Hi everyone, thanks for watching this video, if you like this one you might be interested in the follow up (practical steps to take when coming off steroids): ruclips.net/video/jfM_dJtLypQ/видео.html
Good info. I’m in agreement that doctors have no clue here. I wish I was able to learn more about what you did for your eczema. I look forward to hopefully finding out by watching more of your videos. New subscriber!
Can I just add to this lovely ladies video, I’ve had the same journey, so here it is … Eat lots of raw veggies and you MUST have daily COLD showers or even better swim in the sea on a regular basis . Drink drink and drink water . Avoid stress and toxic relationships. Go for long walks and try not to wear heavy clothing, expose your skin to fresh air. Don’t sweat in bed , keep your bedroom cold . Walk 10k steps a day and make sure 30mins are fast walking. I know this sounds like ‘maaaan Really “ but I promise you will thank me in months to come … man up .. just do it ❤️
What is considered over a “long period of time” for topical steroid use? 3 months or more? 6 months? I’m asking because I’ve been prescribed 2.5% hydrocortisone topical and was told up to 6 months was safe but I am very hesitant about this and it doesn’t seem right? Does anyone know? I even called my doctors nurse again to ask and was given the same information but it doesn’t sit right with me 😢I’m scared using it for more than 2-3 months I could get some of these side effects. Please help
Excellent awareness video about TSW and bad side effects from hydrocortisone. I will tell my story and I am going to make a video because I'd like to also bring awareness. I was prescribed hydrocortisone 2.5% and terbinafine when I was misdiagnosed at an ER in March with ringworm on my right pinky finger. I was told to mix the creams and also to apply the hydrocortisone "as, needed". The pharmacy didn't have the hydrocortisone 2.5% and had to order it, which should have been red flag #1, but I trusted the doctor who diagnosed me so quickly I was confident he knew what he was talking about. Fast forward two weeks later, the rash was spreading all over my finger and a red band started to wrap around my finger. Back to ER. The doctor looked at my skin for ten seconds, turned off the light and said, "You nedx to go to a dermatologist, you have eczema. Keep using the hydrocortisone.". I told him, no I do not have eczema, I was previously diagnosed with ringworm. He said he couldn't help me,vi needed to contact a dermatologist and left the room abruptly. I went home and kept using the hydrocortisone. Fast forward two weeks more and my skin was almost burned off. The skin started peeling off in multiple layers and I lost function of it, like it wouldn't bend at all. Finally got with my insurance and got a referral to an urgent care at USC in Los Angeles. They also told me I had "eczema" and tried to prescribe triamcinolone. I knew that the hydrocortisone burned off my skin so I declined the prescription. They referred to dermatologist in the complex but I had to wait two more weeks because they were booked up. The dermatologist also thought it looked "fungal" and was quite confused and concerned at the appearance of my skin. I'd discontinued the steroid cream right after my urgent care visit and the skin was so thin you could see my veins and blood vessels. You could even see my pulse beating through my swollen skin. I developed two blisters on my index finger and my fingertips were mildly flaking. I also started to have mild peeling on the same ring finger. I started just using Eucerin Eczema cream and slowly the skin started growing back. Fungal tests came back negative and now I have a lesion that developed on the other hand on my middle finger. After multiple dermatologist appointments and declining oral and more stronger steroid creams, a dermatologist with 49 years of experience recommended simple salt soaks and a mild ointment, Bactroban for the left lesion. I still developed a small rash on my knuckles which I am dealing with now. They all tried to push steroids on me but after I found out about TSW around the time I went to urgent care, they stopped offering it to me and told me we were pretty much out of options. I've changed my diet, stopped drinking soda, no processed foods, started a multivitamin, fish oil and bland diet of soup broth and crackers and just finally started eating vegetables and fish with bland sandwiches with plain chicken on gluten free or organic breads. My skin is finally refreshing and regrowing. I am doing some salt soaks only and using the Bactroban on the left coin size lesion only because it apparently got infected. I am seeing improvements. I also started to feel very depressed, sick and itchy all over the first two weeks after stopping the steroids. Horrible dreams, night sweats, etc. I am feeling better now. It's been over 1.5 months since I stopped the hydrocortisone. What a nightmare. Now I am praying it stays confined to my hands. Most of the dryness is gone, skin flaked off and the blisters on my index finger have vanished. Left thumb had small rash that also vanished. I am still dealing with very recent small rash on two knuckles near where I applied the steroids.
Wow thanks for taking the time to write this and share your story - it's really important to raise awareness about the potential consequences so people can make an informed decision about their treatment options. Once again thank you
I’m currently going through this. I’ve been using the 0.05 % which is super mild, been using it around my eyes as I get Eczema on eyelids and on arms but while the condition subsided it’s starting coming back with a angry red flare up when I stop. I look awful at the minute whereby I don’t even want to go out and make up is a killer to use but I genuinely would rather sweat this out than go through what I experienced the other day. It just randomly kicks off with angry red flare ups and I can’t even contribute it to anything that I am doing! It’s so bizarre.
hi i was given fuciden H cream for eye area, but didn't see any improvement and went back to surgery and they prescribed hydrocortisone 1% cream and the referral to a specialist, luckily i only used hydrocortisone for 2 days and the specialist said stop all surgery prescriptions which were tablets, creams, gels and all sorts. i'm on a new plan at the moment, zerobase cream to use in sink or bath 3 times a day and the greasy eumovate ointment cream around eyes, it makes skin very soft with that protective greasy barrier with moisturiser and helps while skin repairs, i had where it was very dry, flakey, red, itchy around eye area and it seems to be looking better at day 7 now of 10, i'm to get a phone call on day 14 to see how things are from the skin specialist.
Grew up in Africa and as white person often got sunburn, Now! we usually wore short sleeved shirts when out in he sun - bad idea, now at nearly 90 my fore arms are realy" scared" hydrocorizon cream made them worse ! However I did try another chemcal which was supposed to make a chemical peel this was a disaster. so maybe hydrocortizon is not entirely to blame ?
how fast does your hair grow? i am suferring from hair loss and my hair thinned out to around your amount and I was wondering that your recovery went really quick in your old video, like it became thicker in a year! which is quick
Hi Sana! My hair grows at an average speed I would say but it definitely has grown faster more recently since I moved to Singapore. I think the main thing you want to look at is your nutrition and lifestyle (stress, sleep, etc) but also make sure you are using the right products that keep your scalp healthy. Good hair growth is a result of a healthy scalp, so start there and the hair should follow!
When you went through what you think was tsw, what other symptoms did you have aside from rashes? Did you get an all over burning/stinging sensation, wrinkled elephant skin, edema etc
I had a lot of wrinkled skin, especially around my eyes and neck, no edema but unbelievably itchy skin! Also it just kept popping up randomly and was very tired all the time (although I think I was also vit d deficient..)
@@naturully How long did the wrinkles last? Really painful around the back of my neck and knees which makes it hard to sit and move around. Also how long did the burning/stinging around the body last for you? They're my most troublesome symptoms so far as the swelling, redness and flaking have all gone down.
Hey I am suffering from lip eczema..ingot discoloration due to it as some are of my lip is lighter than the rest of my lip tone..I am using hydrocortisone cream 1.0 right now... suggest me something how to even out my lip tone..plz I need your help..plz plz do reply
Its worse when you dont have your family support in TSW, I threw out all the steroid medication in the bin behind my family's back because they just dont understand.
I suffer from Dermatographia which affects my face differently,i itch ALOT so i have been using hydrocortisone cream for 14 years everyday , every time i try to stop my face breaks out so bad,i want to stop because my skin gets thin and i think its causing my bad headaches,i don't know what to do/use 🥺🥺😭 when i was diagnosed with cancer i stopped because the chemo was also helping with my skin but i have finished now and my itchy face is back,am back to using the cortisone
@@ishalingayat3909 NO I didn't say hydrocortisone caused cancer ,after I was diagnosed and was taking chemo I stopped using the cortisone because the chemo cleared up my skin , and NO I don't have wrinkles,as you may know cortisone is or contains steroids which can cause the skin to thin. Right now am using CeraVe products and it works wonders for me .
I'm wondering about this too, because I've been using it for three days after I sat in scorpion weed, for the second time. I must have overdone it because while I didn't get a rash this time, I woke up and my skin was in PAIN, a deep pain like I'm bruised. Little freaked out
Hi there! So I did a vitamin deficiency test, iron test, and an allergy test. The allergy test tbh wasn't super helpful, other than that I just focused on tuning in to what my body liked and didnt like but its reactions. Rather than just listening to what other people told me I shouldn't be eating or doing. There are other tests you could take if you're interested, or if you can find a functional doctor near you they should be able to guide you better on what you need.
Yes I did! I had a lot of tummy problems but I did a course of symprove which made SUCH a difference. (there's a link in the description if you're interested to try :) )
My son has this issue with his eczema he’s only 3 and the steroids are not working very well , im going to go back to them and try and arrange allergy tests. Thanks for your story
Try the brand Kiyamel. They have natural products for babies. They have a ton of testimonials with before and after photos (including mine) on their IG.
Hi there! I did do a gf diet initially but actually I don’t have a problem with it so I reintroduced it. But I try to stay away from processed gluten (white bread, cakes, biscuits, etc) but gluten per se is fine for me :)
The potential side effects of long term use of hydrocortisone is very damaging to not only our skin but also our health. However, I would recommend working with a doctor if you are currently on them to see what the safest way to use them is
I have the same experience with the stupid doctors. Even when I tell them it makes a difference when I eat less sugar or drink less coffee, they say „that’s only in your ur head“. Comon all you old doctor farts out there. It’s not to late to learn from people with a holistic approach💚.
Take ivermectin two 12mgat alternative days.use permethrin cream for body wash once in a week till you get cured.come your hair in night to remove mites which meeting takes and produce more mites rapidly.if eyes wash eyes with neem leaf boiled water to wash your face and hair wash also.nothing more to worried you will be fine.
hi i had lot's of different prescriptions from many visits to the surgery and eventually they were like there's nothing else we can do and to do referral and they prescribed hydrocortisone 1% cream for around eye area where its flakey, red, itchy. luckily i only used for 2 days and then saw skin specialist that said right stop all surgery prescriptions which were creams, tablets, soap alternatives, gels, etc.. and he said to use eumovate ointment greasy cream around eye area for 10 days twice a day as it helps to moisturise and protect skin barrier whilst it heals under the greasy layer which helps to keep skin soft and smooth, i'm on day 7 and it's improving and i'm to expect phone call on day 14 to see how it went.
![Who Wrote a Short Story That Seriously Disturbed a Teacher? | Dirty Laundry x Smosh [Full Episode]](http://i.ytimg.com/vi/bvHAy_rKoEI/mqdefault.jpg)
Hi everyone, thanks for watching this video, if you like this one you might be interested in the follow up (practical steps to take when coming off steroids):
ruclips.net/video/jfM_dJtLypQ/видео.html
I confirm from my own experience NaturUlly speaks truth
Good info. I’m in agreement that doctors have no clue here. I wish I was able to learn more about what you did for your eczema. I look forward to hopefully finding out by watching more of your videos. New subscriber!
i used hydrocortisone for almost three years. a part of my skin began to turn my skin pink ish…thank god i noticed it.-
I still have some pink pigmentation left where I used to use a lot of steroids.
Please my mouth side and side there is something while over there please can I use hydrocortisone cream please
@@mintahgideona574as an American I can say yes, use it.
Can I just add to this lovely ladies video, I’ve had the same journey, so here it is … Eat lots of raw veggies and you MUST have daily COLD showers or even better swim in the sea on a regular basis . Drink drink and drink water . Avoid stress and toxic relationships. Go for long walks and try not to wear heavy clothing, expose your skin to fresh air. Don’t sweat in bed , keep your bedroom cold . Walk 10k steps a day and make sure 30mins are fast walking. I know this sounds like ‘maaaan Really “ but I promise you will thank me in months to come … man up .. just do it ❤️
This is meaningful, thanks for sharing.
What is considered over a “long period of time” for topical steroid use? 3 months or more? 6 months? I’m asking because I’ve been prescribed 2.5% hydrocortisone topical and was told up to 6 months was safe but I am very hesitant about this and it doesn’t seem right? Does anyone know? I even called my doctors nurse again to ask and was given the same information but it doesn’t sit right with me 😢I’m scared using it for more than 2-3 months I could get some of these side effects. Please help
Excellent content. Very useful video
Thank you!
Excellent awareness video about TSW and bad side effects from hydrocortisone. I will tell my story and I am going to make a video because I'd like to also bring awareness.
I was prescribed hydrocortisone 2.5% and terbinafine when I was misdiagnosed at an ER in March with ringworm on my right pinky finger. I was told to mix the creams and also to apply the hydrocortisone "as, needed". The pharmacy didn't have the hydrocortisone 2.5% and had to order it, which should have been red flag #1, but I trusted the doctor who diagnosed me so quickly I was confident he knew what he was talking about. Fast forward two weeks later, the rash was spreading all over my finger and a red band started to wrap around my finger. Back to ER. The doctor looked at my skin for ten seconds, turned off the light and said, "You nedx to go to a dermatologist, you have eczema. Keep using the hydrocortisone.". I told him, no I do not have eczema, I was previously diagnosed with ringworm. He said he couldn't help me,vi needed to contact a dermatologist and left the room abruptly. I went home and kept using the hydrocortisone. Fast forward two weeks more and my skin was almost burned off. The skin started peeling off in multiple layers and I lost function of it, like it wouldn't bend at all. Finally got with my insurance and got a referral to an urgent care at USC in Los Angeles. They also told me I had "eczema" and tried to prescribe triamcinolone. I knew that the hydrocortisone burned off my skin so I declined the prescription. They referred to dermatologist in the complex but I had to wait two more weeks because they were booked up. The dermatologist also thought it looked "fungal" and was quite confused and concerned at the appearance of my skin. I'd discontinued the steroid cream right after my urgent care visit and the skin was so thin you could see my veins and blood vessels. You could even see my pulse beating through my swollen skin. I developed two blisters on my index finger and my fingertips were mildly flaking. I also started to have mild peeling on the same ring finger. I started just using Eucerin Eczema cream and slowly the skin started growing back. Fungal tests came back negative and now I have a lesion that developed on the other hand on my middle finger. After multiple dermatologist appointments and declining oral and more stronger steroid creams, a dermatologist with 49 years of experience recommended simple salt soaks and a mild ointment, Bactroban for the left lesion. I still developed a small rash on my knuckles which I am dealing with now. They all tried to push steroids on me but after I found out about TSW around the time I went to urgent care, they stopped offering it to me and told me we were pretty much out of options. I've changed my diet, stopped drinking soda, no processed foods, started a multivitamin, fish oil and bland diet of soup broth and crackers and just finally started eating vegetables and fish with bland sandwiches with plain chicken on gluten free or organic breads. My skin is finally refreshing and regrowing. I am doing some salt soaks only and using the Bactroban on the left coin size lesion only because it apparently got infected. I am seeing improvements.
I also started to feel very depressed, sick and itchy all over the first two weeks after stopping the steroids. Horrible dreams, night sweats, etc. I am feeling better now. It's been over 1.5 months since I stopped the hydrocortisone. What a nightmare. Now I am praying it stays confined to my hands. Most of the dryness is gone, skin flaked off and the blisters on my index finger have vanished. Left thumb had small rash that also vanished. I am still dealing with very recent small rash on two knuckles near where I applied the steroids.
Wow thanks for taking the time to write this and share your story - it's really important to raise awareness about the potential consequences so people can make an informed decision about their treatment options. Once again thank you
Did your skin thinning completely reverse?
Hi. Been suffering from Pityriasis roses and don't want to use Hydrocortisone anymore. Has not helped anyway?Any ideas please?
So what do you use and what's the alternative? I hear Castor Oil will do it so I just ordered. Have you heard this?
Castor oil and apple cider vinegar can help. Also argan oil
This is my exact story with doctors omg
What is "short term"? What is "long term"?
I’m currently going through this. I’ve been using the 0.05 % which is super mild, been using it around my eyes as I get Eczema on eyelids and on arms but while the condition subsided it’s starting coming back with a angry red flare up when I stop. I look awful at the minute whereby I don’t even want to go out and make up is a killer to use but I genuinely would rather sweat this out than go through what I experienced the other day. It just randomly kicks off with angry red flare ups and I can’t even contribute it to anything that I am doing! It’s so bizarre.
hi i was given fuciden H cream for eye area, but didn't see any improvement and went back to surgery and they prescribed hydrocortisone 1% cream and the referral to a specialist, luckily i only used hydrocortisone for 2 days and the specialist said stop all surgery prescriptions which were tablets, creams, gels and all sorts. i'm on a new plan at the moment, zerobase cream to use in sink or bath 3 times a day and the greasy eumovate ointment cream around eyes, it makes skin very soft with that protective greasy barrier with moisturiser and helps while skin repairs, i had where it was very dry, flakey, red, itchy around eye area and it seems to be looking better at day 7 now of 10, i'm to get a phone call on day 14 to see how things are from the skin specialist.
A lot of people also use it for acne...can you use it at as spot treatment? Or will that make your acne worse ?
Grew up in Africa and as white person often got sunburn, Now! we usually wore short sleeved shirts when out in he sun - bad idea, now at nearly 90 my fore arms are realy" scared" hydrocorizon cream made them worse ! However I did try another chemcal which was supposed to make a chemical peel this was a disaster. so maybe hydrocortizon is not entirely to blame ?
how fast does your hair grow? i am suferring from hair loss and my hair thinned out to around your amount and I was wondering that your recovery went really quick in your old video, like it became thicker in a year! which is quick
Hi Sana! My hair grows at an average speed I would say but it definitely has grown faster more recently since I moved to Singapore. I think the main thing you want to look at is your nutrition and lifestyle (stress, sleep, etc) but also make sure you are using the right products that keep your scalp healthy. Good hair growth is a result of a healthy scalp, so start there and the hair should follow!
When you went through what you think was tsw, what other symptoms did you have aside from rashes? Did you get an all over burning/stinging sensation, wrinkled elephant skin, edema etc
I had a lot of wrinkled skin, especially around my eyes and neck, no edema but unbelievably itchy skin! Also it just kept popping up randomly and was very tired all the time (although I think I was also vit d deficient..)
@@naturully How long did the wrinkles last? Really painful around the back of my neck and knees which makes it hard to sit and move around. Also how long did the burning/stinging around the body last for you? They're my most troublesome symptoms so far as the swelling, redness and flaking have all gone down.
How do i fix skin discoloration from hydrocortisone?
Hey I am suffering from lip eczema..ingot discoloration due to it as some are of my lip is lighter than the rest of my lip tone..I am using hydrocortisone cream 1.0 right now... suggest me something how to even out my lip tone..plz I need your help..plz plz do reply
Does Collagen peptides help??
Its worse when you dont have your family support in TSW, I threw out all the steroid medication in the bin behind my family's back because they just dont understand.
I suffer from Dermatographia which affects my face differently,i itch ALOT so i have been using hydrocortisone cream for 14 years everyday , every time i try to stop my face breaks out so bad,i want to stop because my skin gets thin and i think its causing my bad headaches,i don't know what to do/use 🥺🥺😭 when i was diagnosed with cancer i stopped because the chemo was also helping with my skin but i have finished now and my itchy face is back,am back to using the cortisone
Hydrocortisone causes cancer ??? And ur skin go thinned u said so it caused wrinkled skin as well ? What you do to treat that ?
@@ishalingayat3909 NO I didn't say hydrocortisone caused cancer ,after I was diagnosed and was taking chemo I stopped using the cortisone because the chemo cleared up my skin , and NO I don't have wrinkles,as you may know cortisone is or contains steroids which can cause the skin to thin. Right now am using CeraVe products and it works wonders for me .
Hey there! I was wondering what is considered as a “long period of time”??
What about using it for something acute like poison ivy?
I'm wondering about this too, because I've been using it for three days after I sat in scorpion weed, for the second time. I must have overdone it because while I didn't get a rash this time, I woke up and my skin was in PAIN, a deep pain like I'm bruised. Little freaked out
Can you please advice what tests to consider to find out root causes from your experience
Hi there! So I did a vitamin deficiency test, iron test, and an allergy test. The allergy test tbh wasn't super helpful, other than that I just focused on tuning in to what my body liked and didnt like but its reactions. Rather than just listening to what other people told me I shouldn't be eating or doing. There are other tests you could take if you're interested, or if you can find a functional doctor near you they should be able to guide you better on what you need.
I can only imagine how haywire your HPA axis must have been your whole life.
Have you tried probiotics, if so, did you notice a difference?
Yes I did! I had a lot of tummy problems but I did a course of symprove which made SUCH a difference. (there's a link in the description if you're interested to try :) )
Very helpful, thank you
Glad it was helpful!
My son has this issue with his eczema he’s only 3 and the steroids are not working very well , im going to go back to them and try and arrange allergy tests. Thanks for your story
Try the brand Kiyamel. They have natural products for babies. They have a ton of testimonials with before and after photos (including mine) on their IG.
Love you❤❤❤
Have you looked into gluten free diet helping your exzema?
Hi there! I did do a gf diet initially but actually I don’t have a problem with it so I reintroduced it. But I try to stay away from processed gluten (white bread, cakes, biscuits, etc) but gluten per se is fine for me :)
Soo ...is it hydrocortisone is harmful to our skin on the long time period??
The potential side effects of long term use of hydrocortisone is very damaging to not only our skin but also our health. However, I would recommend working with a doctor if you are currently on them to see what the safest way to use them is
Yeah the Pareto principal applies to doctors as well. Most of them are utter garbage but a small percentage are very good.
Anthony William-Medical Medium book, this solve it's A* look it up
I have the same experience with the stupid doctors. Even when I tell them it makes a difference when I eat less sugar or drink less coffee, they say „that’s only in your ur head“. Comon all you old doctor farts out there. It’s not to late to learn from people with a holistic approach💚.
13:45 best part of the video
Long period time- you say this over and over. How long is a long time???
I have eczema can someone help pls I went several doctors bt still 😔
Hello just use ointment and Dovate, you can buy it from pharmacy...it's really helpful
Take ivermectin two 12mgat alternative days.use permethrin cream for body wash once in a week till you get cured.come your hair in night to remove mites which meeting takes and produce more mites rapidly.if eyes wash eyes with neem leaf boiled water to wash your face and hair wash also.nothing more to worried you will be fine.
If you get any kind of treatment can you also help me plz
hi i had lot's of different prescriptions from many visits to the surgery and eventually they were like there's nothing else we can do and to do referral and they prescribed hydrocortisone 1% cream for around eye area where its flakey, red, itchy. luckily i only used for 2 days and then saw skin specialist that said right stop all surgery prescriptions which were creams, tablets, soap alternatives, gels, etc.. and he said to use eumovate ointment greasy cream around eye area for 10 days twice a day as it helps to moisturise and protect skin barrier whilst it heals under the greasy layer which helps to keep skin soft and smooth, i'm on day 7 and it's improving and i'm to expect phone call on day 14 to see how it went.
Ok skin barrier is the biggest problem to me as l am talking to you now my arms are in bad condition
Steroid creams are absolutely amazing stuff as long as you don't abuse it !!!
My whole leg is swallow Eleuphrat garbage why would they have this crap on the market