Living with Psychosis and Constant Hallucinations

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  • Опубликовано: 6 сен 2024
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    Shelley experiences psychosis and constant hallucinations that started at the age of 39 after a miscarriage. Now 46, her hallucinations have only increased in frequency and intensity. Shelley wants others to know that she is a kind and empathetic person and that people that experience psychosis are not automatically dangerous.

Комментарии • 1,3 тыс.

  • @voidmayonnaise
    @voidmayonnaise Месяц назад +1229

    Having a deceased baby in your womb is so traumatizing.
    I’m a man so I can only imagine, but I don’t think I could keep going day to day. Her mental strength is astounding.

    • @katthefantastic
      @katthefantastic Месяц назад +122

      You just being empathetic about it makes you a true man! Bless

    • @kitcat2449
      @kitcat2449 Месяц назад +65

      Never been pregnant but yes. Imagining carrying your own dead child sounds awful.

    • @blairariavanderkamp3405
      @blairariavanderkamp3405 Месяц назад +36

      It has happened to me 4 times so I definitely understand how she felt/feels.

    • @Purpie_Slurpie
      @Purpie_Slurpie Месяц назад +30

      thank you for your empathy, it truly means a lot

    • @leeann4743
      @leeann4743 Месяц назад +55

      My baby son died in utero at 30 weeks. I carried him for 9 more days because my body wouldn't go into labor--- I had to be induced, finally. Someone once asked me how I could have come through that and all I could think to say was--- the only other choice was death by my own hand, and I had a 2 year old at home so that wasn't an option for me. It's been 25 years and it's still a very stark, sad, very emotional memory.

  • @XitSt4geLeft
    @XitSt4geLeft Месяц назад +687

    It was educational for me to learn that you can experience psychosis without being schizophrenic. I had the misconception that psychosis was something specific to schizophrenia.

    • @Princess_sarah023
      @Princess_sarah023 Месяц назад +68

      Yeah it can also happen with bipolar & depression also

    • @XitSt4geLeft
      @XitSt4geLeft Месяц назад +5

      @@Princess_sarah023 Thank you.

    • @violettaazul
      @violettaazul Месяц назад +25

      @@Princess_sarah023 Yeah, I have type 1 bipolar and it has happened to me, it is hard to deal with, but indeed we also experience it w/o having schizophrenia.

    • @Samahra01
      @Samahra01 Месяц назад +16

      It can happen for many reasons:) this channel is so great for teaching us all so much❤❤❤

    • @Princess_sarah023
      @Princess_sarah023 Месяц назад

      @@XitSt4geLeft your welcome

  • @billy7741
    @billy7741 Месяц назад +1552

    When she said “I’m 46” 😮 I thought she was in her mid 20’s

    • @planetvegan7843
      @planetvegan7843 Месяц назад +23

      One of the benefits of a vegan diet.

    • @-SUM1-
      @-SUM1- Месяц назад +56

      She looks amazing for 46.

    • @ROOKTABULA
      @ROOKTABULA Месяц назад +67

      @@planetvegan7843 Avoiding the sun is the #1 way. People think I'm 13 or 14 years younger than I am.

    • @KK-lg8uz
      @KK-lg8uz Месяц назад

      @@planetvegan7843 most vegans age terribly because we are not herbivores. I came on here to see if there was any mention of her diet as psychosis is effected by diet. Her vegan diet explains a lot, and it doesnt seem to be fixing her hallucinations. A ketogenic carnivore diet has been shown to improve conditions like this. Look up Dr. Chris Palmers research at Harvard.

    • @KK-lg8uz
      @KK-lg8uz Месяц назад +1

      @@planetvegan7843 most vegans age terribly and her diet is obviously not fixing her psychosis. Look up Dr. Chris Palmer at Harvard.

  • @aphextwen
    @aphextwen Месяц назад +416

    Hormones are hugely related to mental health but under researched and the link is rarely made. Not only is losing a child hugely hugely traumatic but your body is experiencing drastic hormonal changes. I experienced psychotic depression related to my period and since my eyes have been opened to how many people deal with mental health problems related to hormonal changes and childbearing. Our brains react differently to the normal changes of hormones throughout the month, and if anything affects that even more (stress, pregnancy, food, anything!) then symptoms worsen. I found out that people with PMDD are more likely to experience postnatal depression and psychosis. All are under and misdiagnosed and not enough resources are out there. It’s an extremely lonely experience. Thank you Shelley for sharing your story and for your resilience, and Chris for platforming such an important story.

    • @kytticockroach2299
      @kytticockroach2299 Месяц назад +2

    • @KK-lg8uz
      @KK-lg8uz Месяц назад +6

      look up Dr. Chris Palmers research at Harvard. He's showing improvement on many mental health conditions using diet

    • @sheepyhead0399
      @sheepyhead0399 Месяц назад +17

      As someone with PMDD, thank you for bringing this up, it's so important. A lot of people underestimate how dangerous things like PMDD can be for mental health and how dangerously it can exacerbate other forms of trauma. PMDD defines a lot of how I live my life, much more than people know

    • @Grace1708
      @Grace1708 Месяц назад +1

      Thank you for sharing that!

    • @erikaxchristine
      @erikaxchristine Месяц назад +1

      Yes!! Hormones are Huge!

  • @astrid4203
    @astrid4203 Месяц назад +306

    her face lit up when she was talking about crocheting it was so cute

    • @kwpp7
      @kwpp7 29 дней назад +3

      Seriously, she's so sweet and thoughtful! 💙

  • @connordaley123
    @connordaley123 Месяц назад +709

    As a sufferer of psychosis, this is really uplifting ❤

    • @charlesfrazier2371
      @charlesfrazier2371 Месяц назад +11

      Support🙌🏻

    • @lms1068
      @lms1068 Месяц назад +9

      Please take extra care of yourself. I have ctpsd and know how much mental health issues take over my life.

    • @KK-lg8uz
      @KK-lg8uz Месяц назад

      look up Dr. Chris Palmers research at Harvard. He's showing improvement on many mental health conditions using diet

    • @KK-lg8uz
      @KK-lg8uz Месяц назад

      look up Dr. Chris Palmers research at Harvard. He's showing improvement on many mental health conditions using diet

    • @pastelbuns
      @pastelbuns Месяц назад +3

      i agree, as a fellow sufferer. 💕

  • @sirensal2227
    @sirensal2227 Месяц назад +218

    Miscarriage on her second trimester is traumatic enough! I hope she gets the help and all the support she needs!!

  • @lesyeuxsansvisage1157
    @lesyeuxsansvisage1157 Месяц назад +395

    As a fellow survivor of similar trauma, please know I’m so proud of you. I KNOW the struggle, and please know you matter, and are a beacon of hope for so many. I had major surgery after a similar loss, then my Mum, Grandmother, and baby sister all died, one right after the other - horrifying deaths. I broke. It’s the only way to describe it. I lost all of my hair, because the trauma, blood loss, and loss of life was so bad, my body couldn’t go on.
    Please know you matter, and hearing and seeing your strength, means so very much. May you be blessed with the goodness in life you so dearly deserve 💖🌟

    • @ariellesarinafirestone7823
      @ariellesarinafirestone7823 Месяц назад +19

      Im sending a lot of love to you. What horrors you’ve been through. Only love and safety and healing for you. May you feel watched over and guided and loved by the ones you’ve lost and may you only gain loved ones going forward ❤

    • @bleepbloop404
      @bleepbloop404 Месяц назад +7

      💜🫂

    • @carynmartin6053
      @carynmartin6053 Месяц назад +2

      God bless your heart ♥

    • @xMissxGeex
      @xMissxGeex Месяц назад +3

      Condolences

    • @Humgin1234
      @Humgin1234 Месяц назад

      God be with you. ❤from AZ

  • @scarletoracle
    @scarletoracle Месяц назад +173

    She had a second trimester loss😢 That happened to me many years ago. I then went on to have a living baby. Losing a child will definitely bring mental issues out of the woodwork.

    • @ndkh7444
      @ndkh7444 Месяц назад +5

      I had an early miscarriage and that was traumatic. I can’t believe losing a baby late in pregnancy. I think I would have gone insane myself. I had a PTSD from my miscarriage.

  • @EmilyHummingbird
    @EmilyHummingbird Месяц назад +132

    I've been psychotic twice in my life and it is a horrible and scary thing for the human being to endure. God bless her.

    • @KK-lg8uz
      @KK-lg8uz Месяц назад +4

      look up Dr. Chris Palmers research at Harvard. He's showing improvement on many mental health conditions using diet

  • @psyren12369
    @psyren12369 Месяц назад +144

    Whoa, that purple color on her is AMAZING.

  • @Stalemarshmallow
    @Stalemarshmallow Месяц назад +333

    I am a person with bipolar 1 so I’ve experienced psychosis many times. It’s very hard. I’m grateful to you for giving this awful condition a platform. Mental health is not respected enough.

    • @chemicaLobotomy
      @chemicaLobotomy Месяц назад +13

      I'm Bipolar II and have experienced psychosis as well. It usually becomes a hospital stay. It helps to hear others experience similar and know we're not alone. Thank you

    • @Maxwell-English
      @Maxwell-English Месяц назад +4

      Me to , miami 29 male .

    • @MaddenCau01
      @MaddenCau01 Месяц назад +1

      Same here.

    • @charlesfrazier2371
      @charlesfrazier2371 Месяц назад +3

      Support🙌🏻

    • @Maxwell-English
      @Maxwell-English Месяц назад +7

      @@Stalemarshmallow what helps is getting closer to God. listening to music. Finding a creative outlet. White noise 🔊 when needed. And a lot of self-love. And whatever it was.…. It wasn't your fault. This is just a season in life. I can honestly say there is hope and i feel in a way renewed after my psychosis, it was getting over the fear of getting into another one. Just live and cannabis has help a lot with the complex ptsd

  • @lucamara6424
    @lucamara6424 Месяц назад +136

    Luckily I don’t associate people with psychosis with danger because I know people who have it or have had it. Like them, she seems like a lovely and sweet person:)

    • @Princess_sarah023
      @Princess_sarah023 Месяц назад +17

      Yeah I have had psychosis before & I have 2 friends with schizophrenia and there really nice people

    • @sleepyote
      @sleepyote Месяц назад +18

      It's so sad that some associate people with certain mental illnesses as dangerous people.

    • @elizabethbrock8654
      @elizabethbrock8654 Месяц назад +7

      ​@sleepyote or that people with these problems just aren't trying hard enough to prosper when dealing with depression, bipolar, etc.

  • @notoprah13
    @notoprah13 Месяц назад +81

    Listening to Shelley speak about carrying her deceased baby just took the breath out of me. What a terrible thing to experience. She strikes me as such a gentle spirit. I'm glad she has such great support around her!

  • @Vanesssssa570
    @Vanesssssa570 Месяц назад +1782

    46?! Woah. What’s her secret?

    • @rafimohammad39
      @rafimohammad39 Месяц назад +210

      I thought she was 20 or 30 ❤❤😦😦

    • @asylumrain
      @asylumrain Месяц назад +73

      Imo She looks her age

    • @Toogullable4u920
      @Toogullable4u920 Месяц назад +29

      Right!? Wow!!!

    • @voidmayonnaise
      @voidmayonnaise Месяц назад +215

      @@asylumrain Looks like most people disagree with you. Also, it’s tacky to like your own comment.

    • @AmeliaEarhart53756
      @AmeliaEarhart53756 Месяц назад +80

      Yes, she looks between 25 and 30!

  • @michelea8129
    @michelea8129 Месяц назад +87

    Not afraid of you Shelley. You are a thoughtful, wholehearted person and I'm sorry for all the things that happened to you. Wishing you all the best.

  • @Aircraftmechanical
    @Aircraftmechanical Месяц назад +162

    Bawling now bc I have the same diagnoses with the Complex PTSD and the Depression/psychosis combination and I am so sorry for what you're going through. Different background and triggers, but I knew exactly what you meant when you were describing your Illness. There are a lot of people out there like us and the scientific understanding and the appropriate treatments, especially medication is getting better and better and I am hopeful for the future.

    • @charlesfrazier2371
      @charlesfrazier2371 Месяц назад +7

      Support🙌🏻

    • @carynmartin6053
      @carynmartin6053 Месяц назад +2

      God bless your heart ♥. My daughter had that diagnosis yrs ago and almost starved herself to death, but she slowly came out of it as her living situation improved, thank God!🎉❤

    • @Aircraftmechanical
      @Aircraftmechanical Месяц назад

      @@charlesfrazier2371 Thank you

    • @Aircraftmechanical
      @Aircraftmechanical Месяц назад +1

      @@carynmartin6053 Thank you, and I am glad that your daughters situation improved, may it stay that way

  • @soloman4547
    @soloman4547 Месяц назад +120

    My ex wife used to have hallucinations periodically along with her psychosis and borderline personality disorder. Thank you Shelley for sharing and for your strength in telling your story. Takes a lot of courage and you did awesome! Thank you SBSK! You guys Rock!

    • @charlesfrazier2371
      @charlesfrazier2371 Месяц назад +9

      Support🙌🏻

    • @KK-lg8uz
      @KK-lg8uz Месяц назад

      look up Dr. Chris Palmers research at Harvard. He's showing improvement on many mental health conditions using diet

    • @soloman4547
      @soloman4547 Месяц назад +6

      @ZaylaLewis-v1w No not at all. That's an assumption. I don't want to say anything about it online, but it wasn't me, I supported and loved her.

    • @KK-lg8uz
      @KK-lg8uz Месяц назад

      @@soloman4547 check out work done by Dr. Palmer and Dr. Ede out of Harvard. They are showing reversal of many mental health conditions such as psychosis and BPD using diet

    • @PurtyPurple
      @PurtyPurple 23 дня назад +4

      ​@ZaylaLewis-v1w Shame on you for assuming and judging without knowing anything about the situation.

  • @billiejeanisnotmylover2495
    @billiejeanisnotmylover2495 Месяц назад +76

    This was a really great interview Chris! Shelley seems like an extremely intelligent and lovely person.

  • @Grace1708
    @Grace1708 Месяц назад +26

    She seems like a really kind and positive person, which is striking given how difficult her diagnoses are. I am so glad that she feels safe and loved.

  • @glovemonkey7375
    @glovemonkey7375 Месяц назад +16

    Fellow sufferer of major depressive disorder (without hallucinations) and CPTSD AND I'm a crocheter too! I was looking at your granny square blanket behind you to see if I could make that😅 I crochet like others do mindfulness colouring.
    I am so proud of you!

    • @shelleysquires2741
      @shelleysquires2741 Месяц назад +7

      I found the tutorial for that square on RUclips. Look up 365 days of granny squares 💕

    • @glovemonkey7375
      @glovemonkey7375 Месяц назад +1

      @@shelleysquires2741 Aww thank you so much! Let me get my hook😊

  • @travestygaming1461
    @travestygaming1461 Месяц назад +35

    I have the exact diagnosis and symptoms. Its good to hear her story as it makes me feel not alone. Sending good vibes

    • @KK-lg8uz
      @KK-lg8uz Месяц назад +3

      look up Dr. Chris Palmers research at Harvard. He's showing improvement on many mental health conditions using diet

  • @Llamahcgxg
    @Llamahcgxg Месяц назад +56

    Just your reminder that you matter what❤ even if you’re disabled or you have mental issues💗 YOU MATTER🫶🏼

  • @willd6215
    @willd6215 Месяц назад +50

    I have a traumatised young part of me that tells me we're dead or that this isn't reality. I have to reassure and comfort him for him to not freak out. Children have amazing imaginations. My inner children need to be looked after by me and parented with love like they never had and what froze them in the trauma.

    • @kfishert
      @kfishert Месяц назад +12

      i understand this very well as someone with DID. sending you and your inner children much love.

    • @willd6215
      @willd6215 Месяц назад +3

      @@kfishertthank you so much. I have so much more gratitude and empathy for others now they are with me

    • @kgreen8510
      @kgreen8510 Месяц назад +11

      The day I told my inner four year old, “ i got you, I will never give up on you like they did. I promise. Just tell me what you need and I’ll do my best” everything changed

    • @willd6215
      @willd6215 Месяц назад +7

      @kgreen8510 wow that's beautiful. Much the same with me. I remember the exact moment I comforted that child and he immediately responded and came into my consciousness. Life changing. Before I did that I was shaming him and slapping him to stop him coming up with all the terrible feelings he was holding. It's been a hard journey but the qualities our young parts embody are so vital

    • @charlesfrazier2371
      @charlesfrazier2371 Месяц назад +4

      Support🙌🏻

  • @thelavenderlatch
    @thelavenderlatch Месяц назад +52

    Thank you Shelley for being so brave and allowing us into your very private self. I plan to share your video with someone I love very much who suffers with some of your symptoms and feels very isolated. Your sharing this part of your life will help her so much, thank you.

  • @IncrediBelleJessi
    @IncrediBelleJessi Месяц назад +16

    I never commented on it, but i love the way you make the subtitles. They are happy and colourful but still are easily to read. ❤

  • @guillotined
    @guillotined Месяц назад +16

    I've never related to someone more. I have major depressive disorder, extreme anxiety, as well as narcolepsy. I'm literally the bed rot queen and it's honestly refreshing to see someone with the almost exact same struggles as me.

  • @ifix21
    @ifix21 Месяц назад +29

    Shelley, if you are reading this i wish you strenght and love in your life. You seem like an amazing person and i am really proud of you for sharing your challenges with mental health.

  • @summerchildmid90s
    @summerchildmid90s Месяц назад +19

    Shelley, I feel such a deep sense of empathy for you.
    I have had 5 traumatic events occur in my life, with all but one of them continuing to affect me today, even though they occurred 15-23 years ago.
    I currently have a PTSD diagnosis, along with Autism Spectrum Disorder, severe ADHD-PI (primarily inattentive), which is referred to as ADD in Missouri (I live in central CA, but went to university in Missouri and there, I found they maintain ADD/ADHD terminology, but my current doctors at Kaiser, separate ADHD into 3 types. Inattentive, Hyperactive, and combined), and severe MDD with recurring episodes.
    My work history is spotty, and I have been placed on 4 psych holds in the span of 2 years, due to PTSD and depression related symptoms where I would just have a breakdown.
    I also have the tendency to over-explain a lot.
    I hope, by sharing some history in regards to my struggles, you, and whoever may read this, will find solace and peace. You are not alone, and neither am I.
    Also, when I see my therapist next week, I will bring up changing my PTSD diagnosis to Complex PTSD, given the multiple traumas in my life.
    I wish the best for you and thank you for sharing your struggles with me.

  • @helenatomkova1352
    @helenatomkova1352 Месяц назад +14

    She's so sweet. She seems incredibly kind, compassionate and very creative too. I'm really sorry for all the bad things that happened to her. I hope she lives her best life, surrounded by people she loves

  • @littleblizzard7591
    @littleblizzard7591 Месяц назад +15

    I’m so sorry friend, you’re an incredible survivor. For a brief time I experienced psychosis and hallucinations, a severe side effect from a new medication. It was terrifying and alarming and confusing and very lonely. My heart goes out to you and I’m grateful you’re in a safe environment and have a good support system ❤

  • @user-yb4qk2tz3b
    @user-yb4qk2tz3b Месяц назад +15

    I have schizoaffective and can deeply relate. All I can say Shelley is I see you and I love you. Stay strong. //Martine

  • @Jedicake
    @Jedicake Месяц назад +12

    I love her advice on what others should do when you're talking to someone with mental health issues. Don't act like a doctor when you're not, don't try to give advice, literally just listen. There are very few better ways of feeling than feeling like you're being heard.

    • @abigailvanvleet
      @abigailvanvleet Месяц назад

      Sadly I know someone who had gone into drug-induced psychosis and has lasting delusions but is in deep denial about it, so it’s hard to listen to him without feeling like I’m enabling his denial.

  • @Anonymous1995
    @Anonymous1995 Месяц назад +22

    Shelley is incredibly brave. It was fascinating to hear her perspective. It made me sad to hear that her shakiness prevents her from painting. I bet she could create her own style that embraces shaky paint strokes, jagged lines, etc. It would be unique, and other people with mental health conditions may relate to it. They may find it inspiring or calming, like they can finally see something that describes how they feel or something they are dealing with. She may even be able to donate her art to psychiatric hospitals, special needs classrooms, etc. I could absolutely see her art making a difference in the world.

  • @ariellesarinafirestone7823
    @ariellesarinafirestone7823 Месяц назад +23

    I’ve had pretty much the exact same hallucinations with the bugs both tactile and visually exactly how you described. Including it disappearing when I look directly at it. I get these due to autoimmune encephalitis I wrote a whole thing about it before but decided to delete it cuz I didn’t want to scare you or make you feel like you had it. Hearing you speak was very validating and made me feel safe. I’m so glad you have support around you and feel loved. That’s the most amazing thing in the world. You need it and you deserve it. I’m so sorry for all the traumatic experiences you’ve been through. I don’t know if you’ll see this but I’m rooting for you ❤

    • @clairekorte6048
      @clairekorte6048 Месяц назад +2

      What a sweetie you are 😊 hope your autoimmune encephalitis gets better xx

  • @cecilyerker
    @cecilyerker Месяц назад +18

    I’m crying so much for Shelley. 😢 God bless her and her immense strength and fortitude and courage. Please everyone take care of one another. Life is so hard, so so so hard.

  • @joceelee
    @joceelee Месяц назад +13

    What a beautiful, intelligent lady. I had a similar experience with auditory hallucinations. I want to thank her for making me feel like I’m not alone in this situation. I think she is so strong and brave to do this interview. ❤❤❤❤

  • @maddyythedreamer7309
    @maddyythedreamer7309 Месяц назад +16

    This woman is so strong and amazing. I suffer from anxiety at work and once in a while in public, and I couldn't fathom dealing with scary hallucinations like that. Thank you for educating us on your story❤

  • @balaam_7087
    @balaam_7087 Месяц назад +30

    Thank you for being willing to go onscreen and explain these things in detail, Shelley. This can be a very polarizing topic, and many people lack even the faintest awareness of the root cause(s) and day to day struggles of those suffering episodes, frequent or not. The more eyes and ears on this subject, the better overall understanding can be promoted. You’re doing a great deal for a great many people, and your efforts deserve a boatload of praise and thanks.

  • @alexeclipse5747
    @alexeclipse5747 Месяц назад +5

    I really appreciate when y'all do interviews w people with mental health disorders, there is such a massive variety of mental health issues and it's so comforting (as someone with my own disorders), insightful, educational and meaningful. The empathy you show as an interviewer is so impactful. i don't know haha, these just mean a lot, thank y'all so very much for the work you do

  • @brighteyes2989
    @brighteyes2989 Месяц назад +4

    I really like her necklace. Hummingbirds symbolize perseverance and knowledge.

  • @ameyring
    @ameyring Месяц назад +38

    Mental illness is prevalent in my family and it's complicated to understand, but it needs to be treated with respect as this woman recommends.

    • @KK-lg8uz
      @KK-lg8uz Месяц назад +1

      look up Dr. Chris Palmers research at Harvard. He's showing improvement on many mental health conditions using diet

  • @celestialcircledance
    @celestialcircledance Месяц назад +15

    You can crochet and read it the same time if you're listening to audiobooks! I've totally switched to them and found it a game changer .

    • @nightyew2160
      @nightyew2160 Месяц назад +2

      This is such a good point.

    • @sarahm.837
      @sarahm.837 24 дня назад

      Crochet and audiobooks have kept me alive through my most recent major depressive episode 🙃

  • @TotallyAstrous
    @TotallyAstrous Месяц назад +6

    I was playing this in the background and was shocked to hear her say Rhode island! That's where I'm from! We have some amazing hospitals here and I am so glad she has the help of them!

  • @Geannie123
    @Geannie123 Месяц назад +8

    I wanna give this woman a huge hug ❤️. Before she even said it, I could tell she's a HUGE empath and extremely compassionate person. I hope she's surrounded by love and care.

  • @murtazababerhameed6535
    @murtazababerhameed6535 Месяц назад +7

    Thank you for taking the time to speak out and share your difficulties! It will help a lot of people have the confidence to do the same. Love and power to you

  • @jeremydiaz5172
    @jeremydiaz5172 Месяц назад +12

    I started experiencing chronic pain from auto immune digestive disorders since 2020. I can truly empathize with everyone on this channel. I am trying my best not to delete myself. The pain and anxiety the pain brings is beyond what I can handle. We live in a hell realm. No way God is all good.

  • @foodsmash4379
    @foodsmash4379 Месяц назад +7

    Whenever I watch these videos it shifts me towards compassion and empathy.thank you for being part of that and being so brave.what power

  • @Catastropheshe
    @Catastropheshe Месяц назад +12

    We should a society start treating abusement more seriously, it's damaging so many ppl for life is heartbreaking 🙁

  • @AliceP.
    @AliceP. Месяц назад +7

    She's so well spoken. She does have the vocabulary and diction of a former teacher and then also a nurturing demeanor of somebody who used to work with kids. I really liked her. I wish you had asked about community - whether she's made friends who have psychosis in her hospital stays or even through the internet. It made me think of Cecilia, even though they have different diagnosis... They do have many symptoms in common. And community seems to have changed - if not saved - Cecilia's life.

    • @shelleysquires2741
      @shelleysquires2741 Месяц назад +2

      I love Cecilia so much. She inspired me to share my story, and I look up to her so much. She is amazing 💕

  • @susanhenry4073
    @susanhenry4073 Месяц назад +7

    My heart goes out to her. What an extraordinarily brave and strong woman. Thank you so much for sharing this information.

  • @idwtbkabbam
    @idwtbkabbam Месяц назад +40

    Thank you for sharing your story Shelley. And I really like the crocheted throw on the couch :)

  • @beckylowe-weyand8315
    @beckylowe-weyand8315 Месяц назад +20

    I feel like this video is a beautiful example of the diversity of human experience. She has suffered so much and yet exudes lightness and patience. Thank you for sharing your amazing story with such frankness. Thank you SBSK for creating a platform for this safe and supportive community!

    • @user-zs6os4vh5x
      @user-zs6os4vh5x Месяц назад +2

      “Lightness and patience” is the perfect description!

  • @dawncavalieri324
    @dawncavalieri324 Месяц назад +7

    Shelley, you are a lovely woman inside and out. I’m sorry for everything you’ve been through. I’m glad you have support and resources. Thank you for explaining your diagnoses so clearly; I think this video will help a lot of people with those disorders as well as their loved ones.

  • @sammyro416
    @sammyro416 Месяц назад +8

    I relate to Shelley a lot. Some people just don't understand how hard it is to function with mental illness.

  • @ai176
    @ai176 Месяц назад +61

    What struck me the most: How eloquent and high EQ she exhibits. Incredible Shelley, I hope things continue to get better!

    • @quinlynnschultz6954
      @quinlynnschultz6954 Месяц назад +1

      Psychosis has nothing to do with intelligence. You likely wouldn't have the same remarks with someone who was an amputee or dealing with severe allergies. Not all disability is visible.

  • @redfangtabris7405
    @redfangtabris7405 Месяц назад +9

    Losing a child is a pain I wouldnt wish on anyone... I pray to be relieved of knowing this pain.

  • @KRobs601
    @KRobs601 Месяц назад +19

    I'm a therapist, and I am quite happy how she is well versed on her diagnosis.

  • @Madamegato
    @Madamegato Месяц назад +7

    Oddly enough, this has me thinking I might have some of this. I was diagnosed many years ago with major depressive disorder, but no psychosis. Recently, though, I've been thinking I've been losing it a bit because I, too, will see bugs moving and feel things on my skin, thinking they're insects. I never really put two and two together because I've mostly taken care of the MDD with a LOT of therapy, self work, and meds. But... that aside... Shelley, I'm very proud of you. Abuse coming at all angles, it's amazing people like us have made it out alive. You seem so kind and compassionate and a really cool person to know. I hope everything continues to work out in your life.

  • @lovingmayberry307
    @lovingmayberry307 Месяц назад +6

    What a lovely woman! I am so happy she shared her story. I think she can help others who suffer similarly to feel a sense of peace.
    I'm so glad she has a good support system. 💜

  • @mscpcrystal1829
    @mscpcrystal1829 Месяц назад +7

    I like that you asked her how others can be helpful to a person like her. That seems important.

  • @samanthamarie6012
    @samanthamarie6012 Месяц назад +13

    She seems like such a sweet soul and it makes me so sad that she has to exist in such suffering. Also, she looks amazing for her age!

  • @beanie3939
    @beanie3939 Месяц назад +11

    I can't imagine what you've gone thru and I'm so sorry. You're such a gorgeous, sweet, & strong lady. Thank you for sharing your story. 💜

  • @hab790
    @hab790 28 дней назад +2

    It was wonderful to get to know Shelley. She is absolutely beautiful and looks 20 years younger than she is. I completely related to what she described when she talked about keeping up with medications. I will have a lot of success with a medication for several years then it will suddenly stop working and I start an anxiety spiral. I can't imagine what it's like to deal with it when hallucinations are involved as well. Great interview, Chris. ❤️

  • @changeishere7
    @changeishere7 Месяц назад +9

    I completely understand everything you're going through I personally suffer from all the same things that you do I also have cerebral palsy I just wanted to say our lives are very similar but I'm so happy that you still continue to fight never lose hope never give up and just know that you're not alone in this world may the good Lord continue to bless you and may you carry on strong friendly hello from New Mexico

    • @KK-lg8uz
      @KK-lg8uz Месяц назад +1

      look up Dr. Chris Palmers research at Harvard. He's showing improvement on many mental health conditions using diet

  • @stella8889
    @stella8889 Месяц назад +3

    I have major depression and I'm going through a bad BAD episode. One of my worst ones. I just yesterday got the courage to make a therapy appointment for the first time in I can't remember how long.
    Thank you so much for sharing your story. With depression there's this feeling of complete hopelessness and isolation, you sometimes feel like there's nothing and no one that can reach you. Hearing people share their experiences like this makes my heart swell -- I wish no one had to, but it makes me feel stronger knowing that there are many people who have fought this fight. ❤

    • @chuckthebrindlepittie6820
      @chuckthebrindlepittie6820 Месяц назад +1

      Good you are reaching out for treatment. For many of us, it is the only hope for full recovery. Between appropriate medicines (do not avoid them) and frequent talks with good therapists/psychiatrists -- help is on the way! Good luck!

    • @stella8889
      @stella8889 Месяц назад

      ​@@chuckthebrindlepittie6820Thank you -- you as well! ❤❤

    • @stardoll1995
      @stardoll1995 7 дней назад +1

      You got this! We're all just taking it one say at a time ♡

    • @stella8889
      @stella8889 5 дней назад

      @@stardoll1995 thanks, you too! We're all in this together 💗 🌞

  • @FullTimePatient37
    @FullTimePatient37 Месяц назад +30

    I have induced visual hallucinations because of medications I'm on, I also have eye floaters so big that it's so distracting to see .. I was terrified of mentioning the floaters to the eye Dr but once they have told me yes we see them, the relief was beyond words..but medication induced hallucinations are just so tough .
    Hugs 🫂 you are strikingly beautiful 😍❤️

    • @FullTimePatient37
      @FullTimePatient37 Месяц назад +5

      I also have major depression due to health conditions.and anger issues..I also have CPTSD from medical condition 😢 I can relate to you so much 😢

    • @Zxouf873
      @Zxouf873 Месяц назад +5

      Hugs 🫂

    • @charlesfrazier2371
      @charlesfrazier2371 Месяц назад +3

      Support🙌🏻

    • @KK-lg8uz
      @KK-lg8uz Месяц назад

      sounds like an autoimmune component to it. Look up Dr. Chris Palmers research at Harvard. He's showing improvement on many mental health conditions using diet

    • @FullTimePatient37
      @FullTimePatient37 Месяц назад

      Not a USA resident, I have a lot of diseases that potentially fall under the umbrella of Mitochondrial disease.. testing is taking forever, I've been informed (I'm in terminal stats) even before getting the final diagnosis of MNGIE which is fatal.. usually 37+- years..​@@KK-lg8uz

  • @PinkOrchid8
    @PinkOrchid8 Месяц назад +7

    This lovely lady may benefit from an autism assessment - I had similar experiences and was diagnosed with autism at 43.

  • @gailgreen2264
    @gailgreen2264 Месяц назад +6

    Beautiful lady inside and out. I wish her all the luck in the world. She deserves the best life ❤️❤️

  • @Laurendezvous
    @Laurendezvous Месяц назад +6

    You’ve made me realize this is what I have. I’ve been diagnosed with severe OCD, panic disorder, and depression but I have auditory hallucinations and I’ve had very similar visual hallucinations (when you mentioned the person with the melted face- that exact one has happened to me and my heart dropped) I also see ants sometimes on my feet. I haven’t mentioned it to my psych yet because I have an intense fear of swapping meds (had a bad experience swapping antidepressants once and it’s never been the same)

  • @morolo6665
    @morolo6665 Месяц назад +5

    Muchas gracias por subir estos testimonios y poner subtítulos.
    NO entiendo del todo bien el Inglés, pero con el traductor de Google y los subtítulos se comprende perfectamente.
    Es un canal hermoso, donde se aprende mucho, mucha fuerza a todos los entrevistados y les deseo mucha fortaleza y paz para sus vidas.
    Thank you very much for uploading these testimonials and adding subtitles.
    I DO NOT understand English very well, but with Google translator and the subtitles it is perfectly understood.
    It is a beautiful channel, where you learn a lot, a lot of strength to all those interviewed and I wish you a lot of strength and peace for your lives.

  • @peggyhansen4516
    @peggyhansen4516 Месяц назад +5

    You are brave, wonderful and inspiring. I have two adult children with mental health issues and they are so misunderstood. My daughter sounds so much like you. God bless you.

  • @krystacashen5124
    @krystacashen5124 Месяц назад +6

    I loved hearing Shelley's story! My boyfriend has psychosis and I know it has been a real struggle for him. I'm doing all I can to understand it and to educate myself on it. This interview was really fascinating to listen to and it gave me a better idea on how I can be supportive towards my boyfriend.

  • @LessonsOfWhatNotToDo
    @LessonsOfWhatNotToDo Месяц назад +6

    You are a beautiful soul. Thank you for sharing your life with us. ❤

  • @melissasaint3283
    @melissasaint3283 Месяц назад +4

    Those tactile hallucinations sound like a classic description of "formication",
    (With an M)
    a pretty common sensory experience that is often triggered by the nervous system being let's say "creative"
    (one of my relatives has been getting it for years as part of fibromyalgia)...but it as many possible triggers.
    Even when the cause appears to be mental health, it is worth addressing other likely causes.
    A silver lining to the fact that this lovely lady has to change medications regularly:
    Because formication is sometimes a reaction to a medication, this may be only a passing thing as she adjusts to a newer med, or it may fade away when she switches meds next time.
    But!
    She should definitely bring it up with her primary care and ob/gyn.
    Formication can also be caused or worsened by things that are pretty easy to fix, like anemia or vitamin deficiencies
    (When my relative started supplementing with vitamins under a doctors direction, the formication faded a lot!)
    Formication can also be caused by a condition that needs addressing, like a wobble in thyroid function,
    Or as a feature of just being a woman in your 40s or 50s re: hormonal fluctuations.
    In all those cases, there are absolutely things that can be done to minimize it or even make it go away!
    If she has the energy, it's definitely worth asking about. One less thing to deal with!
    My very, very best wishes to her💜

  • @HaDatWicht
    @HaDatWicht Месяц назад +4

    I felt your pain when you said how people think psychosis means danger and how you're a very kind person and love people. Your kindness shines through in the video. I am so happy for you that you are in a safe environment now and have lots of support around you! And I wish you even more friends in the future who will learn about your diagnoses and not feel any different about you ❤

  • @madmommy
    @madmommy Месяц назад +5

    Shelley, I hope you see my comment. I was diagnosed with bipolar disorder after my son was born, 19 years ago. I now also have General Anxiety Disorder and PTSD. And I, too, crochet. I also used to paint, but the medication I was taking caused my hands to shake. One of the meds I took caused me to see squirrels out of the corner of my eye. So your story, while from a different diagnosis, felt very familiar. I hope you are doing well, and am so glad you did this interview.

  • @pastelbuns
    @pastelbuns Месяц назад +2

    this is kinda comforting tbh. i don't wish it upon anyone, but it's quite something to know that there's people out there who understand what i've been going through all these years.

  • @lisamoulton2540
    @lisamoulton2540 Месяц назад +8

    I also have MDD. Mine is Major depressive disorder with anxious distress, and C-PTSD. Along with PMDD, which is like PMS on a stimulant. Premenstrual dysphoric disorder. Those were unbearable without treatment. They are well managed now. However, they are still present. Hang in there, I believe in you. I enjoyed listening to you speak and appreciate you (publicly) speaking out to de-stigmify phycosis. It's great to meet you.

    • @kittymonkey705
      @kittymonkey705 Месяц назад +1

      What are you taking to treat your PMDD? My daughter has it and she’s taking Paxil and birth control right now

    • @lisamoulton2540
      @lisamoulton2540 Месяц назад +1

      @kittymonkey705 I take an SSRI. Selective Seratonin Re-uptake Inhibitor. My Dr. started me on it for only a few days/ 1 week per month. He said that works for some people, and I would know if I needed it daily after stopping it for a couple days. It was obvious for me, I need it. I called it a miracle med. Ask your Dr, keep going back if she's not improving. Best of luck to your daughter and family.

  • @bingobazingo9565
    @bingobazingo9565 Месяц назад +7

    Man I wish nothing but the best for Shelley. Keep strong! Lots of love from Belgium

  • @Flamsterette
    @Flamsterette Месяц назад +22

    Thanks for the upload!

  • @RoxyPyy
    @RoxyPyy Месяц назад +1

    I worked as a mental health worker (2 years Daily Living Support and 5 years as a case manager) and I worked mainly with persons who suffer from schizophrenia/schizoaffective disorder, major anxiety disorders, bipolar ect.... She is 100% correct on everyone is different. God Bless her for sharing her story, there are so many others who need to know they are not alone.

  • @eileenkenney
    @eileenkenney Месяц назад +5

    I went through a period of depression, anxiety, and PTSD for a few years of my life. Worst era of my life. My heart goes out to her. She seems like such a kind person. I’m glad she is in safe place in her life with love and support.

    • @KK-lg8uz
      @KK-lg8uz Месяц назад

      look up Dr. Chris Palmers research at Harvard. He's showing improvement on many mental health conditions using diet

  • @sydsquid-
    @sydsquid- Месяц назад +4

    Shelley, you’re so strong and beautiful. Conveyed your experience and message so well. Sorry for all the trauma you endured. Hope the medication journey becomes more balanced and routine, best of luck

  • @Splaxx
    @Splaxx Месяц назад +3

    To those in the comments... Y'all need science. To Shelley, you are amazing and thank you for sharing your story.

  • @MikayliDavis-pc4bp
    @MikayliDavis-pc4bp 12 дней назад +1

    The host is so kind; if you look closely she says she rocks when she's nervous but when she spoke with the host she stopped and relaxed around him

  • @autumnstoptwo
    @autumnstoptwo Месяц назад +3

    @19:23 love, you ARE an artist. not WAS. art takes many forms and i see art all around you! keep creating 🌟💕

  • @caphine244
    @caphine244 Месяц назад +2

    I can not express how valuable and perfectly timed this video is to ejter ny life right now. A close friend of mine has been going through a lot of the same symptoms and has been spending these past months in a psychiatric hospital. Her condition until now seems to either not change at all or get worse by the day. Supporting and being there for her can be quite overwhelming for me, so I feel truly blessed to have seen this video..Hearing Shelley speak from first hand experience with so much openess and and knowledge about the topic gives me a lot of comfort and hope
    Thank you so very much

  • @cblank777
    @cblank777 Месяц назад +6

    She is so well spoken. Thank you Shelley for sharing your story

  • @emorob42
    @emorob42 Месяц назад +14

    I have skizophina and depression. I also get upset when people here skizophina they automatically think I'm a serial killer and I'm dangerous to be around because TV and movies put it in such a negative light, the same as psychosis. But she perfectly explains how we are all still the same people as we have always been

    • @charlesfrazier2371
      @charlesfrazier2371 Месяц назад +3

      That misconception must be hard to deal with constantly! Keep your chin up rob 🙌🏻

    • @brittanydaniels1102
      @brittanydaniels1102 Месяц назад +1

      @emorob42 Don't you mean Schizophrenia instead of skizophina in your above comment?

    • @KK-lg8uz
      @KK-lg8uz Месяц назад

      look up Dr. Chris Palmers research at Harvard. He's showing improvement on many mental health conditions using diet

  • @erikaxchristine
    @erikaxchristine Месяц назад +4

    Oh my heart 😢 I have major depressive disorder and severe anxiety. I sleep a lot too but have a zest for life. It’s just hard all around. We all do the best we can. Hugs and love 🤗 ❤

  • @iris_nazarena_4882
    @iris_nazarena_4882 Месяц назад +1

    Shelley inspires me because we are very close in age and my mental illness also presented around the same time. Getting sick in middle age can be really destabilizing, but with medical care, housing, income, and a support system, she seems to be doing very well. I can only hope for the same someday soon. Good luck, Shelley!

  • @siegfriedo
    @siegfriedo Месяц назад +14

    What a lovely woman.

  • @TreyB.
    @TreyB. Месяц назад +4

    What a beautiful Soul. Thank you for sharing your story, Shelley.

  • @Alexandra-privacc
    @Alexandra-privacc Месяц назад +2

    Thank you SBSK, i love your channel. It's really important being able to hear people's stories and break stigma. Shelley seems so lovely and Im really glad she is feeling safe and supported. All the best x

  • @angelalil
    @angelalil Месяц назад +4

    Love your crochet work!! Thanks for speaking to us ❤❤

  • @tehgurl
    @tehgurl Месяц назад +2

    Can we please get her a life time subscription of any audio book she ever wants to listen to so she can crochet and listen? Perhaps she likes to read so I can understand that.
    She is so pretty and sweet. But above all that she is so brave.
    A very large amount of her lifetime of pain was condensed down. So what she has experienced is so much more in time.
    I too was so surprised she was 46. She looks great.
    Keep positive!!! No advice, just proud of you for managing all of this comment :)

  • @potterfile
    @potterfile Месяц назад +8

    i was diagnosed with autism/adhd and high-iq at thirty and it really opened my eyes to how often i was letting misogeny and neurotypical expectations pushed me towards compliance and self shame. thankyou for being open about what you go through and for being unashamed shelly. you deserve love, respect, and understanding

    • @KK-lg8uz
      @KK-lg8uz Месяц назад

      look up Dr. Chris Palmers research at Harvard. He's showing improvement on many mental health conditions using diet

  • @darqchilde01
    @darqchilde01 Месяц назад +1

    This is an amazing interview. Kudos (of course!) to the interviewee, and the interviewer as well for asking probing questions but remaining respectful, sensitive and not becoming salacious.
    I had a friend who (at 43) was finally properly diagnosed after he immigrated to America. After having 'real talk' with him one day, I learned that he had been experiencing many of the symptoms the interviewee mentioned for decades (although I only saw/was privy to a few of the most extreme symptoms in the months prior to his formal diagnosis).
    I appreciate how candid, emotionally articulate and vulnerable the interviewee was. This was very eye-opening for me (my friend also experiences extreme paranoia when going through major episodes and so would never be this candid; I welcome any insight).
    We've been friends for going on 25 years (more than half our lives) and I won't abandon him.

  • @jameswilson6340
    @jameswilson6340 Месяц назад +27

    I have situational psychosis and I suffer from ptsd anx. I have nobody because I am scared of others. I wish for friends. I know i dont deserve them but I feel that there are others that would maybe want to hear me. I also am an alcoholic dependent when not attached to others. I still cant find anyohne else at 32. I build compu ters and stuff.

    • @christinesbetterknitting4533
      @christinesbetterknitting4533 Месяц назад +6

      Have you stopped in to a local Christian church? They have safe small groups that meet at home to encourage each other. It might be a place for you to find trustworthy friends.

    • @lucamara6424
      @lucamara6424 Месяц назад +6

      Why would you think you don’t deserve friends? I don’t know you ofc but I struggle to believe that. And it’s never too late to meet new people and start friendships. I understand that would be difficult with your mental health struggles. Maybe you can start talking to people online (this comment actually is a good first step). There are also “dating apps” for meeting just friends. It’s good to meet people with the same struggles. You can relate to each other and stuff

    • @lucamara6424
      @lucamara6424 Месяц назад +1

      Oehh or find a community of computer builders online or irl

    • @marianasalgado9288
      @marianasalgado9288 Месяц назад +6

      Proud of you for speaking up. Why would you not deserve friends? Everyone deserves fullfilling relationships in their lives. As an adult, life is harder in many ways but slowly and surely i bet you can continue to challenge yourself. Small steps, whenever you can. It would be cool to see your story here at sbsk. Keep on going 🙏💪

    • @MurkyTurnip
      @MurkyTurnip Месяц назад +3

      You deserve a friend, I promise. and what I have learned is the importance of self-love and understanding that the bad things that have happened to you are not your fault. the world is not a fair place, but fortunately you can learn to accept it. Hmm. finding friends can be indeed tough, even without mental disorders so we are in a same boat.