Fantastic video. I am a endo husband myself. You never hear the mans side of it. For me i became very insecure and selfish when my wife went on the lupron shots.she totally changed as a person. It is really a rough desease that needs to be recognized more. My heart go out to you guys. Keep up the fight!
It is such a horrible desease. I have learned to let my wife be when she wants to be left alone. Aswell as to be more supportive. She has stage 4.had one surgery and is now on lupron shots. Whoch has changed her completely. I can relate to your husband so much
I've been dealing with endometriosis for 30 years. I can relate to so many things you talked about. I've never had a conversation with anyone who understands what I go through, so this is the first time I'm hearing someone else describe the pain I go through. The magic of RUclips, right?!? Your husband seems like a very supportive guy. Mine is too, thank goodness. I'm looking forward to watching the rest of your Endo related videos.
Thank you for making this video. I have recently been diagnosed with endometriosis, and had an ablation surgery. Your video comforted me, and let me know that I am not the only one who struggles with this problem. You are very lucky you have someone to support you. My parents are helping me to be emotionally stable. I am afraid that in the future, I might end up alone, because it seems like there's really no one out there who would understand my struggle and walk through it with me. I dont even know how to begin to explain to a man what I have and hoping that a person would be supportive. In life theres alot of rejection, and other struggles, but this really adds a cherry on top.
WOW! I think this is the first video I've seen with both perspectives! It made me tear up- surviving with Endo myself, I can relate to so much of this. My husband and I are newlyweds and I try my hardest to be a good wife and keeper of our new home because I like this clean, nice and neat but sometimes it gets the best of me and just doing laundry can send me into an endo episode which is physiologically, emotionally and physically painful. My husband has been so supportive and understanding. After seeing this video, I immediately sent him and reminded him how grateful I am to have him in my life. Thanks again guys for sharing a piece of your life with us and continue to stick together! #endocouples4life
Thank you for sharing this with us and your husbands views as well. Not many men are understanding and caring as your husband wiah mine was. Hope you are doing well.
Yes I have endometriosis cysts and fibroids my husband has been there for me the whole way I’m in a lot of pain right now I have bacterial infection my ultrasound showed that everything is swollen I need prayers I’m getting a hysterectomy on dec 10th my insurance has to approve it thanks for this video I’m at my worst now I hurt every single day I’m trying to stay strong I been through a lot of surgeries I’m ready for this hysterectomy ASAP
Great video, very honest and great to have both partners perceptions. Your point about people saying your problems are too much for me or not believing your pain strikes a cord with me- having stage 4 endo myself. Thanks for being so brave and talking out so eloquently about how this disease affects us.
Same here! Stopped going to er because they only give a tylenol and $1,000 bill with a dr note talking about "bad cramps". I would practically die in front of my husband. And he cares for me so much. Loved this video. You do feel alone. I had thoughts last year before I found out I had endometriosis. I had an ovarian cyst the size of a softball that was killing me. And my husband took a huge toll and really stepped up for my health. It makes me cry thinking about him.
Props to my man on this video. When u tlkd about laziness etc. u r dead on.my wife has stage 4 and I go they similar from chores to wrapping her w lavender oil n plastic and heating pad.goodluck to u 2.
It took 20+ years before I was officially diagnosed with endometriosis. Since the age of 12 I knew something was wrong. Every time I'd complain about the pain, extremely heavy periods etc to my mom it was pretty much dismissed. She just thought I didn't want to go to school. Which was partially true but the pain, heavy bleeding, anemia etc ugh was just too much. I eventually figured out that in order to be able to stay home from school during that hell week I'd have to get in trouble right before the cycle started so I'd be suspended. I all but said "thanks". No one ever made the connection.🙄 By the age of 39 I finally found a doctor who cared enough about me as a human being to listen to my story & she didn't send me home with a shitty script. Instead she ordered the first lap surgery Nov 2016. Where she removed scar tissue and adhesions and reported the endo and that my ovaries were plastered against my body. Another surgery was scheduled for January 2017 to free my ovaries. When I woke up we were being informed that everything she had done in Nov 2016 had came back that quickly. But the ovaries were free. Around March 2017, during my 40th birthday we decided to move forward with the hysterectomy because the pain wasn't getting any better. I also had Adenomyosis. They tried various types of meds to stop the cycle...it helped for a short amount of time. There was endo where my kidneys are...it was definitely time to evict. March 2018 the following year, we did the oophorectomy. Along with the cholecystectomy & endoscopy. All on the same day. We never told my doctor we wanted to have kids because she most likely would have never did the surgery(s). It's now August 2019 and I still have Intractable Pelvic Pain, IBS, stomach cramping, sore breast whenever my body thinks I'm having a person. I've been in pain management for 3 almost 4 years and nothing takes the pain away. All any of us ladies can do is #FightLikeAGirl🥊 and #AlwaysKeepFighting Someday, they'll be a cure....maybe not in our generation but for the next.
@@MrsTiffanyMartinez Me too, and I'm not even on my period right now. The way that I'm fighting is by searching for diets that may help. I've noticed that when I eat a lot of greens and antioxidants, I feel better. Carby and meaty foods make it worse, as well as stress. Also, reducing plastic. I hope that helps you too.
Hey Thankyou for your words, both of you sharing this has hugely helped me today. I can see there are men that will stand by their true love with endo, I hope one day to find something so special, and I’m extremely happy for you both to be each others support and showing true love. Thankyou for sharing
Thank you so much, Melanie. It was very generous of you sharing your journey with us and allow we know a little bit more about this disease which I have as well. Best wishes for you and your family ❤️
I am seeing a specialist who said i might have endometriosis. My symptoms is painful sex which sometimes affects me from having intercourse with my husband, some days I can manage sex with no pain at all and I have no pain afterwards, pelvic pain I get all the time, low back pain, nausea and bloating. My periods always seem normal lasting between 3-5 days which I am told is a healthy cycle. It never lasts longer. I had ultrasound scan which shows a small cyst on my left ovary and shows I have fibroids too on the outside of my womb, he said it might be endometriosis. I am having a MRI scan next month to see clearer whats going on and I am having keyhole surgery to see if it is endometriosis and the specialist said they can get rid of it for me and the cyst when i have surgery but if it confirms that condition then I will be sent to a endometriosis clinic to get the help I need. I have been experiencing so much pain and my husband has been constantly worried each time I am crying a few days before my cycle, as my left side where my ovary is I get severe cramps there. He is always by my side and makes me drinks and brings me painkillers and sits by my side when ever I need him. I still manage to clean the home even if I was in some pain as moving around helps ease the pain for me. Also I can see how frustrated my husband is when there is lack of sex and most times when we are my husband would ask me 'are you ok? I am worried you might be in pain if we tried to do it" etc...... but even if i was in pain I would still let him do it just so he doesnt get frustrated, that way I have no worries that hes going to cheat etc....... I feel lucky I have 2 daughters already but we do want another child in the future but not just yet. We are not rushing into anything as I have my health to sort out first.
You didnt mention the absolute wild moods swings and unreasonable rage that come from the woman during a period now and then its fucked up its like a evil spirit comes on them it the absolute hardest thing to deal will and current my fiancé is spiraling i cant even stay in the fuckin house 😞
My bf of almost 6 years hit me with the term hobosexual and that hurt pretty bad. I have an ultrasound scheduled in 2 weeks but I thought we were getting somewhere....
I'm only 30 I'm in so much pain and I get so irritated and I can't even talk to my husband, and when I do he tells me I just complain about everything, when I tried to tell him my symptoms and how I feel he told to shut the F up and go to sleep. I feel so lonely so bad I don't know how to make me feel I'm the bad one and maybe I am. But I feel so much pain, so much I don't know what to do
"Put it in God's hands"... After being married to a wife with endo for 10 years, I have learned that if there is a God he/she is either not involved in our lives (we are on our own) OR he/she is an asshole. I choose the former. 8 years of infertility (6 years before my wife acknowledge the pain), one endo surgery so far, hundreds of thousands of dollars spent, uncountable amount of energy/emotion spent... Its fucking awful. I have only recently realized how big of a problem this truly is, and looking back, how massive of an impact it has had on our relationship. I'm pissed at my wife for hiding this for so many years allowing me to think she was lazy, uninterested in me physically, a diiferemt person than the one I met, etc. We could have done so much more by now to help her, we could have had a family by now, my frustration with our lack of intimacy could have been resolved or atleast reduced years ago... Yes, that makes me an ass for being pissed at her, but we wasted sooooo much time/money/energy/emotion. I definitely love her, I mainly hate the feeling of losing, and I feel like all we have experienced for so many years is pain/loss, some of which could have been avoided... FU endo!!
This story made me cry, most people just don’t understand all I go through.... thanks for the vid! Getting ready for my surgery journey....thanks
I do dear!
Fantastic video. I am a endo husband myself. You never hear the mans side of it. For me i became very insecure and selfish when my wife went on the lupron shots.she totally changed as a person. It is really a rough desease that needs to be recognized more. My heart go out to you guys. Keep up the fight!
brandon clarke thank you so much for watching! It is a rough disease and my heart goes out to the two of you!
It is such a horrible desease. I have learned to let my wife be when she wants to be left alone. Aswell as to be more supportive. She has stage 4.had one surgery and is now on lupron shots. Whoch has changed her completely. I can relate to your husband so much
Thank you for understanding 😔
I've been dealing with endometriosis for 30 years. I can relate to so many things you talked about. I've never had a conversation with anyone who understands what I go through, so this is the first time I'm hearing someone else describe the pain I go through. The magic of RUclips, right?!? Your husband seems like a very supportive guy. Mine is too, thank goodness. I'm looking forward to watching the rest of your Endo related videos.
What are some of the things you do to ease the pain
Thank you for making this video. I have recently been diagnosed with endometriosis, and had an ablation surgery. Your video comforted me, and let me know that I am not the only one who struggles with this problem. You are very lucky you have someone to support you. My parents are helping me to be emotionally stable. I am afraid that in the future, I might end up alone, because it seems like there's really no one out there who would understand my struggle and walk through it with me. I dont even know how to begin to explain to a man what I have and hoping that a person would be supportive. In life theres alot of rejection, and other struggles, but this really adds a cherry on top.
WOW! I think this is the first video I've seen with both perspectives! It made me tear up- surviving with Endo myself, I can relate to so much of this. My husband and I are newlyweds and I try my hardest to be a good wife and keeper of our new home because I like this clean, nice and neat but sometimes it gets the best of me and just doing laundry can send me into an endo episode which is physiologically, emotionally and physically painful. My husband has been so supportive and understanding. After seeing this video, I immediately sent him and reminded him how grateful I am to have him in my life. Thanks again guys for sharing a piece of your life with us and continue to stick together! #endocouples4life
Try a non toxic household cleaning products maybe all the chemicals set you off as well. Branch basics in the US seems to be good brand.
Thank you for sharing this with us and your husbands views as well. Not many men are understanding and caring as your husband wiah mine was. Hope you are doing well.
Yes I have endometriosis cysts and fibroids my husband has been there for me the whole way I’m in a lot of pain right now I have bacterial infection my ultrasound showed that everything is swollen I need prayers I’m getting a hysterectomy on dec 10th my insurance has to approve it thanks for this video I’m at my worst now I hurt every single day I’m trying to stay strong I been through a lot of surgeries I’m ready for this hysterectomy ASAP
Praying for you sis 💛
How’s it been ? If you don’t mint sharing it’s been 3 years of the post! Is the endometriosis gotten better ?
Great video, very honest and great to have both partners perceptions. Your point about people saying your problems are too much for me or not believing your pain strikes a cord with me- having stage 4 endo myself. Thanks for being so brave and talking out so eloquently about how this disease affects us.
Thanks for the video! The girl has a cute smile and the guy has a strong character. You are blessed to have each other.
well I am single, so I need to manage it without support. I am glad for you 💚
Thank you so much for sharing! It touched my heart🙏🏻Hope one day you’ll recover🙏🏻
Yes, this is the issue with my husband and I. Mainly intimacy. We are separated. Just hard.
Thank you for this! I am going through this now , I'm on my 2nd surgery coming up. I don't feel alone 🥺
Same here! Stopped going to er because they only give a tylenol and $1,000 bill with a dr note talking about "bad cramps". I would practically die in front of my husband. And he cares for me so much. Loved this video. You do feel alone. I had thoughts last year before I found out I had endometriosis. I had an ovarian cyst the size of a softball that was killing me. And my husband took a huge toll and really stepped up for my health. It makes me cry thinking about him.
What a amazing man!!! God bless you two.
Props to my man on this video. When u tlkd about laziness etc. u r dead on.my wife has stage 4 and I go they similar from chores to wrapping her w lavender oil n plastic and heating pad.goodluck to u 2.
It took 20+ years before I was officially diagnosed with endometriosis. Since the age of 12 I knew something was wrong. Every time I'd complain about the pain, extremely heavy periods etc to my mom it was pretty much dismissed. She just thought I didn't want to go to school. Which was partially true but the pain, heavy bleeding, anemia etc ugh was just too much. I eventually figured out that in order to be able to stay home from school during that hell week I'd have to get in trouble right before the cycle started so I'd be suspended. I all but said "thanks". No one ever made the connection.🙄 By the age of 39 I finally found a doctor who cared enough about me as a human being to listen to my story & she didn't send me home with a shitty script. Instead she ordered the first lap surgery Nov 2016. Where she removed scar tissue and adhesions and reported the endo and that my ovaries were plastered against my body. Another surgery was scheduled for January 2017 to free my ovaries. When I woke up we were being informed that everything she had done in Nov 2016 had came back that quickly. But the ovaries were free. Around March 2017, during my 40th birthday we decided to move forward with the hysterectomy because the pain wasn't getting any better. I also had Adenomyosis. They tried various types of meds to stop the cycle...it helped for a short amount of time. There was endo where my kidneys are...it was definitely time to evict. March 2018 the following year, we did the oophorectomy. Along with the cholecystectomy & endoscopy. All on the same day.
We never told my doctor we wanted to have kids because she most likely would have never did the surgery(s).
It's now August 2019 and I still have Intractable Pelvic Pain, IBS, stomach cramping, sore breast whenever my body thinks I'm having a person.
I've been in pain management for 3 almost 4 years and nothing takes the pain away.
All any of us ladies can do is #FightLikeAGirl🥊 and #AlwaysKeepFighting
Someday, they'll be a cure....maybe not in our generation but for the next.
similar story to me..diagnose at 39 after years of hell from age10
I'm so sorry... I went through the same thing, and nobody, least of all doctors, took me seriously.
Sitting here now and my stomach is cramping like period cramps. It never ends. But I'm not giving up.
@@MrsTiffanyMartinez hush my dear even in perimenopause its still going thru hell
@@MrsTiffanyMartinez Me too, and I'm not even on my period right now. The way that I'm fighting is by searching for diets that may help. I've noticed that when I eat a lot of greens and antioxidants, I feel better. Carby and meaty foods make it worse, as well as stress. Also, reducing plastic. I hope that helps you too.
Hey Thankyou for your words, both of you sharing this has hugely helped me today. I can see there are men that will stand by their true love with endo, I hope one day to find something so special, and I’m extremely happy for you both to be each others support and showing true love. Thankyou for sharing
Thank you guys , you are beautiful and a blessing from God !
Thank you so much, Melanie. It was very generous of you sharing your journey with us and allow we know a little bit more about this disease which I have as well. Best wishes for you and your family ❤️
Thank you so much for sharing. I have crohn's disease and there are so many relevant points here you make :)
I am seeing a specialist who said i might have endometriosis. My symptoms is painful sex which sometimes affects me from having intercourse with my husband, some days I can manage sex with no pain at all and I have no pain afterwards, pelvic pain I get all the time, low back pain, nausea and bloating. My periods always seem normal lasting between 3-5 days which I am told is a healthy cycle. It never lasts longer. I had ultrasound scan which shows a small cyst on my left ovary and shows I have fibroids too on the outside of my womb, he said it might be endometriosis. I am having a MRI scan next month to see clearer whats going on and I am having keyhole surgery to see if it is endometriosis and the specialist said they can get rid of it for me and the cyst when i have surgery but if it confirms that condition then I will be sent to a endometriosis clinic to get the help I need.
I have been experiencing so much pain and my husband has been constantly worried each time I am crying a few days before my cycle, as my left side where my ovary is I get severe cramps there. He is always by my side and makes me drinks and brings me painkillers and sits by my side when ever I need him. I still manage to clean the home even if I was in some pain as moving around helps ease the pain for me. Also I can see how frustrated my husband is when there is lack of sex and most times when we are my husband would ask me 'are you ok? I am worried you might be in pain if we tried to do it" etc...... but even if i was in pain I would still let him do it just so he doesnt get frustrated, that way I have no worries that hes going to cheat etc.......
I feel lucky I have 2 daughters already but we do want another child in the future but not just yet. We are not rushing into anything as I have my health to sort out first.
Real couple goals
You didnt mention the absolute wild moods swings and unreasonable rage that come from the woman during a period now and then its fucked up its like a evil spirit comes on them it the absolute hardest thing to deal will and current my fiancé is spiraling i cant even stay in the fuckin house 😞
The worst I have ever heard is 'you're using your illness as an excuse. It's just period pain, you're being a baby.'
Thank you so much 💞! ❣️💖 You're 1000000000% right!!!!! Your boyfriend is a legend!
Excision surgery (for the laparoscopy) works the best!
Soooo very grateful for you both..💝
Thank you
👏 for an amazing partner you have.
Thanks for this video and stating the facts.
My bf of almost 6 years hit me with the term hobosexual and that hurt pretty bad. I have an ultrasound scheduled in 2 weeks but I thought we were getting somewhere....
I'm only 30 I'm in so much pain and I get so irritated and I can't even talk to my husband, and when I do he tells me I just complain about everything, when I tried to tell him my symptoms and how I feel he told to shut the F up and go to sleep. I feel so lonely so bad I don't know how to make me feel I'm the bad one and maybe I am. But I feel so much pain, so much I don't know what to do
My ex dumped me because of my endometriosis.
I strongly believe my PCOS has turned to endometriosis...
Bri San Endometriosis and PCOS go hand in hand in a lot of cases for women.
"Put it in God's hands"... After being married to a wife with endo for 10 years, I have learned that if there is a God he/she is either not involved in our lives (we are on our own) OR he/she is an asshole. I choose the former. 8 years of infertility (6 years before my wife acknowledge the pain), one endo surgery so far, hundreds of thousands of dollars spent, uncountable amount of energy/emotion spent... Its fucking awful. I have only recently realized how big of a problem this truly is, and looking back, how massive of an impact it has had on our relationship. I'm pissed at my wife for hiding this for so many years allowing me to think she was lazy, uninterested in me physically, a diiferemt person than the one I met, etc. We could have done so much more by now to help her, we could have had a family by now, my frustration with our lack of intimacy could have been resolved or atleast reduced years ago... Yes, that makes me an ass for being pissed at her, but we wasted sooooo much time/money/energy/emotion. I definitely love her, I mainly hate the feeling of losing, and I feel like all we have experienced for so many years is pain/loss, some of which could have been avoided... FU endo!!