Hey Amber, thank you for this video; I just got a job as a pediatric nurse, and it's young people like you that made me want to do what I do! I love how innovative you were in modifying your backpack; you thought outside the box in order to get your needs met, but also to give you a sense of normalcy, and I think that we need more people who think like that creating products for those who have special medical needs. Hope you're having a lovely day in the UK, and thanks again! - xx, A
Hi may i ask since you use that machine for a long time. Have you encounter the warning sign "out of pump" but in manual it means the problem is from pump to patient but its not connected yet to the patient the milk in the tubings was not pass through smoothly its like there is some clogde inside the tube but the tube was clean and new. Hope you answer my concern i'm new in this machine😔
Any advice for me I’ve been in the emergency room yesterday for gastroparesis and I’m still sick having to take medicine but still vomiting when eating soft foods and Liquids I’m wondering what I should say to my gastro doctor who I’m seeing in 7 days
Hey, I’m so sorry for the late reply! When it got to the point of throwing up my medication and everything else that’s when I was admitted for my nj tube. They look at 3 things, malnutrition in blood work, BMI, and medications (ie how you’re coping) to assess for one. I hope you’re being looked after well. And I’m sorry to hear you’re at this point xx
@@amberriggs4683 I didn’t get a feeding tube my gastro doctor says I’m still mild Gastroparesis but that was a horrible flare I’m still in the flare but at the end of it and my gastro gave me Medcine that is helping so yeah reglan and another one
@@alyssawssinging4039 glad you got medication unfortunately due to my heart I’m not allowed many meds that help so feeding tube was my only option when it got worse xxx
I also have Gastroparesis I did have an NJ tube and now I have a Peg-j tube is it an NJ you have in? :) just found your channel & subbed. I hope you’re feeling a bit better? how are you getting on? I love my backpacks I got 2 Toki Doki backpacks and got them adapted by Tubiee Go. I’m J tube fed over 24 hours (feeds & fluids) x
You’re doing a good job.
Hey Amber, thank you for this video; I just got a job as a pediatric nurse, and it's young people like you that made me want to do what I do! I love how innovative you were in modifying your backpack; you thought outside the box in order to get your needs met, but also to give you a sense of normalcy, and I think that we need more people who think like that creating products for those who have special medical needs. Hope you're having a lovely day in the UK, and thanks again!
- xx, A
WEDNESDAYNIGHT 11TH FEBRUARY FRANCIQUE ERIC IRENE
Nice video. I have a g-tube and have multiple hour long feeds. Sheesh!
What is like to have a feeding tube I may have to get one
Brilliant video, very informative. I love your backpack
Hi may i ask since you use that machine for a long time. Have you encounter the warning sign "out of pump" but in manual it means the problem is from pump to patient but its not connected yet to the patient the milk in the tubings was not pass through smoothly its like there is some clogde inside the tube but the tube was clean and new. Hope you answer my concern i'm new in this machine😔
I really love 💘❤💕💖💗♥ your channel ❤.
I would like to know what happened to you I have dystonia I almost died 2014 now I doing awesome
Im new to your Channel greetings from Germany
Any advice for me I’ve been in the emergency room yesterday for gastroparesis and I’m still sick having to take medicine but still vomiting when eating soft foods and Liquids I’m wondering what I should say to my gastro doctor who I’m seeing in 7 days
Hey, I’m so sorry for the late reply!
When it got to the point of throwing up my medication and everything else that’s when I was admitted for my nj tube. They look at 3 things, malnutrition in blood work, BMI, and medications (ie how you’re coping) to assess for one. I hope you’re being looked after well. And I’m sorry to hear you’re at this point xx
@@amberriggs4683 I didn’t get a feeding tube my gastro doctor says I’m still mild
Gastroparesis but that was a horrible flare I’m still in the flare but at the end of it and my gastro gave me
Medcine that is helping so yeah reglan and another one
@@alyssawssinging4039 glad you got medication unfortunately due to my heart I’m not allowed many meds that help so feeding tube was my only option when it got worse xxx
I also have Gastroparesis I did have an NJ tube and now I have a Peg-j tube is it an NJ you have in? :) just found your channel & subbed. I hope you’re feeling a bit better? how are you getting on? I love my backpacks I got 2 Toki Doki backpacks and got them adapted by Tubiee Go. I’m J tube fed over 24 hours (feeds & fluids) x
Aww, I have a Mick-key feeding tube In my tummy and you have a tube in your nose. :( Hope you get used to it!
What a nice young lady
Way you have a feeding tube can you eat by mouth too
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