OMG, I can’t begin to tell you how you have opened my eyes to your conditions, my heart goes out to you, me and others moan about a cut never mind trying to imagine your pain, you are a such an inspiration to others and your videos have literally had me in tears with what you go through daily, i love the videos when you tell us what you go through it helps me see a part of what you have to go through and it helps others in the same condition your in, lots of love from me and my family ❤️❤️❤️
Thank you for sharing. I work a tube manufacturer company, I’m an operator there. I make the tubes. Now I know how important my work is to the clients.
So I get my tube today and I came back to watch some videos on tubes, And I notived your accent has changed since moving to aus! You have much more Aus sounds in your words than you did before hahaha!
I know exactly what you're going through, my brother have the same feed set up and even the same pump. He has something different but need the same. I just discover your RUclips channel and I think that you're so optimistic about everything. Wish the best for you really.
You mentioned having to sterilise smaller syringes to re-use them - if you want to get some extras yourself, I buy mine on eBay or Amazon (I used them for measuring liquid medication). They come individually sealed like the ones you showed. Just thought that might be useful so you don't have to spend time sterilising if you don't want to.
I remember when I was younger (13 now) and I had a feeding tube till I was five it would always leak and my teacher would never feed me through my tube which was a problem
I know this is an older video but I was just diagnosed today with gastroparesis. I was shocked and horrified, angry and confused so I am glad you have your channel. I am hoping to stay away from tubes,but I know if I need them its okay. I am glad to have a diagnosis now so I can tell people "see I'm not picky I'm just digestively challenged".
Ensure Plus Chocolate! I have had so many bottles of that. It is a poor substitute for real food, but a heck of a lot better than nothing. I have a love/hate relationship with Ensure, LOL.
I'm with Nutricia so mine looks a bit different but still the same idea :) I get deliveries every 2 weeks rather than monthly. With Nutricia we get syringes that we use for one week so with my delivery I only get 2 syringes every 2 weeks rather than 14 every 2 weeks x
I had a feeding tube for 8 months...it Was horrible to me. When the nurse put the tube in mi nose it hurted so bad. Love your videos by the way ☺️a big hug from Switzerland ❤️
I miss you sweet angel I'm watch all your videos , to leave all the love I can , before I come to see you I'm sick and things aren't good . I hope I see her ans alot of others soon
Wendy Wang I’m pretty sure that in another video I watched she said that the feed goes past her stomach and bc nothing goes into her stomach she won’t feel full
I have an NJ and your body starts to figure out that you're getting nutrition elsewhere so it doesn't make you hungry! So I don't feel full, but I don't feel hunger, if that makes sense!
OMG, I can’t begin to tell you how you have opened my eyes to your conditions, my heart goes out to you, me and others moan about a cut never mind trying to imagine your pain, you are a such an inspiration to others and your videos have literally had me in tears with what you go through daily, i love the videos when you tell us what you go through it helps me see a part of what you have to go through and it helps others in the same condition your in, lots of love from me and my family ❤️❤️❤️
Thank you for wwll the love is miss her so much
Was really interesting to watch, I don't have a feeding tube so I know a lot more about it now
Love
Great video yet again 👍🏻 I love videos like this. Could you please do a medical tour like where you keep everything and how you organise it all? 💕💕
Becca DoesMusic i
Thank you for sharing. I work a tube manufacturer company, I’m an operator there. I make the tubes. Now I know how important my work is to the clients.
What a bright, brave girl! I miss her so much! She gave so much to the immune compromised world. 💕
There's so much involved in getting a feed in - you're amazing for going through all of this every day without complaining. =)
If you still get spoonie essentials boxes you should do an unboxing of those each month
alexis looper I don’t unfortunately 😕
So I get my tube today and I came back to watch some videos on tubes, And I notived your accent has changed since moving to aus! You have much more Aus sounds in your words than you did before hahaha!
I know exactly what you're going through, my brother have the same feed set up and even the same pump. He has something different but need the same. I just discover your RUclips channel and I think that you're so optimistic about everything. Wish the best for you really.
You mentioned having to sterilise smaller syringes to re-use them - if you want to get some extras yourself, I buy mine on eBay or Amazon (I used them for measuring liquid medication). They come individually sealed like the ones you showed. Just thought that might be useful so you don't have to spend time sterilising if you don't want to.
I miss you and your videos , hope all is well love you 😍!! I’m watching some of older ones .
She passed away around the time you made this comment
I remember when I was younger (13 now) and I had a feeding tube till I was five it would always leak and my teacher would never feed me through my tube which was a problem
I know this is an older video but I was just diagnosed today with gastroparesis. I was shocked and horrified, angry and confused so I am glad you have your channel. I am hoping to stay away from tubes,but I know if I need them its okay. I am glad to have a diagnosis now so I can tell people "see I'm not picky I'm just digestively challenged".
This was so interesting. I have a feeding tube but I'm in the US and my supplies looks soo different!
Thank you so much Amy you’re a bloody star!!!!
I can’t even put into words how grateful I am- you’re the best x
Your welcome 💖💖💖
Ensure Plus Chocolate! I have had so many bottles of that. It is a poor substitute for real food, but a heck of a lot better than nothing. I have a love/hate relationship with Ensure, LOL.
DarkBlue Matter me too :)
I'm with Nutricia so mine looks a bit different but still the same idea :) I get deliveries every 2 weeks rather than monthly. With Nutricia we get syringes that we use for one week so with my delivery I only get 2 syringes every 2 weeks rather than 14 every 2 weeks x
I had a feeding tube for 8 months...it Was horrible to me. When the nurse put the tube in mi nose it hurted so bad. Love your videos by the way ☺️a big hug from Switzerland ❤️
Why don't you get a GJ tube or a J tube?
Hey Amy, I'm a huge fan of yours!! My current feed is Jevity 1.5, what the difference between vital and jevity? Xxxx
Hi amy just to let u kno Abbott do send out small syringes as my brother gets 4 different sizes 5ml,10ml,20ml,n 60ml so pls check
Are you moving to Australia forever?? I’m a pretty new subscriber so I’m sorry if I am acting a little dumb 😂😂
My deliry just came time change and put it alk out
Did you do one of these as an Australian edition?
You are so amazing
Did anybody notice at 12:21 it was not open
Beverley Mar, the seal breaks when she tightens the cap
Can u ask for a feeding tube if your stomach doesn’t react well with food or u feel sick after
My sister's father in law works for Abbott!
I miss you sweet angel I'm watch all your videos , to leave all the love I can , before I come to see you I'm sick and things aren't good . I hope I see her ans alot of others soon
Does the NHS fund all this or do you have to? X
DanceRus 12 NHS (:
Is this all payed for by insurance?
1jazzyphae it’s payed for by the NHS x
Amy Lee Fisher oooh ok
Do you taste your feed? If so what does it taste like?
Do u feel full after your feed?
Wendy Wang I believe the feed is constant throughout the day
Wendy Wang I’m pretty sure that in another video I watched she said that the feed goes past her stomach and bc nothing goes into her stomach she won’t feel full
I feel full after my feeds but I have a ng so idk
I have an NJ and your body starts to figure out that you're getting nutrition elsewhere so it doesn't make you hungry! So I don't feel full, but I don't feel hunger, if that makes sense!
Hi! I had a NG tube for a while, and I didn’t really feel hungry at all while on it.
Do you taste those?
i hope u dont mind me asking what do you suffer with
Very informative. 👍
yep good video
How many calories does calogen have?
Also there was an ensure ad on this video - how fitting!
Still miss you girl! Rip
Hi how do you drink
What happen may I ask?
IssYaBoii I’d also love to know.
She has eds which cause gastroparisis so her stomach is basically paralysed.
One. Coconut cid chocolate shiver down your thecid 11:02
Amy do you drink fortisip
I don't think she does as it would probably make her sick
Can you eat solids?
cheese8671 technically yes but they make me sick I try to stick to liquids x
Knp hidung ikm galuh?