Health Update | Living With Endo & A New Diagnosis
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- Опубликовано: 29 апр 2020
- My name is Greer! I make videos about my health, living with endometriosis, and all things lifestyle. Be sure to subscribe and hit that bell so you know when I upload new videos!
THIS VIDEO:
Here is a little update on how I have been since laparoscopic surgery for Endo in December of 2018. I have still be working to manage the pain, pelvic floor dysfunction, and interstitial cystitis.
After coping with so much, new symptoms came up and I went to see more doctors and get more tests. Two weeks ago a new doctor said they think I may have Mast Cell Activation Syndrome. I am starting treatment for it and remain hopeful that my health with improve.
LINKS
Information On Mast Cell Activation Syndrome/Disease.
tmsforacure.org/overview/ 
Хобби
Just please dont stop making content because it nice having someone to relate to
Just a heads up. My first surgery for endo was around 25. Then about 5 more times and 2 leeps. The miracle happened and at 38 got pregnant. Healthiest I had ever felt. After that, another surgery for endo. Lots of cutting tissue and burning. Doctor said time to do radical hysterectomy. Took it all. Well, that didn’t stop it. 3 more surgeries after that, still finding endo and having to cut scar tissue. Still have it on my bowel, but that would be major surgery and not just a procedure. Here’s the problem. Because of so many surgeries, I’m stuck with adhesions and scar tissue. Can’t do anymore cutting. Just makes it worse. So now at 58, I still live in pain 24/7 no relief ever due to adhesions. So, be careful of having tissue cut so much, (even though you get relief for at least a month) and having hysterectomy doesn’t guarantee no more endo. Really like your videos.
I’m sorry you going through. That .. I’m 31 been in pain for 15 years I’m in surgery 2 & they want to do it again & now they gave me orilisa yesterday but I haven’t taken it yet. I like natural remedies & I have a friend who now is ok after going to Dominican Republic 🇩🇴 & getting help there… I’m trying to heal myself I hope everybody feels better too🙏🏼❤️
So glad you're back! 😊 It's good to see your updates♥️
We missed you ❤️ thank you for sharing your journey with us. It’s so nice to not feel alone in a diagnosis.
Thank you for sharing! I have found your videos insightful and helpful in dealing with my own struggle to get diagnosed with endometriosis.
I will pray for you in my prayers
Thank you for sharing this!! 🤔
Hi there Greer.
I am so happy I came across your channel. I am an endo survivor dealing with the same symptoms you have, at the age of 21. I got diagnosed with endo in September, 2022. I had chronic pelvic pain, chronic back pain to the chronic fatigue. Living with this condition is horrible and I honestly don't wish it on anyone. For so long, I was trying to find a youtuber or someone on RUclips that can discuss living with their condition as I have never heard many stories on this condition. I am glad to hear you have been diagnosed with many new symptoms and that way it can help with treatement. You are very brave and courageous to discuss this with your subscribers as many are dealing with the same symptoms almost everyday.
Thank you for sharing your updates Greer, It really helps and I am praying for your health to improve and for to continue with getting the right treatement as this is important.
I pray we all find a treatment that works very well for all of us dealing with this condition.
Thank you, thank you, thank you. I have every single symptom, or have had in the past 10 to 15 years. I have had 1 laparoscopic surgery 4 years ago, and just had a burst cyst and now the doctor wants to do Orilssa (no way, liver issues already) or a hysterectomy, my child bearing years are over, but still I am hesitant. I am starting on a monthlong SERRAPEPTASE regimen, it works wonders as I did a monthlong regimen last year and had no pain at all until this cyst issue. I will do some research on mast cell activation and make an appt with my regular doctor who listens. AGAIN THANK YOU, what a blessing you are, and a beautiful home by the way.
many people are misdiagnoised due to doctors poor understanding of endo and that you can have it on your bowel, bladder all reproductive organs. it can spread to any part of your body. you should see some one who specializing in endo and excision surgery they have several doctors in atlanta, ga. Many times it presents like ibs, appendicitis, bladder infections, you will have severe fatigue because your body is working to fight the endo. Many times you will have a autoimmune disorder to accompany the endo such as allergies, thyroid disease, diabetes. And many times you have also uterine fibroids or adenomyosis along with endo also, uterine polyps, ovarian cyst. To help with the fatigue i take cardio for life its a supplement and multiple vitamins and i rest and stay hydrated reduce caffine and try to eat healthy. I went through the a same thing you are going through hopefully what im telling you helps
I have mast cell as well! im so sorry you are suffering with all this
I literally have all of these symptoms... even the degenerative disc disease... and the upper right abdominal pain. I don’t get the thrush and yeast infections. But everything else.... This is wild. I feel for you so much. This stuff is not fun. I’m miserable.
relate much watching from phils
I got severe abdominal pain when I had endometrium cyst
I missed your videos. I struggle with a lot of pain due to endometriosis.
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Any update? Hope you are doing good.
Question, I’m talking Orilissa, did it cause high blood pressure for you?
What type of specialist handles mast cell activation syndrome? I had laparoscopy 4 days ago. I went to a specialist and she was amazing but major pain under right side rib is still present.
The rash... I have that starts in between my breasts and then again left side above shoulder and back. My GP prescribed prednisone that did nothing and I've brought it up to multiple doctors and no one can tell me what's wrong . my eyes are sensitive to light . I've been diagnosed with IBS. my hair falls out all the time.
your channel helps me so much!! do you have an instagram?
Just a curious question. Are you still able to get pregnant after your surgery? Or it’s over no more children . Thanks
you look so much like Lydia West
I have allergies to i had to get tested for allergies and take daily drops to allow my body to build up immunity to things like grass, dust mites ect. But just know all of your symptoms mirrors alot of women who had been dx with endo
SERRAPEPTASE ... look this up ladies.
I just started serrapeptase for my fibroids. Trying to avoid myomectomy or the Uterine Artery Embolization procedure. Has serrapeptase helped you?
you dont all these symptoms are from endometrosis. try cardio for life it help with fatigue look on amazon. im a nurse practitioner also