Ovarian Cancer: Signs, Symptoms & Screening
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- Опубликовано: 17 сен 2022
- September is Ovarian Cancer Awareness Month and I wanted to share some information with all of you. Please share this video to help spread awareness about the signs, symptoms and (lack of) screening for ovarian cancer. 💙
Watch all of the videos related to my cancer diagnosis:
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We are a married couple who started on a life-changing whole food, plant-based weight loss journey in June 2018.
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I've worked in healthcare over 40 years and am still shocked by the number of people (mostly women) who blindly follow anything their doctor says without asking questions or doing research. If you feel like your doctor is not listening to your complaints, doesn't take you seriously, refuses to explain things to your satisfaction, doesn't adequately answer your questions... GET ANOTHER DOCTOR. Yes, doctors have some expertise and training, but they don't know everything, they make a lot of mistakes and nobody knows your body better than you.
This particularly goes for diabetes. After I was diagnosed I dove into research. I came to disagree with a lot of the treatment. Avoiding carbs was the key to reversing it, along with tapering off the meds. Do your own research and do it quick. I hear reversal is most successful if done asap after diagnosis. I have had normal numbers and no men's for almost three years no we. It's a great alternative to living with insulin and Metformin. My doctor said it's like I was never diagnosed. I'm also 60 pounds lighter. If I'd listened to my doctor I'd probably be going for dialysis by now. BTW, when I crave a food I eat it, then go back to being disciplined. I never feel deprived.
Very few humans are good listeners and actually hear what you're saying. We cant expect doctors to be any different. The older we get, the deafer they get, imo.
It's not that easy in all countries. In my country you have to phone the city and get permission to change doctors, you have to justify it etc etc.
@@smallbeginning2 That's a very good point. Are you in a country with socialized medicine? Thank goodness here in America we still have the choice of who we want to care for us. Apparently Jessica's health insurance plan even allows her to go out of state (from Missouri to Minnesota) to get the very best care.
My son had a PCP, her medical care was sorely inadequate. Went to a second PCP for my son. Same situation. He's now going to the 3rd PCP in 14 months. 3rd PCP has done the bare minimum. I think it's time to look for a new one. THIS IS REDICULOUS!!!!!!!!!!
43,000 people have seen this video now, Jessica. They have sisters, daughters, parents. You have undoubtedly raised awareness in hundreds of thousands of people now, and saved more than a few lives.
Every woman’s annual exam should have a CA125 blood test!
To elaborate a bit more on ovarian cancer screening (from a junior doctor who is by no means a specialist in oncology or statistics, but who probably has a bit more of an understanding of how screening tests get developed and funded than the average person)
There are a few things that get taken into account when assessing a test as being “good” as a screening test in asymptomatic people. This might offer a bit of an explanation as to why CA 125 is not recommended as a screening tool in asymptomatic women.
Specificity - This refers to how well the test identifies patients who do not have the disease. It compares the number of patients without ovarian cancer who have a negative test (true negatives) and the patients without ovarian cancer who have a positive test (false positives) (i.e. there is another condition that makes CA 125 high). In this case there are a few - including endometriosis, liver disease, menstruation, pelvic inflammatory disease, pregnancy, fibroids - that could cause CA 125 to be high. A good screening test would need to be very specific to ovarian cancer.
Sensitivity - This refers to how well the test identifies patients with ovarian cancer.
It compares the number of ovarian cancer cases that are detected by the test (true positives), compared to the number of ovarian cancers that are missed (false negatives). A highly sensitive test means most cases of ovarian cancer are picked up by the test. Sensitivity is really important with regards to being able to detect early stages of disease. The CA 125 is not great at this, picking up only 50% of early ovarian cancers, vs 85% of late stage cancers. Because of this, if someone had no symptoms or vague symptoms, but had a normal CA 125 at an annual check up, it could be falsely reassuring. This is the main reason it is not recommended as a screening test in asymptomatic people. Someone like Jessica, whose CA 125 was not elevated, would have been in the 50% that were missed.
CA 125 does have its uses. It is used in patients with confirmed ovarian cancer that do have a raised CA 125, then it can be used to assess response to treatment (i.e. if it is going down, then the patient is likely responding to treatment) or to assess for recurrence (i.e. the patient has had successful treatment, and it is monitored over time).
In the case of ovarian cancer, when early diagnosis could be absolutely game changing - a screening test is absolutely needed! It’s just CA 125 isn’t perfect for the above reasons, and we don’t have a good solution yet. There are other things we can do, and which the Krocks are doing an incredible job at - raising awareness, educating about symptoms, encouraging patients to advocate for themselves and share their own stories, and encouraging clinicians to consider ovarian cancer earlier on (before it is literally staring us in the face.) I have certainly learnt a lot from Jessica sharing her experiences.
@@blinkybill2803 You are absolutely correct about why the CA125 is not used routinely. However, there are many tests that have poor predictability but are in current use. Take the Prostate Specific Antigen (PSA) test. It doesn't predict prostate cancer even 50% of the time. But now, it is becoming the preferred test over the digital rectal exam (DRE), and is being offered to even younger men, to set a baseline. All covered by insurance companies. There are definitely health disparities between man and women and I think this is one of those areas. For example, having a doctor stick their fingers in your vagina and vaguely press around your abdomen trying to "feel" for a mass is as unpleasant as a DRE and only predicative if the mass is large. This farce of an ovarian cancer screen could/should be replace by a simple ultrasound. In addition, there are many ovarian cancer genetic markers than just CA125, including BRCA1 and 2. Why aren't all individuals who are assigned female at birth (AFAB) screened for these markers in their late teens? If you don't have them... great, normal screening for you from now on. If you have one or more, then you get enhanced screening, as appropriate. There is a lot that could be done for earlier diagnosis with the tests and tools we have now, especially for non-breast cancers that affect AFAB individuals.
Oh 100%, lots of things are done routinely that are not very helpful. In Australia neither the college of gynaecologists nor the college of GPs recommends bimanual pelvic exams in asymptomatic women anymore (as part of well women checks), and I think the ACOG in the US doesn’t either. But how many women have this quite invasive examination done yearly, which could also be falsely reassuring.
People with prostates in AUS usually get pretty in-depth counselling about how PSA is an imperfect test before deciding whether to do screening. There isn’t really a good reason why that couldn’t also be done for people with ovaries, with things like genetic screening or tumour markers.
The barrier with radiological screening would be getting funding (either from the government with socialised medicine, or insurance), in order to pay the ultrasonographers and radiologists required to do and report the test.
Also need to consider the health disparity due to poverty, and that in a country like the US then even if these tests are encouraged for screening, there is a whole subset of the population who would remain disadvantaged.
Basically there’s a lot that needs to be improved
Fern, you are so right!!! Women are dismissed, period. Men have all these advantages over women's 'health care' or should I say quack care?
1-2x a year!!! also, if the BRCA is present, instead of mammograms Breast MRIs should be standard. My insurance co will not pay. I have BRCA! $3600 on them vs the enormous cost to treat cancer????
The oddity of the yearly check up is that they don’t do the finger up bum and ultrasound, which should also be standard for ALL women!!!
Not all women know they have BRCA gene. So meant reasons not to get tested. People who are from poorer communities, may not ever know they had cancer in their body. In many communities, ANYONE can be a Corner (this is not right the mortician that is elected - I can’t think of the word - akin to mortician).
Also, want to know why women are diagnosed so late? We women are always written off!
My female PCP, who? Actually I’m not with her anymore because I hate her that’s not nice but I HATE her, she knows I have the Bracha to mutation and I requested when I first moved to her at her clinic to get yearly referrals for my mammogram MRI , and my annual check up every six months with the ultrasound and the CA, 125 bloodwork as per previous protocol. This woman said to me when I was 35 years old, “at your age, you do not need to worry about this you are too young. Anyhow, most people who have the BRCA mutation most likely will not get cancer.”
We aren’t friends. Lol
Also, she wrote me off when I was hunched over in so much pain due to Acute Pancreatitis (not alcohol related nor was I aware of what was going on) and was dismissive of me. I ended up in the hospital in and out and it had been over three years now.
I have now learned that the BRCA mutation is related to Pancreatic cancer also. Not kidding.
Point? Don’t let the doctors bully you and remind them they work for us!!!!!
Are you for real? You’re knee-deep in this right now and you’re already thinking of others and educating/communicating. This made me cry at how amazing you are. So proud x f#cking warrior
I know, I couldn't even tell my husband next to me about her video and what she is sharing without tears. I admire her so much.
I want to cry 😢😢😢 I had two periods in a month this month and I have a cyst
Ty lady for doing this ❤❤❤
I’ve had a pre op for a pending hysterectomy. I’ve not been given a date yet, but most be fairly soon .
My cervix has closed so they can’t continue to test for abnormal cells.
I was thinking of asking to have my ovaries left because apparently there is still a small release of hormones released that helps prevent osteoporosis.
Since listening to what you said about ovarian cancer not tested for , perhaps I am better to have all taken out just in case .
You could just be saving someone's life. ❤
Yes! ABSOLUTELY!❤❤❤❤
I’m so glad you’re sharing this. My husband’s cancer has devastated our lives. His cancer was already stage 4 and we didn’t even know he was sick. RUclips has become my therapy in dealing with it. Praying for you!
Praying for you as well ❤️❤️❤️
Sending prayers for your husband and family
I’m so very sorry ❤️
Big hug, I know how hard it is. My dad's cancer seemed stage 3 when it was initially discovered; one week later it turned out to be stage 4. He basically had zero symptoms, just some vague throat pain. Best of luck to you and your husband!
I appreciate you sharing your story. You will be in my prayers. ❤️🌹
I was diagnosed with ovarian cancer almost exactly one year ago. I’m doing well now. (I finished chemo in March, and my hair is almost 2” long now!) My presentation was the opposite of yours: ovaries looked normal on ultrasound, but CA-125 was over 700 (normally less than 35). As both a doctor and a patient, I can tell you the information you present in this video is absolutely correct.
Before I went to med school, I envisioned myself as a primary care doctor who would give all my patients a full body CT every year! But medical training taught me the risks of this approach outweigh the benefits. The benefits are small. The risks are not only a lot of radiation exposure, but false positive results. CT scans frequently turn up things that look abnormal, but aren’t.
A third reason some screening tests turn out to be more harmful than helpful is statistics. No test is 100% accurate; they all have false positive and false negative rates. If we screen large numbers of people for rare diseases, the false positive rate can be higher than the true positive rate.
It was the combination of symptoms, ultrasound, and CA-125 (and doctors who knew how to work with this information) that allowed you and me to be diagnosed.
Thank you for sharing all your information with the world. I wish you the best.
Thank you, that is very helpful. Always have believed medicine is still more of an art than a science in a way. When money is involved, that’s when I get upset.
lookup Dr Bergs recent vid interview on cancer = very informative. and also see Shawn bakker md vids on cancer.
This is the frustration with ovarian cancer. For most people, there are no signs until is is quite progressed, and I hope you continue to be cancer free. Not all scans are hazardous, e.g., MRIs and ultrasound are very, very safe. And yes, a whole body scan is going to turn up all sorts of weird and wonderful things. But, it is also up to you and the doctor to determine what to follow up on. There is a (probably) benign tumor in one of the bones of my shoulder, found during an MRI to look for a tear. My doctor and I discussed this and decided to leave it. I have a (probably) benign tumor in one kidney, found during a scan for something else. And yes, often times diagnosis requires multiple tests, as not all are positive. It still doesn't mean some tests shouldn't be done. I think a simple abdominal ultrasound, as part of a well women exam, should be done. Will it find cysts and lumps and bumps... yes. Will it detect every ovarian cancer... no. But it is a basic and safe test that might help identify SOME cancers earlier. Breast self-examination does not detect cancer at a better rate than mammograms, yet we are encouraged to do it and any lumps we find are then investigated appropriately. This is really no different.
I was diagnosed with ovarian cancer last year also. Sorry to hear you too. My CA125 is normal but I have a lot of pelvic cramping, back pain, fatigue which I have had more or less for a long time but it seems to be getting worse, not sure. I am really wary of the CT I have scheduled in Oct. because of the radiation and false positive and negative results you talk about. I don't know if I should go through with it or not. I don't have a good doctor overseeing my care. I've had terrible trouble, even with the surgeon. But what else can I do. I have no idea what to do and I don't trust my doctors and I am super scared. what other test is there? nothing? they said MRI is not good nor ultrasounds. I've already had a full hysterectomy but was not staged because the surgeon didn't find the cancer that was inside one ovary and on the surface until after the surgery when it was biopsied. It was a borderline serous tumor but the pathogoist said she thought it had spread. I just am at a total loss and so confused. No wonder this cancer is so lethal. There are no accurate tests for it. I just don't know what to do. Do you think I should go through with the CT? I'm trying to find another good gyn oncologist I can trust but it is really hard. I'm in a rural area, closest major city is Seattle three hours from where I live. Sorry to dump on you. I've never felt so unsure about my medical status or the doctors I have had. Good luck to you. Any input is appreciated. Take care.
As far as scans go I am a advocate for low dose CT scanning for cancer. I had lung cancer that was found incidentally when I got a CT scan for a entirely different issue. I had no symptoms and most lung cancers are stage 3-4 by the time symptoms become evident. My cancer was stage 1 and I am so glad I had that CT scan and found my lung cancer.
I had uterine cancer. My only sign was some light spotting after going through menopause. They did a ultrasound and determined by the thickness of my uterine lining (which is a different parameter in different countries-good I live in the United States) that I needed a biopsy. They found the cancer and scheduled me for a full hysterectomy and removal of two lymph nodes. They said my ovarian was very enlarged on one side but no cancer there - only in my uterus. I’m cancer free 3 years now. I am praying for your full recovery! 💕
Had almost the same situation
I just had a biopsy the other day I have the same symptoms as you a thick uterus and they found a polyp in my cervix and it’s all tested for biopsy. I’m going for an MRI next week. I am almost 62 years old and a bit concerned
Thank you so much for this video. I was diagnosed stg 3 ovarian in January. I just finished treatment and I’m recovering well. My symptoms and situation is very similar to urs. With my weight it was hard to tell a lot of things, but also I’ve always thought my frequent urinating, heavy periods, UTI’s, bloating, fatigue, and back pain, I assumed was normal and cause of my weight. What made me go to the dr was feeling full fast and that pain in my abdomen! I had that pain for 4 months! I was misdiagnosed with GERD and H.Pylori. Turned out, it was a 20cm mass on my ovary. Cancer at 30 as well as a radical oophorectomy and debulking. Now that treatment is over and I’m in menopause, I realize how shitty I felt all these years. I feel so much better. Every day has its challenges, but I’ll take it over what I was feeling before. These videos help me so much. Im in this journey with you. Im proud of you and have you in my prayers. Thank you for sharing♥️
Apko betana mein problem hota ho ga back pain mein.??? Plz reply
A PAP smear checks only for cervical exam. Most people don’t realize that an ovary is about the size of a large almond. During the bimanual exam the doc is trying to feel the ovary between skin, abdominal fat and intestine. By the time someone can feel the mass it is quite large!
That is something I didn't realize until this past year or so, that the PAP smear doesn't check for ovarian cancer. A CT also doesn't detect everything, as in if something is in the bladder or maybe colon, etc, it might not be seen.
But they check the ovaries when you have a pap smear. My gyneacologist (in Europe) does the pap smear first and then she does the transvaginal ultrasound and ultrasound of the lower belly on the outside. I always ask her if she sees any tumours in there. A transvaginal ultrasound examines the uterus, fallopian tubes, ovaries, cervix, and vagina. I'm in my early 30s and I go once per year to have it done as part of prevention.
@@riase That's amazing. In America they don't do any ultrasounds at your annual appointment.
I have to push to get ultrasounds. My mom died from ovarian cancer, so I’m going to continue to push for those ultrasounds. I’ll even pay out of pocket if I have to (but it seems like good preventative common sense to get one yearly!).
I'm praying for you during this journey with Ovarian Cancer. I don't have Ovarian Cancer but I had a stroke in January and it to has changed my life. One day you are living your life and then the next day your life is completely changed. Please know that you talking about Ovarian Cancer will help that one woman that sees your video. I would love to start a channel to talk about stroke and possibly helping that one person. Praying for you.
Thank you for making this video. My aunty was diagnosis with ovarian cancer thirty years ago. She just turned 85 and is alive and well. 🙏❤️
Your hat is gorgeous by the way 🌻
Retired Nurse here, it’s a tough call as to when to go to the doctor. Jessica was wise to set a time limit if the pain didn’t go away. If you go to the dr for pain, they will ask you how long it’s been going on, if you say yesterday they will probably not be concerned. If you have persistent pain then see your dr. Waiting 2 weeks is not going to make a difference. In an emergency of course go to the ER. Pain for a weeks needs attention. Go Jessica 😅👍
it's about money. imagine the poor folks who don't have good or any insurance.
you make so much sense.
appreciate your incredibly positive attitude.
the best to you in this challenge.
Because your grandmother passed from it, you should certainly be offered the tests we do have available. DNA tests for any markers should also be offered and insurance should cover it. All the best with this journey!
Same with Gilda Radnor (er). Family history. I read her book... Think her.mother also had it. She was going to doctors with complaints and told they could not find anything wrong. This was over 40 years ago. My friend's mom was ex's with stage IV two Christmas's ago. Amazingly they have helped her! O.P. , no radiation, but some pills.
I work in medical research. A colleague and I were discussing ovarian cancer and how it is often diagnosed at late stages. I asked why he thought that was th case and he said "It's because there is so much room down there. You can have a grapefruit sized tumor and not be aware of it. Not true in the brain, or in a bone or in the neck." And I thought, "That is probably true. Also, no bones down there in the immediate vicinity. So a met to a bone (which will alert you with pain) is way less likely than with lung cancer or breast cancer or a cancer in the joints. all argues for more early molecular biomarkers for testing.
That makes sense. Thank you for sharing.
Lung cancer is often very difficult to diagnose in the early stages. My sister had back pain, and when she was diagnosed, after one doctor sent her for physical therapy, her lung cancer was stage 4. It had already metastasized.
I have ovarian cysts. I can feel them quite well when they get to what I deem to be a tennis ball size, thank you. I know that they are not, but they are very uncomfortable. GYN's tend to be dismissive and tell me that it shouldn't hurt, but it doesn't make it any better or get me help. I wonder if your attitude as a researcher is just a by-product of the more dismissive attitude throughout the entire field that delays a chance to diagnose sooner. 🤨
@@joew7041 you're making a wrong conclusion. Research does not mean patient contact. In fact zero patient contact. I do research. Meaning, the topic I happen to research is sometimes ovarian cancer. But in my case is more typically genetics, and molecular biology and imaging and a bunch of other things. Relax. My "attitude" is not dismissiveness nor hostility. But yours is.
@@joew7041 you hit the nail on the head...R&D by far is so dismissive. I wonder if they take a oath to be so silent! I have a family member who is a notable research oncology scientist and when asked questions she absolutely refuses to answer.
My sis was 42 when she received her ovarian cancer diagnosis. It also took her team a while before they staged her at 3 or 4. Thank you for helping educate people. I pray for you and Brian.
I agree that they should do a yearly scan on everyone. The money they would save in the long run! I had endometrial cancer in 2019. It’s a process that I don’t ever want to go through again. I had chemo and internal radiation. I’m cancer free! I wish you all the best in your journey and it is a journey. 🙏
I think it is ridiculous that we are so behind in women's health issues. Not many people are aware that heart attack symptoms are different for women than they are for men. We are not treated the same. You are lucky to have really good care.
It's true. It took me 7 years and 4 doctors to get diagnosed with the same heart disease my mother had. Three doctors in a row just kept diagnosing me as "old" when I actually need a pacemaker. The 4th doctor actually listened to and heard me. What if I hadn't given up?
I agree. She's is lucky to have good care. I was diagnosed early last year but my care is so bad I'm afraid I'm not going to make it anyway. Good doctors are hard to find and I'm glad she's with a good team at Mayo.
@@wordswordswords8203 stay strong! Fight! Ask for help. Easier said than done, I know. Just don’t give up! ❤
@@wordswordswords8203 I'm so sorry you're going through this. If you are in the US and have insurance you can call and see if they have a nurse advocate to coordinate your appointments and treatments.❤️ I hope your care gets better and you can kick cancer's boot! Sending you lots of love and support.💐
After reading the comments, it makes one wonder if there was a cancer that affected only men, would there be better testing options/research? When I had heart trouble at 30 they told me it was an anxiety attack, ended up a few years later after moving out of state, that I needed heart ablasion, maybe a pacemaker, but the ablasion worked. So, listen to your gut & find a doc that will listen & have your best interest!
Things you can do:
Listen to your body, be an advocate for you, get annual screenings for other possible stuff.
I had cysts that were ignored because they told me that cysts are normal for women. After several trips to the emergency room, nothing was done. I had a positive pregnancy test, by the next day it was negative and ultrasound confirmed no baby.
Instead they saw liquid and when I got CT scan, they saw a tumor that burst which was most estimated to be the size of a softball. After surgery and several biopsies, no sign. Now I got another positive pregnancy test with HCG rising. I'm terrified. It's so scary. The symptoms can be so similar.
So scary. It makes me feel better I'm not alone. I am waiting for ultrasound to confirm what's going on currently..
I had a rare form which grows slowly. Mine was stage 1c.
Thank you for the inspiration and strength. ❤
I hesitated to watch this video. I was just at my annual last Wednesday and my doctor is sending me for an ultrasound next Friday. She says it's probably nothing, but she feels like there's some swelling in my belly and just wants to "rule out" anything serious. I've been going back and forth between "I've always had a big belly" and "OMG I don't want to die!" I'm so impressed with how you are being so strong and you're able to make these videos without crying your eyes out. I'm so scared.
I am so glad you are getting it checked out ❤️ I know firsthand how scary it is, but try to just deal with the information you currently have and not dwell on the “what ifs” too much. Easier said than done. Just know you are doing everything you can possibly do at this time. ❤️ Prayers that it’s nothing serious.
fingers crossed
You shouldn’t die if you get it diagnosed early! My tumor was the size of a babies head (the gynecologist totally missed it) I had to argue with him to get a pelvic ultrasound and the appropriate bloodwork but I was willing to stay until I got what I needed! It sounds like your doctor cares so please trust this doctor.
It's okay to not be "strong", cry if you got to. I know I do, a lot. And I guess crying doesn't mean we're not strong, it's just a way of dealing with anxiety.
Sharon, it shouldn't be a matter if the doctor cares or not, they should be doing their job! Particularly doing their job for both women and men, NOT totally dismissing women per usual!!
My mother’s symptom was a heaviness in her uterus area. Now, she had had a endometrial ablation done when she was about 52 (she was diagnosed with ovarian cancer at 65) and that had pretty much sealed the opening of her cervix so when her tumour started leaking fluids it got trapped in the uterus and made it really heavy. She’s an ICU nurse and had guessed what her diagnoses would be before the surgery but it was after the surgery we found out it wasn’t a cyst but that it was cancer. She was at a stage 2 or 3 with a bit of spread to the stomach lining. She’s 81 now and fine except for some nerve damage in her feet from the chemo.
Why on earth would the cervex be sealed up? Sounds abusive. Help us understand this.
I had an endometrial ablation, it was a huge failure followed by a complete hysterectomy. But the doctor insisted I try that first, SMH
@@smallfootprint2961 an ablation is the burning out of the uterus lining, it fused one of my tubes and ovaries to the outside of my uterus and had to have a complete hysterectomy, surgeon said it was a mess.
@@smallfootprint2961 She needed it because she had been bleeding heavily for weeks. Apparently one can get bleeding lesions in the uterine lining because of hormones during peri menopause. The procedure is a cauterisation of the uterine lining and that created scar tissue. In her case those scars sealed her cervix. Not a nice procedure but something had to stop the bleeding.
@@minnesotagal507 I’m sorry that happened to you, that’s really bad!
Praying 🙏 for a full healing Jessica. My mum passed away from ovarian cancer 5 years ago and was stage 4 when she was diagnosed. My mum was 79 when she was diagnosed although it was devastating, at least she had lived a long life surrounded by her children and 5 grandchildren. I miss her terribly and praise the Lord Jesus, he carried her through the journey with no pain and a quick and peaceful passing. It is a terrible illness and not a cancer that you can screen for like some others. Let’s hope this can change in the future with research and fundraising to push this further. Amen 🙏
My mom had her annual check up at her GYN around Thanksgiving and was clear. After December she began having symptoms (swollen belly) and was diagnosed with Ovarian cancer. My brother couldn't believe that there was no test for this cancer. That was back in 1998. I developed a condition that was out of the ordinary for me and ran to the doctor. I was diagnosed with early stage Endometrial cancer in 2017. There's no test for that either, until you actually get it. The only course treatment was total hysterectomy. Thankfully I didn't need chemo or radiation. Because it was caught early I was spared. This is usually not so for Ovarian cancer. Grateful Jessica that treatment for Ovarian cancer has significantly improved over the past two decades when my mother fought against it. Stay encouraged.
We caught my endometrial cancer because I had fibroids causing problems. I ended up getting a total hysterectomy in which they also found tumor (non cancer) in my ovaries.
I was 58 at the time, and not going every year for my check up. Shame on me and I feel very lucky. It could have gotten very bad had I put off the visit that found it.
My diagnosis of endometrial cancer resulted in hysterectomy in 2019, at 70. No further treatment needed as well, didn’t know it then but stats show IF it recurs it usually is within 3 yrs, my 3yrs anniversary (surgery) is October 1, unfortunately I’m having symptoms again, and have ultrasound scheduled for This Wednesday. Glad Jessica has a supportive husband, many folks go thru cancer with little emotional support.
Thankyou Jessica, it’s very kind of you to think of others and give all the advice you can on this ..
I wish you all the love in the world and may you have strength for all the treatment you have to have..
The love of a good man like Brian will see you through lovely lady....bless you x
I had lots of tests, and all was negative for cancer ,till they ordered a few more, not so common blood tests , and bingo, found positive markers for cancer, not the CA125!
I have a 5 cm ovarian mass and I’m in my 60’s! Now, I’m on “ a list “ to have surgery but not in a rush it seems like, it’s frustrating and scary !
Thank you this info. You may have saved many lives.
My sister-in-law had ovarian cancer and her only sign was difficulty breathing.
She went to two drs that dismissed her dyspnea as seasonal allergies.
The 3rd dr found she had a COLLAPSED LUNG due to metastasis of the ovarian cancer. It was too late for her to get treatment.
Keep sharing your journey. We are with you in spirit🕊.
September is Ovarian Cancer Awareness Month and I wanted to share some information with all of you. Please share this video to help spread awareness about the signs, symptoms and (lack of) screening for ovarian cancer. 💙 Here is a playlist of all the videos related to my cancer diagnosis: bit.ly/KrockCancerJourney
hello my mom is a two time cancer survivor out of respect i will not give much info just that she had Neroendocrine cancer and was cancer free. then mom had a normal scan and found out she had stage 2 Ovarian Cancer had treatment and is cancer free.
her cancer came after my dad died and i have been traumitized by his death
Prayers for you and your mom ❤️❤️❤️ I am glad to hear she is cancer free.
Thanks so much for pointing out that being young does not mean you cannot develop cancer. My sister-in-law who is 37 was diagnosed with stage 3 colon cancer in July of this year. She had no related symptoms at the time so it has been a complete shock.
Thanks Jessica. Did the Terry Fox Run today. Was glad I was healthy enough this year. Almost five year journey with endometrial cancer and all the complications from, sepsis, surgeries, radiation, C. difficile, etc. I just deal with it like going to the dentist. Don’t like it but got to do it. Take care. Judy BC Canada.
Thanks so much for your video!! I haven’t watched all your other videos yet but I was curious what size the cysts were. I have bilateral ovarian cysts and have all the symptoms you’ve described but cancer was never in the discussion with the gynecologist. He was only worried about if one of the cysts bursted so I’ve been trying to shrink them with vegan diet and exercise before the next ultrasound.
Fellow recent ovarian cancer person right here. Such a sad plight we face and hard to understand why no screening and limited treatment. Prayers!!
When I watched the Gilda Radner story they recommended the following test and I have it done annually: CA-125 Blood Test
A CA-125 blood test can be used as part of an overall approach to monitoring ovarian and other cancers. It’s used as a screening tool for people at very high risk for ovarian cancer.
But Jessica's ca125 showed nothing.
@@sl4983 my ca-125 was completely normal when I was diagnosed...Marker tests are not accurate for everyone
Hi Jessica great information you shared. I would like to add for women of a certain age if you have post menopausal bleeding GET IT CHECKED OUT. It could save your life, it sure saved mine. Thinking and praying for you!
Love your knit hat and top! I’ve had an overactive bladder for decades and developed abdominal bloating a few years ago. …but because of weight gain. If I experience anything more out of the ordinary I will have it checked out. I’ve been a vegetarian for 30+ years and because vegan (WFPB) in 2021 when I needed my gallbladder removed - very important video! Thank you!😅
My ob/gyn stressed over and over to me the same thing, so when I started spotting I called her right away. She scheduled a d&c within a week. Fortunately they found nothing, and I haven't had trouble since, but she still asks me every pap appt.
Thank u for sharing! Praying for u 🙏🏼
Continued prayers for you.
Thank you for sharing this !
Thank you. Wishing you health!!!!
Jessica - thanks for sharing! 🙏
Thank you for sharing this information ❤️
Since my family has a high cancer history I have the transvaginal sonogram pap smear mammogram and breast sonogram every year. Last year I had some symptoms bothering me so I had another transvaginal Braca and saline Sonogram plus uterine biopsies done. Another CA 125 all negative. Uterine lining quite thin. Trying to stay on top of this. We need better testing to find this cancer in early stages. I'm hearing FRa is a faily new test for diagnosing Ovarian cancer. A dear lady I knew from church had been diagnosed with Ovarian cancer in her 50's. She was treated and went into remission. It did reoccur twice. Her last battle with it she had genetic testing and was put on Lynparza. Definitely shrunk the tumors and she lived into her late 80's. Thanks so much for bringing awareness 🙏 ❤️
Thank You for this video!
Thank you for sharing your story ❤
Thank you so much for sharing this 🙏🏻
Thank you for talking about this.
Thank you for talking about this.I’m so angry that prostate C can be detected by a simple blood test, and ovarian C is usually discovered very late. My mom lost weight and was “gassy” , her dr never picked up on the earlier signs. Then her lungs filled with cancerous fluid ,and they found it when she couldn’t breathe, stage 4. She never had an actual tumor. I wish you the strength to fight with everything you got.
Prostate Cancer is not detected by a simple blood test. The PSA just gives the doctor some of the information for a diagnosis.
I’ve been having abdominal pains, I have cysts, my lungs filled with fluid too, can you tell me more about what happened with your mom and her symptoms?
@@Zoethefurrytabby she had her gallbladder removed a few decades earlier so the gassiness was not too unusual ; it was just more prominent with bloating. She had a hernia (unrelated to cancer) and that dr could see granularity on her omentum. There was never any visible tumor on the ovary. The most prominent early symptom was weight loss . Then one lung filled with fluid (pleurisy). The ER drained it but the dr mistakenly didn’t order the correct tests on the fluid to check for cancer. So they waited months till there was fluid again, the correct tests were done and she was diagnosed stage 4. I didn’t understand how serious the lung fluid was at the time.. Make sure the pleurisy fluid is tested correctly. All the best 💕
@@Zoethefurrytabby it’s also important if there is a history of this cancer in your family(BRCA gene).
Maybe look for research in your area . My sister signed up for one in Montréal:
“I took part in a research thing today
Early detection. Of ovarian and endometrial cancer.
Blood tests. Saliva sample. Endovag ultrasound then a regular pap. And then a nasty uterine pap. Quite painful for about 10 seconds.
But worth it. Since they began this study they inadvertently found ovarian cancer and endometrial cancer in several of their subjects. All at stage 1 or stage 2. All curable.”
So I think there may be tests out there; but we have socialized medicine in canada so they mostly only do the minimum.
@@ericksonsails thanks for the correction. Doesn’t change the fact that men could get diagnosed at stage 1 if they make minimal screening efforts. My mom was diagnosed at stage 4 when the cancer was already in her lungs and brain. That was my point. WHY are women diagnosed so late .
Thank you for the video!! 💜💜
You are sooo brave! Sending love
Sending you both much Love! Praying for you! XO 💚💚💚💚
We’re praying for you!
Thank you for making this video, it means the world to some of us! ❤
You are so generous and sharing. Thanks this.
I totally agree that there should be some type of screening for not only ovarian cancer but I have endometrial cancer and there is no screening for that either…..my only risk factors I had was age and possibly frequency of urinating…😮….I’m 68 and never had an abnormal Pap test either…….
We should all band together and demand some type of screening!!
👍🤗🫣🙏🙏
By the way my cancer was stage 4…..I’m doing well now with total abdominal hysterectomy and 6 rounds of chemo….no evidence of disease….I’m feeling like my old self and looking forward to life again…🤗👍❤️.
Hello @Safari. Blessing to you❤❤❤ I hope you remain “No Evidence of Disease” 🤗🤗🙌🏻
Do you mind if I ask how they knew or diagnosed the endometrial CA? I just had a TVUS and showed endometrial fibroid, polyp and ovarian something or other type cyst 2cm.. its been about 4 -5months and thinking about scheduling with a doc to discuss.. the nurse who told me results didn't think anything was too concerning..
@@Katie-vy5rd they did a biopsy and an vaginal ultrasound ……👍🤗🙏
@@lulamamie8524 thank you I’m feeling great back to golfing/walking…..I walked through my chemotherapy and surgery….I really think it helped me recover faster….❤️🤗👍
@@safaridreamer5831 thanks for the reply! Glad to you are doing well! Good job to have caught early enough. 🌼🌺😺
Thank for this valuable information .
Thank you for sharing. You are in my prayers.
Thank you for the information. Praying for you ❤
Thank you for sharing this info. I shared it. Love you and Brian
Thank you for sharing your experience 🙏🏼.
Keep thriving! 💕
stay strong Jessica.....thx for helping others
Wishing the best for you, Jessica.
This is such a good idea! Wishing you the absolutely best!
Good info Jessica. You're the best.
Thank you. We love you. ❤
Praying for you and cheering on you both!!! Thank you for sharing this helpful info with us❤
Excellent video!
THANKS for doing this. I’m sending you lots of love.
Continued prayers for you. ❤️🙏
Praying for your healing Jessica. Thanks
Thank you. You are in my prayers.
Thank you for sharing your knowledge.
Blessings to you, Dear Jessica 💗💗💗💗💗💗💗💗
thank you for this video, you amaze me jessica
Thank you for sharing Praying for you ♥️🙏🙏🙏♥️
Thankyou very much for this important information 🙏🏼💚
Thank you for doing this video. Sending prayers up for you.
Thank you for sharing, such an inspiration ❤️
My Mom died of uterine cancer in 2005 at the age of 72yrs. I was diagnosed with uterine cancer in 2009 at the age of 53yrs old. My only symptom was break through bleeding. I thought it was only menopause🤷♀️
Stay strong! Praying for your beating cancer!🙏🙏❤️
Love your channel!
Thank you so much for your informative video Jessica🤗
Great information! ❤
Sending you health and healing. Thank you for sharing this part of your life to help others.
Sending lots of love 💕 and prayers 🙏🙏
I'm so sorry. We're rooting for you two over here. Your life is precious. You got this.
Continuing to pray for you and your family. ❤️🙏🏾❤️🙏🏾❤️🙏🏾
Sending so much love and healing vibes to you both. Been following you channel but just seen this development.
🙏🏽❤️🙏🏽❤️🙏🏽❤️🙏🏽
You're amazing and strong, thank you for sharing. ❤❤
Well done! You are blessing us as we support you.
Thank you for all this information. It's very good to know. Love your channel
Excellent information Jessica - than you for sharing. Hugs to you
Sending you hugs and wishing you all the best!💕
Tremendously helpful video. My grandmother had ovarian cancer (way back in 1969). In a strange way, it feels as if little has changed. She was diagnosed after it had spread. Her symptoms were subtle (at first). Baffling. With all the advances in medicine/science, you'd think we'd be further along when it comes to the diagnosis of this disease. Hm...could be that you've started a revolution. I must say, you do look like a warrior in that lovely crocheted hat!
Like she said, and is true, symptoms can mean a LOT of things.
Women aren't taken seriously in doctor offices. We are dismissed, told it's because we're over weight, told it's all in our head, or told were getting old and this is what old feels like so get used to it. They want to give women antidepressants and to do nothing about the actual symptoms!!!!!!
@@barbarabanley6798 I tell you, too many men think they are smart and have created all kinds of abuse for women, But I tell you again, they will stop laughing when they stand before GOD, who is testing hearts. Maybe a female doctor would be better. I have one here in Greece. Didn't choose her, but was sent to her. Thyroid.
Thank you so much for sharing this, Jessica. You are doing an awareness that must be known. Continued daily prayers for you and Brian.❤
Sending you positive vibes Jessica and healing thoughts. ❤️
Thank you. I hope you're recovering well.🙏🙏🙏
This was very informative! Thanks for sharing.
all the best
Shirley
I’m an ICU nurse. I’ll make sure I get an abdominal/pelvic ultrasound every year. I’m in Canada, I’ve had previous surgery for adhesions so my pain is very nonspecific. My family physician is always great about ordering one every year
Hi Jen, Karla here as a new subscriber watching a lot of your videos to get caught up and also to get to know you and Brian. Thank you sweetie so much for posting this video as I truly believe that it is going to get a lot of women to recognize one or more symptoms they might be having and go get checked,: you helping save even just one life from this Video. You look so cute in your beanie’s. Prayers and love to you and Brian.
I love your hat and your so beautiful. I've been here almost since the beginning. Praying for your full recovery.
Thank u Jess for sharing this eye opening info. I wish u strength , patience & love on yr rocky road journey. We love u Jess !!!❤❤❤❤❤❤
Jessica, I am praying for you sweet and beautiful girl! I have watched many of your videos and you have always cheered us on... let us cheer for you too! I am rooting for peace and joy for you and Brian! We are here for you. You are loved!
I had my period show up… despite the fact thatI had gone through menopause a few years ago. I had been irregular all my life,so didn’t think it was important. I checked on line and that was what prompted me to see my doctor. So, ladies, beware and be aware.