*Exciting* What I Learned when I Stopped TAMOXIFEN | Hormone Therapy | Breast Cancer Journey
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- Опубликовано: 5 июл 2024
- Hi friends, I'm excited to share this video with you! The two years I spent on hormone therapy was a really challenging time for me🤯, and since taking a break from tamoxifen I've noticed BIG changes! I hope this brings you some inner peace💫 for the future like it has for me.
This is only MY experience on and off Tamoxifen. Everyone reacts to medications differently
Thank YOU so much for being here with me! It is my honor to share my experiences with the purpose of supporting you, and creating a space where we all feel less alone💕
SUBSCRIBE🌷 to come along as I continue to share more about my cancer journey and life moving forward as a survivor.
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Thank you again for being here with me, much love🕊.
Sincerely,
Chelsey
#breastcancerjourney #tamoxifen #lifeaftercancer
*The content of this video simply shares my personal experience and what I've learned through it; therefore it should in NO WAY be substituted for any medical or professional advice.
I highly recommend doing your own research, and following the recommendations of your personal medical care team *
Thank you so much love for sharing.. I am 70 years old and have just recently made the decision to stop taking my little daily pill (Letrozole). For the past year and a half I have been on this medication and I just can't do it anymore. I refuse to believe that all this pain and discomfort and depression is just my "new normal". I've come to the conclusion for me that quality of life is more important to me than just existing and waiting for this five years to be up. It was not an easy decision to make, but for me the pros of "becoming me again" far outweighed the cons! And again thank you for sharing and know that the scripture says that "we are more than conquerors through Christ JESUS who loves us❤️
Hi Debbie♡, thank you so much for sharing your experience and insight. I love that you know what is best for you in your heart and you are following it. Sometimes it's very much easier said than done. I wish you much health, happiness and living your life to the fullest in the way that serves your heart♡. Xo
Good Luck,Debbie
Enjoy your best,quality life
I'm 61, but it feels like I was 80, at least. I had a her2 positive breast cancer, clear lymph nodes, 16 years ago. I got chemotherapy, radiotherapy, and herceptin injections. The chemo was hard, but I didn't have any serious side effects. My period stopped, but I didn't go through the menopausal nightmare. 2 years ago, it came back, same breast but 2 small tumors, one her2 positive the other one er positive. Again, no lymph node involvement. They called it primary breast cancer grade 2. I got chemotherapy. It did something to my heart because now I have to take blood pressure medication. I also got 12 herceptin injections, which they stopped because it affected my heart muscles. A year after my heart recovered some. I also started with anastrozole. 5 months later it was so bad I could hardly crawl out of bed. I was put on exemestane. A few months later it was as bad as the other one. Then they put me on tamoxifen. After having taken it for 7 days I stated getting menstrual pain and a discharge. I stopped immediately. Btw it took 2 months for the discharge to stop. My oncologist said that I can stop exemestane. I was off it for 3 months then my oncologist called and told me to try again as I may not have the same reaction. I started exemestane in December 2022. 3 months later I'm in pain day and night. My neck, shoulders and back is killing me. I can't sleep. I'm always tired, dark circles under my eyes and loosing my will to live. I think I'm getting depressed even though I'm not the type of just giving up. I've had MRIs. It is not cancer. I have osteoporosis in my spine, normal wera and tear, but I shouldn't be in constant pain. I believe it's the exemestane.
Oh God, I’m first going to start radiation , no chemo. But after hearing so many terrible things about anti hormone treatment I don’t think I want to do it.
I just started Letrozole and quit yesterday after day 6! I was WIDE awake for 4 days and exhausted unable to concentrate. It didn't warm that it greatly increases blood sugar levels. I slept for 18 hours last night after stopping. I'm choosing quality of life!!❤️ Thank you for your comment. Best wishes to you and all that are going through this. I'm almost 62 and post menopausal for over a decade. I'm stage 1 triple positive HER2 +.
I am so depressed knowing my next steps are hormone therapy with tamoxifen. I am just so stressed and scared everyday by the possible side effects. I’m only 35. No children. I just want my life back and if these meds will make me feel this way, I don’t want to take them. Thank you for sharing your experience and many blessings to you! 💗
I'm sorry, I totally feel for you, it's so hard and such a daunting thought... if I could give you some insight I'd say know that everyone's experience is different, there is the possibility that you will tolerate the medication better than me or others💕. Thinking of you and truly hoping you can live your best life moving forward🙏🌷
@@ChelseyTarnow Thank you so much for your kind words! You’re truly a gem to us sisters! I feel a lot better now! 😊💗
I made the decision today not take tamxifon hormone therapy,I read up about it ,I weighed the pros and cons for 6 weeks before my oncologist appointment today,I made that choice and was discharged today,my emotions are still up in the air ,I have nobody too share my thoughts and burden with ,but I think I made the right decision ❤❤❤
I’m supposed to take them after double mastectomy, chemo radiation and a bone biopsy I said the hell with the cancer industry that puts fear into your existence telling you if you don’t take their near death poison you will die. I know cancer is 100% fear based illness. Personally I dont think it’s worse than any other mild illness you just need to treat it with Gods perfect medicine…food! But they put you on a cancer conveyor belt the second the biopsy needles are removed and there is no off switch unless you jump the hell off like I did before surgery. God gave me breasts for a reason, he gave me hair on my head in 1 Corinthians 11-15 it says “ your hair is your glory” God tells us not to be bald with chemo poison that is not what God wants for his creation. You are to honor your body and not attempt to kill it by killing every cell God gave you. This is so unbiblical in my opinion. There are hundred of alternative treatments out there that work but doctors can’t tell you about under the law . They could have their licenses revoked and so can nurses! They could be sued that’s why they can’t tell you. I would never trust anyone in the corrupt cancer industry. Did you know oncologists get PAID for putting you on chemo and nearly killing you after they took an oath not to do harm. They know the harm they are delivering to you. If they would lie on their oath could they also lie when they tell you to take their poison?
First of all each case is different. I was diagnosed with breast cancer in my left breast and had a double lumpectomy. A few weeks later following more test it was found that my cancer was moving quickly. I had a mastectomy and 6 lymph nodes removed. 4 had cancer cells so I was really worried. Following my mastectomy I had an implant. I was very worried about my future, I was 54 at the time. I was prescribed Tamoxifen firstly for 2 years, then 5, then it was my decision to take it for 12 years(with support from my GP . I am still here at 81 thirty years later.I realise everyone is different and I was lucky with my surgeon but I had no bad reaction to Tamoxifen either. I was very fearful of my future but tried to be optimistic.
One thing I would add to my story is that yoga helped my mentally at the time and now at 81 I have ostepeana but I am working on that . Good luck to everyone coping with breast cancer.Try to be positive and remember everyone 's case though similar is also different.
Thank you so so much for sharing your story!!! I'm incredibly happy to hear you are healthy and feeling well 30 years later! So inspiring💫💕!!!
I'm just starting to get into yoga! Thank you again for sharing your insights. I hope you can continue with your practice🙏🌷
I REJECTED this and ALL conventional treatments when I had breast cancer. Used a holistic doctor and entered year five cancer free!
Yes! Thank you for sharing! I am so so so happy to hear that🙏🌱💫!!!
@@tz1434
Changed diet. Low glycemic fruits and vegetables (50g of carbs per day), two meals (noon and 5pm), natural supplements along with high dose vitamin C.
This was done with the direction of a holistic doctor and the protocol was tailored to my specific medical situation; based on test results, blood work, type of cancer, etc.
@ajabdehchauhan8119
Yes, I did have surgery. See my answer to your question in this thread. Someone else asked what I did, too.
Would you please share which holistic medicine you took
I just had surgery stage one
They are talking about putting me on hormone blockers
I don’t believe in medicine
I rather take holistic approach
Please share thanks
Yes please can you share with us❤
Thank you for sharing Chelsey! I have been diagnosed with node-negative Hormone positive invasive ductal carcinoma.stage 1. I am have a double mastectomy with aesthetic flat closure on June 7, 2023. The tumor is 7mm - very small. I am 68 years old and am considering forgoing hormone therapy so I don't deal with these horrible side effects of hormone therapy. This is an individual decision and for me is a quality of life situation. I don't want to continue the rest of my life in a fog and I am very active and care for 7 horses. I needed to hear your story. !! Good for you!! It takes courage ! God Bless You !
Hi Suzanne! I'm so happy to share if it helps someone💕. It was incredible the difference I felt once off of Tamoxifen, but like you say it's such a personal decision. I'm so happy yo hear you found the tumor early! Wishing you well in your surgery and sending positive vibes for a quick recovery so you can get back to your horses! 💕💕💕
@@ChelseyTarnow Thank you ! I hope you are doing well ! I read some amazing articles of the benefits of Green Tea to fight breast cancer. My oncologist said I should have the surgery and I told him I did not want to take any meds and he said that I have a miniscule chance of reoccurrence with my markers and should go live my life after surgery ! But I will do holistic things in addition. Wish you well ! ❤
💕🙏
So incredibly hard. I feel you I really do. I have decided not to take the hormone therapy at all as I see what it does to women and I just can't accept that. Such a tough decision.
So so hard! Thank you for sharing your understanding and compassion. It is such an individual, and tough decision.
I’ve started red light therapy and learning about nutrition xx
Yes, l decided to go on HRT age 50 when l started menopause. No way was l going to experience menopause. Many years ago women died young before menopause so they didn't experience the horrible menopause symptoms.We women want quality of life. I agree
@@ninajagne233hi what is right therapy I've not heard about it many thanks,
Yes! I believe hormone therapy isn't the answer in younger woman♡ we need our happiness
It's such a tough call♡! Thank you for sharing your perspective:)
I don’t want to go on it, I just want to remove my ovaries and leave it at that. I’m 44 and already had a hysterectomy so they are all that’s left
@@scgraves98
I would get a 2nd or even 3rd medical opinion about that. Your fat cells (adipose tissue) also produces estrogen. After reading The Secret Life of Fat and Estrogen Matters it seems that estrogen helps keep your weight under control. That is why after 50 many women put on so much weight. That causes another set of medical problems. Heart disease, bone loss, cognitive issues, sexual disfunction and so on.
Thank you for sharing ❤️ I was stage 3 with a grade 3 tumor in my right breast (pre-menopausal). I absolutely understand that my type of cancer feeds on hormones, but I've always had the most nightmarish reactions to *any* kind of hormone therapy (having been through quite a bit with endo in my 20s). So here's the thing.. maybe, possibly I'm prolonging life, but when I'm off the med, I'm happier, more fit, less down, on and on... I got to where I said... "why?" It's such a hugely personal decision, and I want to really live with whatever time I get. Wishing you the best, and thank you again 💕🙏 you're doing something with this channel that I hope to do!
Thank you so much for sharing🙌! I feel what you are saying so deeply and totally resonate (I also went through a lot with hormones in my 20's before deciding to stear clear of augmentation). It really is such a personal decision with no "right" answer. I love that you decided to listen to your heart and do what is best for you👏. Wishing you much joy, happiness and continued health💫
i get you...im stage 2 and when im done w/radiation im supposed to go on those too. although, if i have a horrible reaction im stopping too. i want to enjoy everyday of my life too.
Oh Chelsey I can relate to every single emotion! This is not talked about enough, now I know its not only me who saw life in shades of grey..I'm also 4 months post hormonal therapy which I gave up on after all the wreck it left behind and trying to go back to 'normal' life. Thank you so much for sharing! Have a great journey forward 🎀
I'm so sorry that you can relate as I don't wish the altered shades and life outlook on anyone, but I hope it does bring you some peace knowing you aren't alone. And I truly hope that you soon feel the clouds lift and feel back to you again soon🙏 Lots of love to you🌷
I hope you get back to being healthy because this hell isn't it. Do your checkups and be happy.❤
💕🙏💪🍀
Same experience! The way I explained it was that I feel like my soul died. I felt 2 dimensional. I felt like the music died. I felt like I was barely existing. My oncologist put me on a break, too. I was on it for 9 months. I've been off it for almost 7 months. She wants be back on it. I'm not sure that's in my best interest. It also caused some uterine masses and cysts that may or may not be benign. Thank you for sharing your story!! I have never heard any doctors or nurses warn about the emotional and cognitive side effects. They only talk about hot flashes and dryness. Keep sharing your story! ♥️♥️
YES!!!! That is such a good depiction of the feeling (or lack there off) too! I'm so happy you've had the opportunity to feel like your self again💕. The decision to go back on or not is such a tough on and one only you can make. I truly wish you all the best moving forward💫! Thank you for sharing!
Yes, barely existing: my soul and the music died!!
Thank you for sharing your story ❤ I’m so encouraged by all the women who tell their stories and speak openly about the struggles they’re having or had. When I read all the comments I realize none of us are alone 🥰
❤❤❤! I agree, it is so nice to feel understood/not alone in how I feel🤜🤛
I had stage 2 breast cancer. I had chemo, radiation, a double mastectomy and hormone therapy. Tamoxifen gave me horrible mood swings, hot flashes and all of the usual things you mentioned. However, the joint pain was the worst. I could not get out of bed without pain. So I tried Letrazole. I had no pain, BUT I had a complete pychotic breakdown about one month after taking it. I started hearing voices in my head and talking to myself in the mirror. I felt like I was loosing my mind - so I just said I am not taking that anymore. Now my head is clear and I can think. That medication was awful!
Oh my goodness! I'm so sorry you had those terrible experiences! Good on you for being so aware and noticing that something didn't feel right. Hearing that you now have a clear head makes my heart so happy💓. Thank you for sharing your experience. Wishing you continued health and happiness in your life🌟🌠!
Yeah it is not you. It is the nasty little poison pills
I’ve heard quite a few women have had this, they are horrendous drugs, I stopped
Take myomin . It reduces estrogens when balance your hormones. No side effects. I am taking it for almost one year and successfully is working. Letrozole and Lupron killed my feet and may back. I had to walk like a 90 years old lady when I am
In my 50’s. So the doctor does not care if u feel sick.
Thank you, Chelsey. I went through menopause with only acupuncture, refusing HRT. Now, again I must decide what is right for my body, after a recent mastectomy. I think that a good diet and regular exercise are the ticket!
Hi Loretta, thank you for sharing your experience. I also experience so much personal value from diet and exercise:). Wishing you a speedy recovery from your surgery, and clarity on the best decision for you and your body♡
You are giving me hope. I am on tamoxifen and I was diagnosed when I just turned 26 with breast cancer. Its been terrifying and I've almost died too many times. I started my channel so I could talk in a raw way just like you have here so that others wont feel so alone but my mental capacity to sit and talk about some of the things that have caused me so much pain has been incredibly difficult. I feel ready to start making waves and motions towards starting to film my videos again but it is SO hard and people have no idea just how tough you have to be to sit and talk about something like this. I respect you so much and I really hope all goes well for you in your future. I've subscribed. Ive sat here crying along with you. I hope I go back to normal when I get the opportunity to get off hormone therapy... Thank you for your honesty. Take care
Hi♡. Thank you so much for your raw and honest message. I totally resonate with you when you said that you sometimes struggle with your mental capacity to sit, record and share your experience- I feel that too! Sometimes it's such an overwhelming thought and I have no idea where to begin. You aren't alone♡. When you are ready, you will do it, I know you will! I can sense in your words that you are so strong and your purpose to help is big. Thinking of you. Thank you for subscribing and being here with me. I believe in you♡xo
I'm 67 and was recently diagnosed. The more I hear about hormone therapy, the more sure I am that I'm not going to do it. It might be different if I were younger or had a family. But I already suffer from depression and anxiety. That could get much worse. Plus I have heard so many stories about 10 years of constant pain. At 67, I don't know that extending my life is worth being miserable for the rest of my life. I might do chemo if I can do it orally, but hormone therapy . . . no.
I'm so sorry to hear about your recent diagnosis. My heart goes out to you and your family. Thank you for sharing your thoughts. It's such a personal decision, and one that I know so many of us have to face and struggle through. Sending positive thoughts and vibes your way💫💌
Stories about constant pain, hair loss and "low mood" are correct. After 8 months of anastrozole, I had to stop. My body and has aged 20 years in 8 months. My dr now wants me to try tamoxifen even though I'm post menopausal, saying that "most women tolerate it well". I don't know that I believe it. That's what he and other doctors said about anastrozole. I totally relate to your comment.
Itook it . Anastrozole about killed me and my joints and muscles. TAMOXIFEN NO BETTER. I QUIT IT ALL 4 WEEKS AGO
Thank you so much for posting this. I have been feeling horrible since I started taking this. I thought it was just me. The mood swings, the feeling like I’m not me. I actually started crying when I heard your testimony and the responses from other women.
It is most definitely NOT YOU! I'm so happy you've been able to connect with my experience as well as others. I hope with time you begin to feel better... or feel better knowing it isn't you, it's the medication. You are not alone💕💫 xo
Im worried about having to take it. My perimenopause was horrible was put on HRT for 5 years. Stopped on 11/2023 upon ++- diagnosis. Hot flashes are awful right now. Definitely going to speak with dr about this next week.
Do you usually start blockers after radiation?
Thanks so much for posting this encouraging and heartfelt video! I wish you big smiles from now on and nothing upsetting ever again. I have just stopped my cancer therapy with tamoxifen. I have put on about 40 pounds and can't wait to go back to normal weight even if I have to throw away all my clothes. The New ME feels good already...it is just this horrendous weight I need to get rid of. Take care and best of luck to all those women who are going through or have survived cancer.
Thank you so much for sharing your experience🙏. I can sense the excitement in your comment and I'm so excited for you as you begin to move forward in your new chosen direction. I'm smiling thinking about you transforming back to YOU (mentally and physically) and I truly wish you all the best💕🌷!
You are so brave and have gone through so much. I'm so glad you are feeling better now.
Thank you so much for your kind words and compassion🙏💕
Thank you for sharing your personal experience. It's easy to talk yourself out of it thinking it won't make a difference, but it does. I'm a candidate for it after receiving a breast cancer dx but do not want the side effects. I need to hear everything I can about it before I decide. I would rather life fully and shorter than live stifled by aches and other side effects. We can choose our attitudes that our bodies can heal naturally when cared for properly. We can give up fear and then we often are blessed with our dream life. Thanks for sharing your experience!
Thank you so much for sharing your thoughts and perspective. I also like to gather as much information as I can before making decisions. Wishing you a quick recovery from surgery and clarity as you decide what's best for you moving forward♡
I knew chemo was horrific and it does not work. They force it on everyone making them believe it works! 5 docs helped my decision. I am an RN who had done hospice 18 years! Why were all my cancer patients bald??? Because they were talked into chemo. Huge huge money maker! They knew the stage lV patients were terminal but got those bags infused! I saw it for years! Each patient generates $ 1 million! Start asking questions.
Thank you for sharing these videos.. I'm 44 and just wrapped radiation and have had three consults which all recommend OS + AI for my HR+ breast cancer. After learning that nearly 1/3 of women have cognitive impairment from breast cancer before treatment even begins, it's now as if the past couple years of feeling not like myself - and similar to the symptoms you describe from both your initial hormonal therapy and now tamoxifen - suddenly make sense to me. I've completely lacked motivation after always being very driven; I've lost interest in most things, while usually a very bubbly, energetic person. I feel constantly in a fog, struggling to learn and comprehend , especially in my work setting where I have always previously excelled. And now, I'm being recommended this therapy that is likely to make it worse. I know everyone reacts differently but I can't take any worse cognitive impairment or depression - let alone all the awful physical effects. I'm leaning towards rejecting the therapy altogether but as you discuss, feel guilty about it because I know it can improve my recurrence odds. Thank you for sharing your journey and making me feel less alone in these complicated and sad feelings.
❤❤❤ My heart goes out to you, you are most definitely not alone in how you feel! You touched on a couple of things I've also noticed, but didn't mention like struggling to learn and comprehend. It really is life altering. I hope the path that speaks to your needs becomes clear as you move forward. Sending much love, strength and continued resilience through this extremely challenging journey❤💪💫.
Don’t take it. I was in a doctors office the other day ( I have breast cancer I’m refusing to treat with standard killer care) and as I was walking out the nurse told me there was an employee who worked there who had had a double mastectomy and she wanted off her endocrine therapy and the nurse told me the doctor told that employee to get off them that she needed the hormones “. Plus they cause heart issues. The cancer industry KNOWS women after going through hell and back ( as near to death as it comes) will do ANYTHING to keep it from coming back they will gladly go through more pain and suffering to keep from doing chemo again so they know they have you and if they told women they had to pay a million dollars a month to get their endocrine blockers to keep from having chemo again they would come up with the money. Just a complete racket in my opinion, they want me to take them I said no way! ( I didn’t do double mastectomy, chemo, radiation either. Why would I volunteer near death when other alternative treatments work??? Like food for one . whole plant based food. No fast food no sugar sure beats chemo which destroys your life forever! Who has ever heard of a ten year pill and why not one year and ten days??? Just total crap. Dont fall into the gullible woman trap
Thank you so much Chelsey, each video is unique and helpful in its own way🙏. Thank you for sharing. It is good to know that you are happy, you deserve it. I wish you all the happiness💖. Hormonal therapy is my next phase and this video spoke directly to me🙏.
Thank you for your kind and thoughtful comment🙏💓. I'm happy to hear this video has been helpful for you. Wishing you all the best as you embark on this next phase💫!
@@ChelseyTarnow thank you very much🙏💖
I’ve just come across your wonderful post as I’m awake again in the middle of the night I am mid chemo have radio to go through the 5 years of hormone pills I have had mulitpl spine surgeries since my30 s and have lived with severe pain and depression which is under control the thought of the side effects has been an added weight my instinct is not to take them so finding your beautiful self here right now is a gift sending love and strength to all of us wonderful women … we got this ❤
Thinking of you tonight and sending positive vibes, and continued strength and resilience your way✨💫💪💕. You've definitely got this ❤❤❤!
I relate to this too. My sleep is really disturbed on Tamoxifen. I've had to change my job situation and spending lots of $ on natural supplements trying to support my sleep. Wishing you a healthy rest of your pregnancy and many blessings 💞
I'm sorry to hear that Camille, I found it so frustrating not knowing all the side effects the Tamoxifen causing (and missing out on sleep effects everything!). I hope that you can find something that helps! Thank you for sharing your experience. Sending lots of positive vibes your way♡
Thank you so much for sharing your journey. I have just started a break from tamoxifen after 2 years of fatigue, migraines and crazy weight gain (despite diet and exercise). After 2 weeks off, my energy levels have come back, which is amazing. No more spending the weekend in bed. Everyone has a different risk profile for recurrence, and needs to make the right decision for them. In my case, my quality of life needed to be an important factor in my decision, but I'm also glad that I went through with two years of hormone therapy because it still delivers significant benefit to reduce recurrence risk.
Thank you for sharing your experience Jeanette❤. I'm so happy to hear that after 2 weeks you've already noticed your energy returning! It's such an incredible feeling to be able to feel like who you know you are at your core (if that makes any sense). It's such a personal decision and there is no right path, only what's good for the individual. I hope you continue to feel more and more like you every single day!
Hi... Thank you! This video helps me a lot as Im in the process of making the decision to stop it... Im always in two minds about it because like you my cancer was hormone fed... I identify with you about the constant greyness... I always try to be positive have a sort of motivation and continue with everithing I do, although everything is just blah... whether is good or bad (of course Im genaralizing as life is full of individual experiences and we are all diferent).
Life should be a rainbow and we should enjoy all of it colours... much love
Hi... Thank YOU for sharing your experience as like you said we all have different perspectives to share. I really resonate with what you are saying as well about making a conscious effort to be positive and have motivation; but even with being aware of it it just isn't the same. I hope that you are able to find clarity within yourself to make the decision that is best for you moving forward. Much love right back.
Thank you! Thank you! Thank you! I thought I was going crazy! While my oncologist talked about the medical side effects she didn’t tell me about the physiological side effects! I guess it varies from person to person but you describe in 11 minutes how I’ve been feeling for several months. This process has been gradual with taking away my zest for life. I’m an adventurer who use to LOVE the experience of life but now I just try to survive the days. Thank you for this insight!
I'm so sorry that you've lost your zest! That makes my heart so sad because I know the drastic change in feeling so well . I hope that in some way you can feel better knowing it's the medication, not you (and you aren't going crazy!)... and you most definitely aren't alone in this. Sending much hope and continued resilience your way💫🌱💕!
Thank you for posting this! I was searching for something as I just stopped T two days ago. I was only on it 6 weeks and couldn’t cope with the side effects. I’m scared as I don’t want it coming back but I also need quality in my life. Best wishes to you and all others going through this journey! Xox
I'm glad it helped you in some way🙏🌷. I totally know where you are coming from! Good on you for making the decision that is best for you. All the best to you as well💌🌱!
How are you doing now?
@@shannonhoffman5875 going well thanks. I’m not on any hormone therapy. Due to my side effects my oncologist didn’t even mention any others. I was diagnosed in Sep 2021 and have my annual tests in May. So far so good. I’m feeling back to myself 🌸
You are so brave. I'm 64 and on letrozole for a year now. It's hard, but my oncologist doesn't give me no choice. Stay well. ☀️
@@myriamvanbrusselt4085 thank you but it’s not bravery. I hope you stay well too 🌸
You are so strong, because I would not able to do videos about my cancer because I will be crying nonstop
Awe thank you! We are all.steong in our own ways and I KNOW you would be described as strong as well💪! Also so you know, I have cried through a lot of videos and behind the scenes tooooons!!! I really appreciate you being so supportive💕💕
Thank you for sharing so honestly. You have reinforced everything I have heard from other women. I’m so happy for you that you are feeling better! I have refused hormone blockers. My quality of life is so much more important. After a consultation with my OBGYN I’m having my ovaries removed. I’m probably a year at the most away from menopause and this seems like the best choice for me to basically “cut off” the estrogen and progesterone and prevent my breast cancer from returning.
Thank YOU for sharing! I'm so happy that you got all the information and made the choice that is best for you💗
May I ask you, how you feel as women when you removed?
I'm also considering having my ovaries removed to get off hormone therapy. Would love to hear how you're doing if you had an oophorectomy! Thank you!
Be careful thinking you will have no estrogen after ovary removal. I had hysterectomy over 20 years ago with ovaries removed. I was recently diagnosed with HR + DCIS. I have had surgery where cancer was removed and I start radiation treatments tomorrow for 3 weeks. My oncologist wants me to start hormone blockers after radiation is over. I am 70 years old and my bone scan showed I have osteoporosis. I do not need more bone weakening, joint pain, or depression. Quality of life is everything to me. How much time do I have left? Nobody knows, but I want to spend whatever time I have as a happy person without the horrible side effects!
So happy you are feeling better. My oncologist took me off Tamoxifen for a month. It has been 2 weeks and I don't feel any relief yet. I don't believe a month is long enough. I am 69 and don't want to spend the next 5 years feeling like this. I don't want to go back on it and I am a bit afraid. It is a quality of life issue. Thank you so much for sharing your journey.
Hi Donna, I'm so sorry that you are also feeling feeling decreased quality of life from the Tamoxifen. It's so hard! I honestly didn't notice an improvement from what I can remember until about month 3 or 4. I hope that isn't yhr case for you though! Wishing you all the best ans I truly hope you begin to feel more like you again🙏💌.
Thank you for sharing. Just over surgery and have been prescribed tamoxifen. So scarred, really don't want to start this but at the same time so worrying about the cancer returning. Good luck to you. Thank you so much for your honesty.💗
I totally hear you! Thank you so much🙏❤. Wishing you continued health🌱!
Great Video, Stage 3 ER HER-2- MALE 48 on Tamoxifen and Verzenio. Same journey, tolerated Chemo and Radiation and then experienced every physical and psychological you mentioned thereafter. Thank you for validating my experience.
I'm so happy you found it helpful. You aren't alone. Thank you for watching and sharing your experience for others to resonate with.
Thank you so much for your video. I have had the same feelings that you have expressed and it makes me so happy to know there is hope that I will get my old self back. Today, July 7th 2023 is a day of celebration. Today I take my last tamoxifen treatment it's been 5 years I've just not feeling myself. I am 57 and 2 years into menopause so I'm hoping once I have the tamoxifen out of my system for a few months that I will also feel better and more like myself. Again thank you so much for putting my feelings into words. God bless .
Yayyyyyyyyyyy🎊🥳💪👏👏👏!!!! Congratulations on completing your 5 years! That is no easy feat as you know! I'm seriously so happy for you (tearing up actually🥲) and I truly hope that soon the clouds will begin to lift and you'll feel like the person you know you are inside🌟! Congratulations again🌠💕! Wishing you continued health and happiness🌷!
Sweet,Chelsey
Looking lovely and healthy
Thanks for sharing
Love that bundle of Fluff on your bed
Warm and gentle Hugs
Being hormone deprived makes one feel empty and detached
Bless your heart for doing the right thing for you ❤
That is such an accurate description from my experience as well... "empty and detached". Not my favorite feeling at all. It was hard to make the choice, but baby was the deciding factor and it has been such a blessing to have a break and feel like me again. Thank you for making me feel understood🌻💐. Warm hugs!
I was a little distracted by the fluff on the bed as well! Thank you very much for sharing
Thank you for taking the time to share this and for being so vulnerable. It's a disgrace that we breast cancer patients have so few options for maintainence. Way more research needs to be done for women's health! I applaud your bravery in stopping treatment. I was just diagnosed three weeks ago and have terrible anxiety about hormone treatment. I'll give it a try but wam more apt to try and control things with diet and exercise. My very best to you Chelsey!
Thank you so much for your very kind comment. My heart goes out to you as you embark on this journey no one wants to face. I can so appreciate your determination to tackle maintenance with exercise and diet. I too hope that one day there will be more options for survivors aiming to keep the cancer away while still enjoying and feeling good in life. Sending so many positive vibes of strength and resilience to you💪💌💫🌱!
I had lumpectomy on left breast on 8th March. 2cm hormone fed and aggressive. My surgeon was so happy to tell me he had got everything and nothing had gone to my lymph nodes. The next dr tried to get me to agree to radiotherapy. After discussing the pros and cons I told her that I’m 63 ,have Parkinson’s, fibromyalgia,connective tissue disorder, hiatal hernia and stomach pain that was being investigated still. A 20% chance of radiation helping in my opinion was not worth the pain. She said I obviously know what I’m talking about but she wanted me to fake tablets. I said I would but I’ve tried them for a month. I’ve decided I would rather have a few good years than exist. My diet has changed and I just manage my other conditions the best I can. Xx
Same here. I’m 69years old and was diagnosed two week’s ago. I’m terrified also about having to take tomoxafen. Of course, when I raised my concerns to the breast surgeon, she said she has been doing this for 23 years and never had anyone have major side effects.
Wish you well, Chelsey❤
Thank you so much Jane🌷! I appreciate it💕
Lumpectomy over radiation over but no to hormone blockers I want to enjoy my life and feel like me
I can totally understand that decision. Congratulations on completing your surgery and radiation👏👊!
This is a great video! Definitely get you not knowing if you’re really you anymore!!
I'm happy (but also sad) it resonated with you🫂💕! It was such a relief to learn I didn't lose me, it was the medication the whole time. Hoping you feel more like you as time passes🙏💫!
Wow...what a wonderful way to start my Sunday! All the sharing you do has a special place in the hearts of anybody going through anything right now! God is using you mightily to bring comfort and reassurance to a very troubled world. The side effects of even over the counter drugs can be very disturbing especially when they effect mood/personality. 😳
Thank you for being honest as well as giving hope, Chels. BTW I saw the short video about the ultrasound for a lump, are you doing ok? Did you get results yet? Hoping and praying for you 3! God bless, Chels! Hugs! 🤗
Thank you so so much for your very heartfelt message! What a wonderful way to start my Monday! Awe thank you for checking in💝, the three of us are doing well and at this point there isn't a concern for that lump I got checked out🙏. I very much appreciate your thoughts and prayers. Wishing you the most wonderful day🌷🕊!
@@ChelseyTarnow So very glad to hear the good news! Praise the Lord! Have a great week, Chels!🧸
@@a.rosesrbleu9580 Thank you so much! You have a great one too!!!
Anyone adding Tamoxifen to their regimen should also have a therapist. I added a therapist to my care plan and she helps me regulate these emotions because she has a baseline for what my ‘normal’ was and when it’s off I talk to my onc and take breaks. Glad this is being discussed.
I totally agree💕! Thank you for adding this point and sharing! I'm happy you've found a balance that is working for you🙏:)
Thank you so much for sharing your experience. I just finished my last chemo yesterday. I still have to go through radiation. I recently started learning about the side effects of tamoxifen that I wasn’t aware of. I do have a serious history of depression and have struggled with my weight due to PCOS. I haven’t been depressed at all because I’ve been so motivated to fight and take care of myself. I’m also extremely grateful this was caught early. May I ask what your baseline mood was when you started tamoxifen? Alot of women are depressed at the end of the journey, understandably so. Im concerned about my depression flaring up.
Hi💕, thank you so much for you comment. I apologize it's taken a few days to get back to you. First of all... CONGRATULATIONS on getting through your chemo🥳💪🙌🙌🥳!!! Thar us such a huge accomplishment!!
To answer your question, prior to my diagnosis I was an extremely positive, big goals, big dreams person... anything was possible. Like you, throughout my treatment I was so focused on fighting ans beating it I was able to keep that positive, go-getter perspective. Even after 11 months of fighting I still felt mostly like myself... positive, excited to move forward and get back to living with other focuses again. For me, the medication made me feel a version of myself I'd never experienced before, depression was completely new to me. I hope this is helpful. Sending so much love as you move on to the next phase of your fight. You've got this❤💪!
The sad part is studies show aspirin if taken after your first diagnosis does the same thing. Every day . We walk around like depressed zombies instead because no one tells us that aspirin fights the estrogen, with no side effects.
Interesting, I've never heard of that! I'm going to ask my oncologist next time I meet with her.
Like I lissten myself from Words to words I was 2,5yrs on hormon herapy Double mastectomy staying flat, histerectomy and now 4 monts without pills feling like old me I was missing that person so much Its so hard when you lose yourself withaut life and soul
That is so amazing that you feel like yourself again too! You've been through so much🙏. What a blessing💫. Wishing you much health and happiness moving forward!
Thank you my dear, your strong and thank you. Stage 2, has both mastectomy's and I have been taking tamoxifen for 2 month and I have been awful. Brain Fog is most problem for me from all other side effects that I am going through. I almost had car accidents and my life is a Pause. After research, I've decided to stop tamoxifen. And I agree, my family & my active life is more important. My friend's sister is diagnosed with uterine cancer after taking Tamoxifen. Do I take chance and keep taking medication or live healthy full life? No more Tamoxifen. Thank you Chelsey.
Thank you for sharing wish you good health ❤
Thank you so much🙏💕!
Thank you very much i am doing very well now , hope it doesn’t come back 🌹🙏
Flax seed oil, experts say, is beneficial, akso w a bit of cottage cheese. A potential natural alternative.Good luck Chelsey!
Hi! Thank you for these tips! What are they found to be helpful for?
I just started hormone therapy and I really appreciate you putting this out there. I don't like taking meds, but my elder sister had a recurrence because she declined. I'm also a big advocate of quality of life recovery because otherwise, what is the point? I haven't experienced anything measurable yet, I've only started a week ago. Thank you for taking the time to share your experience!
Thank you for sharing your experience🙏! I sincerely hope that you never do experience anything measurable because of the meds except for continued health💫. All the best to you moving forward🌷
Hormone therapy can lower your chance of recurrence but it's no guarantee. I know women you have done everything (chemo, radiation & hormone therapy) & their cancer still came back.
@@melissabrown3976 a sad truth😔
@curiousuniverse438 you replied to this post a year ago. How has your treatment been going since then, since you'd mentioned it'd been only a week you'd started taken the hormone suppressant? Thank you.
I am on Arimidex as I was in my mid 60’s when diagnosed with B C , The first month was awful with bone pain but thank goodness it wore off , thankfully the only side effect I have now is insomnia ( terrible) , hopefully I will be finished with the drug this April 🙏
Thank you for sharing your experience🙏. The first hormone therapy I tried I had bad bone pain, but like you it wore off over time thankfully. Insomnia isn't an easy side effect to deal with all the time either😖. I'll be hoping you are done in April too🙏! Wishing you all the best, thank you for adding your insights!
How many years suggested by ur doctor?
@@vamsisidhu9837 I was recommended 5 years to start. It may be lengthened to 10.
My heart feels full for you. I know this was a year ago and hope all is well. You’ve helped me as I’m so damned conflicted with these pills. I felt so much better before I started the Anastrozole in March. Horrible side effects and even now during a break, I’m dealing with continued fatigue, insomnia, joint pains and now my mental state is scaring me. I’ve never dealt with depression but morbid thoughts pop in and out of my mind. Too many “”what ifs” when I think about recurrence if I stop these pills. I want to live and be happy. Cancer ruined my hopes of traveling with my husband now that we’re both retired. I feel insecure when side effects bring me down. I don’t feel like me. Maybe I need a therapist?
I'm so sorry you are feeling so terribly. I feel you, and I feel for you. It truly is so hard and so conflicting. I hope by now you feel better in some way🤞🫂
Thank you for letting us know, I was on tamoxifen for 2 weeks only, and the side effects were not good for me, I was stage 1 no chemo only 1 week radiation treatment, after I asked my oncologist if I could stop this medication. She said yes because I was in stage 1 and in a low grade level. That was day and night difference . I’m taking a risk I know. This was in 2022 March . Last week February 13 had a mammogram and ultrasound, today hit a call to have another ultrasound to do on February 21 now I’m getting worried about it! But thank you 🙏🏼 I did the same thing.
Thank you for sharing your experience! That is so crazy that you felt the side effects after 2 weeks. I can't remember how long it took for mine to kick in. Thinking of you you sending positive thoughts your way for an all clear after your next ultrasound sound🙏💌💫
Can you please update us on your mammogram result, praying that it is all clear.
@@katiomarryan4932 Thank you so much for checking in
@@ChelseyTarnowhow are u now? Did u took mri
@@MarieTerrible-ny3tc I am doing well now, thank you so much for asking! More screening this month.
Thank you for sharing this. I can tell you from experience that it takes several months for the hormone to leave your body. After that I was sleeping well & feeling better in general. My Dr wants me to get back on letrazole but I honestly don't know if it's worth it. I have one thing to ask, can you please speak a bit louder? Maybe it's my laptop but it's hard to hear you. God Bless. I'd love to know how you are now.
Hi! Thank you so much for sharing🙏, it's it's nice to hear other people's experiences as well. I'm so happy that you are feeling better and sleeping well. I totally understand the decision to go back on is a big one... I ended up making that decision for myself after having my son. Besides that I am doing well ans loving life as a mama💕. Thank you for the suggestion, I will do my best to speak louder!
I was taking Letrozole so much bone pain can’t even open a bottle with the pain I have on my fingers 4 months my oncologist change my pill to anastrozole now I have itching in my body I don’t know what to do I don’t want to have cancer again but I’m so tired it’s not me I use to be so happy now I’m always sad thanks for the video
I'm so sorry you are having such a challenging experience Angelina😔. You are not alone. I also wonder what's the best for me. Thank you for sharing. I hope over time you feel better🙏🙏
This made me cry. I’m so sorry for your suffering. I have chronic bone pain and am just starting my cancer journey, I’m having surgery next week and then 5 weeks of radiation. I am simultaneously adjusting to the onset of dementia with my husband so it’s overwhelming.
@@penniewyatt9391 so sorry I know what you are going through I had 25 radiation but you will be ok sorry for your bone pain I have a lot of bone pain but I’m going to make a appointment with a rheumatologist see what they say if you ever need to talk you have a friend here good luck in your journey 🙏
Letro is so dam strong just nukes estrogen to nothing. Dry skin and hair. Tired and weak. Roloxifine was least harsh of all the Ais and Serms imo
Aromatace Inhibitors don't prevent cancer from coming back. There is a 50% chance of a drug resistant ESR1 mutation cancer that is aquired and common. Look at the NIH clinical studies.
o and I put in almost 30 kg since taking hormone blockers in one year and lost all appetite. I am having pain in my bones and joints a nd cannot sleep cos of neck pain that is unbearable. I have fatigue and get tired, I am tired all the time. I have no life and sometimes no energy even to do things I love to do
Oh man, that sounds terrible, I'm sorry again. It's so challenging, I hope one day there is another option with less side effects.
Thankyou for this. I’m in a dilemma, I’ve been on tamoxifen for a year now and I’m suffering hairloss, aching bones, dark patches on my skin and I’m exhausted all the time. I’m 51 so I don’t know if that’s down to age. I’m terrified the cancer will come back but I’m desperate to get some kind of quality of life back. It’s such a difficult decision isn’t it😟x
Thank you for sharing your experience. It IS such a difficult decision!!! I honestly fight with this decision most days🤕. I hope you are able to find some clarity, or a knowing in what is right for you🙏. Sending lots of love💌.
@@ChelseyTarnow Thankyou so much Chelsey🤍x
I am 49 in a few months. I get my breast cancer biopsy news tomorrow morning. However, for the last 2-3 Years I've been experiencing the same symptoms as you with the exception of hair loss. I've had family members who have taken it for years and my mum sadly passed away from ovarian cancer. I honestly suspect I have something or c which is hormone driven. I have had endo since my 20s and was finally diagnosed with that at age 40 when I was told it had caused so much internal damage and I would probably never have a child and would need IVF which failed after 5 attempts. I'm blessed to finally have a little boy, but now these symptoms, aches, fatigue, shortness of breath, pain etc are debilitating. Xx Wishing you all the best
@@tarat26Thankyou I’ve only just seen your message. I hope your doing ok. x
How long did it take for you to get your period/regulate your cycle after coming off? My three month shot wore off April 11th, and I am waiting for things to go back to normal. Thank you for sharing this, the way you felt emotionally is exactly how i feel/felt, you took the words out of my mouth. I am 33 and hoping to have another baby, so hoping it wears off soon!
Oh yay!!!! I'm so excited for you! What an incredible journey you are embarking on! I still got my period while on Tamoxifen... I was told to wait 1 cycle before trying for our babe, 1 decided to wait 3. I wish you all the luck in creating your little miracle. There is so much hope my friend💕 xo
Thank you for sharing! I stopped Tamoxifen seven months ago, and only took it for six months. I continue to have extreme muscle and joint pain. Did you have those? If so, how long did it take for the pain to go away?
Hi Nancy, I had extreme muscle and joint pain the first year of hormone therapy while I was on Zoladex and an aromatase inhibitor. At the time I found that adding a natural collagen supplement to my routine helped, but I'd check with your health care provider to see if it would be a good fit for you specifically.
@@ChelseyTarnow did the pain go away after stopping tamoxifen? If it did, about how long did it take for the pain to go away? Thank you so much!
@@nancyhamilton1993 I kept up with the collagen and the pain didn't come back. It wasn't one of the side effects I experienced from the Tamoxifen. Sorry I cant be of more help or provide more insight on your question :s
I had the same symptoms. Still having muscle pain and bones trouble
Thanks for your experience. I picked up the med yesterday and still deciding what to do. I am almost ready to reject it.
Happy to share. It's such a hard and personal decision to make. My heart is with you♡
My meds is still at the Walgreens, I’m dreading on picking them up. I feel like a ghost in a shell already I don’t want hormone pills, God why?
@@mulamoney4022 You could try them and discontinue if they don't agree with you. Some people just have small side effects, like occasional hot flashes. Don't feel bad if you have to stop due to quality of life issues.
When my endometrial thickness became 13mm, I really became scared. Until then, I was ok with all the side effects that came along.
hi
you are so right. I couldn't take it as I was feeling so unwell taking it. unfortunately, the cancer came back and now I am taking it and feeling sick because of these hormonal meds. I am so so much better without them. It's not easy taking hormonal blockers ohhhh
I'm so sorry to hear that your cancer returned. Sending many positive vibes your way for you in your fight.
And yes, I would agree, navigating life and side effects of hormone blockers is quite challenging.
So my wonder is with endocrine and ovary suppression medications ("hormone therapy" is a not what my oncologist uses but ovary suppression/endocrine therapy)...is it pretty much like going through menopause? Because honestly when i started perimenopause i thiught i was loosing my darn mind. I'm alreasy experiencing hot flashes, osteopina, more depression, brain fog, short term memory issues, and elevated blood pressure. I just haven't had the full year of no periods yet but 4 more to go and i will (almost to the date of my dx). I will start ovary suppression/endocrine therapy monday.
Some women have no issues but I'm sure it depends on the woman but am wondering if it's younger women more affected due to having more estrogen in their bodies still? Those with already low estrogen maybe used to the cruddy side effects of menopause. 🤷🏻♀️
Interesting! This is such a good point to bring up and be curious about! Unfortunately, I don't have any insights for you, but I'd definitely ask your oncologist. If you do and you feel like sharing what you find outside ve very interested🙏💕. Sending positive vibes your way!
My oncologist said I don't have to take tamoxifen it's just recommended. But, in order to have kids, I have to be completely cancer-free. So, I'm really hoping that my chemo and mastectomy does the trick.
I feel you💕. It's such a tough decision. I also hope that your chemo and surgery take you to a point where you are completely cancer free💫!!! Sending many positive vibes your way!
Why is it that women need a reason other than themselves to stop the med? Just an observation. We are enough. Our experience is enough. Thank you for sharing yours.
I hear you and I appreciate your thought process and comment so much! Thank you for adding your insight🙏❤
@@ChelseyTarnow Aw, you are welcome!
I am Stage lll with 22 lymph nodes removed during double mastectomies. (ER+ HER2- ) 19 of them were cancerous. I refused chemo. I am an RN and had been a hospice nurse for 18 years. I did do 27 radiation burns. 5 doctors helped me choose zero chemo as we know it is forced $$$$. I have made it 4 years now. I have done anastrozole hormone therapy for 4 years. Not sure I can go on 6 more years. I am 72. Trying to conquer side affects. Beware of the money grubbers guys! Do homework!!
Thank you so much for sharing! I never even considered $$ grabbing. Wishing you continued health moving forward🌷💫!!
My oncologist wants me to do hormone therapy for my cancer...a daily pill and a monthly shot. I have been feeling pretty much the same since I found out my cancer is hormone receptive, that I truly don't want to take a pill everyday for at least five years and a shot once a month knowing it is going to really impact my quality of life. And with all the research I have done, I feel even more strongly that I don't want to do that part of treatment. But feel in a way kind of guilty because of those who care about me and what they may be feeling because of my decision. I also have the thought in the back of my mind of am I going to die if I don't do the treatment? My gut feeling is no to doing hormone therapy but idk, it's a very confusing time 🤷
It is soooo confusing! I totally agree! There are so many moving parts ans things to consider it's no easy decision. I hope that over time you come to a decision that feels right for you. Something to keep in mind is if you make a decision you can always change your time either way. Sending much love and hopefully clarity💕🌠
I have to have a mastectomy on January 20th. I'm more worried and afraid of the recovery than the cancer. I don't want to take any of that hormone crap either.
Hi:). Did you happen to watch the video I made with some tips to prepare for surgery? I'll link it below just in case you didn't see it. In my experience the recovery does take some time, but every day I felt better especially after the first week. I haven't had the best experience with it side effects wise, but everyone is different:).
10 Tips to Get Organized for Mastectomy Surgery...⬇️
ruclips.net/video/TjIzDciwDBI/видео.html
@@ChelseyTarnow I'll check this out. Thanx. Hope you get better soon.
@@dm8553 I hope you find somethings helpful! Thank you🙏
I was on tamox and cancer came back switched to letrozole which has side effects but tolerable with Ibrance everyone is different life changes after a cancer diagnosis there is no question and suddenly it’s all very real this is not a dress rehearsal so enjoy everyday as best you can ❤
I totally agree❤! Thank you for sharing🙏🌷!
Thanks
Thanks for watching!
I’m I’m Letrozole for seven months now and my blood calcium is sky high. The blood test shows it’s not my diet, scan and tumor markers shows no cancer next is the tamoxifen, I have this feeling that the tamoxifen is causing it. A friend of mine was on tamoxifen and had to have half of her thyroid removed because of high calcium.
If anyone can give me advice it will be appreciated.
Thank you for sharing! I haven't heard of this yet, but it is something to definitely be aware of. Sending positive vibes your way. I hope you can find out what is going on🙏🙏
Hi. Congratulations. I m trying too after treatment and would like to ask at what age did You get pregnant? Did You get pregnant naturally after treatment or bybusing frozen eggs from before chemo? For chemo did You have epirubicin cyclophosphamide and taxol? How many years did You have tamoxifen and then stopped trying for a baby? I managed after there years of treatment to get 2 eggs but the embryos did nor get a pregnancy and i m almost without any chance of getting pregnant naturally. Thank You and good luck!
Hi Mary, thank you so much. My heart goes out to you as I know what it feel like to want something so bad and not be sure if it will happen. I got pregnant at 37 naturally. I was on hormone therapy for 2 years then decided to take a break to try and get pregnant. I hope this information helps you in some way or provides hope that you too can create your own little♡.
Thank You. Congratulations. So happy for u u deserve the Best! I pray for a Little one. I m 35 but worried that the chemo destroyed my eggs but i got my period back when i stopped tamoxifen. I will try again i pray i ll have my Little one too.
I think there should be a totally different point of view on hormonal breast cancers. How can my hormones and my period make me cancer?? It's unbelievable. The cure must focus on something else.
It's something I had no idea about before my diagnosis😔
Chelsea, you look beautiful!
That's so kind of you to say! Thank you🌷🌻💕!
❤
🌷💕
I have to get my ring resized, I lost 40lbs this year due to improvements in my diet and exercise regime and it doesn't fit anymore
That's amazing Liam, good for you! What an accomplishment! I hope you are feeling so good and proud of yourself:)!
@@ChelseyTarnow I made a tracking spreadsheet to track all my walking and motivate myself to walk 4km per day and have hit about 90% of days
@@evileyeball that is seriously so awesome! Do you find you feel better too? It's not an easy thing to do!
@@ChelseyTarnow Yes I do, I Just take a 390m loop of my street at each coffee break/lunch break during work (work from home) and 2 after work in the morning and then 5 in the evening to make 10 loops. or just 10 anytime on my days off. Combined with tracking my eating in an app (Cronometer) on my phone and lessening my carb intake its been actually easier than I thought haha.
@@evileyeball that's so awesome! You've got it down to a science! Well done!
My life is currently, shades of gray…struggling with these conflicting ideas, daily. I will not live my life like this.
My heart goes out to you. Know that you are not alone. Sending much love and hope for a brighter future♡
I refused hormone therapy.
My family doctor advised me to eat ground flaxseed every day. My gynecologist suggests hormone therapy at every visit, but I feel comfortable with what I do.
Good on you for doing what's best for you!
I feel the same
I'm so sorry to hear that. Know that you aren't alone, and it isn't your fault❤
I'm 67 and won't go on hormone therapy. I prefer quality of life ❤. I just went through deep flap and double mastectomy. I also carry the check 2 gene. Great life to all ❤.
Thank you for sharing🙏. I totally understand your choice. Thinking of you and hoping your recovery is going well💫🌱. Sending positive healing vibes your way💕!
I used tamoxifen for five years. It caused thickness in my uterus and bleeding so I had to have a total hysterectomy ( precancerous)
Oh my gosh! Thats terrible you had such an adverse experience😫! Thank you for sharing. I hope you are in good health now🙏🌷
PLEASE LET ME KNOW IF I CAN STOP THIS TAMOXIFEN.I HAVE TOO MUCH PAIN ON MY SHOULDER PAIN.BONE..I HAVE BREAST MASTECTOMY.BOTH BREAST.I HAVE ONE MONTH TAKING TAMOXIFEN
@elinabalt7716 I AM A WIDOW,AT MY 40 N I DO NOT WANT OTHER AN.MY FEELING N MY LOVE BURRED ALONG WITJ MY HUBAND.THANK YU FOR YOUR REPLY. I HAD SOME CLUE OF MY TAMOXIFEN
@elinabalt7716 THANK YU FOR FOR THE OPINION. ❤️.
Honestly, it's such a hard decision, but ultimately the decision is yours. Get all the information you can and do what is best for you and your life❤. My heart is with you.
I would reach out to your doctor especially any bone pain!
Originally started on Anastrozol. My fingers seized
After Anastrozol made my fingers seized I was switched to Tamoxifen. I took it for about 2 1/2 years. It was prescribed by breast surgeon. She became furious with me when I said I couldn't take it. I went to my Oncologist..he looked me straight in the face and said....When did you dtop?stop?.I said 2 weeks ago. He said dint worry about surgeon. I will deal with her. Well, I dealt with her too. I got a trauma plastic surgeon to fix the reconstruction, had onco take over my follow ups. About a month after I stopped Tam...I stepped outside and noticed the sun was shining and the sky was blue. I had been living in a world of gray...I've had 4 surgeries on my fingers...direct result of Arimidex. My skin never really recovered from the bloating caused by Tam. Weight gain never went away, but people think I've lost a lot of weight. I have heard these pills help some women, I certainly hope do. A friend that has an unusual type of cancer begged me to stop Tamoxifen. He wentvthe organic route . It worked for him. I am a 10+ years survivor now. But I don't go around saying that. I quit a support group because that was all they talked about, but here I just wanted to share these drugs have serious side effects that don't always go away. Thank you for sharing.
It's so crazy how much the medications can alter how the body feels. I hope you've found a better fit
I had lumpectomy,and finished my radiotherapy,and NOW I should start THIS hormone therapy for 5 years plus injections of Zoladex....is it possible to decide NOT TO EVEN START?....I don't know if it's better to TRY IT and than to QUIT,or not to even begin with it....?....
I hear you... and honestly, I don't know the answer. It's such a hard decision. I would raise all your concerns and questions with your medical team and get all the information you need to make the decision that is right for you. My heart goes out to you. I found/find these decisions so overwhelming, daunting and hard to make. You'll know what is best for you. You've got this!
@@ChelseyTarnow Thank you for your reply❤️
Greetings from Croatia❤️🤗
@@janna7777 Hello to you from Canada💫🌷🌻:)
6 years ago I had a double mastectomy and was due to have 9 months chemo and some weeks of radiation. I decided no to all this and no to Taximoxin and at age 71 now have never regretted my decision. My cancer nurse was furious and was very unpleasant to me. I have survived well and enjoy good health. I eat a clean diet with GF bread and almond milk and no cured products except three times a year I like ham on the bone. I use a little natural progesterone cream daily for my osteoporosis and all good. Trust your gut feeling which is your intuition. Shalom ☘️👍
@@shirleyvigus8938 I'm glad you are doing ok and are in good health!I also think that is very important to listen to our own inner feeling and be strong,brave and full of optimism, and to eat healthy,to be physically and mentally in a good shape and state of body and mind!,to be physically and mentally HEALTHY to fully recover and enjoy in HEALTH.
We are strong❤️🙂🤗
I'm just just starting my chemo. I'm 68 years old have estrogen/progesterone feed HER plus ductual breast cancer. I had breast removed and surgeon butchered me. Next day after surgury when visiting nurse came and took bandages off, I had massive hematoma because dr. Never sealed up arteries and blood vessels. Nurse called surgeon saying what dod you do to her. 2nd day after surgury I'm at office getting staples ripped out and bleed out with plummeting and shoving. Then every other day for almost 3 solid months I got bleed out. Surgeon cut me with sizzles and shoved uncleaned metal big syringe in me clear to collar bone with peroxide over and over again. No pain killers. I had jp tubrs in me for 40 days cause was bleeding out so bad. I got bad skin infection and blood infection. Kept opening with sores. Clothes were always full off blood. I had to sit in chair with feet up cause was bleeding really bad. I had to use xlarge pads all over chair so didnt bleed on chair. I still have massive hematomab
I still have massive hematoma. Radaition dr. Can't do radiation with massive hematoma. I started my my first chemo. I go in few days to start second chemo with the really bad side effects tamoxifen. I'm allready crippled with really bad legs. The tumor was size of large grape and grew fast. 2 lymph glands were involved. I find out this week if cancer went to brain
Please pray for me and all others facing breast or another other kind of cancer. I have to go 2 years for chemo.i don't know if I can do that. My first treatment has had me having bad runs and extremely sick to stomach.
Oh my goodness, I'm so so so sorry that on top of this traumatizing diagnosis you've had such a horrible experience with your medical team. I truly send you so many prayers💫🙏💫🙏💫!!!!
D you tell me where you had this done,,,,,,as it sounds like you are unbelief ably strong ,,you need to go to get compensation ,because that is unacceptable,,,,,
OmG who did this butchering and obviously was paid..not at all humane and acceptable in this century 😮🙏💕⁉️
This is TERROR....cannot believe......
Did you consult quitting tamoxifen with your oncologist? If so what did he/she say? Was your oncologist supportive or just puffed up her cheeks, rolled her eyes meaning "do as you please"? My point is does it make any sense at all to ask an (not necessarily your) oncologist if you should stop tamoxifen? Or they will never say it`s a good idea? Are there any factors that will indicate a greater or lesser probability of a recurrence given this or that biological feature of the tumor they found out in a lab after mastectomy? Or it simply doesn`t matter? I mean is there anything at all to fall back on other than just statistics, something objective? Do they really know, or they just guess?
I definitely consulted with my oncologist. I trust her opinion, expertise and judgement greatly. The reason I finally made the decision to go off was to try and have a baby. She understood, and gave me her educated blessing to take a break if I chose.
@@ChelseyTarnow Thank you for replying. We really appreciate your videos (my wife and me - going into details about cancer and communicating it to others overwhelms her at times, so I am writing this for her). A vague sense of not being yourself you talk about is exactly the way she feels on tamoxifen: it`s a sense of being subdued, held back or hindered. It`s great you have an oncologist you can trust.
They need to outlaw Tamoxifen no human being should be taking that, I refuse to take hormone medication I will live the rest of my day’s however long with joy quality of life is very important to me.
Thank you for sharing your perspective! Quality of life is so so important!
I had no side effects with tamoxifen and as soon as I stopped taking it, my cancer came back / metastasized to my chest wall causing pleural effusion. It does help delay a reoccurrence and cancer cells can easily leave the tumor even if it is early stage 1 like for myself.
So you stayed on hormone therapy for 2 yrs? Isn't the recommended 5 yrs? I presume you just couldn't do it anymore after 2 yrs and your quality of life was greater than the benefits of the medication. Is this all correct?
I'm getting ready to start hormone therapy.....very scared to take it.
Hi:). From the beginning my oncologist knew my husband and I wanted to have a baby. She implemented extra reproductive protection during chemo to preservemy fertility. When it came to hormone therapy she recommended I stay on for at least 1.5 years before she would feel comfortable with me taking a break to try for a family. Her recommended was based on studies. So that is what I did. I found it daunting too... try to take one day at a time and see how it makes you feel. Thinking of you. You aren't alone🌷
Thanks Chelsey. You're the best!
Were you able to eventually finish out the 5 yrs after having your baby?
@@pamelakrueger7353 I'm still in the baby phase now! The plan is to finish out thr 5 years after though:). Thank you for being here with me and your positive support from a far🙏💓!
All the best to you and your journey 🍀🍀🍀💪💪💪.
I guess you speak about the old, synthetic HORMONE DERIVATIVES (in pill form)? Not modern bodyidentical transdermally applied gel and especially micronized progesterone (which is so soothing for anxiety and promoting sleep). The old, depression-causing "pill-hormones" have nothing to do with modern HRT....
Interesting, yes I am talking about the pill form. I didn't know there was a new option out there. Thank you for sharing.
@ChelseyTarnow You're welcome! Saved me from joint pain, frozen shouldet, sleeplessness, growing anxiety, brain fog and many other smaller symptoms. I recommend Dr. Louise Newson's podcasts - very informative motivated by a zest to help women who suffer ... Good luck to you 💪🍀 (from Germany)!
i refuse to take it in 2019 , i was 48 got cancer
I'm so sorry to hear about your diagnosis. I hope you are doing well with good health now🌷💫
@@ChelseyTarnow Thank you very much i am doing well till now, i hope doesn’t come back 🌹🙏
@@kaiinayat9357 that is wonderful news🙏💕🌷!!! Thank you for sharing🙏. Wishing you continued health!
Myomin is the answer
I don't know what that is...?
If men had to take these medications, there would be a more humane treatment.
I hope one day there is an option that offers me an increased quality of life as well as the medical benefits🙏🙏
You really dragged through this video. Excruciatingly depressing. I've had the same experience and yelped with exuberance. Stop the self-pity. 😢
Thank you for sharing, happy to hear you are feeling well!
There needs to be much more support for women going through breast cancer after surgery etc. I am here in Spain and I was laughed at by the 2 doctors in my appointment when I said the reaction I had with Letrozole. I know it is only a tiny pill, but I honestly felt like I was dying from around 1 hour after taking it. I only tried it twice. They told me to take it just before I went to sleep and then I was woken up with these awful feelings, itching and pain and weirdness and clicking in my head and was awake all night feeling terrible. They said it was a coincidence and nothing to do with the pill, but it only happened when I took it. I have now started on Tamoxifen but I have halved my dose to 10mg per day just hoping to ease myself into it. Also maybe when the next studies come out (new study trials at the moment) 10mg may be the new prescribed dose. My friend has been on 20mg of Tamoxifen for 3 years and instead of being laughed out (different oncologist) she was told there was no other option for her and she should just suffer, she is suffering so much. Also can you take DHA when on Tamoxifen? The oncologists here do not seem to look at all the hormone levels and come up with a plan to make us feel well. It is almost like you have breast cancer so now you have to feel terrible for the rest of your life. With the Mamaprint and other studies if you are a low risk of recurrence do you really need Radiotherapy, which can do alot of harm if not done properly. Hopefully soon they will come up with better therapy guidelines for Stage 1 oestrogen positive breast cancer that can help women live happy healthy lives. Certainly I have been shocked at the treatment here in Spain. With the increase in the number of women getting breast cancer due to factors in the environment changes need to be made. Also I am not a fat alcoholic woman (which is what they seem to say in the news here as the cause of the increases in women being diagnosed). I am a fit healthy 52 year old woman who does daily yoga, running swimming, biking and has always eaten really healthily. I am also the first one in my family to be diagnosed with breast cancer.
Thank you so much for sharing your experience! I'm sure there are others reading what you went/are going through who can very much resonate! And I'm sorry you've had such a terrible experience. I too have found the hormone therapy aspect so challenging and for me one of thr hard parts to wrap my head around is how long its going to continue to effect my life moving forward. With that said I am thankful for the possibility of it decreasing the chances if reoccurance moving forward. I do hope one day other options that don't effect my quality of life so much will be available. You aren't alone🫂🌷. Sending continued strength and resilience from Canada💕
I have the same stage 1 and i am on 2.5mg letrozole been taking 3 years and take 12 noon every day, to me those doses are very high you mentioned, also i did not go back to oncologist at start of this journey.
Hi Ding 🛎🦦.
🐕👋👋🐶 Big town nap gal these days.
Thank you so much for this messages or making this video🥰 It means so much to me. Especially, I just had done my mastectomy surgery and Im still in the process on healing ❤️🩹 and trying to digest my Doctor’s suggestion to take hormone therapy like yours. I got DVT from my neck due to the port-atheter, that was horrible and until now I am taking Eliquis due to blood clot of the port. I am 42 yrs old very healthy and no maintenance but since I had my chemotherapy my body is in bad condition. Anyways, my heart and soul is against to take hormone therapy. It so much relieves knowing and watching your videos💞 this is a huge deal for us, who was diagnosed of having a breast cancer. GOD connecting our souls together and having a conviction for searching the TRUTH for not harming our health or body the our Creator given to us… is LIFE❤️🩹🙏🏽❤️🫂💞 GOD BLESS US ALWAYS❤
Thank you so much for your kind message and connection🙏🌷💕. Hormone therapy is such a hard decision ans life you say such a big deal! What is the "right" decision is different for everyone. I would recommend to ask your doctor all the questions you can think of so you can make the best, informed decision for you. Sending you so much love and healing vibes this morning💫💌🫂!
Thank you for posting this. I just started tamoxifen. I am less than a month in. I am also on efexor. Instarted taking Efexor during chemo to stop the constant crying. It helped tremendously. Anyway, I now take both and so far I don't feel any side effects. I do not like to take medication at all. This is so hard for me. It's comforting to hear other women's opinions and experiences.
Happy to hear it comforted you:). I'm like you, I don't love taking medications so this journey have been challenging for me. But at the same time I'm so thankful for thr medications you know... Yes! Efexor, was the one I tried too. I'm so happy it has helped you! So rooting for you and hoping you continue to not feel any changes moving forward on Tamoxifen♡!