I got diagnosed with Endometriosis around three and a half weeks ago and I’m quite hesitant about this medication… I just got it approved recently and sent over to my pharmacy but I wanted to hear from people who have already had it 💕 Hope everything is going well for you to this day
Yes!!! My Ori is the most AMAZING thing EVER!!! I’m starting mine tomorrow. Thank you for making this video! Everyone is so different and we just have to try different things and see what works! Keep fighting ladies!! It’s not over till it over!!
Hey Greer, it’s me Charity ... I have been on Orilissa for going on 4 months now. I had an epiphany yesterday, and I felt my spirit telling me that it’s time to get off of it. I haven’t been feeling my best... partially because I haven’t been eating or sleeping as much as I should. I decided to order a supplement called EndoVan... I’m not sure if you’ve heard of it Greer, but I REALLY highly recommend you look it up at least... also, I started doing yoga and discovered I am really tight in my pelvis - certain moves I almost fell over because my hips were so tight. Yoga is one of those practices that can reveal certain things about our bodies that we need to improve. So, I am going to start doing more hip opening exercises, as well as doing inversions using my new Yoga Trapeze that I purchased from Yoga Body. I have been experiencing a level of stress/anxiety amid the pandemic ... and I feel it in my chest and shoulders. I do believe that the Orilissa somewhat exacerbates that’s stress/anxiety... with that being said I am going to take myself off of it. I’m also going to order an at home hemoglobin test, just to be safe. Also, I ordered a juicer, and I plan on eating way more grains/nuts fruits and veggies. My mother made an immune boosting elixir, it includes a lot of ingredients like garlic, lemon, onion, grapefruit, ZINC, Vitamin C (main ingredients) shockingly, it doesn’t taste as daunting as it sounds. Lol Either way.. I just wanted to share this with you Greer just to update you on my journey. 🔆🔅 I’m going to go comment on your other video about the Orilissa to talk more about that there. Xo
Thank you for posting this. I’ve been taking Orilissa for 18days now. It took about 6 days for my pain to subside. Before it did I was taking about 2-3 ibuprofen a day along with Orilissa. I’d say it has been helping me so far, but I have been experiencing anxiety, depression and difficulty sleeping. My pain was so bad that I’m just tolerating the side effects. Beats getting a hysterectomy.
JG808 hello! I’m glad to hear that the Orilissa is helping you. I have been dealing with anxiety and trouble sleeping more in my second month of taking it. Going from sleeping constantly to deal with pain to not being able to sleep is wild. I hope that you continue to feel better. I know that acupunture is helping me a lot too. Have you tried that?
Greer's Life Hello! I actually had an appointment for acupuncture, but decided to cancel it because by the time my appointment was nearing my pain was gone. So far, no pain as I continue with Orilissa. I currently have moods swings and hot flashes, but it’s minor things. Not sure what will happen in a year or two when I can’t take this medication anymore. I’m still grateful as I am able to get back to working regularly and able to get back to my normal routine. Hope all is well for you.
Greer's Life I just had lap surgery done on September 7th so they cleaned out all the Endometriosis. My dr put me on Orilissa to avoid the endo from coming back as fast or not at all. I haven’t had any pain as of yet .
I’m so glad you mentioned constipation because I thought it was just me. I’m on my 3rd week of it and my emotions are all over the place, body is achy, it’s no fun. I have stage 4 endometriosis so I’m glad I found your review.
Curious how your Orilissa journey is going.... I'm almost 4 weeks in and having all kind of symptoms. But i just had a follow up today and 1 cyst has burst and the other is shrinking... doing what the dr hoped for but I dont like how ive been feeling the past couple weeks!
1. Ty for the review, and 2. Its so damn sickening reading about all the poor souls who go thru hell with reproductive problems and all the evil insurance companies can do is throw more pills at us that cause even more problems. Just disgusting....
I got my Laparoscopy done in August, and once diagnosed with Endometriosis my gynecologist put me on the 2 pills per day regimen of 200mg for the Orilissa. I get my box filled on Monday so I've been researching all I can about the symptoms and women's personal experiences with the drug itself. At this point the pain and fainting spells have taken the quality of my life away. So I hope this time around it's a good change with this medicine. Thank you so much Greer for being so honest and forthcoming. It helped me so much and I wish you the best of luck on your health journey.
I started this med 9 days ago, after a hysterectomy a year ago. I have severe endometriosis and the pill, or mini pill causes mental side effects for me. My dr suggested I try Orilissa, they got it pre approved before I went to the pharmacy. I picked it up and let it sit on my kitchen table for 2 weeks. I finally decided to bite the bullet and start taking it, I had to do something or I wasn’t going to be able to continue working! So far I haven’t noticed any weirdness, but it’s only day 9. Thank you for posting this.
Your story is exactly like mine! I just started taking mine and I am so scared of the side effects. How has your journey been? What were your main side effects?
I started orlissa yesterday. After the first dose I was curled up into a ball on the floor. The joint pain was all over and excruciating. I also felt like I wasn’t in my own body. I’m on day 2 and I still have the joint pain, but my stabbing endo pain is all gone. I can’t believe how fast this medication works. I’m having surgery in 2 months for severe deep endo.
I just started taking Orlissa after my second laproscopy and I hate it. The medicine made me bleed and sleep A LOT. My appetite varies, I can be very hungry one day and not so much the next. I actually feel worse and want to get off this right away.
I take the 200mg 2x a day. I’m currently 4 days in and I honestly already feel better. I’m supposed to be ovulating today and only minor pain and bloating. So much better than before.
definitely can! My endometriosis has grown around my bowels and I was originally diagnostics with IBS. When I am on my cycle there is so much blood in poop (sorry TMI).
Thanks for the video. I just had this medication prescribed. My doctor informed me of all the symptoms you mentioned and more. I had a laparoscopy surgery in 2005 when I was 23 years old for endometriosis. I haven't had surgery since, so they wanted me to try this medication before I have surgery again.
The bloating and hot flashes are definitely misery. I was told the side effects should subside. I am very medically sensitive, and I'm starting to have twinges of insomnia, which is ridiculous with my level of fatigue. Praying for answers.
My Endometriosis Journey I am so glad to hear that this video helped you ❤️. I have surgery coming up this Friday and hope to upload some new content about it.
I will never ever take Orlissa or lupron! It’s so bad and the symptoms are worse. Get an excision surgery and find a specialist an actual specialist in endometriosis.
🙌 Following ✔ I was just told today Endo is what I have. I'm going to start the 150mg next week too. I'm so glad I found you!! EVERYTHING you said matches me exactly. Hope you're feeling better! *** Thank You for being so vulnerable & putting this out ***
Thank you for making this!! I just started today :) I just turned 18. I've already had a laparoscopy and tried different doses of the pill, patch, and ring. My pain subsided for about six months after that but came back worse than before. Hoping this helps.
I'm in the process of healing from my ovarian cyst removal and find out today that I have endometriosis! Which is insane! Why? I don't any of the symptoms... My doctor recommended Orilissa, I hope my medical will cover it since apparently, it can cost me $1,000!
Miss Ezdrkchocolate I’m about to take the same dose, I’m kind of nervous, my doctor told me it’s similar to lupron, and I already tried it, and I didn’t have much side effects, so I hope everything is going well with this new medication for me
I'm late but I started taking it 3 months ago. I had abdominal pain, headaches and hot flashes. So far it's ok but the joint pain. I may have to stop taking it later
I just find your video, and omg I'm going through the exact same process as you, I been having excruciating pain since im 15 now im 30, and after almost 15 years later and 6 doctors someone is listening, I havent got any laparoscopy but my doctor told me he es almos 100% sure I have endometriosis, I start with progesterone but I bleed for 1 1/2 moth straight, pain every day and emotions all over the place, my doctor told me to start with orilisa and IUD to avoid the adverse effect of orilisa, it hasn't been approved by my insurance... anyway hopefully it will help I just want something that makes me better not worst.
Stephanie matheu I am so sorry to hear that you have had so much pain! Endo is the worst! If you insurance can’t cover the medicine you can apply for the “Ori for me” to see if you can’t get it for a $5 copay. I get my lap in December and I’m trying everything under the sun to manage my endo until then. I really hope that you find some relief in trying new things ❤️.
Thank you for the video I so appreciate it!!I just got prescribed the same drug as well after being so resistant to taking any form of pharmaceutical drugs. I have a question for you if it’s not too personal what diet do you subscribe to? I’m a vegan and started getting constipated as well but want to know if it’s from the drugs or my diet? Thank you for your time & energy!🙏🏽
Xx Nothing can compare the joy in my heart for being free from this terrible disease fibroids, for 2years I suffer from it not until I saw a review on how Dromocure on RUclips Cured someone from Fibroids…I contact him and bought his Herbal.☘️ medicine lucky for me I was cured and free from this fibroids pain with the help of his herbal medicine.... Email ( dromo596@gmail. com ) WhatsApp. +2349033505260 . Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, low sperm& weak erection , Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️_*∆xx...
Kadine Christie Curious how the drug is working for you? This is my second day of taking it & after all the research I’ve done on it I’m still a little nervous. Any input would be so appreciated!
Amy Harrison . Hi there. I took it for three weeks and had to STOP!!! The pain was still constant and the hot flashes were blowing my mind. It might be different for you, but when I was standing outside at 4am in my undies-in a 45 degree weather, I knew I had to stop it. Let me know how you get along.
Kadine Christie Oh my that sounds awful! There’s just no way this stuff can be ok for you to take! I’ve only taken 3 & the nausea is so intense! I MIGHT give it the rest of the week but if something doesn’t change that’s it for me. It’s crazy that there isn’t more options for this condition that doesn’t have such terrible side effects 😑 Thank you so much for telling me your experience with it!
I know that this video is a year ago but I am soon to start Orilissa and nervous due to the side effects but I really need the medication due to what’s going on in the world there is no surgery dates
I’ve been on it for 3 months now. For me the side effects include the hot flashes and night sweats. I started taking Evening Primrose for the hot flashes and night sweats and it has helped immensely. I’m also noticing recently an increase in my anxiety and a loss of appetite. I think I’m going to talk to my doctor about that. However, Orilissa has significantly helped my endo. I didn’t have a lot of pain, just constant bleeding. April and May I really didn’t have a period. I had a period this month (June) and it only lasted for 3 days!! I’ve never had a 3 day period and it was extremely light. I would like to stick with it, but I’m losing a lot of weight. I know your comment was written a month ago, how is it going now?
Did your side effects starr right away? I'm 3.5 weeks in and had headaches and hot flashes but. Ow I'm having lots of abdonimal pain and constipation. Ughhhhhh
@@tourtney17 yes they started 3days later. On top of that I had heavy bleeding with alot of blood clots. I stopped taking the medication . Actually I did laparoscopy surgery last week and I feel 100% better.
@@ajsm6265 hi im on the pill and having heavy period but i dont know if its this medication or the endo? this has never happen to me heavy period with blood clots is this suppose to be a side effect?
I am about to just get a hysto I liked lupron much better, never thought I would say that But after 1 week on orilissa I have had more pain and more aggravation my ankle developed a weird cyst that's hard as a rock and feels like bone is very pointy I hurt like hell started spotting and then i realize I was lied to LUPRON AND ORILISSA ARE NOT THE SAME AT all I have already gained weight and cannot handle the bloating I was told to give it time...... no thanks I have given this crap plenty of time Laproscopy. All these years the hurt and you would think that since lupron is an instant thing, it gave me my life back for 6 short months. My mind was back to normal. With orilisa I feel like I am losing my mind. I have given too much time already.
Day 2. I feel morning sick and like the pill is stuck in my throat. Spit and drool like crazy. Bloated. If i swallow this drool im gonna puke. But i said id do 90 days. Cuz next its gonna be narcotics.or hysterectomy
I'm not sure if things changed, but Ori for me doesn't actually cover the medication. It just takes your deductible down to $5, but only if your insurance covers it. I chatted with them on the phone when I was trying to get it. My insurance finally covered it after my doctor appealed it. Started taking mine yesterday. Have you noticed a difference now that you've been on it a while?
I was sexually abused as a teenager and I have a lot of scar tissue in my pelvic area. My doctor prescribed this to see if it helps with pain. Im scared to take it because I still have mental trauma from the abuse. I already tried to shoot myself once. I dont want to be in that dark place again. Thank you for the video. Im still scared tho.
The scar tissue is most likely from endometriosis and not from being rape. I was raped too and thought the same thing before. If u think about it porn stars have sex with multiple parents in a day and dont have scar tissue issues. Now that I am 37 and have matured sexually I have come to this realization.
I'm sorry for your physical sand emotional pain. I understand. What helped me is knowing that Jesus LOVES you!!! He is the only one who can help you overcome your trauma. I love you. Be well, sis.
@@Renofirefly30 No, but sexual intercourse does not produce scar tissue. Hormonal imbalances do. I just bought a supplement at my local vitamin shoppe by the name of Serraptase. Hopefully it will help with my endo tissue and ovary cyst.
I had surgery and it didn't help...now I can't have kids.They are starting me on this new medication but I am worried because I have tried everything and nothing has helped so they just put me on pain medication.
I'm so afraid to start. I really appreciate this anecdote. It means a lot to hear others experiences.
I got diagnosed with Endometriosis around three and a half weeks ago and I’m quite hesitant about this medication… I just got it approved recently and sent over to my pharmacy but I wanted to hear from people who have already had it 💕 Hope everything is going well for you to this day
Yes!!! My Ori is the most AMAZING thing EVER!!! I’m starting mine tomorrow. Thank you for making this video! Everyone is so different and we just have to try different things and see what works! Keep fighting ladies!! It’s not over till it over!!
Amen. God has the final say!!
Hey Greer, it’s me Charity ... I have been on Orilissa for going on 4 months now. I had an epiphany yesterday, and I felt my spirit telling me that it’s time to get off of it. I haven’t been feeling my best... partially because I haven’t been eating or sleeping as much as I should. I decided to order a supplement called EndoVan... I’m not sure if you’ve heard of it Greer, but I REALLY highly recommend you look it up at least... also, I started doing yoga and discovered I am really tight in my pelvis - certain moves I almost fell over because my hips were so tight. Yoga is one of those practices that can reveal certain things about our bodies that we need to improve. So, I am going to start doing more hip opening exercises, as well as doing inversions using my new Yoga Trapeze that I purchased from Yoga Body. I have been experiencing a level of stress/anxiety amid the pandemic ... and I feel it in my chest and shoulders. I do believe that the Orilissa somewhat exacerbates that’s stress/anxiety... with that being said I am going to take myself off of it. I’m also going to order an at home hemoglobin test, just to be safe. Also, I ordered a juicer, and I plan on eating way more grains/nuts fruits and veggies. My mother made an immune boosting elixir, it includes a lot of ingredients like garlic, lemon, onion, grapefruit, ZINC, Vitamin C (main ingredients) shockingly, it doesn’t taste as daunting as it sounds. Lol Either way.. I just wanted to share this with you Greer just to update you on my journey. 🔆🔅 I’m going to go comment on your other video about the Orilissa to talk more about that there. Xo
Thank you for posting this. I’ve been taking Orilissa for 18days now. It took about 6 days for my pain to subside. Before it did I was taking about 2-3 ibuprofen a day along with Orilissa. I’d say it has been helping me so far, but I have been experiencing anxiety, depression and difficulty sleeping. My pain was so bad that I’m just tolerating the side effects. Beats getting a hysterectomy.
JG808 hello! I’m glad to hear that the Orilissa is helping you. I have been dealing with anxiety and trouble sleeping more in my second month of taking it. Going from sleeping constantly to deal with pain to not being able to sleep is wild. I hope that you continue to feel better. I know that acupunture is helping me a lot too. Have you tried that?
Greer's Life Hello! I actually had an appointment for acupuncture, but decided to cancel it because by the time my appointment was nearing my pain was gone. So far, no pain as I continue with Orilissa. I currently have moods swings and hot flashes, but it’s minor things. Not sure what will happen in a year or two when I can’t take this medication anymore. I’m still grateful as I am able to get back to working regularly and able to get back to my normal routine. Hope all is well for you.
I have stage 4 Endometriosis. I’m taking Orilissa and so far I haven’t had any symptoms.
Terry Moore I am so glad to hear that you don’t have symptoms! Is it helping your pain?
Greer's Life I just had lap surgery done on September 7th so they cleaned out all the Endometriosis. My dr put me on Orilissa to avoid the endo from coming back as fast or not at all. I haven’t had any pain as of yet .
Terry Moore Wow that’s awesome that it works so well for you. I have my lap in December.
I’m so glad you mentioned constipation because I thought it was just me. I’m on my 3rd week of it and my emotions are all over the place, body is achy, it’s no fun. I have stage 4 endometriosis so I’m glad I found your review.
Curious how your Orilissa journey is going.... I'm almost 4 weeks in and having all kind of symptoms. But i just had a follow up today and 1 cyst has burst and the other is shrinking... doing what the dr hoped for but I dont like how ive been feeling the past couple weeks!
I never thought I would say this
But
I like lupron very very very very very much better
1. Ty for the review, and 2. Its so damn sickening reading about all the poor souls who go thru hell with reproductive problems and all the evil insurance companies can do is throw more pills at us that cause even more problems. Just disgusting....
I got my Laparoscopy done in August, and once diagnosed with Endometriosis my gynecologist put me on the 2 pills per day regimen of 200mg for the Orilissa. I get my box filled on Monday so I've been researching all I can about the symptoms and women's personal experiences with the drug itself. At this point the pain and fainting spells have taken the quality of my life away. So I hope this time around it's a good change with this medicine. Thank you so much Greer for being so honest and forthcoming. It helped me so much and I wish you the best of luck on your health journey.
I started this med 9 days ago, after a hysterectomy a year ago. I have severe endometriosis and the pill, or mini pill causes mental side effects for me. My dr suggested I try Orilissa, they got it pre approved before I went to the pharmacy. I picked it up and let it sit on my kitchen table for 2 weeks. I finally decided to bite the bullet and start taking it, I had to do something or I wasn’t going to be able to continue working! So far I haven’t noticed any weirdness, but it’s only day 9. Thank you for posting this.
Your story is exactly like mine! I just started taking mine and I am so scared of the side effects. How has your journey been? What were your main side effects?
Orilissa was a nightmare for me. My IUD has been a lot better. But I hope it works for you
I started orlissa yesterday. After the first dose I was curled up into a ball on the floor. The joint pain was all over and excruciating. I also felt like I wasn’t in my own body. I’m on day 2 and I still have the joint pain, but my stabbing endo pain is all gone. I can’t believe how fast this medication works. I’m having surgery in 2 months for severe deep endo.
I just started taking Orlissa after my second laproscopy and I hate it. The medicine made me bleed and sleep A LOT. My appetite varies, I can be very hungry one day and not so much the next. I actually feel worse and want to get off this right away.
I take the 200mg 2x a day. I’m currently 4 days in and I honestly already feel better. I’m supposed to be ovulating today and only minor pain and bloating. So much better than before.
U give me much needed help
Thank u
Girl! Thank you!
could your constipation be due to the endometriosis? that's typically a symptom depending on the spread of the endometrial tissue
Tania Valladares dame here, usually before period starts
Yes!
It can also cause irritable bowel syndrome.
definitely can! My endometriosis has grown around my bowels and I was originally diagnostics with IBS. When I am on my cycle there is so much blood in poop (sorry TMI).
Thanks for the video. I just had this medication prescribed. My doctor informed me of all the symptoms you mentioned and more. I had a laparoscopy surgery in 2005 when I was 23 years old for endometriosis. I haven't had surgery since, so they wanted me to try this medication before I have surgery again.
I been on orlissa 4 mnths now the hot flashes are terrible and my pain has not let up
The bloating and hot flashes are definitely misery. I was told the side effects should subside. I am very medically sensitive, and I'm starting to have twinges of insomnia, which is ridiculous with my level of fatigue. Praying for answers.
I just got my orilisa today so u helped me alot...I had 2 surgery I recently just had 1 on April 16 this year and it came back...I hope this works
My Endometriosis Journey I am so glad to hear that this video helped you ❤️. I have surgery coming up this Friday and hope to upload some new content about it.
I will never ever take Orlissa or lupron! It’s so bad and the symptoms are worse. Get an excision surgery and find a specialist an actual specialist in endometriosis.
So much regrets right now 😢 I should have gotten this prescription before a hysterectomy.
🙌 Following ✔
I was just told today Endo is what I have. I'm going to start the 150mg next week too.
I'm so glad I found you!! EVERYTHING you said matches me exactly.
Hope you're feeling better!
*** Thank You for being so vulnerable & putting this out ***
Thank you for making this!! I just started today :) I just turned 18. I've already had a laparoscopy and tried different doses of the pill, patch, and ring. My pain subsided for about six months after that but came back worse than before. Hoping this helps.
Great video!! Thanks for sharing your experiences
I'm in the process of healing from my ovarian cyst removal and find out today that I have endometriosis! Which is insane! Why? I don't any of the symptoms... My doctor recommended Orilissa, I hope my medical will cover it since apparently, it can cost me $1,000!
They have a savings card according to their website.
Sam G yeah my doctor given me the card lol I decided to go on the pill beside they haven’t worked out all the bugs of the Orilissa 🙃
Thank you for this video I’m on the 200mg and had everything you were talking about.
Miss Ezdrkchocolate I’m about to take the same dose, I’m kind of nervous, my doctor told me it’s similar to lupron, and I already tried it, and I didn’t have much side effects, so I hope everything is going well with this new medication for me
I'm late but I started taking it 3 months ago. I had abdominal pain, headaches and hot flashes. So far it's ok but the joint pain. I may have to stop taking it later
I just find your video, and omg I'm going through the exact same process as you, I been having excruciating pain since im 15 now im 30, and after almost 15 years later and 6 doctors someone is listening, I havent got any laparoscopy but my doctor told me he es almos 100% sure I have endometriosis, I start with progesterone but I bleed for 1 1/2 moth straight, pain every day and emotions all over the place, my doctor told me to start with orilisa and IUD to avoid the adverse effect of orilisa, it hasn't been approved by my insurance... anyway hopefully it will help I just want something that makes me better not worst.
Stephanie matheu I am so sorry to hear that you have had so much pain! Endo is the worst! If you insurance can’t cover the medicine you can apply for the “Ori for me” to see if you can’t get it for a $5 copay.
I get my lap in December and I’m trying everything under the sun to manage my endo until then. I really hope that you find some relief in trying new things ❤️.
Have you been able to have this? My GYN suggested same thing. Orlissa with IUD or other “add back” therapy to counteract the side effects.
Stephanie matheu that’s we all want girl, I’m tired of this pain 😔
Thank you for the video I so appreciate it!!I just got prescribed the same drug as well after being so resistant to taking any form of pharmaceutical drugs. I have a question for you if it’s not too personal what diet do you subscribe to? I’m a vegan and started getting constipated as well but want to know if it’s from the drugs or my diet? Thank you for your time & energy!🙏🏽
This medication lowers estrogen. That's why u can't sleep and u have hot flashes
Thank you for this. I've been wondering about Orillisa!
We still don't have it in Europe. My pain is like more than 15 days per month, and it makes me feel awful...
Xx Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on RUclips Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, low sperm& weak erection , Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️_*∆xx...
Wishing you the best of luck. I've had several surgeries and now I'm starting orlissa. Thanks for sharing your experience...
Kadine Christie Curious how the drug is working for you? This is my second day of taking it & after all the research I’ve done on it I’m still a little nervous. Any input would be so appreciated!
Amy Harrison . Hi there. I took it for three weeks and had to STOP!!! The pain was still constant and the hot flashes were blowing my mind. It might be different for you, but when I was standing outside at 4am in my undies-in a 45 degree weather, I knew I had to stop it. Let me know how you get along.
Kadine Christie Oh my that sounds awful! There’s just no way this stuff can be ok for you to take! I’ve only taken 3 & the nausea is so intense! I MIGHT give it the rest of the week but if something doesn’t change that’s it for me. It’s crazy that there isn’t more options for this condition that doesn’t have such terrible side effects 😑 Thank you so much for telling me your experience with it!
I know that this video is a year ago but I am soon to start Orilissa and nervous due to the side effects but I really need the medication due to what’s going on in the world there is no surgery dates
I’ve been on it for 3 months now. For me the side effects include the hot flashes and night sweats. I started taking Evening Primrose for the hot flashes and night sweats and it has helped immensely. I’m also noticing recently an increase in my anxiety and a loss of appetite. I think I’m going to talk to my doctor about that. However, Orilissa has significantly helped my endo. I didn’t have a lot of pain, just constant bleeding. April and May I really didn’t have a period. I had a period this month (June) and it only lasted for 3 days!! I’ve never had a 3 day period and it was extremely light. I would like to stick with it, but I’m losing a lot of weight. I know your comment was written a month ago, how is it going now?
Do you first take it the Sunday after you get your period?
I just started the pill today (February, 3, 2020)
How are you doing? It's getting prescribed to me soon, and I'm a little scared.
*following. Any updates? 3.5 weeks in... side effects all of the map!
I am now taking It and starting to experience hot flashes. I think I’m going to get off of It. I did depot Lupron and It did the same side effects.
I think ori will work for me as well
I take 200mg twice a day. Man the side affects are horrible
Did your side effects starr right away? I'm 3.5 weeks in and had headaches and hot flashes but. Ow I'm having lots of abdonimal pain and constipation. Ughhhhhh
@@tourtney17 yes they started 3days later. On top of that I had heavy bleeding with alot of blood clots. I stopped taking the medication . Actually I did laparoscopy surgery last week and I feel 100% better.
@@ajsm6265 hi im on the pill and having heavy period but i dont know if its this medication or the endo? this has never happen to me heavy period with blood clots is this suppose to be a side effect?
@@ajsm6265 my side effects started on day one. I’m overly sensitive to medicine I’ve noticed.
I’ve just started the 200mg 2x a day and I’m kinda scared now...
Are you still taking Orilissa?
I just started a week ago and im nerveous now i been on my period and bleeding so much .
I am about to just get a hysto
I liked lupron much better, never thought I would say that
But after 1 week on orilissa I have had more pain and more aggravation my ankle developed a weird cyst that's hard as a rock and feels like bone is very pointy
I hurt like hell started spotting and then i realize I was lied to
LUPRON AND ORILISSA ARE NOT THE SAME AT all
I have already gained weight and cannot handle the bloating
I was told to give it time...... no thanks I have given this crap plenty of time
Laproscopy. All these years the hurt and you would think that since lupron is an instant thing, it gave me my life back for 6 short months. My mind was back to normal. With orilisa I feel like I am losing my mind. I have given too much time already.
Day 2. I feel morning sick and like the pill is stuck in my throat. Spit and drool like crazy. Bloated. If i swallow this drool im gonna puke.
But i said id do 90 days. Cuz next its gonna be narcotics.or hysterectomy
So far I like lupron much better
It was instant and I have worse cramps with this one
I don't hear any good reviews on that new drug. It was used for cancer patients so I'm not sure if I want to try it.
Mshelle G So has Lupron. Lupron did wonders for my endo but the side effects like my joint pain was crazy!
So I did chemotherapy, along with a drug that had Lupron in it. They said if you had joint pain, take Claritin. No joke. It works.
Claritin for the joint pain for Lupron or Orilissa? I'm on Orilissa and having all kinds of stomach and joint pain 3.5 weeks in
@@tourtney17 wow for real
I'm not sure if things changed, but Ori for me doesn't actually cover the medication. It just takes your deductible down to $5, but only if your insurance covers it. I chatted with them on the phone when I was trying to get it. My insurance finally covered it after my doctor appealed it. Started taking mine yesterday. Have you noticed a difference now that you've been on it a while?
I was sexually abused as a teenager and I have a lot of scar tissue in my pelvic area. My doctor prescribed this to see if it helps with pain. Im scared to take it because I still have mental trauma from the abuse. I already tried to shoot myself once. I dont want to be in that dark place again. Thank you for the video. Im still scared tho.
The scar tissue is most likely from endometriosis and not from being rape. I was raped too and thought the same thing before. If u think about it porn stars have sex with multiple parents in a day and dont have scar tissue issues. Now that I am 37 and have matured sexually I have come to this realization.
@@dianafernandez5226 holy sh!t did you just compare the vaginal trauma of a trafficking victim to that of a porn star?
I'm sorry for your physical sand emotional pain. I understand. What helped me is knowing that Jesus LOVES you!!! He is the only one who can help you overcome your trauma. I love you. Be well, sis.
@@Renofirefly30 No, but sexual intercourse does not produce scar tissue. Hormonal imbalances do. I just bought a supplement at my local vitamin shoppe by the name of Serraptase. Hopefully it will help with my endo tissue and ovary cyst.
I had surgery and it didn't help...now I can't have kids.They are starting me on this new medication but I am worried because I have tried everything and nothing has helped so they just put me on pain medication.
Lindsay Flores why can’t you have kids? Are your tubes blocked?
I'm in the same boat! how to you handle it now? I'm afraid to try it.
have yall tried pelvic pain therapy?
@@latypeofgirl9382 because when I was 27 they gave me a partial hysterectomy because of the endo pain
@@leashkapeesh454 I never took the medication. I am going to try CBD oil to help with the pain.