Mom of a Type 1 Diabetic| DITL Day in the Life | Vlog 7 | Day in the Life (Jar of Fireflies)
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- Опубликовано: 26 янв 2020
- Day in the life of of a mom of a Type 1 Diabetic. My son has Type 1 Diabetes (T1D). Today I filmed everything diabetes related to give you a glimpse into how it affects our lives on a daily basis. From waiting on hold with Dexcom and Omnipod, to pod and dexcom changes, and of course plenty of bolusing insulin! You’ll hear parts of a very emotional talk between my son and I about his diabetes and how he feels about it, too.
No part of this video is medical advice or diabetes education. Always talk to your doctor about your diabetes.
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Contact / Collab: jaroffirefliesvlog@gmail.com
Filmed on iPhone 11 Pro Max
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That conversation between my son and I, 😭😭😭. He truly is so strong.
Hello from new follower and also mom of a t1d. This video is so accurate!! My son’s onset was age 13. He is now 23. Full time job most definitely! I’m enjoying your videos!
Love your name. I’m type 2
My nephew is also a T1D, and yes diabetis is a jerk. We all follow his numbers with his dexcom and it’s always up and down and juice box galore… 🤦🏼♀️
You have an amazing wee lad🌻
My heart broke when he cried. Poor little boy.
I had NO IDEA how much was involved in managing diabetes. He is such a trooper and you are so amazing too!! Thank goodness he can be at home for school and you can keep your mama bear eyes on him 🙏🏻
This video really touched my heart. I grew up dealing with several disabilities and lots of chronic pain. I was never allowed to say anything negative about it because that was dwelling and negative. Any issues became about how hard it was to have a child with disabilities. Your son saying I hate diabetes and you saying I hate it too was beautiful. Such a way to validate his feelings and support him. You can stay positive, be grateful for life, AND still have your feelings. Living life with chronic illness is tough, but you can absolutely still have a life. Again just beautiful way to normalize his experience and support him all day. You did what you needed to do, but didn't make it all about you. You Go Mom!
Thank you so much! This is so encouraging :) I really appreciate your comment.
I am a nurse and I don’t know that I could do as well as you with his diabetes. It is so complicated and requires a constant and keen understanding. You and your son are on top of it all. I am learning so much from watching your vlog, thanks so much for sharing your life.
Thank you so much for your kind and encouraging words! I appreciate it very much :)
Yes, Type 1 is not a disease I would chose to treat for myself, so you are tough for dealing with all the stress that never ends. I would find it too depressing and restricting to handle.
Wow! I knew diabetes was a lot to manage but never truly got to see this much insight… Thank you for being such an awesome mom and support to your son. He’s so brave!! Also, that convo was really touching. Ugh.
Thank you for your kind words!
I said it before and i say it again: you are such an inspiration and such a great mom. ❤️
Ida B thank you so much 💙💙💙
Amen to that!
i was diagnosed with type 1 diabetes when i was i think i was 6 years old. my heart breaks for your gorgeous little man, tell him from me he is such an inspiration to me as an adult. he has more strength then i could ever have in my life time. bless you all.
Thank you Anna :)
I had no idea how much was involved with type 1 diabetes. I have lived with chronic illnesses nearly all my life. One of the things I struggle with is all the decisions I have to make just to manage the day and this really stood out to me in your video! There is so much to be on top of and needing to plan ahead and know about food choices and activities it’s such a big mental load. You guys are amazing how you handle this as a family. It’s incredibly hard walking these type of health journeys and I believe it changes the way we look and function in our world. It has definitely given me insight beyond my years and an ability to do my job (counsellor) in such a way that I can provide options for I could do no matter how my body functioned and I am so glad I did that.
Your honesty about the hard days is such a gift to your son! I have been blamed so many times when I couldn’t do what others could and that being sick was a flaw I could somehow fix if I only tried hard enough. These expectations did so much damage to my body, mind and spirit that it has taken years of unlearning and giving myself grace to rest to nourish my body and to work with my body not against it. It has built in me a passion to help others particularly those who are left out or just don’t fit.
I pray there will continue to be advances in medical care that make our day to day life better and thank you so much for sharing this with us.
Thank you!
Diabetes stinks for sure! I have been diabetic for the past 15 years, I can't imagine having to live with it as a child or caring for someone with it. Sometimes you just want a day off of finger pokes, injections, lows and highs, and just being able to eat food without counting carbs. It can be so exhausting! I really liked when he said diabetes stinks, and you validated his feelings by agreeing with him. Sometimes just being heard and having your feeling acknowledged can make such a big difference. Loved Loved Loved this video, thank you for sharing. ♥
Just found your channel, loving everything! My husband was diagnosed with T1D a few months ago and it feels sometimes like the blind leading a 35 year old baby (very overwhelming lol) but seeing your DITL with your son is so helpful! Your patience and grace with him (and yourself!) is so inspiring, keep it up!
Thank you so much for your kind and encouraging words! And wow, thank you for sharing some of your story! Hang in there, I promise it gets easier! Big hugs!
I’m exhausted just watching how you navigate your son’s diabetes. You’re a warrior🙏🏽💙
Thank you friend :) My son is the warrior! :)
My oldest granddaughter was 5 when diagnosed. I saw my daughter go through this day in and out. My granddaughter is now 13 and manages mostly by herself with close monitoring by her mom. They are both my personal heroes. Good luck in you continuing journey to keep your child healthy.
Thank you so much for your encouragement! I appreciate it!
When I was a kid I was an undiagnosed asthmatic. As a result, I was ALWAYS the one who got strep throat and pneumonia and very other respiratory infection, because I couldn't cough the phlegm up.
I was resentful of my younger brother who NEVER got sick. It seemed so unfair!
My father, not exactly enlightened, said, "You're always sick!" as though it were a character flaw, which of course made it all worse.
So I would say your son has an excellent nurse AND an excellent psychologist who gets rid of the self-pity and resentment as soon as they rear their ugly heads and in a way that may be even more important than anything else!
I agree.
Oh my goodness. You're such an incredible mom. Your sweet son just broke my heart; he is so amazing!
Thank you for your kind words!
Dear Chana, I am enjoying your videos enormously - so informative and full of joie de vivre. This one was particularly humbling as you make important decisions hour by hour and remain good humoured throughout. I am so glad your son has the benefit of such brilliant technology and hope it gets better and better. X
Thank you so much 😊
My oldest daughter was diagnosed with Type 1 diabetes in 1980. Thye tested urine back then. You would put a small amount of urine and pill. The color of the color would determine the amount of inulin. It was years before it became easier. It is not easy being the Mothe of a diabetic. You are doing a phenomenal job. God bless you.
Wow that must have been a pain!
@@karbear26 It certainly was. My daughter became a Registered Nurse and worked with diabetes. She is happy to be able to tell them that she knows how they feel.
I'm 55 years old and have had T1D since age 7! My Momma didn't have all the fancy gadgets we have today. She micromanaged me well. It is a full-time job for a Momma. You're doing a great job!
Wow you have seen some major changes! I am grateful each day for the technology we have today! Thank you for the encouragement!
What was different then
@@tiffprendergast There were a lot of differences. There were no insulin pumps --- injections only, no way to continuously track your blood sugar. Also, a lot has changed in insulin and how it is administered. The syringes were huge --- the needles were larger and more painful and insulin came from animals. Today insulin is synthetic. Counting carbs was not even a thought. To find out how high or low my blood sugar was, I had to pee in a cup and then use a strip and have to watch for the colors to change. My mother was a drill sergeant in managing my diabetes. Waking a child up in the middle of the night for an insulin shot and a tinkle in a cup is not fun for the parent or the child. There are so many advances now and they have been transplanting islet cells on diabetics livers and in many cases "curing" diabetes. I don't know a lot about that technology. I hope that helps some.
@@Tameasa I am curious what has motivated you to keep going all these years? I understand taking barely enough insulin to stay alive, but the "good management" is something I would never chose. I know if you don't manage well you live shorter life, by I personally would be ok with only living to 40-45 if I did not have to deal with insulin more than twice a day. I believe in quality of life over length. I am just trying to understand the reasoning behind over viewpoints. Thank you!
@@emilypeel7063 Thank you for asking me your question. I will be completely transparent with you. I've not always been so motivated to manage my diabetes well. My mother managed it for me and many times her management of it was controlling of me. She worried about me constantly --- well into my adulthood and until her death. Of all the children, I was the one tethered the tightest to her apron string. Many times I thought she only wanted to control me and in my teens, I rebelled against that control by developing an eating disorder. So, managing that and diabetes put me at great risk --- and in my naivete and stubbornness, I caused a lifetime of health problems for myself. In 2009, and before my mother's death, she told me, "I only, ever wanted you to be happy." My health didn't decline rapidly until the birth of my son when I was 33 years old. Not long after that, I started on an insulin pump and then later a continuous glucose monitor (Dexcom). Since my son's birth in 1999, I have been in the hospital 79 times and have almost died several times. But, Emily, what truly motivates me to care for and manage my diabetes is my relationship with Christ. I believe God numbered my steps before there were any, as the Scriptures say. I am motivated to be kind to my body to please Him and in so doing, the benefit for me has been to see my son (now a State Trooper) be well and happy and to have had a long marriage so far with my husband. You didn't say if you are an insulin-dependent diabetic, Emily, but if you are be kind to your body for as long as you have it. You will not regret it. I don't know any diabetics who have always done the "right" things to manage their diabetes. I lament to my endocrinologist that I am a "bad diabetic," and he says, "I have no "bad diabetics." He understands that it is so very daily. There are easy days and then not-so-easy days. The holidays make it especially challenging for all diabetics. I hope that helps you understand my motivation --- I'm sure others may have a different one. We are all so unique in every way. God bless you and happy holidays.
I knew there were new things to help with handling all that, but, you made it so clear, thank you. I will be praying for young firefly to brave it through his life. Hopefully there will be a cure in his lifetime. You are a very strong, loving mom. ❤❤❤❤❤❤❤❤🌹
Thank you Amy!
I’m an adult t1d on the pod…this was so relatable!!! Hang in there Chana…you’re an amazing mom!
Thank you!!!! 💙
wow you are an amazing mom!! I got mine type 1- 31 years ago, got used already years ago to all of the needles and the blood and all... but still couldnt hold my tears when I heard your sweet sweety crying... good luck and good health
Hugs to you! It’s a jerk of a disease but it makes us STRONG! 💪🏻
Wow. This video has given me a new appreciation of the life of my aunt who was born in the 50's and diagnosed with Type One as an infant. There was no technology then for monitoring, other than finger pricks, so the entire family was taught to recognize symptoms of a blood sugar crisis, even the children. My first time pouring from a jug was OJ for my Aunt L (FYI it made a mess and no one cared). She lived well into her sixties and had two healthy children, things she was told were impossible. My Grammy, and later my Uncle, were champions for her, and she was a superhero. It's a scary disease, but you have your faith and science on your side. You're a great champion for your son and he is a little superhero.
Oh wow thank you for sharing! That story gives me so much hope especially with all the technology we have today. It’s a scary disease indeed
I used to have a neighbor who had a very close friend whose daughter had type one diabetes. Her friend had a high profile job where she made six figures in her salary. When she found out that her daughter we need her full time she immediately quit her job and her daughter and managing her diabetes was her full-time job. I never realized how involved it was when having a child with type one diabetes.
Oh wow. Yes, it’s a full time job in itself.
This brings back so many flashbacks! Been T1D for 20 years now. Although I got my insulin pump when I was 6, the technology with CGMs was so limited. Didn't start actively wearing my Dexcom till college! I don't know how we did it! Diabetes does suck, and I wish your son never had to receive this diagnosis. But I hope it brings you comfort in knowing that he will be one tough kid and will be able to handle anything life throws at him. Diabetes changes your perspective on life, and that's something I'm so grateful for! Sending you stable blood sugar wishes!
I absolutely love your positivity! You are so awesome! You’re right though, it does change you. It changes me as the caregiver too. Hugs to you! You rock!
What an immense amount of work to keep up with your son's diabetes. My best friend's granddaughter has just been diagnosed so I will share this with her for education.
It is a lot of work, but I’d do anything for my kids! It’s totally worth it for him to be able to oaky and eat whatever he wants :) Thank you for sharing! I hope it helps your friend :)
Thank you for sharing this. I can’t even express how much this has helped us.
I’m so glad! Thank you for watching!
You're an amazing mom! Your compassion with everything is an inspiration.
Thank you so much Maria!
I can hardly express how much I appreciate this video...the truth of being the Mom of a T1D. My family’s day-to-day life changed when my youngest son was twelve. Nearly everything in your video perfectly depicted our experience. For example, while still in the hospital, at the time of diagnosis, my son said, “I didn’t want this to happen to me”. We hate T1D, too. Like your courageous son, mine was also brave and mature beyond his years. While managing this disease (and often feeling as though it ‘’manages’ us) and the minute by minute attention it requires we made every effort to do exactly what I watched you do...every single thing it takes to keep those numbers in check. You are an inspiration and example, even to this mom who is a bit further along the T1D journey. I sincerely believe that the way we care for them, during the years until they can do so on their own, sets the tone for them to manage it with the same attention...vital to their well-being.
May I ask how old your son was at onset? Did you begin by using syringes and vials? If so, were there any obstacles when making the transition to pods and sensors? If so, what were they?
Please feel free to not answer any of these questions. I thank you for this video, just the same. 😊
Huge hugs mama! Thank you for sharing part of your story. My son had just turned 4 at DX. We started out as MDI but moved to the pump at 6 months. I didn’t really have any obstacles other than they made me wait six months for the pump lol I was so eager to be able to have that tech!
Thank You so much for this video!🙏🏼. My dad was a type one diabetic. I grew up in that reality. The of the true magnitude of the reality of this is difficult to fully describe in words in the way your video did.
I appreciate you. Stay Blessed 🙏🏼
My daughter is a T1D too. She has been since age 4. Now 16, soon 17! This journey has been sweet and sour. I see you and I know how hard it is. Sending you many blessings and best wishes!
Thank you!!! My son was also diagnosed at age 4, he’s 8 now and our 4 year diaversary is coming up soon
I’ve been watching a lot of your videos recently and I’ve just stumbled upon this one. Your son is truly so strong and you are an amazing mom for staying on top of everything the best you can. Watching the part where he says that diabetes stinks broke my heart. You got this little dude ❤️❤️
It broke my heart too 😞❤️ He is such a little super hero though!
You are a strong mama! You are rocking this mom thing! Thank you for sharing what you go through every day. It is interesting to see how much work goes into this. He is such a strong dude!
Thank you so much! I really appreciate your kind words
Wow, thank you for sharing this. What a struggle you through everyday. You are both so strong!!
JewishEducationatHome thank you so much! He is definitely one awesome kiddo!
I like how you give your kids privacy in the videos by not showing their faces. A lot of parents seem to film their kids without their consent, and then they might grow up and not want to be all over the Internet.
Thank you :) That's how I feel too, like I don't want my kids to be all over the internet without having any say (Though they want in the videos so badly now, I doubt they will feel that way down the road)
Amazing lady ...taking it all in your stride !! Xx
Thank you so much! 😊
My 3rd child (of 9) was diagnosed with T1D 25 years ago on Thanksgiving Day at age 6. ❤ She wouldnt speak to me at all in the hospital (husband was out to sea on a submarine at the time). In hindsight I think she thought it was some kind of punishment. Once she asked me when her diabetes would go away. Broke my heart. 😭
Eventually we put her in diabetes day camp and later overnight diabetes camps...best thing ever!
I really love the tools available now!! Her first bgl meter was huge and took a huge drop of blood and a full minute to count down. She would take 5-10 injections a day depending on if she was sick or not. Finally got a pump (she's used almost every brand now). CGMs weren't a thing yet but when they were they were only used in clinics.
It's a lot of math and work but so worth it. My daughter is very healthy.
Oh wow! Thank you for sharing your story! I’m so glad she’s healthy 💜 You sound like an amazing mom!
Both you and your son are amazing! I know this is something you HAVE to deal with, not WANT to, but it is still hard. Kudos to you both!!
Thank you 😊🙂
You've got a lot to take care of, my friend! Don't forget to take care of yourself too. ❤💐
I do 😊
Oh my goodness, I had no idea there was so much involved in keeping track. I have type2 diabetes and I just need to test once daily. God love your son. He's so lucky to have you.
Thank you!
My daughter also was diagnosed with type one diabetes when she was 11 years old, i didn't know that she have diabetes until she start to lose weight and i found her past out in the floor and was taking in a helicopter flight to Pittsburgh were she went into a coma
But thank God for His Faithfulness, she recover and came back from the coma
I had to learn all the stuff you know about the carbs and to check to see if they are high or low and to give insulin according to the readings,she is older now and she does have a pump that it helps her a lot but i always try to bring her good food with plenty of protein
And to watch her carbs, i will be praying for you and your son for strength and
For his sugar to stay stable and that he will be always on a normal level, thank you so much for sharing with us, you are such an inspiration to me, Have a Blessed day🙏❤❤
I'm sorry you and your son have to go through all this ! 😔God bless you both ! ❤
Thank you!
I happened upon your channel today. My husband is a Type One Diabetic as well and has been since age 11. So 21 years now. Your son is so strong to endure all of this every single day. So blessed to have the technology we have available now. You guys are inspiring! God bless you and your family!
Ariana Campbell Thank you so much for watching and for your kind words!!! It’s been a roller coaster two years since my son’s dx but he is so amazing!!! Thank you for sharing a little of your story! I love to hear about adult T1s!!!! G-d bless y’all too!!! 💕
Poor sweetheart. What a brave boy he is❣️
Thank you! He’s an awesome kid :)
I am a Type 2 diabetic and only have to take medication twice a day. Your son is very brave and you ate awesome coping with all the problems type 1 can cause.
Thank you
Wow, what an eye opening video. Wishing so many good things on you and your wonderful son.
Thank you so much Frieda!
This video is extremely relatable for so many, no matter the illness a person has, because it demonstrates the ups and downs that come on a daily basis that come with chronic conditions. I think it’s so important to show that side, for especially invisible disabilities. As someone who lives day to day with multiple invisible challenges, I know this struggle. Especially when contemplating whether or not give for insulin in some situations. I to have to make decisions about rescue medications in the moment, when I’m not feeling good, or out of it, and sometimes it’s in public. Making those choices are never easy, and it really warms my heart, how much you truly want to make your sons life the best it can be. And the conversation you had with him got me. Time and time again, I’ve had that same conversation with my mom, about how much I dislike being sick, and taking so much medication to function everyday. But those raw moments, are a sign of how strong a person truly is. 💕
Thank you for sharing your words and experience Nina
I love that you upcyled the pod into a magnet.
We did that with a bunch :) They are so fun!
Just watching you with your son great. Mom my prayers are with both of you 😀😀😀
Thank you so much 😊💜
Your a good mom! God bless you and your son
Thank you Alicia!
Are used to be a certified, diabetes, educator and nutritionist. I found this so fascinating and interesting. My knowledge base is outdated since I’m retired. But I loved watching you work the pod and figure out the carbs. Lots of work as you well know, but you do it so admirably and was such a calm And I totally agree. That diabetes is a terrible disease. I love your guy, he’s cool, excepting what needs to be done and obviously knows what’s going on. That’s fantastic thank you for sharing this.
Thank you, Bethann 💜💜💜
You are amazing. You are an awesome mother.
You are so kind, thank you so much!
we are doing in so many ways the exact same things !!!! if i am not able to predict the food "' behaviour'' i totally check several time bg ! this is the fats and the processed ingredients play ( and the endless other thousand of things i do not know !!!) keep sharing your t1d stuff more !
Thank you so much for your comment! Glad you have a good method (that we share!) for handling stuff :) And yes, there’s a million things always changing!!! Best of luck! And I will try to incorporate more T1D stuff!!! 💕
Wow so much to do. Prayers
Thank you! 💜
From one t1d mom to another: you rock!!! 💪
Thank you!!!!! Hugs to you mama!
I'm a T2D non-insulin dependant, thankfully my A1C is back down to 5.3 after it went back up. I'm Insulin Resistant. I have to be fairly low carb myself. I'm wondering if maybe you might have needed more of a Protein/Fat backer with all of the carby and sugary items.
Looks yummy though.. :D
I'm a new watcher; it's cool to see this. I babysat for a Toddler with T1D when I was a Teen.
I'm Curious, does insulin no longer have to be refrigerated?
I wear a CGM; it's been a game changer for me. Except for having sensitive skin, the covers I bought caused my skin to get irritated.
You are an amazing mom!
Thank you so much!
You may have answered this is another video but when was your son diagnosed? Love the honesty between you and your son. Poor kiddo!
Chana, you are such a great role model. As a diabetic, I too hate diabetes. Your children are so fortunate to have such A wonderful mother
Thank you Laurie
I just found your channel the other day and have been binge watching some of your videos. I’m not Jewish, so I’ve enjoyed learning what you go through. I’m type 2 diabetic (and will be 41 tomorrow), and there are days I just want to pull my hair out because of the frustrations of the highs and lows of blood sugars.
Hello and welcome to my channel! I’m so glad you’re here :) Hope your highs and lows even out :(
Oh my goodness. This video helped me understand and appreciate your overall experience so much more than I had. I know very little about diabetes and had no idea it was so labor-intensive. Was this an usually challenging day? All the technical difficulties, pokes, checking and rechecking, calculating, etc was exhausting just to watch! This looks so, so hard.
Thank you so much for watching :) I'm so glad it gave you a better picture about what its like to live with
Your comment has really made me reflect lol
@@jaroffireflies It definitely looks like an intense thing to deal with on a daily basis. It made me wonder whether you can ever leave your son. Pre-corona, were you able to use babysitters? Is this why you homeschool? Is this just how it is until he's old enough to take over his own care?
We have been able to use babysitters. We just keep our phones out so we can monitor him from the distance. It still makes us nervous, but we all need a break. This was not the reason we decided to homeschool, but it definitely sealed the deal lol. I had always planned to homeschool, and after his dx, people stopped questioning my decision. The school we would have sent him to (if we decided school away from home would be the best option) does not have a school nurse, and that wasn't an option for me.
It is a typical day for you and your family However for me it was an eye opener You are a great Mom and your son is a brave boy But...It breaks my heart I HATE it too
This is wonderful and helpful.
I’m so glad! Thank you for watching 💙
I worked as an RN at the JDF 20+ years ago. Continuous monitoring was still in its infancy and pumps were toddlers. We thought management would be so much easier in the future 😢 it obviously is just or more complicated than ever. Bless you for all the work you must do. ❤️
My nephew was diagnosed at 5 with type 1 diabetes. As his caretaker I had him while his parents were at work, I had to learn how to calculate his insulin and give him his shots. I hated to poke him so much and to tell him no to candy and junk food. When he was with me his insulin was good. His parents unfortunately were not as careful. It is so hard to always be on guard. I hated it and he hated it. Praying for you and your son. Praying for your family also. Diabetes affects everyone in the family.
Thank you Debbie. I hope your nephew is doing well now
I stumbled upon your channel out of curiosity on judaism,coincidentally i am also a type 1 diabetic. Love this video ❤️
Hello Yanet! I’m so glad you’re here! Thank you for your kind words ❤️
When your son says "I wish I never had type 1 diabetes" my heart broke. As an adult, living with a chronic illness is hard enough. No child should have to deal with this but what an amazing boy you are raising! The fact he asked "am I allowed to say I hate it?" is credit to what a lovely, well raised little boy he is. This video was so educational, thank you for sharing it! Your son is a warrior (as are you).
What a Pain thank you. This is my favorite comment ❤️❤️❤️ He truly is a warrior. Dx at 4, he’s been living with this and celiac for 2 and a half years now. My heart breaks at that same moment in the video. Thank you so much for watching and commenting ❤️
He is an incredible little boy. And you are an amazing mother! To juggle all that, and home school...I genuinely have so much respect for you! We do what we have to take care of our families, but I don't underestimate how tiring it must be (despite the love and rewarding times)! Your channel is great, very glad to have come across it!
What a Pain I think as mothers, our biggest challenges are also our biggest joys ❤️ Happy to have you here and to have discovered your channel 💕
Hey...Chana (did I spell it right?). I found you a few days ago and am just loving your channel, thank you. I live in Toronto, ON Canada and we have numerous Jewish communities within our city. (Wee memory) - being at my boyfriend's place (predominantly Jewish) and had this young mother come over to his place asking me if I could light her candles for her... I knew this was a rule/law and jumped to her rescue. Here I thought I was just doing a mere favour yet; her graciousness was something I will never forget. During covid, we witnessed so many celebrations via wee parades and gatherings in the street with the songs of praise and love of being together... I was envious before we were smiled at and asked to be part of their gathering (utilizing covid protocols). I am so grateful for your generosity in sharing this wonderful religion and community. I am surrounded by the Jewish and to have a better understanding of their way makes me so much more aware and let's be honest a wee bit envious. Again, Chana - Thank you... Oh, yea, this was a diabetic video - my intention was to ask if this pod insulin will make it a lot easier for your son when he is a teenager and young adult? I have witnessed both diabetic and hypoglycemic episodes and they are heart-wrenching. I have never seen this pod device and, in my opinion, think it is fabulous - if the kids don't misplace their phones... Thanks, again for sharing xoxo
Hello! Yes, it’s Chana :) And thank you! Welcome! I’m so glad you’re here!!! Thank you for sharing your stories :) I so enjoyed reading them 💜 As for your quest about diabetes, yes the pod makes it so much easier no and when he’s older. The technology we have these days is amazing!
Good luck with Dexcom because I am a type 2 diabetic and had problems with Dexcom 6.now I checked my level 3 x a day. Have a blessed 🙌 day
My daughter is almost 40. We homeschooled AND my daughter was diagnosed with Type I. Unfortunately it was before GCM's, Pumps etc. My husband used to test her blood when he got up, while she was sleeping. People thought it was cruel. She thought it was great since she could almost sleep through it. We also had to give several shots a day. Before pens. Not so popular. I praise g_d for such new inventions, and even more for insulin!!!!! I remember well how hard it was to keep track of ALL of the Details. ALL OF THE DETAILS. But you know as I do that our children can LIVE with diabetes, and live well.
The new tech is amazing! And you were smart to check sugar in the night, I am always happy when it works out that way because he won't feel it
Brave guy my granddaughter has type 1 this was a great informational videp
Prayers for your granddaughter! I hope she is doing well :) Glad this was informative for you!
I’m T1D for 44 years! Not frum but lived in those circles. Enjoying your videos. This one in particular.
So glad that you enjoyed! Hugs to you! It’s a hard disease. And you must have seen so many changes in care and technology! Amazing!
@@jaroffireflies thank you! Gut shabbes! Yes tons of changes. Have been looping for 2+ years and loving it!
@@soozzi ohhhh we haven’t gone to looping yet. So exciting!
Shabbat shalom! 💜
@@jaroffireflies just found you on Insta. Would be great to chat there.
@@soozzi I’m very active there as well :)
What a great mom 🎈🎈🎈🎈🎈🎈🎈🙏
Thank you!!! 💜💜💜
Hats off for every type one diabetic, (insulin needing person) and there helpers 🥰💪🏻🙌🎩
English is my second language, so this will lack a lot of right word terminology, sorry for that! 😆🥰🙈
I know a young lady with type one, but I don’t know her close enough to have seen all this, but she do have the same in the arm, first person I have seen with it in real life, and it was fascinating.
When I worked in nursing home for elderly we did have some patients with different variations of diabetes. It was not normal with “the thing” in the arm, but we did check and gave insulin accordingly. We was always two people when we gave the shot, just to see and sign a form for what was giving of insulin. Even though, I don’t feel it was this much work, but I do know there are difference between people, and I get so impressed of you and all others living with this 💪🏻 Most patients at work did not have type one, and type two is a different game for most people, I know that. I have only worked with a few with type one, and I was not allowed to give insulin myself, since I am not a nurse, but I could be the second person seeing if the right amount of insulin was pulled up, and then sign off. (I know that type one your body needs the help with insulin, type two you can often go without, and control it with the diet, but some takes pills. My English is not good this morning, or let’s just say my brain is not good 😆🤯🙈)
My aunt got type one for a couple of years ago, and her whole diet is changed, and she has also the ones in her arm that goes off. She don’t like to talk about it, but my mom has been on hiking with there family and my mom is a nurse and has told me a little about it. I am glad there are better technology today, and you can have apps, the sensor in the arm, and so on. My aunt live far away, and I have not seen her for years, and I normally talk to my uncle, and he can say things like “this Christmas dessert for us, but not for your aunt” with a smile 😀. I know she like cauliflower rice, instead of potatoes and regular rice, but I guess cauliflower is a hard thing to rinse properly for kosher, like broccoli is?🤔
I am babbling, but I am important, and I know when you got a diagnosis and have health problems you just have to deal with it. I am sick myself, and use a lot of meds, many times a day, and I am used to not go out without some medication with me. It gets a habit and a part of life, but it can be overwhelming too.
Thank you for sharing, love and blessings from Johanne, Norway 🇳🇴
I am a new subscriber and going through old videos. This makes me think of my daughter .bittersweet. she passed in 2014 at age 21. She had cystic fibrosis which caused her to have diabetes. She had a pump too. She also had a port for IV medication and a colostomy. Sooooo when removing bandages She hated it. It hurt her so much so we also used unisolve. Watching your son remove his bandage slowly brought back memories. Prayers and blessings for your family.btw I love your content. You are a breath of fresh air
Sweet mama I am sending you hugs!!! I wish I had better words but I don't. We do use unison though, that helps us a lot. These illnesses are no fun at all.
@@jaroffireflies so true. I always said how different life would be if only.....
@@barbmaynarddiyhomemade8039 does it help to talk about her?
@@jaroffireflies at times yes. Of course not a day goes by that I don't think about her. I sometimes still can't believe she is gone.
@@barbmaynarddiyhomemade8039 sending you so many virtual hugs! I’m sorry I don’t have anything better to say
I was diagnosed at age 10, 1999. The technology that we have now is so great (although as I use the NHS in England I don't have a pump etc) but it's still a constant battle every day! Thanks for your lovely video.
Thank you for sharing your story!
@@jaroffireflies You're most welcome, thank you for your lovely videos.
Awe man it’s a full time job to keep track of his blood sugar!! I thought all the advances they have now you would really have to do anything. We’ll that’s wrong. Didn’t know you have to keep track of what he eats and put that in too! I thought it just knew what his sugar was like and adjusted it for you! You’re awesome!
Thank you! It’s sooooo much easier with the tech though! I’m so grateful for what we have now
I hope you read this to your son!
We all hate it type 1 diabetes bud!! It’s not just you!! You’re so strong and brave! I see adults who aren’t half as staring or brave as you!! You should be so so proud of yourself!! You’re such a trooper and thank you to you and your wonderful mom for sharing your story with us! I am truly impressed with your courage and strength! Hang in there little man!
Kudos to you mama! You both are an inspiration to me!! Truly!
I will read it to him! You are so kind and thoughtful! Thank you 💜💜💜
Whoops just re-read it and realized I have a ton of typos(auto correct doesn’t like me much) but it sounds like you got the gist of it 💙
@@BrandyDawn I did 💜
Excellent videos and very informative. You are a great Mom. I have Type 2 Diabetes. Yes I can feel is get very high and low. Hard to see a child having to go through diabetes. God Bless ❤️
Thank you :)
I had Covid in January 2021. Became extremely ill and ended up in ER. My blood sugar was 890 with A1C of 16.1. I was in ketoacidosis with Covid. Admitted to MICU. I’d never been prediabetic. I was diagnosed at the age of 50 as a type 1 diabetic. I also have MS which is an autoimmune disease as well. I’m still learning so much. I wear a freestyle libre. This video is very interesting. Thank you so much and God bless.
Oh wow! Thank you for sharing more of your story. That’s incredible! I have a couple friends with MS so I know a little about that. That’s a lot to deal with.
Oh, Lori, I’m so sorry you joined the club no one wants to be in.
We folks with autoimmune conditions really do seem to collect them, kinda like Pokemon. 🤪
::solidarity from another pwT1D:: 💙
@@andreahultman8272 hahaha the ‘club that no one wants to be in’, couldn’t be more accurate lol! Thanks for being so kind! Autoimmune diseases, do seem to come in bundles don’t they… 🤷🏻♀️. Guess we have our own club now, so to speak haha! Have a great day! God bless! ❤️
@@andreahultman8272 that Pokémon comment still has me laughing 😂
As someone who is hypoglycemic and uses a CGM to monitor lows your tech issues hit home. I just had a gusher convo with Abbot for my freestyle last week. I think the look on my face when they started asking all those questions was the same as yours. 😜 while the sensors are amazing and give us so much freedom the tech behind them can be a right pain when it stops working! Your son saying he hates diabetes hit me hard. I was diagnosed with an autoimmune system disorder at around his age and my heart broke for him cause I so understand that. You’re doing a great job validating it does indeed suck and helping him control what he can.
Thank you 💜💜💜
My mom and aunt were both diagnosed in the early 1970s at the ages of 10 and 8. I can't even fathom what my grandma went through without the tools you have today. I tell everyone that diabetes research is the reason I'm even here thanks to insulin keeping my mom alive when she carried me.
Oh wow ya! That’s a lot! Especially back then! I’m always so grateful for the technology we have today
I have that kind of thing happen ALL the time! T1D for 47 years now. Sorry he's fighting the battle. That BG roller coaster is a pain.
Thank yo ufos you kind words :) TiD really is such a jerk isn't it!?
I feel for your son I'm also on a pump. I've said many many times I hate being diabetic 😔. It's a very hard life style and battle to stay healthy.
I have had Type 2 diabetes for about 11 years...I only test my BG once a day and am on one oral medication and no insulin...I feel so fortunate!
That is lucky! I’m glad you no longer have it
Also, I have to say your son is extremely mature and brave.
Thank you :)
You are good mother 💖
Thank you 😊
Pre-Covid I was a school nurse and helped diabetic kiddos every day. I'm also a convert to Judaism. I love your channel.
Oh wow! Amazing!
There is a great Doc online his name is Doc Berg. He talks about the keto diet for type one even for kids. You are a very strong mama. Blessings and prayers your way!
Thank you!
@@jaroffireflies Dr Richard Bernstein himself type I diabetic in his 80's now.
@@vaselisa63 I’ve heard of him.
My daughter was diagnosed with T1D at 24. She's now 29. She injects herself of course. I don't know how I would have coped if she was diagnosed as a child. This video got to me. You are a warrior Chana!
Thank you! And hugs to you!
Your son's diabetes care is a full time job. You are an amazing woman, and he is a champ!
# Type 1 Diabetes stinks!
Thank you and yes, diabetes stinks!
Hi Chana you are so exact on what you are doing.I think that here we check in a different way.The blood has to be 6/7 if higher means it is high.Thanks for sharing.❤️👏👏
Thank you fo watching!
I understand that it has been 1 1/2 yrs since you posted this. I have type 1 diabetes as well. I am sorry for your son having to deal with this as a child. I was fortunate that I got about 24 yrs and 9 months of not having to deal with this. It also wasn't quite a surprise given that I had a grandfather who had had it so I was keeping one eye open for it. Although I am doing well, I am old enough to remember doing shots....long term insulin for the basal and short term for boluses. I am so pleased that at least if your son must deal with this that the technology has improved enough that he doesn't have to be poked numerous times through the day. (I started out on what was at the time called intensive therapy....basically trying to sort of mimic the idea of a pump before pumps were the standard of care and CGMs were not even a thing. I did 7-9 shots a day plus finger sticks.) Having the pump and CGM will also hopefully help him to be without complications for longer and allow him to live his life more normally and without as much fear. Another benefit of a pump is no long term insulin because once that was on board you were stuck with the affects. Short term only is so much easier to handle. Please let him know that I agree, Type 1 diabetes can be awful and exhausting(literally...it broke my heart when he said he could barely lift the water bottle. I know that bone tiredness that feels like you will never be energetic again.) at times but there are times when it just is and life with it isn't so bad. Many Prayers. You might not want him to get his hopes up but as maybe a bit of hopefulness to you and your husband, there are many people in the world looking for cures or at least long term treatments that would allow him to have periods(several years) of time where he wouldn't need to be tied to a CGM, finger sticks, or pumps. I pray that because he is so young that he will in time be able to benefit from that research.
Thank you so much for your kind comment! I really appreciate you! Thank you for sharing your story and giving me such encouragement:) My son is such a brave kid and told constantly that he seems older than he is, I know this is from what he deals with because of the diabetes. I too hope we can benefit from all the research and I pray you can too!
I had no idea that so much was involved in managing diabetes type 1. Sending you strength x
Thank you 💜
The woman on the phone was acting like you hit his main artery lol. Lady, it's I.M. the kid is not bleeding out 🤦♂️. Just sent the new thing 😂
My daughter was diagnosed at 13 months old...I get it sister ♥️
Hugs to you!
My heart just broke when hen told you it stinks I whish I could huge him
I’ll hug him for you! He’s seriously the bravest kid I know
Thanks for sharing a very personal experience vlog. It is so important for ALL OF US to be aware of this in case we need to help someone else in whatever way we can. DIABETES TOUCHES EVERYBODY, NOT JUST THE PERSON WHO HAS IT.
Reminds me of taking care of my mom she was a brittle diabetic...there is just no predicting...I feel for him.
💜💜💜
Thank you for share something so important and so dear to your hart. Seems really hard, on you as mom, on your son, and the others for the amount of time you dedicate to their brother. So, seems no one gain, but maybe that made you stronger, more understanding, alert. As mother of a sik child, from 10th month, whose diagnostic we just obtein in his 20th, I know the hardcheaps and also the sensation of been on the other side of the river (and be proud of it). So my simpaty to you.😍
Prayers to you, your family, and especially your child ❤️
@@jaroffireflies thank you so much
@@artcuriousbymnw you are so welcome
I’m a type 1 and I use a Dexcom CGM and a Tandem t slim pump and I love my pump! But yet it takes a strong family to deal with a diabetic and that goes with it
Oh wow you totally get it then! It takes a strong person to deal with it as well.
Oh my.. I just found your page. Was looking at your other videos until this was in the suggestions. How your son said he hates T1D, it made me tear up.. It's so sad, when our children have difficulties, would just like to take it all away somehow.. You are such a good and hard working mama, wow!
One thing, though, I would like to suggest, out of sincere love, maybe look up about keto or carnivore. There has been many success stories from people, who've done carnivore and gotten off insulin. It might be easier to manage the levels also, maybe, if the carbs were lover.
I'm not diabetic, but I'm doing mostly meat heavy keto, so like ketovore. It has made my life so much easier(lost weight, not hungry all the time) and kids are healthier too, even though they aren't keto and still get other stuff, but most meals I make for them are keto, besides snacks for them. They have also lost their atopic dermatitis, that had gotten really bad at one point and I didn't want to use hormone creams on them..
Lots of love and blessings from Estonia! :)
Thank you for your kind and thoughtful comment :) Unfortunately diet will not help my son. With type 1 diabetes it’s an autoimmune disease, not metabolic like type 2. My son will always be insulin dependent.
@@jaroffireflies yes, I know. :) though there has been good results from these diets. Less carbs will make the blood sugar to raise less. The "wave" is more stable. Won't raise that high and in result not drop that low suddenly. :) But completely free from insulin has happened for some type 1's, but for a child it isn't really reasonable to go full carnivore, for example, but some diet changes might help relieve some of the hardship.. More and more doctors luckily are teaching about it. I haven't gotten fully into it that deeply, but some are: Dr Shawn Baker, Dr Ken Berry, Dr Eric Berg, Dr Jason Fung and many more. :)
I know this is an old video, but I’m so curious what you do on Shabbat with all the electronic stuff. I had gestational diabetes, but I’m reform so I didn’t have to worry about testing during Shabbat.
We are allowed to use all of it. I even can carry my cell phone to monitor my son's deacon when he is away from me. Life always comes first :)