The Day I Almost Died (Because of Diabetes)...
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- Опубликовано: 14 апр 2023
- I want to tell you a story about the day when I almost died… Because of diabetes…. Please watch this video and share it with your family and friends. It can save your life.
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My T1D diagnosis was in 1963. I have had severe hypoglycemia unawareness since college. If BG drops rapidly, I sometimes can sense and treat it, Pre-Dexcom, I tested BG every few hours and often discovered that BG was 40 mg/dL with no symptoms.
I could probably write a book about hypoglycemia, and remember some episodes vividly. Two times, during the 1970s, I woke up in the hospital after passing out while driving. Fortunately, the police found me slumped over the steering wheel with the car still in drive, and there were no accidents. In 1979, while attending a conference, I injected insulin in the hotel room before taking the elevator down to the hotel restaurant. There were no portable glucose monitors back then, only urine tests. I passed out while ordering dinner and woke up in the hospital ER, where the nurse told me my BG had dropped to 14 mg/dL. Thankfully, after 59+ years living with T1D, I have no complications. I am in my 70s, still working, and look forward to my 60-yr T1D anniversary this fall.
Congratulations on your anniversary i guess ☺☺ good for you to feel good about your accomplishment taking care of yourself i've had T1 for fifty years doing well ,just got a cgm last month what a beautiful thing they are ,good luck with everything
This was a nice refresher of how scary lows can be. My older sister passed away in her sleep from a hypoglycemic low at age 47. Her newly graduated son found her. God rest her soul. Then I was diagnosed at age 50. I was so scared. I’ve had it going on 6 years, I now wear a pump and CGM as well. The worst low I ever experienced was 34 in the middle of the night. I stumbled into the kitchen and had to lock my knees while testing and inhaling sweets. I fell onto my couch and couldn’t speak. My husband was only 20 feet from me but I couldn’t speak. It’s like an outer body experience. I could hear everything but couldn’t react. I had to wait it out alone and scared. Thank you for this video ❤️
I had the same thing happen at a Christmas party, I was eating alot of carbs and I must have not calculated right and took too much insulin. It started with everyone thinking I must be drunk. My husbands Aunt is a nurse and thank goodnes she figured out what was wrong but by then I was puking. I was aware but couldnt stop myself from doing odd things. I pulled my shirt up and when they put me in the car (totake me to the hospital) I was kicking the gear shift. I was apologizing the whole time but I couldnt stop. They kept trying to get me to drink Pepsi but I kept bringing it back up. The next thing i remember is being in a hospital bed and the nurse saying my blood sugar was so low the machine couldn't read it, it just said low. They gave me glucose by IV and after thirty minutes my blood sugar was still only at 2. When I finally saw myself I had dirt all over my face and in my hair. Apparently I fell out and the car and had a siezure in a slushy snow bank. I don't recall any of that at all. I got to go home on Christmas day. Thanks for giving us a space to share and glad you are ok!
It's the worst feeling ever. You have no control over your emotions either. You know what you're doing is all messed up but you still do it. Such a scary state to be in.
@@deadtigerworld so scary! I had a newborn at the time and really thought I was going to die
I've been Type 1 for 45 years and, thankfully, have not had a Hypo that I've been unable to deal with. I have lost all awareness when it comes to Hypo but my Libre 2 has an alarm that could wake the entire neighbourhood (set at 3.5) and a permanent supply of Jelly Babies on my night stand. Keep well and thanks for your invaluable support!
I use lucozade, I’ve found it works faster than any sweets etc. The glucogel from the doctors is absolute rubbish imo.
Likewise, a diabetic of 40 years and noticed that my sensitivity to hypo was getting less. I've had recorded hypo events of 1.6 mm/l. Some time ago I had an event like this video in public where I couldn't function cognitively or physically and passed out, thankfully somebody called an ambulance. Just started using the Libre 2 sensors and they are a game changer. I have Glucojel all through my house, in my car and travel bag.
@gaiasgift I agree the libre for me has been a game changer! Type 1 for 33 years so far the technology has come on so far it's brilliant! Imagine if we had all these gadgets as kids!
I had many severe low blood sugars through the years. Some made me physically unable to do anything but I could think clearly, and other times I couldn't think clearly but my body worked fine. There were also times when my blood sugar was only in the 20's but I was able to function physically and mentally. You just never know exactly what number is going to be the tipping point between being able to care for yourself and when you won't be able to. Thankfully since getting a CGM, I haven't had any severe low blood sugars that left me unable to care for myself. CGMs are truly lifesavers.
Wow, you explained hypo situations ive had to the T! Im a T1D for 48yrs, since the age of 2. Learned to understated my diabetes before glucose meters & glucose tabs existed. I had lows I have no idea how I survived. Amazing how far technology has come. Won't be long before people being diagnosed with diabetes will just be a "thing". Glad I learned how to deal with things and understand it without tech, a whole different outlook and understanding of it!
I certainly hear what your saying and it’s down right scary! What I have experienced many times is whenever I made myself a protein sandwich before going to bed it really prevented me from going so low! Then again I don’t always remember to do that!
@mariesmith8076 protien, fiber and hydration are key with diabetes and regulating blood glucose!
I am completely hypo-unaware. My husband, daughter, co-workers, and a couple of my dogs have saved my life multiple times. My phone and watch have both audible & annoying vibrating alarms. I have soda, candy, & juice in every room & the car. I consumed more sugar products in the first 5 years after diagnosis than in the previous 35 yrs. It's been a journey. Thank you for making these videos.
Have the audible alarms made it easy to know now? Now how many times a week do you hypo?
Glucose tablets are very portable and fast acting.
Why are you driving if you are hypo unaware
I am also hypo unaware I have blacked out in my sleep luckily my son was around to phone for an ambulance I have also fallen down injuring myself in the process luckily now I have my libre 3 and plenty of lucozade around the house
@@Bobblenob I don't drive, but I am a passenger quite often.
This is one of my absolute worst fears! I was diagnosed type 1 little under year ago. I work as a paramedic so I am well aware of the effects that lows and highs can have on you. The worst thing is that I live by myself and rarely get visitors. So far I have been able to avoid accidental lows by having my basal doses intentionally pretty low and being pretty concervative with the meal insulin dosages. I think I am still on the honeymoon period where I still have a lot of function left in my pancreas (it was estimated to be around 50%), which is helping with avoiding highs, but still I am terrified of getting a serious low BG.
EDIT: I am very fortunate to have easy access to a Libre 3 as my CGM, and it been a valuable thing to easy my mind.
Since the arrival of sensors with constant glucose monitoring, the danger of getting a severe hypo is almost zero. I sleep allot more confident now then i did before. And i haven been woken multiple times at night now.
You might feel a bit better if you can eventually get on a hybrid closed loop system such as Omnipod 5 or Tandem tslim. I started 6 months after diagnosis. These systems can virtually eliminate night time hypos. Good Luck to you!
@@user-nr5he3ic9o I would love to and have been thinking about those as possibilities, but the problem with using insulin pumps for me is that I play full contact sports (and sweat like a turkey on christmas). Of course I you have to remove the pump during exercise, but how well would the cannula stay in place during sports. Still I asked my endocrinologist to go trough the possibility of trying them out regardless on my one year examination.
If you would like to chat about your experience you reach me directly on my Patreon. I respond to every message and every question from my patrons www.patreon.com/typeonetalks
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Please note I am not a healthcare professional and I can not answer questions related to your personal medical situation and treatment. Thank you for your understanding.
My endocrinologist once told me “the only thing worse than being low in the middle of the night, is falling down the stairs trying to treat a low in the middle of the night”. In other words, always have something beside your bed. In arms reach.
I had a terrible experience once and now I sleep with a glass of o.j beside the bed.
A tremendous video that helps us all out here to remember how to stay safe. Even if a Type 2 being on a pump, hypos are possible! I am glad you survived to tell your story. Thanks for all you do for the diabetes community.
Dang, that would for sure be scary, so glad that it turned out okay! I had the opposite almost dying from Diabetes. Before I married my husband, I was stuck on one of the only insurance plans at the time that took "pre-existing" conditions (before changes to our healthcare system), so it was expensive & the doctor I had didn't listen to me when I tried to explain that the dosing I was given wasn't doing enough. Got married last day of January 2017, & it was taking a long time for the married insurance switch to happen & get me my new driver's license & insurance card & I couldn't get my meds without the new information. I tried rationing a little & eating less, but then in February, I got the flu. Still didn't have my new cards, but didn't think it would be much longer, thought I could power through, only had an old Contour meter & didn't have keto sticks. Felt like crap, called in sick, went to nap while hubby went to work... & woke up about a week later in the ICU. I guess it was so bad that all the doctors were shocked I wasn't in a vegetative state when I woke up & were surprised I even woke up. Do NOT forget to have keto sticks & do NOT just assume you can power through by rationing as a Type 1 Diabetic! Please take heed of my experience AND DEFINITELY heed our lovely RUclipsr's experience to make sure you take care of yourself in these extreme blood sugar situations! You all are worth being alive & well!
I've had T1D for 23 yrs and I'm 34 yrs old, I've had my left foot amputated because of diabetes and I've had more then numerous amounts of low blood sugar drops in the past couple days/months , where the ambulance had been called more then once in a 2 week span for me.. smh, I've woken up in the emergency room and had seizures due to low blood sugars, my lowest was 32 and I almost went into a coma. Thanks to my aunt and cousin and the sugar pills and juices I keep on standby, they've been a lifesaver literally, my insurance sucks so I'm not really able to get a insulin pump to help me , but I pray I get one one day, thank you for this video, you've earned a subscriber. 😊😊
As always, thanks a lot for sharing these experiences, Tom! I really appreciate that. 🙏
A great video and exactly what everyone who has T1D needs to hear. I had an incident when I dropped so low that all I could do is to yell "HELP". Thankfully my brother heard and gave me some soda then called for help. My insulin hit me harder and quicker than normal before dinner and dropped very fast before the food was adsorbed. This conversation should be had with all T1D and people that are in the persons daily life. Since that event, I keep a tube of Dex4 glucose tables everywhere around my daily routine area and one on me at all times. It is a very scary experience and until someone has experienced a major hypoglycemia event it is an eye opener on being a T1D. This is also a reason why I wear a CGM now to catch the dropping level and warn me before it gets to be a major event. Thanks again Tom for making this video and I will be sharing it with all T1D that I know.
Yes! I can totally relate to this because it happened to me. My Apple Watch saved my life. I went into a seizure and fell out of bed and my watch call 911 and called my son from my emergency contact list. Very Very scary!
Thank you for posting this video to let people know that this is possible when your a Diabetic!👍👍
Yup, this also happened to me. I live alone and ended up crawling to my kitchen and spilled oj in my mouth and all over the kitchen. I think I made the mistake of taking Humalog instead of my daily Lantus dose. It seemed to take forever to get my sugars up and I've never felt so crappy in all my life.
@@deadtigerworld Oh! I hear you loud and clear it’s a very scary situation to be in especially if you live alone. I advise my Diabetic friends if it’s at all possible get Apple Watch I know it saved my life and many others . I believe cheaper ones are around $200.00 worth every penny!
It also happened to me in the hospital when they gave me Lantus instead of quick acting to cover my meal. So if ever your in hospital make sure you ask them what their giving you!
@@deadtigerworld I've done that. I injected twenty units of short acting insulin by mistake. Luckily, I realized what I'd done before heading to bed. I sat at the kitchen table with a kilo bag of sugar spooning it in.
My gosh this is good to know! I am glad you are ok too!
Thank for sharing this! I will share it too!
Wow! Glad someone was there for you when you had that experience I'm still learning how to control my glucose. Thx for sharing Tom.
The lowest I’ve been was 41, we called the EMTs because I had become delirious. That God for my wife I’m still here
I know this isn't a contest but I've had my blood sugar go so the EMS couldn't get a reading. It just said low. I've had several seizures, too. I'm so thankful for my Dexcom. I've had Type 1 for 43 years and rarely feel a low coming on. My Dexcom is truly a life saver!! Thank you for the video.
I've had that "low" reading too. At the time, I didn't feel particularly odd. I knew something was profoundly wrong but couldn't put my finger on it. It was a bizarre experience. Fortunately, my diabetic training kicked in and I shoveled in my "emergency rations".
This is so important!!! I woke up in the middle of the night, alone, with a 38 level once on a trip away from home. Luckily I was in a small single level apartment and somehow managed to literally crawl to the refrigerator for juice. It was a close call and one which would have had only one outcome if I’d not woken up when I did. I didn’t have many more minutes to act. I barely made it as was. An additional point or two drop and I'd history. Keep simple glucose at hand.
Nearby like on your night table right beside your bed. I had a low one night and the glucose tabs were across the room on the dresser. I was barely able to make those few steps. I have since wisened up.
ALWAYS have backup , no matter what , i never leave my house without dextrose tablets, never. I have sugar everywhere, in the car, in my bedroom, at work. I too have been in scary situations where i could have come in severe trouble.
I had a very similar experience many years ago when I woke up already late for work. Crawling to the kitchen was very difficult and took I don't know how long. Once there I managed to pour some sugar into a glass of water.
I’ve been there and thank you for this life saving video.
Thank you so much for this video. I had hypo episodes at least 3 times that I can remember. I am a type 2 diabetic, however, on days that I forget to eat my blood glucose can get really low. I almost passed out in a restaurant during the Christmas season of 2022. I could barely order and pay for my food. I now carry glucose tablets with me everywhere.
Tube of cake icing.
Or oreo double stuff icing works faster than other medical meds
My 780G/CGM alerts me when my BG drops to 70 or lower. So far, in 49 years living with T1D, I have been able to treat my low BG's myself.
I have T1 Diabetes and there have been MANY times that I have woken up, just like you, in the middle of the night in the 30's. But I live alone. I keep a can of Pepsi next to my bed at all times now. But also, since I live alone, I no longer shoot for being super accurate with my Insulin dose at Night now. My Endocrinologist is mad at me for doing that, but I have no one here to help me. I get super sweaty and super confused and can't think clearly when it goes too low.
Thanks very much for sharing with people just hope a lot of mates , friends wives and husbands see this they are the important people to know this info thanks again
This is everything I'm afraid of because I live alone
Same. I sleep with a glass of o.j beside my bed. Really scary stuff.
If you can afford it, CGM is a life changer.
Firstly, I'm glad you were okay Tom!
I've been 0.8 mmols (about 15 or 16 dl I believe) before. I stayed conscious but it was not pretty. Needless to say I keep stashes of hypo stuff not far from me now. It had hit so quickly and with no cgm at the time, no warning.
Thank you for sharing your experience. I hope other diabetics will take heed and keep hypo stuff near their bed. Can't tell you the number of times it's saved my life.
Alex from Ireland
I keep glucose tablets on my bed stand just in case I wake up with low blood sugar. I also keep glucose tablets in the car, with me at all times and my wife carries them for me as well. She told me on a few occasions she actually had to give them to another diabetic on the street that was in need. Glucose tablets are so cheap and don't go out of date so it pays to have them around everywhere you can.
First! I fully understand what you went thru, I was told I was at 26 many years ago....I have done much better and thankful we have these CGM's...This happened to me at work and I was the only 1 in the office at that time and when a few came back they called the Paramedics and I was told that it took 3 of them to get an iv in me. What's most important is having some candy or sugar drink really near by and if you are with someone tell them what happens so they can understand...DO THIS NOW!!!!
I recently had an episode at work for the first time. I'm definitely going to tell a few of my colleagues I work near all day of my newest health update. I have my CGM set to go off when I go low or high.
Thank you for sharing your experience. After hearing you, I am going to add the glucagon to my bed stand supplies of juice boxes, dextrose tabs, marshmallows and first tonic water (for leg cramps).
My Dexcom receiver has wakened me with lows especially when it sounds like a siren. I confess, I treat the low without checking with a meter -every second counts.
TY for sharing this difficult experience ❤
My blood sugar dropped to 24 one time while I was driving. I was driving around for 3 hours and by the grace of God I became aware of what was going on. Somehow I got to work and was able to turn off the alarm, even though I kept saying I don’t work here). It took multiple hours to get my blood sugar back up to a safe level. I’m a type 2 diabetic and the long lasting insulin just dropped my level to 24. I should be dead. I have changed my insulin to a more stable one. I still have nightmares and PTSD when I drive sometimes.
Such a valuable video. Thanks.
I often have hypoglycemia, the lowest one I got is around 40, but I could still think clearly and go get food. My husband is trained also in what to do, and he has the freestyle libre app in his phone as well, so sometimes he scans me during the night and brings me cookies if Im too low. I think he is much more scared of night hypoglycemia than I am!
I'm so glad everything turned out well Tom, that was scary! I'm T2 for about 30 years. When I was first getting used to being diabetic I had lots of lows because I'm a dog walker and exercise a lot. One day I was driving with my husband and I started to have a meltdown. I was shaking and shouting at him, crying and acting crazy. He said I should check my glucose. We got to our next dog's house and I checked it. I could hardly walk my legs felt like spaghetti and I was sweating. I was at 36! I had some juice in the car and was feeling better soon. I had many lows while walking dogs on the trail. I would often forget to re-stock my walking pouch with sugar tablets. A few times I got stuck with lows on the trail, shaky, sweaty and confused. I was afraid to walk and sat on a log. I was asking everybody that passed me if they had any snacks I could have.
Now I have tablets, gel and jelly beans in my walking pouch, by my bed, in the kitchen, in my office, my living room and in my car. I'm so glad I have my Libre 2, makes a big difference since I don't know I'm going low till I'm crazy low. I'm going to try placing the next one on my chest. I had been using my arm but was getting fake lows, saying I'm at 54 because I was sleeping on it! Only been using it for about 1 1/2 months. Thigh won't work because I have dogs. Thanks so much for your videos! Do you have any recipes for that chick pea and lentil stew? Looks so good!
I'm currently working on lowering my A1C levels. I'm type 2. I recently had a few episodes of moderate hypo. Down to 60 and dropping. It was the first type I started feeling the dizziness, sweating and hunger while at work. Luckily I was able to correct my issue. Now tracking those episodes.
I have congenital hyprerinsulinism. This is my daily life. Education is so important.
Passed out twice because my numbers were so low. Good reminder thanks.
Glad you made it thru that - and thanks for sharing your story (and your channel). I don't know if the glucagon nasal spray (BAQSIMI by Lilly) is available in all countries yet. I keep one on my night stand. It does not require any mixing or syringe, so it is much easier for non-diabetic and non-medical people to administer it to you. And, if you are having a sever low but have some capacity to treat yourself, it is much easier to treat yourself. As a nasal spray, you don't have to be able to swallow or chew. Just one push of the plunger/button. If you live alone, as I do, I have it removed from the sealed package, as even opening that during a sever low could be a problem.
Hi there, love your content. I have a couple of questions if you have the time to answer. Have you ever tried a any version of a Ketone diet (not doing ketone unless you are producing ketones & testing to show) ? Also have you had any hypo moments this bad since using a CGM?
One night, I dropped to 21, & the paramedics were called. They started an IV - which saved me. I learned from that experience to have juice boxes by my bed & also a Dexcom, which wakes me up by sounding alarms.
I'm sorry for your hypo unawareness😔I wish you and all type 1 diabetics including my son get the cure as soon as it is released🙏🤲I'm hopeful as giant companies Vertex,Sernovo and Novo Nordisk are involved in it!🙏
Would give anything for the cure but I have heard that over so many years sadly I am starting to think they never will 😞 any news etc recently about any advancements?
M.
Thank you for explaining about the hypoglycemic nose spray, as well as the the hyperglycemic pen I just need to know how much was the nose and what can find it at Amazon
My first time I experienced a hypo was at work. Lucky for me coworkers witnessed it all. I was on the phone with a customer walking around and was repeating myself on the phone. Then I passes out and fell into shelves. They tested my sugar and it was 38. This was about 2 years into me having type 1 Diabetes so I was still learning the feelings of highs and lows. Thankfully it never happened again.
I was for years hypo and hyper intolerant, I couldn’t tell if my bloods were going to low or high but since I started on the bolus advisory course a few years back I have become a lot better with them.
I feel so lightheaded, and thinking becomes very cloudy when hypo.. It's scary. I keep glucose gel packets on my nightstand.. Thank goodness for cgm, and low glucose alarms!
I am reactive hypoglycemic, not diabetic, but I follow you because I get lows for exercising and eating wrong. Very scary to have lows!
I've been type 1 since 1965. Gastroparesis is terrible as it causes so many hypos and no way to predict them. I am blessed to still be aware of falling bsls but can sleep through a severe hypo at times. I can have 3 or 4 hypos a day. STAY STRONG AND NEVER GIVE UP🙋
Severe-moderate hypo happened to me twice. I handled one of them alone because i had fast carb source close to me. The other one.. i could not even function. I said to my coworker with my last energy to get me something asap. She rushed and brought me 4-5 sugar cubes with warm water. After these incidents i kept my blood sugar little bit higher than my target range and regain awareness. I did not have any problems since. But i cant forget the feelings. They were terrible.
I always have juice boxes in my room, I wake up low a lot
I had blood sugar of 8 mg/dl eventually when the hospital made a test after the ambulance brought me to the hospital.
I was awake mostly during all the time, but also my girlfriend called the ambulance because I would not have called them during the night.
So I had a similar experience like you.
I got onto insulin about two months ago and have experienced this situation thrice though Not as severely as told by you. Latest was last night that it happened. I was on oral medicine for last about Ten Years but it seldom happened like that. Now seriously thinking of reverting back to oral after consulting my doctor and doing more health precautions than before! Thanks for sharing your experience. It can help many.
If you recently changed to insulin, get a CGM if you can afford it. Insulin is a very potent drug and it can keep your sugars from going too high much better than oral meds, but the risk is possible lows blood sugars. A CGM helps avoid those lows. I have had had several extreme low blood sugars years ago but since getting a CGM, I haven't had any.
Try reducing your dosage by a unit or two.
Your type 2? Wish my son was type 2. It can be reversed. Type 1 is death.
I've had a similar experience almost as bad. I'm 80 yrs old and live on my own. I was diagnosed as type 2 aged 31 years. I now know I'm an insulin dependent type 1.5 (LADA). I ALWAYS make sure I have glucose or dextrose tablets by the bedside together with a mobile phone. On the night in question I woke drenched in sweat with great difficulty in mentally functioning. I knew that it would be unsafe to leave the bed being unable to stand. I managed to take the dextrose but was immediately sick over my hands and clothes making finger stick measurements invalid. I called an ambulance. By the time they arrived I had recovered and was able to answer the door. I now have a CGM. Always have glucose/dextrose available if you're liable to have hypos.
Another time I had a near miss was late at night, tired and in poor light mistakenly injecting fast-acting instead of slow-acting insulin. Problem is you don't realise until the hypo starts, you then have very little time to fix it. Keep the two insulins in different places!
My 10 year old had one the other day at school. I have a mini fridge with juices and mini sodas just in case, plus an emergency medical case with the necessary medication. Also, coordinated training for teachers with the Diabetes foundation where I live so they can have the knowledge to treat any emergency situation.
My son is the only type I diabetic at his school.
Definitely making everyone you know aware can be life saving. I bet it’s hard for your lad being so young and probably wanting to eat all the sweet junk his friends will be doing at that age. I was a late comer to the club at 33 yrs old.
Take care 👍🏼
@Dan23 7 Yes, it's not easy for him, but he does understand. He is a trooper and does his part well. Thanks for your kind words.
I thank God that the 6 times coming close to death that I have woken up and felt like i lost 100 lbs thats when I know I'm way low on glucose not to mention in panick mode, with irregular breathing & FEAR
I'm T2 with Insulin as part of my therapy. One thing my CGM has made me more aware of is the instances when my blood glucose go low while sleeping at night. One, seeing the trends when I first started using the device got me to put recovery items near my bed (glucose tabs, juice boxes). Two, I was alerted of a low glucose event and by the time I was resolving it, my blood meter showed 48 (I was arguing with the CGM, absurdly enough) so I took a finger stick. And then drank my juice. As I became more lucid, I realized I had many symptoms of low glucose - stubborness, visual spots, and such. Scary stuff.
Thank you for sharing your experience!
I treated my wife at a severe hypo condition dozens of times, including several times, when I had to inject her with Glucogen. By the way, even outdated one is better than none. Once there was a hypo alarm bracelet, which sensed sweat, but it was not very reliable. Now, with Freestyle libre 2, the situation is so much more stable and we get alarmed in time to consume some fast carbs. Interesting enough, I figured out that 15g of carbs is usually enough to resume the hypo event. I found most effective 5 teaspoons of sugar melted in a small amount of water. Stay safe!
My husband once used a Glucagon kit on me that was 5 years expired. It worked just fine.
@@heathermunday6878 Most of the times it'll be fine, but once I had to inject twice: one in the fridge was like 2 years after the last time use date and it didn't work. Fortunately, I found one "younger" in my wife's purse, which worked. I wish us all less experiences like this - it's not nice and is simply dangerous. Once I noticed a lady running with a Glucogen kit. I followed her and eventually reached a small crowd of people, surrounding a passed out teenager. The ambulance was there, but they only had some
glucose gel, which didn't work. Somebody called for boy's Mom - the lady I followed. I asked if anybody knows _how_ to use the kit. No one knew, so I prepared the solution and injected. The medics forced me to inject into his belly, rather than into his leg as I intended. This worked anyhow, but, in my opinion, took more time than usual. On the other hand, I don't know how does it work on that particular boy and for how long did he lay down unconscious before his Mom brought the Glucogen.
My husband has a libre 2 but it doesn't always go off at night! Not sure if it's because he's laying on the sensor? He's had many severe hypos over the years, mostly at night. I now set an alarm for 1am for him to check his levels. He hates being woken up every night but for peace of mind I would rather have to do this then deal with a severe hypo!
Thank you for sharing your story and situation. May I ask why your CGM did not notify you well before you went so low? (Either on your pump or phone app.)
I think this had happened years ago before he had a CGM. The CGMs are showing now in the video because he has CGMs now and was just acting out his being unable to move.
Please make a video about the latest developments in diabetes treatment
That happened to my mom, and I didn’t know so I took her to the hospital and they give her drip to bring back but now I am worried about myself because most of the time I am alone and I have type 2
Interesting if you experience mild hypos you can actually trigger Gluconeogenesis through mild walk. It can liberate stored glycogen or fuel the body on ketones.
For symptoms of hypos caused by mild low blood sugar can also be assisted through exogenous ketone supplements. This also prevents the hyper and then reactive hypoglycaemia swings.
These can be useful for those trying to improve metabolic flexibility through diet.
I had a bad one once and I had a similar experience. I have always wondered if I had used ST instead of LT before bed.
I always have a juice box on the nightstand now.
I saw stars at 28 but somehow was able to treat myself. I definitely have ptsd after all my lows. It’s very mentally draining.
My diabetes almost killed me too. I developed fourniers gangrene. Im missing my whole right buttocks , part of my left. I needed a colostomy because it ate through everything right to my bowels.16 surgeries in one month at shock trauma, university of maryland. I have an indwelling folley because i have a neuropathic bladder. Ive had 2 surgeries on my foot from an ulcer that got so infected it went down to the bone and im still having problems. High and low blood sugars can be extremely dangerous. My infectious diseases doctor said he is amazed im still alive. Im so glad that youre ok. You always have to be prepared and my bf and family know what to do if i get a really bad low. Im starting pump therapy soon thank goodness 😊
Tom i just got the libre 2, i have never had anything constant b4 with regards to glucose monitoring, do i need to physically scan the mobile to the sensor or is that irrelevant as it sends a glucose every minute when in range anyway?
What is the name of your glucagon pin? It looks like an epipen. My U.S. glucagon kit has powder and liquid that has to be mixed. Plus a really long needle only for the thigh. Yours looks much cleaner and easier.
My first sign (around 4.5mmol) is confusion and loss of trail of thought. Then I check my blood and CGM.
The lowest I have been was 1.2mmol. My wife said my legs were kicking and I was fidgety and soaking wet with sweat (I was asleep)
I remember her trying to sit me up and having to lift my head up and pouring lucozade in my mouth (it went everywhere too)
I couldn’t function by myself and I’m sure I could of been in a worse situation if she wasn’t there. When I came around enough I drank it by myself and I had a huge overwhelming feeling of elation as my BS rose again.
It was early on in my type 1 life and hadn’t properly grasped carb counting and insulin units. Plus it was before CGM, so the number I went to bed with (7.2 I remember it well) was on the way down.
You said to her this. "I am sick." once I was in my office and I gathered my all energies and رنگ bell to call my office peon, I tried to tell him that I was sick, but couldn't utter a word properly, I just said "baba baa" seeing my situation he called 1122 ( first aid service in Pakistan) the medical team arrived and they helped me to get my life back. That was horrible feelings that day. I felt myself just like a vegetable, no power to move at all.
My girlfriend called the Emergency squad and I kept trying to tell them, sugar, sugar, but it came out sounding like a mumbled, " Sooga, Sooga". She told them I was diabetic and they gave me some juice from my refrigerator, as they didn't have any glucose on them. Scary
I had a frightening experience of accidentally putting a Novorapid cartridge in my long acting insulin pen late one night and proceeded to inject 25 units of Novorapid instead of Levemir. The ensuing hypo luckily led to me falling out of bed which alerted my wife. 1.3 mmo/l reading. I never inject my Levemir last thing at night since. This happens when you get over familiar with the cartridge changing process. Be careful. Great videos by the way.
I keep a big bottle of glucose tabs on my nightstand. But think I will now add a can of soda as well. I've had to use the tabs.
I was at 15 totally unaware and passed out. Had to call EMS and they gave me an IV drip with glucose. Now I have a sensor because I don’t feel lows anymore it’s dangerous.
I nearly killed myself and others last January. I was leaving work, and I could feel that I was having a low. But even though I recognized that, my mindset was that I didn't need to "waste" the fruit snacks IN MY POCKET and that I could just make the drive home to treat it. It's as if my brain didn't recognize that this WAS an emergency. My brain said I needed to save my carbs in my pocket for a "real" emergency.
Anyway, my drive home from work is usually on the expressway, about five exits away. I ended up about 11 exits away, in the front yard of a high school, having jumped my truck over a snowbank and landing. My only recollection is that I vaguely recall a snapshot in my head of me looking down at the ground through my windshield. I don't remember the actual landing or taking off. And then I remember writhing in pain in my driver's seat, noticing someone stopped out on the road about 100 feet away from me. Then the next thing I remember is a police officer knocking on my window. That is when I kind of "came to". I couldn't tell him where I was or how I got there. And then it dawned on me to test myself. I took my BG meter out and tested myself, and I was at 42 at the time. I immediately downed the fruit snacks I had in my pocket. The ambulance came and I put myself on the stretcher and was taken to the hospital.
I ended up having three fractured vertebrae in my lower back that are never going to heal. My back is pretty much always in pain. I can't sleep in my bed anymore, I have to sleep in a recliner because my spine can't handle laying flat. I'm just glad that, somehow, even though I drove about 15 minutes without having any recollection of what I was doing, I didn't hit or harm anyone else.
Since then, I started wearing a CGM, and now I get paranoid even in the 30 minutes it takes my CGM to warm up between sensors lol.
Thank you for your story. A couple of times, I've "saved the carbs in my pocket" for a real emergency. I won't save them anymore.
Hi there, I really appreciated this story... but I have a few questions.. did you have yr phone near you and were you warned by the alarm? Did you have it ON? (the phone and the alarm) If so, did something go wrong?... also could you put it down to anything that happened to you that may have contributed to this happening.... Just wondering...(newly diagnosed type 1 aged 64 )
I had a hypo the night before last. At 3.2, it was enough that I had trouble getting what I needed from bedside, but my has sleep apnoea, so is on a CPAP machine, and can't hear anything.
❤LOVE From PORTUGAL 🇵🇹
Can you recall or figure out what may have caused this severe hypo?
It's good for people or partners to know what to do in this situation.
I am an insulin dependent type 2 diabetic. I have had a number of hypos fortunatelyI wear a CGM and it warned me of the hypos most of these happen at night during sleepI keep glucose tablets right by my bedJuices are OK if you have nothing else but make it a habit of buying either glucose tablets or candy that is made of glucose. Sweetarts and smartthings are 2 candies made of glucose that you can use in place of glucose tabletso is Werthers Sugar candy. Glucose acts much quicker than sodas and juice which contain fructose. Ps glucose and dextrose are the same thing!!
I lost the love of my life to hypoglycemia induced attack a month ago. She was telling me that she was "really weak" or "feeling sick". While I was at work... then she stopped responding. I worked night shift so I figured she went to sleep. I'm so over whelemed with so much grief and blame for not being more aware. I can't imagine what it feels like to go through this...
I am sorry for your loss my friend. If you’d like to talk more I’m here for you. Please don’t blame yourself.
I went to zero once passed out, respiration stopped They told me I died but still here type 1 also my sister called ambulance, saved me.
I now keep 2 apple juice boxes beside the bed. I always carry a few of those Rockets or smarties with me. When you go too low , you can’t realize it. Luckily , my wife was around both times I went ultra low(
I had a similar situation last month. Luckily I had enough strength to get to my refrigerator when I just stood there at 3am in the dark eating apples, and half a candy bar my son had.
Now I leave something near my bed just in case.
This is what scares me living alone in an apartment 🥲 I'm T2 and I haven't experience hypo yet and my lowest was 78 so I don't know how this feels.
That is scary for certain but you can offset the danger. First, have a CGM with a low alarm then do what Tom says: - don't keep your sugar recovery stuff on the other side of your room. Have it right beside you on the nightstand beside your bed.
@@terencehawkes3933 woke up with 70mg/dL today. Sad thing is CGM where I'm from is kinda expensive.
@@Canshyow I know what it's like to be without a CGM. Until 3 years ago they weren't even available. So I used a test strip before each meal and one just before bed to make sure I wouldn't go low overnight.
I've had my blood sugar drop as low as 43 the first time I became aware of what's going on. Currently, I'm RH I am pretty sure if I wasn't at work I never would ha e figured out what was going on
Thanks!
You're most welcome my friend! Thank you!
I keep some teaspoons & a pot of honey & a pot of molasses by my bed to take in an emergency. There is also a pot with some Demerara sugar in it, so I have good supplies. I thought that if I’m going to have to have sugar, I might as well get some nutrition with it, LOL. I do find they absorb better & faster by swishing & dissolving in some water in my mouth. As drinks the glucose seems to work faster than as food.
Fortunately my body has always woken me up at a fairly early stage as I’m quite a light sleeper.
I do keep an 18g bag of glucose drink on my bedside table which I’ll take slugs of to stop the G7 alarms during the night but I’m glad so far I’ve not had to use the Glucagon inj at all (I’ve heard it makes you very sick to the stomach) but for me when I’m in bed having a low I don’t feel it at all it’s only when I get out of bed that I feel shaky etc so I’m very glad I have DG7 to tell me what’s going on!
Question: can you acttually sleep through low blood sugar & not awake like you did in middle of night ?
Does the body wake us up when we are near crisis point so we can react ... in time ?
Can nasal glucagon powder get completely useless upon expiration date, or just partially?
I had an attack on Saturday the last Saturday of April. At that time I was a pre diabetic now I'm a post diabetic taking insulin but that night I was taken to the hospital and I had cold sweats my blood sugar was 400 later at 500 that's the second time that I've ever had these cold sweats a year ago I had them but I didn't know what was wrong
It would be interesting, to learn, what car driving rules are in other countries. In 40years, only required medical help re hypo, once. I was told, if it happened again, needing outside medical help,within 6months, I could, lose my driving licence.U.K rule, despite, the hypo happening at home..Not whilst driving.
Once I had hypoglycemia so severe I could not rise from bed. After realizing I had to get up to get liquid sugar from my desk, I was able to crawl along the floor after summoning all my will. I eventually got the sugar, but it took a long time.
Since then I placed 12 fluid oz. (255 mL) sealed bottles of Gatorade around my bed, on the floor in case this happens again. If they are already on the floor then I won't knock the bottle under my bed (or worse between the mattress and the headboard) if I lose grasp of a bottle, and I won't have to stand upright in order to get one. I put these Gatorade bottles around all three edges of my bed plus one atop the headboard.
i have had lower than 2.1 at times!, when it gets too low and you get confused, it is normal for your brain to take 45-60 minutes to recover and this is not something that most people know about and it is way too easy to continue having to much sugary stuff when it happens and then you get way too high!
My bloodshugar was 1,6 when I think, that I am just tired and need sleep. My husband see something wrong when I lie on bed and breathing too deep. I live in Russia and emergency always come very slowly in these situations. Thank to my husband, he took me juice with 5 spoon of sugar.
My biggest problem right now is I've lost 60lbs and my libre3 I purchased last February says I've been over 400+ for months now. My doctor is in Colorado & I'm visiting in San Diego California. No medical coverage in California. So I go to Tijuana Baja Mexico.Everything is cheaper by 50% to 70%. I find 1 of Top 3 Endocrinologist in country 6 miles from Border crossing. Consultation & New Prescription meds on my diabetes Cost $80 USD. Also my Insulin(Lantus) @100 units wasn't working that's why I lost 60 lbs were eating up all my fat storage & my muscles.
Before the CGM was a thing, I had several of those hypos. Sometimes, my GF had to call an ambulance, or even at the university. I cannot stress enough how happy I am with the sensors, either Libre 2 or Dexcom G7, which usually allow me to detect this in advance and react.
That said, I don't go to sleep without a couple of bananas, just in case something happens.
Ypsopump with camaps? Because it is often to much aggressive
This is what I’m scared of (I 20 year diagnosed with diabetes Type1 2017) the first 2 years of living with diabetes was actually good hba1c at 5,7 but after the 2 years I started overreacting and panicking more and more about hypos now my hba1c is over 13 and I start panicking and having the symptoms of a hypo with 9,0mmol I don’t know what to do actually is the diabetes winning?
When I have a low blood sugar during the night, I usually end up in the bathroom. I don't know how I got there, I'm just there. All sweaty and confused. Once I realize what's going on, I go into the kitchen to get juice. I don't check my BS until a little later. The lowest BS I've had was a 12.