This was randomly suggested for me. Do I know this man? No. Was I thinking it? No. Did it make me instantly curious enough to instantly watch it? Yes, yes it did.
I guess without legs the torso looks shorter, so people probably assume that amputation is further up is which is kinda what I thought. Very educational :)
I really think that's where a lot of the questions come from, short proportions and maybe slouching or some illusion caused by his clothes. I clicked on the video because I thought his torso ends about where his belly button should be.
@@TempestPhaedra it's likely that there's at least some, if not a fair amount, of muscle atrophy at his core and hips due to him not needing to use them (or at a much more infrequent rate than those that have legs) adding to the illusion of his torso being shorter than it is. He also seems to have quite broad shoulders and defined arm muscles so again that could factor into it.
He explains in a different video that a) his pelvis never grew due to his condition and b) it gets tucked/folded under him when he sits so he doesn’t sit on his junk haha. Title is “why shorts are accessible” if you wanna watch it, it was pretty interesting.
My curiosity about this particular question was only spurred by the perception that you were missing your pelvic bones because your torso appears so short. It can look like you're 'sitting' on your rib cage. Your explanation was clear and well-presented. I appreciate your taking the time to indulge your audience.
Omg totally 😂 I love the way he approached this. I definitely agree wholeheartedly that disabled people shouldn't have to deal with all that and the way he explained things made perfect sense in a non abrasive and honest approach.
@@Spencer2TheWest You probably have to reinvent the wheel for yourself for all those things that we have taken for granted. But at so many other levels, your life is extremely interesting. Awesome.
You explained that so beautifully and nonjudgmentally . Where I would probably have long since gotten fed up with random people asking me inappropriate questions in a public place where I'm just living my life. You're a good person. Thank you. We need more good people in the world!❣~Darcy
I love how he was so gracious about setting boundaries and reminding people that just because someone is different, that doesn't mean they're a continual teaching moment for people's ignorance or unconsidered curiosity.
IamCree Have you watched 'Sabia and Loren'? Loren is in the same boat, he had an accident that took away his legs when he was about 17/18. He's about 21 now.
I think the reason this question is asked so often is because of the length of your body (for lack of a better term/description). It looks as if your body ends at mid-torso or just end the bellybutton. That gives the illusion that anything below the bellybutton is missing. Thank you for so willingly and graciously answering this any other questions that come your way. What an inspiration you are to everyone. There is nothing better in a man (with or without legs, eggplant, limes or peach) than a sense of humor.
I think it’s probably due to atrophy of muscles that would be anchored into lower limbs and added bulk to those for the upper limbs and torso that give the illusion of his body ending mid torso. It’s surprising how many muscles the body uses to move your legs, and how those muscles and those bones they anchor to contribute to body shape.
It made sense, but I'm still wondering if resting upright (standing) puts pressure on his genitals at all since they would be the lowest point on his body.
When I was a kid, a neighbor boy had to have spinal surgery and was in the local Shriner's Hospital in a body cast for about a year. He, and subsequently his siblings and some of his friends, myself included, met another patient and became friends with him. His name was Sammy. He was born with no legs and really no anatomy lower than his bellybutton. His mother had thrown him in a dumpster outside the hospital after he was born. A nurse found him and he was made a ward of the state and the Shriner's Hospital had taken him in and done a lot of surgeries to make it possible for him to function when it came to eliminating bodily waste. He was very upfront and matter of fact about it. He always had the best attitude and was very smart. He walked on his hands and rolled around on a skateboard most of the time. After my neighbor was discharged we all kept in touch for a little while, but as we were all kids (I was 9), we grew and changed. I don't know whatever happened to him. He would be about 68 or 70 now.
Its not really peoples fault for thinking he doesnt have everything below a belly button, his shirt typically makes him look like he doesnt have anything, so they arent idiots. Just curious lol
@Seamus F if adults didn’t get answers when kids, they’ll have the same questions. No difference. It’s all about how it’s done and where and all that. Nothing wrong with that. You’re way too negative.
He is awsum!! Its actually nobody's buisness. Exactly how he expressed at the end on how to and when to ask anyone about there disability.. He is actually sharing and educating and that is his choice. More power to you!! Blessings
This guy is one of the nicest people I've ever found on the internet. Like, he's completely straightforward, but in a very polite and respectful and understanding way, and he's also very charismatic. I'm literally amazed by his personality.
This video randomly showed up in my recommended, and while I have no idea why, I'm glad it did. This man is so charming and funny! And then on top of that he's taking it upon himself to educate people about life with disability and people who have them, and I really appreciate that.
For one thing: I love how you set this video up. You provided an explaination for a question, explained why that question is inappropriate and potentially offensive at times, and then provided a solution for the next time someone has a question. And you did it with positivity, and no harsh criticism, words, or language. I appreciate that. And for another: If you wouldn’t mind, I would like to ask about how it feels. Mainly, if you still feel your legs, even though they’re not there, and if you do, what is it like when you are sitting on something and your legs would have been moving through an obstacle?
Yes, I struggle with answering some ppl... Diplomatically, when they expect every moment to be a teaching moment from someone already disadvantaged. Not to say he is or isn't, but as a disabled woman, I feel that way personally.
I would imagine he does feel his legs sometimes. Phantom limb pains are a real thing. I don't know that from experience, but I have read that before. Especially since he wasn't born like this. He did have legs at one point, ergo he knows how it feels to have them on some level, even if he only had them for 5 years. Does it feel weird? Absolutely; I can say that without a shadow of a doubt.
100% respect for you man. Having lived in a very different culture for 17 years, I got used to strangers touching my European white skin, my hairy legs, even my clothes, and asking about my beliefs, my finances, my marital status, and my sex life, but I never really got used to it. You're brave to go so public, especially on such a personal level. Thanks.
What people often fail to realize is that if when you see/meet a disabled/different person you go to them and ask about their situation/make a comment about them, that is a few minutes of your life. But if every person the disabled/different person meets does that, can you imagine what their life becomes? How frustrating it is to continually hear the same comments around you or to continually have to answer questions? Some people might have a natural inclination to teaching and sharing, but some others might well not! Don't make someone's life more difficult that it is to satisfy your curiosity, unless you have the impression they might appreciate your interest or you wouldn't be able to find this sort of information anywhere else and you're dying to know and you can think of a nice, tactful, not imposing way to ask! Even though I assure you there's plenty of people on the internet willing to share about their lives to help other people understand. Maybe more willing that the random person you meet just going on with their lives on the street 😉
@@thenightporter yes, of course some of these questions are just straight up rude and produced by morbid curiosity rather than true desire to understand how someone's else lives! My sister is a redhead while everyone else in the family had dark hair, and my mother was asked by several random stranger "what did the father think". I mean, how can you ask such a question?! So really, the concept of people making absurdly intruding questions is not so foreign to me. I just pointed out how even the more kindly expressed, genuinely curious and well-meaning questions could have in the longer run a negative effect and that we should all consider before asking 😉
Believe me, some people don't seem to understand. Have scoliosis and lordosis and how many times have i been asked about my sexuality....meaning : can i have sex and does it hurt? Well DUH! Shit it's my spine that's bent and it has nothing to do with my génitals.....can have sex like any other women out there and no, it doesn't hurt!!!🤪🤪🤣🤣🤣🤣
@@jadzia2098 huh.. you sure it doesn‘t hurt? My back feels like breaking apart. After any type of physical activities, the next day I‘ll be paralyzed. Can‘t move at all.
@@vladpintilei6204 look, yes i do sit my behind on the toilett seat and yes, i dont do it any differently than you or any other women out there. Just pull my pants down and as i said i sit my behind on the seat and do my bussiness as usual and wipe down as same as others. My biggest problems is that some people ask and at time, some can get annoying and thankfully, its not all of them and yes it can get anyoing when you've been ask so many times before. Cause some dont seem to be able to grasps the fact some keep asking very rudely or while we are with family members or friends or a date. Im 57 and yeah, heard and seen some pretty weird stuff. All im asking is, please be discret and dont be annoyed if we dont answer all of your questions at this precise moment. Please be patient because that person may be new with his/her disabylity and that person may need time to work some things out and may not be comfortable with answering your questions. So please be patient with them cause they may still need to find their way and bearings.
@@longestfuneralever Basically the vibe you give off. Or to say when you meet someone, it's the impression your brain is getting of said person. Like when someone you meet, you get a bad feeling or when you meet someone you feel safe around them.
Lmao my auntie got one of her legs amputated and we visited her in hospital, and my mam said something about putting her special boot on the leg which was amputated. I don’t remember exactly what was said it’s been like 3 and a half years.
2 years ago, during Passover, I took my fam to Lancaster County, where we went on an authentic Amish buggy tour. Since it was Passover, most everybody there was Jewish. One fellow asked our buggy driver, "If we were to knock on an Amish family's door and ask to see an authentic Amish home, would they let us in?" I thought (but was not ridiculous enough to say aloud), "If some random stranger knocked on your door asking to see an authentic Jewish home, would you let him in?" Like our vlogger here, I would be fine if someone just came over and asked for something to drink or perhaps a snack and then, while munching away, said that s/he'd always been curious about the dynamics of Jewish families, but don't expect that somebody of a different culture will ever open up their own home as your personal museum tour.
I often get the feeling that with a handicap everyone can see, you are not believed to have private sphere. You'd be surprised by what strangers all say and want to know...
Some people are just more curious than polite (like a child). (Also the parasocial relationship a creator might play a role.) Might be better he addressed it than having people speculate. There should be no shame in bodily functions and no one wanted him literally filming himself pee.
Well, there are a few things we as humans all do, eat sleep poop. These basic needs connect us as animals,so when we see a variation in those things we want to know how/why and we want to know if our fellow human is "alright".
@@OppositeofHATE7 yeah we wanna know by instinct but that does'nt mean it's appropriate to ask, or that disabled people owe others to explain their existance. Like sure people are curious and thats normal but it doesnt mean we're entitled to explinations about everything we're curious about.
@@gorefieldluvr6921 how is that the first thing someone thinks of though? i never think of the existence of bathroom stuff unless I'm doing it right that second or someone asks me where the bathroom is or whatever. also he's not missing his asshole LOL so what's the mystery
My grandpa was runover by a train, that he used to "ride" to school. He miraculously didn't die but lost both legs, and somehow lived to tell the tale. He did have his wooden and then his aluminum prosthetics, farmed, raised 12 kids, 2 wars and the dustbowl years who knows what else! Always use my ancestors example as a source of strength and resourcefulness in my disability struggles. You are an excellent ancestor to someone
@Saucy Boy I was waiting for someone to ask lmao Let ya boi explain.. So witches, pagans, and many many many cultures follow tradition in the form of anscestor veneration. (Which honestly ima be straight up every black person should be venerating, thanking, and giving praise to their anscestors. Known AND UNKNOWN. For your anscestors are those in your bloodline that came before you, and without them you wouldn't be here and in other words, They are you. Empowering them, means empowering yourself as well as those on the other side. Hope this was eye opening❤ (Also about the disabled guy being an anscestor, ion think you can be an anscestor and be currently living, you'd have to die to be considered and anscestor, soo descendant, until death.)
@Saucy Boy I was just answering the question bc you seemed like you wanted to know. But so as long as you understand the principal of what I'm taking about, why trip? That's lowkey just a sad projection of your ego lmao, ppl use short-hand and slang all the time. it's YT not damn ENG 111 Just bc something may not be "proper" according to some system you grew up using doesn't mean you can't find some use in it but iight
I truly mean this with all the respect and lightheartedness in the world, you remind me of Geodude. Good on you for handling people’s *invasive* questions with such grace!
Uh, if you actually felt the need to type out “he DiDnt put ME to sHamE” ...😬 👍 think about it. It shouldn’t get under your skin, especially since it’s clearly not intended to. It’s a comment, intended to lift someone deserving, up. Everything isn’t about you.
@@alyviaashley “Bizarre” is a perfect adjective to describe someone with the desire to one up a guy with no legs! 👌👍 “Pathetic” and “asshole” also work... 🙄😅
K so what i got from this video: •You have a really short torso •ur funny yet you are smart •people ask really personal questions •and you explain things way better than all my school teachers
That's the part I don't get either. His torso seems too short to hold his lower vital organs and intestines. It seems to end around his belly button, not his hips. From his explanation, he has pelvic bones and his legs are gone at the joints. I'm still confused but so be it. He's quite amazing.
@@lemon1657 That is because he is resting/ sitting on his ribcage which is why the rest of his upper body isn't visible. (I have found a video form 3 years ago where he explained how he swims without legs and he propped himself up and in that moment you could clearly see his stomach. After that he lowered himself back down on his ribcage which is why i am assuming that this is how he usually sits/rests. Correct me if i am wrong please
@@m.8198 Thanks, you're right. I saw the video now. It's quite extraordinary and he's so cheerful despite any obstacle. Wish we could all be so positive.
It’s actually NOT confusing what’s appropriate and what people owe you. Everyone should be taught respecting boundaries and what’s none of your business, but alas far too many people haven’t learned this. You’re lovely and your content is great!
@@peterjohnson2793 This is my question as well. Does it need to be moved out of the way? Is there any extra protection needed? I'm not a guy, so I don't know how it all works normally. Maybe there's no issue. 🤷🏻♀️
When he said, “Aw, the tip’s not as big as I thought it would be” about the marker after talking about the male anatomy, I automatically went “😈” on the inside, and then HE DID IT, and I was won over immediately
I think you are soooo nice to answer these questions that people have THE AUDACITY TO ASK!! I WOUKD JUST TELL THEM NONE OF YOUR #*##! BUSINESS.....OH, and excuse my French!
Your openness and humor is a blessing to everyone who has questions and curiosity. It also gives many folks the opportunity to meet someone with a disability who never have and to help those folks see the others out in the world as a PERSON instead of the disability
@@scj7408 it depends on who you ask. For some, the torso is the human body minus the arms, legs, and head. For others, the waist/hips are a separate part. I’m honestly not sure which is scientifically correct
Yup. When he started showing Gone and Gone 2, i was convinced he wasn't just missing legs but also his pelvis and a good bit of organs. So yeah it looked to me he didnt even have parts of his intestines and i did wonder: how do you even take up nutrients, how do you pass stool, do you even make stool? Maybe its because his pecs and shoulders are so wide?
That lesson was great, people need MORE MANNERS 💯 ((Curious about sensitive topics, go to an online site that has medical info or keep your questions in check ✅ )) Thank you!!
i'm disabled. i have osteogenesis imperfecta. i'm REALLY glad you added that point at the end, because the number of times i've had complete strangers come up to me randomly at the bus stop or on the street or in bars and ask me completely inappropriate, disrespectful, and rude questions is just insane. if you see me at the bus stop with headphones on, or you see me engaged in a conversation with a friend at a bar, for the love of god please do not interrupt me or make me take my headphones off to say something like "what's wrong with you" or "are you a midget or a dwarf" or "does your dick work?". yes, i have had strangers in bars interrupt me to ask me about my penis. don't do that.
Wow, I’m so sorry some people are insensitive and/or unable to word things in a more sincere way about their curiosity. I have POTS and work with a service dog so I understand this situation all too well
I've probably been rude in a form, I went to a haunted house attraction, and I was staring intensely at a guy who was carrying another guy around, the man carrying the one guy around sets him on a table, and the dude looked like the guy in this video. ( These weren't people apart of the haunted house, just visitors like me. ) But I couldn't stop glancing at the guy, I never approached him. But I was dying to ask how it happened.
@@ChonkyCats staring is pretty shitty. it would have been far more polite to just walk up and say something like "hey, i'm terribly sorry if i'm bothering you, but i'm really curious about your disability, do you mind talking about it?" rather than just creepily staring from afar. i can't speak for every disabled person, but i can always feel someone staring at me and it doesn't feel good. i'd much prefer talking about it as long as the person approaching me isn't an asshole. but i'm a dirty punk rock weirdo on top of being smol and disabled, so i guess i'm extra unapproachable tbh. which is ironic because i'm pretty gregarious lmao.
@@Zvox it was nighttime at a haunted house, the guy probably would have been extra edgy if someone came up to talk to him. I imagine him saying something like "What you think I'm apart of the attraction? Buzz off before I beat you silly with my ripped arms"
WHY IS NONE OF THE TOP COMMENTS how confident and respectful and etc etc etc he made this video! Like the enthusiasm to share his answers ahhh I just was not expecting how much I loved this guys attitude!
You are an incredible person. I love your energy, vitality and the bravery and optimism that you sustain. Not only in your own life but in the way you can transmit your incredible positive energy through the screen and right into my soul. I am also disabled but you give me strength and enlightenment. Thank you brother
If you move past the tragedy, you realize the ability humans have to live with only half of what they were given and still be alive and themselves is just amazingly inspiring.
Well, I mean, our mind is like, 80% of our existence. The heart and lungs are the next important. Then maybe enough of a GI system to process nutrients... Reproduction is unnecessary... 🤷🏼♀️
@@JanaeSmith read that last sentence again. Edit: and also without reproductive organs all of the contents of our digestive system would get stuck, and eventually we would literally burst.
His "social contract" point is important. It's natural for people to be curious, since his body is atypical, and I'm sure most are sincere and do not have bad motivations by asking.
Having an "atypical body" myself, I have had people, ADULTS, come up and touch me like they aren't sure I'm real. What is it about a disability that makes people think you are public property! I have no problem with people asking when they treat me like I'm human. And children are fun - I have no problem with children asking what happened to my legs or hands. It's an opportunity to show them I'm a person like they are - just different. I also think it might make them see how fortunate they are to have a healthy body. It's the reactions of the parents when children talk to me in stores that is sometimes sad. I love standing in a line and saying to a 5 year old with a big smile, "Oh, I love your shoes! I want some like that!" Their reactions are adorable.
The social contract for YT is implied because he voluntarily uploaded the video. If you go out and about with an exceedingly abnormal appearance, people are going to think it's strange, and rightfully so. They will wonder.
That makes perfect sense. When you're on RUclips, you're there to educate people about your disability. When you're out in the world, you're there to buy groceries, or run errands, or meet up with friends, or whatever you're doing that day, and you want to be able to do it without being interrupted, just like anyone else.
I can understand the curiosity. When he sits the way his body (for lack of a better word) “collapses” seems like he is missing everything from the waist down. It doesn’t appear there are hips or anything. It makes his torso seem so small.
Yes, that's what I was thinking. I thought he was similar to another man named Loren, who has a YT channel called, Loren and Sabia (or maybe it was vice versa?). Edit: it's Sabia and Loren.
@@sharity3289 i don't think that Loren is the same. I mean he wasn't like that when he was born, he had a car accident that lead to his current situation.
I'm autistic so I've always been the person asking invasive questions and I learned by middle school not to ask strangers things like that randomly. Which is why I appreciate channels like yours that gives an appropriate place to learn 😊
I agree. It answered my questions about approaching someone with a disability. I was on the right track, but there were a few things I hadn't thought of.
I grew up with a disabled sibling, so knowing how to interact with disabled people is second nature to me. I can't believe people would just point blank go up to him and ask him deeply personal questions. That's a HUGE no-no!
It’s more than being offended, though. Yes, it’s great he is open, but disabled people shouldn’t be expected to answer all these invasive questions whenever an abled person demands. Disabled people are commonly dehumanized by these questions, bc you don’t normally ask other able-bodied people those questions. I hope you don’t judge disabled people for being “offended” by these questions.
@@marchforth3515 What...? Of course you wouldn't ask non-disabled people that question, since they themselves know how to go to the background. And no one "demands" them to answer, they're not dogs. It's just curiosity innocently asking away. And why would they be offended? They weren't insulted or seen as less. If anything, if they were to get offended, then that's bad on them
Actually, as a former surgical nurse, I was more curious about your hips. I can totally see how the rest of you that people are inordinately curious about, are complete and functional - I wonder about your operation and how much (if any) of the upper leg or socket was kept intact, or if you're literally sitting on your pelvis. Please ignore if this is too personal. You are a genuinely lovely, open person, and I'm sure when kids ask questions, you're - excuse the pun - completely straight with them.
I wondered the same after the algorithm fed me this video and I thought "what a great dude". And then I watched a couple of other vids and the swimming video answered the torso length/ hip questions.
Yes! I thought it was lower torso too, so that is why I was curious. Thank you so much for clearing the question up for us. Now, I too am wondering if they left upper bone in your legs. You are very brave and we are definitely not meaning any disrespect. I have a lot of respect for you! Thanks again.
As a person with a disability, I appreciate that you spoke about how to properly ask about a person's disability and that although it is true that we are mostly all willing to answer questions there is a time and place. I also always enjoy your videos! You are awesome!! 😄
As a trans man I had people randomly (and with obvious intent) ask me if I pee standing up. I usually answer that (sorry, English... hope it still makes sense) "No, I grab on to a hook that I've installed above the toilet, with one hand, open my pants with the other and am reeeally careful to hit the target, before I lose my grip." And I'm pretty good at saying that in an almost convincing way. In other words: Yes! Time, place and circumstances are absolutely key for certain questions.
Yeah, I wouldn’t randomly ask a question like that. That said, I dunno if this makes any sense but it is interesting to learn more about the solutions people come up with for the logistics problems a condition can present. People are very innovative. And in some cases those solutions may well have greater benefits and use cases than originally envisioned. (For a simple and far more appropriate thing to discuss, curb cuts benefit wheelchair users but also turn out to be useful for other reasons too.)
It’s disgusting that people would think it’s appropriate to approach someone and ask them personal questions in public 🙄. I’m so sorry he had to go threw that
I love the idea of saying, “just ask” so that people can learn, while still having boundaries. This is hard to do graciously, but you do it with aplomb!
Thank you for so graciously explaining how questions from the abled people sometimes appear. I have an invisible disability and often get intrusive questions about my service dog. I don't handle them as well as you do. Thanks for your example.
it's honestly so hard to. and i love that he can be this gracious, however i hope the commenters also know (they don't) that we aren't on this earth as a lesson, aaand our proximity to the virtue of patience is often really limited bc of how many ppl prioritize their curiosity about our personal lives over basic privacy (i'm not out here asking if YOU really need your pet or what happened to you, beth, so please leave me be). sigh. i hope you're having a good day when you see this.
and for anyone wondering... there are def ppl like spencer who have answered sooooooooo many questions like this, for a wide range of disabilities, so it's worth googling before you walk up to that person and ask them while they're just out doing their thing
@@goatpepperherbaltea7895 he has arms and a few decades worth of daily upper body exercises just from the necessity to move so I feel like you're underestimating him.
I admire your willingness to touch on these topics. I have zero patience for invasive questions so I tend to respond with something along the lines of "I'll forgive you for asking if you forgive me for not answering". Gives the person on the other end a little bit of a reality check that disabled people aren't some spectacle that you're entitled to know all the details about
When he showed the “diagram” I almost fell off my chair….it was so forthcoming and honest! And he’s absolutely correct in some people being so rude in their approach….and he has the right to respond any way he chooses. Good for him!
I’ve grown up with disabled people. You don’t owe anyone an explanation. It’s none of their business. Much respect to you for answering the questions. Also I was taught not to judge or treat disabled people as different. I also was a carer so came across many disabled people. Some disabilities are visible, others not. I don’t know how this video came up but much respect to you.
Every time I watch this young man, I fall a little more in love with him. But alas, I am an old fat broad living it up in rural Maine. 😊 The intelligence, sensitivity, humor, and charm - I envy those few who are blessed to be called his friend.
i kind of would like if he just showed us where his belly button is so that i can make sense of the proportions. like fully clothed just put a finger where the belly button is
I think it's because he's "laying" on his belly area, but because he's got a shirt covering him, it looks like he's just balancing on his rib cage area.
Due to his condition (en.wikipedia.org/wiki/Caudal_regression_syndrome), his spine didn’t develop properly. It’s possible that he’s missing some vertebrae and ribs, which would shorten his torso.
This man is such a ray of sunshine! His humor is on point! I’m glad I watched this video not just for the education on the how/why of his body and bathroom logistics, but also to experience his jovial nature!
Yes I agree a wonderful cheerful man,but anyone who asks such personal questions of anyone deserves the answer " go stick your head in a bucket of boiling water. Yep that'd the proper reply for a buffoon
This is the first time I've seen your channel, but this video has earned my utmost respect for you, for all that you have to deal with yet maintaining a very positive and uplifting attitude. Now I'm not gonna pretend that if I ever saw you IRL, I'd never wonder such questions, but I would never, ever just outright ask. As you say, it's private information and should be respected as such. The only way I would've even consider asking you is if I knew you personally for quite some time.
While I know this is a very intrusive topic, thank you for sharing it! I don't believe the curiosity involved is meant to be rude, people just naturally want to understand when something is different. Again THANK YOU for not only understanding and sharing but doing so with great humor!
you just admitted that you are one of those kinds of people, do you approach black people and ask them which basketball team they play for? or ask big people how much they weigh?
@@tonysteel9502 I just don't watch basketball or hang out in those neighborhoods. There is enough evil going on in there, I don't want to be accused by the cops for being in the wrong neighborhood, I've watched enough episodes of COPS they do it all the time. I've had some good friends who have been black, do I want to live the lifestyle they were brought up in, no. I also have first hand knowledge they will cry racist or otherwise for a well qualified statement.. being, "it smells like someone passed through here recently has had a severe burn, I smell burnt flesh and personally experienced being burnt" for God sakes, when called upstairs, I asked permission to take off my shirt, I showed the scars, and said you can tell the person who complained to listen to the two sentences completely and go about their own business and not stir fabricated complaints, because of their ineptitude. There was only racism from their mouth. This is why people in the military burn put before retirement kicking in, my cousin left as a officer 1.5 years early due to all the BS going on, he couldn't handle it. I'm about 10 years older than him, I got out in the 80s, in our small office of say a dozen people 2 officers and two enlisted did not continue their military careers, the officers retired, the enlisted went home I suppose.
I respect how much grace you give people. We are lucky to be able to learn from you. I hope your kind and patient way of explaining things here teaches people it is okay to be curious about others that are different from them, but not okay to expect or feel entitled to personal information about them.
I think the reason why people ask is because it looks like you’re smaller than that, it almost looks like your missing everything from the belly button down and people try to use their imagination
Yes I think this is why people are confused. When you set yourself down it looks like you are sitting flat...not like you are sitting on a butt. I assume that's why people struggle so much .....
Yes, this is obviously the reason. There are others that have amputated as much as he has (there's this motivational speaker for example that I can't remember the name of) , but they have a much longer torso so it looks less "confusing". It looks like this guy was amputated below the ribcage, but I assume that is because of his disorder he mentioned. He said his legs weren't working even as a small child, so I guess his lower body couldn't grow properly. While his arms and everything else grew into an adult. This then gives the image of him having been amputated far higher up than he actually is
This was randomly suggested for me. Do I know this man? No. Was I thinking it? No. Did it make me instantly curious enough to instantly watch it? Yes, yes it did.
same dude😂
lmao same
Same😂
Same
Me too🤣🤣🤣
“Gone 2, The Sequel” this man has such a great spirit. Idk how I got here, but he’s so pleasant to listen to.
Same, he was just in my recommended... I have no clue, but I am 'here for the punchlines' 😁
no same
Just heard him say it, why does this always happen to me LOL
This.
Yeah that’s
I guess without legs the torso looks shorter, so people probably assume that amputation is further up is which is kinda what I thought. Very educational :)
I really think that's where a lot of the questions come from, short proportions and maybe slouching or some illusion caused by his clothes. I clicked on the video because I thought his torso ends about where his belly button should be.
@@TempestPhaedra it's likely that there's at least some, if not a fair amount, of muscle atrophy at his core and hips due to him not needing to use them (or at a much more infrequent rate than those that have legs) adding to the illusion of his torso being shorter than it is. He also seems to have quite broad shoulders and defined arm muscles so again that could factor into it.
He explains in a different video that a) his pelvis never grew due to his condition and b) it gets tucked/folded under him when he sits so he doesn’t sit on his junk haha. Title is “why shorts are accessible” if you wanna watch it, it was pretty interesting.
Yeah I think that's what everyone thought. It looks like ends where his belly button is
What ?
My curiosity about this particular question was only spurred by the perception that you were missing your pelvic bones because your torso appears so short. It can look like you're 'sitting' on your rib cage. Your explanation was clear and well-presented. I appreciate your taking the time to indulge your audience.
His personality, humor and HONESTY is so refreshing.
I agree
Cute as a bug.
Yes it is im so glad I stumbled on to his channel. Im a new fan! ☺😍💓💕
Funny guy
Omg totally 😂 I love the way he approached this. I definitely agree wholeheartedly that disabled people shouldn't have to deal with all that and the way he explained things made perfect sense in a non abrasive and honest approach.
Thank you for being so transparent with us. You're never obligated to answer anyone's questions. I love your channel.
So nice of you!
@@Spencer2TheWest You probably have to reinvent the wheel for yourself for all those things that we have taken for granted. But at so many other levels, your life is extremely interesting. Awesome.
@@Spencer2TheWest 😋😉🤣
@alana terrel So Alana how do you go to the bathroom? Just curious.
@alana terrel Alana are your breast real or fake? What’s your cup size? Are you a man or women?🧐
"where are your legs?"
"I haven't seen them in a while, they do write to me from time to time tho"
o yes this is some dark comedy shit
My legs are like my father........they “walked out on me” when I was born
“i didn’t get custody” 😔
Pewdiepie can relate
Tbh I thought that was Michael from VSauce at first.
You explained that so beautifully and nonjudgmentally . Where I would probably have long since gotten fed up with random people asking me inappropriate questions in a public place where I'm just living my life. You're a good person. Thank you. We need more good people in the world!❣~Darcy
I love how he was so gracious about setting boundaries and reminding people that just because someone is different, that doesn't mean they're a continual teaching moment for people's ignorance or unconsidered curiosity.
People need to hear this!! Special ed teacher here!
IamCree
Have you watched 'Sabia and Loren'?
Loren is in the same boat, he had an accident that took away his legs when he was about 17/18. He's about 21 now.
Exactly, seriously. 😑 I am so annoyed with people.
Exactly! God bless
@@amethyst1826 yes I follow them . I’ve never seen this man .but Loren has no pelvic area , his missing a lot more
I think the reason this question is asked so often is because of the length of your body (for lack of a better term/description). It looks as if your body ends at mid-torso or just end the bellybutton. That gives the illusion that anything below the bellybutton is missing.
Thank you for so willingly and graciously answering this any other questions that come your way. What an inspiration you are to everyone. There is nothing better in a man (with or without legs, eggplant, limes or peach) than a sense of humor.
Yess. This is my thought as well. As in I believe he doesn't have any "junk" cause of where his body ends
I think it’s probably due to atrophy of muscles that would be anchored into lower limbs and added bulk to those for the upper limbs and torso that give the illusion of his body ending mid torso. It’s surprising how many muscles the body uses to move your legs, and how those muscles and those bones they anchor to contribute to body shape.
Yeah, I wrongly assumed he didn’t have a pelvis. This explains so much.
It made sense, but I'm still wondering if resting upright (standing) puts pressure on his genitals at all since they would be the lowest point on his body.
Yea the optical illusion makes it look like its photoshopped mid stomach when theres no 'pants'
This guy is the definition of an individual that’s cool asf
When I was a kid, a neighbor boy had to have spinal surgery and was in the local Shriner's Hospital in a body cast for about a year. He, and subsequently his siblings and some of his friends, myself included, met another patient and became friends with him. His name was Sammy. He was born with no legs and really no anatomy lower than his bellybutton. His mother had thrown him in a dumpster outside the hospital after he was born. A nurse found him and he was made a ward of the state and the Shriner's Hospital had taken him in and done a lot of surgeries to make it possible for him to function when it came to eliminating bodily waste. He was very upfront and matter of fact about it. He always had the best attitude and was very smart. He walked on his hands and rolled around on a skateboard most of the time. After my neighbor was discharged we all kept in touch for a little while, but as we were all kids (I was 9), we grew and changed. I don't know whatever happened to him. He would be about 68 or 70 now.
My God this man is strong. The way he dealt with society’s idiots is awesome.
Its not really peoples fault for thinking he doesnt have everything below a belly button, his shirt typically makes him look like he doesnt have anything, so they arent idiots. Just curious lol
@Seamus F whatever you say Seamun
@Seamus F if adults didn’t get answers when kids, they’ll have the same questions. No difference. It’s all about how it’s done and where and all that. Nothing wrong with that. You’re way too negative.
He is awsum!! Its actually nobody's buisness. Exactly how he expressed at the end on how to and when to ask anyone about there disability.. He is actually sharing and educating and that is his choice. More power to you!! Blessings
@@gglopez4018 ok spud
This guy is one of the nicest people I've ever found on the internet. Like, he's completely straightforward, but in a very polite and respectful and understanding way, and he's also very charismatic. I'm literally amazed by his personality.
Same this is the first video of him i watched and i already love him!
Agreed. The phrase, “It’s not what you say, it’s how you say it”, comes to mind.
Completely. One super cool guy.
He's great!
This video randomly showed up in my recommended, and while I have no idea why, I'm glad it did. This man is so charming and funny! And then on top of that he's taking it upon himself to educate people about life with disability and people who have them, and I really appreciate that.
Same😂
Same!
Same
Literallyyyyy sameeeee
Same
For one thing: I love how you set this video up. You provided an explaination for a question, explained why that question is inappropriate and potentially offensive at times, and then provided a solution for the next time someone has a question. And you did it with positivity, and no harsh criticism, words, or language. I appreciate that.
And for another: If you wouldn’t mind, I would like to ask about how it feels. Mainly, if you still feel your legs, even though they’re not there, and if you do, what is it like when you are sitting on something and your legs would have been moving through an obstacle?
I absolutely love your attitude and how you've adapted to your new normal.
Yes, I struggle with answering some ppl... Diplomatically, when they expect every moment to be a teaching moment from someone already disadvantaged. Not to say he is or isn't, but as a disabled woman, I feel that way personally.
I would imagine he does feel his legs sometimes. Phantom limb pains are a real thing. I don't know that from experience, but I have read that before. Especially since he wasn't born like this. He did have legs at one point, ergo he knows how it feels to have them on some level, even if he only had them for 5 years. Does it feel weird? Absolutely; I can say that without a shadow of a doubt.
Get I get 10% of this guy's charisma and personality? He seems like he's great to be around and doesn't let petty shit get to him.
My feelings exactly
@@markbuckles6609 lmao you let it get to you huh?
@@Globbs Lmao 🤣
As a disabled woman I really appreciate your sense of humor and sunny attitude. May you live long and prosper.
Blessings
nannu nannu
🖖🏻
Same!
🖖🏼
You are not disabled
this man is so kind and his vibe is so welcoming. He’s so honest and open with everyone.
100% respect for you man. Having lived in a very different culture for 17 years, I got used to strangers touching my European white skin, my hairy legs, even my clothes, and asking about my beliefs, my finances, my marital status, and my sex life, but I never really got used to it. You're brave to go so public, especially on such a personal level. Thanks.
This man is half the size of most men and yet he's a bigger man than most men. Your confidence is aw inspiring. Hats off to you sir.
Very true
As a guy who considers himself a “man” I agree with this.
He said he's gay
@@jezusfreak1234 being gay doesn't make you any less of a man compared to other men.
So, so, sooooo true
My main takeaway from this video is that legs make up way more of the human body than I realized they did.
THIS.Because in my mind with how short his torso looked, I thought he was missing his pelvis or something as well...
Apparently we're approximately 50% LeG. I don't know what to do with this information.
Boom!!!🤯
facts
THIS!! ...and I actually took human anatomy in school. 😫
"I'm not here to be a teaching moment for you every single day every hour of my life." YES!!
What people often fail to realize is that if when you see/meet a disabled/different person you go to them and ask about their situation/make a comment about them, that is a few minutes of your life. But if every person the disabled/different person meets does that, can you imagine what their life becomes? How frustrating it is to continually hear the same comments around you or to continually have to answer questions?
Some people might have a natural inclination to teaching and sharing, but some others might well not! Don't make someone's life more difficult that it is to satisfy your curiosity, unless you have the impression they might appreciate your interest or you wouldn't be able to find this sort of information anywhere else and you're dying to know and you can think of a nice, tactful, not imposing way to ask! Even though I assure you there's plenty of people on the internet willing to share about their lives to help other people understand. Maybe more willing that the random person you meet just going on with their lives on the street 😉
As a black person, I feel that. I feel like screaming the same thing every day. So preach! Say it louder for the people in the back! 💙
@@thenightporter yes, of course some of these questions are just straight up rude and produced by morbid curiosity rather than true desire to understand how someone's else lives!
My sister is a redhead while everyone else in the family had dark hair, and my mother was asked by several random stranger "what did the father think". I mean, how can you ask such a question?! So really, the concept of people making absurdly intruding questions is not so foreign to me.
I just pointed out how even the more kindly expressed, genuinely curious and well-meaning questions could have in the longer run a negative effect and that we should all consider before asking 😉
@@gordythecat people are unreal. I'm sorry.
@@Doc_McStuffins Ditto 💜
clicked for the title, stayed for the charisma. love your sense of humor, thank you for being such an inspiration ❤
"don't ask strangers details about their genitals and/or bathroom habits" are one of those things that really shouldn't be hard to grasp, and still...
Believe me, some people don't seem to understand. Have scoliosis and lordosis and how many times have i been asked about my sexuality....meaning : can i have sex and does it hurt? Well DUH! Shit it's my spine that's bent and it has nothing to do with my génitals.....can have sex like any other women out there and no, it doesn't hurt!!!🤪🤪🤣🤣🤣🤣
@@jadzia2098 huh.. you sure it doesn‘t hurt? My back feels like breaking apart. After any type of physical activities, the next day I‘ll be paralyzed. Can‘t move at all.
@@lilyblack1979 nope.
why not, what's so spOooOoKY about asking how you shit lmao
@@vladpintilei6204 look, yes i do sit my behind on the toilett seat and yes, i dont do it any differently than you or any other women out there. Just pull my pants down and as i said i sit my behind on the seat and do my bussiness as usual and wipe down as same as others. My biggest problems is that some people ask and at time, some can get annoying and thankfully, its not all of them and yes it can get anyoing when you've been ask so many times before. Cause some dont seem to be able to grasps the fact some keep asking very rudely or while we are with family members or friends or a date. Im 57 and yeah, heard and seen some pretty weird stuff. All im asking is, please be discret and dont be annoyed if we dont answer all of your questions at this precise moment. Please be patient because that person may be new with his/her disabylity and that person may need time to work some things out and may not be comfortable with answering your questions. So please be patient with them cause they may still need to find their way and bearings.
this man has the nicest aura i have ever seen.. god how is he so welcoming
I kniw right. The way he spoke is clearly tell he is more confident than any other normal people might be
He has sooo much personality. Funny. Wit and sarcasm on 1000 in the funniest way. Reminds me of my friends.
What is an aura?.
Immediats sub just based off what you said and what I saw.
@@longestfuneralever Basically the vibe you give off. Or to say when you meet someone, it's the impression your brain is getting of said person. Like when someone you meet, you get a bad feeling or when you meet someone you feel safe around them.
I love when people word the question as “where are your legs?” As if you still have them, you’re just hiding them somewhere LOL
"Oh damnit did I leave them in the closet again when I came out? WELL FUCK."
Lmao my auntie got one of her legs amputated and we visited her in hospital, and my mam said something about putting her special boot on the leg which was amputated. I don’t remember exactly what was said it’s been like 3 and a half years.
@Yeoubi I think they incinerate them.
People online are stupid as hell. It no longer surprises me
Dammit I left them in my other pants!
Hey, Vsauce, Michael here. My legs have gone missing...
So I'm taking yours...
"My legs gone missing...
... Or are they?"
hey, Vsauce, Michael here. Where are your legs?
two sentence horror
Or did they…?
Hey, Vsauce, Michael here.
How fast can you run?
(I'm sorry-)
That’s crazy how strangers will walk up to you asking such private questions
ikr? absolutely rude :(
2 years ago, during Passover, I took my fam to Lancaster County, where we went on an authentic Amish buggy tour. Since it was Passover, most everybody there was Jewish. One fellow asked our buggy driver, "If we were to knock on an Amish family's door and ask to see an authentic Amish home, would they let us in?" I thought (but was not ridiculous enough to say aloud), "If some random stranger knocked on your door asking to see an authentic Jewish home, would you let him in?"
Like our vlogger here, I would be fine if someone just came over and asked for something to drink or perhaps a snack and then, while munching away, said that s/he'd always been curious about the dynamics of Jewish families, but don't expect that somebody of a different culture will ever open up their own home as your personal museum tour.
I often get the feeling that with a handicap everyone can see, you are not believed to have private sphere. You'd be surprised by what strangers all say and want to know...
Some people are just more curious than polite (like a child). (Also the parasocial relationship a creator might play a role.) Might be better he addressed it than having people speculate. There should be no shame in bodily functions and no one wanted him literally filming himself pee.
So rude 😒 ugh
I’ll never understand people’s fascination with how disabled people go to the bathroom. I’ve started saying “I don’t” and watching the reactions
Omg that's awesome! Love it. I used to give fake due dates, gender, etc etc "Are you pregnant?" "Are you sure?"
Well, there are a few things we as humans all do, eat sleep poop. These basic needs connect us as animals,so when we see a variation in those things we want to know how/why and we want to know if our fellow human is "alright".
@@OppositeofHATE7 yeah we wanna know by instinct but that does'nt mean it's appropriate to ask, or that disabled people owe others to explain their existance. Like sure people are curious and thats normal but it doesnt mean we're entitled to explinations about everything we're curious about.
@@gorefieldluvr6921 how is that the first thing someone thinks of though? i never think of the existence of bathroom stuff unless I'm doing it right that second or someone asks me where the bathroom is or whatever. also he's not missing his asshole LOL so what's the mystery
I agree. I feel like it’s such a weird thing to wonder let alone feel the need to ask.
My grandpa was runover by a train, that he used to "ride" to school. He miraculously didn't die but lost both legs, and somehow lived to tell the tale. He did have his wooden and then his aluminum prosthetics, farmed, raised 12 kids, 2 wars and the dustbowl years who knows what else! Always use my ancestors example as a source of strength and resourcefulness in my disability struggles. You are an excellent ancestor to someone
Tell me you’re a witch without telling me you’re a witch
What a lovely thing to say..."You are an excellent ancestor to someone." 💕
🙌🏽💕👪
@Saucy Boy I was waiting for someone to ask lmao
Let ya boi explain..
So witches, pagans, and many many many cultures follow tradition in the form of anscestor veneration. (Which honestly ima be straight up every black person should be venerating, thanking, and giving praise to their anscestors. Known AND UNKNOWN.
For your anscestors are those in your bloodline that came before you, and without them you wouldn't be here and in other words, They are you. Empowering them, means empowering yourself as well as those on the other side.
Hope this was eye opening❤
(Also about the disabled guy being an anscestor, ion think you can be an anscestor and be currently living, you'd have to die to be considered and anscestor, soo descendant, until death.)
@Saucy Boy I was just answering the question bc you seemed like you wanted to know.
But so as long as you understand the principal of what I'm taking about, why trip? That's lowkey just a sad projection of your ego lmao, ppl use short-hand and slang all the time. it's YT not damn ENG 111
Just bc something may not be "proper" according to some system you grew up using doesn't mean you can't find some use in it but iight
I truly mean this with all the respect and lightheartedness in the world, you remind me of Geodude. Good on you for handling people’s *invasive* questions with such grace!
This man puts us all to shame. Imagine being such a graceful person. He’s amazing.
He don't put me to shame 🤷‼️ however I do like him
He didn't put me to shame he put you to shame because you're weak-minded!
Uh, if you actually felt the need to type out “he DiDnt put ME to sHamE” ...😬 👍 think about it. It shouldn’t get under your skin, especially since it’s clearly not intended to. It’s a comment, intended to lift someone deserving, up.
Everything isn’t about you.
@@h0rriphic agreed very bizarre reaction. hence why he puts us to shame.
@@alyviaashley “Bizarre” is a perfect adjective to describe someone with the desire to one up a guy with no legs! 👌👍
“Pathetic” and “asshole” also work... 🙄😅
"Where are your legs?"
"Aw crap I left them in my other pants"
Right?! Like, how is he supposed to answer that? People man.
"I'm wearing pants/a skirt/shorts made out of the same stuff as Harry's invisibility cloak"
That's not funny !
@@mayarmshmsha957 I understand where you're coming from, but often dark humor is a survival tactic for people with a chronic condition.
@@tgbluewolf only when he makes a joke about it but others shouldn't do that
K so what i got from this video:
•You have a really short torso
•ur funny yet you are smart
•people ask really personal questions
•and you explain things way better than all my school teachers
That's the part I don't get either. His torso seems too short to hold his lower vital organs and intestines. It seems to end around his belly button, not his hips. From his explanation, he has pelvic bones and his legs are gone at the joints. I'm still confused but so be it. He's quite amazing.
@@lemon1657 That is because he is resting/ sitting on his ribcage which is why the rest of his upper body isn't visible.
(I have found a video form 3 years ago where he explained how he swims without legs and he propped himself up and in that moment you could clearly see his stomach. After that he lowered himself back down on his ribcage which is why i am assuming that this is how he usually sits/rests. Correct me if i am wrong please
@@m.8198 Thanks, you're right. I saw the video now. It's quite extraordinary and he's so cheerful despite any obstacle. Wish we could all be so positive.
It’s actually NOT confusing what’s appropriate and what people owe you. Everyone should be taught respecting boundaries and what’s none of your business, but alas far too many people haven’t learned this. You’re lovely and your content is great!
This was done so nice. He touched on everything without being vulgar and disgusting. Take note people
Now if only everyone in the comment section could use a similar approach by appreciating him without committing social genocide on everyone else.
Does he smoosh his egg plant when he walks?
@@peterjohnson2793 This is my question as well. Does it need to be moved out of the way? Is there any extra protection needed? I'm not a guy, so I don't know how it all works normally. Maybe there's no issue. 🤷🏻♀️
When he said, “Aw, the tip’s not as big as I thought it would be” about the marker after talking about the male anatomy, I automatically went “😈” on the inside, and then HE DID IT, and I was won over immediately
Same here. My people 😩😂
Same🤣
Yea same isnt that funny how we operate as humans. We decide so quickly whether or not we like someone
So he wasn’t being “smart”
Same😈😂
I'm not sure why I was expecting him to say "Vsauce here" at that intro.
Or welcome us to mega projects.
He looks like Michael from Vsauce and Adam Ragusea (the cooking guy) combined.
Vsauce 0.5 ... yo dark stuff
Same
SAME.
This man's humor is just... *chef's kiss*
Ok but can we talk about how cool he is and super funny 😄
Sorry to disappoint you but this man isn't in any pain, nor is he miserable. I think we know who is though.
he is like sparks comverted into a man
I think you are soooo nice to answer these questions that people have THE AUDACITY TO ASK!! I WOUKD JUST TELL THEM NONE OF YOUR #*##! BUSINESS.....OH, and excuse my French!
@@johnnyblack612 what you said is amazing! I agree with you
Nobody add anymore likes. It's PURRfect.
Your openness and humor is a blessing to everyone who has questions and curiosity. It also gives many folks the opportunity to meet someone with a disability who never have and to help those folks see the others out in the world as a PERSON instead of the disability
Okay, so he still has a waist. Honestly the shirt makes him only look like a torso. Hence the question
Isn’t a waist and a torso the same thing
I think they're saying that it looks like the pelvis is removed
@@scj7408 it depends on who you ask. For some, the torso is the human body minus the arms, legs, and head. For others, the waist/hips are a separate part. I’m honestly not sure which is scientifically correct
Yup. When he started showing Gone and Gone 2, i was convinced he wasn't just missing legs but also his pelvis and a good bit of organs. So yeah it looked to me he didnt even have parts of his intestines and i did wonder: how do you even take up nutrients, how do you pass stool, do you even make stool?
Maybe its because his pecs and shoulders are so wide?
That's what I was thinking. Not sure if it's the tshirt or what but it looks to me like his body was cut off at the belly button.
That lesson was great, people need MORE MANNERS 💯
((Curious about sensitive topics, go to an online site that has medical info or keep your questions in check ✅ ))
Thank you!!
i'm disabled. i have osteogenesis imperfecta. i'm REALLY glad you added that point at the end, because the number of times i've had complete strangers come up to me randomly at the bus stop or on the street or in bars and ask me completely inappropriate, disrespectful, and rude questions is just insane.
if you see me at the bus stop with headphones on, or you see me engaged in a conversation with a friend at a bar, for the love of god please do not interrupt me or make me take my headphones off to say something like "what's wrong with you" or "are you a midget or a dwarf" or "does your dick work?". yes, i have had strangers in bars interrupt me to ask me about my penis. don't do that.
Wow, I’m so sorry some people are insensitive and/or unable to word things in a more sincere way about their curiosity. I have POTS and work with a service dog so I understand this situation all too well
I've probably been rude in a form, I went to a haunted house attraction, and I was staring intensely at a guy who was carrying another guy around, the man carrying the one guy around sets him on a table, and the dude looked like the guy in this video. ( These weren't people apart of the haunted house, just visitors like me. ) But I couldn't stop glancing at the guy, I never approached him. But I was dying to ask how it happened.
@@ChonkyCats staring is pretty shitty. it would have been far more polite to just walk up and say something like "hey, i'm terribly sorry if i'm bothering you, but i'm really curious about your disability, do you mind talking about it?" rather than just creepily staring from afar.
i can't speak for every disabled person, but i can always feel someone staring at me and it doesn't feel good. i'd much prefer talking about it as long as the person approaching me isn't an asshole. but i'm a dirty punk rock weirdo on top of being smol and disabled, so i guess i'm extra unapproachable tbh. which is ironic because i'm pretty gregarious lmao.
@@Zvox it was nighttime at a haunted house, the guy probably would have been extra edgy if someone came up to talk to him. I imagine him saying something like "What you think I'm apart of the attraction? Buzz off before I beat you silly with my ripped arms"
I'm so sorry people are so rude to you. Take care 🧡💛💚💙❤️
WHY IS NONE OF THE TOP COMMENTS how confident and respectful and etc etc etc he made this video! Like the enthusiasm to share his answers ahhh I just was not expecting how much I loved this guys attitude!
Same here!!
1:00 I have no clue who this dude is or why he was on my recommended, but he just earned so much of my respect
Lmfao that look
Same here!
Agreed!! He's a rock Star!!
Yep 🙋🏽
Exactly same here!
I don’t know who raised you, but you seem DELIGHTFUL.
Gracious, witty, intelligent, warm! Hoping all good things for you
The way he has to state what should be obvious (at the end) and does it with so much patience and kindness!!! I could never. What an amazing person
The way he looked back at the camera after saying “the tip wasn’t as big as I thought it would be” was priceless.
😂😂😂 yes, I thought so too
That little giggle too 😂
Right!
Listen. I was wheezing😭😭😭😭
The look too. Definitely priceless. First time watching his videos and I adore him.
"Ohhh, the tip's not as big as I thought it would be."
**draMATic over-the-shoulder glance**
That's it, I love you already. 😂😂😂💜
😂😂😂that one reeled me in, I was gonna say the same but you beat me to it!
Bruh almost same pfp
I have had my pfp like this since I joined yt
Omg EXACTLY!!!!❤❤❤
I snorted when he looked over his shoulder
You are an incredible person. I love your energy, vitality and the bravery and optimism that you sustain. Not only in your own life but in the way you can transmit your incredible positive energy through the screen and right into my soul. I am also disabled but you give me strength and enlightenment. Thank you brother
"I'm not about to start an only fans account." This guy is just too good.
If you move past the tragedy, you realize the ability humans have to live with only half of what they were given and still be alive and themselves is just amazingly inspiring.
الحمد لله what a grateful heart you have.
Well, I mean, our mind is like, 80% of our existence. The heart and lungs are the next important. Then maybe enough of a GI system to process nutrients... Reproduction is unnecessary... 🤷🏼♀️
@@JanaeSmith read that last sentence again.
Edit: and also without reproductive organs all of the contents of our digestive system would get stuck, and eventually we would literally burst.
As far as brains go,some people can't function on a whole one.
His "social contract" point is important. It's natural for people to be curious, since his body is atypical, and I'm sure most are sincere and do not have bad motivations by asking.
Thats why its a great video. Because people might be sincere
Having an "atypical body" myself, I have had people, ADULTS, come up and touch me like they aren't sure I'm real.
What is it about a disability that makes people think you are public property!
I have no problem with people asking when they treat me like I'm human. And children are fun - I have no problem with children asking what happened to my legs or hands. It's an opportunity to show them I'm a person like they are - just different. I also think it might make them see how fortunate they are to have a healthy body. It's the reactions of the parents when children talk to me in stores that is sometimes sad.
I love standing in a line and saying to a 5 year old with a big smile, "Oh, I love your shoes! I want some like that!" Their reactions are adorable.
No. I think he meant the social contract of youtube. Not of life. It's not appropriate to ask a stranger about their disability.
The social contract for YT is implied because he voluntarily uploaded the video. If you go out and about with an exceedingly abnormal appearance, people are going to think it's strange, and rightfully so. They will wonder.
I don’t personally care about this topic. All I can say is you are a lovely, bubbly person. That I enjoyed. 😀🇦🇺
I absolutely agree.
I couldn’t agree more! ❤
That makes perfect sense. When you're on RUclips, you're there to educate people about your disability. When you're out in the world, you're there to buy groceries, or run errands, or meet up with friends, or whatever you're doing that day, and you want to be able to do it without being interrupted, just like anyone else.
Well said emily.
It is not the lack of your legs, sir, that catches my attention, but how articulate and funny you are. THAT caught my attention. 8-)
I can understand the curiosity. When he sits the way his body (for lack of a better word) “collapses” seems like he is missing everything from the waist down. It doesn’t appear there are hips or anything. It makes his torso seem so small.
Yes, that's what I was thinking. I thought he was similar to another man named Loren, who has a YT channel called, Loren and Sabia (or maybe it was vice versa?). Edit: it's Sabia and Loren.
Yeah, that's why people think that he doesn't have that private parts
Waist down, hell. It legit looks like his whole body ends just below his ribs.
@@sharity3289 i don't think that Loren is the same. I mean he wasn't like that when he was born, he had a car accident that lead to his current situation.
It's amazing and how much of our vertical selves is legs and feet
I'm autistic so I've always been the person asking invasive questions and I learned by middle school not to ask strangers things like that randomly. Which is why I appreciate channels like yours that gives an appropriate place to learn 😊
The bit at the end about etiquette when interacting with disabled individuals was beautifully said, thank you!
Hello how are you doing hope you're safe over there?
It really was!
I agree. It answered my questions about approaching someone with a disability. I was on the right track, but there were a few things I hadn't thought of.
Shouldn't even have to be said really. Can't believe ppl can be so rude and disrespectful.
I grew up with a disabled sibling, so knowing how to interact with disabled people is second nature to me. I can't believe people would just point blank go up to him and ask him deeply personal questions. That's a HUGE no-no!
What a great person to be able to talk candidly about his body and not be offended by people’s curiosity.
It’s more than being offended, though. Yes, it’s great he is open, but disabled people shouldn’t be expected to answer all these invasive questions whenever an abled person demands. Disabled people are commonly dehumanized by these questions, bc you don’t normally ask other able-bodied people those questions. I hope you don’t judge disabled people for being “offended” by these questions.
@@marchforth3515 What...? Of course you wouldn't ask non-disabled people that question, since they themselves know how to go to the background. And no one "demands" them to answer, they're not dogs. It's just curiosity innocently asking away. And why would they be offended? They weren't insulted or seen as less. If anything, if they were to get offended, then that's bad on them
Actually, as a former surgical nurse, I was more curious about your hips. I can totally see how the rest of you that people are inordinately curious about, are complete and functional - I wonder about your operation and how much (if any) of the upper leg or socket was kept intact, or if you're literally sitting on your pelvis. Please ignore if this is too personal. You are a genuinely lovely, open person, and I'm sure when kids ask questions, you're - excuse the pun - completely straight with them.
underrated comment
Same
I wondered the same after the algorithm fed me this video and I thought "what a great dude". And then I watched a couple of other vids and the swimming video answered the torso length/ hip questions.
Yes! I thought it was lower torso too, so that is why I was curious. Thank you so much for clearing the question up for us. Now, I too am wondering if they left upper bone in your legs. You are very brave and we are definitely not meaning any disrespect. I have a lot of respect for you! Thanks again.
Love your sense of humor and nice smile ❤😊
I often wondered about this ty for education..looks like cut off from waist so people get confused...your witty response saves the question 😊
As a person with a disability, I appreciate that you spoke about how to properly ask about a person's disability and that although it is true that we are mostly all willing to answer questions there is a time and place. I also always enjoy your videos! You are awesome!! 😄
As a trans man I had people randomly (and with obvious intent) ask me if I pee standing up.
I usually answer that (sorry, English... hope it still makes sense) "No, I grab on to a hook that I've installed above the toilet, with one hand, open my pants with the other and am reeeally careful to hit the target, before I lose my grip."
And I'm pretty good at saying that in an almost convincing way.
In other words: Yes! Time, place and circumstances are absolutely key for certain questions.
Yeah, I wouldn’t randomly ask a question like that. That said, I dunno if this makes any sense but it is interesting to learn more about the solutions people come up with for the logistics problems a condition can present. People are very innovative. And in some cases those solutions may well have greater benefits and use cases than originally envisioned. (For a simple and far more appropriate thing to discuss, curb cuts benefit wheelchair users but also turn out to be useful for other reasons too.)
It’s disgusting that people would think it’s appropriate to approach someone and ask them personal questions in public 🙄. I’m so sorry he had to go threw that
through*
People do this to everyone, we have to ignore the jerks.
@@mmc1086 i thought u were talking about the grammar correction LMAO
@@sofiamorton1807 same 😂😂😂😂
Some people are just oblivious and curious. I don't think that most of the time they mean I'll will towards a person.
HIS HUMOR AND SARCASM I LIVE FOR IT
I love the idea of saying, “just ask” so that people can learn, while still having boundaries. This is hard to do graciously, but you do it with aplomb!
Kudos for using the word "aplomb"! That word isn't used enough. Nice to see it out and about! 😊
@@AlishaArlene I learned a new word today :D
@@JackettiBallognese me too!
Thank you for so graciously explaining how questions from the abled people sometimes appear. I have an invisible disability and often get intrusive questions about my service dog. I don't handle them as well as you do. Thanks for your example.
it's honestly so hard to. and i love that he can be this gracious, however i hope the commenters also know (they don't) that we aren't on this earth as a lesson, aaand our proximity to the virtue of patience is often really limited bc of how many ppl prioritize their curiosity about our personal lives over basic privacy (i'm not out here asking if YOU really need your pet or what happened to you, beth, so please leave me be). sigh. i hope you're having a good day when you see this.
and for anyone wondering... there are def ppl like spencer who have answered sooooooooo many questions like this, for a wide range of disabilities, so it's worth googling before you walk up to that person and ask them while they're just out doing their thing
This guy has the patience of a saint to be honest.
What’s he gonna do
Like beat the persons ass or what? I feel like the most damage this man can do would be through biting and he’d have to get pretty close to do that.
@@goatpepperherbaltea7895 he has arms and a few decades worth of daily upper body exercises just from the necessity to move so I feel like you're underestimating him.
I can't imagine asking a stranger a personal question like that. Thanks for sharing.
I’m not sure why your channel was recommended but I’m glad it was. Love and respect from a person with an invisible disability.
Well said💕
I hear ya💗
@@thenightporter people say stupid things even though they know
I want to like this comment but I don't want to be like # 666
Same
“The tip’s not as big as i thought it would be”
**side eyes the camera**
I LOST IT-
You lost what?
I read this as he said it lmao
I side eyed him and he side eyed the camera and I had to subscribe lol
I READ THAT AS HE SAID IT LMFAOOO
Same lmao and I was scrolling past this comment right as he said it and so I'm still cackling
This was such a kind video to address what can be a rather rude or disrespectful question to be asked. You seem like a very gracious man.
I admire your willingness to touch on these topics. I have zero patience for invasive questions so I tend to respond with something along the lines of "I'll forgive you for asking if you forgive me for not answering". Gives the person on the other end a little bit of a reality check that disabled people aren't some spectacle that you're entitled to know all the details about
"Where are my legs."
That makes it sound like people think you like pop them off and store them in a cupboard somewhere
Well some people pop off their legs before bed so there's that
“WHERE ARE THE LEGS, SPENCER? I KNOW YOU HAVE THEM!”
Some people do
XD
Him: "Oh the tip's not as big as I thought it would be"
Me: 😏
Him: 😏
This part make me scream and then click the like button instantly
LMAOOO
@@themintgreenspaceship5787 why?
Lmfao😂😂😂🤣
😏
I don’t know how I ended up here with a man explaining how he poops, using fruit and a Swifter sweeper handle, but I’m here for it.
Lol me too
When he showed the “diagram” I almost fell off my chair….it was so forthcoming and honest! And he’s absolutely correct in some people being so rude in their approach….and he has the right to respond any way he chooses. Good for him!
He is very clever about setting boundaries, I think he's a great educator.
I’ve grown up with disabled people. You don’t owe anyone an explanation. It’s none of their business. Much respect to you for answering the questions. Also I was taught not to judge or treat disabled people as different. I also was a carer so came across many disabled people. Some disabilities are visible, others not. I don’t know how this video came up but much respect to you.
His sense of humor is hilarious. “Legally it’s just not possible for me to show you.” 💀💀💀
Funny but also true
I wish more people were this open about difference. Easier said than done. I really appreciate you giving opportunity to educate everybody.
This man deserves respect like everyone else. Smart, handsome, and a great sense of humor!!
Stop patronizing him, you beach. Give him respect.
Or it's a genuine compliment on their part you absolute spud of a human being.
And an amazing attitude! I love him!
He's very handsome
🥺😊😃🤓
"I can sit on the toilet seat, and I dont fall in." What is your secret? I have legs and I still fall in....
Lol especially when the toilet seat is up 😆😆
@@saltycat662 YES
@@CeliaNightstep 👀
This is concerning
Lol, true
“Gone two, the sequel” I’m dying💀
Every time I watch this young man, I fall a little more in love with him. But alas, I am an old fat broad living it up in rural Maine. 😊 The intelligence, sensitivity, humor, and charm - I envy those few who are blessed to be called his friend.
Same Bonny. He seems like a lovely person! I came here out of curiosity and I found a great human!
He’s using Cis as if it’s actual terminology
@@Jesei1211it is though. it's an ancient latin prefix meaning "on the same side"
“The tip’s not as big as I thought it would be”
*looks into the camera*
I love you 😩
SAME! I think I'm in love☺
Gone 2: The Sequel - This video is a treasure trove I swear
😂
I don't know why I was recommended this, but the only reason I would be confused is that your torso doesn't look long enough to include the pelvis.
same-
Right? Like where?
i kind of would like if he just showed us where his belly button is so that i can make sense of the proportions. like fully clothed just put a finger where the belly button is
I think it's because he's "laying" on his belly area, but because he's got a shirt covering him, it looks like he's just balancing on his rib cage area.
Due to his condition (en.wikipedia.org/wiki/Caudal_regression_syndrome), his spine didn’t develop properly. It’s possible that he’s missing some vertebrae and ribs, which would shorten his torso.
This man is such a ray of sunshine! His humor is on point! I’m glad I watched this video not just for the education on the how/why of his body and bathroom logistics, but also to experience his jovial nature!
I'ma be real - I think this pretty much answered any and all questions I may have had in the past about this kind of disability. Cheers mate.
I smiled through the whole demonstration. What a great guy, with such a great personality 👏
Yes I agree a wonderful cheerful man,but anyone who asks such personal questions of anyone deserves the answer " go stick your head in a bucket of boiling water. Yep that'd the proper reply for a buffoon
My thoughts exactly - what an awesome human being!
he seems like such a kind & genuine person and deserves all the happiness in the world. 🤍
I agree
Agree!! 🖤🤎❤️🧡💛💚💙💜
Isaiah 35:5,6
“oh the tips not as big as i thought it would be” *biggest side glance ever*
Lol he was so smooth
@@carolsanz2625 lmao true
It was at this moment I hit the like button and pressed rewind to laugh again
@@Meka-Tee off topic but ur so pretty!!
@@subhub637 thank you
This is the first time I've seen your channel, but this video has earned my utmost respect for you, for all that you have to deal with yet maintaining a very positive and uplifting attitude. Now I'm not gonna pretend that if I ever saw you IRL, I'd never wonder such questions, but I would never, ever just outright ask. As you say, it's private information and should be respected as such. The only way I would've even consider asking you is if I knew you personally for quite some time.
While I know this is a very intrusive topic, thank you for sharing it! I don't believe the curiosity involved is meant to be rude, people just naturally want to understand when something is different. Again THANK YOU for not only understanding and sharing but doing so with great humor!
you just admitted that you are one of those kinds of people, do you approach black people and ask them which basketball team they play for? or ask big people how much they weigh?
@@tonysteel9502 Not what they meant. They're talking about when people have physical impairments or disabilities that make them do things differently.
@@tonysteel9502 I just don't watch basketball or hang out in those neighborhoods. There is enough evil going on in there, I don't want to be accused by the cops for being in the wrong neighborhood, I've watched enough episodes of COPS they do it all the time.
I've had some good friends who have been black, do I want to live the lifestyle they were brought up in, no. I also have first hand knowledge they will cry racist or otherwise for a well qualified statement.. being, "it smells like someone passed through here recently has had a severe burn, I smell burnt flesh and personally experienced being burnt" for God sakes, when called upstairs, I asked permission to take off my shirt, I showed the scars, and said you can tell the person who complained to listen to the two sentences completely and go about their own business and not stir fabricated complaints, because of their ineptitude. There was only racism from their mouth. This is why people in the military burn put before retirement kicking in, my cousin left as a officer 1.5 years early due to all the BS going on, he couldn't handle it. I'm about 10 years older than him, I got out in the 80s, in our small office of say a dozen people 2 officers and two enlisted did not continue their military careers, the officers retired, the enlisted went home I suppose.
"The tip's not as big as I thought it would be"
*yeah we were both thinking it*
That part, along with the face he made, just took me out 😂
...that's what she said!!!🤣
So it wasn't just me! 😂😂😂😂
Buhahaha
@@sheenamo I was expecting him to say it, but then he both did and didn't. He said it with his FACE!
“Mom don’t listen to this part”
I love him 😂
I respect how much grace you give people. We are lucky to be able to learn from you. I hope your kind and patient way of explaining things here teaches people it is okay to be curious about others that are different from them, but not okay to expect or feel entitled to personal information about them.
I think the reason why people ask is because it looks like you’re smaller than that, it almost looks like your missing everything from the belly button down and people try to use their imagination
Yes I think this is why people are confused. When you set yourself down it looks like you are sitting flat...not like you are sitting on a butt. I assume that's why people struggle so much .....
I saw the thumbnail while just browsing RUclips and definitely was confused about where things cut off.
Yeah, his body part seems like he doesn't have anything below the bellybutton
Bellybutton ? I thought he was sitting on his ribcage! “Is everything below his diaphragm _gone_ ?!?”
Yes, this is obviously the reason. There are others that have amputated as much as he has (there's this motivational speaker for example that I can't remember the name of) , but they have a much longer torso so it looks less "confusing". It looks like this guy was amputated below the ribcage, but I assume that is because of his disorder he mentioned. He said his legs weren't working even as a small child, so I guess his lower body couldn't grow properly. While his arms and everything else grew into an adult. This then gives the image of him having been amputated far higher up than he actually is