intelligent students !!! We are in this together , you are not alone my bro , sis !!!
I'm goin to my doctor's tomorrow. I believe iv had this for years but finally doing it now
We are in same situation 😭😭😭hugs
I have had it since I was about your age. Mine isn't very limiting. It is very VERY minor compared to my Aunt and grandfather, who can barely use forks or spoons at this point. Thankfully, mine has stayed about the same and I just turned 30. There are days when it is noticeably worse, and other days where it is so minor that you can barely see it. Don't lose hope. I thought for sure It would be debilitating, but my Aunt is still a seamstress even with her shakes. My Tech-Ed teacher in high school shook like crazy too but used a saw every day. Strangely, my ex boyfriend had it too and was a baker, but was still able to decorate cakes nicely. I have to solder tiny wires together every once in a while. Don't give up on your dreams!
This was ten years ago. There are treatments and medications for this now🎉
The only medications that are used to treat ET have too many side-effects. I’m 61 and I can’t remember a time when I didn’t have a tremor. I gave up on trying to treat my tremor with medication. My tremor has steadily increased to the point that I am completely disabled. I was nearly homebound. 😢It had even begun to affect my ability to walk. HOWEVER, I had deep brain stimulation surgery in June 2023 at UAMS(University of Arkansas Medical Sciences). Erika Peterson is my Neurosurgeon. It has been an amazing journey and I would recommend it to anyone who is having major difficulties. My tremor disappears completely when I turn my DBS unit on. There is also a procedure that use targeted ultrasound and is less invasive, but I wasn’t a good candidate for it. I wish you well on your treatment and recovery. There is hope 🎉
I am 15 years old, I noticed my hands would shake when I tried to do certain things such as eating or texting at the age of 13. I was diagnosed with Essential Tremors at age 14. It is very stressful at times, and EXTREMELY annoying. It is extremely embarrassing when people stare at you while you're trying to eat or holding something. It's even worse when they ask. Glad to know there are so many others who feel the same way as I.
I've found what helps me the most is to stay absolutely calm all the time. When it comes to people you'll just have to adjust your habits a bit. I'm 27 now but have had it as far as i could remember.
Whats annoying is always having to have someone else snap a smart phone picture, or have perma-shaky photos haha
that's exactly me... i work at a market as a cashier and people look at me because my head shakes.... it's embarrassing and i hate it but it's something i have to live with..
let's fight through it together!
It's awesome to know other people feel the same way as I do. We all got this!
***** Gluten free diet and paleo diet has completely cured many patients of essential tremor. You dont have to live with this dibilitating disease all your life. Pls do your own research on net and you will find testimonials of many tremor patients who are enjoying a tremor free life after following these diets.
Manoj Nair Essential Tremor is known to be neurological, how could a change in diet help? Extremely curious about this.
its nice to know theirs other people out there like me
MilesLover03 Sucks, too.
go to Facebook, there are a couple of support groups there :-)
My Dad has Essential Tremor. He's been on an all natural supplement called "Tremor Miracle". Google it. Pretty cool stuff. His symptoms are reduced about 80%. I'm super interested in why people get ET and why TM works to reduce it. I'm pretty sure it has something to do with the Nitric Oxide increase in your blood from the Arginine Citroline combo this morning drink has. Anyways for what it's worth check it out.
Jonathan Baird hiii help me sir I have tremors
I hate it but your not alone. I used to think the same thing. The shaking gets so bad sometimes that I don't want to go out in public. People stare then I m trying to hold every part of me down. But I know I can't it's just so humiliating! Nothing has helped me at all. My friend has mentioned CBD oil has anyone here ever tried it? Along with the tremors I also have systematic Lupus, heart disease, high blood pressure, I've had uterus cancer and I just batteled breast cancer. I believe that the Lupus is causing all of my ailments.
To that lady who feels she is useless -- and anyone who feels that way about yourself -- please know that you are not useless! You're not just a body, but you are a heart and soul with plenty of wisdom and kindness to give. You're full of grace and love and you can share your thoughts with others who may need some of your insight. Stay strong and know that you are so much more than you realize.
Thank you
The world would be a better place if there were a few more people like you :) - Thank you!
Thank you..it really broke my heart when she said that. You are so right.
Thank you. I needed to know I am someone. My kids dont care. I'm a thorn in their side
im 28 yo and i have n essential tremor which makes me wonder what more chance we got to wind up having more neuroligal problems
I have lived with this since I was 14. I didn't know there was a group and I am not alone. Hugs to you all.
Yes it is there are you not alone ☺ love you💕💕💕
yess you are not alone 🥺💖
Have your children inherited this tremor?
Hi my name is Vincent Chung and i'm a computer science students. I'm currently doing some research about tremor disease. I need a lot of people to do some easy to do physical test and drawing. I really need a lot of dataset and if you would like to help me you can contact me through my university email which is vincent5@mhs.stts.edu and I can give you the instruction. Would really appreciate your help.
yep me too. I'm scheduled to get the focussed ultrsound treatment in july 15th . everything they say we can suffer from is what"s hapening to me now
This video actually brought tears to my eyes. I have had essential tremors for some years now an have always felt so insecure about it. Im happy to see that I'm not alone. May God keep us all strong in the face of this difficulty.
Don't think it's incurable. Essential Tremor is oftentimes caused by a vitamin B deficiency. I suggest you do some blood works to detect your shortages of magnesium, vitamin etc.
I have so much sympathy for these people. I was diagnosed five years ago. I'm 68 now, and no worse than I was then. I'm probably a one on a scale of ten. It comes and goes and also seems to be affected by my blood sugar level. I generally can't do cursive anymore, and navigating a fork to my mouth is a challenge. But it's nothing like these poor folk.
Gets me mad when people ask me "dang stop shaking"
+kent Alvarez ahahahahaha my friend,usually its the sam ewith me,they r asking me if am drinking such many coffees daily ahahahahaha,keep shaking my friend,am doing the same,am not able to eat a soup outside the house but who minds....Merry Christmas !!!!!
+Leonidas molon lave haha same with me 😅 they think I drink too much coffee or soda. Hope you had a good Christmas!
+Evan Schott yeah same with me.
how long did yall had it and did it got worse cause i have it too man! AND I donot want it to get worse
kent Alvarez feel you.. I feel you
I have essential tremor symptoms since I was in high school . Now I am 23 years old and I have learnt to live with it.. people notice and ask me about this whenever I do some stuff like holding a cup of tea or using my cell phone. But I never limit myself because of this. I love myself and I love the way I am , it's ok to have some problems as we all know nothing is perfect. 🙌❤️
What a positive attitude! So proud of you! Watch our newest video, Young People and ET: Gracie's Story. Video link
ruclips.net/video/OfqRhQGYpUA/видео.html
We are all perfectly imperfect ❤
Look into focused ultrasound.
I have been trying hard to love myself through this condition! Thank you for sharing!
I'm 16 now.I had it since i was 13 years old.The best solution is to sleep on time.Always sleep 8 hours a day, avoid stress and anxiety.Besides, you could also do some excersises like going for a walk or jog or maybe go for a massage to make you feel more relaxing..
@@filipacarvalho2800 I was diagnosed when I was 10 and im currently 21. I do believe getting a good 8 hours of sleep does help and avoiding stress aswell but exercising makes it way worse for me. My tremors have also gotten worse over time. Ive been prescribed two different medications and they help a bit but not enough in my opinion. Hopefully there will be a cure soon.
Fine but it is very simplistic!
@@ronaldomatos8252 I totally agree with you all ur points. some people can't have coffee either, it worsens the symptoms after half n hour or hour. But the et medications currently available don't always help.
I think exercise can exacerbate it, but probably helps overall.
It's true but for anxiety tremor
"I had it all in my head, I swear, but it just didn't want to come down to my fingers." ...Well said
dids it shake fast your head do yes yes or nono or side to side
Aww I want to hug that old lady so bad. She’s such a sweetheart
me too
Love seeing all these other young people with ET speaking out in the comment section. I'm currently 20 and was diagnosed when I was 14. I remember being in chemistry class freshman year of college, and I was so anxious and nervous that I could barely write. To all the other young people out there I just want to say, don't be afraid to talk to your teachers or professors and ask for accommodations. Many are willing to give extra time or even give you tests in alternate forms like typed. Don't worry about inconveniencing them or blah blah blah. Take care of yourself, and set yourself up for success. Much love to everyone! Remember I believe in you!
Thank you for posting this video. I'm 60 years old and have had essential (familial) tremor in my writing (right) hand since aged 19. There was no help in those days - a doctor even referred me to a clinical psychologist. I studied at Oxford and have had a successful career - but the confidence sapping tremor has always been there, progressively worsening until I couldn't write at all with my right hand. In desperation I taught myself to write with my left hand in my late 20s. Not elegant but it worked for most of my working life. The tremor has now spread to my left hand. Thank goodness for computers! Videos like this have actually brought tears to my eyes as I see a shared experience in others. I have read about a new curative ultrasound technique but not sure that it's available in the UK. I just wanted to chip in with a bit of mental support for anyone with this condition. It can make you feel utterly hopeless, sucking energy and focus out of our daily lives, but you are not alone.
Mrs Raun, your life is not useless. It must be terribly frustrating and discouraging, but not useless. You can share love and compassion--even more so because of your own suffering--and there is something special about you that no one else has. You are a lovely woman and worth everything to God!
+Jody Ospina chin up mrs Raun!!!! we all got something. don't take the disease so seriously. is a lot worse diseases out there
Forget god!! She’s everything to me! There’s sooo many good hearted kind people out there that wouldn’t judge her for a second because she was shaking. Anyone that judges you for something so minor and out of your control isn’t worth getting upset over in the first place.
@@jasonok1436 hi Jason do u shake
Thank you so much for the compliment and the wise advice! I really appreciate it! Thank you so much for taking the time to watch this!
Hi Hannah. How's your condition today? How did you treat your ET? Thanks.
I'm 65 and was recently diagnosed and also have vocal dysphonia. I have tears in my eyes for these folks that suffering not just physically, but mentally as well. I pray more research that leads to solutions to this will happen soon.
My heart just broke when she said," I'm just useless." Oh God, I know that feeling. I was afraid I was showing signs of Parkinsons. I guess that's why they say don't self diagnose. My head started shaking about 20 years ago. I would notice if I drank a beer or two real fast, they would go away, so I made that a way to fix it and actually became an alcoholic to control my head shakes but they always came back. Yes, certain emotions can make it worse. Anger, embarrassment, anxiety, but my head will start shaking while I'm doing my makeup so it's not necessarily emotionally triggered but it happens. I had to quit my piercing job due to my shaking. Ppl made comments and I would lie and say I took cold medication on an empty stomach.
I agree it is heartbreaking. My favorite thing to do when people are rude/ignorant and ask what is wrong with me, lol, I get really serious, look them in the eyes and say “yes, it is a terminal.” The look on their faces is priceless.😂
I was diagnosed with essential tremor 2 years ago when my head started getting shaky. I now stay home most of the time and I hate socializing. My husband is not happy about it but he's not the one who has to deal with it. I want to get back to church and having friends again but I'm so uncomfortable that I get overcome with fear and I don't go.
I have coped with ET since I was about 10 yo. I found it profoundly damaging ,as you are perceived as 'weak' or nervous ,when you aren't. I have even been accused of being an alcoholic for shaking . I didn't actually find the name of the condition until I was 24 , and was simply told there was nothing that could be done for it. Mine is familial as my late mother and maternal uncle both had/ have it.
I have had a number of serious health conditions, including Lupus and Sjogrens syndrome and spondyloarthropathy; which between them make me regularly feel unwell. But it's (benign ) essential tremor that I hate the most for its social impact on me ,particularly as a young man. I too wanted to hug that lovely lady on the video who feels so useless, and assure her she is not.
I am 64yo now and no longer get embarrassed by it, as it has got worse in the last few years. My heart goes out to young people first coping with it in school or socially. I grew up with people sometimes serving tea in a China cup and saucer; and came to hate the social stigma of my rattling cup and saucer .
Exactly. I've had Essential Tremor before the car accident I was involved in that made it much worse. I play piano and join in competitions, however, with piano, you get marked down a couple points for looking nervous (shaking, looking down, rubbing hands together, etc). My scales is good and my songs are great (as they'll ever be with Essential Tremor) but I'm always marked down for something I don't have control of. A few weeks ago, I felt like I was so close to winning first place for a scholarship but I missed it by a lot because I was shaking before, during, and after my songs. Having Essential Tremor makes me feel judged and vulnerable when it comes to competitions, group discussions, speeches, and even writing my own name. Anything that makes me just a bit nervous makes me shake all over my body uncontrollably. I also have a competition tomorrow in which I definitely do not feel ready or confident in my songs nor scales but as always, I will do my best. Wish me luck🙂
i have a head shake too i do yes yes and no no
It's good that you have the bravery to persevere and do the things you do because when I was younger (I'm 62 now), in my teens and twenties, this disease paralyzed me and kept me from doing things I wanted to do. I remember going to college and standing outside the classroom looking in the window and crying because I was too nervous and shaky to go in. I suggest just letting people know what you are dealing with, not in a complaining way but just as an explanation so that you don't have to think about what they think, and keep on doing everything you want to do. God Bless You.
Hello Laura, have you had any children, and if so have they inherited it?
How did you do in that competition? I think I was in my 60s before I noticed the problem.
@@jimervin1637 It was a competition for a scholarship and ended up I got an amazing scholarship to a college that I have been going to now since the post and am about to graduate with an design/art degree. I still struggle a lot with my tremors, but I have been practicing and will be playing a memorized song in front of the whole school this coming spring before I graduate🙂 I found out the more I practice a song, I shake a little less. Its not a huge difference technically, but it is a difference😊
I’m 41 and have had noticeable tremors in my hands since I was about 15...at first I thought I was being punished for making fun of my grandfather’s shaky hands when I was a little kid lol. But as I got older the tremors got worse and more people started noticing it. I’m still amazed by some of the questions/remarks I’ve heard over the years. I was officially diagnosed with ET when I was 26. I inherited it from my paternal grandfather, my younger brother also has it, and I recently found out that one of my uncles and one of his daughters also have it. No medication has even come close to controlling it. I’ve been asked if I was an alcoholic, if I was diabetic, if I was going thru withdrawal from drugs or alcohol, if I was stressed out, if I had Parkinson’s...among many other things. I’ve had people make fun of it by mimicking my hands when I try to drink something. I have learned to ALWAYS use a straw with everything I drink and I also use weighted silverware and it helps too. But what I’ve found is that when someone notices it and asks me about it, the shaking gets dramatically worse. So far none of my kids have shown any tremors, but the oldest is 19 and the youngest is 14, so I guess only time will tell. I try live my life as normal as possible but it’s held me back from some of my dreams. I enrolled in cosmetology school and by the 2nd week I had to drop out bc the tremors were slowing me down and making it almost impossible for me to keep up.
Has is affected your intimate life in anyway ?
@Casey Zelaya I have ET. When I am perfectly comfortable, it is barely noticeable but it is there in my hands and head. When I am nervous, my whole body shakes. Head to toe. It has caused me great anxiety, to the point where I am always nervous in public and shake bad! I still work full time but I am always in so much distress at work that I don't know how long I can keep doing it. Just having my boss talk to me causes severe tremors head to toe. It is so humiliating.
My tremors started in college and they've gotten progressively worse. No one in my immediate family had them either, but I have a cousin who shakes. What is helping me somewhat is to do everything slowly and deliberately, kind of a zen thing. Try taking deep breaths and do your activities with purpose. If I don't do this, I can't even feed myself.
Sandy, Rick, Robert, Hannah, Anita and Karen thank you all for sharing your experiences with essential tremor. I'm 21 and right now I suffer mildly but sometimes it can get quite bad when I get extremely nervous and anxious. I hope one day we see a cure for this and I would like to send my appreciation to everyone that has ever helped raised awareness, contributed to research and any other related areas regarding essential tremor.
Hello Michael. It has been 7 years since your comment. Just curious, have you been able to find a significant other?
It brings tears to my eyes watching this. (My first watch of an ET video) I’m a very emotional person, I know shaking isn’t horrible but I’ve just started experiencing this 2-3 years ago and I’m not diagnosed, cannot afford it but I definitely shake. I get so frustrated because I can’t do my makeup, use utensils, paint nails or art like I used to, etc :( I just start crying randomly because I’m so frustrated but I’m learning. Glad to know I’m not alone.
Mine started in my mid 30's with head shaking. Then in my 60's it went down to my hands. I so understand that poor lady who said she feel useless. You end up stopping anything that you need your hands for. I loved to paint, knit any craft was my pleasure and now I have had to stop all of it. I still cook for my husband and I, but it is a challenge. Everything from using a knife, fork etc, and cooking its self, trying to flip pancakes, what fun that is. Even typing this message or using my phone, it really is life altering.
It's nice to know I'm not alone in this. I believe i was diagnosed with ET when i was 19, I am now 27. I had shakey hands as a child but, when i was about 15, i developed head tremors. I feel embarrassed sometimes. A lot of people don't get it. I take Klonopin and it helps. Also, anti-depressants help because it helps with anxiety which makes it worse. God bless you for sharing this video! ;)
I work as an independent researcher on ET. Physically, ET is believed to be caused by changes in the deep cerebellum and/or thalamic-red nucleus-olivary pathway. The concentration of certain beta-carbolines is found to be increased in the blood serum of sufferers of ET. These beta-carbolines act as an inverse agonist on GABAergic neurons. Hypothetically, this could explain the symptoms (tremor, anxiety, etc.) of those who suffer from essential tremor. If it's any consolation, I would recommend avoiding processed sugars, going gluten free and eating a high, healthy fat diet. Eating a high fat diet has been associated with increased metabolism of beta-carbolines which may reduce symptoms. Eating healthy fats may also promote insulation of nerve fibers through myelination-if the tremors are a result of nerve damage. A high efficacy magnesium supplement such as magnesium threonate may also help with symptoms. What we do know is that there are two common types of ET: early to late onset of familial tremor and sporadic ET with no genetic basis. As bioinformatics improve on ET, we will have a better understanding of the genetic basis for ET and the pathogenesis/pathophysiology. Better diagnostic measures are needed for sporadic ET and determining whether or not a neurotoxin, metabolic or brain disease is at fault. More funding and increased general support are both needed to further elucidate the cause of this debilitating and pervasive disease.
+IxJessexJamesxI Can ET spontaneously go into remission?
Yes it can, because it did with me. Several years if I remember correctly. I worked on my own, doing work with my hands 8 hours a day. A stressful time. When I first started my hands ached with the unaccustomed exercise. After a few weeks the ache subsided. You could seek the same solution, but it's a very time consuming lifestyle
charles marriage your hands ached? That’s not ET . You had pain not ET.
It's exactly like 1:17 in my right thumb(not in left). I noticed it today and googled it and found the term
But, it is happening when I am concentrating on it otherwise it is not happening (most of the time)
Can someone tell me something?
Will it increase? Will my right hand will shake in future?
Thanks in advance
Why aren't you researching CBD oil....only thing that works!
Thank you for this. I'm a college student and I've had it since I was about 10. Some days, my tremor seems like the only thing people notice about me. I usually don't talk about it, but sometimes I can't escape the questions. It isn't as bad now, but occasionally it gets to me still. We gotta stick together, everyone!
Hello Jamey. It has been 4 years since your comment. Have you been able to find a significant other?
I'm 78 and started getting ETs about 5 years ago that i never had before until after going through some stressful circumstances.A trick i taught myself when eat something especially soup, i always use a spoon never a fork. I pick up the food from my plate or bowl with my spoon, Turn my wrist slowly inward as far as i can Then raise the food or soup to my month. This method when eating has helped me cope with my hand tremors. Also slow deep breathing opening both hands while touching all fingers together with one another, also helps some when i get a little nervous. Hope my suggestions can help anyone with this very bothersome neuroiogical health problem, and i stop taking meds except for one for my slight blood pressure, because all meds have many side affects, so I now believe that meditation is better than medication. Thanks for this ET video i'm learning more and still can write ok if i print or sign my name slowly. 11-16-23
Does anybody experience there mouth tremor when smiling? It happens to me all the time which leads to me having social anxiety because I'm scared people will notice it. I don't ever want to leave the house because it affects me so bad.
Yes, I have that problem as well. It is the reason I hate pictures. I think anxiety is just a part of ET. If you read other comments you notice a pattern of anxiety it pretty normal. I have a lot of social anxieties. I just keep trying. People will and do notice all my tremors. Train yourself to ignore the people who notice. If they say something to you, have a pre-planned answer ready. That makes it easier to move on. Good luck!
YES. when people talk to me i smile back and my mouth starts to twitch, and at that point i get really anxious and my smile turns into a half smile half disgusted look
sportsfan6554 I have that too... i can’t tell if it’s the tremor that causes social anxiety, or social anxiety that causes the tremor. When i first got it my thoughts didn’t change though. It was just the physical shakiness that came, which lead to social anxiety, so i’m unsure, but you’re not alone (:
Sometimes I feel like I can't form words... my ability to speak is affected and my mouth feels wrong.
Yh i thought i was the only one who has smiling tremor i have it in my whole body
That one lady is breaking my damn heart. My goodness.
"I'm useless" That's sooo sad :(
@@dhill05 i feel the same way as that old lady because i have had essential tremors since i was born. I don't really eat anything because it's Embarassing as hell. It would be better if i wasn't Alive. I'm only 17
@@ilartsu6072 Don't say that. There is always a reason to live, even if you have a debilitating health condition. Especially at 17. That's still really young. You haven't even experienced adulthood yet. I'm 25 and have super sensitive ears from damage caused by loud noises as a child as well as constant tinnitus (ringing in the ears). Most noises nowadays that aren't even loud to regular people can irritate my ears, even something as simple as an air conditioner if it's left on for long enough. Certain sound frequencies are worse than others. But I don't let it stop me from living my life. Take care of yourself and don't mind what others think of you. Different forms of therapy are good ways to help you think positively. Or finding a hobby that makes you feel better about life. If anything, your essential tremors make you unique. Hope this helps.
I have functional movement disorder and tremors and it is so sad and it ruining my life 😥
@@ilartsu6072 I have had essential tremor since I was a teenager so over 40 years. I have good days and bad days. I only work 17 hours a week because it wears me out trying to function. I do home care for seniors because I shake too much for other work and now I can no longer do a lot of things... like I wouldn't be able to feed someone or brush their teeth... can barely do it for myself some days. It's random so that also affects being able to work. If I have a bad day I can't call up work and say, not today. So I am managing okay with my schedule now.
It really messed my life up when I was younger because I worried so much about what people would think.... destroyed my self-esteem. I figured everyone would think I was an alcoholic or drug addict or something.... Now I am older and don't worry so much about what people think. I just put it out there and tell people what I have so I won't have to worry about what they think. God Bless You, and remember that everyone has their cross to bear... none of us get through life without some struggles. This just happens to be ours and we have to make the best of what we have... count our blessings and love ourselves and look for the beauty in the world. And sometimes just get mad and curse... heh heh. And keep your sense of humor.
I have dealt with tremors since sometime in my teens, I'm 58 now. My right hand is severely limited, and I can no longer write with my left hand. I have always engaged in activities that require dexterity, mechanics, woodworking, electrical work, and etc., I understand the frustrations. My advice to anyone is, don't ever let this define your value as a person, because it is not your fault. It is just another challenge life has given you. Hold your head high, and when someone asks be truthful, there is no reason to be ashamed. You didn't chose to have this affliction, but you most certainly get to chose your attitude towards your life.
Hello Don. Thank you so much for sharing. Just out of curiosity, have you had any children, and if so, have they inherited it?
I just got diagnosed after 30 years on trying to get doctors to listen to me. I've had this since I was 17... it has affected my life greatly. I don't have my drivers licence because "I was to nervous", had to change career (I was a jewellery maker) because my hands shaked to much, etc. Was told I was to nervous of a person many times... even if I didn't feel it. It has gotten a little worse lately and finally got a doctor who listened to me. I'm taking beta blockers which help me so much, it pains me to know that I could have gotten help much sooner.
When I was in high school I started with the ET symptoms. At first I thought it was just stress or that I was shy and because I was being bullied at that time and I was just anxious. A few years later even tho I didn't tell anyone the symptoms were getting worse and somedays I could barely hold a bottle. I decided to talk with my mother and we went to the neurologist. I was so nervous and afraid that something was wrong with me. Their diagnosis was ET maybe for a hereditary reason. I was only 17 years old. Now I'm 23 and I'm still figthing with medicines and treatments. I'm a bit lucky because my ET hasn't got that worse with the years (just a bit but it's okay) I'm still afraid on what's next and if one day I will wake up with more symptoms like my head is starting to shake sometimes or my mouth. I talked to my neurologist and we are still trying to look for a good treatment because it seems that most of them doesn't work for me. Sometimes it's embarrasing to do the usual tasks like going to buy the groceries or paying, going out for dinner or trying to do an exam. Some of my friends do know my "issue" but they just think that sometimes my hands shake a bit and nothing more, gladly they don't judge me. I have been searching support groups or associations in my country (Spain) but I can't find anything and is so frustrating I just want to share my thoughts with other patients and be able to support them too!
We are all in this together and someday I hope a cure can be found
+liliansinistra meds never really worked for me. you don't need them by the sounds of it. Xanax, magnesium,zinc might work. ET progresses v slowly with most people. just move on. not the worst disease in the world :-)
+ron craven I don't like to take meds anyway so it doesn't bother me at the moment, as I said I still can have a "normal" day to day routine and so on. Of course there are worse illness and issues but it's a disorder like the others but I get what you mean :)
+liliansinistra Thanks for reply Lilian. 2 buddies and I have it from an early age(me 6). I'm not a big fan of taking meds either. For every action, there is an equal and opposite reaction and all that. A few drinks and maybe a Xanax if needed though is grand. weddings,presentations etc etc. i'm 43 now and so are my two buddies. I have it the worst of the 3 of us but I can still function pretty good. ie work,sport, social etc etc etc. hasn't really affected my life too much. hasn't really affected my 2 buddies lives at all from what I can see. it doesn't progress fast with everyone. mostly v v v v v slowly. or else me and my buddies got v lucky. just be healthy and ignore the disease as best you can. my other friends think my ET is funny and I suppose I do at times too :-) ET does deserve more research though. no one ever seems to know anything about it for such a common disease
My situation is same i am suffering ET my child hood days now I am 28 years but not stop my disease i am use english medicine and homeyo medicine but no use
There is a new procedure as of 2016 Sunnybrook Hospital Toronto Canada, that uses ultrasonic mri to create a lession at the vim thalamus. This stops the tremor, over a thousand successful non evasive procedures. My daughter has it and has had it for years. She now has full clinical depression and our family is broken. Hoping our slow system will get her this treatment.
I'm 21 y/o and I start to shaking when I finished my diploma program. I began to lose self-esteem as the tremor effect my daily activities. Moreover, I feel very tired with no reason. But luckily, my tremors is not observable enough by the others. Only a few friends know about this thing and they keep supporting me... GOD BLESS THEM!
Did you find a partner?
I'm struggling too. My head shakes constantly. Even picking my daughter up from school is hard. I just want my life back. It came on 3 years ago and I've completely lost who I once was.
Dids your head shake fast is it yes yes or no no or both and Side to side
Sorry for asking but, are there any signs that your daughter inherited this condition?
My head shakes so much it’s embarrassing
i just wish someone had cared when i was like 5 or whatever and spilling tea and shaking cameras. i wish someone had noticed and helped me and cared.
we care
Same here
I went through the gauntlet of medications and then i went to a neuroligist. They casually mentioned DBS. I went to see the surgeon, set the date and never looked back. I recommend this as it is a life changer. It has been 10 years and i thank the stars every day.
Hello. Just curious, have you had any children and if so, have they inherited the tremor?
@@A_Box one of my daughters has it. at least i can guide her as far as treatment goes.
@Дмитрий doing great. I had an mri done so the dbs had to be turned off. All i can say is such an evil disease. When the dbs was turned back on even the people working there could not believe the difference. Life changing. And i work in the electronics field.
I don't remember not having ET. I am now 60 and am having Botox for my arms, hands and fingers. There is a slight trade off because the Botox also weakens the muscles. I can type now, which is great. I got to a point where I could not type at all. Over the years I have learned not to be ashamed. I realize that people are ignorant of neurological and mental health issues. Be Well All..................
I've had this since I was teenaged and am 62 now. Some days I can type okay and others not at all... its random. What you said about being ashamed reminded me of a joke because I too used to feel so embarrassed... so here's the joke: When I was in my twenties, I worried about what people thought of me; When I was in my thirties, I stopped caring what people thought of me; and when I was in my forties, I realized nobody was thinking about me.
It actually took me until I was in my fifties, but I really don't care too much what people think. I can go to a restaurant and used two hands to eat my hot and sour soup and phooey on anyone who notices my struggles... and if they do, they probably just feel curious or compassionate.
@@carolf9302 Have your children inherited the tremor?
I also have essential tremor and sometimes it feels terrible, but guys, always remember we are fighters and nothing can stop us from being great.
💖🎉
I’ve had it since I was a child, everyone from my dads side has it (I’m 29). Mine is not particularly incapacitating but made me struggle to learn to write properly, my parents didn’t connect the dots until I was older, years after getting scolded for having unreadable handwriting lol it’s really frustrating when people comment on it. Like, yes, I know I’m shaking. No, you’re not making me nervous 🙄
My mom has had ET for years and it has gotten worse with age. So she told her doctor and she was prescribed Primadone it's an epilepsy medication, she takes 1/2 dose, she hasn't experienced any side effects, and she says it has been working great. I just wanted to share that.
How old is urmom
Is there any device to help
@@loispozsar2965 she now has a pacemaker
Treatment plz
This is the first video I've watched since I was diagnosed. It immediately made me feel not alone.
How you are doing now ?
Good to see this on RUclips I’ve had mine since 6 years old and suffered a lot throughout school. It effected my speech and hands now it moved to my head which is even more noticeable and makes me anxious
I am 23 and I was diagnosed today :/ It’s very light, it can only be witnessed if I for example hold a phone in the air showing the screen to someone, or point a dot in a map using a pencil trying to stay still but what worries me the most is if it gets worse. For now it’s still acceptable but I’ve seen cases that sadden me.
I'm 18 and in the exact same boat. It's shit, as of right now it's bearable and I hope it stays that way but as soon as I notice it getting worse I'm going to see what I can do about it
I'm 24 and I feel the same way! Holding a phone and taking a pic for someone gives me so much anxiety now because they may see me shake. It sucks.
U there🙁
How are you doing now ?
@@nadiaparveen7710 I hope everyone is fine
Thank you for making this video! I was diagnosed with this condition recently. We need to spread this message to more people so that they can understand us. I feel real bad for the old lady in this video hopefully she gets the help she needs.
have you heard anything about mrgfus?
To anyone who is watching this video in 2024, please don’t stop here because there are several effective tremor management solutions that have been made available to you since this video was created. From medications to deep brain stimulation surgery to the latest noninvasive ultrasound treatment, you need to explore these options with your doctor. I’ve had ET for over 20 years (diagnosed at 30) and have had quite a long road in employing different methods, including seven brain surgeries as I experienced complications with DBS. Technology has improved and the quality of life I obtained was worth every stumble, medication challenge, wire breakage, and device malfunction along the way. I don’t regret anything for the life I’ve been capable of living due to advancing solutions in Essential Tremor management. I have also found purpose in sharing my experiences and educating others on ET. Keep spreading awareness and please don’t give up. ET does not define you, and with or without tremors, you are a gift to this world. ❤
To the dear woman who quietly said: "I feel so useless"... I long to wrap my arms around you in a comforting loving hug...Bless you & the others who are suffering
I have this ... I'm 53 and I've had it since my teens... thanks to you all so much for sharing ... you are all awesome.... even the small things make me crazy, like going to a bar and having to get my wife to carry the drinks from the bar to the table, so I don't spill too much .... peas and corn are the work of the devil! Be kind to yourselves ... peace :)
Hello. Sorry for asking but, have you had any children? If so, have your children inherited ET?
thank you
as a teen with essential tremor this is helpful because so many people point out my tremor and it really is embarrassing…. nice to know it’s not just me.
This really affects my voice alot, even though I'm not nervous it would still seem that way to others beacuse if my shaky voice, they would often tease me that I sound like I'm about to cry whenever I recite in class.
Don't let it bother you. I would rather have essential tremor than some deadly form of cancer.
Might I ask what country you live in?
@@luckyj.ferguson6308 philippines
@@luckyj.ferguson6308 the USA
The reason I asked is, for my self, I noticed if I speak with a British (English) accent I find it easier and lighter than with the typical North American accent. The reason being because they don't open up their throat all the way to make sounds. Keira Knightley explains this nicely on s dvd feature from "the straight Jacket", I can't remember if that's the title or not, it stars Adrian Brody. I'm not sure if that helps. I also think I learned or adapted to speak using my vocal folds (vestibular) instead of my vocal cords. According to my parents when I was first learning to speak my speech was fast and erratic. I'm thinking I adapted to slow down my talking. This doesn't shock me considering that I controlled my sloppy writing by more or less drawing my letters and resting my hand on the paper. No one at the time knew I had Tremors and my Father demanded neatness. You see my condition wasn't diagnosed until I was 19. I still can't believe I had to play the clarinet, which I guess wasn't too bad as long I was sitting down. Anyway getting back to the point, experiment with your voice a little and see if there are any accents that do help, sometimes distraction from yourself also helps with the Anxiety of performing for a crowd.
Either way, take care of yourself.
I am 71 with Hashimoto’s and have had hand tremors for about 2 years now. What is also troubling is that when I get up in morning or get out of car, etc, my teeth chatter uncontrollably. I am thinking that might have something to do with changes of position from sitting to standing and vice versa.
It's kinda strange and yet somewhat comforting to see all of these other types of people, with similar experiences like your own. Just another example of how we are all, truly the same, even though we have somewhat different exteriors.
My Utmost Respect and Admiration to Each and Every One of You.
Like many of the challenges that have faced humanity in the past, we will resolve this issue at some future time.
Cowboy trio the VA gave it to me. It is fantastic. It’s a bracelet ask your neurologist.
Sorry about that Cala trio
As a 16 year old, it's nice to know that there's others in the world that are similar to me. Most people make fun of me for it. People tend to stare or tell me that I should just "calm down". It's hard to explain that I just can't stop.
Do yoga (mosi hasanam) only way to control this shaking
As an artist I can relate....ET makes it nearly impossible for me to paint landscapes and animals anymore....since I cannot control the tremors in my hands. It's very frustrating not to be able to do the main thing that accounts for my income. I have had to switch to painting abstracts and other contemporary art forms....so it's been like starting all over again.
That must be so frustrating. And I felt sorry for myself because I don't have a calling in life... but to have a calling and have such difficulty fulfilling it would be harder. I wanted to have a career where I could make a decent living so I went to school and was going to take radiology tech, but shaking stopped me and I had different random jobs... now I can only do in home caregiving... where I really just clean and make food for people because I can't feed or brush teeth or anything really caregiving because I shake too much, much of the time. It's random. Good days and bad. I hope by now you have mastered your abstract and other art forms and are doing well.
have you heard anything about mrgfus?
I also had to stop doing my job I did high-end auto restoration painting and pinstriping so I had to retire early so now that I am retired I love fishing but I can't do that I love going out to eat once a week and I can't do that very depressing very depression I sense have given my life to the Lord and I truly believe that's the only reason I'm here I mean I was that bad
I empathize, Larry. I know this is seven years late. I've had exactly the same frustration because I now find it hard to draw and paint and enjoy what I am doing because it is a constant struggle. I think what annoys me more than anything is that tremor is in the family, my grandmother and my uncle had it, it skipped my mother altogether - who couldn't care less about art one way or another - and landed on me instead. I spent years caring for her as she got older and not long before she passed, my tremor developed. I now have all the time I could want to draw and paint and I have this damn thing in the way. How have you coped over the years? I teeter upon depression and get bored silly and frustrated because these stupid hands don't cooperate. Drawing used to be a buzz and a meditative. The tremor doesn't manifest except when I try to write or do art. Any other activity and it doesn't notice at all.
My husband (67) started his hand tremors two years ago after his first heart attack, as noticed by an acquaintance who is a retired doctor, his own GP did send his for Parkinson’s tests but the consultant said it wasn’t Parkinson’s. We’ve also told his GP about hub’s declining memory and increasing anxiety, but because he ‘passed’ the ‘remember this address’ test (though not all of it) no further investigations are being pursued. We really don’t know what else to do/which way to turn, he/we don’t want him to be ill, but we are worried he may be missing out on help to stop him getting worse
4:34 What she said here made me feel really sad for her.😢
I've had this since I was a baby. My father and grandmother had it too. When I was a kid I didn't know it was a neurological disorder, I thought I was just insecure 😢 but I wasn't. People made fun of me and told me every day not to be nervous. It's like they brainwashed me into thinking I was nervous and weak until I Believed it.
The young lady at 4:26 broke my heart. I hope she got successful treatment. ❤️
I have them and the neurologist just keeps prescribing different medicines and it don’t work. I don’t think the doctors know what they’re doing.
Thank you for sharing your stories. I'm a medical student about to do a rotation in neurology and am hoping to learn more about movement disorders and how to treat them.
I cried watching this, I haven’t seen many people with my problem. I break down sometimes because im not able to drink something properly. I know it isn’t common for a 17 year old either but I have been with it since birth. Everyone I meet I have to explain to them my entire story with shaking. I hope for something greater within my lifetime
@Дмитрий still same! Nothing has changed.
I wonder whether I’m crying for them or for myself..
have you heard anything about mrgfus?
I've had essential tremor since elementary school. It wasn't diagnosed until I was in my 50s; I am now 75. I have tremors in both hands, head shakes, and a deepened and shaky voice. I used to try to hide it, which made it worse. Now when I first meet someone I tell them right away about my tremors, head shaking, and why my voice sounds like I'm nervous. I took Primidone, and it worked, but after I had a pulmonary embolism, I started taking Eliquis, and had to switch to Propranolol. I am considering having MRgFUS, but I haven't talked with my doctor about it. Has anyone here had the treatment? Did it work for you?
I have had essential tremor since I was a teenager so over 40 years. It gets progressively worse. I have good days and bad days. I only work 17 hours a week because it wears me out trying to function. I can only do home care for seniors because I shake too much for other work and now I can no longer do a lot of things... like I wouldn't be able to feed someone or brush their teeth... can barely do it for myself some days. It's random so that also affects being able to work. If I have a bad day I can't call up work and say, not today. So I am managing okay with my schedule now. It really messed my life up when I was younger because I worried so much about what people would think.... destroyed my self-esteem. I figured everyone would think I was an alcoholic or drug addict or something.... Now I am older and don't worry so much about what people think. I just put it out there and tell people what I have so I won't have to worry about what they think. To everyone who has this: God Bless You, and remember that everyone has their cross to bear... none of us get through life without some struggles. This just happens to be ours and we have to make the best of what we have... count our blessings and love ourselves and look for the beauty in the world. And sometimes just get mad and curse... heh heh. And keep your sense of humor.
thank you... in the same boat...did construction for years... cant hold a screw or nail straight anymore at 46... it hurt my social life too... but ive accepted for what it is . bless you too and ty again :)
have you heard anything about mrgfus?
Hello Carol. Sorry for asking but have you had any children? If so, have they inherited ET?
Has anybody else noticed this? My tremor always makes my hand shake at the same rate/frequency. Maybe I've noticed this because I'm a musician. I don't think my shaking frequency ever changes....bit like a metronome set very fast.
Me, too!
I was so blessed and lucky to be able to partake in further educating people about Essential Tremor. Yes, I am one of the people in the video. Can you spot which one? :)
hi hannah i guess your grown up now.
How are you managing now?
Hello Hannah. Is your tremor trauma related? I'm trying to better understand my own.
I have anxiety, and I always thought that was the cause of my shaky hands. It wasn't until my late twenties that my great aunt on my dad's side off-handedly mentioned what it was, and it was probably genetic. I just figured her and my grandmother's shaky hands were a sign of age. We need more awareness of this condition.
It breaks my heart iam sorry for all of u who have this essentail tremors
It's SO good to know I'm not alone. Reading everyone's comments is refreshing. I was diagnosed a year ago and yes, it's totally annoying lol and embarrassing especially when you can't even put your PIN # at the checkout counter! This video really made me happy to know that there are others out there that go through the same thing, we all are awesome and strong and God bless us for that strength! 😊
@@user-kd8rg6dx6e after proper medication 6 years later improvement!
Essential/familial tremor runs in my family. I've struggled with it quite a bit myself, especially as a music-lover and pianist. It gets much worse under stress or when I haven't eaten enough, but I've found some supplements like Magnesium do lessen the severity or make it less noticeable on the daily. I've seen the way my dad and my grandpa shake and can barely do anything that requires precision; I'm scared, and I hope a cure is found. Or at least some medical solutions. I've lived with the embarrassment and denial that anything was actually wrong with me so long that it's almost a relief to know it's not just in my head, nor does it define my abilities. But annoying it most certainly is. Glad to know I'm not alone.
Me too Amanda. My profession is in jeopardy. My social life destroyed.
Hello Amanda and James. I am new to this and grappling on how this will impact the decision I will make for my future since I am in my early twenties. Have any of you tried to find a significant other? What are your thoughts on the ethics of wanting to have kids some day but also having this condition?
Just came across this and it’s very nice to know I am not alone. I had to leave work today because my tremor was so bad. I’m 32 and was diagnosed around 16. I started shaking in junior high and can’t stand when people ask. I get so self conscious and insecure still. I was so embarrassed today, it got worse so I just went home 😔
Have you investigated deep brain stimulation (DBS) surgery. I have had this surgery and it stops my tremors. No pills. Ask your neurologist about this--it is a lifechanger.
Have you had any children and if so, have they inherited the tremor?
Starting noticing my essential tremor at 17, if I held a pen in a certain way my hand would just uncontrollably start shaking. I’m 22 now and it’s gotten a lot lot worse. Because I’m literally fine it’ sucks when people say “omg you’re shaking!” “You’re shaking so much!” “Stop shaking” even my mum and dad even though they see me shake every day, they still point it out I’m like YES! I KNOW! I JUST SHAKE! Christ. Just because I can’t eat a bowl of soup properly or put sugar in my coffee or put mascara on ugh
While having dinner and someone asks u to pass smtg to them.... its the most tense moment ever. i feel u
I was diagnosed a week ago. I've been going to doctors for years. It's a relief to know I'm not alone and finally have answers.
I have had it since I was 6 years old. My hands shake and it's so embarrassing when people gape at me when I try to eat something with my spoon. However I am not giving up hope as there's a new treatment known as Focused Ultrasound for ET. It's available in the UK but not rolled out on the NHS . At least something is there to treat it!!
Thank ya for watching the video! It means a lot to me.
how are u now?
I was diagnosed recently at age 38. I first noticed around 15, but since it’s not my dominant hand I dealt with it. Until these past few years it became more noticeable.
This amazes me. My dear grandmother shook a lot. I loved her, and she was beautiful to me, all wrinkled and shaking.The shaking was an interesting part of who she was. I liked her shake. She never complained or acted like there was something wrong. She rattled her tea cup on the saucer, and sipped carefully. Her head shook, her hands. She knitted, she lived alone. She did everything. She walked for a mile a day. I would not be ashamed to have a familial tremor.
living with this is a different story, if you had it, you would know the struggles and let me know then if you would be embarrassed. All the people with it who are embarrassed can't be wrong that it's embarrassing.
Dids She's shake fast
Oscar Rey I’m sure that nowadays people would fight for their right to be miserable and embarrassed, now that we have replaced the love of God and the kindness that He gives us, with social justice and endless faultfinding.
Crystal Pifer if I remember correctly , she shook a lot, and fast. And she never seemed frustrated or disabled by it. She was more sorry that she was a poor widow, but her children paid her bills for her pretty little home in the country.
@@pattysherwood7091 do u have it too
I‘m 28 years old and my hands had shaken since I was born,but it became severer when I had a traffic accident at 14 years old.I hate to have dinner outside and I am nervous other people noticing my shaking hands then it makes my hands shake more obvious...I support the IETF,and hope ET can be treated ASAP.
Having essential tremors suck, I got teased in school because of it. As far as I know, I've been dealing with this since I was 10 or 11 years old. I'm going to the doctors to see if I can get it treated, I hope it will go away.
Edit: I'm 15 and am still dealing with it
I have had essential tremors for around 15 years, but it was very mild and undiagnosed until about 5 years ago when it got much worse. I feel really bad for the people who are getting this at a really young age. Mine didn't start until I was in my mid 30ies. I thought this was pretty bad until about 3 months ago when I was diagnosed with myasthenia gravis and now, I have to hold my eye lids open to see. 😞
I was recently diagnosed with Essential Tremors, but I've been struggling with it since I was 3 or 4 years old. I'm 24 now, and the tremors have definitely gotten worse over time. Sometimes I find it hard to even get out of bed in the morning. Let alone, get through the day. If anyone could donate to the website at the end of the video, please do. We need a cure. Please.
Brittany Mercedes have you tried anything to make it better
Hang in there Brittany. I have had this all my life and I'm 55. This is my way of coping. I use humour loads of it. My whole family do. Embrace it. It's who you are. I also explain it to people especially at work. I do get the odd dickhead who makes the joke about "needing a drink", but I just tell them to go look it up. I now work in menal health and my clients like that I have something I struggle with as well. Make tomorrow the day you make peace with it and make it part of your life. Because it is :) good luck.
Thank you for this wonderfull video. Very well done and engaging. I was recently diagnosed with ET and this video makes me feel good and informed. I'm from Malaysia. God bless the people who participated in the video. Very nice of you to share your thoughts and insights.
just diagnosed with essential tremor! I recommend waring heavy rings, and watches to help find stabilization in your hands. I'm 22, no worries if you have it. There is medication available but be optimistic because it's not life threatening. Plow through it, do what you would normally do, and good luck!
+TO.C MUSIC Exactly!!!!!!!!!
ron craven lol
+TO.C MUSIC Haha, you are right though. I work in construction. The tools etc giving extra weight in your hands make the ET unnoticeable. I have it nearly 40 years so it beats trying to write for a living these days. although I can still write if I have to. just dread it cause of my shakes. you are right though. be optimistic. its not the worst!!!!! (not the best either!!!)
ron craven Cool man, I like that story. It's true, it's uncomfortable sometimes, however, I just tell people why I shake and their cool with it. Some people find it cute that I have it (I think they are being sympathetic) and basically my ET is a wing man. I more concerned about drowning in p**** than I am about my ET ;)
Now I'm 29. My grandma noticed that my hands are slightly shaking when I was 5 years old. And she told me to ask yor pappa to consult a doctor. But as a child I didn't take it as seriouly. But day by day every one used to ask me Why ur hands are shivering. Every one think that I'm scared and they used to make fun of me. When I was in college I diagnosed with ET. Even though the most painful thing for me is that nobody can understand this condetion even my parents.
I know Weedborn has the greatest CBD supplements around.
I was born with ET and omg the terror of living day to day being teased by kids about what I couldn’t help with was terrible. Even now, I have to deal with comments about being supposedly nervous, scared, or even tweaking and it sucks knowing it’ll just get worse with daily tasks. But, I keep going cause I know that’s what people who love me would want me to do. To everyone reading this, hang in there. Love you all ❤️
i am 16 years old and 3years before I started to notice that when I meet my boyfriend I use to get nervous and my head use to shake so bad unknowingly. Its been 3years and I am suffering from this, I feel nervous all the time and my head use to shake. Sometimes I really want to give up on my life.
Bikashita Psychia I’m so sorry. I went through this too and still do. It can be so embarrassing to shake in front of those we want to leave a good impression with. We want to be present but all we can think about is others seeing us shake. I hope you don’t give up. I hope you see that there are still things you can try but first have you been officially diagnosed? You must start there first. Always research and read comments, learn all about this disease! And find a way to manage stress as stress makes tremors worse. I have cervical dystonia and stress can affect me so much.
Also stay far away from processed sugar, caffeine, and gluten. Trust me on this it’s a night and day difference:)
Thank you! That is great news to hear! :D Thank you for watching. :D
I'm 64 now and it has gotten worse. I can remember as a teen in high school having to get up to give an oral report or a speech and being nervous anyway but with ET it was 10 times worse. You could see the other kids laughing and pointing to the point where i couldn't do it. My handwriting was really bad and I was graded accordingly.
Anytime I have had to go to the doctor's office (or anywhere else) i cannot fill out the forms without my wife being there. If I go alone and ask them for help they think I am illiterate or retarded and don't understand what i am trying to tell them.
When they draw blood and see me shake they ask if i want to lay down so i won't pass out.
A chopped salad or peas, soup or picking up a drink is a real embarrassment unless you are with people who understand.
i have had people who think i have the DTs if I try to pick up a cocktail and have to use 2 hands to cancel the shaking.
It is good here to hear the testimonials of others who have similar issues and suggestions how to combat this problem.
Thank God for the computer and keyboard
Try coconut oil and bacopa. I have a friend with Parkinson’s. In one month she went from not able to think write drive cook wanted to die now she does everything she used to do as a normal everyday living ..needless to say she is elated
@@jackieellison4596 coconut oil?
Hello breckandy, have you had any children and if so, have they inherited the tremor?
@@A_Box 1 child who is 49 now and he has mild case in his head and his upper body sways a bit. I haven't seen it in his hands as much as I have it. I have the slight head nod as well. I think mine is more intention tremor. I come from a family of 10 and a quarter of them have it to some degree.
You can take propranolol (beta blocker) and stay away from coffee and alcohol.
@@breckandy I am just new to this and find it somewhat depressing. I thought I might be a good father some day but now I don't know whether having children would just be passing this onto someone innocent.
How does your family deal with the ethics of it?
I have had ET since about 40 and now I am 65. It's just my head. My grandma had it too. It gets worse as I get older. I try not to let it bother me but sometimes it does not let me forget that I have it. I have a supportive family and hardly get asked what is wrong. I think people are just used to it. I remember seeing the Hallmark true story about a teacher who had a severe case of Ticks and I
was amazed at how he and his coworkers and students handled it. I was inspired by the movie and after seeing it I had a different attitude of movement disorders then I used to. I can't remember the name of it but I'm sure it can be Googled. It is worth seeing!!!!!!! It's very comforting.
Your head shake yes yes or no no and side to side fast
The first time essential tremors entered my life noticably was when i was about 4-5 years old, and my father asked me why my hands were shaking. To me, i had never really noticed before, but my answer was "I don't know. that's normal."
I will be 31 years old in little over a week from now, and there has not been a day in my life that this has not effected me. I'm a pencil artist, but I still don't know what it's like to draw a straight line, or a circle. I have had all kinds of visits, scans, medications, and none of that has gotten rid of it. During elementary school It didn't bother me that much. But Middleschool, and highschool, there were constantly days I was bothered by guesses as to what others thought of me. Clearly if i'm confronted about something, and i'm shaking, It's because i'm nervously hiding something.
There was a few years of my life not too long ago where even walking was difficult. My legs would tremble, and I seriously thought i'd tumble to the ground. The floor felt like it was rotating, and sleeping at night gave me nightmares because it felt like the bed underneath me was breathing.
I don't know how many pencils i've broken trying to write my name, or how many cups of water i've spilled trying to drink from them. Or how many times i've had to ask a stranger, friend, or someone else to write something for me, telling them quickly "I can't write."
But what I do know, is that i've found that stress and anxiety has a very major impact on all of this. When i'm at peace of mind, not worried about a thing, they almost do not exist. That's the best piece of advice that I can give when dealing with this either yourself, or with someone else you know. Do your best to help yourself or them feel relaxed and at ease, and not to worry. It's been important for myself, atleast.
Luminaire Zeal i have et 5 years i am stress right now and its got worse my head shaking. do you think it can be minumum if i manage the stress. sorry for english i hope you understand what i want to say. and hope you answer me
I think if you can soften your stress, then the tremors will soften also. My tremors are always there, but they are worse when i'm stressed. If i'm relaxed, it becomes much more manageable, and sometimes not even noticable. Similar to all things in life, I think stress makes it much worse.
Me too...
When everything is normal there is no shaking but when I get anxiety or stress my hands will shake...
Me too. I embrace my ET with a sense of humour and now we get along just fine. I apologise to people who know me when making a coffee "if I throw sugar at you - feel free to throw it back". It makes it so much easier to live with. PS. My family won't let me talk with a knife in my hand lol - libel to accidently throw it at someone by mistake.
Hello fellow professional shakers :)
Just out of curiosity, has any of you found a significant other given that you have this condition?
I have this in my left hand and I hate it. It does help to know that others struggle with this. Some much younger than I. I first noticed it at age 40. I'm 45 now. Thank you for sharing.
I have had ET for about 20 years now but as I approach 57 it is becoming more difficult to function day to day. I have tremors in my hands, arms, voice, head and legs. Having it in the legs is rare but my legs tremble all the time. Sometimes it's so bad they seem like they are bouncing. I am even having a difficult time typing. I was a secretary for 30 years and this has definitely ended my career. If I get stressed out at all it magnifies 10 times and I feel like an out of control freak. My eyes twitch constantly as well. My entire body vibrates non stop until I lay down. I am finding it extremely hard to hold things now and I am tripping from time to time. Last night I broke down because I poured a glass of soda and then dumped it. I cleaned that mess up and poured a second glass and spilled that. I yelled for help because I just could handle it until I sat down and relaxed a few minutes first. It is very frustrating and embarrassing. I hope they can find a cure someday for this too. Take care all. We are not alone I guess.
Debbie, you are not alone. For most of my life I felt that something was terribly wrong with me! I did not understand the stress I was under caused a reaction. I loved dance and in college and beyond took and conducted classes in Ballroom, tap, jazz, etc. but always suffered from that terrible fear that this "shaking thing" would betray me. I am now in my 70;s and have trouble walking. . . .so depressed! Wish I had an answer for you. . . still searching. Lately I just stay at home and hate my life. . .I was always such a positive and active person and was always there to help others. P.s. my mother had this and after she passed I realize why she was the way she was~ She did not talk about her situation. I wish you the best in your journey and I'm sorry that I could not have been more helpful. This is (part)of my story.
Hi miss Debbie my head shakes too my is yes yes and no no what's your and is it fsst
It feels like someone just wrote down my story. This hurts
Hello Debbie, have you had any children and, if so, have they inherited the tremors?
@@A_Box so far they are tremor free.
I just want give that lady a hug! I'm so sorry for what you have to deal with and that it brings you so much heartache.
My friend has this but it's not this severe. Ignorant kids at school will always be like "What, you can't hold a piece of paper properly?" and stuff when she shakes and it really makes me angry but she's so strong she just rolls her eyes and laughs it off at this point.
Being in the late stage of teenagehood I can affirm that adolescents are the meanest yet stupidest people on earth.
I have had it for as long as I can remember, mum first noticed it when I was 5 and I dropped plates for no real reason. I'm 17 now and only just realized that other people have it because the only people I knew had it were either elderly or in my family. I often get asked why I'm nervous and even my family tells me to stop. I have found it worsens when I'm too cold, too hot, tired, sometimes when I have caffeine, if I'm stressed, around another shaker, and not had enough to eat. I have been diagnosed with chronic anxiety and depression so all I can say is be strong for whoever suffers from it. Good luck.
don't drink coffee. that'll worsen it. I just quit a week ago
@@yuske05 Well done! I have now noticed my brother and sister shaking when they havent been diagnosed and I think it is because my parents let them start drinking coffee. They wont listen to me that it will make it progressivly worse the more coffee they drink like it has with me 🥲 I only drink coffee two or three times a month now because I still love coffee 😅
@@eozfalloon1998 I was just like them. On the first day of the job I had to run laps outside premise to keep my high down as an attempt to not let my new coworkers think i'm a drug addict. in case you have doubt, this was completely necessary lol
I think I may be suffering from this. I've noticed that whenever I try to hold onto an object for more than a minute my hands will start to shake. At first, I attributed it to nervousness but it seems somewhat involuntary. I do have anxiety and gets stressed out easily so that's probably making it worse.
You’re not useless…I’m a neurological nurse and brain injury specialist and I have essential tremor from a TBI…long story…but it doesn’t make you useless…it does take patience and determination…but it doesn’t make you useless…I’m an old guy of fifty one…trust me on this…I’ve practiced nursing a long time…with essential tremor…and it’s fairly significant since my TBI…you can do things…😊😊😊😊
Is there any way to treat this condition ?
@@arthurleywin4307 beta blockers may help and there are surgical interventions for essential tremors …